Education & Recreation Guidelines for Schools receiving a pupil with the November 2006 MOVING ON PASSPORT WORKBOOK GUIDELINES Supporting Pupils with autistic spectrum disorder transferring from P7 – S1 Information for Senior Management Team and Support Staff This should be used with the transition passport workbook “Moving On” Introduction All children find transitions challenging, particularly when moving from the relative security of primary school to the very different world of secondary. Many networks have bridging programmes in place to ease transition, especially for more vulnerable children. Pupils with an autistic spectrum disorder (ASD) or difficulties which are similar to those of ASD, have particular difficulty because of their pervasive resistance to all change, however small. It is therefore, essential that any arrangements made in the passport, however small in detail, are adhered to, to avoid anxiety. It is inevitable that every secondary school will have pupils whose needs fall on the autistic spectrum. Current research suggests 1 in every 100. As part of Aberdeenshire’s strategy for supporting young people with autistic spectrum disorder, guidelines have been issued to support the development of an “autism friendly” environment and a staged procedure for identifying and documenting intervention. These are accompanied by information about autism with specific management suggestions. Training is available through the CPD planning cycle, the network autism support team currently piloted in Banchory, Fraserburgh, Ellon and Inverurie and the Educational Psychology Service. Pupils reaching secondary transfer will have the opportunity to develop a “Moving On” passport workbook containing as much information as possible about the youngster and how best to manage their learning environment to the benefit of pupil, classmates and teaching staff. It will be important to maintain the “Moving On” workbook throughout secondary school in preparation for the important transition to adult services. Networks will receive a resource bank of useful materials and contacts, e.g. website information. It will be open to networks to develop this resource and manage it appropriately. Information will be available on the Aberdeenshire website. Responsibility for pupil transfer lies ultimately with secondary staff. The “Moving On” passport workbook outlines the nature of bridging support necessary for a particular pupil. It will be very important for all staff working with the pupil to have autism awareness training in advance of the pupil arriving and opportunity to discuss specific management strategies once the pupil is known as an individual. The anxiety experienced by teachers when working with a pupil with ASD for the first time can be alleviated by following the procedures outlined and by a team approach. November 2006 Page -2- MOVING ON PASSPORT WORKBOOK GUIDELINES For induction day, it is important to specify only what will definitely happen. What is Autistic spectrum disorder? Autism is a complex lifelong developmental disability, which affects how a person thinks and makes sense of their world. Autistic spectrum is an umbrella term covering a wide range of issues affecting cognitive and behavioural development. It also includes terms such as Asperger syndrome, semantic pragmatic disorder and Tourettes syndrome. As autism is not a physical disability it can be invisible to the person who has no awareness or understanding of the condition. Some children with autism have an accompanying learning disability and may need to spend at least some of their education in a sheltered environment such as a special school or unit. As their developmental difficulties become obvious at an earlier age, usually around 2 years, diagnosis and placement is also likely to be earlier. There is, however, a significant group of children with ASD who are cognitively able, some exceptionally so. This group, referred to as having Asperger syndrome (AS) are less obvious and may be well through primary school without being identified and supported. Inappropriate behaviour, in response to what they find stressful, is often the presenting factor, e.g. hiding under the desk; screaming in a supermarket; not wanting to go out at playtime; antisocial behaviour such as biting or kicking. As a result, such children can be construed as “naughty” before a full picture leading to diagnosis is built up. There is as yet not cure but schools with an awareness of how a young person with ASD thinks and perceives his/her world can do much to manage the school environment in a way that alleviates barriers to learning. It is important to note that while there are core difficulties common to all, every interaction between pupil and school will be different and specific to that particular pupil and situation. People with autism demonstrate, to a greater or lesser extent, difficulties in three key areas, referred to as the “triad of impairments”: Social interaction: with initiating and maintaining appropriate relationships and with understanding the rules of two-way social interaction, e.g. appearing aloof because they don’t know how to join in, poor turn taking skills, invading ‘personal space’. Social communication: difficulty with verbal and non-verbal communication both in terms of expressing themselves and in understanding what others are communicating. There is often delay in the development of language, even in the most able. Imagination: inflexibility of behaviour and thought. People with ASD have a rigid unique way of thinking leading to a resistance to change, an insistence of set routines and repetitive behaviour. November 2006 Page -3- MOVING ON PASSPORT WORKBOOK GUIDELINES Associated characteristics: Sensory difficulties: people with ASD can be overly or under sensitive to sensory input, e.g. smells in a science room; a pat on the back for good work; the buzz of a strip light. There can also be a difficulty sifting out unnecessary information, e.g. the noise of a digger outside the classroom cannot be ignored. Motor difficulties: there may be physical difficulties such as posture. PE can be inadvisable. There are frequently difficulties with motor planning and organisation, e.g. getting homework in on time; bringing the right materials. Handwriting is often a weak area impacting across the curriculum. Specific learning difficulties: dyslexic features are often present, particularly in relation to committing ideas to paper. Young people with Asperger syndrome are, however, often avid readers. Sense of balance and sense of self in space: may be impaired, e.g. John hates it if you come too close but will, himself come too close to others. Ritualistic behaviour: in order to alleviate the stress caused by dealing with the three key impairments, rituals are common and need to be tolerated, e.g. lining up pencil case contents before starting a task. It will be clear that individuals with ASD are going to have great difficulty with change. They have a strong need for sameness and routine to support their understanding of daily events. Such children cannot see the whole picture. Small changes in the big picture can, therefore, upset stability, e.g. morning routine: line up; hang coat on peg; leave lunch box in tub; enter classroom and sit in seat. If any one of these routine moves is changed without prior warning and explanation, the pupil with ASD may not cope whereas everyone else will take change in their stride. At secondary level, the arrival of a supply teacher can be a major problem. In order to manage change successfully, young people with ASD need the changes clearly explained in ways that they understand. As children with ASD are visual thinkers, verbal explanation should be accompanied by visual support, e.g. a visual timetable or checklist of the order in which to do things. It is also very important to indicate the start and finish of any process. In order to move to secondary school, for example, there needs to be a clear finish to primary. November 2006 Page -4- MOVING ON PASSPORT WORKBOOK GUIDELINES Strategies for managing change for pupils with ASD Whole School Strategies When planning to welcome a pupil with ASD, it is important that there is a whole school understanding and awareness of the implications of ASD. A minimal requirement for all staff is a basic knowledge of the triad of impairments and their educational implications. This understanding will inform management generally, e.g. accommodation; environment; interventions and timetable. All staff members including non-teaching should have this awareness. Classroom Strategies Pupils with ASD feel more confident and secure when a classroom is structured with a predictable daily routine. It is important that teacher behaviour is also predictable. Warning should be given of any change in classroom routine, e.g. supply teacher; change in seating plan; change in lesson delivery etc. The classroom should be as distraction free as possible and the pupil allowed to sit in a position with minimal disruption, either physically or visually (near the door is often a chosen spot to allow an easy exit if anxious). Many pupils with ASD need to have a personal work space. Individual Supports When preparing for transfer, the pupil with ASD may need a personalised induction with access to the following: school times school personnel – digital photos of key staff school routines, e.g. entrance door; lunchtime routine; lunchtime activities; toilets; lockers etc school visits visits for secondary staff to primary personalised school planner a quiet space for respite a buddy a personalised map of the school with key places clearly marked personalised timetable with more detail than usual visual checklist for particular activities prior warning of any unexpected change, e.g. a supply teacher; a change of seating; a new wall display a personalised curriculum November 2006 Visual supports are particularly important Page -5- MOVING ON PASSPORT WORKBOOK GUIDELINES supported study for key areas, e.g. imaginative writing interval arrangements Homework arrangements: young people with ASD invariably have difficulty with homework. As schoolwork belongs in school, it can be difficult to transfer schoolwork to home. It may be necessary to make homework arrangements in school or to find a way of bridging the gap. Discussion between home, school and relevant staff such as the educational psychologist may help to establish guidelines. When management is appropriate pupils with ASD will succeed both academically and socially. It is their right to be as well prepared as possible for the intellectual and social demands of life beyond school. November 2006 Page -6-