New Jersey 2009
DEPARTMENT OF HUMAN SERVICES
PO BOX 700
TRENTON NJ 08625-0700
JON S. CORZINE
JENNIFER VELEZ
Governor
Commissioner
Dear Reader,
I take this opportunity to present the Resources 2009 directory, the ninth annual edition published by the New Jersey Department of Human Services’ Division of Disability Services
(DDS). This publication continues to be one of our department’s most sought after resource
for people with disabilities, their family members and advocates for its comprehensive,
statewide directory of programs and services.
DDS has successfully and consistently maintained this consumer friendly, useful tool of
resources available at all levels of government, community organizations and professionals
working to assist people with disabilities. The publication provides access to up-to-date information that individuals with disabilities, along with their families, may need to flourish in
their physical, professional and recreational lives.
I encourage you to use the publication and to share it with others within your community.
A certified Information and Referral Specialist is also available to discuss your individual
concerns, problems or issues, and can provide direct assistance by phone at 1-888-285-3036
(toll free). The more we communicate about issues, the more likely we are to better
understand them.
As always, your comments and suggestions are welcome.
Regards,
Jennifer Velez
Commissioner
New Jersey Is An Equal Opportunity Employer
USING RESOURCES 2009
Submit changes to:
Joseph Amoroso
New Jersey Department of Human Services
Division of Disability Services
PO Box 700
Trenton, NJ 08625-0700
Joseph.Amoroso@dhs.state.nj.us
Resources 2009 provides easy access to information about programs and services available for residents
living and working with disabilities and the families, advocates and professional communities working
to assist people with disabilities. The New Jersey Department of Human Services’ (DHS) Division of
Disability Services developed the directory, and encourages you to contact the division if you have any
questions or difficulty using it.
REPORTING CORRECTIONS AND UPDATES
The programs and agencies listed in this directory are asked to report any information changes as quickly as possible.
NEED ADDITIONAL ASSISTANCE
Should you require additional or updated information, please call 1-888-285-3036, the Division of
Disability Services, and ask to speak to an Information and Referral Specialist.
DISCLAIMER
The DHS Division of Disability Services reserves the right to publish items selectively, as space permits.
Listed items are not necessarily under the jurisdiction of the Department of Human Services, and their
listing does not imply endorsement.
DIVISION OF DISABILITY SERVICES
888-285-3036
DIVISION OF DISABILITY SERVICES
CONTACT INFORMATION
William A.B. Ditto, Director
Javier Robles, Deputy Director
MAILING ADDRESS: 222 South Warren Street
PO Box 700, Trenton, NJ 08625-0700
TELEPHONE:
FAX:
TDD:
INTERNET:
(888) 285-3036 (Toll Free)
(609) 292-7800
(609) 292-1233
(609) 292-1210
www.state.nj.us/humanservices/dds
TABLE OF CONTENTS
DIVISION OF DISABILITY SERVICES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .1, 2
I
STATE GOVERNMENT AGENCIES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .3
II
DISABILITY RELATED STATE GOVERNMENT RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . .4-16
III
COUNTY RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .17-20
IV
DISABILITY SPECIFIC RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .21-26
V
INTERNET RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .27-28
VI
ADVOCACY RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .29-30
VII
PROFESSIONAL AND PROVIDER ORGANIZATIONS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .31
VIII
SERVICE ANIMAL RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .31
IX
RECREATION RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .31
X
TECHNOLOGY RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .32
XI
NATIONAL RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .32-33
XII
RESEARCH RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .34
XIII
RIGHTS AND LAWS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .34-36
XIV
HEALTH COVERAGE RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .37-41
XV
FINANCIAL ASSISTANCE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .42
XVI
EARLY INTERVENTION RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .43
XVII EDUCATION RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .44
XVIII EMPLOYMENT AND TRAINING RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .45-48
XIX
HOUSING RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .49-50
XX
PERSONAL ASSISTANCE SERVICES AND CAREGIVER RESOURCES . . . . . . . . . . . . . . . . . . . .51
XXI
TRANSPORTATION RESOURCES . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .52
XXII SERVICES TO CHILDREN . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .53-54
APPENDIX 1 New Jersey Handicapped Parking Laws . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .55
APPENDIX 2 Special Needs Adoption and Foster Care . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .55
APPENDIX 3 People First Language . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .56
APPENDIX 4 Addiction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .57
APPENDIX 5 Service Animals . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .57
APPENDIX 6 Disaster Preparedness Checklist for People with Disabilities . . . . . . . . . . . . . . . . . . . . . . . .58-59
APPENDIX 7 Traveling with a Disability . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .60
APPENDIX 8 Famous ADA Cases . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .61
APPENDIX 9 Hotlines & Toll Free Numbers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .62
APPENDIX 10 TTY Conversation Etiquette . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .63
GLOSSARY . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .63-66
ABBREVIATIONS AND ACRONYMS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .67
INDEX
. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .68-77
DIVISION OF DISABILITY
SERVICES (DDS)
MISSION STATEMENT
The New Jersey Department of Human Services
Division of Disability Services promotes and facilitates the maximum independence and participation
of people with disabilities in all aspects of community life through active information exchange and
the provision of community services. DDS supports
and fosters coordination and cooperation among all
government agencies.
OFFICE OF INFORMATION AND
ASSISTANCE SERVICES
“The first place to call for disability-related information”
INFORMATION AND REFERRAL SERVICES
The Division of Disability Services is a single point
of entry for all people seeking disability related
information in New Jersey. Certified Information
and Referral Specialists are available to confidentially discuss issues and to provide information,
assist with problem solving, and to refer individuals
to appropriate agencies or services. Use of a customized database allows for calls to be tracked
and information to be stored for quality customer
service.
TRAUMATIC BRAIN INJURY FUND
The purpose of the Traumatic Brain Injury (TBI)
Fund is to provide New Jersey residents who have
survived an acquired brain injury the opportunity to
access the brain injury related services and supports
they need to live in the community. The Fund purchases supports and services to foster independence
and maximize quality of life. This Fund is used
where insurance, personal resources, and/or public
programs are unavailable to meet the needs of the
applicant. A portion of the Fund is also used to support public education, outreach, and prevention
activities related to TBI.
OFFICE OF HOME AND COMMUNITY
SERVICES
The Office of Home and Community Services is
responsible for the administration of three Medicaid
Waiver Programs serving people with disabilities
and Medicaid Personal Care Assistant (PCA)
Services.
1
TRAUMATIC BRAIN INJURY (TBI) WAIVER
The TBI Waiver serves people between 21 and 64
who have an acquired brain injury. People in the
program receive full Medicaid benefits plus additional services including case management, structured day program, neuropsychology, community
residential services, night supervision, respite care
and cognitive therapy.
AIDS COMMUNITY CARE ALTERNATIVES PROGRAM
(ACCAP) WAIVER
The ACCAP Waiver serves people with AIDS of any
age and children up to age 13 who are HIV positive.
It provides full Medicaid benefits plus case management, private-duty nursing, medical day care,
expanded personal care assistant services, certain
narcotic and drug abuse treatments at home and hospice care.
COMMUNITY RESOURCES FOR PEOPLE WITH
DISABILITIES (CRPD) WAIVER
The CRPD Waiver was created by incorporating
three long-standing Medicaid “Model” Waiver
Programs into one larger waiver. All individuals
served under this waiver must meet, at a minimum,
the “nursing facility level of care,” be financially eligible for Medicaid waiver coverage, and require the
services offered under the waiver. The waiver is
open to individuals with disabilities of all ages.
Individuals in the CRPD Waiver Program receive
case management services, in addition to all
Medicaid State Plan services. Individuals meeting
specific clinical criteria can receive private duty
nursing services of up to 16 hours per day.
MEDICAID PERSONAL CARE ASSISTANT (PCA)
SERVICES
Personal Care Assistant Services (PCA) are available statewide and reimbursed by the New Jersey
Medicaid Program for adults and children who are
eligible for Medicaid services in the community. The
purpose of personal care is to accommodate longterm chronic or maintenance health care as opposed
to short-term skilled care as provided under
Medicaid’s home health program. PCA services are
health-related tasks performed by qualified staff in
an eligible beneficiary’s home or workplace, not to
exceed 40 hours per week, based on clinical assessment and requiring prior authorization. Services
include assistance with activities of daily living and
household duties essential to the individual’s health
and comfort. This program utilizes over 230 PCA
provider agencies to serve over 27,000 New Jersey
residents per month.
DISABILITY HEALTH AND WELLNESS INITIATIVES
This project involves health promotion and prevention
of secondary conditions for people with disabilities. In
addition, the project works to improve state surveillance activities, conduct health promotion interventions and facilitate partnerships between state and
research or service-based agencies.
SPECIAL PROJECTS AND INITIATIVES
MEDICAID INFRASTRUCTURE GRANT
Through a grant from the Centers for Medicare and
Medicaid Services (CMS), this project conducts a variety of activities to promote employment for people
with disabilities, including the NJ WorkAbility
Program (See Pages 47 and 48) and the development of
comprehensive employment systems to promote
employment opportunities for people with disabilities.
Other projects include the development of the two
Internet portals listed below to provide transportation
information and benefits calculation assistance to individuals with disabilities who are employed or seeking
employment.
NEW JERSEY HOUSING RESOURCE CENTER
The Housing Resource Center provides individuals
with information on accessible and affordable housing
throughout the state. This project was made possible
through a partnership between the Division of
Disability Services, the Department of Community
Affairs and the NJ Housing Mortgage Finance Agency.
To access the Center, go to www.njhousing.gov.
NJ FINDARIDE
This website is designed to be an information resource
about accessible transportation options available to
people with disabilities and others in New Jersey.
Please visit www.njfindaride.com.
NEW JERSEY NURSE DELEGATION PILOT PROJECT
The New Jersey Nurse Delegation Pilot Project is funded by the Robert Wood Johnson Foundation to explore
the idea of registered professional nurses delegating
skilled tasks to certified home health aides, so that consumers who need these services can remain in their
homes or be discharged back to the community from
nursing homes. The project also includes a research
component to identify best practices and to monitor
outcomes during the pilot.
BENEFITS TO WORK CALCULATOR
This website is a helpful tool to show how Social
Security benefits may change if you take a job. This
site is designed to assist job seekers aged 16 to 64. To
access the calculator go to www.njdb101.org.
STATUTORY ADVISORY BOARDS
AND COUNCILS
PERSONAL ASSISTANCE SERVICES PROGRAM (PASP)
PASP provides routine, non-medical assistance to
adults with disabilities who are 18 to 65, employed,
preparing for employment, involved in community volunteer work or attending school. Personal assistants
help with tasks such as light housekeeping, bathing,
dressing, preparing meals, shopping, driving or using
public transportation. The number of hours a person
receives depends on individual need up to 40 hours per
week. The individual must be capable of directing his
or her own care (See Page 51).
NEW JERSEY ADVISORY COUNCIL ON TRAUMATIC
BRAIN INJURY
The Division of Disability Services, as the state’s designated lead agency for brain injury services, serves as
staff to the NJ Advisory Council on Traumatic Brain
Injury. The Council, mandated under PL 2001,
Chapter 332, is composed of 26 members. The
Council holds quarterly public meetings and advises
the Department of Human Services on matters related
to brain injury services.
PERSONAL PREFERENCE: NEW JERSEY CASH AND
COUNSELING PROGRAM
This service allows Medicaid recipients who are eligible for Medicaid PCA services to direct their own care.
Through use of a monthly cash allowance, participants
work with a consultant to develop a cash management
plan by which they decide the services needed and the
individuals and/or agencies to hire to provide the identified services. The program requires greater consumer
responsibility but offers participants greater control,
flexibility and choice.
PERSONAL ASSISTANCE SERVICES ADVISORY COUNCIL
The Personal Assistance Services Program (PASP),
under the supervision of the New Jersey Department of
Human Services, Division of Disability Services, is
required by law to have a statewide PASP Advisory
Council. The PASP Advisory Council provides a
means for consumers to express opinions and views
that will affect the quality of personal assistance in
New Jersey. The PASP Advisory Council is designed to
review and evaluate the effectiveness of the program,
and to make recommendations to improve the overall
program statewide.
2
I
STATE GOVERNMENT AGENCIES
The Office of the Governor and the cabinet departments are listed below. Detailed information on the state
agencies that specifically address the concerns of people with disabilities can be found in the subsequent
sections of the directory.
DEPARTMENT OF LAW & PUBLIC SAFETY
Tel: (609) 292-4925
FAX: (609) 292-3508
OFFICE OF THE GOVERNOR
Telephone: (609) 292-6000
FAX: (609) 292-3454
Honorable Jon S. Corzine, Governor
State of New Jersey
DEPARTMENT OF MILITARY & VETERAN’S AFFAIRS
Tel: (609) 530-6957
FAX: (609) 530-7191
State of New Jersey Homepage
www.state.nj.us
www.nj.gov
DEPARTMENT OF PERSONNEL
Tel: (609) 292-4145
FAX:
(609) 984-3631
DEPARTMENT OF THE PUBLIC ADVOCATE
Tel: (609) 826-5090
FAX: (609) 984-4747
DEPARTMENT OF THE SECRETARY OF STATE
Tel: (609) 777-0884
FAX: (609) 777-1764
DEPARTMENTS
DEPARTMENT OF AGRICULTURE
Tel: (609) 292-3976
FAX:
(609) 292-3978
DEPARTMENT OF BANKING & INSURANCE
Tel: (609) 292-5360
FAX: (609) 984-5273
DEPARTMENT OF TRANSPORTATION
Tel: (609) 530-2000
FAX: (609) 530-2919
DEPARTMENT OF THE TREASURY
Tel: (609) 292-6748
FAX:
(609) 984-3888
DEPARTMENT OF CHILDREN & FAMILIES
Tel: (609) 984-4500
FAX: (609) 341-2088
DEPARTMENT OF COMMUNITY AFFAIRS
Tel: (609) 292-6420
FAX: (609) 984-6696
DEPARTMENT OF CORRECTIONS
Tel: (609) 292-4036
FAX:
(609) 292-9083
DEPARTMENT OF EDUCATION
Tel: (609) 292-4469
FAX:
(609) 777-4099
DEPARTMENT OF ENVIRONMENTAL PROTECTION
Tel: (609) 292-2885
FAX: (609) 292-7695
DEPARTMENT OF HEALTH & SENIOR SERVICES
Tel: (800) 367-6543
FAX: (609) 292-0053
(609) 292-7837
DEPARTMENT OF HUMAN SERVICES
Tel: (609) 292-3717
FAX: (609) 292-3824
DEPARTMENT OF LABOR & WORKFORCE
DEVELOPMENT
Tel: (609) 292-2323
FAX: (609) 633-9271
3
NJ Homeland Security
www.njhomelandsecurity.gov
866-4-SAFE-NJ
NJ State Police
www.njsp.org
NJ Office of Emergency Management
www.state.nj.us/njoem
609-882-2000
(for emergencies, call “911”)
Office of Legislative Services
800-792-8630
II
DISABILITY RELATED STATE GOVERNMENT RESOURCES
FEDERALLY MANDATED DEVELOPMENTAL
DISABILITY AGENCIES
NEW JERSEY COUNCIL ON
DEVELOPMENTAL DISABILITIES
The New Jersey Council on Developmental
Disabilities is New Jersey’s planning body for developmental disabilities issues. Members are appointed
by the governor and approved by the New Jersey
Senate. Members include people with developmental disabilities and parents or guardians; non-governmental service providers; and representatives
from state agencies that provide services to people
with developmental disabilities and to their families.
The Council develops and monitors the State Plan
for Services to People with Developmental
Disabilities and administers the federally assisted
Basic State Grant Program, and publishes People
With Disabilities and Families magazine.
New Jersey Council on Developmental
Disabilities
PO Box 700
Trenton, NJ 08625-0700
Telephone: (800) 792-8858 (toll free)
(609) 292-3745
TDD:
(609) 777-3238
FAX:
(609) 292-7114
Alison Lozano, Ph.D., Executive Director
www.njddc.org
vides legal services and responds to complaints from
individuals and their families, as well as from community groups. It also provides training for people
with disabilities and their families to assist them to
advocate for themselves.
In 1997, DRNJ assumed administration of the federally funded New Jersey Technology Assistive
Resource Program (TARP), now known as the
Assistive Technology Advocacy Center (ATAC),
which works to make assistive devices and services
more accessible to consumers.
Disability Rights New Jersey
(formerly New Jersey Protection and Advocacy, Inc.)
210 South Broad Street, 3rd Floor
Trenton, NJ 08608
Telephone: (609) 292-9742
Toll Free:
(800) 922-7233
TDD:
(609) 633-7106
FAX:
(609) 777-0187
Joseph B. Young Esq., Executive Director
www.drnj.org
DISABILITY RIGHTS NEW JERSEY
AT A GLANCE
• Protection and Advocacy for Persons with
Developmental Disabilities (PADD)
• Protection and Advocacy for Individuals
with Mental Illness (PAIMI)
NEW JERSEY COUNCIL ON
DEVELOPMENTAL DISABILITIES
AT A GLANCE
• Protection and Advocacy of Individual
Rights (PAIR)
• Family Support
• The Monday
• Women’s Health
Morning Project
• Partners In Policymaking • Inclusive Education
For Information: (609) 292-3745
• Client Assistance Program (CAP)
• Protection and Advocacy for Assistive
Technology (PAAT)
• Healthcare Consumer Assistance Program
(HCCAP)
DISABILITY RIGHTS NEW JERSEY
(FORMERLY NEW JERSEY PROTECTION AND
ADVOCACY)
• Assistive Technology Advocacy Center (ATAC)
Disability Rights New Jersey (DRNJ) is a non-profit consumer directed organization that serves as New
Jersey’s federally funded protection and advocacy
system for persons with disabilities.
The program was established to protect and advocate for the rights of citizens with disabilities in the
areas of guardianship, habilitation, medical treatment, education, employment, protection from
harm, transportation, and other civil rights. It pro4
• Traumatic Brain Injury Protection and
Advocacy (PATBI)
• Protection and Advocacy for Beneficiaries of
Social Security (PABSS)
• Protection and Advocacy for Voter Access (PAVA)
For Information: (800) 922-7233
ELIZABETH M. BOGGS CENTER ON
DEVELOPMENTAL DISABILITIES
BOGGS CENTER AT A GLANCE
The Boggs Center addresses the needs of
communities, people with disabilities, and
families through activities in the focus areas of:
“A UNIVERSITY CENTER FOR EXCELLENCE IN
DEVELOPMENTAL DISABILITIES EDUCATION,
RESEARCH, AND SERVICE”
• Early Intervention
• Self-Determination
and Education
• Employment
• Community Supports • Health
The Elizabeth M. Boggs Center on Developmental
Disabilities, UMDNJ-Robert Wood Johnson
Medical School, valuing the diversity and worth of
all people, promotes the full membership and contribution of children and their families in all aspects of
community life.
For Information: (732) 235-9300
http://rwjms.umdnj.edu/boggscenter
The Elizabeth M. Boggs Center on
Developmental Disabilities
UMDNJ-Robert Wood Johnson Medical School
335 George Street, 3rd Floor, PO Box 2688
New Brunswick, NJ 08903-2688
Telephone:
(732) 235-9300
FAX:
(732) 235-9330
Deborah Spitalnik,Ph.D., Executive Director
http://rwjms.umdnj.edu/boggscenter
Through partnerships and collaborations, The Boggs
Center fulfills this mission in a culturally competent
manner by providing community training and technical assistance, interdisciplinary preservice preparation of students and fellows, and dissemination of
information, research findings, and educational
materials.
KEYS TO SUCCESSFUL SELF-ADVOCACY
✐ Make sure you have an accurate understanding of what is needed - When advocating for equipment or
services, make sure you have all the details and product information. If insurance is being used, ask if there are
preset guidelines or requisite information that is always needed. This will save time during the application process.
✐ Be prepared to assist professionals who may have limited experience - Your family doctor may be great, but he
or she may have little or no experience in writing prescriptions for wheelchairs. Add your productive two-cents
by discussing your needs, and giving as much detail as possible about what you are looking for. Some consumers
prefer to use agencies for equipment and service evaluations before approaching a doctor for authorization.
✐ Understand your insurance benefits - Review the terms of each program and policy. Pay careful attention to copays, service limits, replacement, and equipment ownership. These issues become especially important for parents
with children, who will outgrow equipment, or those whose functional abilities may change with time. Remember,
you may always appeal an insurance company’s decision in the event of a denial, even an HMO.
✐ Seek help from others who have succeeded - Peer support is the greatest tool to an advocate. The information
that you get from peers can be priceless. Learn from those who have done it before.
✐ Keep accurate notes - Include dates, all contact names, and phone numbers.
✐ Find the line between advocacy and aggression - A successful advocate lets the system work for them. Allow
professionals to do their jobs. Stay vigilant, but don’t be a pest.
✐ Be prepared to wait - Most agencies have waiting lists, processing periods, and lots of paperwork to be done. This
takes time, be prepared for some delays.
5
DEPARTMENT OF HUMAN SERVICES
OFFICE OF THE COMMISSIONER
PO Box 700
Trenton, NJ 08625-0700
Telephone: (609) 292-3717
FAX: (609) 292-3824
The Department of Human Services, the largest department in New Jersey state government, provides support
services for people with disabilities and their families, as
well as programs for mental health consumers, protective
services for children, the New Jersey Medicaid program,
food stamps, child care, financial assistance, and adoption services.
HOTLINES
Good Neighbors
(877) DHS-LINE
COMMISSION FOR THE BLIND AND VISUALLY
IMPAIRED (CBVI)
The Commission for the Blind and Visually Impaired
(CBVI), established in 1910, is one of the oldest continually operating agencies in New Jersey state government.
It provides a wide range of educational services for children, vocational rehabilitation services for older teens
and adults, and independent living services for people of
all ages in New Jersey who are blind or visually
impaired. CBVI also offers a number of special programs
and services that address specific needs of individuals
who are blind or visually impaired.
NJ Care 2000+
Family Care
Health Access
(800) 701-0710
NJ Addictions
Hotline
(800) 238-2333
NJ Mental Health Cares
(866) 202-HELP
CBVI Central Region Office
1510 Hooper Avenue, Suite 240
Toms River, NJ 08753
Telephone:
(732) 255-0723
(Hunterdon, Monmouth, Mercer, Middlesex,Ocean,
Somerset and Union counties)
CBVI programs and services are available to any New
Jersey resident who meets the vision criteria. Depending
on family income, some people who apply are required
to pay a share of the cost of programs or services.
CBVI JOSEPH KOHN REHABILITATION CENTER
130 Livingston Avenue
New Brunswick, NJ 08901
Telephone:
(732) 937-6363
COMMISSION FOR THE BLIND AND VISUALLY
IMPAIRED (CBVI) - CENTRAL OFFICE
PO Box 47017
153 Halsey Street, 6th Floor
Newark, NJ 07101
Telephone: (877) 685-8878
(973) 648-3333
FAX:
(973) 648-3389
DIVISION OF DEAF AND HARD OF HEARING
The Division of the Deaf and Hard of Hearing (DDHH)
serves people in New Jersey who are deaf or hard of
hearing by providing advocacy, employment and vocational opportunities, and by assisting with a wide variety
of social, legal, medical, educational, and recreational
issues.
CBVI FIELD OFFICES:
CBVI Metro/Northern Region Office
PO Box 47017
153 Halsey Street, 5th Floor
Newark, NJ 07101
Telephone:
(973) 648-2111
(Bergen, Essex, Hudson, Morris, Passaic and Sussex
counties)
The DDHH administers New Jersey’s primary sign language interpreter referral service, provides assistance
through an information and referral hotline and publishes a monthly newsletter as well as other resource information. DDHH distributes Text Telephone equipment
and Voice Carryover Phones to assist individuals in their
daily activities.
CBVI Hammonton Office
40 North Whitehorse Pike
Hammonton, NJ 08037
Telephone:
(609) 704-6000
(Atlantic, Cape May, Cumberland and Salem counties)
DIVISION OF DEAF AND HARD OF HEARING
PO Box 074
Trenton, NJ 08625-0074
Telephone (Voice/TTY):(800) 792-8339
(609) 984-7281
FAX:
(609) 984-0390
CBVI Southern Region Office
2201 Route 38 East, Suite 600, Cherry Hill, NJ 08002
Telephone:
(856) 614-3000
(Atlantic, Burlington, Camden, Cape May, Cumberland,
Gloucester and Salem counties)
6
DIVISION OF DEVELOPMENTAL
DISABILITIES (DDD)
The Division of Developmental Disabilities (DDD) provides funding for services and supports that assist people
with developmental disabilities. Most of these services
are offered in the community by more than 250 New
Jersey agencies through contracts with the division.
DDD also operates seven residential developmental centers, which are home to approximately 2900 individuals.
100 Hamilton Plaza, 7th Floor
Paterson, NJ 07505
Telephone:
(973) 977-4004
FAX:
(973) 279-5069
(Bergen, Hudson and Passaic counties)
Upper Central Region
59 Main Street
West Orange, NJ 07052
Telephone:
(973) 324-2000
FAX:
(973) 324-2022
(Somerset and Union counties)
DDD determines who is eligible to receive the services it
funds through an application process. In general, to
receive these services, you must show that you have a
severe, chronic physical and/or mental impairment that
manifests in the developmental years, before age 22 and
is life-long. It also must substantially limit you in at least
three of these life activities: self-care, learning, mobility,
communication, self-direction, economic self sufficiency
and the ability to live independently.
153 Halsey Street, 2nd Floor
P. O. Box 47013
Newark, NJ 07101
Telephone:
(973) 693-5080
FAX:
(973) 648-3999
(Essex County)
Lower Central Region
32 Hanover Street
P. O. Box 706
Trenton, NJ 08625-0700
Telephone:
(609) 292-4500
FAX:
(609) 292-4219
(Hunterdon, Mercer and Middlesex counties)
Qualifiying conditions may include mental retardation, cerebral palsy, epilepsy, spina bifida,
autism or a neurological impairment.
DDD funds three types of services:
•
•
•
Day services, including supports for
people who are employed
Residential services that support an
individual in the community
Services that support a family caring for
a loved one at home
Juniper Plaza, Suite 1-11
3499 Route 9 North
Freehold, NJ 07728
(732) 863-4500
Telephone:
FAX:
(732) 863-4406
(Monmouth and Ocean counties)
DIVISION OF DEVELOPMENTAL
DISABILITIES (DDD) - CENTRAL OFFICE
P.O. Box 726
Trenton, NJ 08625-0726
Telephone:
(800) 832-9173
(609) 631-2200
FAX:
(609)-631-2217
Southern Region
2 Echelon Plaza
221 Laurel Road, Suite 210
Voorhees, NJ 08043
Telephone:
(856) 770-5900
FAX:
(856) 770-5935
(Burlington, Camden and Gloucester counties)
DDD COMMUNITY SERVICES REGIONAL
OFFICES:
5218 Atlantic Avenue, Suite 205
Mays Landing, NJ 08330
(609) 476-5200
Telephone:
FAX:
(609) 909-0656
(Atlantic, Cape May, Cumberland, and Salem counties)
Northern Region
1B Laurel Drive
Flanders, NJ 07836
Telephone:
(973) 927-2600
FAX:
(973) 927-2689
(Morris, Sussex and Warren counties)
7
DIVISION OF MEDICAL ASSISTANCE AND
HEALTH SERVICES
PO Box 712
Trenton, NJ 08625-0712
Telephone: (609) 588-2600
FAX:
(609) 588-3583
DIVISION OF MENTAL HEALTH SERVICES
The Division of Mental Health Services (DMHS) serves
adults with serious and persistent mental illnesses, as
well as children and adolescents with emotional and
behavioral disorders. Central to the DMHS’ mission is
the fact that these individuals are entitled to dignified and
meaningful lives.
For Medical Assistance Customer Centers
(MACCs), See Page 40
DMHS operates six psychiatric hospitals, monitors and
helps fund psychiatric services provided by a number
of county hospitals, and contracts with more than 120
agencies for a wide range of community mental health
services. Services may be accessed by contacting a
County Mental Health Administrator or a county screening center.
DIVISION OF FAMILY DEVELOPMENT
PO Box 716
Trenton, NJ 08625-0716
Telephone: (609) 588-2400 or 2000
FAX:
(609) 588-3369
DIVISION OF ADDICTION SERVICES
PO Box 362
Trenton, NJ 08625-0362
Telephone: (609) 292-7232
FAX:
(609) 292-3816
DIVISION OF MENTAL HEALTH SERVICES
PO Box 727
Trenton, NJ 08625-0727
Telephone: (800) 382-6717
(609) 777-0702
FAX:
(609) 777-0662
DIVISION OF DISABILITY SERVICES
PO Box 700
Trenton, NJ 08625-0700
Telephone: (888) 285-3036
(609) 292-7800
FAX:
(609) 292-1233
TDD:
(609) 292-1210
NJMentalHealthCares
NJMentalHealthCares is New Jersey’s mental health
information and referral service. Our staff of mental
health professionals use their experiences, and
understanding of mental health system to connect
you to the information and services you need!
See Page 1 and 2
OFFICE FOR PREVENTION OF MENTAL
RETARDATION & DEVELOPMENTAL
DISABILITIES
PO Box 700
Trenton, NJ 08625-0700
Telephone: (609) 984-3351
FAX:
(609) 984-7963
866-202-HELP (4357)
TTY: 877-294-4356
www.njmentalhealthcares.org
8:00 a.m. - 8:00 p.m.
• Connects you to mental health services including:
inpatient and outpatient services, rehabilitation
services, self-help services, legal, housing,
employment, mental health education and more!
• Provides assistance in finding services, not crisis
intervention. If you feel you need emergency psychiatric services, please call your local crisis center
(listed on page 19).
Catastrophic Illness in Children
Relief Fund
See Page 42
For Additional Addiction Resources
See Page 57
For Statewide Clinical Consultation
(SCCAT), See Page 38
8
DEPARTMENT OF HEALTH AND SENIOR
SERVICES
OFFICE OF THE COMMISSIONER
PO Box 360
Trenton, NJ 08625
Telephone (609) 292-7837
Toll-Free: (800) 367-6543
FAX (609) 292-0053
The Department of Health and Senior Services is responsible for overseeing and inspecting the state’s health care
facilities, city and county health departments, and community health services, along with protecting the public
health. In 1996, the department added programs for senior citizens to its jurisdiction.
SENIOR INFORMATION LINE
(800) 792-8820
PAAD/Senior Gold Pharmacy Hotline
(800)792-9745
OFFICE OF MINORITY AND
MULTICULTURAL HEALTH
PO Box 360
Trenton, New Jersey 08625
Telephone: (609) 292-6962
FAX:
(609) 292-8713
•
Northern Regional Office
973-648-4691
Bergen, Essex, Hudson, Morris, Passaic, Sussex,
and Warren Counties
DIVISION OF HIV/AIDS SERVICES
PO Box 363
Trenton, NJ 08625-0363
Telephone: (609) 984-5874
FAX:
(609) 633-2494
•
NJ AIDS/STD Hotline
(800) 624-2377
•
AIDS Drug Distribution Program (ADDP)
(877) 613-4533
•
Health Insurance Continuation Program (HICP)
(800) 353-3232
Central Regional Office
732-777-4650
Hunterdon, Middlesex, Monmouth, Ocean,
Somerset, and Union Counties
Southern Regional Office
609-704-6050
Atlantic, Burlington, Camden, Cape May,
Cumberland, Gloucester, Mercer, and Salem Counties
DIVISION OF AGING AND
COMMUNITY SERVICES
PO Box 807
Trenton, NJ 08625-0807
Telephone: (609) 943-3345
FAX:
(609) 943-3343
•
•
•
•
•
•
•
Community Choice Options
(877) 856-0877
Assisted Living and Adult Family Care Services
(AL/AFC)
Global Options (GO)
Medical Day Care
Social Adult Day Care (SADC)
Congregate Housing Services Program
Jersey Assistance for Community Caregivers
(JACC)
Alzheimer’s Adult Day Services Program
(609) 943-3475
•
•
•
•
Adult Protective Services
State Health Insurance Program (SHIP)
Statewide Respite Care Program
NJ EASE
(877) 222-3737
•
Aging and Disability Resource Connection
(ADRC)
(609) 943-3429
•
Office of the Public Guardian
(609) 530-8810
DIVISION OF SENIOR BENEFITS AND
UTILIZATION MANAGEMENT
PO Box 715
Trenton, NJ 08625-0715
Telephone: (609) 588-7097
(800) 792-9745 (Toll Free)
FAX:
(609) 631-4668
•
•
For further information on
NJ EASE and
Adult Protective Services,
See Page 20
•
•
•
9
Pharmaceutical Assistance to the Aged and
Disabled (PAAD)
Hearing Aid Assistance to the Aged and
Disabled (HAAAD)
Senior Gold Prescription Discount Program
Lifeline Utility Assistance Program
Specified Low-Income Medicare Beneficiary
(SLMB
DIVISION OF HEALTH FACILITIES EVALUATION AND LICENSING
PO Box 367
Trenton, NJ 08625-0365
Telephone:
(609) 633-8181
FAX:
(609) 633-9087
DIVISION OF FAMILY HEALTH SERVICES
PO Box 364
Trenton, NJ 08625-0364
Telephone:
(609) 292-4043
FAX:
(609) 292-9599
Early Intervention Systems (EIS)
(800) 322-8174
Health Care Facility Consumer Complaint
Hotline (800) 792-9770
Also See Page 43
Assisted Living Program
Residential Health Care Program
Long Term Care Program
(609) 633-8993
Statewide Family Centered HIV
Care Network (609) 777-7748
Also See Page 37
CENTER FOR HEALTH STATISTICS
PO Box 360
Trenton, NJ 08625-0360
Telephone:
(609) 984-6702
FAX:
(609) 984-7633
Newborn Biochemical Screening Program
(609) 292-1582
Special Child and Adult Health Services
COMMISSION ON SPINAL CORD RESEARCH
PO Box 360
Trenton, NJ 08625-0360
Telephone:
(609) 292-4055
FAX:
(609) 943-4213
Also See Page 37
Special Supplemental Nutrition Program for
Women, Infants, and Children (WIC)
(866) 44NJWIC
COMMISSION ON BRAIN INJURY RESEARCH
PO Box 360
Trenton, NJ 08625-0360
Telephone:
(609) 633-6465
FAX:
(609) 984-4069
Also See Page 37
COMMUNITY CHOICE OPTIONS
Telephone: (877) 856-0877
The Community Choice Options program is designed to select appropriate short-term Medicaid Nursing Facility residents, provide them with choices of community-based alternatives and coordinate their discharge. This program
encourages those individuals capable of living in the community to do so. Consumers are identified, encouraged to
consider alternative housing with the necessary support services and assisted as they make the transition from a nursing facility to community housing.
GLOBAL OPTIONS (GO) FOR LONG-TERM CARE
The Department of Health and Senior Services has consolidated three Medicaid-supported home and communitybased services (CAP, ECO, and CCPED) into a single waiver program called Global Options (GO) for Long-Term
Care. To be eligible, and individual must have a disability and be between the ages of 21 and 64, or be a senior aged
65 or over, and must need the level of care provided in a hospital, a nursing facility, or and intermediate care facility.
Service packages are based on individual client needs.
To obtain more information about GO, as well as other state-funded or private pay home and community-based longterm care services, call your local Area Agency on Aging toll-free at (877) 222-3737, or visit the Division of Aging
and Community Services website at www.aging.nj.gov.
10
DEPARTMENT OF COMMUNITY AFFAIRS
OFFICE OF THE COMMISSIONER
PO Box 800
Trenton, NJ 08625-0800
Telephone: (609) 292-6420
FAX: (609) 984-6696
The Department of Community Affairs provides a variety of services to low-income families, women, and persons with disabilities. Services include assistance with
rentals, the federal Section 8 voucher program, and
emergeny shelter grants and homelessness prevention.
DOMESTIC VIOLENCE HOTLINE
(800) 572-SAFE
DIVISION OF CODES AND STANDARDS
PO Box 802
Trenton, NJ 08625-0802
Telephone: (609) 292-7899
FAX:
(609) 633-6729
WOMEN’S REFERRAL HOTLINE
(800) 322-8092
COUNCIL ON AFFORDABLE HOUSING
PO Box 813
Trenton, NJ 08625-0813
Telephone: (609) 292-3000
FAX:
(609) 633-6056
DIVISION OF FIRE SAFETY
PO Box 809
Trenton, NJ 08625
Telephone: (609) 633-6106
FAX:
(609) 633-6134
OFFICE OF RECREATION
Commision on Recreation for Individuals
with Disabilities
PO Box 811
Trenton, NJ 08625-0811
Telephone: (609) 984-6654
FAX:
(609) 292-9798
DIVISION OF HOUSING
PO Box 051
Trenton, NJ 08625-0051
Telephone: (609) 633-6303
FAX:
(609) 984-8454
DIVISION ON WOMEN
PO Box 801
Trenton, NJ 08625-0801
Telephone: (609) 292-8840
FAX:
(609) 633-6821
For more information on the Division of Fire Safety,
See Appendix 6
For information on the New Jersey Housing
and Mortgage Finance Agency,
See Page 50
For list of Housing Authorities,
See Pages 49 and 50
DEPARTMENT OF COMMUNITY AFFAIRS
OFFICE OF REGULATORY AFFAIRS
The Office of Regulatory Affairs is responsible for the enforcement of the New Jersey Barrier
Free Sub-Code. Complaints can be made verbally or in writing to:
Supervisor of Investigations
Department of Community Affairs
Office of Regulatory Affairs
PO Box 818
Trenton, NJ 08625
Telephone: (609) 984-7672
FAX: (609) 984-7718
WHEN MAKING A COMPLAINT, PLEASE HAVE THE FOLLOWING INFORMATION:
✐ The complete address of the building that is thought to be non-compliant.
✐ A brief explanation of how the building seems to be non-compliant.
11
DEPARTMENT OF EDUCATION
OFFICE OF THE COMMISSIONER
PO Box 500
Trenton, NJ 08625-0500
Telephone: (609) 292-4469
(609) 292-0913
FAX: (609) 777-4099
The Department of Education is responsible for overseeing more than 600 school districts, and administering
education programs to more than 1.4 million public and
nonpublic elementary and secondary school children.
The Office of Special Education Programs, within the
Division of Student Services, has oversight responsibilities for the provision of education and related support
services to students with disabilities, aged 3 to 21.
For information on the New Jersey
Higher Education Student
Assistance Authority,
See Page 44
DIVISION OF STUDENT SERVICES
PO Box 500
Trenton, NJ 08625-0500
Telephone: (609) 292-9899
FAX:
(609) 633-1046
OFFICE OF STATE ASSESSMENTS
PO Box 500
Trenton, NJ 08625-0500
Telephone: (609) 984-6311
FAX:
(609) 984-6032
OFFICE OF SPECIAL EDUCATION PROGRAMS
PO Box 500
Trenton, NJ 08625-0500
Telephone: (609) 292-0147
FAX:
(609) 984-8422
MARIE KATZENBACH SCHOOL
FOR THE DEAF
PO Box 535
West Trenton, NJ 08625-0535
Telephone: (609) 530-3100
TDD:
(609) 530-6620
FAX:
(609) 530-5791
www.mksd.org
LEARNING RESOURCE CENTERS
AT A GLANCE
Learning Resource Center-Northern Region
7 Glenwood Avenue, 2nd Floor, Suite 201
East Orange, NJ 07017
Telephone: (973) 414-4491
FAX:
(973) 414-4496
TDD:
(973) 266-1849
Serving: Bergen, Essex, Hudson, Morris, Passaic,
Sussex, and Warren Counties
Learning Resource Center-Northern Satellite
322 American Road
Morris Plains, NJ 07950
Telephone: (973) 631-6345
FAX:
(973) 631-6350
TDD:
(973) 631-6490
Serving: Morris, Sussex, and Warren Counties
Learning Resource Center-Central Region
2351 Route 130 South, PO Box 1012
Dayton, NJ 08810
Telephone: (732) 274-5570
FAX:
(732) 274-5582
TDD:
(732) 274-5583
Preschool Technical Assistance: (732) 274-5570
Serving: Hunterdon, Mercer, Middlesex, Monmouth,
Ocean, Somerset, and Union Counties
Learning Resource Center-Southern Region
606 Delsea Drive
Sewell, NJ 08080
Telephone: (856) 582-7000 x165
FAX:
(856) 582-4323
TDD:
(856) 286-3291
Preschool Technical Assistance: (856) 582-7000 x155
Serving: Atlantic, Burlington, Camden, Cape May,
Cumberland, Gloucester, and Salem Counties
12
DEPARTMENT OF LABOR & WORKFORCE
DEVELOPMENT
OFFICE OF THE COMMISSIONER
PO Box 110
Trenton, NJ 08625-0110
Telephone: (609) 292-2323
FAX: (609) 633-9271
The Department of Labor & Workforce Development
promotes economic activity, monitors labor standards,
and administers federally funded programs such as workers compensation, disability insurance and unemployment compensation. The Division of Vocational
Rehabilitation Services is responsible for training and
placement of persons of employable age with disabilities.
Division of Workers’ Compensation
(609) 292-2515
WORK FORCE DEVELOPMENT
PO Box 055
Trenton, NJ 08625
Telephone: (609) 292-2000
FAX: (609) 777-0483
www.wnjpin.state.nj.us
Unemployment Insurance
(609) 292-2460
State Temporary Disability Benefits
(866) 418-6997
Disability Determinations
(866) 920-6997
DIVISION OF VOCATIONAL REHABILITATION
SERVICES
PO Box 398
Trenton, NJ 08625-0398
Telephone: (609) 292-5987
FAX: (609) 292-8347
VOCATIONAL REHABILITATION AT A GLANCE
CRITERIA
Any person with a physical or mental impairment which is a substantial impediment to employment may qualify for vocational rehabilitation services. Each consumer is evaluated individually for eligibility and needed assistance. Individuals who are blind or have a serious visual impairment are served by the Commission for the Blind (CBVI), all others receive service from the
New Jersey Division of Vocational Rehabilitation Services (DVRS).
SERVICES PROVIDED
✐ Diagnostic Evaluation
✐ Individual Vocational Counseling and Guidance
✐ Job Seeking Skills Training and Selective Job Placement
✐ Follow-Up Support Services
✐ Post-Employment Services
✐ Physical Restoration
✐ Job Coaching, Vocational, Professional, or On the Job Training
FEE FOR SERVICE
Many of the services listed above are provided free of charge. Coverage of expenses for medical services, training, books and supplies, tools and other equipment are based on the individual’s ability to pay.
DIVISION OF VOCATIONAL REHABILITATION
(609) 292-5987
FOR A LIST OF OFFICES, SEE PAGES 45 and 46
COMMISSION FOR THE BLIND & VISUALLY IMPAIRED
(973) 648-3333
FOR A LIST OF OFFICES, SEE PAGE 6
13
DEPARTMENT OF CHILDREN & FAMILIES
OFFICE OF THE COMMISSIONER
PO Box 729
Trenton, NJ 08625
Telephone: (609) 984-4500
FAX: (609) 341-2088
DCF is focused on strengthening families and achieving:
safety, well-being and permanency for all New Jersey’s
children.. Current priorities focus on reducing caseloads,
developing a trained workforce, managing outcomes by
data, and recruiting more safe and loving foster homes
for our most vulnerable children. In addition to focusing
on the fundamentals of child welfare, DCF has also
embarked on several important initiatives, including:
rebuilding specialized adoption practice, building a
robust network of support in our local communities, reengineering child abuse prevention, building capacity in
the child behavioral health system, and improving the
system of health care for children in the state’s care.
HOTLINES
Child Abuse and Neglect
1-877-NJ ABUSE (652-2873)
1-800-835-5510 (TTD)
NJ Foster Care
1-877-NJ FOSTER
www.njfostercare.org
DIVISION OF YOUTH AND FAMILY
SERVICES (DYFS)
Telephone: 609-292-6920 FAX: 609 984-0507
NJ ADOPT
1-877-99ADOPT
www.njadopt.org
DIVISION OF CHILD BEHAVIORAL
HEALTH SERVICES
Telephone: 609-292-4741 FAX: 609-396-6960
See Also Services for Children, Page 53
Special Needs Adoption, Page 55
See Also, Value Options Page 54
DIVISION OF PREVENTION AND
COMMUNITY PARTNERSHIPS
Telephone: 609-984-0678 FAX: 609-292-1306
DIVISION OF COMMUNITY SERVICES
Telephone: 609-984-7770 FAX: 609-292-2547
OFFICE OF EDUCATION
Telephone: 609-588-3165 FAX: 609-588-7239
CHILD WELFARE TRAINING ACADEMY
Telephone: 609-777-2018 FAX: 609-341-2088
REPORTING CHILD ABUSE/NEGLECT
In New Jersey, any person having reasonable cause to believe that a child has been subjected to neglect or acts of abuse
should immediately report this information to the State Central Registry (SCR). If the child is in immediate danger,
call 911 as well as 1-877 NJ ABUSE. A concerned caller does not need proof to report an allegation of child abuse
and can make the report anonymously.
INFORMATION TO PROVIDE THE SCREENER
SCR screeners are trained caseworkers who know how to respond to reports of child abuse/neglect. Whenever possible, a caller should provide all of the following information:
• Who: The child and parent/caretaker’s name, age and address and the name of the alleged perpetrator and that
person’s relationship to the child.
• What: Type and frequency of alleged abuse/neglect, current or previous injuries to the child and what caused you
to become concerned.
• When: When the alleged abuse/neglect occurred and when you learned of it.
• Where: Where the incident occurred, where the child is now and whether the alleged perpetrator has access to the
child.
• How: How urgent the need is for intervention and whether there is a likelihood of imminent danger for the child.
Calls can be placed to the hotline anonymously
14
DEPARTMENT OF THE PUBLIC ADVOCATE
OFFICE OF THE PUBLIC ADVOCATE
PO Box 851
240 West State Street, 16th Floor
Trenton, NJ 08625
Telephone: (609) 826-5090
FAX: (609) 984-4747
The Department of the Public Advocate is charged with
making government more accountable and responsive to
the needs of New Jersey residents, especially our most
vulnerable. The Public Advocate’s mission is to provide
a “voice for the voiceless” on a range of critical issues
through legal advocacy, policy research and reform,
investigation of abuse and neglect, community partnerships, legislative and regulatory action, education and
outreach.
DIVISION OF DEVELOPMENTAL
DISABILITIES ADVOCACY
Telephone:
(609) 826-5090
FAX:
(609) 984-4747
In addition to advocating for broad public policy change,
the Department of Public Advocate helps individuals
with specific concerns related to the care of the institutionalized elderly, interaction with local and state governmental agencies and inmates confined to state prisons.
OFFICE OF THE CORRECTIONS OMBUDSMAN
Telephone:
(609) 292-8020 or (609) 633-2596
FAX:
(609) 633-8644
OFFICE OF DISPUTE SETTLEMENT
Telephone:
(609) 292-1773
FAX:
(609) 292-6292
DIVISION OF CITIZEN RELATIONS
Telephone:
(609) 826-5070
FAX:
(609) 984-4770
OMBUDSMAN FOR INSTITUTIONALIZED
ELDERLY
Telephone:
(877) 582-6995
FAX:
(609) 943-3479
DIVISION OF MENTAL HEALTH ADVOCACY
Telephone:
(609) 826-5090
FAX:
(609) 984-4747
DEPARTMENT OF LAW AND
PUBLIC SAFETY
OFFICE OF THE ATTORNEY GENERAL
PO Box 080
Richard J. Hughes Justice Complex
25 Market Street
Trenton, NJ 08625-0080
Telephone: (609) 292-4925
The Department of Law & Public Safety houses the
Division on Civil Rights, which investigates allegations
of discrimination. The department also contains the
Attorney General’s Office, and divisions dealing with
criminal justice, consumer affairs, monitoring of professional boards, and enforcement of the Wheelchair Lemon
Law.
For information on the
Wheelchair Lemon Law
See Page 34
DIVISION ON CIVIL RIGHTS
PO Box 089
PO Box 090 (Complaints)
Trenton, NJ 08625
Telephone: (609) 292-4605
TTY:
(609) 292-1785
FAX:
(609) 984-3812
www.NJCivilRights.org
DIVISION OF CONSUMER AFFAIRS
124 Halsey Street
Newark, NJ 07101
Telephone: (973) 504-6200
(800) 242-5846
FAX:
(973) 273-8035
The Division on Civil Rights has established a Disabilities and Public Accommodations Special
Investigations Unit (DPA) to work closely with advocacy groups for the disabled and pursue investigations that will have the greatest impact on addressing system-wide discrimination, particularly
in places of public accommodation.
For Branch Offices, See Page 30
15
DEPARTMENT OF MILITARY AND
VETERAN’S AFFAIRS
OFFICE OF THE ADJUTANT GENERAL
PO Box 340
Trenton, NJ 08625
Telephone: (609) 530-6956
FAX: (609) 530-7191
The New Jersey Department of Military and Veterans
Affairs, under the direction of the Adjutant General, is
both the headquarters for the New Jersey Army and Air
National Guard and the government agency responsible
for the administration of state provided veterans’ programs and services within the state.
NJ VETERANS HOTLINE
(888) 8NJ VETS
(888) 865-8387
Disabled Veterans Resources on the WEB
DIVISION OF VETERANS
HEALTHCARE SERVICES
PO Box 340
Trenton, NJ 08625-0340
Telephone: (609) 530-6967
FAX:
(609) 530-6970
Wounded Warrior Project
www.woundedwarriorproject.org
Disabled American Veterans
www.dav.org
Disabled Veterans Affirmative Action Program
www.opm.gov/veterans/dvapp.asp
Association for Service Disabled Veterans
www.asdv.org
DEPARTMENT OF THE TREASURY
OFFICE OF THE STATE TREASURER
PO Box 002
Trenton, NJ 08625
Telephone: (609) 292-5031
FAX: (609) 984-3888
The Department of the Treasury assumes responsibility
for three major functions: revenue collection and generation, assets management, and statewide support services.
The Department also houses the Office on Disabilities
Management that is responsible for issues of compliance
with the Americans with Disabilities Act (ADA) in state
owned buildings and state run programs.
DIVISION OF TAXATION
PO Box 281, Trenton, NJ 08625-0281
General Tax Information: (609) 826-4400
(800) 323-4400
Main Customer Service Center: (609) 292-6400
Homestead Rebate Hotlines:
Homeowners- (888) 238-1233
Tenants(888) 213-8623
Property Tax Reimbursement (Senior Freeze)
Hotline(800) 882-6597
TTY Service- (609) 984-7300 or (800) 286-6613
OFFICE OF DISABILITIES MANAGEMENT
PO Box 034
Trenton, NJ 08625-0034
Telephone: (609) 292-7299
TDD & FAX: (609) 292-6525
THE OFFICE OF DISABILITIES MANAGEMENT AT A GLANCE
The Office of Disabilities Management is responsible for the following areas:
✐ Barrier Free Compliance of state owned and operated facilities.
✐ Implementation and assistance to allow access to all programs, services and activities offered by the State of New
Jersey.
✐ Technical assistance and advice concerning accessibility standards, adaptive devices to allow full inclusion by persons with disabilities.
✐ Provide funding for modifications needed to ensure accessibility to all state owned and operated facilities.
16
III
COUNTY RESOURCES
COUNTY OFFICES FOR THE DISABLED
County Offices for the Disabled function as clearinghouses for information about programs and services,
advocate for people with disabilities, and provide technical assistance at a local level.
ATLANTIC COUNTY DIVISION OF INTERGENERATIONAL
SERVICES, AGING & DISABILITY RESOURCE
CONNECTION
Shoreview Building
101 South Shore Road
Northfield, NJ 08225
Telephone: (888) 4-ANYAGE (426-9243)
FAX:
(609) 645-5809
BERGEN COUNTY DIVISION ON
DISABILITY SERVICES
One Bergen County Plaza, Second Floor
Hackensack, NJ 07601
Telephone: (201) 336-6500
TTY:
(201) 336-6505
FAX:
(201) 336-6510
CAMDEN COUNTY DIVISION OF SENIOR AND DISABLED
SERVICES
Heights of Collingswood
700 West Browning Rd., Suite 11
West Collingswood, NJ 08107
Telephone: (856) 858-3220
FAX:
(856) 858-2057
CAPE MAY COUNTY OFFICE OF DISABILITY SERVICES
4 Moore Road, DN 606
Cape May Court House, NJ 08210
Telephone: (609) 465-4117
FAX:
(609) 465-3899
HUNTERDON COUNTY DIVISION OF SENIOR,
DISABILITY, AND VETERANS SERVICES
PO Box 2900
Flemington, NJ 08822
Telephone
(908) 788-1361
FAX:
(908) 806-4537
MERCER COUNTY OFFICE FOR THE DISABLED
Joyce McDade Administration Building
640 South Broad Street, PO Box 8068
Trenton, NJ 08650
Telephone: (609) 989-6468
TDD:
(609) 989-6865
FAX:
(609) 989-6032
MIDDLESEX COUNTY OFFICE FOR THE DISABLED
Middlesex County Administration Building
75 Bayard Street, 5th Floor
New Brunswick, NJ 08901
Voice/TTY: (732) 745-4013
FAX:
(732) 296-7971
MONMOUTH COUNTY OFFICE ON DISABILITIES
21 Main and Court Center
PO Box 1255
Freehold, NJ 07728
Telephone: (732) 431-7399
FAX:
(732) 303-7649
MORRIS COUNTY OFFICE FOR THE DISABLED
PO Box 900, Morristown, NJ 07963-0900
Voice:
(973) 285-6855
FAX:
(973) 285-6845
CUMBERLAND COUNTY OFFICE FOR THE DISABLED
122 East Main Street, Suite 101
Millville, NJ 08332
Voice/TTY: (856) 825-8707
FAX:
(856) 327-2086
OCEAN COUNTY COMMISSION FOR INDIVIDUALS
WITH DISABILITIES
1027 Hooper Ave. Building 2, 3rd Floor
PO Box 2191, Toms River, NJ 08754
Voice/TDD: (732) 506-5062
FAX:
(732) 288-7791
ESSEX COUNTY OFFICE FOR THE DISABLED
50 South Clinton Street, Suite 4300
East Orange, NJ 07018
Telephone: (973) 395-8494
FAX:
(973) 395-3254
PASSAIC COUNTY SENIOR, DISABILITY SERVICES, AND
VETERANS AFFAIRS
930 Riverview Drive, Suite 200, Totowa, NJ 07512
Telephone: (973) 569-4060
FAX:
(973) 256-5190
GLOUCESTER COUNTY OFFICE OF EDUCATION AND
DISABILITY SERVICES
District Education Campus
1340 Tanyard Road, Sewell, NJ 08080
Telephone: (856) 681-6128
FAX:
(856) 681-6133
17
SALEM COUNTY OFFICE OF DISABILITY SERVICES
94 Market Street, Salem, NJ 08079
Telephone: (856) 935-7510
FAX:
(856) 935-2501
UNION COUNTY OFFICE FOR THE DISABLED
County Administration Building
Fourth Floor, Elizabethtown Plaza
Elizabeth, NJ 07207
Voice/TDD: (908) 527-4840
FAX:
(908) 558-2562
SOMERSET COUNTY OFFICE FOR THE DISABLED
27 Warren Street
PO Box 3000, Somerville, NJ 08876
Telephone: (908) 704-6334
FAX:
(908) 704-1629
WARREN COUNTY OFFICE FOR THE DISABLED
c/o DAWN, Inc.
30 Broad St., Suite 5
Denville, NJ 07834
Telephone: (973) 625-1940 (888) 383-DAWN
TDD:
(973) 625-1932
FAX:
(973) 625-1942
SUSSEX COUNTY OFFICE FOR THE DISABLED
Sussex County Juvenile Detention Center
135 Morris Turnpike
Newton, NJ 07860
Telephone: (973) 948-6000 x223
TDD:
(973) 948-0793
FAX:
(973) 948-6664
COUNTY BOARDS OF SOCIAL SERVICE
COUNTY CRISIS INTERVENTION CONTACTS
The Boards of Social Service deliver financial aid and
support to individuals and families.
The numbers listed below provide callers with access to
emergency services and counseling for non-medical
emergencies and crisis intervention:
ATLANTIC COUNTY
BERGEN COUNTY
BURLINGTON COUNTY
CAMDEN COUNTY
CAPE MAY COUNTY
CUMBERLAND COUNTY
ESSEX COUNTY
GLOUCESTER COUNTY
HUDSON COUNTY
HUNTERDON COUNTY
MERCER COUNTY
MIDDLESEX COUNTY
MONMOUTH COUNTY
MORRIS COUNTY
OCEAN COUNTY
PASSAIC COUNTY
SALEM COUNTY
SOMERSET COUNTY
SUSSEX COUNTY
UNION COUNTY
WARREN COUNTY
ATLANTIC COUNTY
BERGEN COUNTY
BURLINGTON COUNTY
CAMDEN COUNTY
CAPE MAY COUNTY
CUMBERLAND COUNTY
ESSEX COUNTY
GLOUCESTER COUNTY
HUDSON COUNTY
HUNTERDON COUNTY
MERCER COUNTY
MIDDLESEX COUNTY
MONMOUTH COUNTY
MORRIS COUNTY
OCEAN COUNTY
PASSAIC COUNTY
SALEM COUNTY
SOMERSET COUNTY
SUSSEX COUNTY
UNION COUNTY
WARREN COUNTY
(609) 344-1118
(201) 262-4357
(609) 835-6180
(856) 428-4357
or (856) 541-2222
(609) 465-5999
(856) 455-5555
(973) 266-4478/79/80
(856) 845-9100
(201) 915-2210
(908) 788-6400
(609) 394-6086
(732) 235-5700
(732) 923-6999
(973) 625-0280
(866) 904-4474
(973) 470-3025
(856) 299-3001
(908) 526-4100
(973) 383-0973
(908) 351-6684
(908) 454-5141
(609) 348-3001
(201) 368-4200
(609) 261-1000
(856) 225-8800
(609) 886-6200
(856) 691-4600
(973) 733-3000
(856) 582-9200
(201) 420-3000
(908) 788-1300
(609) 989-4320
(732) 745-3500
(732) 431-6000
(973) 326-7800
(732) 349-1500
(973) 881-0100
(856) 299-7200
(908) 526-8800
(973) 383-3600
(908) 965-2700
(908) 475-6301
Social Services at a Glance
Work First NJ • Emergency Assistance • Food Stamps
Medicaid • Kinship Care • Supports for Working Families
Home Energy Assistance • Homeless Sheltering
Child Care • Child Support
National Suicide Hotline:
1-800-SUICIDE
(1-800-784-2433)
18
CENTERS FOR INDEPENDENT LIVING
Centers for Independent Living (many funded through the Division of Vocational Rehabilitation Services) are communitybased, consumer-driven organizations that provide peer counseling, skills training, advocacy, information and referral, and
a variety of services based on individual needs.
STATEWIDE INDEPENDENT LIVING COUNCIL (SILC)
PROGRESSIVE CENTER FOR INDEPENDENT LIVING (PCIL)
1262 Whitehorse-Hamilton Sq. Road., Bldg. A, Suite 102
Hamilton NJ 08690
Telephone: (609) 581-4500 (877) 917-4500
TDD:
(609) 581-4550
www.njsilc.org
HEIGHTENED INDEPENDENCE & PROGRESS (HIP)
(Bergen County)
131 Main Street, Suite 120
Hackensack, NJ 07601
Telephone: (201) 996-9100
TDD:
(201) 996-9424
www.hipcil.org
HEIGHTENED INDEPENDENCE & PROGRESS-HUDSON
(Hudson County)
26 Journal Square, Suite 602
Jersey City, NJ 07306
Telephone: (201) 533-4407
TDD:
(201) 533-4409
www.hipcil.org
ALLIANCE FOR DISABLED IN ACTION (ADA)
(Middlesex, Somerset, Union Counties)
629 Amboy Avenue, Edison, NJ 08837
Telephone: (732) 738-4388
TDD:
(732) 738-9644
www.adacil.org
MOCEANS CENTER FOR INDEPENDENT LIVING
(Monmouth and Ocean County)
279 Broadway, Second Floor, Suite 201
Long Branch, NJ 07740
Telephone: (732) 571-4884
TDD:
(732) 571-4878
www.moceans.org
CAMDEN CITY INDEPENDENT LIVING CENTER
(City of Camden)
2600 Mt. Ephraim Avenue, Suite 413
Camden, NJ 08104
Telephone: (856) 966-0800
TDD:
(856) 966-0830
www.camdencityilc.org
CENTER FOR INDEPENDENT LIVING OF SOUTH JERSEY, INC. (CIL-SJ)
(Camden and Gloucester Counties)
1150 Delsea Drive, Suite 1
Westville, NJ 08093
Telephone: (856) 853-6490
Toll free:
(800) 413-3791
TDD:
(856) 853-7602
PROGRESSIVE CENTER FOR INDEPENDENT LIVING (PCIL)
(Hunterdon and Mercer Counties)
1262 Whitehorse-Hamilton Sq. Rd., Bldg. A, Suite 102
Hamilton NJ 08690
Telephone: (609) 581-4500 (877) 917-4500
TDD:
(609) 581-4550
Hunterdon County Branch: Telephone:(908) 782-1055
(877) 376-9174
TDD:
(908) 782-1081
www.pcil.org
DAWN, INC.
(Morris, Sussex and Warren Counties)
30 Broad Street, Suite 5
Denville, NJ 07834
Telephone: (973) 625-1940 (888) 383-DAWN
TDD:
(973) 625-1932
www.dawncil.org
RESOURCES FOR INDEPENDENT LIVING (RIL)
(Burlington County)
351 High Street, Suite 103
Burlington, NJ 08016
Telephone: (609) 747-7745
TDD:
(609) 747-1875
www.rilnj.org
DIAL, INC.
(Essex and Passaic Counties)
2 Prospect Village Plaza, First Floor
Clifton, NJ 07013
Telephone: (973) 470-8090
TDD:
(973) 470-2521
www.dial-cil.org
TOTAL LIVING CENTER, INC. (TLC)
(Atlantic County)
The Courtyard, Suite B-8
707 Whitehorse Pike
Absecon, NJ 08201
Telephone: (609) 645-9547
TDD:
(609) 645-9593
www.tlcenter.org
TRI-COUNTY INDEPENDENT LIVING CENTER, INC.
(Cape May, Cumberland, Salem Counties)
120 North High Street, Suite 12
Millville, NJ 08332
Telephone: (856) 327-5177
TDD:
(856) 327-5328
www.tricountycil.org
CENTERS FOR INDEPENDENT LIVING AT A GLANCE
•
•
•
•
Peer Support
Individual and System Advocacy
Independent Living Skills Training
Development of Independent Living Plans
19
NJ EASE
(877) 222-3737
NJ EASE (New Jersey Easy Access, Single Entry) is a New Jersey Department of Health and Senior Services program, in
partnership with county governments, that provides a convenient way for senior citizens and their families to learn about
and obtain needed services. NJ EASE provides information and access to services that address the financial, medical, and
social needs of seniors.
Through NJ EASE, each county in New Jersey provides outreach, case management, transportation, senior centers, volunteer opportunities, health promotion, nutrition programs, education, health insurance counseling, adult protective services,
senior employment, and information on housing and long-term care options.
County Offices on Aging
Atlantic County ......................(609) 645-5965
Bergen County .......................(201) 336-7400
Burlington County..................(609) 265-5069
Camden County......................(856) 858-3220
Cape May County .........(609) 886-2784/2785
Cumberland County ...............(856) 453-2220
Essex County..........................(973) 395-8375
Gloucester County..................(856) 384-6900
Hudson County ......................(201) 271-4322
Hunterdon County..................(908) 788-1361
Mercer County .......................(609) 989-6661
Middlesex County ..................(732) 745-3295
Monmouth County .................(732) 431-7450
Morris County ........................(973) 285-6848
Ocean County.........................(732) 929-2091
Passaic County .......................(973) 569-4060
Salem County.........................(856) 935-7510
Somerset County ....................(908) 704-6346
Sussex County........................(973) 579-0555
Union County................(908) 527-4870/4872
Warren County .......................(908) 475-6591
ADULT PROTECTIVE SERVICES
(800) 792-8820
The role of Adult Protective Services (APS) is to investigate complaints of suspected abuse, neglect, and/or exploitation of
vulnerable adults aged 18 or older. A complaint to APS will generate a thorough assessment, which will include a private
face-to-face interview with the potentially at-risk adult, to determine if intervention is warranted. All information generated by the investigation is confidential. A report of suspected abuse may be made to the Aging and Community Services
Information and Referral toll-free number or to the APS office in the county in which the individual lives.
County Adult Protective Services
Atlantic County ...................(609) 645-5965
Bergen County.....................(201) 368-4300
Burlington County ...............(609) 261-1000
Camden County ...................(856) 225-8178
Cape May County ...............(609) 886-6200
Cumberland County ...........(856) 825-6810 x219 or 299
Essex County ......................(973) 624-2528 x135
Gloucester County ...............(856) 582-9200
Hudson County ....................(201) 295-5160
Hunterdon County ..............(908) 788-1300
Mercer County.....................(609) 989-4346
Middlesex County ..............(732) 745-3635
Monmouth County ............ (732) 531-9191
Morris County ....................(973) 326-7282
Ocean County .....................(732) 286-5929 /5933
Passaic County.....................(973) 881-2616
Salem County .....................(856) 935-7510
Somerset County ................(908) 526-8800
Sussex County .....................(973) 383-3600
Union County ......................(908) 497-3900 /3902
Warren County.....................(908) 475-6591
20
IV
DISABILITY SPECIFIC RESOURCES
The following agencies are grouped by their service populations and each provides a variety of support services on a statewide basis. The agencies are categorized by target disability as a matter of reference, although
some may serve additional populations. Where a local website was not available, a national website has been
provided.
AIDS/HIV
Hyacinth AIDS Foundation
317 George Street, Suite 203
New Brunswick, NJ 08901
Telephone: (800) 433-0254 (Toll Free)
(732) 246-0204 (outside NJ)
www.hyacinth.org
ARTHRITIS/FIBROMYALGIA
Arthritis Foundation-New Jersey Chapter
200 Middlesex Turnpike
Iselin, NJ 08830
Telephone: (888) 467-3112 (Toll Free)
(732) 283-4300
FAX:
(732) 283-4633
www.arthritis.org
New Jersey Women and AIDS Network
103 Bayard Street, 3rd Floor
New Brunswick, NJ 08901
Telephone: (732) 846-4462
FAX:
(732) 846-2674
www.njwan.org
AUTISIM/ASPERGERS
Asperger Syndrome Education Network (ASPEN)
9 Aspen Circle
Edison, NJ 08820
Telephone: (732) 321-0880
FAX:
(732) 744-1622
www.aspennj.org
AIDS Coalition of Southern New Jersey
100 Essex Avenue, Suite 300
Bellmawr, NJ 08031
Telephone: (856) 933-9500
FAX:
(856) 933-9519
www.acsnj.org
Autism Family Services of New Jersey
429 Riverview Plaza
Trenton, NJ 08611
Telephone: (877) 237-4477 (Toll Free)
FAX:
(609) 392-5621
www.autismfamilyservicesnj.org
ALZHEIMER’S DISEASE
The Alzheimer’s Association
Greater New Jersey Chapter
400 Morris Avenue, Suite 251
Denville, NJ 07834
Telephone: (800) 883-1180 (Toll Free)
(973) 586-4300
Autistic Self Advocacy Network
Telephone: (732) 763-5530
FAX:
(732) 432-0175
www.autisticadvocacy.org
Autism New Jersey
(formerly New Jersey Center for Outreach and
Services for the Autism Community (COSAC))
1450 Parkside Avenue, Suite 22
Ewing, NJ 08638
Telephone: (609) 883-8100
(800) 4-AUTISM (Toll Free)
FAX:
(609) 883-5509
www.autismnj.org
Delaware Valley Chapter
3 Eves Drive, Suite 310
Marlton, NJ 08053
Telephone: (856) 797-1212
FAX:
(856) 797-1818
www.alznj.org
AMYOTROPHIC LATERAL SCLEROSIS (ALS)
Neuromuscular and ALS Center
Robert Wood Johnson University Hospital
UMDNJ-RWJMS
125 Paterson Street, Suite 6100
New Brunswick, NJ 08901
Telephone: (732) 235-7331 /7340
www2.umdnj.edu/nmalsweb/
Parents of Autistic Children (POAC)
1999 Route 88 East
Brick, NJ 08724
Telephone: (732) 785-1099
FAX:
(732) 785-1003
www.poac.net
For a list of National Resources, See Pages 32 and 33
21
AUTOIMMUNE DISORDERS
Autoimmune Information Network, Inc.
PO Box 4121
Brick, NJ 08723
Telephone: (732) 664-9259
www.aininc.org
Cerebral Palsy Association of Middlesex County
10 Oak Drive
Edison, NJ 08837
Telephone: (732) 549-6187
FAX:
(732) 549-0629
www.cpamc.org
BLIND/VISUALLY IMPAIRED
National Federation of the Blind-NJ
254 Spruce Street
Bloomfield, NJ 07003
Telephone: (866) 632-1940 (Toll Free)
www.nfb.org
United Cerebral Palsy of Northern, Central, and
Southern New Jersey, Inc.
245 Main Street, Suite 113
Chester, NJ 07930
Telephone: (908) 879-2243
FAX:
(908) 879-8363
www.ucpncsnj.org
New Jersey Council of the Blind
520 Ewingville Road
Ewing, NJ 08638
Telephone: (609) 882-2446
FAX:
(609) 882-5416
www.njcounciloftheblind.org
Githens Center (Burlington County Cerebral Palsy
Association)
40 Cedar Street
Mount Holly, NJ 08060
Telephone: (609) 261-1667
FAX:
(609) 261-1844
www.githenscenter.org
New Jersey Foundation for the Blind
PO Box 929
230 Diamond Spring Road
Denville, NJ 07834
Telephone: (973) 627-0055
FAX:
(973) 627-1622
www.njffb.org
CANCER
American Cancer Society-NJ
3076 Princeton Pike
Lawrenceville, NJ 08648
Telephone: (800) 227-2345
(609) 895-0101
FAX:
(609) 895-0944
www.cancer.org
CEREBRAL PALSY
Alliance for the Betterment of Citizens with Disabilities
(ABCD)
127 Route 206, Suite 18
Hamilton, NJ 08610
Telephone: (609) 581-8375
FAX:
(609) 581-8512
www.abcdnj.org
Cerebral Palsy League
(908) 709-1800
CARDIAC/HEART DISEASE
American Heart Association
1 Union Street, Suite 301
Robbinsville, NJ 08691
Telephone: (609) 208-0020
FAX:
(609) 208-2906
www.americanheart.org
LADACIN Network
(732) 493-5900
CHRONIC FATIGUE SYNDROME
NJCFSA (New Jersey Chronic Fatigue Syndrome
Association, Inc.)
PO Box 477
Florham Park, NJ 07932
Telephone: (888) 835-3677
www.njcfsa.org
Cerebral Palsy of North Jersey
(973) 763-9900
www.advopps.org
Passaic County Elks Cerebral Palsy Treatment
Center
(973) 772-2600
www.pcecpc.org
CROHN’S DISEASE
Crohn’s and Colitis Foundation of America
New Jersey Chapter
45 Wilson Avenue
Manalapan, NJ 07726
Telephone: (732) 786-9960
FAX:
(732) 786-9964
www.ccfa.org
United Cerebral Palsy of Hudson County
(201) 436-2200
For the Division of Developmental Disabilities,
See Page 7
22
COGNITIVE/INTELLECTUAL DISABILITY
The Arc of New Jersey
985 Livingston Avenue
North Brunswick, NJ 08902
Telephone: (732) 246-2525
FAX:
(732) 214-1834
www.arcnj.org
Easter Seal Society of New Jersey, Inc.
25 Kennedy Blvd., Suite 600
East Brunswick, NJ 08816
Telephone: (732) 257-6662
FAX:
(732) 257-7373
http://nj.easterseals.com
Spectrum for Living
210 Rivervale Road, Suite 3
River Vale, NJ 07675
Telephone: (201) 358-8000
(800) 497-7397
FAX:
(201) 358-8089
www.spectrumforliving.org
To Find a Local Chapter of the ARC in New Jersey
www.thearc.org
Click on Find a Chapter
CROSS-DISABILITY
Advancing Opportunities (formerly Cerebral Palsy of NJ)
1005 Whitehead Road Ext., Suite 1
Ewing, NJ 08638
Telephone: (609) 882-4182
(888) 322-1918 (Toll-free)
TTY:
(609) 882-0620
FAX:
(609) 882-4054
www.advopps.org
Statewide Parent Advocacy Network (SPAN)
35 Halsey Street, 4th Floor
Newark, NJ 07102
Telephone: (800) 654-7726 x206
(973) 642-8100
FAX:
(973) 642-8080
www.spannj.org
CYSTIC FIBROSIS
Cystic Fibrosis Foundation
Greater New Jersey Chapter
2 University Plaza
Hackensack, NJ 07601
Telephone
(201) 457-1800
FAX:
(201) 457-1898
www.cff.org
Alliance for the Betterment of Citizens with
Disabilities (ABCD)
127 Route 206, Suite 18
Hamilton, NJ 08610
Telephone: (609) 581-8375
FAX:
(609) 581-8512
www.abcdnj.org
DEAF/HARD OF HEARING
Hearing Loss Association of America
New Jersey State Association
http://hearingloss-nj.org/
Coalition for Inclusive Ministries
Elizabeth M. Boggs Center-UAP
335 George Street, Suite 3500, PO Box 2688
New Brunswick, NJ 08903-2688
Telephone: (732) 235-9300
FAX:
(732) 235-9330
www.rwjms.umdnj.edu/boggscenter
Association of Late-Deafened AdultsGarden State (ALDA-GS)
www.alda-gs.org
NJ Association of the Deaf, Inc. (NJAD)
www.njadeaf.org
Community Access Unlimited
80 West Grand Street, Elizabeth, NJ 07202
Telephone: (908) 354-3040
FAX:
(908) 354-2665
www.caunj.org
DIABETES
American Diabetes Association
Northern NJ Chapter
1160 Route 22 E., Suite 103
Bridgewater, NJ 08807
Telephone: (732) 469-7979
(888) DIABETES
FAX:
(908) 722-4887
www.diabetes.org
Community Options, Inc.
16 Farber Road, Princeton, NJ 08540
Telephone: (609) 951-9900
FAX:
(609) 951-9112
www.communityoptionsonline.org/jersey.html
23
American Diabetes Association
Southern NJ Chapter
1060 Kings Highway North, Suite 309
Cherry Hill, NJ 08034
Telephone: (856) 482-9047
(800) 342-2383
FAX:
(856) 667-8631
www.diabetes.org
HEPATITIS
Hepatitis Foundation International
National Headquarters
504 Blick Drive
Silver Spring, Maryland, 20904
Telephone: (800) 891-0707
(301) 622-4200
FAX:
(301)-622-4702
www.hepatitisfoundation.org
DWARFISM
Little People of America
Telephone: (888) LPA (572)-2001
www.lpadistrict2.org
HUNTINGTON’S DISEASE
Huntington’s Disease Society of America
230 Diamond Spring Road
PO Box 943
Denville, NJ 07834
Telephone: (973) 784-4965
FAX:
(973) 784-4966
www.hdsanj.org
EATING DISORDERS
Eating Disorders Association of New Jersey
10 Station Place
Metuchen, NJ 08840
Telephone: (800) 522-2230
FAX:
(732) 906-9307
www.edanj.org
LEARNING DISABILITIES
The International Dyslexia Association
New Jersey Branch
PO Box 32
Long Valley, NJ 07853
Telephone: (908) 876-1179
www.interdys.org
Food Addicts Anonymous
NJ Helpline (908) 654-6223
www.foodaddictsanonymous.org
EPILEPSY
Epilepsy Foundation of New Jersey
1 AAA Road Suite 203
Trenton, NJ 08691
Telephone: (800) 336-5843
(609) 392-4900
FAX:
(609) 392-5621
www.efnj.com
Learning Disability Association of America
New Jersey Chapter
PO Box 492
Towaco, NJ 07082
Telephone: (973) 265-4303
www.ldanatl.org
HEAD INJURY/TRAUMATIC BRAIN INJURY (TBI)
Brain Injury Association of New Jersey
825 Georges Road, Second Floor
North Brunswick, NJ 08902
Telephone: (732) 745-0200
(800) 669-4323
FAX:
(732) 745-0211
www.bianj.org
LUPUS
Lupus Foundation of America
NJ Chapter
PO Box 1184
150 Morris Avenue, Suite 102
Springfield, NJ 07081
Telephone: (800) 322-5816
(973) 379-3226
FAX:
(973) 379-1053
www.lupusnj.org
DID YOU KNOW?
The Division of Disability Services is the
lead state agency for services to individuals
with brain injury. DDS administers the TBI
Fund and the TBI Medicaid Waiver. See
Pages 1 and 2.
Southern NJ Chapter
1 Green Tree Center, Suite 201
Marlton, NJ 08053
Telephone: (856) 424-0255
FAX:
(856) 424-0219
www.sjlupus.org
24
MENTAL ILLNESS
Mental Health Association in New Jersey
88 Pompton Avenue
Verona, NJ 07044
Telephone: (973) 571-4100
FAX:
(973) 857-1777
www.mhanj.org
Muscular Dystrophy Association
25 E. Spring Valley Avenue, Suite 240
Maywood, NJ 07607
Telephone
(201) 843-4452
FAX:
(201) 843-2324
www.mda.org
MULTIPLE SCLEROSIS
National Multiple Sclerosis Society
NJ Metro Chapter
1 Kalisa Way, Suite 205
Paramus, NJ 07652
Telephone: (201) 967-5599
FAX:
(201) 967-7085
www.nationalmssociety.org/njm
COMHCO (Coalition of Mental Health Consumers
Organizations) Self-Help Center
408 Sussex Street
Paterson, NJ 07503
Telephone & FAX: (973) 778-8810
NAMI NJ (National Alliance on Mental Illness of
New Jersey)
1562 Route 130
North Brunswick, NJ 08902
Telephone: (732) 940-0991
FAX:
(732) 940-0355
www.naminj.org
National Multiple Sclerosis Society
NJ Metro Chapter
246 Monmouth Road
Oakhurst, NJ 07755
Telephone: (732) 660-1005
FAX:
(732) 660-1338
www.nationalmssociety.org/njm
For the
Division of Mental Health Services,
See Page 8
Multiple Sclerosis Society
Greater Delaware Valley Chapter
1 Reed Street, Suite 200
Philadelphia, PA 19147
Telephone: (215) 271-2400
FAX:
(215) 271-6122
www.nmss.org
MUSCULAR DYSTROPHY
Muscular Dystrophy Association
2035 Lincoln Highway, Suite 1100
Edison, NJ 08817
Telephone: (732) 287-0181
FAX:
(732) 287-5281
www.mda.org
Multiple Sclerosis Association of America
National Headquarters
706 Haddonfield Road
Cherry Hill, NJ 08002
Telephone: 1-800-LEARN MS (532-7667)
www.msassociation.org
Muscular Dystrophy Association
1060 N. Kings Highway
Cherry Hill, NJ 08034
Telephone: (856) 356-4467
FAX:
(856) 356-4473
www.mda.org
PARKINSON’S DISEASE
New Jersey American Parkinson Disease Association
120 Albany Street, Suite 360
New Brunswick, NJ 08901
Telephone: (732) 745-7520
FAX:
(732) 745-3114
www.njapda.org
Muscular Dystrophy Association
788 Shrewsbury Avenue, Suite 203
Tinton Falls, NJ 07724
Telephone: (732) 936-9940
FAX:
(732) 345-8217
www.mda.org
POLIO/POST-POLIO
New Jersey Polio Network
PO Box 537
Martinsville, NJ 08836
Telephone: (201) 845-6860
FAX:
(908) 236-9388
www.njpolio.org
Muscular Dystrophy Association
5940 Hamilton Blvd., Suite F
Allentown, PA 18106
Telephone: (610) 391-1977
FAX:
(610) 391-0416
www.mda.org
25
RESPIRATORY DISEASE
American Lung Association
New Jersey Chapter
1600 Route 22 East
Union, NJ 07083-3407
Telephone: (908) 687-9340
FAX:
(908) 851-2625
www.lunginfo.org
New Jersey Speech-Language-Hearing Association
390 Amwell Road, Suite 403
Hillsborough, NJ 08844-4698
Telephone: (908) 359-5308
FAX:
(908) 450-1119
www.njsha.org
SPINA BIFIDA
Spina Bifida Resource Network
(formerly Spina Bifida Association Tri-State Region)
84 Park Avenue, Suite G-106
Flemington, NJ 08822
Telephone: (908) 782-7475
(877) 722-8774 (Toll-free)
FAX:
(908) 782-6102
www.thesbrn.org
SICKLE CELL DISEASE
Sickle Cell Disease Association of America
SCDAA - Philadelphia/Delaware Valley
5070 Parkside Avenue, Suite 1404
Philadelphia, PA 19131
Telephone: (215) 471-8686
FAX:
(215) 471-7441
www.sicklecelldisorder.com
SPINAL CORD INJURY (SCI)
Christopher & Dana Reeve Paralysis Resource Center
Short Hills Plaza
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
Telephone: (800) 539-7309
FAX:
(908) 467-9845
www.christopherreeve.org
SCLERODERMA
Scleroderma Foundation (Southern NJ)
Delaware Valley Chapter
385 Kings Highway North
Cherry Hill, NJ 08034
Telephone: (866) 675-5545
www.scleroderma.org
Tri-State Chapter (Northern NJ)
59 Front Street
Binghamton, NY 13905
Telephone: (607) 723-2239
(800) 867-0885
FAX:
(607) 723-2039
www.scleroderma.org/chapter/tristate
Central Jersey Spinal Cord Association
19 Jefferson Avenue
New Brunswick, NJ 08903
Telephone: (732) 220-0870
STROKE/CVA
New Jersey Stroke Activity Center, Inc.
725 Joralemon Street, Suite 191
Belleville, NJ 07109
Telephone: (973) 450-4114
FAX:
(973) 450-0805
www.njsac.org
SENSORY IMPAIRMENTS
New Jersey Association of the Deaf-Blind, Inc.
24 K World’s Fair Drive
Somerset, NJ 08873-1349
Telephone/TTY: (732) 805-1912
FAX:
(732) 805-3088
www.njadb.org
NEW JERSEY SELF-HELP GROUP CLEARINGHOUSE
✐ Maintains information on thousands of local no-fee support groups in New Jersey, including many that address disabilities, illnesses, caregiving, and parenting
✐ Provides information about national and online support networks
✐ Helps those interested in starting new support groups by providing free how-to materials, phone consultation, and training
✐ Publishes an annual directory of support groups
375 East McFarlan Street, Dover, NJ 07801
Telephone: (800) 367-6274 (973) 989-1122 FAX: (973) 989-1159
www.njgroups.org
DID YOU KNOW?
The State of New Jersey has a Spinal Cord Injury Surveillance Registry.
See the Commission on Spinal Cord Research, page 10.
26
V
INTERNET RESOURCES
ADAPT (American Disabled for Attendant
Programs Today)
www.adapt.org
Disability Info
www.disabilityinfo.gov
Disability Nation
www.disabilitynation.net
ADA Watch & National Coalition on Disability
Rights
www.adawatch.org
Disability Resources Monthly
www.disabilityresources.org
Advocates for Better Communication
www.lhh.org/education_advocacy_outreach/abc/ind
ex.html
Disability Social History Project
www.disabilityhistory.org
American Association for Adapted Sports Programs
www.adaptedsports.org
Disabled Sports USA
www.dsusa.org
American Association of People with Disabilities
www.aapd-dc.org
DO-IT Foundation
www.washington.edu/doit
American Association on Intellectual &
Developmental Disabilities
www.aamr.org/
Enabled Online
www.enabledonline.com
Family Village
www.familyvillage.wisc.edu
American Chronic Pain Association
www.theacpa.org/
Freedom Clearinghouse
www.freedomclearinghouse.org
American Self -Help Clearinghouse
www.selfhelpgroups.org
Harvard Project on Disability
http://hpod.org/
Assistance Dogs International, Inc
www.adionline.org
Health Care Coach
www.healthcarecoach.com/
Center for an Accessible Society
www.accessiblesociety.org
I Am PWD
www.iampwd.org/
Consortium for Citizens with Disabilities
www.c-c-d.org
Inclusion Daily Express
www.inclusiondaily.com
Cornucopia of Disability Information
http://codi.buffalo.edu/
Inclusion Network
www.inclusion.org
Council on Disability Awareness
www.disabilitycanhappen.org
Independent Living Institute
www.independentliving.org
Disabled in Action
www.disabledinaction.org
Independent Living USA
www.ilusa.com
Disability History Museum
www.disabilitymuseum.org
27
Institute for Community Inclusion
www.communityinclusion.org
Society for Disability Studies
www.disstudies.org
Institute on Disability Culture
www.dimenet.com/disculture
Special Child
www.specialchild.com
International Center for Disability Resources
www.icdri.org/
TASH
www.tash.org
International Paralympic Committee
www.paralympic.org
Through the Looking Glass
www.lookingglass.org
Job Accommodation Network
www.jan.wvu.edu
Wired on Wheels
www.wiredonwheels.com
Mobility International USA
www.miusa.org
World Association of People with Disabilities
http://www.wapd.org
National Arts and Disabilities Center
http://nadc.ucla.edu
World Institute on Disability
www.wid.org
National Center for Accessible Media
http://ncam.wgbh.org/
United Nation Commission on Human Rights
www.unhchr.ch/html/menu2/2/chr.htm
National Center on Accessibility
www.ncaonline.org/
XAble.com
www.xable.com
National Center on Birth Defects and Developmental
Disabilities
http://www.cdc.gov/ncbddd/
U.S. International Council on Disabilities
www.usicd.org
National Council on Disability
www.ncd.gov
________________________________
Notes:
National Organization on Disability
www.nod.org
National Institute on Health
www.nih.gov
National Rehabilitation Information Center
www.naric.com/
Parents Advocacy Coalition for Educational Rights
www.pacer.org
Parents with Disabilities Online
www.disabledparents.net
Society for Accessible Travel and Hospitality
www.sath.org
28
VI
ADVOCACY RESOURCES
ADVOCACY-GENERAL
Alliance for the Betterment of Citizens with
Disabilities (ABCD)
127 Route 206, Suite 18
Hamilton, NJ 08610
Telephone: (609) 581-8375
FAX:
(609) 581-8512 (also see page 23)
www.abcdnj.org
ADVOCACY-FAMILY SUPPORT
Family Support Center
Epilepsy Foundation of New Jersey
2516 Highway 35 North
Manasquan, NJ 08736
Telephone: (732) 528-8080
(800) 372-6510
FAX:
(732) 528-4744
www.fscnj.org
Association for the Advancement of
Mental Health (AAMH)
819 Alexander Road
Princeton, NJ 08540
Telephone: (609) 452-2088
FAX:
(609) 452-0627
The Family Resource Network
1 AAA Drive, Suite 203
Trenton, NJ 08691
Telephone: (609) 392-4900
(800) 336-5843
FAX:
(609) 392-5621
www.familyresourcenetwork.org
Association for Children of New Jersey
35 Halsey Street, 2nd Floor, Newark, NJ 07102
Telephone: (973) 643-3876
FAX:
(973) 643-9153
www.acnj.org
ADVOCACY-INFORMATION/RESEARCH
United Spinal Association
75-20 Astoria Blvd.
Jackson Heights, NY 11370
Telephone: (718) 803-3782
FAX:
(718) 803-0414
www.unitedspinal.org
Association for Special Children and Families
PO Box 494
Hewitt, NJ 07421-0494
Telephone: (973) 728-8744
FAX:
(973) 728-5919
www.ascfamily.org
ADVOCACY- LEGAL SERVICES
American Civil Liberties Union (ACLU)
PO Box 32159
Newark, NJ 07102
Telephone: (973) 642-2084
www.aclu-nj.org
New Jersey Self-Advocacy Project
985 Livingston Avenue
North Brunswick, NJ 08902
Telephone: (732) 246-2525 x30
FAX:
(732) 214-1834
www.arcnj.org
Legal Services of New Jersey
100 Metroplex Drive, Suite 402, PO Box 1357
Edison, NJ 08818
Telephone: (732) 572-9100
(877) 576-5529 (Toll-free)
www.lsnj.org
National Minorities with Disabilities Coalition
1213 Wyndhurst Drive
Plainsboro, NJ 08536
Telephone: (609) 984-3379
www.nmdc.us
New Jersey State Bar Association
One Constitution Square
New Brunswick, NJ 08901
Telephone: (732) 249-5000
FAX:
(732) 249 2815
www.njsba.com
ADVOCACY-EDUCATION
Statewide Parent Advocacy Network (SPAN)
35 Halsey Street, 4th Floor
Newark, NJ 07102
Telephone: (800) 654-7726
(973) 642-8100
FAX:
(973) 642-8080
www.spannj.org
29
Community Health Law Project
185 Valley Street
South Orange, NJ 07079
Telephone: (973) 275-1175
FAX:
(973) 275-5210
TDD:
(973) 275-1721
www.chlp.org
Division on Civil Rights
PO Box 090
Trenton, NJ 08625
Telephone: (609) 292-4605
TTY:
(609) 292-1785
FAX:
(609) 292-3812
www.NJCivilRights.org
BRANCH OFFICES
Community Health Law Project
650 Bloomfield Avenue, Suite 210
Bloomfield, NJ 07003
Telephone: (973) 680-5599
FAX:
(973) 680-1488
TDD:
(973) 680-1116
BRANCH OFFICES
Division on Civil Rights
26 South Pennsylvania Avenue, 3rd Floor
Atlantic City, NJ 08401
Telephone: (609) 441-3100
TTY:
(609) 441-7648
FAX:
(609) 441-3578
Community Health Law Project
225 East State Street, Suite 5
Trenton, NJ 08608
Telephone: (609) 392-5553
FAX:/TDD:(609) 392-5369
Division on Civil Rights
One Port Center
2 Riverside Drive, 4th Floor
Camden, NJ 08103
Telephone: (856) 614-2550
TTY:
(856) 614-2574
FAX:
(856) 614-2568
Community Health Law Project
65 Jefferson Avenue, Suite 402, Elizabeth, NJ 07201
Telephone: (908) 355-8282
FAX:
(908) 355-3724
TDD:
(908) 355-3369
Division on Civil Rights
574 Newark Avenue, 3rd Floor
Jersey City, NJ 07306
Office Walk-In’s on Wednesday, 9am - 5pm
Community Health Law Project
Station House Office Building
900 Haddon Avenue, Suite 400
Collingswood, NJ 08108
Telephone/TDD: (856) 858-9500
FAX:
(856) 858-9545
Division on Civil Rights
31 Clinton Street, 3rd Floor.
PO Box 46001
Newark, NJ 07102
Telephone: (973) 648-2700
TTY:
(973) 648-4678
FAX:
(973) 648-4405
Community Health Law Project
1 Main Street, Suite 413
Eatontown, NJ 07724
Telephone: (732) 380-1012
FAX:
(732) 380-1015
Division on Civil Rights
100 Hamilton Plaza, 8th Floor
Paterson, NJ 07505
Telephone: (973) 977-4500
TTY:
(973) 977-1955
FAX:
(973) 977-4511
Disability Rights New Jersey (DRNJ)
(formerly New Jersey Protection and Advocacy, Inc.)
210 South Broad Street, 3rd Floor
Trenton, NJ 08608
Telephone: (800) 922-7233
(609) 292-9742
FAX:
(609) 777-0187
www.drnj.org
SUPPORT GROUPS
New Jersey Self-Help Group Clearinghouse
375 East McFarlan Street
Dover, NJ 07801
Telephone: (800) 367-6274
(973) 989-1122
FAX:
(973) 989-1159
www.njgroups.org
See Page 4
See Page 26
30
VII
PROFESSIONAL AND PROVIDER ORGANIZATIONS
New Jersey Association of Community Providers, Inc.
1005 Whitehead Road Ext., Suite 1B
Ewing, NJ 08638
Telephone: (609) 406-1400
FAX:
(609) 406-1442
www.njacp.org
ACCESS-NJ/CNA
150 West State Street, Suite 120
Trenton, NJ 08608
Telephone: (609) 392-1255
FAX:
(609) 392-3236
www.cnaservices.org
Association of Schools and Agencies for the
Handicapped (ASAH)
2125 Route 33
Lexington Square
Hamilton Square, NJ 08690
Telephone: (609) 890-1400
FAX:
(609) 890-8860
www.asah.org
New Jersey Association for Persons in Supported
Employment (NJAPSE)
The Network on Employment
Telephone: (732) 831-1114
www.njapse.org
For Home Care Associations, See Page 51
VIII
SERVICE ANIMAL RESOURCES
Canine Companions for Independence
286 Middle Island Road, Medford, NY 11763
Telephone/TDD: (800) 572-2275
www.cci.org
Delta Society
875 124th Avenue NE, Suite 101
Bellevue, WA 98005
Telephone: (425) 679-5500
www.deltasociety.org
Canine Partners for Life
PO Box 170, Cochranville, PA 19330
Telephone: (610) 869-4902
www.k94life.org
Seeing Eye, Inc.
PO Box 375, Morristown, NJ 07963-0375
Telephone: (973) 539-4425
www.seeingeye.org
Service Animal Registry of America (SARA)
PO Box 607, Midlothian, TX 76065
http://affluent.net/sara/
IX
See Appendix 5 for more
information on Service Animals
RECREATION RESOURCES
SPORTS AND TRAINING
New Jersey Special Olympics
3 Princess Road
Lawrenceville, NJ 08648
Telephone: (800) 650-7665
FAX:
(609) 896-8040
www.sonj.org
ARTS PROGRAMS
New Jersey Arts Access Task Force
8 Marcella Avenue
West Orange, NJ 07052
Telephone: (973) 731-6582
FAX:
(973) 731-54520
www.njtheatrealliance.org/accessibility.htm
New Jersey Tournament of Champions
466 Ely Harmony Road
Freehold, NJ 07728
Telephone: (732) 462-7945
FAX:
(732) 409-3612
www.njtournamentofchampions.com
VSA Arts of New Jersey
703 Jersey Avenue
New Brunswick, NJ 08901
Telephone: (732) 745-3885
TTY:
(732) 745-3913
www.vsanj.org
31
X
TECHNOLOGY RESOURCES
ASSISTIVE TECHNOLOGY
Assistive technology is equipment or services which increase, maintain or improve the functional capability of
an individual with a disability. The following programs and agencies provide both awareness of and access to
assistive technology.
“BACK IN ACTION”
ASSISTIVE DEVICES RECYCLING CENTER
Telephone: (800) DIAL-TEC (342-5832)
TTY:
(609) 633-7106
FAX:
(609) 777-0187
http://backinaction.njpada.org
ASSISTIVE TECHNOLOGY ADVOCACY CENTER (ATAC)
210 S. Broad Street, 3rd Floor
Trenton, NJ 08608
Telephone: (800) DIAL-TEC (342-5832)
TDD:
(609) 633-7106
FAX:
(609) 777-0187
www.drnj.org/atacprogram.htm
REHABILITATION TECHNOLOGY SERVICES AND
TECHNOLOGY LENDING CENTER
Advancing Opportunities (formerly CPNJ)
1005 Whitehead Road Ext., Suite 1
Ewing, NJ 08638
Telephone: (609) 882-4182
(888) 322-1918 (Toll-free)
TTY:
(609) 882-0620
FAX:
(609) 882-4054
YOUR ReSource
8 Industry Court
Ewing, NJ 08638
Telephone: (609) 530-1513
www.yourresourcenj.org
TECHNOLOGY RESOURCES ON THE WEB
Able Data
AssistiveTech.net
www.abledata.com
www.assistivetech.net
RESNA
Web Access Interactive
www.resna.org
www.w3.org/WAI/
Northeast ADA & IT Center www.ilc.cornell.edu/edi/dbtacnortheast/index.cfm
XI
NATIONAL RESOURCES
Many national organizations can offer assistance to people with disabilities and their families. Here are some
telephone numbers, hotlines, and Web Sites for additional resources.
Ability OnLine Support Network
(866) 650-6207
www.ablelink.org
Amputee Coalition of America
(888) 267-5669
www.amputee-coalition.org
American Association on Intellectual and
Developmental Disabilities
(800) 424-3688
www.aamr.org
Amyotrophic Lateral Sclerosis Association
(800) 782-4747
www.alsa.org
The Arc of the United States
(800) 433-5255
www.thearc.org
American Cancer Society
(800) 227-2345
www.cancer.org
Brain Injury Association of America
(800) 444-6443
www.biausa.org
American Foundation for the Blind
(800) 232-5463
www.afb.org
Burn Survivors Online
www.burnsurvivorsonline.com
American Stroke Association
(888) 478-7653
www.strokeassociation.org
Celiac Sprue Association
(877) 272-4272
www.csaceliacs.org
32
Children and Adults with Attention Deficit
Disorder (CHADD)
(800) 233-4050
www.chadd.org
National Autism Services Center
(304) 525-8014
www. autismservicescenter.org
National Clearinghouse on Postsecondary Education for
Individuals with Disabilities
(800) 544-3284
www.heath.gwu.edu/
Chronic Fatigue and Immune Dysfunction Syndrome
Association of America
(704) 365-2343
www.cfids.org
National Council on Alcoholism and Drug Dependence
(800) 622-2255
www.ncadd.org
Cystic Fibrosis Foundation
(800) 344-4823
www.cff.org
National Dissemination Center for Children
With Disabilities (NICHCY)
(800) 695-0285
www.nichcy.org
Disability Rights Education and Defense Fund
(510) 644-2555
www.dredf.org
Easter Seals National Headquarters
(800) 221-6827
www.easterseals.com
National Downs Syndrome Society
(800) 221-4602
www.ndss.org
Epilepsy Foundation of America
(800) 332-1000
www.epilepsyfoundation.org
National Fragile X Foundation
(800) 688-8765
www.fragilex.org
Job Accommodation Network
(800) 526-7234
www.jan.wvu.edu
National Library Services for the Blind and Physically
Handicapped
(800) 424-8567
www.loc.gov/nls/
Learning Disabilities Association
(412) 341-1515
www.ldanatl.org
National Multiple Sclerosis Society
(800) 344-4867
www.nmss.org
Mental Health America
(800) 969-6642
www.nmha.org
National Organization for Rare Disorders
(800) 999-6673
www.rarediseases.org
Muscular Dystrophy Association
(800) 344-4863
www.mdausa.org
National Spinal Cord Injury Association
(800) 962-9629
www.spinalcord.org
National Accessible Apartment Clearinghouse
(800) 421-1221
www.accessibleapartments.org
Office of Disability Employment Policy (ODEP)
(866) 633-7365
www.dol.gov/odep
National Association of the Deaf
(301) 587-1789 (TTY)
(301) 587-1788 (Voice)
www.nad.org
Paralyzed Veterans of America
(800) 424-8200
www.pva.org
National Association for Parents of Children with
Visual Impairments
(800) 562-6265
www.napvi.org
Reflex Sympathetic Dystrophy Syndrome Association
(877) 662-7737
www.rsds.org
National Association of People with AIDS
(240) 247-0880
www.napwa.org
Society for Disability Studies
(312) 996-4664
www.disstudies.org
33
XII
RESEARCH RESOURCES
Library for the Blind and Handicapped
PO Box 501
2300 Stuyvesant Avenue
Trenton, NJ 08625
Telephone: (800) 792-8322
(609) 530-4000
FAX:
(609) 530-6384
www.njlbh.org
New Jersey State Library
PO Box 520, 185 West State Street
Trenton, NJ 08625
Telephone: (609) 278-2640
FAX:
(609) 292-2746
www.njstatelib.org
RESEARCH RESOURCES ON THE WEB
Disability Research Institute www.dri.uiuc.edu/default.htm
Recording for the Blind and Dyslexic (RFB&D)
20 Roszel Road
Princeton, NJ 08540
Telephone: (800) 221-4792
FAX:
(609) 987-8116
www.rfbd.org
XIII
National Center for the Dissemination
of Disability Research
www.ncddr.org
National Rehabilitation Information
Center
www.naric.com
Spinal Cord Injury
Information Network
www.spinalcord.uab.edu
US Census Bureau
http://factfinder,census.gov
RIGHTS AND LAWS
The Individuals with Disabilities
Education Act (IDEA)
The Fair Housing Act
http://idea.ed.gov
Federal law which prohibits discrimination in the
sale or rental of houses and apartments. It is also discriminatory to refuse to allow the modification of a
home to provide physical access.
www.usdoj.gov/crt/housing/title8.htm
Federal law mandating that all children, regardless
of disability, are entitled to a free, appropriate education, without extra cost and in the least restrictive
and segregated environment possible.
The Motorized Wheelchair Lemon Law
www.state.nj.us/lps/ca/brief/wheel.pdf
The Rehabilitation Act of 1973
www.ed.gov/policy/speced/reg/narrative.html
Federal law which mandates all federal government
agencies, and agencies with federal government contracts, to take affirmative action to employ people
with disabilities. It also protects otherwise qualified
people with disabilities from being denied services
or benefits from a program receiving federal money.
The Americans with Disabilities Act (ADA)
www.usdoj.gov/crt/ada/adahom1.htm
Federal civil rights law which guarantees individuals
with disabilities equal opportunity in employment,
public accommodations, state and local government
services, transportation, and telecommunications.
The Developmental Disabilities Assistance and
Bill of Rights Act of 2000
www.acf.hhs.gov/programs/add/ddact/DDACT2.html
Federal law mandating that an individual with a
developmental disability has a right to appropriate
treatment for his or her disability, and that treatment
should be designed to maximize the individual’s
potential.
34
The Wheelchair Lemon Law requires manufacturers
to give customers warranties of at least one year that
cover defects which impair the use, value or safety
of the chair or scooter. After three unsuccessful
attempts at repairing the same problem with the
wheelchair or motorized scooter or if the wheelchair
or motorized scooter is out of service for a total of
twenty days, the customer may be entitled to a
replacement, refund, or early lease termination,
minus a reasonable allowance for use.
The Snow Removal Act
www.njleg.state.nj.us/9899/Bills/pl99/182_.htm
In a public parking area, the person who owns or
controls the area shall be responsible for assuring
that the restricted spaces remain free from obstruction. This includes shopping carts and other debris.
Ice and snow must be removed within 24 hours after
the weather condition has ceased.
New Jersey Handicapped Parking Laws
Appendix 1
Open Public Records Act (OPRA)
www.nj.gov/opra/
2001 state law which requires most branches of state,
county, and municipal government to provide citizens
with the opportunity to inspect, copy, or examine government records. It does allow public agencies to protect
citizens’ personal information.
from refusing to transport a passenger solely because of
a disability; limits the circumstances under which passengers with disabilities must provide advance information about their disabilities to air carriers; states that
assistive devices do not count against passenger baggage
limits; and sets accessibility guidelines for airplane facilities. Airline personnel must provide routine physical
assistance but are not required to provide what would
customarily be regarded as personal care assistance.
However, if a passenger requires an attendant, the airline
must transport the attendant free of charge. The law does
not require an airline to transport an individual who may
endanger the health or safety of others. The Act mandates
that a Complaints Resolution Officer (CRO) be immediately available to resolve disputes between airlines and
passengers with disabilities.
Older Americans Act
www.aoa.gov
Federal civil rights law passed in 1965, which has since
been amended. It created the Administration on Aging
and provides funding for research and training projects.
It also provides nutrition programs, health promotion and
disease prevention, in-home services, and protection of
the rights of older persons. The amended Act created the
National Family Caregiver Support Program, which
helps families care for elders who have illnesses or disabilities.
The Work Incentives Improvement Act
www.socialsecurity.gov/work/aboutticket.html
Former U.S. President Clinton signed the Ticket to Work
and Work Incentives Improvement Act of 1999 on
December 17. This law increases beneficiary choice in
obtaining rehabilitation and vocational services; removes
barriers that require people with disabilities to choose
between health care coverage and work; and insures that
more Americans with disabilities have the opportunity to
participate in the workforce and lessen their dependence
on public benefits.
Mental Health Parity Act
www.cms.hhs.gov/healthinsreformforconsume/04_the
mentalhealthparityact.asp
Federal law which prevents group health plans of
employers with more than 50 workers from placing dollar limits on mental health benefits that are lower than
annual or lifetime dollar limits for medical and surgical
benefits offered under the plan. This law does not, however, require group health plans to include mental health
coverage.
New Jersey Law Against Discrimination (NJLAD)
www.state.nj.us/lps/dcr/law.html
Federal law which establishes national standards to protect individuals’ medical records and other health information. Insurance carriers, healthcare clearinghouses,
and healthcare providers are required to comply with its
privacy standards. It gives consumers the right to request
to inspect, copy, or amend their medical records, and to
limit disclosure of information.
New Jersey state law which prohibits discrimination in
employment, housing, places of public accommodation,
and credit and business contracts on the basis of race,
creed, color, national origin, nationality, ancestry, age,
sex, familial status, marital status, domestic partnership
status, affectional or sexual orientation, atypical cellular
or blood trait, genetic information, liability for military
service, mental or physical disability, perceived disability, or AIDS and HIV status. There are exceptions to these
prohibitions.
Danielle’s Law
Family Support Act
www.state.nj.us/humanservices/ddd/danielle.htm
www.state.nj.us/humanservices/ddd/famsupp.html
New Jersey state law which requires staff working at
public or private facilities for persons with developmental disabilities or brain injuries to call 911 in cases of
medical emergency.
The Family Support Act is a 1993 state law which created family-driven Regional Family Support Planning
Councils to assist families in making service decisions
that best meet the needs of their members with disabilities. It establishes within the Division of Developmental
Disabilities (DDD) a system of family support which
includes financial assistance, service coordination, and a
variety of services and trainings.
Health Insurance Portability and Accountability Act
(HIPAA)
www.hhs.gov/ocr/hipaa/
Air Carriers Access Act
http://airconsumer.ost.dot.gov/publications/horizons.htm
Federal law which requires airlines to accommodate the
needs of passengers with disabilities. It prevents airlines
35
LEGAL ASSISTANCE
Federal Communications Commission
Consumer Information on Telecommunications Relay
Services (TRS)
Telephone: (888) 225-5322
TTY:
(888) 835-5322
www.fcc.gov/cgb/dro/trs.html
Civil Rights
The Division on Civil Rights, within the New Jersey
Department of Law and Public Safety, is responsible for
investigating allegations of discrimination and for seeking resolution through conciliation, hearings, or court
orders. People with disabilities can file a complaint by
calling the division or any of its enforcement branches.
Architectural and Transportation Barriers
Compliance Board
Documents and questions: (800) 872-2253
TDD:
(800) 993-2822
www.access-board.gov
The Division on Civil Rights
PO Box 090
Trenton, NJ 08625-0090
Telephone: (609) 292-4605
TTY:
(609) 292-1785
FAX:
(609) 984-3812
www.NJCivilRights.org
INFORMATION ON OTHER LAWS OF INTEREST
Individuals with Disabilities Education Act (IDEA)
of 1990 US Department of Education
Office of Special Education and Rehabilitative Services
Telephone: (202) 245-7468
www.ed.gov/about/offices/list/OSERS/index.html
See Page 15
DISABILITY RIGHTS INFORMATION SERVICES
The following telephone numbers and Internet sites offer
access to federal agencies and other organizations which
provide information about the Americans with
Disabilities Act (ADA), as well as guidance in understanding and complying with provisions of the ADA and
other federal disability rights laws.
Fair Housing Act of 1988
New Jersey/New York
HUD Fair Housing Office
Telephone: (800) 496-4294
TTY:
(973) 645-3298
www.hud.gov/offices/fheo/aboutfheo/fhhubs.cfm
Department of Justice
ADA Information Line for documents, questions and
referrals:
(800) 514-0301
TDD:
(800) 514-0383
www.ada.gov
Rehabilitation Act of 1973
Disability Rights Section, Civil Rights Division, U.S.
Department of Justice:
Telephone: (800) 514-0301
TTY:
(800) 514-0383
www.ada.gov
Equal Employment Opportunity Commission
(EEOC)
National Headquarters
Telephone: (202) 663-4900
TTY:
(202) 663-4494
To be automatically connected to the nearest EEOC
field office: (800) 669-4000
TTY:
(800) 669-6820
www.eeoc.gov
ADA TECHNICAL ASSISTANCE
DBTAC - Northeast ADA Center
Cornell University
201 Dolgen Hall
Ithaca, NY 14853
Telephone (800) 949-4232 (voice, TTY)
www.ilr.cornell.edu/edi/dbtacnortheast/index.cfm
For a list of ADA cases, See Appendix 8
AMERICANS WITH DISABILITIES ACT AT A GLANCE
Title I Ensures that qualified job applicants and employees with disabilities are protected from discrimination on the basis of
disability. Enforced by the Equal Employment Opportunity Commission (EEOC)
Title II Requires equal access for people with disabilities to state and local government programs and services. Enforced by the
Department of Justice (DOJ)
Title III Mandates access to goods and services to people with disabilities in places of public accommodation. Enforced by the
Department of Justice (DOJ)
Title IV Establishes the Telecommunication Relay service and requires any public service announcement that is funded wholly
or in part by the federal government to be closed-captioned. Enforced by the Federal Communications Commission (FCC)
Title V Compliance mechanisms for the administration of the provisions of the ADA
36
XIV
HEALTH COVERAGE RESOURCES
This section describes federal and state health care assistance programs and health care resources for eligible children and adults with disabilities.
SPECIAL CHILD, ADULT AND EARLY INTERVENTION
SERVICES
Special Child, Adult and Early Intervention Services
(SCAEIS), a comprehensive program within the
Department of Health and Senior Services, is
designed to provide a network of services to meet
the health needs of children (age birth to 21 years)
with developmental delays, chronic illness, and/or
disabling conditions. SCAEIS receives state, county
and federal funds under Title V of the Social
Security Act. The agency provides funds to a variety
of medical facilities for outpatient prevention, identification and treatment services for children with
disabling or potentially disabling conditions.
Agencies receiving funds from SCAEIS are required
to apply a sliding fee scale for most children who are
not covered by any third-party payers. County Case
Management Units operate statewide, and case management services are available at no charge.
DIVISION OF FAMILY HEALTH SERVICES
NJ Family Health Line
Telephone:
(800) 328-3838
NEWBORN BIOCHEMICAL
SCREENING PROGRAM
Telephone:
(609) 292-1582
SUPPLEMENTAL NUTRITION
The Supplemental Nutrition Program for Women,
Infants, and Children (WIC) provides supplemental
nutritious foods, nutrition education, breastfeeding
promotion and support, immunization screening,
and health care referrals to pregnant, breastfeeding,
and postpartum women, infants, and children (from
families with inadequate income and who are at risk
with respect to their physical and mental health due
to inadequate nutrition and/or primary health care).
Special Child, Adult and Early Intervention
Services
PO Box 364, Trenton, NJ 08625-0364
Telephone:
(609) 777-7778
(888) 653-4463 (Toll Free)
FAX:
(609) 292-3580
COUNTY CASE MANAGEMENT UNITS
Atlantic County
(609) 645-7700
Bergen County
(201) 634-2620
Burlington County (609) 267-1950
Camden County
(856) 374-6021
Cape May County
(609) 465-1202
Cumberland County (856) 327-7602
Essex County
(973) 395-8836
Gloucester County (856) 681-6497
Hudson County
(201) 915-2514
Hunterdon County
(908) 788-6398
Mercer County
(609) 588-8460
Middlesex County
(732) 745-3187
Monmouth County (732) 224-6950
Morris County
(973) 971-4155
Ocean County
(732) 341-9700
Passaic County
(973) 523-6778
Salem County
(856) 935-7510
Somerset County
(908) 725-2366
Sussex County
(973) 948-5239
Union County
(908) 889-0950
Warren County
(908) 689-6000
MATERNAL AND CHILD HEALTH SERVICES
The Maternal and Child Health and Regional
Services Unit supports a regionalized perinatal system and provides epidemiology services based on
infant mortality and morbidity surveillance units.
Funding and coordination are provided to the
Healthy Mothers/Healthy Babies Coalitions, the
MCH Consortia, and a network of specialized perinatal services for pregnant women at risk. This network includes high-risk obstetric clinics and risk
reduction centers.
x4254
x42882
FOR LOCAL WIC AGENCIES
(866) 44NJWIC
(child only)
For the Department of Health and Senior Services
See Pages 9 and 10
(child only)
DENTAL ASSISTANCE
New Jersey Foundation of Dentistry for Persons
with Disabilities, Donated Dental Services
PO Box 2117
Edison, NJ 08818
Essex, Union, Hudson, Bergen, Passaic, Morris,
and Sussex Counties:
Telephone:
(888) 995-0055
(732) 549-8506
FAX:
(732) 549-8907
All other counties:
Telephone:
(800) 829-4619
(732) 549-8909
FAX:
(732) 549-8907
www.nfdh.org
(child only)
(child only)
(child only)
(child only)
x7602
(child only)
x8479
(child only)
x258
37
University of Medicine & Dentistry of New Jersey
(UMDNJ), New Jersey Dental School Clinic
110 Bergen Street, PO Box 1709
Newark, NJ 07101
Telephone: (973) 972-4242
MENTAL HEALTH SERVICES
Statewide Clinical Consultation and Training (SCCAT)
This program serves individuals anywhere in New Jersey
with developmental disabilities in mental health or
behavioral crises. Their staff work out of regional offices,
providing 24 hour a day, 7 day a week mobile response
to people who are in crisis wherever they are located.
They work with consumers, their families, staff and mental health providers by offering:
• Direct response at the time of crisis in family homes,
residential placements, day programs, and emergency rooms
• Technical support to families, sponsors, DD and
mental health service providers
• Link-up with relevant resources
• Training for consumers, families, sponsors, and service providers
• Consultations at psychiatric impatient units
Dental Care for Persons with Developmental
Disabilities in NJ,
Matheny Institute for Reseach in Developmental
Disabilities
PO Box 339
Peapack, NJ 07977
Telephone:
(908) 234-0011
(888) 917-1222
Dental Provider Database
www.disabilityhealth.org/dental
PHARMACEUTICAL ASSISTANCE
PAAD and Senior Gold
The Department of Health and Senior Services offers, to
qualified individuals, programs which provide financial
assistance for prescription medicines and certain pharmacy items.
(888) 393-3007
www.sccatnj.org
For the Division of Mental Health Services,
See Page 8
For information about applying for Pharmaceutical
Assistance to the Aged and Disabled (PAAD) or Senior
Gold, contact your county’s NJ EASE program (see
page 21), your local pharmacy, or the Department of
Health and Senior Services.
FEDERALLY QUALIFIED HEALTH CENTERS (FQHCs) are
community-based programs, which provide primary
and preventive healthcare, regardless of a patient’s
ability to pay. To find a FQHC in New Jersey, visit
www.njpca.org/FQHC.
Department of Health and Senior Services Call
Center (800) 792-9745 (609) 588-7048
CHARITY CARE (866) 588-5696
The New Jersey Hospital Care Payment Assistance
Program (Charity Care) is free or reduced charge care,
which is provided to patients who receive inpatient and
outpatient services at acute care hospitals throughout
New Jersey. Some services, and outpatient prescriptions,
may not be eligible for reduction. Assistance is available
to individuals who have no health coverage or coverage
that pays only for part of the bill, who are ineligible for
any private or government sponsored coverage (such as
Medicaid), and who meet the program’s income and
assets criteria.
For information about the AIDS Drug Distribution
Program (ADDP), call (877) 613-4533
Rx4NJ (888) 793-6765 www.rx4nj.org
Many pharmaceutical companies have Patient Assistance
Programs to assist consumers who have limited income
and are without health insurance which covers the cost of
medications. Rx4NJ, a Partnership for Prescription
Assistance (PPA) program, is a no-cost service which
connects consumers to these discounts.
HEALTHCARE RESOURCES ON THE WEB
The New Jersey Motor Vehicle Commission (MVC) provides a discount on the cost of vehicle registration to
PAAD and Lifeline recipients. In order to receive this
discount, the recipient must provide a current Lifeline or
PAAD eligibility card at the time of registration.
The Patient Advocate Foundation
www.patientadvocate.org
Medicare Interactive
www.medicareinteractive.org
Center for Ethics and Advocacy in Healthcare
www.healthcare-ethics.org
For more information, contact the MVC at
(888) 486-3339
38
MEDICARE
(800) 633-4227
TDD: (877) 486-2048
NEW JERSEY STATE GOVERNMENT CONTACTS
State Insurance Department
(609) 292-5360
State Medical Assistance Office (609) 588-2600
Long Term Care Ombudsman (877) 582-6995
Medicare is a health insurance program, administered by
the Center for Medicare and Medicaid Services (CMS),
for people 65 years of age or older, certain younger people with disabilities, and people with End-Stage Renal
Disease.
FEDERAL GOVERNMENT CONTACTS
Center for Disease Control and Prevention (CDCP)
(800) 311-3435
www.cdc.gov
Medicare coverage is divided into three parts; Part A,
Part B, and Part D. Part A helps to pay for care in hospitals, skilled nursing facilities, and hospice care. Part B
helps pay for doctors, outpatient hospital care, and some
other services not covered under Part A. Part D provides
prescriptions coverage. Please direct specific questions
to your carrier.
Department of Veterans Affairs (DVA)
(800) 827-1000
TDD: (800) 829-4833
www.va.gov
MEDICARE CONTACTS
Center for Medicare and Medicaid Services (CMS)
26 Federal Plaza Room, 38th Floor
New York, NY 10278
Telephone: (212) 616-2205
FAX:
(212) 264-6189
http://cms.hhs.gov
Health Resources and Services Administration
(HRSA) (888) 275-4772
TDD: (877) 489-4772
www.hrsa.gov
Office on Civil Rights
(800) 368-1019
TDD: (800) 537-7697
www.hhs.gov/ocr/
For Medicare information:
www.medicare.gov
Office of the Inspector General
(800) 869-4499 TDD: (800) 377-4950
www.usdoj.gov/oig
800-MEDICARE (633-4227)
NEW JERSEY CARRIERS AND PARTNERS
State Health Insurance and Assistance Program
(SHIP)
Telephone: (800) 792-8820
(609) 943-3437
FAX:
(609) 943-4011
Railroad Retirement Board
(800) 808-0772
TDD: (312) 751-4701
www.rrb.gov
New Jersey Hospice and Palliative Care
Organization (908) 233-0060
MEDICARE COVERAGE AT A GLANCE
Part A: Medically necessary care in hospitals, skilled nursing facilities, hospice, and some home health care
Part B: Doctor visits, preventive care, laboratory and x-ray services, durable medical equipment, hospital outpatient
services, home health care, and ambulance service
Part D: Coverage for some medically approved pharmaceuticals
39
MEDICAID
(800) 356-1561
TDD: (800) 356-1561
The New Jersey Medicaid Program, administered by the DHS Division of Medical Assistance and Health Services,
covers certain medical and health care services for individuals who meet established eligibility standards.
MEDICAL ASSISTANCE CUSTOMER CENTERS
Atlantic / Cape May / Cumberland Counties
(609) 561-7569
Bergen / Passaic Counties
(973) 977-4077
supports and services that the waiver can provide, and
who require a level of care provided by a hospital, a nursing facility, or an intermediate care facility.
Department of Human Services:
• TBI Waiver
• ACCAP Waiver
• CRPD Waiver
Division of Disability Services: (609) 292-4800
or (888) 285-3036 (See page 1 and 2)
Burlington / Camden / Gloucester / Mercer / Salem
Counties
(856) 614-2870
Essex County
(973) 648-3700
Hudson County
(201) 217-7100
Monmouth / Ocean Counties
(732) 761-3600
Morris / Sussex / Warren / Hunterdon / Somerset Counties
(973) 631-6440
Middlesex / Union Counties
(732) 777-6977
• DDD Community Care Waiver
Division of Developmental Disabilities:
(609) 987-2176
Department of Health and Senior Services:
• GO Waiver
Division of Aging and Community Services:
(609) 943-3475 (See page 9)
MEDICAID HOME AND
COMMUNITY-BASED WAIVERS
Medicaid waivers include expanded Medicaid services to
allow individuals who require facility-level of care to remain
in the community. Individual waivers have disability-specific services included in their service packages. Please note
that waivers have clinical and financial eligibility criteria,
which must be met prior to enrollment.
Waivers are for individuals who already qualify for Medicaid
but require supports and services beyond what standard
Medicaid health insurance covers, OR for those who do not
qualify for Medicaid under standard income guidelines, but
who will not be able to remain in their homes without the
NJ FAMILY CARE
NJ FamilyCare is a federal and state funded health insurance program created to help New Jersey’s uninsured
children and certain low-income parents and guardians to
have affordable health coverage. It is for families who do
not have available or affordable employer insurance,
and cannot afford to pay the high cost of private health
insurance.
Telephone: (800) 701-0710
www.njfamilycare.org
For a list of the
County Boards of Social Service, See Page 18
To report Medicaid fraud: 877-55-FRAUD
MEDICAID AT A GLANCE
MEDICAID SERVICES MAY INCLUDE:
• Certified Nurse Practitioner/Clinical Nurse
Specialist Services
• Chiropractic Services
• Dental Services
• Early and Periodic Screen, Diagnosis, and Treatment
(under age 21 only)
• Family Planning Services
• HealthStart Maternity and Pediatric Care Services
• Home Care Services
• Hospice Services
• Inpatient and Outpatient Hospital Services
• Laboratory and Radiological Services
•
•
•
•
•
•
•
•
•
•
•
40
Medical Day Care Services
Medical Supplies and Equipment
Nursing Facility Services
Optometric Services and Optical Appliances
Pharmaceutical Services
Physician Services
Podiatric Services
Prosthetic and Orthotic Devices and Hearing Aids
Psychological and Mental Health Services
Rehabilitative Services
Medical Transportation Services
HEALTH AND WELLNESS FOR PEOPLE WITH DISABILITIES
WELLNESS BASICS
• Include physical activity in your daily routine.
• Eat according to the FDA Food Pyramid at http://mypyramid.gov/
• Rest when needed and maintain a sleep schedule and maintain good personal hygiene.
• Make medical appointments as needed and keep accurate records for follow-up.
• Take medication as directed. Don’t deviate from regime without medical clearance.
• Do a daily ‘wellness check” Look out for skin breakdown, sores and irritation.
• Make sure medical equipment such as wheelchairs and prosthetic devises “fit” properly.
• Avoid drug usage and limit alcohol and tobacco consumption.
• Maintain social interaction. Be part of the community.
• Keep up with “preventative” care. Examples Mammogram and pelvic exams for females and DRE and
testicular exam for males.
HEALTH CARE SELF-ADVOCACY
• Keep an accurate updated list of your medications, providers, and insurance information.
• Make sure providers’ offices are accessible. When in doubt, Ask!!
• Discuss your disability as well as your health needs with practitioners.
• Never be afraid to ask questions or get clarity as needed.
• Ask someone to accompany you to appointments as needed.
• Keep a list of concerns or questions in between appointments and bring it with you to your appointments.
WELLNESS RESOURCES ON THE WEB
Center for Disease Control Women’s Health Homepage
www.cdc.gov/ncbddd/women/default.htm
The National Center on Physical Activity and Disability
www.ncpad.org/
Center for Research on Women with Disabilities (CROWD)
www.bcm.edu/crowd/index.cfm
American Association on Health and Disability
www.aahd.us/page.php
National Woman’s Health Information Center Illnesses and Disabilities
www.4woman.gov/wwd
Center for Disease Control Feature Page on Disabilities
www.cdc.gov/Features/Disabilities
41
XV
FINANCIAL ASSISTANCE
SUPPLEMENTAL SECURITY INCOME
Supplemental Security Income (SSI) is a Federal
program established for the aged and people with
disabilities. The program provides a monthly
stipend. The federal government administers SSI
through the Social Security Administration. People
over 65 and people with disabilities, including children, may be eligible for SSI payments, and will
receive NJ Medicaid automatically. Application is
made through any Social Security office. Parents or
guardians may apply on behalf of children under 18.
SOCIAL SECURITY DISABILITY
INSURANCE
The Social Security Disability Insurance (SSDI)
program pays benefits to disabled workers and their
families. To be eligible for SSDI, you must be disabled and must have earned a minimum number of
credits from work covered under Social Security.
The required number of credits varies depending on
your age at the time you became disabled.
SOCIAL SECURITY ADMINISTRATION
(800) 772-1213 TDD: (800) 325-0778
www.socialsecurity.gov
CATASTROPHIC ILLNESS IN CHILDREN
RELIEF FUND
(800) 335-FUND
The Catastrophic Illness in Children Relief Fund
provides financial assistance for families in which a
child has a disability or illness for which expenses
are incurred that are not fully covered by insurance,
state or federal programs, or other sources. Families
that have lived in New Jersey for at least three
months immediately preceding the date of application may be eligible if they have incurred health care
expenses that exceed 10 percent of the family’s
income (plus 15 percent of any income over
$100,000). The child must have been 21 years old or
younger when the medical bills were incurred.
Families may reapply annually.
UTILITY ASSISTANCE
LOW INCOME HOME ENERGY
ASSISTANCE PROGRAM (LIHEAP)
(800) 510-3102
LIHEAP helps to pay heating and cooling bills.
NJ LIFELINE CREDIT PROGRAM
(800) 792-9745
NJ Lifeline is a yearly credit for your electric or gas
bill. An individual must be 65 years old, or be a disabled adult at least 18 years old who is receiving
Social Security Disability benefits. Recipients of
Supplemental Security Income (SSI) do not need to
apply-the Lifeline benefit is included in the monthly
SSI check.
NJ SHARES
(866) NJSHARES (657-4273)
www.njshares.org
NJ SHARES helps to pay electric and gas bills. This
benefit can help if you experience a financial emergency and cannot pay your energy bill. To apply,
contact a local NJ SHARES Intake Agency using the
toll-free number above.
UNIVERSAL SERVICE FUND (USF)
(866) 240-1347
The Universal Service Fund (USF) program helps
eligible low income households pay electric and natural gas service. The goal of the USF program is to
ensure that eligible New Jersey utility customers
only have to pay an affordable portion of their
household income for energy cost. Under USF, elibible households would pay no more than 6% of
their annual income for their natural gas and electric
service combined. USF recipients must reside at the
address provided on their utility account, and USF
benefits will only be offered to the person/head of
household listed on the utility account.
Board of Public Utilities (973) 648-2026
AUTO INSURANCE ASSISTANCE
CATASTROPHIC ILLNESS IN CHILDREN
RELIEF FUND COMMISSION
PO Box 728, Trenton, NJ 08625-0728
Telephone: (609) 292-0600
To find food pantries throught New Jersey, visit the
Statewide Emergency Food and Anti-Hunger
Network website: www.sefan.org
42
DOLLAR-A-DAY AUTO INSURANCE
(800) 652-2471
The Dollar-A-Day policy is available to New Jersey
drivers who are currently enrolled in Medicaid with
hospitalization. It covers emergency treatment
immediately following an accident, and treatment of
serious brain and spinal cord injuries up to
$250,000. It also provides a death benefit of
$10,000. The cost is $365 per year.
XVI
EARLY INTERVENTION RESOURCES
The New Jersey Early Intervention System receives state and federal funds through Part C of the Individuals with
Disabilities Education Act. The ultimate goal is for children to maximize their potential to lead full, productive
lives with their families and within their own communities.
New Jersey’s Early Intervention System is a coordinated effort among the New Jersey Department of Health and
Senior Services, the New Jersey Department of Human Services, the New Jersey Department of Education and
the New Jersey Developmental Disabilities Council. A State Interagency Coordinating Council, appointed by the
governor, advises and assists the Department of Health and Senior Services as lead agency in the development
and implementation of early intervention for infants and toddlers with developmental delays or disabilities, and
their families. Services are available to children, birth to three, in every county.
ELIGIBILITY
Each child’s eligibility is determined by a multidisciplinary team, which includes the child’s parents. If
the child is not eligible for early intervention, recommendations may be made for referral to other appropriate resources. If the child is eligible, as determined
by a medical diagnosis or developmental evaluation,
an Individualized Family Service Plan (IFSP) to
meet the needs of the child and the family will be
developed by the team.
CRITERIA
• developmental delay of 25 percent in two or more
developmental areas (cognitive; physical, including
gross motor, fine motor, vision and hearing; communication, social/emotional or adaptive); or
• developmental delay of 33 percent in one developmental area; or
• a medically diagnosed physical or mental condition
that has a high probability of resulting in developmental delay.
ACCESSING SERVICES
The county-based Special Child Health Services’ Case
Management Units are the system points of entry into
the early intervention system. With family consent,
anyone may call to make a referral. A service coordinator will be assigned to work with the family. The
service coordinator will arrange evaluation for eligibility at no cost to the family.
Please see Pages 37 for a list of SCHS Case
Management Units
REGIONAL COLLABORATIVES
The Regional Early Intervention Collaboratives
(REICs) are independent, non-profit corporations
established to provide a community-based, culturally
competent and consumer-driven early intervention
system. The collaboratives are responsible for conducting assessments to identify regional needs; developing plans to address the needs; understanding and
supporting family preferences, needs and quality of
life; and actively involving families and community
in every aspect of system development.
43
Southern Regional Early Intervention Collaborative
Winslow Professional Building
339 South Route 73, Suite 6, Berlin, NJ 08009
Telephone: (856) 768-6747
FAX:
(856) 768-7608
www.njeis.org/snjreic/
(Atlantic, Burlington, Camden, Cape May, Cumberland,
Gloucester and Salem Counties)
Family Link Regional Early Intervention
Collaborative
2333 Morris Avenue, Suite A-204 (2nd Floor)
Union, NJ 07083
Telephone: (908) 964-5303
FAX:
(908) 964-6091
www.njeis.org/familylink/
(Essex, Morris, Sussex, Union and Warren Counties)
Central New Jersey Maternal and Child Health
Consortium Regional Early Intervention
Collaborative
Central New Jersey Maternal and Child Health
Consortium
2 King Arthur Court, Suite B
North Brunswick, NJ 08902
Telephone: (732) 937-5437
FAX:
(732) 937-5540
www.cnjmchc.org
(Hunterdon, Mercer, Middlesex, Monmouth, Ocean, & Somerset
Counties)
Northeast Regional Early Intervention
Collaborative
65 Willowbrook Boulevard, 2nd Floor
Wayne, NJ 07470
Telephone: (973) 256-8484
FAX:
(973) 256-1233
(Bergen, Hudson and Passaic Counties)
www.nreic.org
Early Intervention System
888-NJ-EI-INFO
(888-653-4463)
XVII
EDUCATION RESOURCES
The Individuals with Disabilities Education Act guarantees children with disabilities, ages 3 to 21, the right
to a free, appropriate public education delivered in the least restrictive environment. The New Jersey
Department of Education administers state and federally funded aid programs for more than 1.3 million public and private elementary and secondary school children, and is responsible for ensuring that local schools
comply with state and federal laws and regulations.
SPECIAL EDUCATION PROGRAMS
The Office of Special Education Programs, under
the jurisdiction of the Division of Student Services,
is responsible for the provision of special education
and related services.
Office of Special Education Programs
PO Box 500, 100 Riverview Plaza
Trenton, NJ 08625-0500
Telephone:
(609) 292-0147
FAX:
(609) 984-8422
www.nj.gov/njded/specialed/
CHILD STUDY TEAMS
A child study team consists of a school psychologist,
a learning disability teacher-consultant and a school
social worker. For children age three to five, the
child study team includes a speech correctionist or
speech-language specialist. The child study team,
with consent of the child’s parents, evaluates the
child and determines his or her eligibility for special
education services.
Upon completion of the evaluation and prior to
placement in special education, an Individualized
Education Program, with stated goals and objectives,
is written with the participation of the parents.
According to New Jersey Administrative Code, a full
continuum of alternative placements shall be available to meet the needs of children with educational
disabilities.
LEARNING RESOURCE CENTERS
Learning Resource Centers are funded through the
Individuals with Disabilities Education Act, Part B
Funds. The centers provide research reports, curriculum guides, books, videos and audio tapes, as well as
training and in-service workshops, for parents and
educators of students with disabilities.
Please See List on Page 12
HEAD START
Project Head Start is a Federally funded pre-school
program for children. Head Start provides a program
of comprehensive developmental services based on
the needs of the individual child, the child’s family
and community. Head Start serves children with disabilities in a mainstream environment.
For Local Head Start Programs:
(609) 984-5321
NEW JERSEY HIGHER EDUCATION
STUDENT ASSISTANCE AUTHORITY
(HESAA)
HESAA provides New Jersey students and families
with the financial and informational resources for
students to pursue their education beyond high
school.
Telephone: (800) 792-8670
www.hesaa.org
COUNTY SUPERVISORS OF CHILD STUDY
Atlantic
Bergen
Burlington
Camden
Cape May
Cumberland
Essex
Gloucester
Hudson
Hunterdon
Mercer
Middlesex
Monmouth
Morris
Ocean
Passaic
Salem
Somerset
Sussex
Union
Warren
(609) 625-0004
(201) 336-6875
(609) 265-5938
(856) 401-2400
(609) 465-1282
(856) 453-0422
(973) 395-4677
(856) 468-6500
(201) 319-3850
(908) 788-1414
(609) 588-5873
44
(732) 249-2900
(732) 431-7823
(973) 285-8336
(732) 929-2078
(973) 569-2110
(856) 935-7510 Ex. 8431
(908) 541-5700
(973) 579-6996
(908) 654-9867
(908) 475-6327
XVIII
EMPLOYMENT AND TRAINING RESOURCES
Resources for employment and training vary, depending on the individual’s skill level and employability.
Services for people with disabilities include vocational evaluation and assessment, training, counseling, education, job placement assistance, supported employment and support for entrepreneurs with disabilities.
VOCATIONAL REHABILITATION
The Division of Vocational Rehabilitation Services
(DVRS), within the Department of Labor and
Workforce Development, provides services to individuals of employable age with disabilities through
18 district offices. Eligibility generally is based on
the presence of a mental or physical disability that is
an obstacle to employment, and a reasonable expectation that the division’s services will help the individual become employable.
Vocational rehabilitation counselors work with the
individuals and their families to develop and carry
out a plan for training and placement. If financial
need is established, the division will purchase other
rehabilitative services from private providers, such
as further evaluation or counseling, training at a
vocational center or technical school and on-the-job
training.
DIVISION OF VOCATIONAL REHABILITATION
SERVICES (DVRS)
PO Box 398
Trenton, NJ 08625-0398
Telephone: (609) 292-5987
TTY:
(609) 292-2919
FAX:
(609) 292-8347
www.wnjpin.state.nj.us
DVRS CAMDEN OFFICE
2600 Mt. Ephraim Avenue, Suite 103
Camden, NJ 08104-3290
Telephone: (856) 614-2500
TTY:
(856) 614-2504
FAX:
(856) 614-2538
DVRS CAPE MAY OFFICE
3810 New Jersey Avenue
Wildwood, NJ 08260
Telephone: (609) 523-0330
VP:
(609) 729-0132
FAX:
(609) 523-0212
DVRS CUMBERLAND/SALEM OFFICE
40 East Broad Street, Suite 204
Bridgeton, NJ 08302-2881
Telephone: (856) 453-3888
VP:
(856) 552-4533
FAX:
(856) 453-3909
DVRS ESSEX OFFICE
990 Broad Street, 2nd Floor
Newark, NJ 07102
Telephone: (973) 648-3494
TTY:
(973) 648-2733
FAX:
(973) 648-3902
DVRS GLOUCESTER OFFICE
215 Crown Point Road, Suite 200
Thorofare, NJ 08086-2153
Telephone: (856) 384-3730
TTY:
(856) 384-3778
FAX:
(856) 384-3777
DISTRICT OFFICES
DVRS ATLANTIC OFFICE
2 South Main Street, Suite 2
Pleasantville, NJ 08232
Telephone: (609) 813-3933
TTY:
(609) 813-3958
FAX:
(609) 813-3959
DVRS HUDSON OFFICE
438 Summit Avenue, 6th Floor
Jersey City, NJ 07306-3187
Telephone: (201) 217-7180
TTY:
(201) 217-7290
FAX:
(201) 217-7287
DVRS BERGEN OFFICE
60 State Street, 2nd Floor
Hackensack, NJ 07601-5471
Telephone: (201) 996-8970
TTY:
(201) 487-6348
FAX:
(201) 996-8880
DVRS MERCER OFFICE
Labor Station Plaza, PO Box 959
28 Yard Avenue,
Trenton, NJ 08625-0959
Telephone: (609) 292-2940
TTY:
(609) 984-1568
FAX:
(609) 984-3553
DVRS BURLINGTON OFFICE
795 Woodlane Road, Suite 201
Westampton, NJ 08060
Telephone: (609) 518-3948
TTY:
(609) 518-3957
FAX:
(609) 518-3956
45
DVRS MIDDLESEX OFFICE
506 Jersey Ave, PO Box 2672
New Brunswick, NJ 08903
Telephone: (732) 937-6300
FAX:
(732) 937 6358
TTY:
(732) 545-8147
DVRS OCEAN OFFICE
1027 Hooper Avenue, Bldg. 6, 3rd Fl.
Toms River, NJ 08753-2225
Telephone: (732) 505-2310
TTY:
(732) 505-2319 /2320
FAX:
(732) 505-2317
DVRS SUSSEX/WARREN OFFICE
223-A Stiger Street, Suite A
Hackettstown, NJ 07840-1217
Telephone: (908) 852-4110
TTY:
(908) 852-0213
FAX:
(908) 813-9745
DVRS MONMOUTH OFFICE
60 Taylor Avenue
Neptune, NJ 07753-4844
Telephone: (732) 775-1799
TTY:
(732) 775-1711
FAX:
(732) 775-1666
DVRS PASSAIC OFFICE
370 Broadway, Room 305
Paterson, NJ 07501-2195
Telephone: (973) 977-4285
VP:
(866) 376-7356
FAX:
(973) 279-5895
DVRS UNION OFFICE
65 Jefferson Avenue, 4th Floor
Elizabeth, NJ 07201-2306
Telephone: (908) 820-3112
TTY:
(908) 820-3132
FAX:
(908) 965-2976
DVRS MORRIS OFFICE
7 Sussex Avenue, 2nd Floor
Morristown, NJ 07960-3886
Telephone: (973) 631-6304
TTY:
(973) 539-3665
FAX:
(973) 631-6309
DVRS SOMERSET/HUNTERDON OFFICE
75 Veterans Memorial Drive East
Suite 101
Somerville, NJ 08876-2952
Telephone: (908) 704-3030
TTY:
(732) 545-8147
FAX:
(908) 704-3476
CBVI OFFICES
For New Jersey residents with blindness or visual impairment, the DHS Commission for the Blind and
Visually Impaired (CBVI) provides comprehensive employment services which include vocational evaluation, counseling, guidance and training, and job placement. For a list of CBVI offices, go to Page 6.
ONE-STOP CAREER CENTERS
The cornerstone of New Jersey’s workforce investment system are the One-Stop Career Centers. OneStop Career Centers throughout the state offer a wide range of tools to help people, including military
veterans, those who are 55+, and individuals with disabilities, find a new job or career. All services are
free of charge to help New Jersey’s workers:
✐
✐
✐
✐
✐
✐
✐
Find a job
Strengthen job-search skills
Get training
Improve reading and basic skills
Network your way to a job
Use labor market information to make career decisions
Start a business
To connect with your local One-Stop Career Center, call:
(877) 872-5627
For the New Jersey Association for Persons in Supported Employment (NJAPSE),
See Page 31
46
TICKET TO WORK AND WORK INCENTIVES IMPROVEMENT
ACT
Social Security Disability Insurance and Supplemental
Security Income (SSI) disability beneficiaries will
receive a “Ticket” that they may be able to obtain vocational rehabilitation (VR), employment or other support
services from an approved provider of their choice. The
Ticket program is voluntary. The law includes several
enhancements to Medicaid and Medicare. For information, call (866) 871-7867.
PLAN TO ACHIEVE SELF-SUPPORT (PASS)
The Social Security Administration has adopted a series
of work incentives with a Plan to Achieve Self-Support
(PASS), including the retention of benefits while starting
a business. Individuals receiving SSI may be able to
acquire additional capital for small business start-up
through a PASS. A business plan is required. Contact a
PASS specialist at your local social security office.
PASS Proposals Social Security Administration
Telephone: (800) 772-1213 TDD: (800) 325-0778
www.socialsecurity.gov
The law also created a new Medicaid buy-in project to
provide medical assistance to workers with impairments
who are able to work. The law also extends Medicare
coverage for people with disabilities who return to work.
TECHNICAL ASSISTANCE
Assistance for entrepreneurs with disabilities is available
in the form of financing, business plan preparation, marketing assistance, PASS assistance, or general help in
locating information or resources for business start-up or
expansion.
SELF-EMPLOYMENT
The New Jersey Division of Vocational Rehabilitation
Services has developed a common policy and regulations
regarding self-employment as a work option for people
with disabilities. Individuals with an interest in becoming
self-employed should present this option to their vocational rehabilitation counselor. If a solid business plan is
put together, there may be capital investment available
for a variety of start-up needs.
New Jersey Commerce, Economic Growth,
and Tourism Commission
Small Business Development Centers
Telephone: (800) 432-1565
www.njsbdc.com
Eligible clients of the Commission for the Blind and
Visually Impaired can obtain capital to start and manage
businesses through the Commission’s Business
Enterprise Program. Support primarily consists of training in business management and assistance in establishing vending locations. However, assistance for other
business venture is possible. A solid business plan is
required.
Service Core of Retired Executives (SCORE)
Telephone: (973) 645-3982
FAX:
(973) 645-2375
www.score.org
Small Business Development Center
Rutgers Graduate School of Management
Telephone: (973) 353-1927
Self-Employment Initiative
Division of Vocational Rehabilitation Services
Telephone: (609) 292-5987
FAX:
(609) 292-8347
On disability and considering working?
Visit the New Jersey Benefits to Work
Calculator at www.njdb101.org.
SMALL BUSINESSES
The Disability Enterprise Program offers second-tier
loans for small businesses owned by persons with a disability, businesses that are targeting employment for people with a disability and nonprofit corporations starting
for-profit operations. Collateral is usually required.
Assistance in preparing the application is provided.
Business Resources on the Web
Disabled Businessperson’s Association
www.disabledbusiness.com/
US Small Business Administration
The Disability Enterprise Program
New Jersey Community Capital
Telephone: (609) 989-7766
FAX:
(609) 393-9401
www.newjerseycommunitycapital.com
www.sba.gov
US Office of Disability Employment Policy
www.dol.gov/odep
47
TICKET TO WORK
The Ticket to Work and Self-Sufficiency Program is the centerpiece of legislation signed by former U.S. President
Clinton on December 17, 1999 under the Ticket to Work and Work Incentives Improvement Act of 1999. It is a
nationwide initiative designed to bring major positive change to the lives of individuals with disabilities.
This comprehensive national initiative is also designed to assist people with the training and support they need to
go to work by increasing their choices. SSA beneficiaries with disabilities can find employment, vocational rehabilitation (VR) and other support services from public and private providers.
Telephone: (866) YOUR TIC
TTY: (866) TDD-2WORK
www.ssa.gov/work
www.yourtickettowork.com
NJ WINS
(NEW JERSEY WORK INCENTIVE NETWORK SUPPORT)
New Jersey WINS is a statewide joint Benefits Planning Assistance and Outreach (BPAO) project funded by the
U.S. Social Security Administration. It provides New Jersey residents who receive Social Security Disability
Insurance (SSDI), Supplemental Security Income (SSI), or Medicaid benefits with cost-free information and technical assistance to make choices about accepting employment or increasing work hours.
Telephone: (877) 659-4672
www.njwins.org
NJ WORKABILITY
The WorkAbility program offers people with disabilities who are working, and whose income would otherwise
make them ineligible for Medicaid, the opportunity to pay a small premium and receive full NJ Medicaid coverage. People with disabilities who are employed between the age of 16 to 64 can qualify for the program with annual gross earned income of up to approximately $55,000.
Eligibility Criteria
✐ Must be between the ages of 16-64
✐ Must be working (full or part time) and have proof of employment.
✐ Must have been determined “disabled” by the Social Security Administration OR the Disability Review
Team at the Division of Medical Assistance & Health Services
✐
✐
✐
Unearned Income
✔ $903 per month (single)
✔ $1,215 per month (couple)
Note: Social Security Disability benefit may be disregarded for unearned income
Earned Income (Individual)
✔ $54,948 per year (gross income)
Eligible Couple
✔ $73,644 per year (gross income)
✐
✔ $4,579 per month (gross income )
✔ $6,137 per month (gross income )
Liquid Assets:
✔ $20,000 for an individual
✔ $30,000 for a couple (where both are eligible)
Note: Assets do not include the primary home, car (used for work or medical transportation),
401K retirement account.
Division of Medical Assistance and Health Services
Telephone: (800) 356-1561 www.njworkability.nj.gov
Disability Rights New Jersey, See Page 4
48
XIX
HOUSING RESOURCES
HOUSING PROGRAMS
The New Jersey Department of Community Affairs
administers the federal Section 8 voucher program
and a variety of housing programs for low-income
families, women, persons with disabilities and seniors. Services include rental assistance, including the
federal, and emergency shelter grants and homelessness prevention. The Department also administers
the Community Services Block Grant and
Weatherization programs, as well as the
Handicapped Person Recreational Opportunity
Grants.
The Division of Housing contains elements that
administer programs of rental assistance, housing
rehabilitation, relocation assistance, family self-sufficiency, emergency shelter grants and homelessness
prevention.
The Division assists local groups to sponsor lowand moderate-income housing, through programs
that preserve, rehabilitate and expand the housing
supply for low and moderate income families.
The Division also provides administrative grants to
nonprofit organizations that are involved in the production of affordable housing. In addition, the
Division runs a fellowship program through which
graduate students in architecture and engineering
work with nonprofit housing agencies.
DIVISION OF HOUSING
PO Box 051
Trenton, NJ 08625-0051
(609) 633-6303
Family Self-Sufficiency Program,
Transitional Housing Program
(609) 633-6284
Homelessness Prevention Program
(609) 633-6266
(866) 889-6270
Homeless Shelter Program
(609) 633-6251
Section 8 Housing Voucher Program
Rental Assistance Program
(609) 292-4080
49
PUBLIC HOUSING AUTHORITIES
Asbury Park Housing Authority ........732-774-2660
Atlantic City Housing Authority ........609-344-1107
Bayonne Housing Authority ...............201-339-8700
Belmar Housing Authority .................732-681-1795
Bergen County Housing Authority.....201-569-7454
Berkeley Housing Authority...............732-269-2312
Beverly Housing Authority.................609-387-0250
Bloomfield Township Housing
Authority............................................973-680-4000
Boonton Housing Authority ...............973-335-0846
Brick Housing Authority ....................732-920-9400
Bridgeton Housing Authority .............856-451-4454
Buena Housing Authority ...................856-697-4852
Burlington City Housing
Authority............................................609-386-0246
Camden Housing Authority................856-968-2700
Cape May City Housing
Authority............................................609-884-8703
Carteret Housing Authority ................732-541-6800
Cherry Hill Housing Authority...........856-661-4744
Cliffside Park Housing Authority .......201-941-0655
Clifton Housing Agency .....................973-470-5846
Collaborative Support Progams
of NJ ..................................................732-780-1175
Collingswood Housing Authority.......856-854-1077
Dover Housing Authority ...................973-361-9444
East Orange Housing Authority .........973-678-0250
Edgewater Housing Authority ............201-943-6000
Edison Housing Authority ..................732-549-3301
Elizabeth Housing Authority ..............908-965-2400
Englewood Housing Authority ...........201-871-3451
Florence Housing Authority ...............609-499-0575
Fort Lee Housing Authority................201-947-7400
Franklin Township Housing
Authority............................................732-545-9430
Freehold Housing Authority ...............732-462-2421
Garfield Housing Authority ................973-340-4170
Glassboro Housing Authority .............856-881-5211
Gloucester County Housing
Authority............................................856-845-4959
Gloucester Township Housing
Authority............................................856-227-5077
Guttenberg Housing Authority ...........201-861-0900
Hackensack Housing Authority ..........201-342-4280
Haddon Housing Authority.................856-854-3700
Hamilton Township Housing
Authority............................................609-890-3675
Harrison Housing Authority ...............973-483-1488
Highland Park Housing
Authority............................................732-572-4420
Highlands Housing Authority.............732-872-2022
Hightstown Housing Authority...........609-448-2268
Hoboken Housing Authority...............201-798-0370
Hunterdon County Housing
Authority............................................908-788-1336
Irvington Housing Authority ..............973-375-1551
Jersey City Housing Authority ...........201-547-6600
Keansburg Housing Authority ............732-787-6151
Lakewood Housing Authority.............732-364-1300
Linden Housing Authority..................908-298-3820
Lodi Housing Authority......................973-470-3650
Long Branch Housing Authority ........732-222-3747
Madison Housing Authority ...............973-377-0258
Middlesex County...............................732-745-3025
Middletown Housing Authority..........732-671-4477
Millville Housing Authority ...............856-825-8860
Monmouth County Housing
Agency ...............................................732-431-6028
Montclair Housing Authority .............973-744-1400
Morris County Housing
Authority............................................973-540-0389
Morristown Housing Authority ..........973-538-6343
Neptune Housing Authority................732-774-7692
New Brunswick Housing
Authority............................................732-745-0514
Newark Housing Authority.................973-430-2430
Newton Housing Authority.................973-383-5191
Ocean City Housing Authority ...........609-399-1062
Old Bridge Housing Authority ...........732-721-5600
Orange City Housing Authority .........973-675-1250
Passaic County Housing
Public Agency....................................973-881-4369
Passaic Housing Authority .................973-365-6330
Paterson Housing Authority ...............973-345-5080
Penns Grove Housing Authority.........856-299-0101
Pennsauken Housing Authority ..........856-663-0514
Perth Amboy Housing Authority ........732-826-3110
Phillipsburg Division of Community
Development............................908-454-5500 x371
Phillipsburg Housing Authority..........908-859-0122
Plainfield Housing Authority..............908-769-6335
Pleasantville Housing Authority.........609-646-3023
Princeton Housing Authority..............609-924-3448
Rahway Housing Authority ................732-499-0066
Red Bank Housing Authority .............732-741-1808
Salem Housing Authority ...................856-935-5022
Sayerville Housing Authority .............732-721-8044
Sea Isle City Housing Authority.........609-263-4461
Secaucus Housing Authority ..............201-867-2957
Somerville Housing Authority............908-725-2300
South Amboy Housing Authority .......732-721-1831
Summit Housing Authority.................908-273-6413
Trenton Housing Authority.................609-278-5000
Union City Housing Authority ...........201-864-1515
Union County Housing Authority ......732-382-8100
Union Township Housing
Authority............................................973-761-0059
Vineland Housing Authority...............856-691-4099
Warren County Housing
Authority............................................908-475-3989
Weehawken Housing Authority..........201-348-4188
West New York Housing
Authority............................................201-868-6100
West Orange Housing Agency............973-325-4107
Wildwood Housing Authority.............609-729-0220
Woodbridge Housing Authority..........732-634-2750
NEW JERSEY HOUSING AND MORTGAGE FINANCE AGENCY
(NJHMFA)
800-NJ-HOUSE (800) 654-6873
The main goal of the New Jersey Housing and Mortgage
Finance Agency is to encourage the production of affordable housing for all New Jersey citizens. Its Community
Development Division administers several programs targeted to people with special needs. For information about
low-income or special needs home ownership programs,
call the NJHMFA.
The New Jersey Homeownership Preservation Effort
(NJ HOPE) is a voluntary public/private alliance of
government agencies, not-for-profit organizations,
and financial institutions committed to enhancing
home ownership preservation, by raising consumer awareness of available mortgage products
and funding, providing increased access to credit
and loan counseling for those who need it, and
providing temporary assistance to consumers
who are in immediate danger of foreclosure. For
more information, visit
www.state.nj.us/dobi/njhope/
See Page 2
New Jersey Housing Resource Center
www.njhousing.gov
Housing Resources
on the Web
HUD Disabilities Web Hub
www.hud.gov/groups/disabilities.cfm/
Center for Universal Design
www.design.ncsu.edu/cud/
50
XX
PERSONAL ASSISTANCE SERVICES AND CAREGIVER RESOURCES
PERSONAL ASSISTANCE SERVICES PROGRAM (PASP)
PASP is a supplemental, self-directing program that
provides routine, non-medical assistance to adults
ages 18 – 65 with a permanent physical disability,
who are employed, involved in community volunteer work or attending school. Personal assistants
help with tasks such as light housekeeping, bathing,
dressing, meal preparation, shopping, driving or
using public transportation. The number of hours a
person receives depends on individual need up to 40
hours per week.
PERSONAL ASSISTANCE SERVICES PROGRAM (PASP)
Division of Disability Services
Telephone: (888) 285-3036 or (609) 292-7800
COUNTY PASP COORDINATORS
Atlantic County. . . . . . . . . (609) 645-7700 x4310
Bergen County . . . . . . . . . (201) 336-6504
Burlington County . . . . . . (609) 265-5223
Camden County . . . . . . . . (856) 858-2970
Cape May County. . . . . . . (609) 886-6200 x371
Cumberland County . . . . . (856) 825-8707
Essex County . . . . . . . . . . (973) 395-8494/5837
Gloucester County . . . . . . (856) 681-6132
Hudson County . . . . . . . . . (201) 339-2500 x143
Hunterdon County . . . . . . (908) 788-1300
Mercer County . . . . . . . . . (609) 989-6459
Middlesex County. . . . . . . (732) 745-2587
Monmouth County . . . . . . (732) 571-6232
Morris County. . . . . . . . . . (973) 285-6865
Ocean County . . . . . . . . . . (732) 505-3779
Passaic County . . . . . . . . . (973) 569-4077
Salem County . . . . . . . . . . (856) 935-7510 x8316
Somerset County. . . . . . . . (908) 704-6350
Sussex County . . . . . . . . . (973) 948-6000 x223
Union County . . . . . . . . . . (908) 527-4845
Warren County . . . . . . . . . (908) 625-1940
MEDICAID PERSONAL CARE ASSISTANT SERVICE (PCA)
Personal Care Assistant Service (PCA) is a statewide
service provided by the New Jersey Medicaid
Program to people eligible for Medicaid services in
the community. The purpose of personal care is to
accommodate long-term chronic or maintenance
health care as opposed to short-term skilled care as
is provided under Medicaid’s home health program.
PCA services are health-related tasks done by qualified staff in a medically eligible beneficiary’s home
or workplace. They include assistance with activities
of daily living and household duties essential to the
individual’s health and comfort. For Information
contact the Division of Disability Services (888)
285-3036 or (609) 292-4800. (See Page 1)
HOME CARE ASSOCIATIONS
Home Care Association of New Jersey
485-D Route 1 South, Suite 210
Iselin, NJ 08830
Telephone: (609) 275-6100 or (732) 877-1100
FAX:
(609) 936-9349 or (732) 877-1101
www.homecarenj.org
Home Health Services and Staffing Association of
New Jersey
97 Lane Ave, West Caldwell, NJ 07006
Telephone: (973) 403-8800
FAX:
(973) 403-9422
New Jersey Hospital Association
760 Alexander Road, PO Box 1
Princeton, NJ 08543
Telephone: (609) 275-4000
FAX:
(609) 275-4005
www.njha.com
For more on PASP, See Page 2
Rewarding Work
For Caregiver Assistance
(800) 792-8820
To learn about employment opportunities to provide
support to individuals with disabilities of all ages:
(888) 444-1616
www.rewardingwork.org/nj
CAREGIVER RESOURCES FROM THE WEB
NJEASE for Caregivers
www.caregivernj.nj.gov
The Family Village
www.familyvillage.wisc.edu/general/care-givers.html
National Family Caregivers Association
www.nfcacares.org
American Health Care Association
www.ahca.org
Family Caregiver Alliance
www.caregiver.org
WellSpouse Foundation
www.wellspouse.org
51
XXI
TRANSPORTATION RESOURCES
NEW JERSEY TRANSIT
New Jersey Transit provides commuter services
through more than 150 bus routes and 11 rail lines in
New Jersey and into New York and Pennsylvania.
Lift-equipped and kneeling buses, as well as accessible rail stations, are important elements of New
Jersey Transit’s services to people with disabilities.
Access Link is a service for those who are not able
to use a regular fixed-route bus. New Jersey Transit
also provides a reduced fare program for senior citizens and people with disabilities.
New Jersey Transit
One Penn Plaza East
Newark, NJ 07105
www.njtransit.com
Customer Service:
TTY:
(973) 275-5555
(800) 772-2287
NJ Transit ADA Services
(973) 491-7385
ACCESS LINK
Access Link is NJ Transit’s paratransit service
required by the Americans with Disabilities Act of
1990. Access Link provides people with disabilities
paratransit service comparable to the local bus service. This service is specifically for people whose disability prevents them from using existing local bus
service.
Access Link:
TTY:
(800) 955-ADA1 (2321)
(800) 955-6765
REDUCED FARE PROGRAM
Special rates are available for senior citizens 62
years of age or older and people with disabilities.
Personal assistants ride for free when proper identification is presented by the person with a disability.
You don’t need to be a New Jersey resident to be eligible for the program. You can ride on NJ TRANSIT
buses and trains at the reduced rate. Many private
bus companies operating in the state also participate
in the program. For more information please contact
NJ Transit.
MTA-New York
Access-A-Ride: (718) 393-4999
TDD:
(718) 393-4257
http://mta.info/nyct/paratran/guide.htm
COUNTY PARA-TRANSPORTATION
Each of the 21 counties in New Jersey provides
county-based paratransit service for senior citizens
and people with disabilities. The following contact
numbers are resources for current information on
local paratransit services including hours of operation, reservation procedures, fees (if any), priorities
for services, consumer representation on advisory
committees, etc.
COUNTY PARA-TRANSIT CONTACTS
Atlantic County..............................(609) 645-5910
Bergen County ...............................(201) 368-5955
Burlington County .........................(609) 265-5109
Camden County .............................(856) 456-3344
Cape May County ..........................(609) 889-3700
Cumberland County.......................(856) 691-7799
Essex County .................................(973) 395-5858
Gloucester County .........................(856) 686-8350
Hudson County ..............................(201) 271-4307
Hunterdon County..........................(800) 842-0531
Mercer County ...............................(609) 530-1971
Middlesex County..........................(800) 221-3520
Monmouth County.........................(732) 431-6480
Morris County................................(973) 829-8103
Ocean County ................................(877) 929-2082
Passaic County ...............................(973) 305-5756
Salem County.................................(856) 935-7510
Somerset County............................(908) 231-7115
Sussex County................................(973) 579-0480
Union County.................................(908) 241-8300
Warren County ...............................(908) 454-4044
AMTRAK-OFFICE OF AMTRAK ACCESS
Telephone: (800) USA-RAIL (800-872-7245)
TDD/TTY: (800) 523-6590
www.amtrak.com
Reduced Fare Program (973) 378-6401
GREYHOUND CUSTOMERS WITH DISABILITIES
TRAVEL ASSISTANCE LINE
Telephone:
(800) 752-4841
TTY:
(800) 345-3109
www.greyhound.com
OUT OF STATE ACCESSIBLE TRANSIT SERVICES
SEPTA-Pennsylvania
Customer Services:
TDD:
(215) 580-7800
(215) 580-7853
Customized Community Transportation
Paratransit service
(215) 580-7145
www.septa.com
Greyhound ADA Compliance Office
(800) 755-2357
NJ FindARide, See Page 2
52
XXII
Services for Children
OFFICE OF THE CHILD ADVOCATE
The Office of the Child Advocate investigates,
reviews, monitors or evaluates all State agencies and
service providers, and responds to allegations of
child abuse and neglect, to ensure the safety of children. A 24-hour hotline is established to respond to
complaints regarding the Division of Youth and
Family Services.
OFFICE OF THE CHILD ADVOCATE
PO Box 092
Trenton, NJ 08625
Helpline:
(877) 543-7864
Telephone:
(609) 984-1188
FAX:
(609) 292-1433
www.childadvocate.state.nj.us
DIVISION OF YOUTH AND FAMILY SERVICES
The Division of Youth and Family Services (DYFS)
is New Jersey’s child protection/child welfare
agency. Its mission is to protect children, support
families, ensure permanency for children, and prevent violence and family disruption. DYFS is
responsible for investigating allegations of child
abuse and neglect and if necessary arranging for the
child’s protection and the family’s treatment. District
offices handle referrals and investigations statewide.
DIVISION OF YOUTH AND FAMILY SERVICES (DYFS)
PO Box 717
Trenton, NJ 08625-0717
Telephone:
(609) 292-6920 (800) 331-3937
FAX:
(609) 984-0507
OFFICE OF CHILD ABUSE PREVENTION
THE NEW JERSEY TASK FORCE ON CHILD ABUSE
AND NEGLECT
PO Box 711
Trenton, NJ 08625-0700
Telephone:
(609) 292-0888
FAX:
(609) 777-0443
SAFE HAVEN
(877) 839-2339
Safe Haven operates an infant protection hotline for
distressed parents who wish to surrender an unwanted infant anonymously at a police station or hospital
emergency room with no fear of arrest or prosecution. The child must be less than 30 days old and
must not have been abused or neglected.
www.njsafehaven.org
53
CHILD CARE ASSISTANCE
NEW JERSEY CHILD CARE HELPLINE
(800) 332-9227
Callers can obtain the telephone number of their
local Child Care Resource and Referral
System to get information about registered family
day care providers and other child care
services in their area. Caregivers can also learn
how to become a registered family day
care provider.
CHILD CARE RESOURCE AND REFERRAL CENTERS
The CCR&Rs are centralized locations in each
county that provide child care resources, referral,
training and technical assistance. Child Care Health
Consultant Coordinators provide consultation, education and training about the health and safety needs
of children in child care. For additional information,
contact your local Child Care Resource and Referral
Center (CCR&R).
Atlantic ...........................................(609) 646-1180
Bergen...............................................(201) 336-7150
Burlington.........................................(609) 261-9222
Camden.............................................(856) 374-6376
Cape May .........................................(609) 886-5164
Cumberland ......................................(856) 451-6330
Essex.................................................(973) 744-4677
Gloucester.........................................(856) 582-8282
Hudson..............................................(201) 451-8888
Hunterdon .........................................(908) 782-8183
Mercer...............................................(609) 989-7770
Middlesex .........................................(732) 324-4357
Monmouth ........................................(732) 918-9901
Morris ...............................................(973) 398-1730
Ocean................................................(732) 557-9633
Passaic ..............................................(973) 684-1904
Salem ................................................(856) 935-7739
Somerset ...........................................(908) 927-0869
Sussex ...............................................(973) 383-3461
Union ................................................(973) 923-1433
Warren ..............................................(908) 454-1078
For the Department of Children and Families
See Page 14
DIVISION OF CHILD BEHAVIORAL HEALTH SERVICES
The Division of Child Behavioral Health Services is an
integrated system of care within the Department of
Human Services designed to help children with emotional and behavioral disturbances and their families. The
Contracted Systems Administrator (CSA) creates a virtual single point of processing that registers, tracks and
coordinates care for children who are screened into the
system at any level. For more information contact:
program established to help relatives navigate their way
through the various governmental systems to find the local
supports they need, including support groups, cash assistance, medical coverage, housing assistance, child care
resources, and respite services. Service is administered
through the following agencies:
CarePlus, NJ – (201) 265-0826 (Bergen, Hudson, Morris,
Passaic, Sussex, and Warren counties)
The Salvation Army – (973) 623-8471 or (973) 623-8472,
(Essex County)
Children’s Home Society – (609) 695-6274 (Mercer,
Middlesex, Monmouth, Ocean, Somerset, Hunterdon, and
Union counties)
Family Service Association – (877) 569-0350 (Atlantic,
Burlington, Camden, Cape May, Cumberland, Gloucester,
and Salem counties)
ValueOptions (877) 652-7624
3705 Quarkerbridge Rd., Suite 116
Hamilton Township, NJ 08618
KINSHIP NAVIGATOR/KINSHIP CARE
The Kinship Navigator/Kinship Care is a program for
people who have taken on the responsibility of caring for
their relatives’ children. It is an information and referral
CHILD ABUSE HOTLINE (877) NJABUSE / (800) 835-5510 (TTY)
DYFS ACTION LINE (800) 331-DYFS
For Early Intervention Services, See Page 43
SIGNS OF CHILD ABUSE
Child abuse is harm to, or neglect of, a child by another person, whether adult or child. Child abuse happens in all cultural, ethnic, and income groups. Child abuse can be physical, emotional, verbal, sexual, or through neglect. Abuse may
cause serious injury to the child and may even result in death.
Signs of possible abuse include:
Physical Abuse
■ Unexplained or repeated injuries such as welts, bruises, or burns
■ Injuries that are in the shape of an object (belt buckle, electric cord, etc.)
■ Injuries not likely to happen given the age or ability of the child. For example, broken bones in a child too
young to walk or climb
■ Disagreement between the child’s and the parent’s explanation of the injury
■ Unreasonable explanation of the injury.
■ Obvious neglect of the child (dirty, undernourished, inappropriate clothes for the weather, lack of medical or dental care)
■ Fearful behavior
Emotional and Verbal Abuse
■ Aggressive or withdrawn behavior
■
Shying away from physical contact
■
Afraid to go home with parents or adults
Sexual Abuse
■ Child tells you he/she was sexually mistreated
■ Child has physical signs such as:
• difficulty in walking or sitting
• genital or rectal pain, itching, swelling, bruises or other
• stained or bloody underwear
injuries in the genital or rectal area redness, or discharge
■
Child has behavioral and emotional signs such as:
• difficulty eating or sleeping
• soiling or wetting pants or bed after being potty trained
• acting like a much younger child
• excessive crying or sadness
• withdrawing from activities and others
• talking about or acting out sexual acts beyond normal sex play for age
Reproduced from the Center for Disease Control’s Guide to Intentional Injuries
54
APPENDIX 1: NEW JERSEY HANDICAPPED PARKING LAWS
State statute enables law enforcement officers to
enforce restrictions in properly marked handicapped
spaces on both Public and Private property.
Mandated $250 fine for the first offense of parking
in a restricted space without special identification.
For subsequent offenses, a fine of at least $250 and
up to 90 days of community service.
No penalty shall be imposed for overtime parking on
any vehicle which had either a placard or wheelchair
symbol license plates, unless the vehicle has been
parked in the same location for more then 24 hours.
This shall apply when the placard or plated is used
by either the driver or passenger in of the vehicle.
USE OF HANDICAPPED PARKING PLACARD OR PLATES
Handicapped Parking Placards or Plates may be used
by:
• Drivers with disabilities who meet the criteria
below
• Non-disabled drivers who are transporting persons
who meet the criteria below
• Plates or placard must be accompanied by the
companion MVC ID card
QUALIFICATIONS FOR A HANDICAPPED PARKING PLACARD OR PLATES
To qualify for a placard or plates, you must:
• Have lost the use of one or more limb
• Be permanently disabled and be unable to move
without the use of an assistive devise
• Have your mobility limited as certified by a
physician
NEW JERSEY MOTOR
VEHICLE COMMISSION
(609) 292-6500 (888) 486-3339
www.state.nj.us/mvc
Remember, even if you have a disabled
parking placard or plates, parking in the
access aisles is still illegal. Access aisles are
the striped areas adjacent to disabled parkings spaces.
The Division of Disability Services publishes
a Guide to Handicapped Parking. Call (888)
285-3036 to obtain a copy.
APPENDIX 2: SPECIAL NEEDS ADOPTION AND FOSTER CARE
NEW JERSEY SUBSIDIZED ADOPTION PROGRAM
Many children are waiting for loving homes. The NJ
Subsidized Adoption Program offers financial assistance to suitable prospective adoptive parents who
seek to adopt certain children.
• Medicaid coverage for the child to assist with any
condition that is not covered by the family’s insurance.
• A special subsidy for a specific medical, health or
equipment need.
CHILDREN WAITING FOR ADOPTION:
• Are older, or of a race or ethnic group for which
adoptive homes are not readily available;
• May have a significant disability;
• May need medical treatment or special services,
equipment or training;
• May be part of a group of siblings who should be
kept together;
• May be over five years old, living with a foster
family for at least 12 months.
REQUIREMENTS OF ADOPTIVE FAMILIES
• Must be at least 18 years old and 10 year older then
the child to be adopted
• Must be able to raise the child in a moral environment
• Must be a New Jersey resident, or reside in a state
with a cooperative agreement
• Must be in good physical health, and able to
provide for the child’s day to day needs
• Must be financially able to support the needs and
care of the adopted child
SUBSIDIES TO ADOPTIVE FAMILIES:
• A monthly payment which to help parents meet
daily expenses for the child until the age of 18.
• Payment covering the legal fees related to the
adoption.
55
For Information
1-800-99 ADOPT
www.NJAdopt.org
1-877-NJFOSTER www.njfostercare.org
APPENDIX 3: PEOPLE FIRST LANGUAGE
Every person is made up of many characteristics and
few want to be identified only by their ability to play
tennis or by their love for fried onions or by the mole
that’s on their face. Those are just parts of us.
In speaking or writing, remember that children or
adults with disabilities are like everyone else except
they happen to have a disability. Therefore, here are
a few tips for improving your language related to
disabilities:
• Don’t give excessive praise or attention to a person
with a disability; don’t patronize them.
• Choice and independence are important; let the
person do or speak for him/herself as much as possible; if addressing an adult, say Bill instead of
Billy.
• A disability is a functional limitation that interferes with a person’s ability to walk, hear, talk,
learn, etc; use handicap to describe a situation or
barrier imposed by society, the environment or
oneself.
• Emphasize abilities, not limitations.
• Do not label people as part of a disability group
don’t say “the disabled”, say “people with disabilities.”
It is the Individual First,
Then the Disability
Say...
Instead of...
child with a disability
disabled or handicapped person
person with Cerebral Palsy
palsied, or C.P., or spastic
person who is deaf or hard of hearing
deaf and dumb
person with mental retardation
retarded
person with epilepsy or person with seizure disorder
epileptic
person who had…
afflicted, suffers from, victim
without speech, nonverbal
mute, or dumb
developmental delay
slow
emotional disorder, or mental illness
crazy or insane
uses a wheelchair
confined to a wheelchair
with Down syndrome
Mongoloid
has a learning disability
is learning disabled
non-disabled
normal, healthy
has a physical disability
crippled
congenital disability
birth defect
condition
disease
seizures
fits
cleft lip
hare lip
mobility impaired
lame
medically involved, or has chronic illness
sickly
paralyzed
invalid or paralytic
of short stature
dwarf or midget
1991, PACER Center, Inc. 4826 Chicago Ave. S., Mpls. MN 55417-1098; (612). Reprinted from PACER’s Early Childhood
Connection (June 1989) and Pacesetter (September 1989) Used with Permission
56
APPENDIX 4: ADDICTION RESOURCES
GOVERNOR’S COUNCIL ON ALCOHOLISM AND
SUBSTANCE ABUSE
Governor’s Council on Alcoholism and Substance
Abuse was created to coordinate statewide services
involving alcoholism and drug abuse. It also is the
funding source for the Municipal Alliance Program.
Gamblers Anonymous
(877) 994-2465
www.gamblersanonymous.org
Governor’s Council on Alcoholism and
Substance Abuse
PO Box 345
Trenton, NJ 08625
Telephone:
(609) 777-0526
FAX:
(609) 777-0535
www.state.nj.us/treasury/gcada
Alcoholics Anonymous
South Jersey Intergroup:
Cape Atlantic Intergroup:
Central Jersey Intergroup:
Intergroup of Northern NJ:
www.aa.org
AL-ANON Adult Children & Family Group
ALA-TEEN
North Jersey: (973) 744-8686
South Jersey: (856) 547-0855
www.nj-al-anon.org
Narcotics Anonymous
(800) 992-0401
(732) 933-0462
www.na.org
NAR-ANON Family Group
(800) 238-2333
www.naranonofnj.org
(856) 486-4446
(609) 641-8855
(609) 298-7795
(908) 687-8566
Nicotine Anonymous
(631) 665-0527
www.nicotine-anonymous.org
NJ Addictions Hotline
(800) 238-2333
www.njdrughotline.org
Roads 2 Recovery
(888) 322-1918
www.advopps.org
National Alcohol and Substance Abuse
Information Center
(800) 784-6776
www.addictioncareoptions.com
For the Division of Addiction Services
See Page 8
APPENDIX 5: SERVICE ANIMALS
The Americans with Disabilities Act defines a service animal as any guide dog, signal dog, or other animal
individually trained to provide assistance to an individual with a disability.
Under the Americans with Disabilities Act (ADA) and the New Jersey Law Against Discrimination (NJLAD), a
place of public accommodation cannot refuse admittance of a service animal when it is accompanying a person
with a disability. The ADA/NJLAD requires that places of public accommodation (which include privatelyowned businesses that serve the public) allow people with disabilities to bring service animals into any area in
which customers are generally allowed.
The ADA/NJLAD does not require that an animal be certified or have special identification, but it is not inappropriate for a business to ask if an animal which does not have an identifying vest or a special harness is a
service animal rather than a pet. The business may not, however, insist on proof of certification before permitting admittance of a service animal accompanying a person with the disability.
It is a violation of the ADA/NJLAD for a business to charge a cleaning or maintenance fee when a person with
a disability has brought a service animal into the place of business. However, the owner of the animal has sole
responsibility for its behavior and may be charged for any damages the animal causes as long as the business
has a policy of charging non-disabled customers for damages that they cause. Likewise, it is not a violation of
the ADA/NJLAD to exclude a service animal from a place of public accommodation if the animal behaves in a
loud, threatening, or out of control manner, creating a substantial disturbance or posing a direct threat to the
safety of others.
57
APPENDIX 6: Disaster Preparedness Checklist for People with Disabilities
The following list is intended to provide suggestions for disaster preparedness planning that may be taken by
individuals with disabilities:
Self-Networks
____Discuss your disability and needs with relatives and friends.
____Develop a network of people who know your needs and location, who will be able to assist you or alert.
emergency personnel on your behalf. Do not depend on only one person.
Medical Equipment and Supplies
____Evaluate equipment for repairs and obtain and keep spare parts.
____Order the full allotment of supplies that your insurance allows such as protective briefs, leg bags, suction
tubing, hearing aid batteries etc. Stockpile unused items.
____Assemble a first aid kit. It should include: sterile adhesive bandages in assorted sizes, assorted sizes of
safety pins, cleansing agents/soaps, latex gloves (2 pairs), 4-6 sterile gauze pads, (2-inch and 4-inch),
three triangular bandages, non-prescription drugs, three rolls each of 2 and 3 inch sterile roller bandages,
scissors, tweezers, needle, moistened towelettes, antiseptic, thermometer, two tongue depressors, and
tube of petroleum jelly or other lubricant.
Medications and Medical Needs
____Create a list of current prescriptions, names and dosages. Remember to update this list as needed.
____Keep a list of the names, addresses, and telephone numbers of doctors and pharmacists.
____Prepare a detailed description of your medical regimen and personal care needs.
____Order a full 30-day supply of necessary medications. Check with your insurance carrier.
Telecommunications
____Consider a cellular phone. Make sure the battery and any extra batteries are kept fully charged.
____Prearrange alternative methods to reach family, friends, or personal care attendants if ordinary
communications are disrupted.
Personal Assistant Care
____Consider checking into a nursing home or hospital if a disaster is anticipated. Staff will always be
available to meet personal care needs. Also, back up generators will be operating to assist people who
use power wheelchairs and/or ventilators.
____Contact your personal care attendant provider to discuss disaster preparedness, and maintain a list of
phone numbers of those who can assist in obtaining personal care for you.
Food and Water
____Two quarts of water per person are needed for drinking daily.
____Two quarts of water per person are needed for food preparation and sanitation daily.
____Keep a supply of canned, dehydrated, and no-cook foods.
____Keep cases of nutrients available for tube feeding.
____Keep foods for special dietary needs such as diabetic and high caloric diets.
Service Animals
____The animal should always wear an identification tag with all necessary contact information.
____Keep shots and medical records current and service animal ID numbers available.
____Your animal will need plenty of food and water, kept in sturdy storage containers.
____Consider large capacity self-feeders and water dispensers.
____Keep contact information on your service animal’s veterinarian available.
____Check with your local emergency management officials for companion animal procedures in emergency
shelters.
58
APPENDIX 6: Disaster Preparedness (continued)
Power
____Extended power outages may affect ventilators, heating and/or cooling units, which may be a matter of
life or death for some people with disabilities.
____Investigate emergency contingency plans in your building/community/municipality.
____Explore care facilities, especially if you use a ventilator or have other complex medical needs.
____Consider staying with friends or family our of your area if you anticipate possible power outages,
especially if you have medical equipment that is dependent upon power.
____Contact your local fire department and Red Cross for information and registration of people with
disabilities.
Oxygen
____Buildings where oxygen is kept must display an “Oxygen in Use “emblem.
____Oxygen must be kept in containers specifically manufactured for that purpose.
____Alert emergency response staff to the use of oxygen.
____Oxygen is flammable, so avoid sparks and flame. Demand that people not smoke near an oxygen
container.
Miscellaneous
____Keep battery operated flashlights and/or lanterns with lots of extra batteries.
____Blankets and warm clothes should be packed in an emergency.
____Keep the gas tank in your car full.
____Have a battery powered radio and extra batteries on hand.
____Keep ample cash on hand. ATMs and banks may not function during power outages.
____Have a non-electric can opener.
____Keep a supply of assorted plastic bags.
For more information on developing an individualized disaster preparedness plan, or for current information
on Homeland Security Advisory System recommendations, contact:
The American Red Cross
www.redcross.org
(866) GET-INFO (438-4636)
The Federal Emergency Management Agency (FEMA)
www.fema.gov
(800) 621-FEMA (3362)
US Department of Homeland Security
www.ready.gov
Disability Preparedness Resource Center
www.disabilitypreparedness.gov
New Jersey Homeland Security
www.njhomelandsecurity.gov
Residential Disability and Oxygen Emblems Program
The Division of Fire Safety distributes, free of charge, emblems which can be displayed to inform all emergency response personnel of an oxygen hazard or disabled occupant needing assistance. “Oxygen In Use”
emblems are mandated by NJ state law. For additional information, contact the Division of Fire Safety. The
emblem application may also be downloaded at their Website.
Division of Fire Safety
Contractor Certification and Emblems Unit
PO Box 809
Trenton, NJ 08625
Telephone:
(609) 324-3560
FAX:
(609) 324-8493
www.state.nj.us/dca/dfs/disabilityemblem.pdf
It is unlawful to evict an oxygen-user from a
rental property, solely of the basis of oxygen
use, as long as the oxygen is stored and used
appropriately. Questions can be directed to the
Division of Fire Safety (609) 633-6106
59
APPENDIX 7: TRAVELING WITH A DISABILITY
Air Carrier Access Rules (see page 35) lift many restrictions that formerly discriminated against passengers with disabilities, and all carriers are now required to have a Complaints Resolution Officer (CRO) immediately available to resolve
disputes between carriers and passengers with disabilities. While airlines may not require passengers with disabilities to
provide advance notice of their disability or intent to travel (except in some very specific circumstances), doing so may in
some cases help to avoid inconvenience. The following is a list of suggestions for air travelers with disabilities:
PHYSICAL DISABILITY
• Ask the screener for assistance with your mobility aid and carry items.
• Let the screener know your level of ability and your need for physical assistance.
• Inform the screener about any special equipment or devices that you are using and where this equipment is located on
your body.
• Ensure that all bags hanging from, or carried on, your wheelchair are put on the X-ray belt.
• Ask the screener to reunite you with your carry items and assistive devices after screening.
• Request assistance with removing your shoes when additional screening is necessary.
HEARING DISABILITY
• Ask the screener to write the information down or to look directly at you and repeat the information.
VISUAL DISABILITY
• Ask the screener to explain the security process to you step by step and to let you know where the metal detector is
located.
• Ask the screener to let you know when you will be going though the metal detector, and when there are obstacles that
you will need to avoid.
• Ask the screener to find someone to escort you through the security process.
• Ask the screener to perform a hand inspection of equipment to prevent damage, and to direct you toward your gate
once the screening has been completed.
HIDDEN DISABILITY
• Advise screeners that you have a disability and may need some assistance, or need to move slower.
• Offer suggestions to screeners on the best way to approach you during a pat-down inspection.
• Notify the screener if you need to sit down before and/or during the screening process.
TRAVELING WITH MEDICAL SUPPLIES/DEVICES
• Notify the screener that you are carrying medical supplies with you
• Medications must be properly marked with a professionally printed label identifying the medication or manufacturer’s
name or pharmaceutical label.
• Notify screeners if you are using any surgically implanted medical device (i.e. insulin pumps, prosthetics, artificial
joints).
• Advise screeners if you are experiencing low blood sugar and are in need of medical assistance.
• Pacemaker users may wish to carry a Pacemaker Identification Card (ID).
• Crutches, canes and walkers will need to go through the X-ray machine. The screener will perform a hand inspection of
your equipment if it cannot fit through the X-ray machine. You can ask for a private screening for the inspection of
your prosthetic device or body brace.
• Notify screeners if you need assistance, such as a chair or someone to assist you during the inspection of your.
prosthetic devices or body braces.
• Tools and appliances used to put on or take off prosthetic devices must be screened.
TRAVELING WITH SERVICE ANIMALS
• Carry appropriate identification. Identification may include: cards or documentation, presence of a harness or markings
on the tags. Service animals and their harnesses or vests are subject to inspection.
• Advise the screener how you and your animal can go through the metal detector as a team with the leash and/or
harness. If necessary, remind the screener that you should not be separated from your animal.
For more information on traveling by air with a disability, contact:
Federal Aviation Administration
www.faa.gov
Transportation Security Administration
www.tsa.gov
60
Department of Homeland Security
www.dhs.gov
APPENDIX 8: FAMOUS ADA CASES
BRAGDON V. ABBOTT (1998)
The Supreme Court found that, even when HIV has not progressed to AIDS, it still constitutes a disability, as the virus
significantly impairs the life activity of reproduction.
PENNSYLVANIA DEPARTMENT OF CORRECTIONS V. YESKEY (1998)
The Court ruled that state prisons must comply with Title II of the ADA, as they are public entities.
WRIGHT V. UNIVERSAL MARITIME SERVICE CORP (1998)
The Supreme Court ruled that a general arbitration clause in a collective bargaining agreement does not require an
employee to use the arbitration procedure for alleged ADA violation.
ALBERTSONS, INC. V. KIRKINGBURG (1999)
The Supreme Court held that circumstances mitigating the determination of disability include not only devices and medications, but also an individual’s ability to compensate for their impairment.
CLEVELAND V. POLICY MANAGEMENT SYSTEMS (1999)
The Supreme Court ruled that pursuing and/or receiving Social Security Disability Insurance benefits does not automatically prevent an individual from pursuing an ADA claim, nor do such SSDI benefits presume against the recipient’s ADA
success.
MURPHY V. UNITED PARCEL SERVICE (1999)
The Court found that a UPS worker’s high blood pressure did not significantly limit his life activities when the worker
was medicated, and that he was, therefore, not disabled.
OLMSTEAD V. L.C. (1999)
The Supreme Court ruled that to stop or to avoid discriminatory activity, the state may place people with disabilities in
community settings rather than in institutions, when the state’s treatment professionals find the placement appropriate, the
affected person is not against the shift from an institutional to a community setting, and the placement can be reasonably
accommodated.
SUTTON V. UNITED AIRLINES (1999)
The Supreme Court found that determination of disability must include measures that might mitigate a disability, such as,
in this case, eyeglasses for those with visual impairments.
EEOC V. WAFFLE HOUSE, INC. (2002)
The court ruled that a private arbitration agreement between an individual and that individual’s employer does not prevent
the EEOC from filing a court action in its own name and recovering monetary damages for the individual.
LANE V. TENNESSEE (2004)
The Court ruled that courthouses must adhere to Title II of the Americans with Disabilities Act - which guarantees access
to public facilities and services - and that individuals may sue states for failing to provide access to courts.
SPECTOR V. NORWEGIAN CRUISE LINE (2004)
The Supreme Court ruled that foreign run and owned cruise ships serving US ports must comply with the public accommodations requirements of the American with Disabilities Act.
ADA Case Information on the Web
Olmstead Resource Center
www.ilru.org/html/projects/olmstead/index.html
US Supreme Court Homepage
www.supremecourtus.gov
On The Docket-Northwestern University
http://otd.oyez.org
61
APPENDIX 9: HOTLINES & TOLL FREE NUMBERS
ASSISTIVE TECHNOLOGY ADVOCACY CENTER
800-DIAL-TEC
DIVISION OF DEAF AND HARD OF HEARING
800-792-8339
DIVISION OF DISABILITY SERVICES
888-285-3036
DEVELOPMENTAL DISABILITIES COUNCIL
800-792-8858
NJ EASE
877-222-3737
FOOD STAMPS (DIVISION OF FAMILY
DEVELOPMENT HOTLINE)
800-792-9773
NJ DISASTER MENTAL
HEALTH HELPLINE AND
NJ MENTAL HEALTH CARES
866-202-HELP
TTY: 877-294-HELP
SENIOR INFORMATION LINE
800-792-8820
SAFE HAVEN FOR INFANTS
877-839-2339
DIVISION OF FAMILY DEVELOPMENT
800-792-9773
DIVISION OF MENTAL HEALTH SERVICES
800-382-6717
FOSTER AND ADOPTIVE FAMILY SERVICES
877-NJ-FOSTER
MEDICAID FRAUD AND ABUSE HOTLINE
888-937-2835
NJ FAMILYCARE
800-701-0710
SIDS Alliance/First Candle
800-221-7437
ValueOptions
877-652-7624
Domestic Violence
800-572-7233
TTY: 888-252-7233
Family Help Line
800-THE KIDS
Foster Care
877-NJ FOSTER
Victim of Crime Compensation Office
800-242-0804
Women’s Referral Center
800-322-8092
NJ TASK FORCE ON CHILD ABUSE AND NEGLECT
• Task Force on Child Abuse and Neglect
609-292-0888
• Parents Anonymous
800-THE KIDS
HEALTH AND WELLNESS
AIDS and STD Hotline
800-624-2377
NJ Addictions Hotline
800-238-2333
Cancer Information
800-422-6237
Office of Inspector General- (NJ)
866-633-6585
Health and Senior Services Complaint
and Reportable Hotline
800-792-9770
Health Information (DHSS)
800-367-6543
PAAD/Lifeline Program
800-792-9745
800-99-ADOPT
HOUSING
Housing and Mortgage Finance Agency
800-654-6873
HOUSING AND URBAN DEVELOPMENT, DEPARTMENT OF (HUD)
• Support Service Center
800-697-6967
• Best Practices Task Force
800-800-5029
877-NJABUSE
MEDICAL ASSISTANCE (MEDICAID)
800-331-3937
MEDICARE
GOOD NEIGHBORS, COMMUNITY LIVING FOR
PEOPLE WITH DISABILITIES
877-DHS-LINE
CHILDREN AND FAMILY SERVICES
Adoption (NJ-DYFS)
Child Abuse-report (NJ-DYFS)
800-356-1561
Division Line (NJ-DYFS)
800-MEDICARE
62
APPENDIX 10: TTY/TDD CONVERSATION ETIQUETTE
A TTY (teletypewriter) or TDD (Telecommunication Device for the Deaf) is a device which allows individuals who are deaf or hard of hearing to communicate through the telephone system by typing messages to other
individuals with TTYs, or to a relay system which provides operators who can read the typed message to an
individual who is listening through a voice telephone. When calling a TTY user, it is appropriate to allow at
least 10 rings to give the deaf or hard of hearing person enough time to see the flashing light.
Below are common abbreviations which are used to speed up communication:
GA: When you talk with another person by TTY, you type while the other person reads. When you want the
other person to respond, type GA for “Go ahead.”
GA OR SK: To say goodbye, type GA OR SK. This gives the other person a chance to say any last words
before ending the conversation.
SKSK: Type SKSK to end the conversation.
Q: Some people prefer to type Q instead of a question mark because it saves time and is easier to type.
You can use punctuation marks such as commas and periods, although many people choose to omit them. You
may also abbreviate words, such as:
GA
SK
CD
CUL
CUZ
go ahead
stop keying
could
see you later
because
HD
MTG
NBR
OIC
OPR
hold
meeting
number
oh, I see
operator
PLS
Q
mark
R
SHD
please
question
are
should
THX
TMW
U
UR
thanks
tomorrow
you
your
To reach NJ Relay, dial 711
GLOSSARY
A
Accessible: Usable to an individual with a disability
Accommodation: An adjustment, alteration, or
addition to an environment, a situation, or a piece of
equipment which enables a person with a disability
to utilize it in a manner equivalent to that of a person
without a disability
Acquired Immune Deficiency Syndrome (AIDS):
A defect of the immune system caused by the bloodborne HIV virus, causing vulnerability to various
infections, malignancies, and neurological diseases
Addiction: Genetically and/or psychosocially
impaired ability to control the use of a substance,
preoccupation with the substance, distorted perceptions about the substance, and continued use of the
substance despite adverse consequences
Alzheimer’s Disease: Brain disease of unknown
cause in which nerve cells in the brain die, causing
progressive, irreversible deterioration of memory
and other intellectual functions, language skills, and
63
ability to perform routine tasks
Amyotrophic Lateral Sclerosis (ALS): A progressive, degenerative disease of the motor neurons of
the central nervous system, causing muscular weakness, atrophy, and spasticity. Ten percent of cases are
genetic, the other ninety percent are of unknown origin
Anorexia Nervosa: Eating disorder primarily characterized by an excessive, voluntary loss of weight
and refusal to maintain minimal normal body weight
Area of Refuge: Designated safe place for a person
with a disability to await assistance during an emergency evacuation of a building or vessel
Arthritis: Disease of the joints and connective tissues, which can have numerous causes, creating
pain, swelling, and limited range of movement
Asperger’s Syndrome: A pervasive developmental
disorder in which the individual often has aboveaverage intellectual ability, but may experience
ongoing difficulties with social interaction, empathy,
logic, and understanding non-verbal cues.
GLOSSARY
Assistive Technology: Equipment or services which
increase, maintain, or improve the functional capability of an individual with a disability
Asthma: Chronic respiratory disorder characterized
by episodes of coughing, wheezing, and difficulty in
breathing because of inflamed and obstructed
bronchial tubes. Among the triggers are allergies,
chemical irritation, and/or emotional stress
Attention Deficit Disorder (ADD): Neurological
disorder characterized by distractibility, forgetfulness, inability to concentrate, poor attention span,
and impulsiveness
Attention Deficit/Hyperactivity Disorder(ADHD):
Neurological disorder which has the same characteristics as Attention Deficit Disorder, but which also
includes hyperactivity
Autism: Neurological disorder of unknown origin
which generally manifests before the age of 3. Social
and communication skills are impaired, and symptoms such as self-injury, aggression, voluntary repetitive body movements, intense attachment to objects,
and sensory processing difficulties may be present
Autoimmune Disorder: A variety of disorders
which are the result of the body producing an inappropriate immune response against its own tissues.
The causes are generally unknown, but symptoms
can include episodic or chronic inflammation and
pain, as well as tissue and/or organ damage
B
Bi-Polar Disorder: A mental disorder which is
characterized by alternations between manic and
depressive moods with consequent changes in thinking and behavior. Commonly called ManicDepression
Blind: Legal blindness is regarded as visual acuity
of 20/200 or less in the better eye with correction, or
a field of vision no greater than 20 degrees at its
widest point
Bulimia: Eating disorder characterized by episodes
of binge eating, followed by compulsive purging,
usually through vomiting, consumption of laxatives,
and/or excessive exercise
C
Celiac Sprue: A genetic disorder which is characterized by an extreme sensitivity to gluten – the protein in some grains – which can produce damage to
the small intestine. This damage can impair absorption of nutrients, resulting in malnutrition. The disease can be managed by a gluten-free diet
64
Cerebral Palsy: Injury to the motor areas of the
brain, at or prior to birth, resulting in a non-progressive impaired ability to control movement and
posture
Chronic Fatigue Syndrome: Illness of uncertain
cause characterized by fatigue, weakness, malaise,
muscle pain, and lymph node swelling
Congenital: A condition which is present at birth,
but which has a non-hereditary cause
Cognitive Disability: Impaired ability to think, concentrate, reason, and remember
Crohn’s Disease: Condition of unknown origins,
characterized by chronic painful inflammation of the
intestinal tract
Cystic Fibrosis A hereditary disease which effects
the respiratory system, pancreas, and sweat glands.
It is characterized primarily by the excessive production of thick mucus, which results in chronic respiratory infections and impaired breathing
D
Deaf: Hearing impairment severe enough to prevent,
with or without amplification, the processing of linguistic information. Specifically, a hearing deficiency above 25 db ISO in the 500-2000 frequency Hz
range unaided in the better ear
Developmental Disability: Permanent cognitive
and/or physical impairment, which occurs before the
age of 22, and which substantially limits the individual in three or more major life activities
Diabetes: Condition characterized by abnormal
blood sugar levels resulting from impaired functioning of the pancreas
Disability: A physical or mental impairment that
substantially limits a major life activity, such as
walking, talking, seeing, hearing, caring for oneself,
breathing, learning, or working
Down Syndrome: Congenital disorder caused by an
extra 21st chromosome, which causes intellectual
developmental disabilities and distinctive physical
characteristics
Dwarfism: Short stature, resulting from a genetic or
medical condition. It is generally defined as an adult
height of 4 feet ten inches or less. A common term
for an individual with dwarfism is “little person”
E
Eating Disorder: Psychological disorder characterized by a distorted body image and a dysfunctional
relationship with food, often resulting from feelings
of low self-worth and powerlessness. The individual
may overeat, undereat, and/or purge in an effort to
self-soothe and to control body shape
GLOSSARY
Emphysema: Disease of the lungs, characterized
primarily by labored and inefficient breathing, in
which the air sacs (alveoli) become distended and
therefore limited in their functioning
Epilepsy: Chronic condition produced by temporary
changes in the electrical functioning of the brain,
characterized by recurrent brief episodes of convulsive movements, alteration in consciousness, and/or
sensory phenomena
F
Fetal Alcohol Spectrum Disorder: A preventable
set of physical, craniofacial, mental, and neurobehavioral impairments associated with alcohol consumption by the mother during pregnancy
Fibromyalgia Disease of unknown origin characterized by the persistent presence of non-physically
damaging pain that moves throughout the muscles,
joints, ligaments, and tendons of the body
G
Genetic Disorder: A pathological condition resulting from a defective inherited gene
H
Hemiplegia Paralysis of one side of the body
Human Immunodeficiency Virus (HIV): Virus
which can damage the immune system and lead to
AIDS
Huntington’s Disease: Genetic disease which causes a pre-programmed degeneration of brain cells.
Initial symptoms, usually appearing in young to
mid-adulthood, include mood swings, forgetfulness,
and lack of coordination. They are followed by
involuntary movements, deterioration of swallowing
and speaking ability, and loss of cognitive ability
I
individuals, symptoms may also include inflammation of the joints and mucous membranes and disruption of kidney and nervous system function
M
Medigap: Insurance which supplements Medicare
benefits by paying some of the costs and covering
some of the services not covered by Medicare
Mental Retardation: Diagnostic term for an
Intellectual Disability
Multiple Chemical Sensitivity: Condition marked
by a variety of symptoms, such as respiratory distress, migraines, nausea, fatigue, irritation of the
mucous membranes and/or skin, cognitive difficulties, and/or disordered sleep. The onset generally
occurs in response to a major or chronic chemical
exposure, then broadens to include sensitivity to
common chemicals and irritants found throughout
the individual’s environment
Multiple Sclerosis: Disease of the central nervous
system which generally has it’s onset in young to
mid-adulthood. Degradation of the sheaths of nerves
causes relapses and remissions of weakness, pain,
and/or numbness in the limbs, disrupted vision, and
urinary tract dysfunction. It’s cause in unknown
Muscular Dystrophy: Group of genetic diseases
characterized by progressive weakness and degeneration of the skeletal or voluntary muscles which control movement
O
Obsessive-Compulsive Disorder: Psychological
condition, which may have a neurological basis,
characterized by repetitive ideas or impulses which
may be unwanted, irrational, and performed against
the person’s wishes
P
Intellectual Disability: A developmental disability
which is characterized by below-normal intellectual/cognitive functioning, causing impairment in
learning, social adjustment, maturation, and acquisition of life skills. Also known as Mental Retardation
L
Learning Disability: A group of disorders which
includes such conditions as dyslexia, developmental
aphasia, perceptual disabilities, brain injury, and
minimal brain dysfunction, which may disrupt the
process of listening, speaking, reading, writing,
spelling, or doing mathematical calculations
Lupus: Chronic, progressive disease of unknown
cause, which is primarily characterized by scaling
and ulceration of the skin. In about 10% of affected
65
Paraplegia: Paralysis of the legs and the lower trunk
Parkinson’s Disease: Chronic disease of the central
nervous system characterized by tremors, muscular
weakness and rigidity, and an unsteady gait.
Symptoms are caused by a deficiency of the brain
chemical dopamine, but the cause of the deterioration of the dopamine-producing nerve cells is
unknown
Pervasive Developmental Disorder (PDD):
Umbrella term for five neurological disorders Autism, Asperger’s Syndrome, Childhood
Disintegrative Disorder, Rett’s Syndrome, and PDDNot Otherwise Specified, all of which impair social
and communication skills
Post-Polio Syndrome: Array of possible symptoms
GLOSSARY
which occur in about 25% of individuals who have
been infected with polio. These symptoms generally
manifest 20 to 40 years after the onset of the infection and after a recovery period of at least 10 years,
and may include muscle pain, weakness, tics, respiratory difficulties, disordered sleep, gastrointestinal
and/or swallowing problems, neuropathy, arthritis,
scoliosis, and osteoperosis
Post-Traumatic Stress Disorder: Psychological
condition which develops in response to an overwhelmingly traumatic event which is generally outside the range of usual human experience.
Symptoms can include flashbacks, fear of dying,
rage, and panic attacks
Q
Quadriplegia: Paralysis of all four limbs and the
trunk. Also called tetraplegia
R
Reasonable Accommodation: Modification or
adjustment to a job application process or work environment which allows a person with a disability to
enjoy the same benefits and opportunities enjoyed by
similarly situated people without disabilities
Reflexive Sympathetic Dystrophy (RSD): Chronic
nerve disorder that generally has its onset in the body
at the site of an injury, and which often spreads to
other areas of the body. Characterized by burning
pain, extreme sensitivity to touch, tissue swelling,
and pathological changes in bone and skin
S
Schizophrenia: Brain disease of unknown cause
which typically has its onset in adolescence or young
adulthood. Characterized by thought disorders, delusions, and hallucinations. An affected individual may
experience excessive or lack of emotional expression, as well as paranoia and disrupted interpersonal
relationships. Symptoms can in some cases be managed by medication and supportive counseling
Scleroderma: Disease of unknown cause in which
the dermis layer of the skin is replaced by collagen,
causing toughness and discomfort. This process can
also involve the heart, lungs, kidneys, and intestinal
tract, interfering with the functioning of these organs
Self-Determination: The entitlement of individuals
with disabilities to control their own lives, pursue
self-defined goals, and participate fully in society
Service Animal: Animal trained to provide assistance to an individual with a disability
Sickle Cell Anemia: A genetic disorder of the
blood, characterized by red blood cells that assume
66
an abnormal rigid sickle cell shape. This decreases
the cells’ functionality, resulting in a variety of complications such as anemia, pain, and frequent infections
Speech to Speech (STS): Telephone relay service
mandated by the Federal Communications
Commission which provides translation for individuals with speech disabilities. A communication
assistant, specially trained to understand the speech
of people with a wide variety of speech disabilities,
listens to the speaker who has the speech disability
and restates verbatim to a third party what that person has said
Spina Bifida: Congenital condition caused by the
failure of the spine to close properly during the first
month of pregnancy. This may result in mobility
impairment, bladder/bowel problems, and/or hydrocephalis
Spinal Cord Injury: Damage to the spinal cord,
which results in temporary or permanent loss of sensation, motor control, and/or bladder and bowel
control
Stroke: Sudden neurological impairment caused by
a hemorrhage or blood clot in the brain. Temporary
or permanent loss of vision, speech, mobility, and/or
consciousness may result
T
Traumatic Brain Injury: Injury to the brain which
may impair cognitive or physical functioning, disturb behavior or moods, and/or produce an altered
state of consciousness
Triplegia: Paralysis of three limbs
V
Visually Impaired: Vision which is no better than
20/70 with correction, but not worse than 20/200
with correction. To have less visual acuity than
20/200 with correction constitutes legal blindness
ABBREVIATIONS AND ACRONYMS
ACLU
ADA
ADD
ADHD
ADL
ADRC
AHCPR
AIDS
ALS
APS
ARC
BSS
CAP
CBVI
CDCP
CHLP
CIL
CMS
CNA
COMHCO
COSAC
CP
DD
DDD
DDS
DHS
DHSS
DOJ
DVRS
DYFS
EEOC
FCC
HI
HIPAA
HIV
HRFA
HUD
IDEA
IEP
IHP
JTPA
LAD
MD
MDA
MR
American Civil Liberties Union
Americans with Disabilities Act
Attention Deficit Disorder
Attention Deficit Hyperactivity Disorder
Activities of Daily Living
Aging and Disability Resource Connection
Agency for Health Care Policy and
Research
Acquired Immune Deficiency Syndrome
Amyotrophic Lateral Sclerosis
Adult Protective Services
Association for Retarded Citizens
Board of Social Services
Consumer Assistance Program
Commission for the Blind and Visually
Impaired (NJ)
Center for Disease Control and Prevention
Community Health Law Project
Center for Independent Living
Center for Medicare and Medicaid Services
Certified Nursing Assistant
Coalition of Mental Health Consumers
Organizations
Center for Outreach and Services for
the Autism Community, Inc.
Cerebral Palsy
Developmental Disability
Division of Developmental Disabilities
(NJ)
Division of Disability Services (NJ)
Department of Human Services (NJ)
Department of Health and Senior Services
Department of Justice
Division of Vocational Rehabilitation
Services (NJ)
Division of Youth and Family Services
Equal Employment Opportunity
Commission (US)
Federal Communications Commission
Hearing Impaired
Health Insurance Portability and
Accountability Act
Human Immunodeficiency Virus
Health Resources and Services
Administration (US)
Department of Housing and Urban
Development (US)
Individuals with Disabilities Education Act
Individual Education Plan
Individual Habilitation Plan
Job Training Partnership Act
Law Against Discrimination (NJ)
Muscular Dystrophy
Muscular Dystrophy Association
Mental Retardation
67
MS
NAMI
NI
NICHCY
NJCFSA
NJP&A
NOS
OCD
OIG
OPRA
OT
PAAD
PAIMI
PAIR
PAP
PASP
PASS
PCA
PDD
PRO
PT
PTSD
RHHI
REIC
RSD
SCAHS
SCI
SCORE
SHIP
SILC
SNAP
SPAN
SSA
SSDI
SSI
STS
TARP
TBI
TDD
TT
TTY
UAP
UCPA
VA
VI
VP
WIC
Multiple Sclerosis
National Alliance for the Mentally Ill
Neurologically Inpaired
National Information Center for
Children and Youth with Disabilities
New Jersey Chronic Fatigue Syndrome
Association
New Jersey Protection and Advocacy (NJ)
Not Otherwise Specified
Obsessive-Compulsive Disorder
Office of the Inspector General (US)
Open Public Records Act
Occupational Therapy
Pharmaceutical Assistance to the Aged
and Disabled (NJ)
Protection and Advocacy for Individuals
with Mental Illness
Protection and Advocacy for Individual
Rights
Pharmaceutical Assistance Program
Personal Assistance Services Program
Social Security Administration Plan to
Achieve Self-Support
Personal Care Attendant
Pervasive Developmental Disorder
Peer Review Organization
Physical Therapy
Post-Traumatic Stress Disorder
Regional Home Health Intermediary
Regional Early Intervention Collaborative
Reflexive Sympathetic Dystrophy
Special Child and Adult Health Services
(NJ)
Spinal Cord Injury
Service Core of Retired Executives
State Health Insurance Assistance Program
Statewide Independent Living Council
Special Needs Advocate for Parents
Statewide Parents Advocacy Network
Social Security Administration
Social Security Disability Income
Supplemental Security Income
Speech To Speech
Technology Assistive Resource Program
Traumatic Brain Injury
Telecommunications Device for the Deaf
Text Telephone
Teletypewriter
University Affiliated Program
United Cerebral Palsy Association
Veterans’ Administration
Visually Impaired
Video Phone
Supplemental Nutrition Program for
Women, Infants, and Children
INDEX
A
Ability OnLine Support Network ..................................................................................................................32
Abuse...............................................................................................................................................................9, 10, 11, 14, 15, 20, 53, 54, 62
ACCAP Waiver ...............................................................................................................................................1, 40
Access-A-Ride MTA.......................................................................................................................................52
Access Link .....................................................................................................................................................52
ACCESS NJ/CNA .........................................................................................................................................31
ADA See: Americans with Disabilities Act ...................................................................................................34, 36, 61
ADAPT (American Disabled for Attendant Programs Today) .....................................................................27
ADD/ADHS .................................................................................................................................................33
Addictions .......................................................................................................................................................6, 8, 33, 57, 62
Addiction Services, Division of .....................................................................................................................8
Adjutant General, Office of the ......................................................................................................................16
Adoption .........................................................................................................................................................14, 55, 62
ADRC (Aging and Disability Resource Connection) ...................................................................................9
Adult Protective Services ................................................................................................................................9, 20
Advancing Opportunities (formerly Cerebral Palsy of NJ) ..........................................................................23
Advocacy .......................................................................................................................................................4, 5, 15, 27, 28, 29, 30, 36, 53, 62
Advocates for Better Communication.............................................................................................................27
Affordable Housing, Council on .....................................................................................................................11
Aging, Offices on ............................................................................................................................................20
Aging and Community Services, Division of ................................................................................................. 9, 40
Aging and Disability Resource Connection (ADRC) ...................................................................................9
Agriculture, Department of .............................................................................................................................3
Aids Community Care Alternatives Waiver Program (ACCAP) ....................................................................1, 40
AIDS Coalition of Southern NJ ....................................................................................................................21
AIDS Drug Distribution Program (ADDP) ....................................................................................................9, 38
AIDS/HIV .......................................................................................................................................................1, 9, 10, 21, 33, 38, 40, 62
AIDS/STD Hotline..........................................................................................................................................9, 62
Air Carriers Access Act .................................................................................................................................35, 60
AL-ANON.......................................................................................................................................................57
Alcoholics Anonymous ...................................................................................................................................57
Alliance for the Betterment of Citizens with Disabilities (ABCD)................................................................22, 23, 29
Alliance for Disabled in Action .....................................................................................................................20
ALS See: Amyotrophic Lateral Sclerosis ......................................................................................................21, 32
Alzheimer’s Adult Day Services Program ......................................................................................................9
Alzheimer’s Association, The ........................................................................................................................21
American Association on Intellectual and Developmental Disabilities..........................................................32
American Association of People with Disabilities .......................................................................................27
American Cancer Society................................................................................................................................22, 32
American Civil Liberties Union (ACLU) .......................................................................................................29
American Diabetes Association ......................................................................................................................23, 24
Americans with Disabilities Act (ADA) .........................................................................................................34, 36, 61
American Foundation for the Blind ................................................................................................................32
American Heart Association ...........................................................................................................................22
American Lung Association............................................................................................................................26
American Self-Help Group Clearinghouse ...................................................................................................27
American Stroke Association .........................................................................................................................32
Amputee Coalition of America .......................................................................................................................32
Amtrak, Office of Amtrak Access...................................................................................................................52
Amyotrophic Lateral Sclerosis (ALS) ............................................................................................................21, 32
Amyotrophic Lateral Sclerosis Association....................................................................................................32
ARC, The ........................................................................................................................................................32
ARC of New Jersey.........................................................................................................................................23
Architectural and Transportation Barriers Compliance Board .......................................................................36
Archimedes Project .........................................................................................................................................28
Arthritis ...........................................................................................................................................................21
Arthritis Foundation .......................................................................................................................................21
Arts Access Task Force ..................................................................................................................................31
Asperger Syndrome Education Network (ASPEN) ......................................................................................21
Assistance Dogs International, Inc. ..............................................................................................................27
Assisted Living and Adult Family Care Services (AL/AFC) ........................................................................9
Assisted Living Program ................................................................................................................................10
Assistive Devices Recycling .........................................................................................................................32
Assistive Technology Advocacy Center (ATAC) ............................................................................................4, 32, 62
Association for the Advancement of Mental Health.......................................................................................29
68
INDEX
Association for Children of New Jersey .........................................................................................................29
Association of Late-Deafened Adults (ALDA) ..............................................................................................23
Association of Schools and Agencies for the Handicapped (ASAH).............................................................31
Association for Special Children and Families...............................................................................................29
ATAC (Assistive Technology Resource Center) ...........................................................................................4, 32
Attention Deficit Disorder (ADD) ...............................................................................................................33
Attorney General, Office of the ......................................................................................................................15
Autism ............................................................................................................................................................. 21, 33
Autism New Jersey (formerly COSAC) .......................................................................................................21
Autism Family Services of New Jersey ........................................................................................................21
Autoimmune Information Network, Inc. ......................................................................................................22
Auto Insurance Assistance .............................................................................................................................42
B
Back in Action (Assistive Devices Recycling Center)....................................................................................32
Banking and Insurance, Department of .........................................................................................................3
Barrier Free Sub-Code ....................................................................................................................................11, 15
Benefits To Work ...........................................................................................................................................2, 27
Blind/Visually Impaired ..................................................................................................................................6, 22, 32, 33, 34, 46, 47
Boards of Social Services ..............................................................................................................................18
Boggs Center See: Elizabeth M. Boggs Center on Developmental Disabilities ...........................................5, 23
Brain Injury Association of America ..............................................................................................................32
Brain Injury Association of New Jersey .........................................................................................................24
Brain Injury Research, Commission on .........................................................................................................10
Burn Survivors Online ..................................................................................................................................32
Business Resources .........................................................................................................................................47
C
Camden City Independent Living Center ......................................................................................................19
Cancer..............................................................................................................................................................22, 32, 62
Canine Companions for Independence ..........................................................................................................31
Canine Partners for Life .................................................................................................................................31
CAP (Client Assistance Program) .................................................................................................................4
Cardiac ...........................................................................................................................................................22
Cash and Counseling See: Personal Preference Program ..........................................................................2
Catastrophic Illness in Children Relief Fund..................................................................................................42
CBVI See: Commission for the Blind and Visually Impaired.......................................................................6, 46, 47
Celiac Sprue Association ..............................................................................................................................32
Center for Accessible Society ........................................................................................................................27
Center for Disease Control and Prevention ...................................................................................................39
Center for Health Statistics ...........................................................................................................................10
Centers for Independent Living .....................................................................................................................19
Center for Independent Living of South Jersey, Inc. .....................................................................................19
Center for Medicare and Medicaid Services (CMS) .....................................................................................39
Center for Outreach and Services for the Autism Community (COSAC)
(see: Autism New Jersey) ......................................................................................................................21
Central Jersey Spinal Cord Association ..........................................................................................................26
Cerebral Palsy ................................................................................................................................................22
Cerebral Palsy Association of Middlesex County ........................................................................................22
Cerebral Palsy League ..................................................................................................................................22
Cerebral Palsy of New Jersey (see: Advancing Opportunities) ....................................................................23, 32
Cerebral Palsy of North Jersey ......................................................................................................................22
Charity Care ..................................................................................................................................................38
Child Abuse Prevention, Office of ..................................................................................................................53
Child Abuse Report Hotline (DYFS) .............................................................................................................14, 54, 62
Child Advocate, Office of the .........................................................................................................................53
Child Behavioral Health Services, Division of .............................................................................................14, 54
Child Care Helpline ......................................................................................................................................53
Child Care Resource and Referral Centers .....................................................................................................53
Child Study Teams .........................................................................................................................................44
Child Welfare Training Academy .................................................................................................................14
Children and Adults with Attention Deficit Disorder (CHADD) ...................................................................33
Children and Families, Department of ..........................................................................................................3, 14
Christopher & Dana Reeve Paralysis Resource Center ..................................................................................26
Chronic Fatigue and Immune Dysfunction Syndrome Association of America ............................................33
Chronic Fatigue Syndrome .............................................................................................................................22, 33
Chronic Pain ..................................................................................................................................................27
69
INDEX
Citizen Relations, Division of .......................................................................................................................15
Civil Rights, Division on.................................................................................................................................15, 30, 36
Civil Rights, Office on ...................................................................................................................................39
Coalition for Inclusive Ministries ..................................................................................................................23
Coalition of Mental Health Consumers Organizations (COMHCO)..............................................................25
Codes and Standards, Division of ..................................................................................................................11
Cognitive Disability ........................................................................................................................................7, 8, 23, 32
Colitis See: Crohn’s Disease .......................................................................................................................22
Commerce, Economic Growth , and Tourism Commission ..........................................................................3, 47
Commission for the Blind and Visually Impaired (CBVI) .............................................................................6, 46, 47
Community Access Unlimited ........................................................................................................................23
Community Affairs, Department of ................................................................................................................3, 11, 49, 50
Community Care Waiver ................................................................................................................................40
Community Choice Options............................................................................................................................9, 10
Community Health Law Project .....................................................................................................................30
Community Options, Inc. ...............................................................................................................................23
Community Resources for Persons with Disabilities (CRPD) Waiver ..........................................................1, 40
Community Services, Division of .................................................................................................................14
Community Services Block Grants.................................................................................................................49
Congregate Housing Services Program .........................................................................................................9
Consumer Affairs, Division of .......................................................................................................................15
Corrections, Department of.............................................................................................................................3
Corrections Ombudsman, Office of the ........................................................................................................15
COSAC (See: Autism New Jersey)................................................................................................................22
County Boards of Social Services...................................................................................................................18
County Offices on Aging ...............................................................................................................................20
County Offices of Disability Services ...........................................................................................................17, 18
County Para-Transportation ............................................................................................................................52
Crisis Intervention ..........................................................................................................................................18
Crohn’s and Colitis Foundation of America ...................................................................................................22
CRPD Waiver .................................................................................................................................................1, 40
Cross Disability ...............................................................................................................................................23
Cystic Fibrosis Foundation .............................................................................................................................23, 33
D
Danielle’s Law ..............................................................................................................................................35
DAWN, Inc......................................................................................................................................................19
Daycare, Adult.................................................................................................................................................7, 9
DD Council (See: New Jersey Council on Developmental Disabilities) ....................................................4, 62
DDD (See: Division of Developmental Disabilities) ...................................................................................7, 40
Deaf-Blind (See: Sensory Impairments).....................................................................................................26
Deaf and Hard of Hearing, Division of the ...................................................................................................6, 62
Deaf/Hearing Impaired....................................................................................................................................6, 9, 12, 23, 33, 62
Delta Society ..................................................................................................................................................31
Dental Assistance ..........................................................................................................................................37, 38
Dental Care for Persons with Developmental Disabilities ...........................................................................38
Dental Provider Database ............................................................................................................................38
Developmental Disabilities, Division of (DDD)............................................................................................7, 40
Developmental Disabilities Advocacy, Division of ......................................................................................15
Developmental Disabilities Assistance and Bill of Rights Act of 2000 .......................................................34
Diabetes ...........................................................................................................................................................23, 24
DIAL, Inc. .......................................................................................................................................................19
Disabilities Management, Office of ...............................................................................................................16
Disability Determinations ............................................................................................................................13
Disability Employment and Policy, Office of (ODEP) ..................................................................................33
Disability Enterprise Program.........................................................................................................................47
Disability Health and Wellness Initiative .......................................................................................................2
DisabilityInfo ..................................................................................................................................................27
Disability Preparedness Resource Center .....................................................................................................59
Disability Resources Monthly.........................................................................................................................27
Disability Rights Education and Defense Fund .............................................................................................33
Disability Rights New Jersey (formerly New Jersey Protection and Advocacy) .........................................4, 30
Disability Services, Division of .....................................................................................................................1, 2, 8, 40, 51, 62
Disability Social History Project.....................................................................................................................27
Disaster Mental Health Helpline ...................................................................................................................62
Disaster Preparedness......................................................................................................................................58, 59
Dispute Settlement, Office of .......................................................................................................................15
70
INDEX
DO-IT Foundation...........................................................................................................................................27
Dollar-A-Day Car Insurance .........................................................................................................................42
Domestic Violence Hotline ............................................................................................................................11, 62
Donated Dental Services ...............................................................................................................................37
Downs Syndrome ..........................................................................................................................................33
DVRS See: Vocational Rehabilitation Services, Division of .........................................................................13, 45, 46, 47
Dwarfism ........................................................................................................................................................24
DYFS, See: Youth and Family Services, Division of......................................................................................14, 53, 54, 62
Dyslexia ..........................................................................................................................................................24
E
Early Intervention Services ............................................................................................................................10, 37, 43
Easter Seals National Headquarters ................................................................................................................33
Easter Seals Society of New Jersey ...............................................................................................................23
Eating Disorders Association of New Jersey ..................................................................................................24
Education, Department of ...............................................................................................................................3, 12, 44
Education, Office of .......................................................................................................................................14
EEOC See: Equal Employment Opportunity Commission .........................................................................36
Elizabeth M. Boggs Center on Developmental Disabilities ..........................................................................5, 23
Emergency Management, Office of ..............................................................................................................3
Emphysema See: Respiratory Disease..........................................................................................................26
Employment ....................................................................................................................................................13, 45, 46, 47, 48
Environmental Protection, Department of .....................................................................................................3
Epilepsy ...........................................................................................................................................................24, 33
Epilepsy Foundation of Americia ...................................................................................................................33
Epilepsy Foundation of New Jersey................................................................................................................24
Equal Employment Opportunity Commission (EEOC)..................................................................................36
F
Fair Housing Act ............................................................................................................................................34, 36
Fair Housing Best Practices Task Force ........................................................................................................62
Family Care .....................................................................................................................................................6, 40, 62
Family Development, Division of ...................................................................................................................8, 62
Family Health Services, Division of ..............................................................................................................10, 37
Family Helpline .............................................................................................................................................62
Family Resource Network ............................................................................................................................29
Family Self-Sufficiency Program, Transitional Housing Program .................................................................49
Family Support................................................................................................................................................4, 35
Family Support Act .......................................................................................................................................35
Family Support Center ....................................................................................................................................29
Family Village .................................................................................................................................................27
Federal Aviation Administration (FAA)..........................................................................................................60
Federal Communications Commission (FCC)................................................................................................36
Federal Emergency Management Agency (FEMA) .......................................................................................59
Federally Qualified Health Centers ..............................................................................................................38
Fibromyalgia ..................................................................................................................................................22
Find A Ride ...................................................................................................................................................2
Fire Safety, Division of ...................................................................................................................................11, 59
Food Addicts Anonymous ..............................................................................................................................24
Food Pantries .................................................................................................................................................42
Food Stamps ...................................................................................................................................................18, 62
Foster Care ......................................................................................................................................................14, 55, 62
Fragile X-Syndrome .......................................................................................................................................33
Fraud ..............................................................................................................................................................40, 62
Freedom Clearinghouse ................................................................................................................................27
G
Gamblers Anonymous ....................................................................................................................................57
Githens Center (Burlington County Cerebral Palsy Association) .................................................................22
Global Options (GO) .....................................................................................................................................9, 10, 40
Good Neighbors .............................................................................................................................................6, 62
Governor, Office of the ..................................................................................................................................3
Governor’s Council on Alcoholism and Substance Abuse .............................................................................57
Greyhound Travel Assistance Line .................................................................................................................52
71
INDEX
H
HCCAP (Healthcare Consumer Assistance Program) ..................................................................................4
Head Injury/Traumatic Brain Injury ...............................................................................................................1, 2, 4, 24, 32, 40
Head Start .......................................................................................................................................................44
Health Care Facility Consumer Complaint Hotline .......................................................................................10, 62
Health Facilities Evaluation and Licensing, Division of ..............................................................................10
Health Information .........................................................................................................................................62
Health Insurance Continuation Program (HICP) ...........................................................................................9
Health Insurance Portability and Accountability Act (HIPAA) ....................................................................35
Health Resources and Services Administration (HRSA)................................................................................39
Health and Senior Services, Department of....................................................................................................3, 9, 10, 38, 40, 62
Health and Wellness for People with Disabilities .........................................................................................41
Hearing Aid Assistance to the Aged and Disabled (HAAAD) ......................................................................9
Hearing Impaired ..........................................................................................................................................6, 9, 12, 23, 33, 62
Hearing Loss Association of America, New Jersey State Association .........................................................23
Heart Disease ..................................................................................................................................................22
Heightened Independence & Progress (HIP).................................................................................................19
Hepatitis Foundation International..................................................................................................................24
Higher Education Student Assistance Authority (HESAA)............................................................................44
HIPAA (Health Insurance Portability and Accountability Act) ....................................................................35
HIV/AIDS ..................................................................................................................................................1, 9, 10, 21, 33, 38, 40, 62
HIV/AIDS Services, Division of.....................................................................................................................9
Home Care Association of New Jersey .........................................................................................................51
Home and Community Services, Office of ....................................................................................................1
Home Health Services and Staffing Association of New Jersey ....................................................................51
Homeland Security, Department of.................................................................................................................59, 60
Homelessness Prevention Program ................................................................................................................49
Homeless Shelter Program..............................................................................................................................18, 49
Homestead Rebate Program ..........................................................................................................................16
Hospice ...........................................................................................................................................................39
Housing Assistance .........................................................................................................................................2, 11, 49, 50, 62
Housing Authority Offices ............................................................................................................................49, 50
Housing, Division of ......................................................................................................................................11, 49
Housing and Mortgage Finance Administration (HMFA, NJHMFA) ...........................................................50, 62
HUD (Housing and Urban Development, Department of) ..........................................................................36, 62
Human Services, Department of ....................................................................................................................3, 6, 7, 8
Huntington’s Disease Society of America ......................................................................................................24
Hyacinth AIDS Foundation ............................................................................................................................21
I
IDEA (See: Individuals with Disabilities Education Act) ...........................................................................34, 36
Inclusion Network ...........................................................................................................................................27
Inclusive Education .......................................................................................................................................4
Independent Living Centers See: Centers for Independent Living ...............................................................19
Independent Living Institute ...........................................................................................................................27
Independent Living USA ................................................................................................................................27
Individuals With Disabilities Education Act (IDEA) ....................................................................................34, 36
Information and Assistance Services, Office of .............................................................................................1
Inspector General, Office of the .....................................................................................................................39, 62
Institute for Community Inclusion..................................................................................................................28
Institute on Disability Culture......................................................................................................................... 28
Intellectual Disability ....................................................................................................................................7, 23
International Dyslexia Association ................................................................................................................24
International Paraplegic Committee................................................................................................................28
Interpreter Referral Service (American Sign Language) ..............................................................................6
Invisible Disabilities Page .............................................................................................................................28
J
Jersey Assistance for Community Caregivers (JACC) ...................................................................................9
Job Accommodation Network.........................................................................................................................33
Joseph Kohn Rehabilitation Center ................................................................................................................6
Justice, Department of.....................................................................................................................................36
72
INDEX
K
Katzenbach School for the Deaf ...................................................................................................................12
Kinship Navigator ..........................................................................................................................................54
L
Labor and Workforce Development, Department of.......................................................................................3, 13, 47, 48
LAD See: New Jersey Law Against Discrimination ..................................................................................35, 57
LADACIN Network ........................................................................................................................................22
Late-Deafened Adults, Association of (ALDA).............................................................................................23
Law and Public Safety, Department of ..........................................................................................................3, 15
Learning Disabilities .......................................................................................................................................25, 33
Learning Disabilities Association ...................................................................................................................33
Learning Resource Centers .............................................................................................................................12, 44
Legal Assistance ...........................................................................................................................................4, 15, 29, 30, 36
Legal Services of New Jersey .......................................................................................................................29
Legislative Services, Office of ......................................................................................................................3
Libraries ..........................................................................................................................................................34
Library for the Blind and Handicapped ..........................................................................................................34
Lifeline Utility Assistance Program................................................................................................................9, 42, 62
Little People of America .............................................................................................................................24
Long Term Care Program .............................................................................................................................10
Long Term Care Ombudsman .........................................................................................................................39
Low-Income Home Energy Assistance Program (LIHEAP) ..........................................................................42
Lupus Foundation of America.........................................................................................................................25
M
Marie Katzenbach School for the Deaf .........................................................................................................12
Maternal and Child Health Services ..............................................................................................................37
Medicaid..........................................................................................................................................................1, 8, 40, 51, 62
Medicaid Fraud and Abuse Hotline ...............................................................................................................40, 62
Medicaid Infrastructure Grant .......................................................................................................................2
Medicaid Waivers ...........................................................................................................................................1, 40
Medical Assistance Customer Centers (MACC) ...........................................................................................40
Medical Assistance and Health Services, Division of ..................................................................................8, 40, 48
Medical Day Care ..........................................................................................................................................9
Medicare .........................................................................................................................................................39, 62
Mental Health .................................................................................................................................................6, 8, 15, 25, 29, 33, 35, 38, 62
Mental Health Advocacy, Division of ...........................................................................................................15
Mental Health America ................................................................................................................................33
Mental Health Association of New Jersey ......................................................................................................25
Mental Health Consumers, Coalition of (COMHCO)...................................................................................25
Mental Health Parity Act ..............................................................................................................................35
Mental Health Services, Division of ..............................................................................................................8, 62
Mental Retardation .......................................................................................................................................7, 24, 32
Military and Veteran’s Affairs, Department of ...............................................................................................3, 16
Minority Issues ...............................................................................................................................................9, 29
Minority and Multicultural Health, Office of .................................................................................................9
Mobility International USA ............................................................................................................................28
MOCEANS Center for Independent Living ...................................................................................................19
Monday Morning Project ..............................................................................................................................4
Motorized Wheelchair Lemon Law ...............................................................................................................15, 34
Motor Vehicles (New Jersey Motor Vehicle Commission) ............................................................................38, 55
MTA (New York Transportation) ....................................................................................................................52
Multiple Sclerosis............................................................................................................................................26, 33
Multiple Sclerosis Association of America (MSAA) ....................................................................................26
Multiple Sclerosis Society ..............................................................................................................................26
Muscular Dystrophy Association ....................................................................................................................25, 33
N
NAMI (National Alliance on Mental Illness) ...............................................................................................25
NAR-ANON ...................................................................................................................................................57
Narcotics Anonymous ....................................................................................................................................57
National Accessible Apartment Clearinghouse...............................................................................................33
National Alcohol and Substance Abuse Information Center ........................................................................57
National Association of the Deaf ....................................................................................................................33
National Association for Parents of Children with Visual Impairments.........................................................33
National Association of People with AIDS.....................................................................................................33
73
INDEX
National Autism Services Center ....................................................................................................................33
National Clearinghouse on Postsecondary Education for Individuals with Disabilities ...............................33
National Council on Alcoholism and Drug Dependency. .............................................................................33
National Council on Disability ......................................................................................................................28
National Dissemination Center for Children with Disabilities (NICHCY) .................................................33
National Downs’ Syndrome Society ...............................................................................................................33
National Federation for the Blind ...................................................................................................................22
National Fragile X Foundation ......................................................................................................................33
National Library Services for the Blind and Physically Handicapped...........................................................33
National Minorities with Disabilities Coalition ............................................................................................29
National Multiple Sclerosis Society................................................................................................................33
National Organization on Disability (NOD) ..................................................................................................28
National Organization for Rare Disorders ......................................................................................................33
National Spinal Cord Injury Association (NSCIA) ........................................................................................33
Neuromuscular and ALS Center .....................................................................................................................21
Newborn Biochemical Screening Program.....................................................................................................10, 37
New Jersey Advisory Council on Traumatic Brain Injury ...........................................................................2
New Jersey American Parkinson Disease Association .................................................................................25
New Jersey Association of Community Providers, Inc. .................................................................................31
New Jersey Association of the Deaf-Blind .....................................................................................................26
New Jersey Association for Persons in Supported Employment (NJAPSE) ...............................................31
New Jersey Chronic Fatigue Syndrome Association (NJCFSA)....................................................................22
New Jersey Community Capital......................................................................................................................47
New Jersey Council for the Blind ...................................................................................................................22
New Jersey Council on Developmental Disabilities (DD Council) .............................................................4, 62
New Jersey Foundation for the Blind .............................................................................................................22
New Jersey Homeland Security ......................................................................................................................3, 59
New Jersey Homeownership Preservation Effort (NJ HOPE) ......................................................................50
New Jersey Hospice and Palliative Care Organization...................................................................................39
New Jersey Hospital Association ..................................................................................................................51
New Jersey Law Against Discrimination (NJLAD) ......................................................................................35, 57
New Jersey Nurse Delegation Pilot Project ..................................................................................................2
New Jersey Polio Network..............................................................................................................................25
New Jersey Protection and Advocacy, Inc. (See: Disability Rights New Jersey) ..........................................4, 30
New Jersey Self-Advocacy Project .................................................................................................................29
New Jersey Self-Help Group Clearinghouse ..................................................................................................26, 30
New Jersey Speech-Language-Hearing Association ...................................................................................26
New Jersey State Bar Association ..................................................................................................................29
New Jersey State Library ...............................................................................................................................34
New Jersey Stroke Activity Center ................................................................................................................26
New Jersey Subsidized Adoption Program .....................................................................................................55
New Jersey Women and AIDS Network .........................................................................................................21
Nicotine Anonymous.......................................................................................................................................57
NJ Addictions Hotline ....................................................................................................................................6, 57, 62
NJ Association of the Deaf (NJAD) ...............................................................................................................23
NJ EASE (New Jersey Easy Access, Single Entry) .......................................................................................9, 20, 23, 38, 62
NJHMFA (See: Housing and Mortgage Finance Agency) ............................................................................50, 62
NJ Housing Resource Center ........................................................................................................................2, 50
NJ Mental Health Cares ................................................................................................................................6, 8, 62
NJ Shares.........................................................................................................................................................42
NJ Transit ......................................................................................................................................................52
NJ WINS ........................................................................................................................................................48
NJ WorkAbility .............................................................................................................................................2, 48
Northeast ADA Center ....................................................................................................................................36
O
Older Americans Act .....................................................................................................................................35
Olmstead Decision ..........................................................................................................................................61
Ombudsman for the Institutionalized Elderly, Office of the...........................................................................15
Ombudsman, Long Term Care ........................................................................................................................39
One-Stop Career Centers ..............................................................................................................................46
Open Public Records Act (OPRA) ...............................................................................................................35
74
INDEX
P
PAAD See: Pharmaceutical Assistance for the Aged and Disabled ..............................................................9, 38, 62
PAAT (Protection and Advocacy for Assistive Technology) ........................................................................4
PAIMI (Protection and Advocacy for Individuals with Mental Illness) .......................................................4
PABSS (Protection and Advocacy for Beneficiaries of Social Security ......................................................4
PABTI (Protection and Advocacy for Traumatic Brain Injury) ....................................................................4
PADD (Protection and Advocacy for Persons with Developmental Disabilities) ........................................4
PAIR (Protection and Advocacy of Individual Rights) .................................................................................4
PAVA (Protection and Advocacy for Voter Access) ......................................................................................4
Paralyzed Veterans of America .......................................................................................................................33
Para-Transit (See: County Para-Transportation) ..........................................................................................52
Parent Advocacy Coalition for Educational Rights .......................................................................................28
Parents Anonymous.........................................................................................................................................62
Parents of Autistic Children (POAC) ............................................................................................................21
Parking Laws...................................................................................................................................................55
Parkinson’s Disease ........................................................................................................................................25
PASP See: Personal Assistance Services Program ......................................................................................2, 51
PASS See: Plan to Achieve Self-Support.......................................................................................................47
Passaic County Elks Cerebral Palsy Treatment Center .................................................................................22
Partners In Policymaking ................................................................................................................................4
PCA See: Personal Care Assistance ............................................................................................................1, 51
People First Language ....................................................................................................................................56
Personal Assistance Services Advisory Council ...........................................................................................2
Personal Assistance Services Program (PASP)
.........................................................................................2, 51
Personal Care Assistance (PCA) .....................................................................................................................1, 51
Personal Preference Program .........................................................................................................................2
Personnel, Department of................................................................................................................................3
Pervasive Developmental Disorder See: Autism ..........................................................................................21, 33
Pharmaceutical Assistance .............................................................................................................................9, 38, 62
Pharmaceutical Assistance for the Aged and Disabled (PAAD) ...................................................................9, 38, 62
Plan to Achieve Self-Support (PASS) .............................................................................................................47
Polio/Post-Polio...............................................................................................................................................25
Prevention of Mental Retardation and Developmental Disabilities, Office of ...............................................8
Progressive Center for Independent Living (PCIL) ........................................................................................19
Property Tax Reimbursement Program .........................................................................................................16
Public Advocate, Department of the .............................................................................................................3, 15
Public Guardian, Office of the .......................................................................................................................9
Public Utilities , Board of ..............................................................................................................................3
R
Railroad Retirement Board .............................................................................................................................39
Rare Disorders ................................................................................................................................................33
Recording for the Blind and Dyslexic (RFB&D) ...........................................................................................34
Recreation, Office of ......................................................................................................................................11
Red Cross .......................................................................................................................................................59
Reduced Fair Program, New Jersey Transit ...................................................................................................52
Reflex Sympathetic Dystrophy Syndrome Association ..................................................................................33
Regional Early Intervention Collaboratives (REIC) .......................................................................................43
Regulatory Affairs, Office of .........................................................................................................................11
Rehabilitation Act of 1973 ..............................................................................................................................34, 36
Rehabilitation Technology Services ...............................................................................................................32
Rental Assistance ..........................................................................................................................................49
Residential Health Care Program....................................................................................................................10
Resources for Independent Living (RIL) ........................................................................................................19
Respiratory Disease ........................................................................................................................................26
Respite ............................................................................................................................................................7, 9
Rewarding Work ............................................................................................................................................51
Roads 2 Recovery ..........................................................................................................................................57
RSD (Reflex Sympathetic Dystrophy)...........................................................................................................33
Rx4NJ ............................................................................................................................................................38
S
Safe Haven for Infants ...................................................................................................................................53, 62
SCCAT (Statewide Clinical Consultation and Training) ..............................................................................38
Scleroderma Foundation .................................................................................................................................26
Section 8 Housing Voucher Program ..............................................................................................................49
75
INDEX
Seeing Eye, Inc. .............................................................................................................................................31
Self Advocacy ................................................................................................................................................5, 29
Self Employment Initiative .............................................................................................................................47
Senior Gold Prescription Discount Program .................................................................................................9, 38
Senior Information Line ................................................................................................................................9, 20, 62
Senior Benefits and Utilization Management, Office of ..............................................................................9
Senior Services, Offices of ............................................................................................................................20
Sensory Impairments.......................................................................................................................................26
SEPTA (Pennsylvania Transportation) .........................................................................................................52
Service Animal Registry of America (SARA) ...............................................................................................31
Service Animals ..............................................................................................................................................27, 31, 57, 60
Service Core of Retired Executives (SCORE)................................................................................................47
SHIP See: State Health Insurance Program .................................................................................................9, 39
Sickle Cell Disease Association of America ..................................................................................................26
SIDS Alliance .................................................................................................................................................62
SLMB (See: Specified Low-Income Medicare Beneficiary) ......................................................................9
Small Business Development Center .............................................................................................................47
Snow Removal Act..........................................................................................................................................34
Social Adult Day Care ...................................................................................................................................9
Social Security Administration .......................................................................................................................42, 47, 48
Social Security Disability Insurance (SSDI)...................................................................................................42, 47, 48
Society for Accessible Travel and Hospitality (SATH) ................................................................................28
Society for Disability Studies .........................................................................................................................28, 33
SPAN See: Statewide Parent Advocacy Network ........................................................................................23, 29
Special Child ..................................................................................................................................................28
Special Child, Adult Health, and Early Intervention Services (SCAHS) ......................................................10, 37
See Also: SCAHS Case Management Units ................................................................................37
Special Education Programs, Office of...........................................................................................................12, 44
Special Education and Rehabilitative Services, Office of ..............................................................................36
Special Olympics ..........................................................................................................................................31
Specified Low-Income Medicare Beneficiary (SLMB) ..............................................................................9
Spectrum for Living ........................................................................................................................................23
Spina Bifida Resource Network (formerly Spina Bifida Association of the Tri-State
Region) ..................................................................................................................................................27
Spinal Cord Injury (SCI).................................................................................................................................10, 26, 29, 33
Spinal Cord Research, Commission on ..........................................................................................................10
Sports...............................................................................................................................................................27, 28, 31
SSDI (Social Security Disability Insurance) .................................................................................................42, 47, 48
SSI (Supplemental Security Income) .............................................................................................................42, 47, 48
State ssessments, Office of .............................................................................................................................2
State, Secretary of ..........................................................................................................................................3
State Health Insurance Program (SHIP) ........................................................................................................9, 39
State Insurance Department ...........................................................................................................................39
State Medical Assistance Office ..................................................................................................................39
State Temporary Disability Benefits ...............................................................................................................13
State Treasurer, Office of the .........................................................................................................................16
Statewide Clinical Consultation and Training (SCCAT) ...............................................................................38
Statewide Emergency Food and Anti-Hunger Network..................................................................................42
Statewide Family Centered HIV Care Network .............................................................................................10
Statewide Independent Living Council (SILC) .............................................................................................19
Statewide Parent Advocacy Network (SPAN) ................................................................................................23, 29
Statewide Respite Care Program ....................................................................................................................9
Stroke/CVA .....................................................................................................................................................26, 32
Student Services, Division of .........................................................................................................................12
Substance Abuse (See: Addictions) .............................................................................................................6, 8, 33, 57, 62
Substance Abuse Hotline ...............................................................................................................................62
Suicide Hotline................................................................................................................................................18
Supplemental Security Income (SSI)..............................................................................................................42, 47, 48
Support Groups See: New Jersey Self-Help Clearinghouse........................................................................26, 30
T
Task Force on Child Abuse and Neglect ........................................................................................................53, 62
Taxation, Division of ......................................................................................................................................16
TBI Fund 1
TBI Waiver See:Traumatic Brain Injury Waiver............................................................................................1, 40
Technology Lending Center ...........................................................................................................................32
Telecommunications Relay Services...............................................................................................................36
76
INDEX
Temporary Disability Benefits .......................................................................................................................13
Through the Looking Glass ...........................................................................................................................28
Ticket to Work.................................................................................................................................................47, 48
Total Living Center, Inc. (TLC) ......................................................................................................................19
Tournament of Champions ............................................................................................................................31
Transportation, Department of .......................................................................................................................3
Transportation Security Administration (TSA)...............................................................................................60
Traumatic Brain Injury See: Head Injury/Traumatic Brain Injury..............................................................1, 2, 4, 24, 32, 40
Traumatic Brain Injury Advisory Council ......................................................................................................2
Traumatic Brain Injury Fund .........................................................................................................................1
Traumatic Brain Injury Waiver .......................................................................................................................1, 40
Traveling with a Disability .............................................................................................................................28, 60
Treasury, Department of..................................................................................................................................3, 16
Tri-County Independent Living Center, Inc....................................................................................................19
U
Unemployment Insurance ..............................................................................................................................13
United Cerebral Palsy of Hudson County .....................................................................................................22
United Cerebral Palsy of Northern, Central, and Southern NJ, Inc ...............................................................22
United Spinal Association (Formerly EPVA) ................................................................................................29
Universal Service Fund ...................................................................................................................................42
Utility Assistance ............................................................................................................................................9, 42
V
ValueOptions ..................................................................................................................................................54, 62
Veteran’s Affairs, Department of ...................................................................................................................39
Veteran’s Affairs Hotline ................................................................................................................................16
Veteran’s Healthcare Services, Division of ....................................................................................................16
Victim of Crime Compensation Office ...........................................................................................................62
Visually Impaired See: Blind/Visually Impaired ..........................................................................................6, 22, 32, 33, 34, 46, 47
Vocational Rehabilitation, Division of (DVRS)..............................................................................................13, 45, 46, 47
VSA Arts of New Jersey ................................................................................................................................31
W
Waivers ............................................................................................................................................................1, 40
Weatherization See: Housing......................................................................................................................49
Wheelchair Lemon Law .................................................................................................................................15, 34
WIC See: Special Supplemental Nutrition Program for Women, Infants, and Children ..............................10, 37
Wired on Wheels ............................................................................................................................................28
WorkAbility .................................................................................................................................................2, 47, 48
Work Incentives Improvement Act ................................................................................................................35, 48
See also: Ticket to Work ..........................................................................................................47, 48
Worker’s Compensation, Division of .............................................................................................................13
Workforce NJ ..................................................................................................................................................13
See also: One-Stop Career Centers..........................................................................................46
Women, Division on........................................................................................................................................11
Women’s Health .............................................................................................................................................4, 21
Women’s Referral Hotline ..............................................................................................................................11, 62
Y
Your ReSource ................................................................................................................................................32
Youth and Family Services, Division of (DYFS) ...........................................................................................14, 53, 54, 62
77
Published by the
New Jersey Department of Human Services
Division of Disability Services
PO Box 700
Trenton, NJ 08625-0700
April 2009
Ninth Edition
Honorable Jon S. Corzine, Governor
Jennifer Velez, Commissioner Department of Human Services
William A.B. Ditto, Director Division of Disability Services
Javier Robles, Deputy Director Division of Disability Services
Joseph M. Amoroso, Editor/Administrator of Information and Assistance Services
Marlene L. Hester, Managing Editor/Supervisor of Information and Referral Services
Timothy Grill, Editorial Assistant/Information and Referral Specialist
Jayme Hansbury-D’Souza, Editorial Assistant/Information and Referral Specialist
Luz Hernandez, Editorial Assistant/Information and Referral Specialist
Produced by DHS Office of Publications