Center for Health Care & Policy Research CREATING AND DISSEMINATING NEW SCIENTIFIC KNOWLEDGE TO HELP DECISION-MAKERS DEVELOP COST EFFECTIVE SERVICES AND PROGRAMS THAT IMPROVE PEOPLE'S HEALTH. Outline Problems that CHCPR researchers focus on (using science to improve practice and policy) Example of one large project (AF4Q) as an illustration of the types of work in CHCPR A bit about CHCPR and where we are headed Potential opportunities for collaboration with the Prevention Center and its affiliates Discussion Problems to Address High Costs ◦ Over $8,000 annually per capita ◦ $16,351/family or $5,429/individual policy Unequal Access ◦ Uninsured and Underinsured ◦ Disparities Asymmetric Information ◦ Available information on price/costs, quality/safety ◦ Slow to incorporate the advantages of IT Distorted Incentives ◦ Supply Side – fee based reimbursement (over/underutilization) ◦ Demand Side – third party insurance (overutilization) Problems to Address (cont.) Short-Term/Acute Care Focused ◦ Specialty vs. Primary/Preventive Care Fragmented Delivery Systems ◦ No accountable entity for patients ◦ Efficiency not rewarded (sometimes penalized) Special Interests ◦ Big business at 17% of GDP Heavily Regulated While Unabashedly Capitalistic ◦ Seeking innovation while maintaining entitlements 5 Looking Back: What We Could Have Saved if We Had Matched the Next Highest Country (Switzerland) Note: Per capita spending amounts adjusted for differences in cost of living, total U.S. savings adjusted for inflation. Source: D. Squires, The Road Not Taken: The Cost of 30 Years of Unsustainable Health Spending Growth in the United States, (New York: The Commonwealth Fund Blog, March 2013). http://forces4quality.org/about-us AF4Q Communities AF4Q Programmatic Areas Working Locally to Transform the System In each community, the alliances are using funding and TA to move quality forward at the local level, through activities in five important areas of focus: Performance measurement and public reporting: using common standards to measure the quality of care doctors and hospitals deliver to patients, and making that information available to the public. Payment Reform Consumer engagement: encouraging patients to be active and effective managers of their health care. Quality improvement: implementing techniques and protocols that doctors, nurses and staff in hospitals and clinics can follow to raise the level of care they deliver to patients. Reducing Disparities AF4Q Evaluation Goals Provide inferences about the effect of the AF4Q program as a whole and specific cases Identify key lessons about AF4Q program design, implementation, and effectiveness Expand the knowledge base around community level health improvement strategies and the collaborative/multi-stakeholder approach Evaluation Approach Start with logic model or “theory of change” Identify specific research questions Build data collection and analysis plans based on the logic model ◦ quantitative, qualitative and mixed methods ◦ formative and summative components Account for time – significant change evolves rather than happens instantly Apply a standard of “proof” or “evidence” consistent with what the program evaluation field demands Disseminate formative and summative findings to target audiences AF4Q Logic Model 5 Overarching Research Questions 1. Are AF4Q communities able to develop and sustain a community-wide infrastructure to achieve high quality and affordable health care? 2. Does transparency about health care quality and costs increase in AF4Q communities relative to non-AF4Q communities? 3. Does the level of consumer engagement increase more in AF4Q communities relative to nonAF4Q communities? 4. Does the AF4Q program yield improved levels of health care quality in participating communities relative to non-AF4Q communities? 5. Do health care disparities decrease in AF4Q communities relative to non-AF4Q communities and do the local health care systems promote and support a culture of equity? Common QI Evaluation Questions Did ‘it’ (the program or policy) work? Did the program happen? ◦ If so, what was the effect size? ◦ What was the dose? ◦ What mechanism(s) led to the effect? ◦ Did it vary across sites/markets and if so why? ◦ If not, why didn’t it work? In which context and under what conditions did it work? Should any changes be made to the program or to the initial theory of change? Can it be spread? Under what conditions? Data Sources for the AF4Q Evaluation Tracking ◦ Systematic tracking of Alliance activities and relevant health information and activities in the Alliances’ communities ◦ e.g., availability of public reports, CE activities and state policy proposals Key Informant Interviews ◦ In person site visit interviews with multiple stakeholders ◦ Phone interviews ◦ Over 1,000 to date Surveys ◦ Consumer survey ◦ Physician survey ◦ Alliance Survey Secondary Data ◦ Dartmouth Atlas ◦ BRFSS ◦ H-CAHPS ◦ Area Resource File ◦ Others Alliance Tracking Alliance Tracking Alliance Survey Alliance Survey Secondary Data Sources Key Informant Interviews Key Informant Interviews Physician Survey Consumer Survey Alliance Tracking Alliance Survey Key Informant Interviews Key Informant Interviews Alliance Tracking Key Informant Interviews Secondary Data Sources Consumer Survey Types of Analyses/Evidence Descriptive – describe and measure the activities (interventions) of the “alliances” ◦ Single case descriptions ◦ Comparative case descriptions Conceptualization – Develop models for new concepts and measurement of these concepts ◦ E.g., “QI Infrastructure”, “Alignment”, and “Consumer Engagement” Document trends on key outcomes and associate changes in outcomes with interventions o For program as a whole and communities individually Assess causality – test whether changes in outcomes happened due to AF4Q ◦ Involves some sort of “control” strategy ◦ Not simple AF4Q Evaluation Multiphase Design Also referred to as Methodological Triangulated Design Sub designs (e.g., exploratory sequential) with independent methodological integrity to study various programmatic areas ◦ ◦ ◦ ◦ ◦ ◦ Performance Measurement and Public Reporting Consumer Engagement Quality Improvement Disparities Reduction Governance Cross-cutting Topics (alignment, payment reform, etc.) Complimentary to each other to attain goals of overall research design Stages of Evaluation Summative Evaluation (2013-2016) Formative/ Summative Transition Formative Evaluation (2007-2009) Evaluation Development (2006-2007) • Regional Market Pilot Evaluation Conducted • AF4Q Evaluation Plan Developed • AF4Q Evaluation Proposal Submitted and Funded • Initial Key Informant Interview, Alliance Survey, and Consumer Survey Instruments Developed • AF4Q Logic Model Developed •PR Tracking Summaries Disseminated •Alliance Survey Baseline and Round II Reports Disseminated to Communities •Consumer Survey Round I Reports Disseminated to Communities •Community Snapshots Disseminated to Communities •Physician Survey Baseline Reports Disseminated to Communities •1 Paper Published (2010-2013) • Outcomes Measures Defined • Midterm Report Provided to RWJF • 30 Papers Published, Including AJMC Special Issue •AF4Q Impact Report Provided to RWJF (2015) •Presentation of Findings and Dissemination Strategy Planning Conducted with RWJF, NPO and AF4Q Communications •Presentation of Findings Conducted at AF4Q National Meeting (2015) •Other Presentations Conducted Upon Invitation • 35 Presentations Given •Comprehensive AF4Q Journal Issue Published (2016) • 4 Research Summaries Published •AF4Q Research and Evaluation Conference Held • Alliance Survey Round III Reports Disseminated to Communities •Consumer Survey Round III Reports Disseminated • Consumer Survey Round II Reports Disseminated to Communities •Physician Survey Rounds II and III Reports Disseminated •Alliance Survey Rounds IV and V Reports Disseminated •30 Presentations Given •Approximately 8 Research Summaries Published •5 Research Summaries Published •Approximately 30 Papers Published Common Evaluation Challenges Ambition level of program sponsor (“stretch goals”) External validity Measurement of key program concepts Lack of cooperation from program stakeholders Few degrees of freedom Program sponsor does not ‘stick with it’ Spillover and temporal trend (e.g., Hitech and ACA) Degree to which program “must be successful” and power of the local anecdote or the PR firm Variation in intervention strength (fidelity) and attribution Adequacy of resources relative to program size (scale) Summarizing across multiple measurements Being a team player and academic home valuation Appropriate time horizon to observe expected impact How Can CHCPR Help? Getting Research Funded Getting Research Done Promoting Learning to Strengthen Research How Can CHCPR Help? Getting Research Funded Identifying Funding Opportunities Conduct Individualized Funding Searches Connect Researchers Getting Research Done Promoting Learning to Strengthen Research Developing & Submitting Proposals Organize Proposal Timelines Create Budgets Prepare Proposal Content How Can CHCPR Help? Getting Research Funded Getting Research Done Managing Finances Strategic Budgeting Financial Compliance & Fiscal Responsibility Day-to-Day Purchasing & Accounting Subcontract/Consultant Administration Promoting Learning to Strengthen Research Payroll Management & Human Resources How Can CHCPR Help? Getting Research Funded Doing Research Staffing a Project Getting Research Done Managing Research Projects IRB Compliance & Data Security Collecting & Analyzing Data Promoting Learning to Strengthen Research Using Technology & Facilities Qualitative Data Services Develop key informant interview protocols Schedule and conduct telephone and in-person key informant interviews; our team has scheduled and conducted more than 1,000 key informant interviews Track and monitor project activities, collect documentation data and maintain extensive information databases to inform project research and evaluation Manage digital voice audio files and transcripts, including coordination with transcription firms Develop codebooks and code data using popular qualitative software packages Analysis of qualitative data using various techniques Quantitative Data Services Experience with web, mail, and telephone surveys Design and develop survey instruments Manage coordination with external survey vendors Identify and obtain publicly available and restricted use secondary data sources Analyze survey data using SPSS, SAS, and Stata — including linear and nonlinear regressions, summary statistics, and creating graphs for visual analysis How Can CHCPR Help? Getting Research Funded Getting Research Done Generating Visibility & Creating Impact Identifying & Understanding Research Audiences Communicating & Promoting Findings Promoting Learning to Strengthen Research Gathering User Feedback How Can CHCPR Help? Getting Research Funded Keeping Current in Health Services Research Health Services Research Colloquium Workshops & Conferences Getting Research Done Research Training for Students Developing Professional Networks Promoting Learning to Strengthen Research Access to Data Sets & Professional Services Catalyzing Research Collaborations Funding Opportunities Let’s Partner! DE N NIS S C A N LON – DXS 6 2@PSU.EDU CHE L S EA LUN D ERS – CK L 1 6 @ P SU.EDU B R I G I T T L E I T ZEL L – B J H 1 5 6 @PSU.ED U