R o y a

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Royal College of Nursing
Research Institute
Warwick Medical School
University of Warwick
Sixth Annual Report
1st August 2012 to 31st July 2013
1
Contents
Page
Director’s Message
3
Summary of Progress
5
List of Publications
7
List of Current Research Grants
10
List of Conference Presentations/Attendance
13
List of Research Seminars/Journal Clubs
16
Peer Esteem
17
Staff Development
19
Appendix I - Joint Advisory Board Constitution
20
All photos by Paul Kent
2
Director’s Message
Our strategic alliance between the University of Warwick and the Royal College of Nursing
(RCN) has continued to strengthen during the sixth year of our partnership. We have
worked hard with the RCN to ensure we help the RCN deliver its strategic objectives.
We have had some major changes over the past year. In February 2013 we became part of
Warwick Medical School and moved to the Medical School site in April 2013. We would
like to thank all of our colleagues from our previous home, the School of Health and Social
Studies, for their collegiality during the productive five years we spent with them. The
School of Health and Social Studies has now been disestablished, with most of those doing
health related research moving to Warwick Medical School. We have been made to feel
welcome by colleagues at the Medical School, and were already collaborating with many
of them, so the move has strengthened these collaborations and facilitated new ones.
We have been very productive over the past year; both with papers published and grant
income, as our annual report shows. Our working environment is very important to all of
us in the RCN Research Institute. We continue to aim to demonstrate collegiality,
integrity, fairness and respect within a supportive and challenging environment.
We value a collaborative inclusive approach to our research. We have been working with a
range of national and international experts including academics, health care professionals
and users of services as together we can deliver on a dynamic and exciting research
agenda.
Thank-you to everyone in the RCN Research Institute for their dependability, passion for
excellence, and for their support. I always know you will work hard to meet the
challenges our work presents, and will do so with good grace.
I would also like to thank everyone who has supported and challenged us throughout the
year. Janet Davies, Director of Nursing and Service Delivery and Steve Jamieson, Head of
Nursing, at the RCN, and Professor Martin Underwood & Professor Aileen Clarke at the
University of Warwick deserve special mention as their support and challenge has helped
us develop. Our Joint Advisory Board members have been generous with their time and
asked questions that have made us think, and this has helped us refine and extend our
research, and kept us on track. Some of our Joint Advisory Board members will complete
their term on our Board at our November 2013 meeting, so a special thank-you to them
for their really constructive contributions.
3
We look forward to 2013-14 and all it will bring. We will be keeping our qualities of
academic rigour, professionalism, collaboration and resilience firmly at the front of our
minds as we meet these challenges.
Professor Kate Seers
Director, RCN Research Institute
October 2013
4
Summary of Progress
Ongoing Research
RCN RI research is organised around three themes; patient & public involvement and patient &
nurse experiences; patient reported outcomes; and translating knowledge into practice. Our
website has more details: http://www2.warwick.ac.uk/fac/med/research/hscience/rcn/research
All ongoing research is within budget and agreed timeframes. All annual or final reports submitted
as required by funders are either under review or have been accepted.
Publications
The Research Excellence Framework has been a focus over the past year and staff have been
productive, with 29 papers published in 2012-2013. Our work is also highly cited, with levels of
career citations being described as good, very good or excellent for 62 of our publications and of
those citation rates for six are described as “exceptional”.1
Grants
We have been successful in generating grant income, with ten externally funded grants running
during the period of this report. We continue to work collaboratively on grant applications
nationally and internationally, and health professionals and users of services are important
collaborators on these grants.
Measures of Esteem
Members of the RCN RI have a variety of measures of external esteem, including membership of a
Research Excellence Framework panel, editorial board membership, invited plenary lectures,
invited national and international scientific committees, contribution to national policy initiatives
and contribution to the academic community via external examining, especially at PhD level.
PhD Students
It has been an exciting year with many interesting studies underway. The PhD students who had
started with us in the School of Health and Social Studies continue under those regulations. All
new PhD students starting with us are now registered under Warwick Medical School regulations.
Strategic Alliance
The strategic alliance between the RCN and the University of Warwick is developing really well.
We are delighted to be able to continue this relationship, and the progress of the strategic
alliance is reviewed by our Joint Advisory Board.
Newsletter
Our newsletter continues to be published quarterly. It provides key messages from our activity and
is disseminated widely as well as being on our website.
Other developments
Our research strategy is continually updated, in collaboration with all members of the RCN RI. We
will continue to work towards more programmatic funding rather then individual grants to
increase the sustainability of the unit. We have a range of strategic collaborations both nationally
and internationally.
1
Hack TF, Crooks D, Plohman J & Kepron E. (2010) Research citation analysis of nursing academics in
Canada: identifying success indicators. Journal of Advanced Nursing 66(11):2542–2549.
5
Contribution of RCN RI to the University
Up until February 2013 RCN RI staff attended the Graduate Research Committee and the school
meeting in the School of Health and Social Studies (SHSS). Professor Seers was part of the School
of Health and Social Studies (SHSS) executive team, Director of Research for SHSS and was
Professor Responsible for the department from April 2012. She also attended faculty research
directors’ meetings and was part of a Research Excellence Framework working group. In addition
she was appointed investigating officer in SHSS for a university issue. Professor Seers and Dr
Hayward were part of the Faculty of Social Sciences Board. Dr Staniszewska was Director of
Graduate Studies (continuing students) for SHSS, chaired the Graduate Research Committee and
was Research Staff Member of the Staff-Student Liaison Committee. She remains Member of the
Advisory Group for Global Prioritise Programme (Health and Technology) and was Departmental
Representative for ESRC Doctoral Training Centre Board. Dr Mockford was a representative on the
Research Staff Forum for SHSS and Deputy Representative for the Forum on the University’s
Research Committee. Ms Kennedy was the School’s First Aider and Mr Kent was the school’s Fire
Marshal. The RCN RI staff also contributed as members of MPhil to PhD upgrade panels, PhD exam
advisors and internal examiners at Masters and PhD level. They also organised and contributed to
research surgeries, journal clubs and Research and Development seminars. From February 2013 Dr
Staniszewska has been a member of the WMS Research Strategy Group. Professor Seers has been a
member of the Warwick Medical School (WMS) Divisional Strategy Group and is also a mentor for
the University’s Coaching and Mentoring Scheme, a mediator, and has been appointed as
investigating officer for a University matter.
Contribution of the University to the RCN RI
RCN RI staff access an extensive programme of training and development within the University.
They have successfully applied for internal research development funding, and Institute of
Advanced Studies monies to pump prime research collaborations with international academics.
There are also many opportunities for collaboration with colleagues from a variety of
departments, and a range of seminars to attend.
Contribution of RCN RI to Royal College of Nursing
Staff have helped develop the strategic alliance with the RCN, contributing to building an
authoritative body of knowledge relevant to nursing. We work closely with RCN staff and members
on a number of issues relevant to the RCN. We have worked closely with the RCN on patient and
public involvement and a range of research related issues. The amount of team work has
increased significantly with more integrated ways of working, contributing to the work of the RCN.
Leadership
Strong strategic leadership underpins the effectiveness and culture of the RCN RI. We endeavour
to model valuing and respect of all staff as we believe this is essential for a team to function well
and to enable staff to develop to their full potential. Several staff have undertaken leadership
programmes, to ensure effective leadership at all levels. Ensuring appropriate staff development
is seen as a crucial contribution towards stability and succession planning. Professor Seers was
awarded a DSc from the University of Warwick in July 2013. This is a higher award for a sustained
and substantial contribute to scientific knowledge.
Conclusion
The RCN RI remains at the forefront of knowledge generation. It has continued to thrive at the
University of Warwick. We continue to develop research capacity relevant to nursing, including
through supervising PhD students. Healthy grant income, high quality publications, and a good
working relationship with the RCN have enhanced the strategic alliance.
6
Publications 2012/2013
Theme A – Patient and Public Involvement (PPI)
and Patient Experiences
Published/In Press
Wilson, T., Staniszewska, S. et al (2013). Consumer Involvement in health research: a UK scoping and
survey. International Journal of Consumer Studies. (In press)
Staniszewska, S., Boardman, F., Gunn, L., Palmer, J., Clay, D., Seers, K. and Brett J, Developing the
Warwick Patient Experiences Framework (WaPEF): Utilising patient-based evidence to shape clinical
guidelines. International Journal for Quality in Health Care. (In press)
Rycroft-Malone, J., Wilkinson, J., Burton, CR., Harvey, G., McCormack, B., Graham, I. and Staniszewska, S.
(2013) Collaborative action around implementation in Collaborations for leadership in Applied Health
Research and care: towards a programme theory. Journal of Health Services Research & Policy 18(Suppl.
3):13-26
Staniszewska S, Bullock I, Avital L, O’Flynn N (2013) Developing and implementing NICE Guidance on
Patient Experiences. Article in NHS Institute for Innovation and Improvement Patient Experiences
Framework. London: Department of Health http://patientexperienceportal.org/export/document/1450
Staniszewska S, Thomas V and Seers K (2013). Patient and public involvement in the implementation of
evidence into practice. Evidence Based Nursing, Epub 10.1136/eb-2013-101510
Staniszewska S, Denegri S (2013). Patient and Public Involvement in Research: Future Challenges. Evidence
Based Nursing, 16(3):69
Avital L, Carr E, Staniszewska S (2013). A summary of the development of the NICE Patient experience in
adult NHS services guidance and quality standard with a perspective of its relevance in a Canadian context.
Journal of Nursing Education and Practice, 2013, 3(9):970-74
Brett, J., Staniszewska, S., Mockford, C., Herron-Marx, S., Hughes, J., Tysall, C. and Suleman, R. (2012)
Mapping the impact of patient and public involvement on health and social care research: a systematic
review. Health Expectations, doi:10.1111/j.1369-7625.2012.00795.X
Mockford, C., Staniszewska, S., Griffiths, F., Herron-Marx, S. (2012). A systematic review of the impact of
patient and public involvement on health and social services. International Journal of Quality in Health
Care 24(1):28-38 doi 10.1093/intqhc/mzr066
O’ Flynn N, Staniszewska S (2012). Improving the experience of care for people using NHS services:
Summary of NICE Guidance. British Medical Journal 344:d6422 doi:10.1136/bmj.d6422
Staniszewska S, Brett J, Newburn M, Redshaw M (2012). The POPPY Project: Developing a model of familycentred care. World-Views of Evidence Based Nursing. DOI: 10.1111/j.1741-6787.2012.00253.x
Staniszewska S, Bullock I (2012). Can we help patients have a better experience? Implementing NICE
guidance on patient experience. Evidence Based Nursing doi:10.1136/eb-2012-100988
Staniszewska, S., Haywood, Kl., Brett, J. and Tutton, L. (2012). Patient and Public Involvement in
Patient-Reported Outcome Measures. Evolution Not Revolution. The Patient: Patient Centred Outcomes
Research, 5(2):1-9 doi i0.2165/11597150
7
Staniszewska, S., Mockford, C., Herron-Marx, S., Gibson, A. and Putz, R. (2012) Moving forward:
Understanding the negative impacts of patient and public involvement in health service planning,
development and evaluation in Critical Perspectives on User Involvement: pp129-141. Eds Barnes M and
Cotterell P Policy Press: Bristol.
Tutton, E., Seers, K., Langstaff, D. (2012) Hope in Orthopaedic Trauma: a qualitative study. International
Journal of Nursing Studies. 49(7):872-879 doi:10.1016/j.ijnurstu.2012.01.013
Tutton, E. Seers, K., Langstaff, D. Westwood, M. (2012) Staff and patient views of the concept of hope on a
stroke unit: a qualitative study. Journal of Advanced Nursing. 68(9):2061-2069. doi 10.1111/j.13652648.2011.05899
Theme B – Patient Reported Outcomes
Published/In Press
Haywood, KL., Packham, JC. and Jordan, KP. (2013) Assessing fatigue in Ankylosing Spondylitis: the
importance of frequency and severity. Rheumatology (Oxford) – Concise report. (In press).
Haywood KL, Collins S, Crawely E (2013) Assessing severity of illness and outcomes of treatment in children
with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME): a systematic review of patientreported outcome measures. Quality of Life Research.
Healey E, Haywood KL, Jordan K, Garratt AM, Packham J. (2013) Patients with well-established Ankylosing
Spondylitis show limited deterioration in a ten-year prospective cohort study. Clinical Rheumatology.
Jan;32(1):67-72
Haywood, KL., Staniszewska, S. and Chapman, S. (2012) Quality and Acceptability of patient reported
outcome measures in Chronic Fatigue Syndrome / Myalgic Encephalitis (CFS/ME): a structured review. Qual
Life Res. 21(2):35-52.
Packham, JC., Jordan, KP., Haywood, KL., Garratt, AM. and Healey EL. (2012) Evaluation of Ankylosing
Spondylitis Quality of Life questionnaire: responsiveness of a new patient-reported outcome measure.
Rheumatology (Oxford). 51(4):707-14
Rafia, R., Ara, R., Packham, J., Haywood, KL. and Healey, E. (2012) Healthcare costs and productivity
losses directly attributable to ankylosing spondylitis. Clin Exp Rheumatol 30(2):246-53
Theme C – Translating Knowledge into Practice
Published/In Press
Toye, F., Seers, K., Allcock, N., Briggs, M., Carr, E., Andrews, J., Barker, K. A qualitative systematic review
of patients' experience of chronic non-malignant pain. British Journal of General Practice. (In press)
Toye, F., Seers, K., Allcock, N., Briggs, M., Carr, E., Andrews, J., Barker, K. A meta-ethnography of
patients' experience of chronic non-malignant pain. NIHR Health Services Research and Development
Monograph. (In press)
Toye, FMA; Seers, K; Allcock, N; Briggs, M; Carr, E; Andrews, J and Barker, K (2013) ‘Trying to pin down
jelly' - exploring intuitive processes in quality assessment for meta-ethnography. BMC Medical Research
Methodology 13:46. doi:10.1186/1471-2288-13-46
Rycroft Malone, J; Seers, K; Chandler, J; Hawkes, CA; Crichton, N; Allen, C; Bullock, I and Strunin, L (2013)
The role of evidence, context and facilitation in an implementation trial: implications for the development
of the PARIHS framework. Implementation Science. 8:28 doi:10.1186/1748-5908-8-28
8
Tutton, E; Seers, K; Langstaff, D and Westwood, M. (2012) Staff and patient views of the concept of hope
on a stroke unit: a qualitative study. Journal of Advanced Nursing. 68(9):2061-2069. doi 10.1111/j.13652648.2011.05899.x
Seers, K (2012) Research Made Simple: Qualitative data analysis. Evidence Based Nursing, 15:2
doi:10.1136/ebn.2011.100352
Gunn, K., Seers, K., Posner, N, Coates V (2012) ‘Somebody there to watch over you’: the role of the family
in everyday and emergency diabetes care. Health and Social Care in the Community
20(6): 591-598 DOI: 10.1111/j.1365-2524.2012.01073.x
Rycroft-Malone, J, Seers K., Crichton, N.J., Chandler, J., Hawkes, C.A., Allen, C., Bullock, I., Strunin, L.
(2012). A pragmatic cluster randomised trial evaluating three implementation interventions.
Implementation Science. 7:80 doi 1186/1748-5908-7-80
Seers, K. (2012) What is qualitative synthesis? Evidence Based Nursing 15(4):101; doi 10.1136/eb-2012100977
Seers, K. (2012) How is evidence used in evidence based policy? Evidence Based Nursing. 15(3):65
doi:10.1136/ebnurs-2012-100810
Seers, K., Cox, K., Crichton, NJ., Tudor-Edwards, R., Eldh, A., Estabrooks, CA., Harvey, G., re Hawkes, C.,
Kitson, A., Linck, P., McCarthy, G., McCormack, B., Mockford, C., Rycroft-Malone, J., Titchen, A., &
Wallin, L., (2012) FIRE (Facilitating Implementation of Research Evidence): a study protocol.
Implementation Science 7: 25 doi:10.1186/1748-5908-7-25
Seers, K., (2012) Research Made Simple: Qualitative data analysis. Evidence Based Nursing, 15:2
doi:10.1136/ebn.2011.100352
Seers, K., Toye, F. (2012) (Editorial) What is quality in qualitative research? Evidence Based Nursing, 15:1
doi: 10.1136/ebn.2011.100268
9
Current Research Grants – August 2012-July 2013
Funder/Title
PI
Amount
Co-Investigators
Dates
Funder/Title
PI
Amount
Co-Investigators
Dates
Funder/Title
PI
Amount
Co-Investigators
Dates
Funder/Title
PI
Amount
Co-Investigators
Dates
Funder/Title
PI
Amount
Co-Investigators
Dates
Funder/Title
PI
Amount
Co-Investigators
Dates
NIHR Collaborations for Leadership in Applied Health Research & Care (CLAHRCs).
CLAHRCs are collaborative partnerships between a university and the surrounding
NHS organisations, focused on improving patient outcomes through the conduct and
application of applied health research.
Lilford & Currie
£10M
Large team, at Warwick Medical School (WMS) lead by Clarke & at Warwick Business
School (WBS) by Currie. Seers, Staniszewska
January 2014 for 5 years
NIHR HTA - Facet Feasibility Study: Facet-joint injections for people with persistent
non-specific low back pain
Underwood (WMS)
£447K
Large Team, Kirstie Haywood co-applicant (total 11 co-applicants)
July 2013-October 2015
NIHR HS&RD - Absorptive Capacity - Improving the Absorptive Capacity (ACAP) of
Commissioning Networks for Critical Review of Evidence to Reduce Unplanned
Elderly Care Admissions into Acute Hospitals
Currie (WBS)
£500K
Sophie Staniszewska
June 2013-May 2016
The use of PROMs in clinical practice: Patients and health professionals’
perspectives - A systematic review of qualitative studies.
NIHR funding: Part of a larger project: Valderas JM, Improving the management of long
term conditions with the clinical use of Patient Reported Outcome Measures (PROMS) in
Primary Care
Valderas (Oxford)
£996K
Kirstie Haywood, Gonçalves, Ricci-Cabello, Atherton
September 2012 (12 months)
WHITE study - NIHR Programme Development Grant – Improving outcomes for
patients with fracture of the proximal femur
Costa (WMS)
£99K
Kirstie Haywood (total 13 co-applicants) Griffin, Griffiths, Parsons, Achten, Petrou,
Fitzpatrick, Boardman.
January 2012 (12 months)
Chartered Society of Physiotherapy Research Foundation - Recommendations for
exercise adherence measures: Findings from a systematic review and consensus
workshop
Sionnadh Mclean (Sheffield)
£75K
Kirstie Haywood (co-applicant)
April 2013-May 2014
10
Funder/Title
PI
Amount
Co-Investigators
Dates
Funder/Title
PI
Amount
Co-Investigators
Dates
Funder/Title
NHS Service Delivery and Organisation. ECLIPS: Evaluating CLAHRCs Impacts and
Process
Rycroft-Malone (Bangor)
£592K
Staniszewska, McCormack, Dopson and Thompson
January 2010 for 54 months
European Commission FP7. Facilitating the Implementation of Research Evidence
(FIRE)
Seers
€3M
Harvey, Rycroft-Malone, McCormack, Titchen, Cox, Wallin, McCarthy
January 2009 for 48 months (6 month extension to June 2013)
Dates
NIHR/INVOLVE - RAPPORT Study: Public involvement in research: a realist evaluation
of approaches, processes and outcomes
Wilson (Herts)
£306K
Kendall, Goodman, Cowe, Munday (Herts) Peckham (LSHTM) Howe, Poland (Norwich)
Staniszewska (Warwick)
September 2011 for 30 months
Funder/Title
PI
Amount
Co-Investigators
Dates
NIHR Funded - New models of patient experience
Graham (Picker)
£499K
Fitzpatrick, Cornwell, Coulter, Jenkinson and Staniszewska
February 2012-February 2014
Funder/Title
Royal National Hospital for the Rheumatic Diseases – Donated Research Funds.
Patient Reported Outcome Measures for Paediatric CFS/ME: a qualitative study
Kirstie Haywood and Crawley (Bristol)
£6K
PI
Amount
Co-Investigators
PI
Amount
Co-Investigators
Dates
Funder/Title
PI
Amount
Co-Investigators
Dates
Funder/Title
PI
Amount
Co-Investigators
Dates
May-July 2012
NIHR HTA - Wound management in lower limb injury (WOLLF) - A RCT of standard-ofcare wound management versus negative pressure wound therapy in the treatment
of adult patients with open fracture of the lower limb
Costa (WMS)
£2.4M
Acten, Lamb, Willett, Stavros, Gates, Griffin, Tutton (qualitative element of feasibility
study 0.2 FTE)
July 2012 for 5 years
Economic and Social Research Council Seminar Series - Nursing and Social Science To consider what social science perspectives can contribute to nurse education.
(Warwick Seminar on “The Importance of Culture to Nursing” - July 15th 2014)
Atherton (Sheffield)
£20K
Seers, Roberts, Haw, Timmons
January 2014-July 2016
11
Funder/Title
PI
Amount
Co-Investigators
Dates
Funder/Title
NIHR Research for Patient Benefit - Carer and patient-led development of
recommendations for people with dementia returning home from hospital:
understanding what is important
Mockford
£241K
Seers, Staniszewska, Oyebode, Suleman, Clarke, Pickett (replaced by Murray)
January 2014 for 24 months
PI
Amount
Co-Investigators
Dates
DH Policy - Infectious Disease Dynamic Modelling in Health Protection (Life Sciences
and Mathematics)
Matt Keeling
£1.2M
Sophie Staniszewska
June 2013 for 60 months
Funder/Title
PI
Amount
Co-Investigators
Dates
RCN - Ward Sister Supervisory Study
Seers
£9.5K
Watterson and Currie (RCN)
November 2013 for 18 months
12
RCNRI Staff - Conferences Attended and Papers
1 August 2012 - 31 July 2013
Date
Sep 2012
Conference Title
Attendees
Patient Experiences: Quality Standard and Beyond Conference,
London
Sophie Staniszewska
Invited Conference Chair and Keynote Speaker: Implementing the
NICE Guidance on Patient Experiences
Oct 2012
International Society for Quality of Life Research (ISOQoL),
Budapest
Kirstie Haywood
Workshop: Do Patient Reported Outcome Guidelines for Routine
Clinical Practice Matter? Government, industry and patient
perspectives (Quality of Life in Clinical Practice Special Interest
Group)
Nov 2012
Southampton NHS Trust Clinical Effectiveness Conference,
Southampton
Sophie Staniszewska
Invited Keynote Speaker: Developing and Implementing NICE
Guidance
Nov 2012
INVOLVE Conference, Nottingham
Sophie Staniszewska
Paper: Developing the GRIPP Guidance for reporting patient and
public involvement
Feb 2013
International Conference on Pain and Impaired Cognition
(PAIC), Dresden
Kate Seers
Invited Plenary Speaker: European Collaborative Working Group
on Pain Assessment in persons with cognitive impairment
Paper: Implementation of research results into practice in pain
management
Feb 2013
Patient Experiences Conference, Manchester
Sophie Staniszewska
Invite Chair and Keynote Speaker: Developing and Implementing
NICE Patient Experiences Guidance
13
Mar 2013
RCN International Nursing Research Conference, Belfast
Workshop: Facilitating Implementation of Research Evidence
(FIRE)
Paper: Interviews with service users in randomised controlled
trials – trials and tribulations
Paper: What matters to patients? A qualitative exploration of
important outcomes following fragility hip fracture (Pro-hip)
Kate Seers
Liz Tutton
Kirstie Haywood
Sophie
Staniszewska
Jo Brett
Presentation: HIPEX: ‘Slipping into the Pantaloon Phase’: patient
experience of having a hip fracture (JB)
Presentation: ProHIP: What’s important to patients following
fragility hip fracture? A qualitative exploration of outcomes (KH)
Mar 2013
Health and Social Care Conference, London
Carole Mockford
Apr 2013
British Pain Society Annual Scientific Meeting, Bournemouth
Kate Seers
Poster: Nurse/patient assessment of pain. Concordance.
Systematic review.
Poster: Metaethnography of chronic musculoskeletal pain.
Poster: Metaethnography of chronic pelvic pain.
Workshop: What can we learn from a meta-ethnography of chronic
non-malignant musculoskeletal pain. Paper: Qualitative systematic
reviews: different approaches and methodological challenges
May 2013
1st World Congress on Pelvic Pain, Amsterdam
Paper: Struggling to construct chronic pelvic pain as real - A
qualitative synthesis of patients’ experience
May 2013
NICE Annual International Conference, Birmingham
Karen Barker for
the metaethnography team
Sophie
Staniszewska
Invited Speaker and Paper: Implementation of NICE Patient
Experiences Guidance
Jun 2013
HTAi Annual International Conference, Seoul
Sophie
Staniszewska
Workshop and Paper: Capturing and measuring the impact of
patient and public involvement in HTA: Current practice and
future evidence base
Workshop and Paper: Introducing qualitative research on the
patient perspective
Paper: Developing a model of public involvement for the NICE
patient Experiences Guideline and Quality Standard
Paper: Including stakeholder voices in deliberative methods (minipublics) for HTA decision-making. An art of science?
14
Jun 2013
COMETinitiative (Core Outcome Measures for Effectiveness
Trials), Manchester.
Kirstie Haywood
Poster: Towards a core outcome set for hip fracture trials: results
of a consensus meeting.
Poster: A protocol for the development of a core outcome set
(COS) for cardiac arrest clinical trials.
Jun 2013
NASS (National Ankylosing Spondylitis Society) Patient
Conference, Birmingham.
Kirstie Haywood
Invited speaker: AS and Fatigue: management and measurement.
Jul 2013
Institute of Advanced Studies – Patient Reported Outcomes
Workshop, University of Birmingham
Kirstie Haywood
Invited speaker: Patient and Public Involvement in Patient
Reported Outcomes Research
15
RCN RI Research & Development Seminars 2012/2013
Date
R&D Seminars
Title
Journal Club
4 Oct 12
Top Tips on Leadership – Lessons
from Ashridge and Windsor
Leadership Trust
(Prof Kate Seers)
Barber, R; Boote, JD; Parry, GD; Cooper, CL;
Yeeles, P and Cook, S (2010) Can the impact of
public involvement on research be evaluated? A
mixed methods study, Health Expectations, 15:
229-241
8 Nov 12
EQUATOR – Enhancing Quality and
Transparency of Health Research
(Iveta Simera, Head of programme
Development, EQUATOR Network)
Collaborative Communication – the experiences
of collaboration on a EU (FP7) Research Project
(Deirdre Kennedy, Project Manager, FIRE
Project, RCN RI)
6 Dec 12
Meta-ethnography of chronic nonmalignant pain: findings and
conceptual map
(Pof Kate Seers)
Williamson, PR; Altman, DG; Blazeby, JM;
Clarke, M; Devane, D; Gargon, E and Tugwell, P
(2012) Developing core outcome sets for clinical
trials: issues to consider, Trials 13:132
7 Feb 13
NIHR Horizon Scanning Centre –
Informing Research and Health
Service Guidance
(Dr Sue Simpson, Associate Director,
NIHR NSC, University of Birmingham)
Ham, C (2013) Developing integrated care in
the NHS: adapting lessons from Kaiser; Health
services Management Centre, School of Public
Policy, University of Birmingham
7 Mar 13
Using Weiss Framework to look at the
history of evidence and policy on
Patient and Public Involvement in
research
(Prof David Evans, University of the
West of England)
Sandelowski, M and Leeman, J (2012) Writing
Usable Qualitative Health Research Findings,
Qualitative Health Research 22(10) 1404-1413
2 May 13
Using the capabilities approach to
research mental health adult
community learning
(Dr Lydia Lewis, University of
Wolverhampton)
Salmela, S; Eriksson, K and Fagerström, L
(2013) Nurse Leaders’ Perceptions of an
Approaching Organizational Change, Qualitative
Health Research, 23(5) 689-699
6 Jun 13
An exploration of the contribution of
nurses’ and care assistants’ to
patients’ mobility rehabilitation’ – a
grounded theory study
(Dr Rosie Kneafsey, Senior Lecturer
in Adult Nursing, Coventry
University)
The functioning of social systems as a defence
against anxiety – a report on a study of the
nursing service of a general hospital, Isabel
Menzies Lyth, 1959
16
Peer Esteem 2012/2013
Jo Brett
 ESRC studentship funding for her PhD
 Member of Interpretative Phenomenology Analysis Group, Oxford (sub group of British
Psychological Society Yahoo Group)
Kirstie Haywood
 Associate Editor Quality of Life Research (starts September 2012)
 Editorial Board Musculoskeletal Care from 2002-date
 Invited panel member Department of Health funded Policy Research Unit in Quality and
Outcomes of Patient Centred Care (QORU) seminar April 2012
 Member of the DH Patient Reported Outcome Measures (PROMs) Programme Stakeholder
Reference Group. January 2010-date.
 Invited participant, ARUK Musculoskeletal PROM initiative (M-PROM) July 2012
 Invited panel member and speaker at the European Haematology Association Scientific
Working Group meeting ‘Quality of Life and Symptoms’. Budapest, Hungary. October 2012.
 Co-Chair Clinical Practice Special Interest Group, International Society for Quality of Life
Research (ISOQoL). 2011-date.
 Founding member of the Patient Engagement Special Interest Group, ISOQOL. 2013-to
date.
 Committee member, International Society for Quality of Life Research (ISOQoL). 2011 Invited participant at the COMET (Core Outcome Measures in Effectiveness Trials) initiative
meeting. Manchester, 2013.
Deirdre Kennedy
 Co-founded the Projects in Progress (PiP) group for project managers and Principal
Investigators with current (or applying for) EC funded research. From March 2012
 Developed a workshop to promote the network and an on-going series of meetings and
training events aimed at project managers from the University of Warwick, July 2012
Carole Mockford
 Representative on the Research Staff Forum for the School of Health and Social Studies
 Research Staff Forum Representative on the University’s Main Research Committee
 Member of Researcher Network, Learning and Development Centre to September 2011
 Associate member of Health Services Research and Development Board
Kate Seers
 NIHR Health Services Research and Development Commissioning Board 2009-2014
 Invited by the International Association for the Study of Pain (IASP) to serve as a member
of the Scientific Program Committee (SPC) for 14th World Congress on Pain 2012
 Invited member of scientific committee for British Pain Society Annual Scientific Meeting
2012 and 2013
 PhD external examiner PhD University of Melbourne and University of Manchester
 Feedback editor for Cochrane Pain, Palliative & Supportive Care Group (PaPaS) 2009 EBN associate editor – renewed appointment 2010, continued until September 2012
 Pain – associate editor
 Mentor for Academy of Nursing, Midwifery and Health Visiting 2009-
17




Selected as one of five best presented posters at the 2012 Pain Society Annual Scientific
Meeting
Invited expert for application to Canadian Institute of Health Research Knowledge
Translation Award.
Barbers’ Company Clinical Nursing Scholarship – shortlisting and interview candidates from
1995-date
Invited member of Clinical Local Research Network Board for West Midlands
Sophie Staniszewska
 Member of REF 2014 Panel 2A Public Health Services and Primary Care
 Invited member of NICE Internal Methodology Research Committee 2011 to date
 Invited member of Health Technology Assessment International Citizen and Patient
Involvement Group Steering Group. 2009-date
 Invited member and co-chair of National Institute of Health Research Clinical Research
Network Patient and Public Involvement Group 2009-date
 Member of invoNET, INVOLVE – an international collaborative network for user involvement
in research. 2005-2012
 Methodological advances in the use of patient based evidence. NICE methodology review
workshop
 PhD internal examiner University of Warwick
 Editorial Board Committee member of International Journal for Quality in Health care
 Editorial Board member The Patient: Patient Centred Outcomes Research
 Associate member of Health Services Research and Development Board
 Invited participant Improving Patient Experience Workshop, led by Neil Churchill, NHS
England Director of Patient Experiences, September 2013.
 Invited key note for Southampton NHS Trust Conference on NICE Patient Experiences
Guidance and Quality Standard Conference, October 2012
 Invited presentation at National Centre for Public Engagement Annual Conference, Patient
and Public Involvement in Health Research Theme, Nov 2012.
 Invited presentation on PPI workshop at Manchester CLAHRC.
 Peer Reviewer for Health Foundation Research Programme 2013.
 Invited Chair and speaker for HealthCare Events Conferences on Patient Experiences (Nov
2012, June 2013)
 Invited speaker, Patient and public Involvement in NICE Seminar, September 2013.
 Advisory group member of MRC funded study developing a framework for evaluating PPI.
(Lead: Prof Jenny Poppay)
 Advisory group member of NIHR/INVOLVE funded study – a realist evaluation of PPI. (Lead:
Prof David Evans, UWE).
 Invited participant: Health Foundation Expert Round Table on the “Enabling people to live
well” report September 2013.
Liz Tutton
 National Institutes for Health Research for Patient Benefit South Central Funding board
member. May 2010  International Advisory Board Journal of Orthopaedic and Trauma Nursing July2009 –
 PhD Internal Examiner, University of Warwick
18
Staff Development 2012/13
Prof Kate Seers

Windsor Leadership Trust. Women in leadership. Tackling progression. Part II. 2 days
March 2013.
Sophie Staniszewska

Warwick Leadership Programme 2013
Dr Kirstie Haywood

Research Team Leaders Programme, Warwick University
- February 2013-April 2013.
Dr Liz Tutton

Trauma Orthopaedic Research Collaboration meeting, Frenchay Hospital, Bristol
– September 2012.

NIHR Trials in Orthopaedic Trauma, AIM, DRAFFT, WOLLF Joint Collaborators
Conference, London – September 2012

Trauma Orthopaedic Research Collaboration meeting, Kadoorie Centre, Oxford
– May 2013.
Dr Carole Mockford
 Working internationally on qualitative data analysis, learning about realistic evaluation
Jo Brett

IPA Training Workshop, London – December 2012
Deirdre Kennedy

Disability Awareness Training

Sitebuilder and Access courses
Paul Kent
•
HABC Level 3 Award in Preparing to Teach in the Lifelong Learning Sector
– January 2013
•
HABC Level 3 Award in First Aid at Work
•
Qualified Instructor/Assessor First Aid at Work
•
Level 3 Certificate for Compliance Training Instructors
•
HABC Level 3 Award in Supervising Food Safety in Catering
•
HABC Level 3 Award in Health and Safety in the Workplace
•
HABC Fire/Manual handling Seminar
•
Division of Health Sciences Administrative Staff Awayday – July 2013
Claire New
•
Division of Health Sciences Administrative Staff Awayday – July 2013
19
Appendix I
CONSTITUTION
Joint Advisory Board
Royal College of Nursing Research Institute (RCN RI)
Warwick Medical School
University of Warwick
The Royal College of Nursing Research Institute (RCN RI)
The RCN RI was formerly the Research Team at the Royal College of Nursing Institute from 19962007. When the RCN wished to develop a strategic alliance with another Higher Education Institute
to enhance its ability to deliver high quality research, the University of Warwick was successful in its
bid to be the RCN’s strategic alliance partner for research. The RCN RI has been a Research Centre
at the University of Warwick since 1st August 2007, moving to be based within Warwick Medical
School on 1 February 2013.
Aims of the RCN Research Institute
The RCN RI is committed to staying at the leading edge of research in our specialist areas via
national and international inter-disciplinary collaboration. Specifically we aim to:
1. Produce high quality research that improves patient care and impacts on policy.
2. Increase research capacity within nursing by providing high quality research training.
3. Contribute towards the RCN delivering on its strategic objectives.
Constitution of the RCN RI Joint Advisory Board
1. To advise the University, the Royal College of Nursing and the Director RCN RI on strategic
planning and direction.
2. To advise on the academic plans of the RCN RI, including scope and range.
3. To review objectives and progress against objectives.
4. To monitor the strategic alliance agreement between University of Warwick and the Royal
College of Nursing, and discuss and recommend any variations and developments.
5. To ensure sound financial governance of RCN RI by receiving and commenting on financial
statements.
6. To receive and review an Annual Report.
7. To monitor the quality of PhD student experience.
Membership of Joint Advisory Board
1. Two members from University of Warwick.
2. Two staff members from the Royal College of Nursing.
3. Two members of the Royal College of Nursing, to be appointed by the RCN Nursing Practice and
Policy Committee.
4. Two external members with expertise in directing research centres
5. Two user/patient members.
6. Two members working in health care.
7. Director of RCN RI.
8. Head of the Health Sciences Division or nominee.
9. One staff member from RCN RI.
20
Additional members can be co-opted to provide specialist advice as agreed upon by the
University, the RCN and the RCN RI.
The Joint Advisory Board will be supported administratively by the PA to the Director RCN RI.
Working Methods
1.
2.
3.
4.
5.
The Joint Advisory Board will meet at least annually.
All matters relating to the Joint Advisory Board will be treated as confidential.
Electronic or written communication may be used between Joint Advisory Board meetings.
All members will have equal standing on the group.
Term of office for members other than of the University or RCN is three years, renewable for
one additional three year period.
6. The Joint Advisory Board will be chaired by an external member.
7. Conflicts of Interest will be declared and recorded.
8. A minimum of five members, which must include one member of the University and one staff
member of the RCN, must be present for a meeting to be quorate. Decisions relating to the
approval of the Work Programme and Annual Report can only be made if a representative
from both the RCN and the University vote in favour
9. If a Joint Advisory Board member is not present at three consecutive meetings, a new Joint
Advisory Board member may be considered by the Chair and the Director of the RCN RI. It
is expected that the member will normally attend, but they can send a fully briefed
representative where this is unavoidable.
10. The experience and involvement of users and the impact of that involvement will be
monitored.
21
All photos © Paul Kent 2014
22
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