From Alms to Income: Begging as an overlooked issue of disability and poverty Nora Ellen Groce Leonard Cheshire Disability and Inclusive Development Centre University College London nora.groce@ucl.ac.uk December 12, 2014 Findings from the Disabled Beggars Project, Ethiopia. ILO. Funding from Irish AID Co-Authors: Babara Murry, Marie Loeb, Carlo Tramontano, Jean Francois Trani, Assefa Mekonen Setting the Scene: Changing Concepts of Disability Moral definition: focus on individuals sin, wrong-doing/ response defined by community Medical definition: focus on individual impairment and mitigation of disability/ response defined by health care professioansl Social definition: focus on social context and response on redefining social norms/ legal protections/ human rights 2 Problems Disabled Persons face Moral definition: • Shame, Guilt Medical definition: • Impairment, being seen as ‘abnormal’ Social definition: • Societal Barriers Responses in terms of Livelihoods Charity definition: locus of control is the family/ community • Alms, begging, charity Medical definition: Locus of contron is health care/ social service professionals • Sheltered workshops Social definition: Locus of control is individual/ backed by human rights laws • Supported employment, • Open employment, Vision of the UN Convention on the Rights of Persons with Disabilities – Work and Employment • Article 27: − States Parties recognize the right of persons with disabilities, to work on an equal basis with others • Right to opportunity to gain a living by work freely chosen or accepted in a labour market and work environment that is open, inclusive and accessible UN CRPD Vision Adequate Standard of Living and Social Protection • Article 28: – Adequate standard of living for persons with disabilities and families • including adequate food, clothing and housing • continuous improvement of living conditions – Social protection: • equal access by persons with disabilities to clean water services, • access to appropriate and affordable services, devices and other assistance for disability-related needs; • access by persons with disabilities, in particular women and girls with disabilities and older persons with disabilities, to social protection programmes and poverty reduction programmes; • For those living in poverty, assistance with disability-related expenses, including adequate training, counselling, financial assistance and respite care; • Access to public housing programmes; • Equal access to retirement benefits and programmes. In this study, we set out to answer 4 questions: • What factors are involved in the decision that some people with disabilities make to turn to begging? • What is daily life like for those people with disabilities who beg? • What does the future look like for those people with disabilities who beg? • Are there key points where interventions can be made to either keep people with disabilities from begging or to get them viable alternatives to begging if that is their current source of income. Study Design • Literature Review – • Mixed Methods in Addis Ababa – Interviews - 28 in-depth interviews – Focus Groups – 4 focus groups – Survey 100 street beggars • Developed/piloted survey • 11 fieldworkers under direction of Assefa Mekonen • Sought balance in gender/ type of disability – Worked with ILO Office, Addis Ababa; ILO Geneva Here is what we found: Key Finding A more heterogeneous group than anticipated which therefore offers more points for intervention Literature Review: A Striking Lack of Evidence Comprehensive literature review of begging in general; disability and begging specifically; disability and begging at national and local levels: > Allusions to begging throughout history – BUT almost no evidence > Often questions about rights/needs of beggars, however: > Even in this literature, the need and right to beg for persons with disability was RARELY questioned. In Amharic a saying is: Why should you beg? You have arms don’t you? You have legs? > Virtually no exploration of what caused certain people with disabilities to beg, while people with comparable disabilities from much the same background, earned their livings in other ways > Almost no studies actually interviewed people with disabilities who beg > Virtually no quantitative studies that compared disabled to non-disabled beggars > Virtually no studies that qualitatively or quantitatively (or using mixed methods) examined the lives of people with disabilities who worked as beggars either in developed or developing countries. (1) Groce N, Loeb M, Murray B. 2014. Disabled Beggars; A Literature Review. Geneva: International Labour Organization http://www.ilo.org/employment/Informationresources/WCMS_310228/lang-en/index.htm Begging and Disability • Historical Overview – An Urban Issue ‘The city lifts its hand like a cripple, O my lord Shu-Sin’ (Sumerican Clay Tablet, 2400 BC) – Expected Role • Cycle of Poverty • Lack of social support networks • Internalized social stigma • Lack of education/skills • Lack of employment • Lack of social protection Demographics • Male verse female • Origins – urban/rural – 96% rural • 80% had begged for five years or more – 19% had done so for over 20 years – 5% had begged between one and two years – only 2% were new to the streets, having begged for under a 1 year. • Types of disabilities – – – – – Physical Blind Mental health What is not seen on streets – Deaf/intellectually disabled Age distribution Key Findings: A more heterogeneous group than anticipated which therefore offers more points for intervention • Come to Addis 1. Pushed from home because of disability 2. Came for medical cure (Western and religious healing) • Stayed in Addis because 1. No home to return to 2. Not ‘cured’ so did not want to return to be a ‘burden’ 3.Came for education at special schools 3. Flunked/dropped out of special school/ cannot return home 4.Came as a non-disabled individual/ subsequently disabled 4. Little/no understanding about what it means to live with a disability Education Range of educational achievements Level of education Gender Male Female No formal schooling, -cannot read/write 31.,1% 66.,7% No formal school, but can read/write 26.,2% 15.,4% Completed or at least some primary school 19.,7% 12.,8% Completed or at least some secondary school 11.,5% 5,.1% Other (religious, etc.) 11.,5% 0% Total • . 100.,0% 100.,0% Current job skills/employment history One assumption raised repeatedly in the literature is that persons with disabilities turned to begging because they have little or no prior job training or work experience. Employment before they became beggar • – Job Training/ Apprenticeships : 68% had no training or apprenticeship history – Men surveyed were more likely than women to have received training (36.1% verses 25.6%), • – A third (32%) did have some prior training or apprentice experience to prepare them for the workforce. • • Among those who received a training, – sewing-related (14 respondents, 43.8%) – business skills (7 respondents, 21.89%) – trades (i.e.: electrician, welder, carpenter) -5 respondents, (15.6%), . – One respondent (3%) reported having trained as a secretary, Of those surveyed, 59% reported no previous employment history outside the home /had lived on ‘family support.’ A number of those interviewed reported that they had lived with parents until some incident – usually the death of one or both parents – left them with no choice but to leave home. 41% of those surveyed interviewed had some work experience outside home before turning to the streets. – – – – 12% agriculture, 8% military prior to becoming disabled. 6% business or selling. 3% manual labour. • Men interviewed were more likely than women to have had previous work history (88 % compared to 56%) • Lack of formal employment/ employment outside home OBSCURES many peoples work history Amounts collected on an average/ unusually good/unusually bad day Dispels assumption that disabled beggars do well economically. • Even on an exceptionally good day, over one third of respondents (38%) collected less than the global poverty line of 21.25 Ethiopian Birr; almost half (47%) collected between 20 and 30 birr (at or slightly above the poverty line), while 15% collected 30 birr or more. Amount Average day Unusually good day 0-5 birr 5-10 birr 10-15 birr 15-20 birr 20-30 birr 30-40 birr Over 40 birr Do not know 3.0% 16.0% 31.0% 22.0% 19.0% 4.0% 0% 5.0% 0% 0% 18% 20% 47% 10% 5% 0% Total 100.0% 100% • Unusually bad day 78% 13% 6% 1% 1% 1% 0% 0% 100% So 72% early less than 20 birr (US $1.18 per day); 40 Birr = US $ 2.35; Global poverty $1.25 per diem Level of Poverty/ Earnings Profound level of Poverty • Range of earnings – consistently low • Housing – crowding/ nature of materials/ 7% slept on streets • Access to water/sanitation: (50% -facilities more than 5 minutes away; 19% no facilities near home) • Material goods – (bed, blanket, change of clothing, cooking pot, water jar) – (39% no bed; 11% no blanket) • Food Family – support networks • • • 49% married; 16% unmarried but co-habiting 33% single, divored or separated 71% had children – 19% 1 child; 41% had 2 or more; 11% had 4 or more. But only 42% said their children live with them • Living arrangements – – – – – 4% lived with parents 4% with siblings 11.8% with other relatives 39% with friends or roommates 10% lived alone Daily Lives • Daily routine • Views on Begging • Interactions with other beggars/ able-bodied and disabled • Individual attributes – weak social ties Despite this – show considerable initiative: • 20% report paying for education/skills building to enable them to get a better job • Equibus and Burial Societies • Take on additional work where possible * – lottery tickets/watching cars & shops • Generate money wherever possible – Donated food resold – Rental of beds • Hopes for the future – – 87% did not see themselves as begging in future Limited Knowledge of rights/ Interaction with NGOs and DPOs • Limited knowledge of disability rights • Limited interaction or support from – NGOs – DPOs Conclusions • A group at grave risk, currently not being reached by either mainstream development or disability-focused groups • NGO/DPO efforts have been focused on keeping people with disabilities OFF the Streets – but little has been done to reach those now on the streets • Those interviewed/surveyed consistently showed a great deal of initiative - and this may bode well for future efforts to engage them and provide alternative sources of making a living – HOWEVER the majority had been on the streets for 5 years or longer, so this may not be an easy task. • Low level of awareness among those interviewed/surveyed of CPRD/ Disability Rights; alternative options & etc. Points for intervention to keep disabled people from winding up on streets Pushed from home because of disability Came for medical cure (Western and religious healing) Came for education at special schools Came as a non-disabled individual/ subsequently disabled • Majority from rural areas – better education/ family education/ support to keep many from leaving home/ going to cities • Work with medical facilities in rural areas to improve coordination/ delivery of services in rural areas/ support to manage expectations from urban services • Work with schools to ensure that drop outs are given apprenticeships/ moved into employment • Work with hospitals/rehabilitation services/ link these to disability/DPOs; training for employment long before individual is released from hospital Points for intervention once disabled people wind up on streets • Improved apprenticeship/training/ education linked to jobs • Support services – support for individual/ building support networks • Access to micro-credit and support in setting up small businesses • Social protection systems – (viable ones) • Linking to major government/NGO development efforts • Improved accessibility in workplace and in transportation systems • Linking to DPOs/ and Disability-Focused NGOs for peer support/ information/support on Disability Rights/ awareness raising & etc. • Attitudinal Change in wider community For full discussion of material presented here: see the following publications from the ILO Disabled Beggar Study: Ethiopia. • Groce N., Murray B, Loeb M, Mekonnen A,Tramontano C, Trani JF. Mekonnen A. 2013. Disabled Street Beggars In Ethiopia: Findings from the UCL/ ILO Study. Geneva: International Labour Organization, United Nations. http://www.addc.org.au/documents/resources/130613-disabled-beggars-in-addis-ababa-iloworking-paper_1433.pdf • Groce N, Murray B, Kealy A. 2014. Disabled Beggars in Addis Ababa: Current Situation and Prospects for Change. Executive Summary. International Labour Organization. http://ilo.org/wcmsp5/groups/public/---ed_emp/--ifp_skills/documents/publication/wcms_302656.pdf • Groce N, Loeb M, Murray B. 2014. Disabled Beggars; A Literature Review. Geneva: International Labour Organization http://www.ilo.org/employment/Informationresources/WCMS_310228/lang--en/index.htm – All publications available free on the ILO www.ilo.org/disability and the Leonard Cheshire Disability and Inclusive Development Centre www.lcdisability.org/idc websites