Emerging Practices for Supporting Students on the Autism Spectrum in Higher Education: A Gu i d e f o r H igher Ed u c a t i o n P ro f e s s i o n al s EmergingPracticesforSupportingStudentsontheAutismSpectruminHigherEducation: AGuideforHigherEducationProfessionals LeadInstitution RochesterInstituteofTechnology CollaboratingInstitutions EasternUniversity MercyhurstUniversity RutgersUniversity--NewBrunswick TheUniversityofTennesseeatChattanooga UniversityofWestFlorida WesternKentuckyUniversity Consultant CollegeAutismSpectrum GuideContributors LaurieAckles,Director,SpectrumSupportProgram,RochesterInstituteofTechnology MartyBoman,Director,KellyAutismProgram,WesternKentuckyUniversity JaneThierfeldBrown,Co-founder,CollegeAutismSpectrum DouglasCornman,Coordinator,CollegeSuccessProgram,EasternUniversity PamelaLubbers,ProgramCoordinator,CollegeSupportProgram,RutgersUniversity–NewBrunswick BradMcGarry,Director,AspergerInitiativeatMercyhurst,MercyhurstUniversity MichelleRigler,Director,TheMosaicProgram,TheUniversityofTennesseeatChattanooga OtherContributors NicoleBoulais,RochesterInstituteofTechnology JoshuaBauroth,RochesterInstituteofTechnology LornaBusch,RochesterInstituteofTechnology VanneeCao-Nguyen,Director,StudentDisabilityResourceCenter,UniversityofWestFlorida Disclaimer;Theviewsandideasexpressedhereinarethoseofthecontributorsanddonot necessarilyreflectthoseofAutismSpeaksoranyotherinstitution. FundingforthispublicationprovidedbytheAutismSpeaksFamilyServicesCommunityGrant. TableofContents WhatIsAutismSpectrumDisorder?............................................................................ 2 UniqueStrengthsandChallengesofCollegeStudentswithASD................................. 3 ExecutiveFunctioning AcademicSkills Self-Care SocialCompetence Self-Advocacy CareerPreparation UniqueOpportunitiesandChallengesintheCollegeEnvironment............................. 5 RightsandResponsibilities IndependentFunctioning TakingAction:MitigatingStudentandEnvironmentalChallenges................................ 7 IndirectSupport:CreatingaWelcomingandSupportiveCampusClimate RaisingAwarenessandAcceptance TrainingtheCampusCommunity DevelopingCampusExpertise EnhancingExistingProgramsandServices DirectSupport:DevelopingTargetedServicesforStudentswithASD CoachingandMentoring TargetedInstruction TransitionProgramming SupportedLiving SocialProgramming StudentEmpowerment Identifying a Campus Response to Support Students with ASD.................................. 12 GettingStarted:AssemblingaTaskForce IssuesofDisclosure ProfessionalDisclosure StudentDisclosure ConsiderationsfortheDevelopmentofaComprehensiveProgramModel EstablishingProgramAdmissionCriteriaandIntakeProcess ProgramStaffing ProgramFunding EvaluatingProgramSuccess SupportModelPlanningWorksheet........................................................................... 18 References................................................................................................................. 23 ExistingComprehensiveProgramModels................................................................... 24 What Is Autism Spectrum Disorder? Currently,onlyalimitednumberofcollegesacrossthenationofferspecializedsupportsthat addresstheneedsoftheincreasingnumberofcollegestudentsontheautismspectrumpursuingpostsecondarydegrees.However,the1in125childrendiagnosedwithanautismspectrumdisorder(ASD)in 1996arestartingtoarriveatcollegecampuses,andmorerecentnumbersindicatethediagnosisratehas risento1in68,overhalfofwhomwillhaveaverageoraboveaverageintellectualabilityandbecollegebound(CDC,2014).Thesedramaticallyincreasingnumberswithinhighereducationwillchangethenatureofhowwesupportstudents,yetthereisalackofinformationavailableconcerningeffectivesupport models.Toaddressthescarcityofinformation,thisguideincorporatestheideasandsuccessfulpractices ofhighereducationprofessionalsatpostsecondaryinstitutionswhohaveworkedwiththeiruniversities toestablisheffectivesupportsforstudentswithASD.Itisthegoalofthiscollaborativeefforttofacilitate thedevelopmentofpostsecondaryinitiativestoensurethatstudentswithASDwillfindsupportincampus communitiesnationwide.Thisguidewillprovidehighereducationprofessionalswithasystematicand practicalresourcetoguidetheminthedevelopmentofauniversityspecificsupportmodelforstudents withASD. What is Autism Spectrum Disorder? Thetwomaindistinguishingfeaturesofautismspectrumdisorder(ASD)aredifficultywithsocial communication,andrestricted,repetitivebehaviorsorinterests(DiagnosticandStatisticalManualof MentalDisorders;DSM-V,2013).Characteristicscommoninautismspectrumdisordersincludearelianceonrigidroutines,heightenedsensitivitytosensorystimuli,anddifficultyregulatingandexpressing emotions.Thesetraits,whichareunderstoodtohaveaneurodevelopmentaletiology,varygreatlyinpresentationandintensity,makingthisahighlyheterogeneouspopulation.Thisheterogeneityisalsoreflectedintermsandlabelsusedovertime.Forexample,thetermsAsperger’sSyndrome(AS)andhighfunctioningautism(HFA)havehistoricallybeenusedtoreferencethoseonthespectrumwithmildautistic traits.ASDwasofficiallyrecognizedasadiagnosisinthe1990s,afterwhichtheincidencehascontinued torisedramatically.Therecentsurgeindiagnoses(to1in68)maybeduetoarisingawarenessofASD, broaderdiagnosticcriteria,or,assomehavespeculated,possibleexposuretobiologicalandenvironmentaletiologicalfactors(Boyd&Shaw,2010).Whatevertherootcause,thegrowingprevalenceofASD coupledwithincreasesinK-12supportsforthispopulationhasresultedinrapidlyincreasingnumbers ofstudentswithASDenteringpostsecondaryinstitutions.Whilethesestudentsareoftenintellectually capableofmasteringcollegelevelcoursematerial,thechallengeswhichstemfromthecommoncharacteristicsofASDcanposesignificanthurdlestothesuccessfulcompletionofapostsecondarydegree.In addition,itisimportanttonotethatmanystudentswithASDenteringcollegealsofallinthetraditional 18-25yearoldcollegecohortandbringwiththemthesamedevelopmentalchallengesfacedbytheir peerswithoutASD(typicallydevelopingpeers).Theseincludeidentity,cognitiveandmoraldevelopment challenges.Therefore,itisessentialtokeepinmindthecommondevelopmentalneedsofthisagegroup whileunderstandingthedistinctneedsofthispopulationinordertohelpthemsucceedinpostsecondary education,pursuetheircareergoals,andcontributetothediverseandskilledworkforceofthefuture. It is the goal to ensure that students with ASD find support in campus communities nationwide. 3 Unique Strengths and Challenges of College Students with ASD Unique Strengths and Challenges of College Students with ASD IndividualswithASDpossessuniquestrengthsthatcanhelpthemexcelinacademicsaswellas otherliferealms.Thesecharacteristicsoftenincludeahighmotivationtolearnwithinfocusedareasof interest,apropensityforvisuallearning,skilledrotememory,andsuperiormathskills.Inaddition,they bringadiverseperspectivetoproblem-solving,canbemeticulousaboutperfectingtheirwork,haveaneye fordetail,andoftenhaveauniquelylogicalwayofthinkingthataffordsthemtheabilitytoarriveatpracticalsolutions.WhilestudentswithASDarriveatcollegewithmanyfavorablequalities,certainskillsetsare typicallyunderdevelopedandthereforenegativelyimpactthetransitionintoandpersistencethoughcollegeaswellastheirpost-collegeplacementintheworkforce.Theseskillsetshavebeencategorizedand groupedintosixdomainsinordertohelpthereaderbetterunderstandtheprominentareasofchallenge andultimatelytoassisthighereducationpersonnelinchoosingpracticesthatmightmosteffectivelyhelp studentswithASDreachtheirpotential.Thesixdomains,whichhavebeenidentifiedbyreviewingexisting literatureandbyconsultingwithexpertsinthefield,include:ExecutiveFunctioning,AcademicSkills, Self-Care,SocialCompetence,Self-Advocacy,andCareerPreparation. Executive Functioning Executivefunctioningreferstothecognitiveprocessesthatallowforgoal-directedactivity. Theseprefrontalcortexcapacitiesincludeorganization,workingmemory,complexproblemsolving, sustainedattention,andself-regulation(Parker,D.R.&Boutelle,K.,2009).Deficitsinexecutivefunctioningcanmakedailytasks,suchasorganizingacademicwork,challengingandcanalsomakeitdifficultto controlemotionalandbehavioralimpulses. IndividualswithASDpossessvaryingdegreesofexecutivefunctioningdeficit,whichcanmakeit difficulttoadapttotheorganizationalaspectsofindependentlivingandself-directedlearningrequiredfor collegesuccess.Whileoftenfullycapableofmasteringcoursecontent,thesestudentssometimesstruggle tocarryouttheactions(e.g.,planning,prioritizing)necessarytoinitiateandcompleteacademicwork. Duringhighschool,consistentsupport,oversightandguidancefromfamilyand/orschoolpersonnelmay havefacilitatedsuccess;however,inthepostsecondaryworld,theseexternalsupportsareoftenlimitedor nolongerreadilyavailable. Academic Skills Academicskillsrefertospecificstrategiesandtechniquesthatenablesuccessfullearningandacademicprogress.Examplesincludetestpreparation,note-taking,textbookreading,library/researchskills, writingcompetency,andworkingwithinone’slearningstyle. Foralltransitioningcollegestudents,aninitialadjustmenttotherigorofcollege-levelcoursework iscommonandexpected.Typicallydevelopingstudentsadaptbymonitoringacademicprogressand applyingnew studytacticswhennecessary.Ontheotherhand,studentswithASD,manyofwhomhave successfullynavigatedhighschoolacademicswithrudimentaryacademicstrategies,canstrugglewitha rigidtendencytostickwiththefamiliar.Thistendencycanlimittheflexibilityneededtochangelearning methodsandapplynewstrategiesinresponsetovariedteachingstylesordiverseacademicdisciplines. Althoughtheyoftenpossessstronglanguageskills,collegestudentswithASDmaystrugglewithcollegelevelwritingduetoproblemswithorganization,abstractlanguage,andperspectivetaking,aswellas practicallimitationsresultingfromunderdevelopedfinemotorcoordination.Withoutspecificinstruction intheseareas,studentswithASDcanstrugglewithlearningandapplyingthestrategiesnecessaryforacademicsuccess. Self-Care Self-careinvolvesmaintainingone’spersonalwellness,includingsleep,hygiene,exercise,nutrition,sensoryintegration,stressmanagement,medicationmanagementandbudgeting.Inessence,this domaincorrespondstocultivatingoptimalwell-beingandtakingresponsibilityforone’shealth. Whilethetransitionfromchildhoodtoadulthoodrepresentsatimeinwhichindividualsgradually takeownershipofprovidingfortheirownneeds,studentswithASDmayneedadditionaltimetodevelopindependenceintheareaofself-care.StudentswithASDfrequentlystruggletomaintainconsistent 4 Unique Strengths and Challenges of College Students with ASD hygieneandsleeppatternsandmayhavedifficultyindependentlymanagingmedicationsnecessaryfor focusandstabilityofco-occurringconditionssuchasattentiondeficitdisorders,anxiety,anddepression. Asaresult,studentswithASDmaystruggletofunctionadequatelyenoughtomeetexpanding academicresponsibilities.Collegelifeisalsofullofnewandvariedstimuli(e.g.,firealarms,crowded dininghalls,constantsocialization,etc.)thatmakeitparticularlydifficultforthosewithsensoryintegrationchallenges.Withouteffectivewaystohandlesensoryoverloadandotherstressors,studentswith ASDcanbecomeoverwhelmedandmayresorttofamiliarself-soothingtendencies,suchasrockingor pacing.Thesetendenciescouldbeperceivedassociallyinappropriate,leadingstudentswithASDto becomeincreasinglyisolatedfrompeers. Social Competence Socialcompetencereferstotheabilitytorelatetoothersandisaffectedbyhowanindividual understandsandrespondstoverbalandnonverbalcommunication.Includedinthisdomainarethe interpretationofothers’thoughtsandfeelings,socialreciprocity,andcomprehensionoflanguage pragmatics(Tager-Flusbert,1999).Inessence,socialcompetenceistheabilitytogetalongwithothers; acriticalskillforestablishingandmaintainingpersonalandprofessionalrelationshipsbothduringand afterthehighereducationexperience. Whilemostpeopledevelopmasteryoftheintuitivenatureofsocialinteractioninearlychildhood,thoseontheautismspectrumoftendon’tformthesameunderstandingofsocialrelatednessor possessthesamesocialskillset(Stichter,et.al,2010).Thisdeficitmakesnavigatingthesociallyladen atmosphereofcollegeparticularlydifficultforstudentswithASD.Challengeswithinitiatingconversationsandtheinabilitytoreadsocialcuesleadstofailedattemptstoconnectwithpeersandultimately contributestoisolationandloneliness.StudentswithASDalsotendtointerpretcommunicationliterally,makingitdifficulttounderstandsarcasm,aswellassocialandclassroomnorms.Additionally, studentswithASDoftenpossessexcellentvocabulariesandcanappearhighlyarticulate,whichcan leadothers(peers,faculty,oradministrators)tomisinterpretsocialdifficultiesasdisrespectorindifference. Self-Advocacy Self-advocacyreferstoknowingandcommunicatingone’sneedswhileunderstandingcorrespondingrights,responsibilitiesandresources(Brinckerhoff,L.C.,1994).Paramounttosuccessinthis domainareself-awareness,thecapacitytoanticipatechallenges,andtheabilitytoaccessappropriate resources. Throughouttheprimaryandsecondaryeducationalprocess,parentsand/orschoolpersonnel oftenidentifyandplansupportsforstudentswithASD,providinglittleopportunityforthesestudentsto developandpracticetheself-advocacyskillsnecessaryatthecollegelevel.Thisbecomesachallengein thecollegeenvironmentastheprocessforrequestingaccommodationsandaccessingsupportservices requiresassertiveindependentactiononthepartofthestudent.Additionally,difficultieswithplanning, personalflexibility,andsocialcommunication,makeithardforstudentswithASDtorecognizehow andwhentoaskforhelp,oftenresultinginafailuretoaccessadequateandtimelysupport. Career Preparation Careerpreparationreferstovocationalexploration,thejobsearchandapplicationprocesses, aswellasgainingappropriateworkexperience.Includedinthisdomainaretheskillsofnetworking, resume-writing,interviewing,andnavigatingthesocialworldofwork.Theimportanceofcareerdevelopmentduringthecollegeyearscannotbeunderestimatedgiventhatsecuringfulfillingemploymentis oneoftheultimategoalsofhighereducation. Whilepostsecondaryinstitutionsareintegratingcareerpreparationinitiativesatearlierstages ofthecollegeexperience,theseinitiativestypicallyfailtoaddressthespecificchallengesofindividualswithASD,whooftenfindthemselvesunderemployed(Wehmanetal.,2014).Collegeeducated 5 Unique Opportunities and Challenges in the College Environment studentsontheautismspectrummaystruggletotransferknowledgeandskillstoemploymentsettings.In addition,theirsocialinteractionstylecanunderminetheirchancesofsuccessinaninterview,wherecandidatefitisoftenbasedon“soft-skills”(e.g.,personalcharacteristicsandinterpersonalrelations)rather thanmeasurableskillsoreducationalbackground.Oncehired,theindirectsocialcontextofworkcanbe confusingandsensoryintegrationissuescanmakeitdifficulttofunctioninworkenvironmentswithout appropriateaccommodationsandsupportivemanagement. EachindividualstudentwithASD,liketheirtypicallydevelopingpeers,enterscollegewith a uniquesetofstrengthsandchallenges.Thedomainsdescribedaboverepresentsomeofthemost prevalentareasofconcernasstudentswithASDtransitionintoandstrivetofindsuccessincollegeand beyond.Additionally,it’simportanttoconsidertherealitiesofthecollegeenvironmentthatmaypresent furtherchallenges,addingtothedifficultiesthatsomestudentshaveinearningapost-secondarydegree. Someofthesefactorsareaddressedinthefollowingsection. While students with ASD arrive at college with many favorable qualities, certain skill sets are underdeveloped. Unique Opportunities and Challenges in the College Environment Institutionsofhighereducationhavedevelopedsupportstructuresandcommonpracticesin responsetothevaryingneedsofcollegestudents.Forexample,manycollegeshavewritingcentersto aidstudentsinthedraftingprocessforcourseassignments,tutorservicestoassiststudentsinmastering collegelevelcontent,andcounselingcenterstoaddressthementalhealthneedsofstudents.Campus disabilitycentersensureequalaccessforstudentswithdisabilitiesandmulticulturalcentershelpenhance thecollegeexperienceforstudentsfromdiverseethnicandculturalbackgrounds.Evenwitharobust frameworkofservices,studentswithASDoftenstruggletoadjusttothecomplexitiesofnavigatingacollegesystemandthereforedon’tbenefitfromthetraditionalsupportstructures.Addingtothechallenge forthispopulationisadjustingtothecomplexshiftfromhighschooltocollege.Thistransitionincludes changesinlegalmandatesthatimpactastudent’srightsandresponsibilitiesaswellasadjustmentstoa newandincreasedlevelofindependentfunctioning. Rights and Responsibilities Therightsandresponsibilitiesforstudentswithdisabilitieschangeconsiderablyuponentering postsecondaryeducation.Inhighschool,theIndividualswithDisabilitiesEducationAct(IDEA)emphasizesstudentsuccess,andguaranteesafreeandappropriateeducationintheleastrestrictiveenvironment.Schooldistrictstakeresponsibilityforidentifyingstudents’needs,determiningmodificationsand implementingaplanforsuccessbasedonastudent’sIndividualizedEducationPlan(IEP).Inhighschool, accommodationsmayincludesignificantmodificationstocurriculum,testingformatorgrading.Additionally,schooldistrictscoverthecostofevaluationanddocumentationandparentsorcaregiversplaya primaryroleasadvocates. Uponenteringcollege,IDEAisreplacedbysupportfromcivilrightsmandates,theAmericans withDisabilitiesAct(ADA)of1990,ADAAmendmentsActof2008andSection504oftheRehabilitation Actof1973,whichemphasizeaccesstoeducation.Postsecondarystudentsmustseekoutservicesby self-identifyingasastudentwithadisabilitytotheappropriateoffice,providingdisabilitydocumentation andsubmittingarequestforaccommodations.Whileparentsplayanimportantroleinpreparingtheir 6 Unique Opportunities and Challenges in the College Environment studentsforthecollegeexperience,studentsmustinitiatetheaccommodationsprocessandcommunicatetheirownneeds,withlimitedparentalsupport.Accommodationsinthecollegeenvironmentdonot altercourseworkordegreerequirementsandaremeantonlytoremovebarriersandensurethatanotherwisequalifiedstudenthasanequalopportunitytoparticipateinacademicprogramswithlittletailoring toindividualneeds(Thomas,S.B.,2000). Inadditiontochangesinlegalmandates,theremayalsobepracticaldifferencesintheway servicesareofferedinhighereducation.Whilesomesupportsmaybeofferedintheformofapproved accommodations,otherneedsarecommonlyaddressedthroughself-accommodationormaybecovered bynoncompulsory,supplementalstudentservices.Forexample,astudentwhoreceivedanaccommodationforpreferentialseatinginhighschoolmaybeexpectedtoarrivetoacollegeclassearlytosecure apreferredseatlocationontheirown.Forsomestudents,theaccommodationsreceivedaspartofa highschoolIEPmaynotbedeemedreasonableinthecollegesettingandmayinsteadbeaddressedby non-mandated,supplementalsupportservicesinthepostsecondarysetting.Forexample,astudentwho receivedhomeworksupportorindividualizedinstructionfromaspecialeducationteacherorpersonal aidaspartofanIEPmaynotreceivesuchsupportasanaccommodationincollegebutinsteadwillbe expectedtoseekoutthetutoringoracademicsupportservicesavailabletothegeneralcampuspopulation.WhileinstitutionsofhighereducationhavedevelopedpathwaysandsupportstomeetADArequirementsforstudentswithdisabilities,someoftheuniquesupportstypicallyneededbystudentswithASD areoftennotaddressedwithinatraditionalaccommodationsorcollegesupportservicesframework.For example,traditionalaccommodationsandservicesdonottypicallyaddressthesocialdeficitsorskill developmentthatmighthelpenhancetheparticipationandperformanceforstudentswithASD. Notonlyaresupportslessenedanddecentralizedfromhighschooltocollege,butbehavioral expectationsandconsequencesfornoncompliancealsodiffer.Forexample,IDEArequiresthatastudent’sdisabilitybetakenintoaccountwhenconsideringdisciplinaryactionresultingfromaviolationof theschoolcodeofconduct.Thisisnotthecaseinhighereducation,wherestudentsfoundinviolationof conductrulesareheldfullyaccountablefortheirbehaviorregardlessofdisability.Thiscanbeespecially problematicforstudentswithASDwhomayhavedifficultyrecognizingsocialnormsandunderstanding behavioralexpectationsandmaystrugglewithfunctioningappropriatelyinlessstructuredcollegeenvironments. Independent Functioning Beyondissuesofdisabilitymandatesandexpectationsforsupportservices,studentswithASD strugglewiththeincreasedneedforindependentfunctioningrequiredinacollegeenvironment.While theindependentlivingrequirementsofcollegecanbeadifficultadjustmentforallstudents,studentswith ASDmayfindthetransitionespeciallychallengingastheyfaceindependencefromcaregiversandeducationalprofessionalswhohaveassistedtheminmeetingmanyoftheirdailyneeds.Collegestudents,workingtowardbecomingfullyfunctioningadults,areexpectedtotakemoreresponsibilityfornavigatingthe environmenttomeettheirownneeds.ForstudentswithASD,whoareaccustomedtoamorecentralized highschoolsupportstructure,independentlymaintainingpersonalcareroutines,managingmedications, organizingdailyschedulesandappointmentsandseekingoutneededresourcesinamoredecentralized collegeenvironmentcanbeoverwhelming. Collegeisasocially-ladenenvironmentandthereforedifficultforindividualswhohavebeendependentonadultstoassistwithpeerconnections.Laggingbehindtheirtypicallydevelopingcounterparts inemotionalandsocialdevelopment,studentswithASDcanbeperceivedasnaïveandbevulnerable tobullying.Withminimaladultmonitoringofpeerinteractionswithinpostsecondarysettings,victimizationofthosewithASDcanbecommon.Suchchallengesareespeciallyprominentinresidentialcolleges wherestudentsexperiencehighlevelsoffluidsocialinteractionandlargeamountsofunstructuredand unsupervisedtime.ForstudentswithASD,unanticipatedsocialandlivingchallengesdistractfromthe learningprocessandcannegativelyimpactsuccessintheclassroom. Therealitiespresentedasaresultofchangingrightsandresponsibilitiesandrequirementsfor increasedindependentfunctioning,makethetransitiontoandsuccessincollegeespeciallychallenging forstudentswithASD.Significantcollegeresourcesaredevotedtosupportingallstudentsthroughthe 7 Taking Action: Mitigating Student and Environmental Challenges collegetransitionprocesswithstandardinitiativessuchasfirst-yearseminars,academicsupports,and cocurricularprogrammingopportunities.Whilethiscommitmenthasbecomeacommonfeatureacross highereducationandistheresultofmanyyearsofrepetitionandrefinement,thereisagrowingneedto modifystandardpracticesorcreatespeciallydesignedsupportstomeettheuniqueneedsoftheincreasingpopulationofstudentswithASD. The scarcity of targeted support services has a negative impact on the outcomes for students with ASD on college campuses. Taking Action: Mitigating Student and Environmental Challenges Asoutlinedintheprevioussections,studentswithASDoncollegecampusestodayfaceamyriad ofchallengesbasedondiscrepanciesbetweentheuniqueneedsoftheindividualandthecustomary collegeenvironmentsupports.Thissectionoftheguideservestooutlinewaysinwhichcollegescan worktomitigatethebarrierstosuccessforstudentswithASD.NOTE: The specific recommendations and examples provided are based on the practical experience and successful outcomes from the collaborating institutions and contributors to this guide. Whetherstemmingfromindividualorinstitutionalrealities,thechallengesfacingstudentswith ASDcanbecomplexandmostinstitutionslackadequateand/orintentionallydesignedassistance.The scarcityoftargetedsupportserviceshasanegativeimpactontheoutcomesforstudentswithASDon collegecampuses,makingitdifficultforthemtoreachtheirpotentialasindependentemployedadults (Gerhardt&Lainer,2011).EmergingpracticesdictatethatensuringthesuccessofstudentswithASDin highereducationrequirestwotypesofsupports:thosethatindirectlyimpactstudentoutcomesbycreatingawelcomingandsupportivecampusclimate;andthosethatdirectlyassistindividualswithASD throughspecificservices.BuildingamoreinclusiveandacceptingcampuscommunitycanhaveasubstantialimpactontheexperienceandsuccessofstudentswithASD.Furthermore,studentswithASDwill onlybenefitfromspecializeddirectsupportswhenimplementedwithinacampusculturethatembraces themasimportantmembersofthecampuscommunity. Indirect Support Creating a Welcoming and Supportive Campus Climate OneofthebestwaystoimprovetheexperienceandlearningoutcomesforstudentswithASD isthroughapositiveshiftinthecampusclimate,withafocusoninfluencingthebroadercommunity’s attitudesandunderstandingofwhatstudentswithASDbringtothecampuscommunity.Thisapproach benefitsallstudents,includingstudentswhomaysharesomeofthecharacteristicsofthoseontheautism spectrum,orthosediagnosedwithASDwhochoosenottodiscloseoridentifythemselvesassuch.Shiftingcampusculturecanbeanarduoustaskandrequiresalong-termandsustainedcommitment–but developingafocusononeorallofthefollowingareashasbeenshowntoestablishafoundationforthis change. 8 Taking Action: Mitigating Student and Environmental Challenges Raising Awareness and Acceptance IndirectlysupportingstudentswithASDbycreatingasupportivecampusenvironmentcanbegin withawareness-raisingeventsandintentionaleffortstoincreaseunderstandingandacceptance.Thereis anoverallmovementinhighereducationtobemoreproactiveinintegratingpopulationswhoaretraditionallyunderrepresentedoncampuses.Amovetowardsincludingpeoplewithdisabilitiesasaformof humandiversitycanbeaplatformforincorporatingunderrepresentedgroupsintomulticulturalcelebrationsanddiversityappreciationevents.AutismAwarenessMonth(April)canbeavenueforeducatingthe campuscommunitythroughspecialevents,presentationsandthoughtfuldiscussionsledbyguestspeakers,students,orsiblingsofthoseontheautismspectrum.CampuscommunitymembersinterestedinprovidingsupporttostudentswithASDmayalsobenefitfromtheimplementationofallyorsupportgroups, creatingaplacewherememberscanshareexperiences,gaingreaterunderstandingandhelppromote positivecultural change.MediaexposurehighlightingtheachievementsofindividualswithASD canalsoenhancecommunityawarenessatlittleornocost.Campuslifeleadersandotherswhoplan communityeventsshouldbeencouragedtoimproveinclusivityintheireventplanningbyconsidering theneedsofthosewithsensoryandenvironmentalsensitivities,allowingstudentswithASDtobemore fullyincludedinbroadeducationalandsocialexperiences. Training the Campus Community Anothereffectivemechanismthatservesasabasisforaninclusivecollegeenvironmentis campus-widetraining,whichhasbeenusedinsupportofmanydiverseinitiativesacrossacademia.Such trainingcanbutneednotbemandatoryinnature.Toensurehigherleveladministrativesupportfortraining,theseinitiativescanbeginwithdirectors,administrators,andmanagers;andworkdowntoinclude allwhoservestudents(e.g.,labinstructors,teachingassistants,tutors,academicadvisors,campuspolice officers,“front-line”officestaff,admissionsofficers,financialaidcounselors,campushealthprofessionals,etc.)Position-specifictraininghelpsstaffunderstandthetypesofsituationstheymayencounterwithin theirroles;writingtutorsmayneedtochangetheirapproachforstudentswhostruggletograspdiverse viewpoints;andcafeteriastaffcanbemoreawareofdietarysensitivitiesandfoodaversions. Ideally,campus-widetrainingwilloccurannuallyforsomegroups(e.g.,residencelifeandstudentorientationstafftraining),oronanas-neededbasisforothers(e.g.,departmentalrequestsanddivisionlevelmeetings),oritmaytaketheformofatrainingpacket,sharedelectronically,thatincludesitems suchasfactsheets,trainingvideosandlinkstorelevantarticles.Providingongoingprofessionaldevelopmentopportunitiesallowsfortheinclusionofnewemployeesandthosehiredonatemporarybasis(e.g., adjunctfaculty),whomayhavelimitedaccesstouniversitytrainingresources. Therearemanyeffectivestrategiesforthedeliveryofsuchtraining,includinghelpingparticipants considertheirownpersonalconnectionstoautism.Identifyingpersonalconnectionsallowsparticipants tomoreeasilyrelatetothechallengesandrealitiesforcollegestudentswithASD,whichcanincrease empathyandpositiveperceptions.Additionally,studentswithASDorthosewithsiblingsontheautism spectrumcanbebroughtintothetrainingprocesstosharefirst-handexperiences.Anopendialogue format,managedwithappropriatesensitivity,encouragestraineeparticipationandisabeneficialmethod ofemphasizingthestrengthsoftheASDpopulationinadditiontoaddressinganystigmasassociatedwith autism. Facultytraining,specifically,canalsoincorporatethebenefitsofstrongpedagogicalmethodologyandeffective,inclusiveclassroommanagementthatwillpositivelyimpactallstudents.Trainingshould focusonassistingfacultyinunderstandingtheimportanceofdirectcommunication,includingtheuseof Some of the unique supports needed by students with ASD are not addressed within a traditional accomodations or support services framework. 9 Taking Action: Mitigating Student and Environmental Challenges detailedsyllabi,concretelanguageandclearfeedbackwhenworkingwithstudentswithASD. Facultyshouldbetrainedtoconsiderthepotentialforsomeflexibilityinthedeliveryofassignedcourse work(e.g.,alternativestopublicspeaking),aswellasideasrelatedtothefacilitationofgroupwork(e.g., designatingclearrolesandmonitoringprogress).Additionalrelevantpracticesmightincludeincorporatingastatementintothesyllabusthatreflectsarespectfordiversityandinclusiveness,utilizingavariety ofcontentpresentationmethodstoaddressavarietyoflearningstyles.Trainingmightincludeproviding facultywithtipsforstructuringclassroomdiscussions. Throughoutalltraining,facultyandstaffshouldbereassuredthatsupportingstudentswithASD doesnotequatetoprovidingspecialprivileges.Nomodificationstotheeducationalstandardsorcourse requirementsarerequired;however,directandsupportivefeedbacksurroundingexpectations,including thoseforappropriateclassroombehavior,cansignificantlyassiststudentswithASDtobecomecontributingmembersoftheclassroom. Developing Campus Expertise AnothermethodofindirectsupportinvolvesprovidingconsultativeresourcestocampuscommunitymemberswhointeractwithstudentswithASD.Theavailabilityofdesignatedcampusexperts familiarwiththeASDpopulationcanaidthecampuscommunity(faculty,staffandstudents)tobetter understandtheinteractionsorbehaviorsofstudentswithASDthataresometimesdifficulttointerpret.A specially-trainedgroupwouldideallyconsistofindividualsfromvariouskeydepartments(e.g.,disability services,residencelife,campuspolice,etc.)whocouldserveasresourcestocolleaguesintheirrespectiveoffices.Campusesmightconsidertheestablishmentofadisabilityliaisonineachacademicdepartmentwhocouldadvisefacultyoneffectivemethodsofinstructionaldesignandstrategiestoapproach variousscenarios,promotingincreasedflexibilityinteaching.Aliaisonmayalsoassistfacultymembers ininterpretingunusualbehaviorintheclassroom.Forexample,thebehaviorofastudentwhocontinuallyapproachestheboardduringalecturemaybemisunderstoodasdisruptivebutmaysimplybethe student’sresponsetoearlierdirectionto“writedowneverythingIputonthewhiteboard”. Enhancing Existing Programs and Services Mostcollegeshaveexistingprograms,servicesandsupportnetworksinplaceforallstudents. Inmanycases,slightmodificationstotheseexistingeffortsmaymakethemmoreaccessibletostudents withASD,whetherornottheyhavedisclosedtheirdiagnosis.Theappropriatedevelopmentofthese resourcescanbeavitalcomponentinthesuccessofallstudents,includingthosewithASD.Anexample ofsuccessthroughthisstrategyinastandardtutoringcentermightbea shiftfromadrop-inappointment modeltoamodelthatincludesindividualizedrecurringappointments.Thisshiftmightbettermeetthe needsofallstudentsbutisparticularlybeneficialtostudentswithASDwhothriveonpredictabilityand routine.Settingupsimilarregularlyscheduledappointmentswithuniversitysupportstaff(e.g.,advisors oracademiccoaches)canprovideanincreasedlevelofoversightandsupportandprovidetherepetition thatassiststhesestudents’inmasteringcompetenciesthatmightbemetinasinglemeetingfortypically developingstudents. Thisapproachalsocanbeexpandedasadirectsupportforthosestudentswhochosetodisclose aASDdiagnosis.Forexample,atutoringcentermightbeabletoidentifyspecifictutoringstaffwithadditionalexperienceinworkingspecificallywithstudentswhohaveneedsbeyondthosetypicallyaddressed bygeneraltutors.Otherexamplesoftargetedservicesforstudentswhoareformallyidentifiedasbeing ontheautismspectrumareoutlinedinthefollowingsection. Direct Support Developing Targeted Services for Students with ASD Inadditiontoindirectapproachesthatbroadlyaddressthedevelopmentofamoreinclusiveand supportivecampusclimate,somecampusesmayconsiderthecreationoftargetedsupportservicesto moredirectlyimpactthesuccessofindividualstudentswithASD.Basedonthesizeofthepopulationof studentswithASDand/orthecomplexitiesoftheirneeds,someinstitutionsmaychoosetoexplorethe developmentofacomprehensivesupportprogramwhileothersmayrelyuponamoreadhocapproach, 10 Taking Action: Mitigating Student and Environmental Challenges respondingasneedsarise.Asisthecaseformanyunderrepresentedbutgrowingpopulationsoncollege campusestoday(race/ethnicgroups,firstgeneration,lowincome,veterans,returningadultlearners,and studentswithdisabilities)targetedsupportservicescanbeverysuccessfulinincreasingpersistenceand graduationrates. The following section provides examples of direct supports drawn from the established, comprehensive support programs of the collaborating institutions which contributed to this guide. Coaching and Mentoring Ingeneral,coachingandmentoringallowforthedevelopmentofsupportive,nonjudgmentalrelationshipsthatfacilitatetheidentificationandattainmentofgoals,aswellasthegrowthofcompetencies throughmodelingandguiding.Throughnon-directivecoachingrelationships,studentslearntocapitalize ontheirpositiveattributesandareassistedintheidentificationandprogressionofchosengoals.During theinteractiveanditerativecoachingprocess,frequentfeedbackandsupporteddecision-makingleadsto a senseofmastery.Althoughoftencarriedoutinaone-on-oneformat,coachingandmentoringcanalso beofferedintheformofsupportgroupsorsmallgroupseminars.Professionalsorpeerscanserveinthe roleoflifecoach,socialmentor,etc.,andmeetingsmaybestructured,unstructuredorstudent-led.Peer mentors,inparticular,canhelpwithself-acceptanceandthebolsteringofself-esteemthroughvicarious learningopportunities.ObservingandexperimentingwithnewbehaviorsamongstacceptingpeermentorscanbuildconfidenceandpositivefeelingsforstudentswithASD.Withmasteryexperiencesinthese “safe”environments,studentswithASDaremorelikelytotrynewbehaviorsinothersettings,facilitating socialconnectednessandfurtheringacademicsuccess. Targeted Instruction StudentswithASDoftenbenefitfromtargetedinstructioninthoseareaswhereappropriateskills orknowledgearedeterminedtobelacking.Suchinstructioncanbedeliveredindividually(e.g.,tutoring) orinsmallgroups(e.g.,seminars,mandatorystudyperiods,orsemester-longcourses)eitherthroughan establishedscheduleoronanas-neededbasis.Insomecasesitmaybepossibletomodifyexistinginstructionalmaterials.Inthesecasescareshouldbetakentoensurethematerialismodifiedtoaddressthe skilldeficitsofstudentswithASD.Thefocusofinstructionislimitlessbutcanincludeexecutivefunctioningtraining,studyskillsinstruction,socialthinkingskillbuilding,leadershipdevelopmentthroughcommunityoutreach(e.g.,speakingatanautismawarenessevent),careerpreparationworkshops,sensory integrationcounseling,mindfulnessmeditation,socialanxietygroupsorrelationshipskillsgroups. Transition Programming ForfirstyearstudentswithASD,theinitialintroductiontocollegeandthenewstudentorientationexperiencecanbeanoverwhelmingandover-stimulatingexperience.ThosewithASDhavethe addedburdenofattemptingtomitigatefunctionallimitations,suchasadaptingtounstructuredand socially-embeddedenvironments.Pre-college,specializedorientationorsummerpreparationprograms canequipstudentswithASDwithtoolstohelpthemacclimatetonewsurroundingsandbegintoestablishpeerrelationships,aswellasprovidethemwithtimetoproactivelyarrangeforappropriateaccommodationsand/orsupportservicespriortothestartoftheacademicyear,whilecampusislesscrowded. Structuredtransitionprogrammingcanincludeguidanceinnavigatingthecollegecampus,introductions tokeypersonnel(e.g.,academicadvisingstaff),self-advocacytraining,independent-livinginstruction (e.g.,navigatingdininghallsorotherfacilities),appropriateprofessionalcommunicationpractices(e.g., respondingtoemails)aswellastimemanagementandacademicskill-buildingsessions.Theseprograms canrangeinlengthfromonedaytoseveralweeks,andthelattermayincorporatethecompletionofa credit-bearingclasstoestablisheffectiveacademichabitsandpracticestructuringschedules.Manyspecializedorientationprogramsalsoallowforearlymove-indates,affordingstudentsanopportunitytoget settledintoroutinesandfamiliarizethemselveswiththecampusbeforethearrivalofpeers. 11 Taking Action: Mitigating Student and Environmental Challenges Supported Living DesignatedhousingcommunitiesforstudentswithASDcanprovidethesenseofbelongingoften lackinginthelivesofthosewithASD,whomayhavestruggledtobeacceptedbypeersthroughoutchildhood.Livingincommunity(eg.specializedorthemedfloor)withpeerswithASDcanprovideopportunitiestobuildsocialconnectionswithinasafeandsupportiveenvironment;aswellasallowforincreased oversightandearlyidentificationofproblems(e.g.,socialwithdrawalorpoorhygiene)forquickintervention.Thesesupportedlivingcommunitiescanbesupervisedbyspeciallytrainedresidencelifestaff,who canmorereadilyrecognizethesignsofastudentindistressandworkproactivelytomitigatechallenges. AssigningstudentswithASDtosingleorlimitedroommateplacementsprovidesanotherway tocreatesupportivelivingenvironmentswithinastandardcampushousingsystem.Singledormrooms oftenprovidearefugefromthesensoryoverloadthatcanresultfrominteractingwithabusycollege environmentonadailybasis.Additionally,somesensoryintegrationissuesmaymakeitimpossibleto cohabitatewitharoommate,makingaprivateroomaccommodationnecessary.Forexample,astudent withsensoryissuesmayrequireaprivateroominordertomaintainsleeporhygienehabits.SomestudentswithASDmayconsidertransitioningfromasingleaccommodationtoasharedlivingspaceonce theyfeelmorecomfortablewiththeadditionalsocialaspectsofcollegelife.Itisimportanttoremember thateachstudent’ssituationisunique,andprovidingchoicesrelatedtolivingarrangementsrespectsa student’sautonomyanddevelopsindependentdecision-makingskills.Tohelpstudentsinthisdecisionmakingprocess,itmaybeusefultoprovideachecklistofindependentlivingcompetenciesandpossible scenariosthatmightbeencounteredinaresidentiallivingsituation.Forthosewhopreferasharedspace option,residencelifestaffcanassiststudentsinstatingtheirneeds(e.g.,needforquiettimeandspace) topeersandhelpstudentsnavigatethecreationofroommatecontractswhichsetexpectationsforshared livingarrangementsandcanminimizeroommateconcerns. Residentadvisorsarechargedtodevelopcommunityandcanidentifysignsofdistresswithin theirassignedlivingenvironment.InthecaseofstudentswithASDwhoarecomfortablewithdisclosing, itmaybebeneficialtoencouragestudentstomeetwiththeresidentadvisortodiscussanysensitivities orconcernsaboutcommunityliving.Whenresidentadvisorsareawareoftheindividualneedsoftheir residentswithASDtheyarebetterpreparedtofacilitateday-to-daysupportforthesestudents. Social Programming Plannedsocialeventsthatincludementorsandotherknowledgeablestaffprovidestudentswith ASDopportunitiesforconnection,modeling,andachancetotrynewbehaviorsandcommunication skillsthatcanbuildsocialconfidence.Thesegatheringsmaytaketheformofcommunityoutings,meal gatheringsorgroupvolunteerexperiences.Campusesmayconsiderthepossibilityofcreatingadedicated loungeorstudyspaceforstudentswithASDtogather.Toenhanceintegrationwiththelargeruniversity community,socialeventscanbepostedandopentotheentirecampuscommunity,orstudentswith ASDcanbeencouragedtoinvitefamiliarpeers.Additionally,integratedspringbreakprogrammingcan promotesocialinteractionsamongstudentsbothonandoffthespectrumtofurtherenhancesocialconnectedness,acceptanceandunderstanding.StudentswithASDshouldbeencouragedandsupportedin participatingincampus-wideprogramming,clubsandevents.MentorscanassiststudentswithASDin identifyinggroupsandspacesoncampuswheretheycanmeetotherswithsharedinterests. Student Empowerment Methodsofsupportthatemphasizeempowermentandself-determination,suchasperson-centeredplanningandstrengths-basedapproaches,areidealforfosteringahealthyself-conceptforstudents withASD.Developinghigherlevelsofcomfortwithmakingdecisions,andtakingresponsibilityfordecisionsmadearecentraltothegrowthanddevelopmentofallstudents.Suchdevelopmentwillnotonly increasetheabilityofstudentswithASDtohavesuccessinhighereducationbutwillalsoleadtogreater successandconfidenceinallaspectsoftheirlives. Theself-esteemofstudentswithASDcanbenurturedthroughthesenseofbelongingthatspecializedsupportprogrammingaffords.Theestablishmentofcaringreciprocalrelationships,whichhave 12 Identifying a Campus Response to Support Students with ASD oftenbeenlackinginthesestudents’lives,iscriticaltobuildingtheself-worthandresiliencythatallows forcopingwiththestressorsofcollegelifeandbeyond.However,itisalsoimportanttobeawareof potentiallytransferringdependenciesfromparentstocollegefaculty,staff,orpeersasthiscanhinderthe independencestudentswithASDneedinordertosucceedinthelongrun. EmpoweringstudentswithASDoftenrequiresempoweringparents,avastmajorityofwhom havehadalife-longroleastheirchild’sprimarysupportersandwhomaylackconnectionswithothers whoarelaunchingachildwithuniquechallengesintoindependence.Thus,empatheticallyeducatingparentsonhowbesttosupporttheirchild’stransitiontoadulthoodiscrucialandrequiressetting clearboundaries.Parentsshouldbediscouragedfromcorrespondingwithfacultyorsupportpeopleon thestudent’sbehalfandshouldberemindedtoincludetheirstudentinallemailcorrespondencewhen outreachisnecessary.Awell-meaningparentmightbetemptedtocompleteanonlinetestfortheirchild duringaparticularlystressfultimeinthesemester,notrealizingtheseriousnessofacademicdishonesty. Beingclearwithparentsabouthowtheycanempowertheirstudentwillhelpavoidover-involvement andensurethatstudentsmovetowardbecomingself-sufficientadults. CampusesseekingtomeettheneedsofstudentswithASD,mayutilizebothindirectanddirect supports.Regardlessofthespecificservicesandprogramsoffered,thereareanumberofotherfactors (legal,logistical,ethical)whichmustbeconsideredinthedesignofasuccessfulmodel.Theseconsiderationsareaddressedinthefollowingsection. A support model can range from making existing services more accessible to developing a specialized program of support. Identifying a Campus Response to Support Students with ASD AsupportmodelforstudentswithASDcanrangeinscopefrommakingexistingservicesmore accessiblebyenhancingcurrentstructuresandpolicies,todevelopingafullystaffedprogramwithspecializeddirectsupports.Whatevertheapproach,it’simportanttorememberthatanASDsupportmodel shoulduniquelyreflecttheuniversity’sstrengths,mission,andculture,andnotsimplyreplicateanexistingprogram.Itmaybehelpfultoconsideraprogressivedevelopmentofservices,startingwithafocus oninfluencingthecampuscultureandmodifyingexistingservicestomeettheuniqueneedsofstudents withASDasfirststeps.Thisprocesscanbefollowedbythefurtherdevelopmentoftargetedorenhanced servicesorpossiblythedevelopmentofamorecomprehensiveprogrammodel,asdesiredandpractical. The following section and accompanying worksheet are designed to assist higher education professionals in considering the needs of their campus and the students they serve to determine the scope of services that can or should be offered. Getting Started: Assembling a Task Force Whetherconsideringthedevelopmentofindirectordirectresources,itishelpfultoassemblean implementationteamortaskforce.Thisallowsforcomprehensiveideas,awidereachofcampussupport, andtheformationofcollaborativerelationshipsthatwillbecriticaltosuccess.Thisteamcanalsobeben- 13 Identifying a Campus Response to Support Students with ASD eficialwhenmodifyinginitialplanstoaccommodatechangesincampusstructure,cultureoravailable resources.Taskforceteammembersmightincluderepresentativesfromstudentaffairs,academicdepartments,anddirectserviceandsupportstafffromacrosscampus.Ifappropriate,thosewhoareknowledgeableandexperiencedwithsupportingthispopulation(e.g.,thosewithfamily/friendswithASD)canserve aspowerfulalliesandcanbeimportantadditionstothisteam.Taskforcescanalsoseektheexpertise ofprofessionalconsultantsfamiliarwithdevelopingcollegesupportprogramsforstudentswithASDor thosewithabackgroundinAppliedBehaviorAnalysis(ABA),anapproachusedtoimpactcommunicationandlearningchallengesforchildrenontheautismspectrum(Rosenwasser&Axelrod,2001). Ataskforcemayworktogetherforanextendedperiodoftimeduringwhichkeyplanningdecisionsaremade.Onekeydecisionistheintentionalplacementoftheprogramwithinthecampusstructure,whichoftenhassignificantimplications.Forexample,aprogramoperatingwithinthedisability officewillhaveampleresourceswhenitcomestoaccommodations,butmayhaveadifferentperspective onsupportservicesthanaprogramhousedunderacounselingcenteroranacademiclearningcenter. Whatevertheapproach,strategiesshouldmatchtheknownoranticipatedneed,theavailablecampusresourcesandexpertise,andshouldcomplementtheoverallcampusenvironment.Thetaskforcemayalso helpshapethecampusprioritiesandensurethatsupports(eitherdedicatedorgeneral)alignwithstated goals,suchasenhancingthestudents’accesstoorincreaseduseofavailablecampusresources. Taskforcesarealsobeneficialforongoingoversightonceinitiativesaredetermined;ensuringsolid,transparentdecisionswiththeinputofstudents,parents,andcommunitypartners.Regularmeetings ensureaccountabilityandallowforconsultationandoversightfrominitialplanningthroughevaluation, fosteringcontinuousimprovement.Additionally,anactivetaskforcemaybechargedwithestablishing policiesandprocedurestohelpaddresslegalandethicalconcernsandensurethatprogramobjectives andstudentsuccessremainsapriority.Forexample,aprogramservingstudentswithASDmaybelooked atasanavailablesubjectpoolforresearchdepartments.Inthiscaseanestablishedpolicyfromthetask forceregardingresearchmaybebeneficial.Anothersignificantpolicyarearelatestodisclosure,whichis exploredinthenextsection. Issues of Disclosure TheissueofdisclosureimpactshowweservestudentswithASDintwodifferentways.Inthefirst case,thedeterminationofwhenandhowhighereducationprofessionalsmayshareinformationabouta student’sconfidentialorprivateinformationisgovernedbylegalandethicalstandardsandmustbemanaged.Inthesecondcase,itisimportanttomakeappropriateguidanceavailabletostudentsaboutthe decisionofwhenandtowhomastudentmightdiscloseinformationaboutadiagnosisofASD.Inboth cases,thedevelopmentofpolicyandprocedurestoguideday-to-daypracticewillbebeneficial. Professional Disclosure ExtensivelyusingthecampusinfrastructuretosupportstudentswithASDrequirescontinual interactionandcollaborationacrossthecampuscommunity.Sharingofstudentinformationthrough thesecollaborationsmustbedoneincompliancewithprivacyprotectionlawsaswellasinternalpolicies andproceduresregardingthetreatmentofstudentrecords(Gilley,A.&Gilley,J.W.(2006).TheFamily EducationalRightsandPrivacyAct(FERPA)protectseducationalrecords,whichincludesdocumentation submittedtoapostsecondarydisabilityoffice.Thisinformationcannotbesharedwithoutwrittenconsent fromthestudent.TheHealthInsurancePortabilityandAccountabilityActof1996(HIPAA)protectshealth information,suchasphysicalandmentalhealthconditions,andappliestoentitiesthatincludeuniversity healthcareprovidersorclinics.Thus,thecollegecounselingcenterorstudenthealthservicescannot shareinformationwithanyonewithoutthestudent’swrittenpermission. Cross-campuscollaborationiseffectiveinsupportingthesuccessofstudentswithASD.When professionaljudgmentnecessitatesdisclosureofstudentinformation,signedconsentformsshouldbeon fileandspecifywho,what,andunderwhatcircumstancesstudentinformationwillbeshared.Separate releaseformscanbeusedforinternalandexternalcollaborations.Decisionstodiscloseshouldalsoconsiderwhetherspecificidentifyinginformationisrequired.Forexample,theremaybeaneedto 14 Identifying a Campus Response to Support Students with ASD collaboratewithappropriateresidencelifestaff.Thedisclosuremaybegeneral(“youmayhaveastudent onyourfloorwithASD.”)orspecific(“Theresidentinroom24isastudentwithASD”). Beyondthecampuscommunity,parentscanbeintegralmembersofacollaborativeteamandareoftenin agoodpositiontoprovidefeedbackabouthowbesttoassistthestudent,particularlyintimesofchallenge.However,theremustbecarefulattentionpaidtoastudent’srighttoprivacy.Furthermore,there shouldbeafocusonsupportingthestudent’smovetowardindependentfunctioningwhilereducingthe student’srelianceonparents.Thus,studentsandparentsmustbeprovidedwithclearguidelinesregarding whenandwhatinformationwillbesharedandthefrequencyofinteractionparentscanexpecttohave withcollegestaff.Ofcourse,thepolicyforparentalinvolvementandconsenttoshareinformationneeds toalignwithcampuscultureandpolicy. Student Disclosure Thedecisiontodiscloseanon-apparentdisabilityisacomplicatedone.ItisimportanttorememberthatsomestudentswithASDmaynotseethebenefitofdisclosureandmayhaveastrongdesire toavoidbeinglabeled.Studentscanbeempoweredtomakedisclosuredecisionsbyunderstandingthe disclosureprocessandthepotentialbenefitsofdisclosure.Role-playingvariousscenariosandinitialassistanceincraftingdisclosureemailstoprofessorsisbeneficialandwillprovidementoringandguidance tothestudentonhowtoeffectivelyself-advocate.Itmayalsobehelpfultoprovidestudentswithatemplatedisclosureletterandfactsheetsthatmightbehelpfulinworkingwiththeirfaculty.Itisimportnatto considerthatsomestudentsmaylackanofficialdiagnosisofASDbutnonethelessexperiencechallenges similartothoseontheautismspectrumthatdisrupteverydayactivities. Considerations for the Development of a Comprehensive Program Model ProvidingdirectserviceandtargetedsupportstostudentswithASDbecomesproblematicwhen studentsdon’tidentifytotheuniversityasastudentwithadisability.However,wherethereisanincreasedpopulationofstudentswithASDwhochoosetodisclosetheirdiagnosisandconsequentlyan increaseddemandforservices,theremaybeaneedtoconsiderthedevelopmentofacomprehensive programdedicatedtoservingstudentswithASD.Inadditiontothefactorsalreadydiscussed,the following sections address areas that should be reviewed by campuses considering a comprehensive program model. Whenacampusbeginstoconsideracomprehensive program,it’simportanttobeawarethat somefaculty,stafforadministratorsmayexpressapprehensionaboutthepossibilitythatspecialized supportscouldattractstudentswithASDtothecampuscommunity.Itisimportanttorememberthatthe populationofstudentswithASDwhoarequalifiedtoattendinstitutionsofhigherlearningwillcontinue togrowandstudentswithASD,liketheirpeers,willcontinuetochoosecampusesbasedonoverallfit; weighingfactorssuchassize,fieldofstudy,academicreputation,cost,andlocation.Developingservices inanintentionalandmeasuredmannerandtakingintoaccountagrowingneedmayhelptoalleviate commonconcerns.ProvidingproactivesupportforstudentswithASDallowstheuniversitytousecampusresourcesinamoreintentionalwaybyanticipatingproblemsanddevelopingpreemptivemeasures. CarefullyconsideredsupportsforstudentswithASDcanalsohelpreducecrisissituationsthatcanarise forcollegeresidentialcommunities,counselingcentersandcampuspolicewhomaybeotherwiseunpreparedtosupportthisuniquepopulationofstudents. Establishing Program Admission Criteria and Intake Process Standardpracticedictatesthatstudentsmustfirstbefoundeligibleforadmissiontothecollege beforeapplyingforsupplementalsupports.Aftersuccessfuladmission,carefullyselectedprogramadmissioncriteriaallowfortheinclusionofstudentswithASDwhomightmostbenefitfromtheprogram’smissionandavailableresources.Programadmissioncriteriamaytakeintoaccountbothformalandinformal assessments.Forexample,programsmayassessastudent’sreadinessbasedonsocial,emotional,behavioral,andindependentlivingfunctioning,allofwhichserveasimportantpredictorsofsuccessincollege. Theprogramapplicationprocessmightalsoincludeawritingsampletorevealthestudent’sabilityto 15 Identifying a Campus Response to Support Students with ASD synthesizeandorganizeinformation,oritmayrequireinterestedstudentsand/orparentstoparticipatein aninterviewprocess.Suchinterviews,whichcanbeconductedineitherindividualorgroupformats,can providevaluableinformationaboutthestudent’sleveloffunctioning,aswellasthefamily’sexpectation, andinteractivestyle.Someprogramapplicationsmayrequiresupplementalorthird-partydocumentation, suchasaprimarydiagnosisofASD,whileotherssimplyrequireself-reportedidentificationassomeone whocanbenefitfromspecializedservicesforstudentswithASD.HighschoolIEP’smayalsobereviewed tounderstandthescopeofaccommodationsandsupportsthatmayberequiredforthestudenttobe successfulinthecollegeenvironment.Insomecases,thelevelofsupportthatisindicatedmayhaveresourceimplicationsandbebeyondtheabilityoftheprogramtoaddress.Inthiscase,areferraltoalternativesupportsmaybenecessary.Forexample,previoushistory,includingtheprovisionofaone-on-one aideinhigh-school,out-of-districtoralternatehighschoolplacements,modifiedgradesorcourses,past criminalactivityorseriousmentalillness,maywarrantseriousconsiderationaboutprogramadmission status.Reviewingsuchinformationhelpsensurethatstudentsareultimatelydirectedtothemostappropriateprogramstobestmatchtheirneeds. Aspartoftheadmissionandintakeprocess,twochallengingscenariosmaydevelopandit isimportantforinstitutionstoconsider,inadvance,howtorespond.Inonecase,studentswithASD mayhaveneedsthatcannotbemet,evenwithsupportwithinthecurrenttraditionalcollegestructure. Thesestudentsmayconsiderparticipationinanintellectualdisabilityprogramormayneedtoseekout programswithmoreintensiveorspecializedmentalhealthsupportspriortoenrollingincollege.Thus, itisrecommendedthatthesestudentsandtheirfamiliesbeinformedofpotentialalternatives.Alternativesmay includereferraltomoresupport-intensiveprogramsinthecommunityandtheopportunityto reapplyforprogramadmissionafteraddressingunderdevelopedskills.Insomecases,theuniversitymay allowstudentstodefercollegeenrollmentforuptooneyear,makingdeferralandreapplicationaviable option. AnotherimportantconsiderationisforthosestudentswithASDwhoattendtheuniversitybut electnottoparticipateinthesupportprogramofferedbythecollegeorthosewhoarenotacceptedto thespecializedprogrambasedonmatchorspacebutstillelecttoattendtheuniversity.Inthesecases, itisimportanttoensurethatthestudentandfamilyhaveanunderstandingofthesupportsthatwillbe available,includingaccommodationsandgeneralizedsupportservicesthatwouldotherwisebeavailable toallstudentsatthecollege. Regardlessofadmissiontoandparticipationinacomprehensiveprogram,animportantmessage tofamilies,andonethatisoftendifficulttounderstand,isthatastrongacademicrecord,evencombined withcomprehensivesupports,doesnotguaranteecollegesuccess.Justasisthecasewithtypicallydevelopingstudents,outcomesarenotpredictableandnotallstudentswillfindsuccess Program Staffing StaffingmodelsforprogramsdedicatedtostudentswithASDvaryaccordingtomanyfactors thatincludethelevelofresourcesandexistingsupportsaswellasthenumberofstudentsserved,and thelevelofindividualsupportprovided.Programsmaybestaffedbydisability servicepersonnelwhocommitacertainpercentageoftheirtimetoproviding specializedASDsupports,throughbothdirect-serviceandcollaborationswith otherdepartments.SomeprogramsutilizeaprimaryASDprogramcoordinator alongwithastaffofgraduateassistantsorundergraduatestudentvolunteers, whileothersutilizespecially-trainedpermanentstaff.Inallcasesfundingor One of the best ways to improve the experience for students with ASD is through a shift in campus climate. Identifying a Campus Response to Support Students with ASD theallocationofresourcesnecessarytoprovidesupportforstudentswithASDneedstobeconsidered withaneyeonefficiency.Itisimportanttokeepinmindthat,insomecases,existingcampusresources andstaffmayalreadyprovidefullyadequatesupportservicesandtheutilizationoftheseexistingservices isnotonlyprudentbutalsoservestoempowerstudentswithASDtoutilizesupportconsistentwiththe generalcampuspopulation. Staffingmodelsshouldalsoallowforvariance,asstudents’needsmaybemoreintensiveatdifferentstagesoftheircollegecareer(e.g.,theinitialtransitionintothecollegeenvironmentandpreparationforemploymentdesiredpost-graduation).Itisimportanttorememberthatprogramstaffwillneed tobeavailabletosupportfaculty/staffseekinginputandadvicethroughouttheacademicyear.Finally, itisimportanttoensurethatstaffhaveappropriateeducationalbackgroundsandexperience.Strong candidatesmayhavepreviousworkinsocialwork,counseling,specialeducationorotherrelatedfields. Additionaltrainingspecifictocampusrequirements,services,andcampusandprogramphilosophieswill furtherenhancestaffingsuccess. Program Funding Asisthecaseformostsupportservices,allocatingsufficientresourcesistheresponsibilityof thecollege.Thefundingsourcesofexistingcollegeprogramsvaryandmayconsistofanycombinationoffederalorfoundationgrants,endowments,studentfees,andinstitutionalsupport.Programsmay beinitiallysupportedbyagrantandlaterbecomeself-sufficientviaimplementationofprogramfeesor fundraisingefforts.Scholarshipscanbecreatedbysponsors,andotherfinancialresourceswhichcan helpcoverprogramfees,suchasvocationalrehabilitationagencies,canberesearched.Studentscanbe directedonhowtoapplyforadditionalfinancialsupport.Aslidingscalefeemayalsobeanimportant meansofallowingaccesstoallsocioeconomicgroups. Inadditiontoidentifyingoverallprogramfundingsources,itisalsoimportanttoconsiderpotentialwaystomeetstaffingexpenses.Insomecases,oversightofservices,indirectordirect,maybemanagedbystaffaspartoftheirexistingrole,eliminatingtheneedfordedicatedstaffatincrementalcosts.As thescopeofservicesincreases,theneedfordedicatedand/orspeciallytrainedstaffmayalsoincrease. Inthesecases,theuseofgraduatestudentsfromappropriateprogramsofstudy(e.g.,schoolpsychology, socialwork,specialeducation)oradjunctprofessionalsmaybeeffectiveinservingsmallpopulationsof students.Largerinitiativesorcomprehensiveprogramswilllikelyrequirepermanent,dedicatedstafflines andmatchedfunding.Shiftingtothislevelofinstitutionalsupportwillrequirecommitmentattheleadershiplevelbydecision-makerswhoseethevalueoftheseprogramsandhavetheabilitytodesignatefunding. Providing proactive supports to students with ASD allows the university to use resources in a more intentional way 17 Identifying a Campus Response to Support Students with ASD Evaluating Program Success Ongoingevaluationisimportantforcontinualimprovementandtoensureprogramgoalsare beingmet.Additionally,students,parents,orotherfundersneedtoknowthattheservicesarebeneficial. Multiplesourcesoffeedbackallowfortheconsiderationofdifferentperspectives:students,parents,the universitycommunity,andotherstakeholders.Thiscanbehelpful,asstudentsaren’talwaysthebestselfreportersormaylackawarenessoftheimpactofsomesupports. Tomaintainadministrativesupportovertime,aswellastoprovideconcretefeedbacktostakeholders,quantitativefeedbackisessential.Changesinpersistencerates(numberofstudentswhousethe programandareeitherretainedorgraduate)inrelationtothoseoftheoverallstudentpopulation,can provideaclearpictureofprogramsuccess,ascangraduationandemploymentrates.Othersuccessindicatorsmayincludeincreasingscoresinmeasuresofstudentcompetencies,adjustment,andwell being. However,certainchallengescanarisewhenmeasuringsuccess.Thevalue-addedfromprogram supportsisoftenrepresentedbyqualitativevariablesthataredifficulttoempiricallymeasure.Forexample,itisdifficulttoquantifyastudent’simprovementinmanagingsensoryintegrationissues.Also, graduationratesmaynotnecessarilyreflectasuccessfuloutcomeforthisgroupofstudents:somemay transfertootherinstitutionsthatareabetterfit,somemayfindfulfillingemploymentbeforegraduating; whilestillothersmaygraduatewithoutbeingabletosecureemploymentduetolimitationsinsocialand emotionalfunctioning.Inotherwords,studentsuccessmaynotbeconsistentwiththeinstitutionstypical measures ofsuccess.Thiscanbeproblematiciffundingisperceivedascomingattheexpenseofother programming.Therefore,itisimportanttointentionallyalignprogramevaluationwithbothuniversityand stakeholderobjectives,particularlywhentaxpayerortuitiondollarsarebeingusedforfunding. Regardless of the current situation on your campus, this guide was developed to provide a basis for information and reflection about how to best serve students with ASD in your environment. We encourage you to utilize the Support Model Planning Worksheet in the next section and refer to the Existing Program summaries provided at the back of this guide as you apply this information to your specific campus community. Changes in persistence, graduation or employment rates for students with ASD can provide a picture of program success. 18 Support Model Planning Worksheet CampusProfile • • • Whatisthesizeofyourcampus(totalenrollment)? WhatistheestimatedsizeofyourpopulationofstudentswithASD? oIdentified oNot-Identified(bestestimate) ArethereagrowingnumberofstudentswithASDonyourcampus?Whatistherateofgrowth? ExistingServices • • • • • • • • • • WhatisthedistributionofgraduateversusundergraduatestudentswithASD?ExistingServices WhatservicescurrentlyexistonyourcampustosupportALLstudentsinthetransitiontocollege (e.g.,orientation,firstyearprograms)? WhatservicescurrentlyexistonyourcampustosupportALLstudentsinpersistencetocollege (e.g.,academically,socially,residentially)? WhatservicescurrentlyexistonyourcampustosupportALLstudentsinthetransitiontothe workforce(e.g.,internships,careerpreparation,jobplacement)? WhatservicescurrentlyexistonyourcampusthatservestudentswithASDinanindirect manner(e.g.,professionaldevelopment/training,awarenessprogramming,campusexperts)? WhatservicescurrentlyexistonyourcampusthatservestudentswithASDinadirect/targeted manner(e.g.,coaching/mentoring,socialskillsgroupsincounselingservices,disabilityservices)? Whatisthecurrentlevelofexperienceamongyourprofessionalstaffinsupportingstudentswith ASD(e.g.,academicadvisors,residentialstaff,counselingcenterstaff)? HowpreparedareyourfacultytosupportstudentswithASDintheclassroom? Howstrongisthesupportfromthegeneralcampuscommunityregardingtheneedfortargeted supportsforstudentswithASD?Howmightadditionalsupportbegarneredpriortoadvancing programmaticinitiatives? Howstrongisthepotentialbuy-infromdecisionmakersregardingtargetedsupportsforstudents withASD?Howmightadditionalsupportbegarneredpriortoadvancingprogrammaticinitiatives? PrevailingChallenges • Consideringtheprevailingchallengesorissuescurrentlybeingexperiencedwithoraroundstudents withASD,whatskillsets(ordomains)arepresentingthegreatestchallengeforstudentswithASD onyourcampus? oExecutiveFunctioning oAcademicSkills oSelf-Care oSocialCompetence oSelf-Advocacy oCareerPreparation oOther 19 Support Model Planning Worksheet ConsideringaCampusResponse •Whatlevelofresponseareyouseekingtoachieveatthistime? oAwarenessandacceptanceprogramming oFaculty/StaffprofessionaldevelopmentspecifictostudentswithASD oExtendexistingservicestomeetamorespecializedneed oDeveloptargetedservicesforstudentswithASD oDevelopacomprehensiveprogramservicemodelforstudentswithASDActionPlanning Regardless of institutional goals, it is strongly recommended that planning begin with the establishment of a task force. Once formed, this work group may draw upon the campus profile, existing services and prevailing challenges sections above to determine short and long term goals for your campus. Based on these goals, the sections below will help guide the work group in decision-making related to priorities and implementation plans. These sections map to the earlier resource guide materials (as indicated). It may be helpful for the task force to review this material as they consider campus responses. Additionally, the task force may find it helpful to refer the Existing Comprehensive Program Models (pg. )section of this guide as an additional reference. Taskforcedevelopment • Whoarethepotentialchangeagentsonyourcampus? • Whocouldbeinvolvedinaninitialandongoingtaskforce? • Whatdepartment(s)orpersonnelmighttakealeadershiprole? Issuesrelatedtodisclosure • Howwillyourcampushandleissuesofdisclosurerelatedtocampusprofessionals? • Howwillyourcampushandleissuesofdisclosurerelatedtostudents? Opportunitiesforindirectimpact • WhatstepscouldyourcampustaketoincreaseAwarenessandAcceptance? • WhatstepscouldyourcampustakeinTrainingtheCampusCommunity? • WhatstepscouldyourcampustaketoDevelopCampusExpertise? • WhatstepscouldyourcampustaketoEnhanceExistingProgramsandServices? Opportunitiesfordirectimpact • BasedonthechallengespresentedbythepopulationofstudentswithASDonyourcampus, wouldCoachingandMentoringservicesbeapriority?Ifso,whatresourcesareavailableor wouldberequired? • BasedonthechallengespresentedbythepopulationofstudentswithASDonyourcampus, wouldTargetedSkillDevelopmentservicesbeapriority?Ifso,whatresourcesareavailable orwouldberequired? • BasedonthechallengespresentedbythepopulationofstudentswithASDonyourcampus, wouldSummerTransitionProgrammingservicesbeapriority?Ifso,whatresourcesareavailable orwouldberequired? • BasedonthechallengespresentedbythepopulationofstudentswithASDonyourcampus, wouldSupportiveLivingservicesbeapriority?Ifso,whatresourcesareavailableorwould berequired? • BasedonthechallengespresentedbythepopulationofstudentswithASDonyourcampus, wouldStudentEmpowermenteffortsbeapriority?Ifso,whatresourcesareavailableorwould berequired? • BasedonthechallengespresentedbythepopulationofstudentswithASDonyourcampus, wouldSocialProgrammingservicesbeapriority?Ifso,whatresourcesareavailableorwouldbe required? 20 Support Model Planning Worksheet Furtherconsiderationsforthedevelopmentofacomprehensiveprogram If the needs and resources identified merit consideration of a comprehensive support program, the following areas will require serious discussion and development. • • • • • Basedonthesizeandscopeoftheprogramyouareconsideringandtheresourceavailability,what policiesandproceduresmightyouconsiderforanAdmission Criteria and IntakeProcess? Basedonthesizeandscopeoftheprogramyouareconsidering,whatresourcescanyou utilizeforProgram Staffingandwhattrainingandsupervisionwillberequiredtosupportthis model? Basedonthesizeandscopeoftheprogramyouareconsidering,whatProgram Fundingsource canyoupursuetosupporttheinitiative? Whatexternalresources(e.g.fundingagencies)mightbeavailabletosupportaprogramor it’sparticipants? Basedonthemodelyoudevelopandthestakeholdersinyourprogram,howwillyouEvaluate Program Success? NOTES 21 NOTES 22 References Boyd,B.A.,&Shaw,E.(2010).AutismintheClassroom:AGroupofStudentsChanginginPopulationand Presentation.Preventing School Failure, 54(4), 211-219. Brinckerhoff,L.C.(1994).Developingeffectiveself-advocacyskillsincollege-boundstudentswithlearning disabilities. Intervention In School & Clinic, 29(4), 229. CentersforDiseaseControlandPrevention.(CDC;2014).10ThingstoKnowAboutNewAutismData. Retrievedfrom:http://www.cdc.gov/features/dsautismdata/. Gerhardt,P.F.,&Lainer,I.(2011).Addressingtheneedsofadolescentsandadultswithautism:Acrisison thehorizon. Journal of Contemporary Psychotherapy, 41(1), 37-45. Gilley,A.&Gilley,J.W.(2009).“FERPA:WhatdoFacultyKnow?WhatcanUniversitiesdo? College and University 82 (1), 17-26. Parker,D.R.,&Boutelle,K.(2009).ExecutiveFunctionCoachingforCollegeStudentswithLearning DisabilitiesandADHD:ANewApproachforFosteringSelf-Determination.Learning Disabilities Research & Practice, 24(4), 204-215. Rosenwasser,B.,&Axelrod,S.(2001).Thecontributionofappliedbehavioranalysistotheeducationof peoplewithautism.Behavior Modification, 25(5), 671-677. Stichter,J.P.,Herzog,M.J.,Visovsky,K.,Schmidt,C.,Randolph,J.,Schultz,T.,&Gage.N.(2010).Social CompetenceInterventionforYouthwithAspergerSyndromeandHigh-functioningAutism:AnInitial Investigation.Journal of Autism and Developmental Disorders, 40 (9), 1067-1079 Tager-Flusberg,H.(1999).APsychologicalApproachtoUnderstandingtheSocialandLanguage ImpairmentsinAutism.International Review of Psychiatry, 11(4), 325-34. Thomas,S.B.(2000).Collegestudentsanddisabilitylaw. Journal of Special Education, 33, 248–257. Wehman,P.,Schall,C.,Carr,S.,Targett,P.,West,M.,&Cifu,G.(2014).Transitionfromschooltoadulthood foryouthwithautismspectrumdisorder:Whatweknowandwhatweneedtoknow.Journal of Disability Policy Studies, 25(1), 30-40. 23 Existing Comprehensive Program Models Pleasenote:Institutionaldatareflectsdatafrom2013-14academicyear. Eastern University Private/Public:PrivateUndergraduatePopulation:2541 GraduatePopulation:1463 AverageSATscoresfornewlyadmittedfreshmen:1044 AverageACTscoresfornewlyadmittedfreshmen:22 Highestenrolledundergraduatemajors:Psychology,EarlyChildhoodEducation,SocialWork, YouthMinistry,andManagement PercentofenrolledUGstudentslivingoncampus:92%enteringstudents,73%returningstudents PercentofenrolledUGstudentseligibleforPellGrants:47% NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:100 NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:9 ProgramName:CollegeSuccessProgram(CSP) ProgramHousedUnder:CushingCenterforCounselingandAcademicSupport ProgramMission:TheCollegeSuccessProgramforStudentsLivingwithAutismSpectrumDisorder providestargetedsupport,practicalknowledge,andculturalawarenesstostudentslivingwithAutism SpectrumDisorderandtothecommunityofEasternUniversity.Themissionisconfirmedandcelebrated whenstudentslivingwithAutismSpectrumDisorderhaveequalaccesstoanundergraduateeducation intheCollegeofArtsandSciences,cansuccessfullyparticipateintheacademic,residential,andsocial realmsoftheUniversity,andcanfulfillthegreatermissionofEasternUniversity. YearInitiated:2012 ProgramEnrollment:6 LimitedNewAdmitsperYear:12 SourcesofFunding:ParticipantFees Staffing:Onefulltimecoordinatorandoneparttimeadministrativeassistant.Twograduatementors whoreceiveagranttocovertuition,room,andboard.Fourundergraduatementorswhoreceivea stipend. ProgramWebsite:http://www.eastern.edu/student-life/academic-support-counseling-and-disabilityservices/college-success-program 24 Existing Comprehensive Program Models Mercyhurst University Private/Public:Private UndergraduatePopulation:2680 GraduatePopulation:331 AverageSATscoresfornewlyadmittedfreshmen:1604 AverageACTscoresfornewlyadmittedfreshmen:25 Highestenrolledundergraduatemajors:Business,IntelligenceStudies,SportsMedicine,CriminalJustice, andEducation PercentofenrolledUGstudentslivingoncampus:93%freshmen,68%ofallundergraduates PercentofenrolledUGstudentseligibleforPellGrants:31% NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:175 NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:27 ProgramName:AspergerInitiativeatMercyhurst(AIM)ProgramHousedUnder:LearningDifferences ProgramProgramMission:ThemissionofAIMistoeducatecollegestudentslivingwithanAutism SpectrumDisorderinaprogramthatequallyemphasizesacademicandsocialcompetencytobuild skillsforacademicandvocationalsuccess. YearProgramInitiated:2008 ProgramEnrollment2013:22(21liveoncampus) LimitedNewAdmitsperYear:6-9students SourcesofFunding:Participantfees,institutionalfundingandotherfunding. Staffing:1fulltimedirector,2parttimeuniversityemployees,and2studentworkers(paidand/orreceive collegecredit). ProgramWebsite: http://www.mercyhurst.edu/admissions/learning%20differences%20program/asperger%20initiative 25 Existing Comprehensive Program Models Rochester Institute of Technology Private/Public:Private UndergraduatePopulation:15,410GraduatePopulation:2,882 AverageSATscoresfornewlyadmittedfreshmen:1784 AverageACTscoresfornewlyadmittedfreshmen:28 Highestenrolledundergraduatemajors:TwolargestcollegesbyenrollmentareGolisanoCollegeof ComputingandKateGleasonCollegeofEngineering,whichofferavarietyofdegreesinfieldsof ComputerandInformationSciences,aswellasEngineering PercentofenrolledUGstudentslivingoncampus:95%offreshman,55%ofallundergraduates PercentofenrolledUGstudentseligibleforPellGrants:30.6%(full-timefirst-timebachelordegree seekingfreshmen) NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:777 NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:85 ProgramName:SpectrumSupportProgram(SSP) ProgramHousedUnder:StudentLearningSupportandAssessment ProgramMission:ProvideservicetotheRITcommunityinordertosupportthesuccessofstudentson theautismspectrum.Directsupportofstudentsontheautismspectrumacrossmajorsocialand academicdomainsaswellasimpactcampusculturethroughtraining,advocacyandcollaboration withcampuscommunity. ProgramInitiated:2008 ProgramEnrollment2013:48 LimitedNewAdmitsperYear:NoLimit-Maylimitnewadmitsafterstartoffallterm SourcesofFunding:ParticipantFeesandInstitutionalFunding Staffing:1full-timedirector,graduatestudentsaspaidmentors,aswellascontractedadjunctsinthe positionsofcasemanagers,EFcoaches,andseminarinstructors. ProgramWebsite:http://www.rit.edu/studentaffairs/ssp/ 26 Existing Comprehensive Program Models Rutgers University—New Brunswick Private/Public:Public UndergraduatePopulation:33,901 GraduatePopulation:14,135 Verbal-581;Math-631;Writing-596 AverageSATscoresfornewlyadmittedfreshmen:Verbal:581;Math:631:Writing:596‘ AverageACTscoresfornewlyadmittedfreshmen:NotAvailable Highestenrolledundergraduatemajors:BusinessManagement,Pharmacy,Nursing,Communications, andBiologicalSciences. PercentofenrolledUGstudentslivingoncampus:47.5% PercentofenrolledUGstudentseligibleforPellGrants:9,810receivedPellgrantsinFall2013,30% NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:1200 NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD: Notavailable ProgramName:CollegeSupportProgram(CSP)ProgramHousedUnder:RutgersHealthServicesCounseling,AlcoholandOtherDrugAssistanceProgram&PsychiatricServices(CAPS) ProgramMission:TheCollegeSupportProgramforStudentsontheAutismSpectrum(CSP)isdedicated tohelpingstudentsdevelopskillsandstrategiestosuccessfullyparticipateinallareasofUniversitylife. TheCSPisanintegrativeandcollaborativeprogramthathelpsstudentstoestablishandpursue individualized,behaviorallytargetedgoalstosuccessfullynavigatechallengesfacedattheUniversity level.UnderthedirectionofRutgersUniversity-HealthServices-Counseling,Alcohol&OtherDrug AssistanceandPsychiatricServices(CAPS),theCollegeSupportProgramprovidescommunityeducation topromoteaUniversityenvironmentthatisbothsupportiveandinclusive. ProgramInitiated:2009ProgramEnrollment2013:11 LimitedNewAdmitsperYear:Variesdependingonresources SourcesofFunding:ParticipantFeesandInstitutionalFunding Staffing:Onefull-timeprogramcoordinatorandundergraduatevolunteermentors ProgramWebsite:http://rhscaps.rutgers.edu/services/autism-spectrum-college-support-program 27 Existing Comprehensive Program Models University of Tennessee at Chattanooga Private/Public:Public UndergraduatePopulation:10,297 GraduatePopulation:1,377 AverageSATscoresfornewlyadmittedfreshmen:NotAvailable AverageACTscoresfornewlyadmittedfreshmen:23.2 Highestenrolledundergraduatemajors:Chemistry,Engineering,Psychology,Health&Human Performance,andEarlyChildhoodEducationPercentofenrolledUGstudentslivingoncampus:32% PercentofenrolledUGstudentseligibleforPellGrants:NotAvailable NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:1246 NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:49 ProgramName:MoSAIC ProgramHousedUnder:DisabilityResourceCenter ProgramMission:MosaicProgramisaholisticprogramdesignedtosupport,educateandchallengethe personalandacademicdevelopmentofcollegestudentswithAutismSpectrumDisorders.Through developingastrongandacceptingcommunityinwhichstudentsareofferedstructure,studentsareen couragedtolearntogether,supporteachother,andtakerisks,inthehopesofdevelopinghighly qualifiedgraduateswhoarereadytoenterthecompetitiveworkforce. ProgramImitated:2009ProgramEnrollment2013:39 LimitedNewAdmitsperYear:10 SourcesofFunding:Participantfees,grantfunding,foundation/giftfunding,andfundraising Staffing:Onefull-timedirectorofDisabilityServiceswhodevotespartialtimetotheprogram, 40studentworkers(receivecollegecredit/volunteer) ProgramWebsite:http://www.utc.edu/disability-resource-center/mosaic.php 28 Existing Comprehensive Program Models University of West Florida Private/Public:Public UndergraduatePopulation:10,158 GraduatePopulation:2,430 AverageSATscoresfornewlyadmittedfreshmen:1029 AverageACTscoresfornewlyadmittedfreshmen:23 Highestenrolledundergraduatemajors:NotAvailable PercentofenrolledUGstudentslivingoncampus:20% PercentofenrolledUGstudentseligibleforPellGrants:NotAvailable NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:450 NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:27 ProgramName:AutismInclusionProgram(AIP) ProgramHousedUnder:StudentDisabilityResourceCenter ProgramMission:ToprovidethehighestlevelofsupporttocollegestudentswithAutisminaprogram thatequallyemphasizesacademicandsocialcompetency.ThegoaloftheAIPistoenhancethecollege experienceofUWFstudentswithAutismbyofferingprogramsthatsupportacademic,social,lifeskills, andcareerpreparationwhilealsoservingasaplatformforsocialinvolvementinextracurricular activities. YearInitiated:2010 ProgramEnrollment2013:22(12residential) LimitedNewAdmitsperYear:Nolimit SourcesofFunding:Noofficialbudget Staffing:DirectorofStudentDisabilityResourceCenterdenotesaportionoftimetoprogram,along withagraduateassistant. ProgramWebsite:http://uwf.edu/offices/case-management/autism-inclusion-program/autism-inclusionprogram/ 29 Existing Comprehensive Program Models Western Kentucky University Private/Public:Public UndergraduatePopulation:18,115 GraduatePopulation:3,009 AverageSATscoresfornewlyadmittedfreshmen:NotAvailable AverageACTscoresfornewlyadmittedfreshmen:22 Highestenrolledundergraduatemajors:ElementaryEducation,Nursing,Biology,Interdisciplinary Studies,andManagement PercentofenrolledUGstudentslivingoncampus:29% PercentofenrolledUGstudentseligibleforPellGrants:43% NumberofenrolledUGstudentsregisteredwithdisabilitysupportoffice:473 NumberofenrolledUGstudentsregisteredwithdisabilitysupportofficewithadocumentedASD:51 ProgramName:CollegeandCircleofSupport ProgramHousedUnder:KellyAutismProgram ProgramMission:TheKellyAutismProgram’smissionistoprovideaneducational,socialandsupportive environmentsothatindividualsdiagnosedwithAutismSpectrumDisordercanachievetheirpotential asproductive,independent,andemployablecommunitycitizens. YearImitated:2005ProgramEnrollment2013:41(40inresidentialhousing;1athome) LimitedNewAdmitsperYear:10 SourcesofFunding:Participantfees,grantfunding,andinstitutionalfunding. Staffing:Threefull-timeemployees,threepart-timeemployees,and12studentworkers,whoare paidand/orreceivecollegecredit. ProgramWebsite:http://www.wku.edu/kellyautismprogram/collegeandcircleofsupport.php 30 December2014 RochesterInstituteofTechnology•OneLombMemorialDrive•Rochester,NewYork14623 SpectrumSupportProgram•CampusCenter,Suite2720 Phone:(585)475-6936•E-mail:ssp@rit.edu