Oxford Biomedical Research Unit Oxford Biomedical Research Centre Surgery for Common Shoulder Problems Newsletter, February 2015 We are sending you this Newsletter because you took part in our survey last year, and said that you would like to be kept informed about the results. The direction of research is often set by researchers or by the implant industry. We want to enable patients, carers, and the health and social care professionals who look after people with common shoulder problems to have their say, so that future research is aligned with what matters most to everyone whose life is affected. We now need your help with the next stage! We think it is essential that the future of research in this area in the UK is informed by you – the people who live with, or treat common shoulder problems. We would value your opinion and help in determining research priorities. In August and September of 2014, we ran an online survey to ask what questions those people think researchers should be working on. We were delighted to receive more than 300 responses and over 600 questions to review, in order to identify key research topics. Our data team has been very busy checking through all the suggestions as well as checking the existing research to see what questions have already been answered. Some questions are identical or very similar and can be combined. We also have to make sure that the questions are worded in such a way that they are useful in influencing the direction of research funding. A list of around 50 questions is being produced for the next stage of the process. We ask for just 20-30 minutes of your time. We will then need patients, carers, and health and social care professionals to help us to further refine this list to include the questions that you think are the highest priority. This interim prioritisation process should provide us with a list of “Top 30” questions. Your contribution is very important to us. You will be helping to identify the questions that will be considered in the Final Workshop in June and may appear in the final Top 10. If you would like to help, please contact Sandra Regan by March 13th (details below) with: Your name Whether you would like to do it online or by post (and make sure to include your e-mail address or postal address) Whether you are someone with shoulder problems, or a health/ social care professional, or both If you are a health/ social care professional, what your role is (e.g. surgeon, physio, GP, nurse, OT) Please also state “Shoulder PSP” when you get in touch Finally, a workshop will be held in June this year where people who are either living with a shoulder problem themselves, or are clinicians with expertise in shoulder problems, will assess the ‘Top 30’ questions and, from these, agree which are the “Top 10” priorities for future research. Contact details: Sandra Regan – James Lind Alliance Project Manager NIHR Oxford Biomedical Research Centre, Churchill Hospital | Joint Research Office |Block 60 | Oxford OX3 7LE Tel: (01865) 223298 E-mail: sandra.regan@ouh.nhs.uk Your task would be to look at the list of around 50 questions and score them in importance – saying, YES to those you consider important, NO to those you consider unimportant, or UNSURE to any questions you find difficult to assess. The questions will be provided to you in an easy format online if you have internet web access, or by post if you don’t. We would either send you the web link to the questions, or the list by post, in mid-March, and ask you to reply by early April. A final date is still to be agreed. If you are replying by post, you can complete and return the form on the following page. Supporting partners: Chartered Society of Physiotherapy; Arthritis Care; Arthroplasty Care Practitioners Association; Royal College of Nursing, Society of Trauma and Orthopaedics; Pain Concern; Royal College of Anaesthetists / National Institute of Academic Anaesthesia Oxford Biomedical Research Unit Oxford Biomedical Research Centre The James Lind Alliance (JLA) brings together patients, carers and health and social care professionals in Priority Setting Partnerships (PSPs) to agree what research matters most in given disease areas. There is much that is still unknown about which patients with common shoulder problems are best treated with surgery, at what stage this surgery is best advised, and how best to ensure a good and rapid recovery. There are also uncertainties about which operations and techniques might be best, and when such operations should be considered over conservative treatment such as physiotherapy. The Priority Setting Partnership on Surgery for Common Shoulder Problems was set up last year to identify unanswered questions in this area. We would like to say a big thank you to everyone who has participated so far. With very best wishes, The Steering Group for the Priority Setting Partnership on Surgery for Common Shoulder Problems ---------------------------------------------------------------------------------------------------------------------------I would like to help with the next stage of the Priority Setting Partnership on Surgery for Common Shoulder Problems: Name: I would like to receive the questions online, and my e-mail address is: I would like to receive the questions by post, and my address is: I have a shoulder problem: Yes/ No I care for someone who has a shoulder problem: Yes/ No I am a health or social care professional: Yes/ No As a health or social care professional my role is (e.g. surgeon, physio, GP, nurse): Please return by March 13th to: Sandra Regan – James Lind Alliance Project Manager NIHR Oxford Biomedical Research Centre, Churchill Hospital | Joint Research Office |Block 60 | Oxford OX3 7LE Supporting partners: Chartered Society of Physiotherapy; Arthritis Care; Arthroplasty Care Practitioners Association; Royal College of Nursing, Society of Trauma and Orthopaedics; Pain Concern; Royal College of Anaesthetists / National Institute of Academic Anaesthesia