Policy Opportunities for Addressing Child Health (& Health Care) Disparities Lisa Simpson, MB, BCh, MPH, FAAP Outline • A “look back” • Range of possible approaches • Three major vehicles – CHIPRA – ARRA (Stimulus Bill) – Health Reform • Some principles going forward • Discussion A “Look Back” • Seemingly endless reports on disparities during 1990’s • HP 2010 Goals include eliminating health disparities • IOM’s Unequal Treatment • RWJF Commission on a Healthier America • Role of CHSR community: – Research as a focusing event Research as Focusing Event Research as Focusing Event National Center for Minority Health and Health Disparities; AHRQ National Healthcare Disparities Report Outline • A “look back” • Range of possible approaches Child Health Policy Social Environment Biology Children’s Health Behavior Physical Environment Services Institute of Medicine, 2004 Child Health Disparities & Policy Opportunities • “Traditional” health policy – Insurance coverage, access, quality Child Health Disparities & Policy Opportunities • “Traditional” health policy – Insurance coverage, access, quality • Welfare policy • School policies – School lunches, pouring contracts, PE requirements • USDA policies – WIC, food stamps • Education policy • • • • – IEP’s, specialized services Housing policy Transportation policy Tax policy Many others Outline • A “look back” • Range of possible approaches • Three major vehicles – CHIPRA – ARRA (Stimulus) – Health Reform CHIPRA & Disparities • The obvious – Reducing uninsurance, improving acces • Other – Outreach and enrollment – Quality measurement • Sec. 1139A(a)(3)(D). The types of measures that, taken together, can be used to estimate the overall national quality of health care for children, including children with special needs, CHIPRA & Disparities • The obvious – Reducing uninsurance, improving access • Other – Outreach and enrollment – Quality measurement • Sec. 1139A(a)(3)(D). The types of measures that, taken together, can be used to estimate the overall national quality of health care for children, including children with special needs, and to perform comparative analyses of pediatric health care quality and racial, ethnic, and socioeconomic disparities in child health and health care for children. CHIPRA & Disparities • Reports to Congress – Sec. 1139A(a)(6)(A)(iii) the quality of children's health care under such titles across the domains of quality, including clinical quality, health care safety, family experience with health care, health care in the most integrated setting, CHIPRA & Disparities • Reports to Congress – Sec. 1139A(a)(6)(A)(iii) the quality of children's health care under such titles across the domains of quality, including clinical quality, health care safety, family experience with health care, health care in the most integrated setting, and elimination of racial, ethnic, and socioeconomic disparities in health and health care; CHIPRA & Disparities • Reports to Congress – Sec. 1139A(a)(6)(A)(iii) the quality of children's health care under such titles across the domains of quality, including clinical quality, health care safety, family experience with health care, health care in the most integrated setting, and elimination of racial, ethnic, and socioeconomic disparities in health and health care; • Pediatric Quality Measures Program – Sec. 1139A(b)(3)(D) health care providers that furnish primary health care to children and families who live in urban and rural medically underserved communities or who are members of CHIPRA & Disparities • Reports to Congress – Sec. 1139A(a)(6)(A)(iii) the quality of children's health care under such titles across the domains of quality, including clinical quality, health care safety, family experience with health care, health care in the most integrated setting, and elimination of racial, ethnic, and socioeconomic disparities in health and health care; • Pediatric Quality Measures Program – Sec. 1139A(b)(3)(D) health care providers that furnish primary health care to children and families who live in urban and rural medically underserved communities or who are members of distinct population sub-groups at heightened risk for poor health outcomes; CHIPRA & Disparities • Obesity Demonstration - $25 M – located in communities that are medically underserved, as determined by the Secretary – located in areas in which the average poverty rate is at least 150 percent or higher of the average poverty rate in the State involved, as determined by the Secretary • IOM Study - $1 M – identify gaps in knowledge related to children's health status, health disparities among subgroups of children, the effects of social conditions on children's health status and use and effectiveness of health care, and the relationship between child health status and family income, family stability and preservation, and children's school readiness and educational achievement and attainment; … ARRA (Stimulus Bill) • NIH Funding ($10 B) – Challenge Grants • Health disparities one of 15 priority areas • Total of 7 specific calls: – Ethical Issues in Health Disparities and Access to Participation in Research – Social Determinants of Health – Geographic Disparities in Medicare Usage and Cost – Building trust between researchers and communities through capacity building in Environmental Public Health – Creating Transformational Approaches to Address Rural Health Disparities – Trans-disciplinary Research to Integrate the Biological and Nonbiological Determinants of Health to Address Health Disparities – Initiating Innovative Interventions to Prevent Family Violence. – Various other calls ARRA (Stimulus Bill) • Comparative Effectiveness Research ($1.1 B) – Federal Coordinating Council – IOM Committee – Public Input • Health information technology – Policy committee to make broad range of recommendations • technologies that address the needs of children and other vulnerable populations – Meaningful use definition – Incentives and Resource Centers • Other… Health Reform • Disparities specific part of President Obama campaign platform • Report “Health Disparities: A Case for Closing the Gap” released June 10, 2009 – “We can no longer afford to tolerate disparities in health.” • Emphasis on uninsurance, access, prevention, chronic illness care. • Health equity and Accountability Act of 2009 • Major reform bills: – Senate HELP – Senate Finance – House Tri-Committee bill Health Reform • Concerns for children linked to future of Medicaid/CHIP • Disparities addressed in all • Range of strategies: – Establish reducing disparities as a national quality priority – Many quality provisions – Focus on medical home – Workforce and training provisions • NHSC • Incentives for primary care Health Reform • Community teams, wellness programs • Community based public health services • Public plan focused provisions – Culturally and linguistically appropriate care – Payment provisions linked to disparity reduction • Cultural and linguistic competence – Payment incentives – Workforce provisions – Emphasis on language access issues • Data collection Outline • A “look back” • Range of possible approaches • Three major vehicles – CHIPRA – ARRA (Stimulus Bill) – Health Reform • Some possible principles • Discussion Some Possible Principles • Principle 1: Inclusion of child health disparities focus – Explicit mention of disparities in all provisions – Explicit attention/mention of children in all disparity related provisions • Principle 2: Monitor progress – Investments in data and measurement at all levels – Use incentives for data as needed (e.g. pay for reporting) • Principle 3: Accelerate learning – Invest in national/regional/state based infrastructure to develop and spread effective disparity reduction strategies • Principle 4: Transparency – Report annually to Congress and public on progress Ideas • Use existing evidence • Think afresh on how to get healthcare to kids – e.g. school based • Link health indicators to school participation • Transportation related issues in public plan, exchange, etc • EHR – focus on pediatric content • Some definition of what child health is and link to risk assessment for adults “children are different” • Wellness and prevention – not adult • Link of clinical with community/population health • Issues of rural/frontier: • • • • Tie to non-health outcomes Not just future value – present value Children – pre-conception to ? All of children’s needs across life course/needs • Separate analyses on children!!!!!!!! • Focus on populations & subgroups, of both children/providers • Accountability entities • Local data more than national Discussion! Lisa Simpson, MB, BCh, MPH, FAAP Director, Child Policy Research Center Professor, Department of Pediatrics www.cincinnatichildrens.org/cprc