Family Presence in Adult Patients’ Routine Physician Visits: A Review and Synthesis of the Literature Jennifer L. Wolff and Debra L. Roter June 2010 Background • F Families ili are iinvolved l d iin h health lth care processes Proxy decision-makers in end-of-life care Personal care and household task assistance g disabilityy for short- or long-term Help patients transition from hospital to home • Although less studied, studied growing awareness that chronically ill adults are commonly accompanied to routine physician visits Questions 1. How frequently are adults accompanied to routine p physician y visits? 2. Do accompanied patients differ from unaccompanied patients, patients and if so so, how? Who are accompanied patients’ companions? 3. Does patient accompaniment to physician visits have a bearing for communication processes or outcomes? p Methods: Identification of Studies PsychInfo and PubMed 1949 1949-July July 2009 along with hand search of bibliographies Literature Review Inclusion Criteria: • English language journal patient-health p professional medical visit • Describe adult p interactions that occurred in office or outpatient setting • Present quantitative information regarding patient accompaniment i t Exclusion Criteria: Studies of pediatric patients, end-oflife or terminally ill patients patients, emergency visits visits, genetic counseling, specialty mental health visits Methods: Data Extraction Type of data: Observational (audio or videotaped) versus patient report (survey) Study sample: Sample size, study setting, provider type, g criteria, country y in which study y conducted age Patient and companion attributes: age, gender, physical and mental health status, relationship of companion to patient Visit structure: duration of visit (minutes); patient, companion, physician verbal activity C Communication i ti process measures: (social ( i l conversation, ti positive talk, negative talk, biomedical and psychosocial information giving, information seeking) Patient outcomes: activation, satisfaction with care, knowledge, confidence, motivation, skills proficiency, adherence Methods: Combining Findings Average standard normal deviate (Z) and effect size (r) extracted or computed from each study – Studies that contributed more than one result in given category we entered average Pooled weighted and unweighted effect sizes (r) calculated using Fisher transformation Weighted effect size, r = quantify the strength of the mean difference in patient attribute, communication process measure or outcome for accompanied patients relative to unaccompanied p p patients – Positive r indicates communication process occurred more commonly among accompanied patient visits relative to unaccompanied patients Summary of Contributing Studies Type of Study Number of Studies Observational Studies 9 93 Patient-Reported Studies 7 457 (129-12,018) 2,177 Observational Ob ti l AND Patientp Studies Reported 16 139 (21-12,018) 1,018 Median # Patients (Range) (21-473) Mean # Patients 116 Question 1: How frequently q y are adults accompanied to routine physician h i i visits? i it ? Rates of Adult Patient Accompaniment to Routine Physician Visits Visits, Summary of Contributing Studies 60% 57.1% 50% 38.5% 40% 37.4% 38.8% 37.2% 34.0% 30% 20% 10% 0% Ob Observational ti l (n=5) ( 5) Median S Survey (n=7) ( 7) Weighted Mean C bi d ((n=12) Combined 12) Question 2: Do accompanied patients differ from unaccompanied patients, patients and if so so, how? Who are accompanied patients’ companions? i ? Profile of Accompanied and Unaccompanied Patients Accompanied Profile (# contributing studies) No Yes D P-value Mean Age (years; n=12) 66.6 70.1 3.5 <0.0001 Caucasian (%; n=5) 72.9 70.1 -2.8 Female Gender (%; n=10) 53 0 53.0 58 6 58.6 5 6 <0.0001 5.6 <0 0001 High school education (%; n=9) 59.7 42.8 -16.9 <0.0001 Excellent/Very Good Self Rated Health (%; n=8) 41.4 28.2 -13.3 <0.0001 0.115 Profile of Companions During Adults’ Adults Routine Physician Visits Family y Companion p Profile Median ((Range) g ) Mean Age (years; n=5) Mean 62.0 (58-68) 63.0 Female (%; n=7) 78.0 (63.0-93.0) 79.4 Relationship to patient (%) Spouse (n=12) Child (n=10) 54.0 (38.5-71.0) 35.5 (10.0-53.8) 54.7 32.2 16.0 (0.0-45.0) 18.7 Other (n=13) Question 3: Does patient accompaniment to physician visits have a bearing for communication processes or outcomes? Accompanied and Unaccompanied P ti t ’ Vi Patients’ Visit it D Duration ti (k=6 observational studies; n=883 patient visits) Length of Visit (Minutes) 35 29 8 29.8 30 Weighted Mean r1=0.19 24.6 25 Pooled Significance: g Combined Z1=4.28 =4 28 20 P-Value2 = < 0.01 15 P-Value for Heterogeneity3 = 0.21 10 5 0 Not Accompanied Notes: 1. Accompanied Positive effect indicates accompanied visits longer. 2. P-value of combined Z. P-values are two-tailed. 3. P<0.10 is evidence of considerable heterogeneity. Accompanied and Unaccompanied Physician Visits’ Verbal Activity by Contributing Party Visits (k=3 observational studies; n=307 patient visits) 60% 50% 54.4% 53.3% 45.5% 47.3% 45.5% Pooled Significance Patient Verbal Activity: Weighted Mean r1= 0.16 40% 32.4% 30% Combined Z1= -2.45 20% P-Value2 = < 0.01 10% P-Value for Heterogeneity3 = 0.92 0% Patient Patient & Companion Not Accompanied Notes: 1. Physician Accompanied Positive effect indicates greater verbal activity in accompanied visits. 2. P-value of combined Z. P-values are two-tailed. 3. P<0.10 is evidence of considerable heterogeneity. Accompanied and Unaccompanied Physician Vi it & C Visits Communication i ti P Processes (k=5 observational studies) Positive Talk – laughter, friendliness, solidarity, agree, show approval Negative Talk – disagree, express tension or disapproval Biomedical Information Giving – present symptoms, answer questions, respond to instructions, provide suggestions, opinion, information Psychosocial Information Giving – statements regarding stress, feelings, emotions, values, beliefs, psychological outlook Information Seeking – ask questions or opinion Accompanied Vs. Unaccompanied Physician Visit Communication Processes (k=5 observational studies) 0 20 0.20 0.17 * Effect Size r 0.15 0.10 0.04 0 05 0.05 0 03 0.03 0.01 0.00 -0.05 -0.06 -0.10 -0.05 -0.08 Positive Talk Negative Talk Patient *P=0.01 -0.06 Biomedical Information Giving Patient & Companion -0.05 Psychosocial Information Giving Physician Information Seeking Accompanied p Versus Unaccompanied Patient Outcomes Results Average Largest Adjusted Effect Size Effect Size Study Outcome(s) N Prohaska Patient-reported satisfaction, knowledge, anxiety (6 items) 129 No -0.09 -0.21 Greene Patient-reported satisfaction (1 item) 30 No 0.00 0.00 Labrecque Patient-reported Patient reported satisfaction (1 item) 473 Yes 0.00 0.00 Wolff Patient-reported satisfaction with usual provider (12 items) 12 018 12,018 Yes 0 09 * 0.09 0 10 * 0.10 Jansen Objective data; Information recall (11 items) 100 No 0.31 * 0.58 * * Statistically significant at p<0.05 S Summary off Findings Fi di • 37% of adults are accompanied p to routine p physician y visits by a companion. • Accompanied patients are older, more likely to be female, less educated, and in worse physical health than unaccompanied patients • Companions C i are ttypically i ll middle-aged, iddl d ffemale l spouses or adult children • Physician visits are longer longer, patients less verbally active, physicians provide more biomedical information when accompanied. • Although not conclusive, results favored p ((vs. unaccompanied) p )p patient outcomes. accompanied Li it ti Limitations • R Relatively l ti l few f contributing t ib ti studies t di • Secondary data analysis of published information (existing measures, cut-points, results) • Limited information regarding companion characteristics, reasons for involvement, and family dynamics • Heterogeneity of studies (patient populations, study design, measures, outcomes) I li ti Implications • P Potential t ti l role l ffor companions i iin ffacilitate ilit t information exchange, activate patients, i improve provider id understanding d t di off patient ti t health needs • Ambiguity in role raises bioethical considerations regarding patient autonomy • Interventions to clarify companions’ role or p p physician y skills improve • Patient centered medical home THANKS!! Funding: g NIMH grant K01MH082885, “Optimizing Family Involvement in Late-Life Late Life Depression Care” Contact: Jennifer Wolff; jwolff@jhsph.edu Summary of Visit Duration and Participant Verbal Activity from Observational Studies Pooled Mean Pooled Effect, r 3 Significance PP-Value for p Accompanied Unwtd Wtd Value Heterogeneity 4 5 Mean r; Mean r; Z3 No Yes Duration of Visit k n Length of Visit (Mi t ) (Minutes) 6 883 24.6 24 6 29 8 29.8 0 13 0.13 0 19 0.19 4 28 <0.01 4.28 <0 01 0 21 0.21 Verbal Activity, by Participant (%) Patient 3 0 45.5% 32.4% -0.14 -0.16 -2.45 0.01 0.92 Patient & C Companion i 3 307 45.5% 45 5% 47.3% 47 3% 0 02 0.02 0 02 0.02 0 35 0.35 0 73 0.73 0 88 0.88 Physician 3 307 54.4% 53.3% -0.01 -0.02 -0.28 0.78 0.87 Note: Positive effect indicates accompanied visits longer or that activity longer in accompanied visits. P-value of combined Z. P-values are two-tailed P<0.10 is evidence of considerable heterogeneity. Accompanied Patient Outcomes: Verbally Active vs vs. Less Active Companions Study Sample Number Items Type of Data Results Adjusted Average Effect Size (95% CI) Largest Effect Size (95% CI) Studyy Outcome(s) () Clayman Patient decision making 93 -- Objective Yes 0.05 0.24 (-0.16,0.25) (0.03,0.41) Street Patient satisfaction 84 1 Patient Report No 0.18 0.18 (-0.04,0.38) (-0.04,0.38) Wolff Patient satisfaction 3,794 12 Patient Report Yes 00.15 15 (0.11,0.18) 00.19 19 (0.16,0.22) Methods: Combining Findings Average standard normal deviate (Z) and effect size (r) extracted or computed from each study – If not presented and could not be calculated but conventional p-value reported, then associated onetailed z entered – When study only stated estimated differences “not significant” z designated as 0 Studies that contributed more than one result in given category we entered average R Zr pooled weighted and unweighted effect sizes ((r)) calculated Positive r indicates communication process occurred more commonly among accompanied patient visits relative to unaccompanied patients Methods: Data Extraction Type of data: Observational (audio or videotaped) versus patient report p p ((survey) y) Study sample: Sample size, study setting, provider type, age criteria, country in which study conducted Patient and companion attributes: age, age gender gender, physical and mental health status, relationship of companion to patient Visit structure: duration of visit (minutes); patient, companion, physician verbal activity Communication process measures: (social conversation conversation, positive talk, negative talk, biomedical and psychosocial information giving, information seeking) Patient outcomes: activation, activation satisfaction with care care, knowledge, confidence, motivation, skills proficiency, adherence Visit Dialogue (n=5 Observational Studies) Visit Dialogue Profile by Category Positive Talk/Social Role Function Patient Patient/companion (vs. patient) Physician Negative Talk Patient Patient/companion (vs. patient) Physician Information Giving Biomedical Patient P ti t/ Patient/companion i (vs. ( patient) ti t) Physician Psychosocial Patient e Patient/companion (vs. patient) Physician Information Seeking Patient Patient/companion (vs. patient) Physician n P-Value for Heteroneity3 2 175 1 145 3 648 0.68 --0.79 -0.06 ---0.08 -0.87 ---1.50 0.38 --0.13 --- --2 277 --- --- --0.06 --- ---0.05 --- ---0.81 --- --0.42 --- 3 205 3 205 3 648 0.65 0 63 0.63 0.18 0.04 0 00 0.00 0.17 0.68 0 35 0.35 2.57 0.50 0 73 0.73 0.01 3 205 05 3 205 2 175 0. 0.22 0.19 0.81 -0.06 0.06 -0.05 0.01 -1.27 . 7 -0.99 0.01 0. 0 0.20 0.32 0.99 --- --2 277 --- --- --0.74 --- --0.03 --- --0.44 --- --0.66 --- k Wtd Pooled Combined PMean r 4 Z 4 Value 5