Community Engagement
Research
Reflections of a Community Partner
on CTSA Participation and Research
Milton “Mickey” Eder
Access Community Health Network, Chicago
AcademyHealth: Advancing Research, Policy and Practice
June 29, 2009
Access Community Health Network
215,000 patients
60,000 uninsured
51 sites
All PHS 330 FQHCs
Community Board
governed
ACCESSPBRN
CTSA Partner
Situating “Community” within
Clinical and Translational Science
COMMUNITY – “those whose well-being is likely
to be affected by the conduct of the research.”
The "3T's" Road Map
Dougherty, D. et al. JAMA 2008;299:2319-2321.
Situating Community within
Clinical and Translational Science
AHC-based Research
Practice-based Research
Community-based
Participatory Research
Translational Science
• AHC-based Research
GCRC
• Practice-based Research Networks
Community Clinicians
• Community-based Participatory
Research
Community Organizations
ACCESS
Research Mission Statement
Research will focus on improving processes,
systems, quality of care and patient outcomes,
and provide opportunities for professional
development through involvement, training,
and education.
A Translational Research Strategy
Identify and shape attitudes and beliefs of key
partners and audiences (e.g., patients, families,
communities, clinical staff, schools, churches, community
organizations), academic researchers and institutions, government
officials and agencies, hospital systems & health care entities, donors
and the media)
1) Address a health disparity
and/or
2) Possibility of benefit for participants
Engaging External Communities
• Review previous research experience
• Develop relationships with academic
researchers and with Institutions (IRBs)
• Recognize limitations and build slowly
• Participate in proposal development, project
implementation, interpretation
Engaging Internal Communities
• Facilitate physicians and health center staff
support and/or participation in research
• Coordinate with departments, medical,
operations, finance, HR and IT
• Identify value of and strategic priorities for
research
• Evaluate existing practices and programs
What would a successful
Research Program look like?
• Aligned with Mission, Vision and Values
• Staff understand the research and its purpose
• Projects engender trust among all parties
• Projects advance research mission (improve
systems, quality of care and patient health, and
provide professional training opportunities)
ACCESS Research Collaborations - examples
•An exploratory study of Access physicians’ knowledge,
attitudes and beliefs about performance based
compensation (U of C)
• Pay for Performance at a FQHC: Impact on Diabetes
Care and Outcomes (U of C)
• Health Disparities and Community-Based Participatory
Research Subcore (NIDDK, U of C)
• Institute for Translational Medicine (NCRR, U of C)
ACCESS Research Collaborations - examples
• An exploratory study of Access physicians’ knowledge, attitudes and beliefs about
performance based compensation (U of C)
• Pay for Performance at a FQHC: Impact on Diabetes Care and Outcomes (U of C)
• Health Disparities and Community-Based Participatory Research Subcore (NIDDK, U of C)
• Institute for Translational Medicine (NCRR, U of C)
•Risk Assessment of the Testing Processes of Access
Community Health Network (AHRQ)
• A Toolkit for Primary Care Practices to Improve the
Safety of Testing Processes (AHRQ)
ACCESS Research Collaborations - examples
• An exploratory study of Access physicians’ knowledge, attitudes and beliefs about
performance based compensation (U of C)
• Pay for Performance at a FQHC: Impact on Diabetes Care and Outcomes (U of C)
• Health Disparities and Community-Based Participatory Research Subcore (NIDDK, U of C)
• Institute for Translational Medicine (NCRR, U of C)
• Risk Assessment of the Testing Processes of Access Community Health Network (AHRQ)
• A Toolkit for Primary Care Practices to Improve the Safety of Testing Processes (AHRQ)
•Refining and Standardizing Health Literacy Assessment
(NHLBI, NU)
• Subjective/Objective Health Measures by
Race/Ethnicity (NIA, NU)
•Health Literacy and Cognitive Function Among Older
Adults (NIA, NU)
ACCESS Research Collaborations - examples
• An exploratory study of Access physicians’ knowledge, attitudes and beliefs about
performance based compensation (U of C)
• Pay for Performance at a FQHC: Impact on Diabetes Care and Outcomes (U of C)
• Health Disparities and Community-Based Participatory Research Subcore (NIDDK, U of C)
• Institute for Translational Medicine (NCRR, U of C)
• Risk Assessment of the Testing Processes of Access Community Health Network (AHRQ)
• A Toolkit for Primary Care Practices to Improve the Safety of Testing Processes (AHRQ)
•(Hispanic) Chronic Renal Insufficiency Cohort Study
(NIDDK, UIC – recruitment only)
• Chicago Cancer Navigation Project (NCI, NU and UIC)
• Refining and Standardizing Health Literacy Assessment (NHLBI, NU)
• Subjective/Objective Health Measures by Race/Ethnicity (NIA, NU)
• Health Literacy and Cognitive Function Among Older Adults (NIA, NU)
•Pregnancy Intention in African American and Latina
Women (CDC/ASPH, UIC)
• Improving Diabetes Self-Management in Older Adults
(NINR - UIC)
ACCESS Research Collaborations - examples
• An exploratory study of Access physicians’ knowledge, attitudes and beliefs about
performance based compensation (U of C)
• Pay for Performance at a FQHC: Impact on Diabetes Care and Outcomes (U of C)
• Health Disparities and Community-Based Participatory Research Subcore (NIDDK, U of C)
• Institute for Translational Medicine (NCRR, U of C)
• Risk Assessment of the Testing Processes of Access Community Health Network (AHRQ)
• A Toolkit for Primary Care Practices to Improve the Safety of Testing Processes (AHRQ)
• Refining and Standardizing Health Literacy Assessment (NHLBI, NU)
• Subjective/Objective Health Measures by Race/Ethnicity (NIA, NU)
• Health Literacy and Cognitive Function Among Older Adults (NIA, NU)
•(Hispanic) Chronic Renal Insufficiency Cohort Study (NIDDK, UIC – recruitment only)
• Chicago Cancer Navigation Project (NCI, NU and UIC)
•Pregnancy Intention in African American and Latina Women (CDC/ASPH, UIC)
• Improving Diabetes Self-Management in Older Adults (NINR - UIC)