POWER: Project for an Ontario Women’s Health Evidence-Based Report Card Asma Razzaq Academy Health Annual Research Meeting June 3, 2007 www.powerstudy.ca Goals & Deliverables Tool to help policymakers and providers improve health and equity among women of Ontario Report card 1: Fall 2007 – 5 chapters Access to Health Care, Burden of Illness, Cancer, Cardiovascular Disease, Depression Report card 2: Fall 2008 – 11 chapters Update of 5 chapters + Diabetes, Reproductive Health, HIV, Musculoskeletal Disorders, Populations at Risk, and Social Determinants of Health Web-based interactive data cube Why is POWER Unique? Equity is integral to the process Input from stakeholders, providers and community groups, from the outset Spans the continuum of care and is not sector specific E-tool will increase dissemination and ensure uptake of the measures by others Creates linkages between clinical and population health measures Objectives To illustrate the project, using the cancer chapter as an example Value of the process Challenges & lessons learned Process for Indicator Selection Literature review of published articles and grey literature Working Groups • Identify key issues to be addressed in each chapter • Shortlist indicators according to importance and feasibility Expert Panels • Review and finalize indicators using selection criteria • Modified Delphi Process (online survey & face-to-face meeting). Data Analysis • Administrative and survey data • Stratify by sex, age, SES, and regional level Stakeholder Consultations • Identify and discuss priority issues in each chapter • Perspectives of providers and consumers Example - Cancer General indicators Incidence 5 year survival Wait time for surgery Sex-specific cancers Breast Cervical Ovarian Uterine Non sex-specific cancers Colorectal Lung End of Life care Literature Review Published and grey literature internationally Librarian: Developed a standardized search strategy for all chapters Conducted comprehensive searches Extracted articles of interest Conducted a separate search for each tumor site/area Result: 427 indicators Working Group 10 members: clinical and/or research expertise Includes Lead Investigator, Analyst, and Research Coordinator Reviewed the 427 indicators and short-listed them according to: Feasibility Importance (equity issue, actionable, key information on women’s health) Result: 47 indicators Expert Panel 8-12 experts: medical, radiation, surgical oncologists Recommended by working group members Sent invitations by email with follow up phone calls Modified Delphi process, 2-step: On-line rating of indicators (Survey Monkey tool) Face-to-face meeting to finalize indicators Result: 31 indicators Sample of Indicators Chosen 1. % of women with a history of breast cancer who have a yearly mammogram 2. % of screen eligible patients receiving one or more FOBTs in the last 2 years 3. % of women with an unsatisfactory Pap result who receive a repeat Pap test within 2-4 months of the original result 4. Proportion of cancer patients who had one or more home care services in the last 6 months of life Data Analysis Ontario Cancer Registry (OCR) for identification of cancer cases by tumor site 2 fiscal years 2002-2004 = 47,867 cases For some indicators such as 5 year survival, we will go back to 2000/01 9 additional administrative databases including registry, inpatient, ambulatory, home care, and provincial breast and cervical screening databases Stratify all indicators first by sex and then by age group, socioeconomic status, and ethnicity Use established definitions and methods Value of the Process Rigorous and collaborative Stakeholders: providers and consumers Experts in the field Advantages of Delphi process: Clarification of definitions Operationalization of indicators Introduction to new and unexplored databases Result: Set of comprehensive performance measurement and quality of care indicators for women’s health that spans the continuum of care Challenges & Lessons Learned Challenge: Reconciling what is important with what is measurable Lesson: Contextualize quantitative content and include list of important but not currently measurable indicators Challenge: Presenting enough information to expert panel members to allow for informed responses Lesson: Develop reference manuals Challenge: Meeting timelines Lesson: This is a very time intensive phase of the project…allow enough lead time! Thank You Acknowledgements Arlene Bierman – Principal Investigator Jocalyn Clark – Director of Knowledge Translation Monika Krzyzanowska – Lead Investigator Co-authors – Cynthia Damba, Mandana Vahabi Funded by the Ontario Ministry of Health & Long Term Care and Ontario Women’s Health Council www.powerstudy.ca Contact: Asma Razzaq, MPH Institute for Clinical Evaluative Sciences G106 – 2075 Bayview Ave. Toronto, ON M4N 3M5 Tel: 416-480-4055 ext. 7460 Email: asma.razzaq@ices.on.ca