CMS & AoA VISION Technical Assistance to Support the Aging and Disability Resource Center (ADRC) Grantees To have Aging and Disability Resource Centers in every community serving as highly visible and trusted places where people of all incomes and ages can turn for information on the full range of long term support options and a single point of entry for access to public long term support programs and benefits. Academy Health 2006 Lisa Alecxih The Lewin Group lisa.alecxih@lewin.com (703)-269-5542 Karen Linkins, The Lewin Group Susan Reinhard, Rutgers University 0 1 AGING AND DISABILITY RESOURCE CENTER GRANTEES Research in Support of ADRCs X ¾ X VT MT ND NH MI IL UT OH IN CO WV CA KS CT RI NJ DE PA IA NE NV Hawaii NY WI WY Rosalynn Carter Institute, 2006 and numerous grantee surveys, 2004-2005 KY MO MD VA NC TN AARP, 2003 AZ OK NM SC AR MS Northern Marianas AL GA TX LA FL Guam Feinberg, 2003 and AARP 1996 FY 2003 ADRC Awardees Louisiana Maine Maryland Massachusetts Minnesota Montana FY 2004 ADRC Awardees New Hampshire New Jersey Pennsylvania Rhode Island South Carolina West Virginia Alaska Arkansas California Florida Georgia Illinois FY 2005 ADRC Awardees Indiana Iowa New Mexico North Carolina Northern Marianas Wisconsin Alabama Arizona Colorado DC Guam Hawaii Idaho Kansas Kentucky Michigan Mississippi Nevada Ohio Tennessee Texas Vermont Virginia Washington Wyoming 2 3 Pilot Site Operating Organizations Populations Served Among 54 2003/04 Pilot Sites ADRC Populations 25 25 20 19 20 20 20 15 10 15 4 5 2 2 2 2 2 1 . en Se In t nio de pe rC nd en en te tL rs iv C in ou g nt C y en Ag te in rs C g ou D nt e pa y D rtm is ab en ilit t y D ep ar tm en t or g tm ep ar ity ty C ou n ty C ou n h D ab il ou gh dis th r ra te AA A an d H ea lt t. SU A ) ar D ep y e at ew id in ily isa b Ag in 4 D an d on DD = Developmental Disabilities g s Ar PD = Physically Disabilities MI = Mental Illness Ag Ag en cie Elderly & MI only ty All Adults with Elderly & PD Elderly, PD & Elderly & DD Disabilities Only Other only ea All Ages & Disabilities St 0 im ar 3 g 5 pr 4 Se pa 5 0 6 (A AA s 7 ilit 10 C ou n Number of Grantees (45 with 2 CA & 2 IL sites serving different populations) ME MN SD ID Providing the right information, assistance, and access to services at the right time can delay or prevent costly institutionalization ¾ WA OR Most think that Medicare will cover long term support needs and do not understand Medicaid is means-tested ¾ X AK People do not know who to turn to for information about long term support services 5 ADRC Technical Assistance Exchange (ADRC-TAE) X Functions of an ADRC Led by The Lewin Group ¾ X Awareness & Information X Assistance ¾ In conjunction with CMS TA that supports nearly all of CMS System Change grants ¾ ¾ – Rutgers University, Independent Living Research Utilization (ILRU), National Academy of State Health Policy, National Association of State Units on Aging, and others X Focuses on grant major components/requirements Also addresses sustainability and scaling up X Relies on multiple sources for knowledge transfer X Uses proven techniques of reinforced learning X ¾ ¾ ¾ ¾ ¾ X Public Education Information on Options ACCESS Options Counseling Benefits Counseling Employment Options Counseling Referral Crisis Intervention Planning for Future Needs CONSUMER Access ¾ ¾ ¾ ¾ ¾ ¾ Eligibility Screening Private Pay Services Comprehensive Assessment Programmatic Eligibility Determination Medicaid Financial Eligibility Determination One-Stop Access to all public programs AWARENESS & INFORMATION ASSISTANCE 6 The Audience X ¾ ¾ Knowledge Needs/Materials Refinement Feedback 43 state/territory grantees 62 pilot sites currently and 106 by end of 2006 Over 1,200 registered website users Information Sources • TA Requests • LTC-TAC Faculty • LTC Experts • State Peers • Research Literature • Grantee Meetings/ Teleconferences • Listserv Discussions • Web Site • Needs Assessments Secondary Audience ¾ ¾ ¾ X Coordinated Knowledge Transfer Framework Primary Audience ¾ X 7 Policymakers Researchers Others interested in access to long term support services and information and assistance Varying levels of understanding of: ¾ ¾ Knowledge Development/ Synthesis • Issue Briefs • Matrices • Tools • Summaries of Meetings & Work Groups • Grantee Progress Reviews Knowledge Dissemination & TA • ADRC Website • Weekly Newsletter • Bi-annual National Grantee Meetings • Monthly All Grantee Calls • Peer Work Groups • One-to-one TA/ mentoring Stakeholders • State Agencies • Aging Network • Disability Community • Indep. Living Centers • Consumers/Families • Service Providers • Program Staff • Private Insurers • Legislators/Regulators • General Public Knowledge Exchange/ Feedback Key grant components Use of the web and technology On-Site TA Recipients & Grantees 8 Reinforced Learning Process On-site Assistance 9 Written Materials X Listservs Issue Briefs ¾ ¾ Work Groups Consolidate research and highlight key elements Make relevant to ADRCs – Provide “real life” examples – bridge research and practice Individualized Standardized Knowledge Knowledge ¾ Web Site Content ¾ ¾ Teleconferences X Resource Documents and Tools ¾ Needs Assessment, TA Plans Consolidated information for a particular topic – e.g., Information & Referral Software Matrix and Web-based Resource Databases – 70 downloaded 1,662 times National Meetings & Regional Teleconferences ¾ AoA, CMS, Experts, TA Collaborative Try to keep to less than 10 pages Provide sources for more detail 25 downloaded 3,762 times Documents from the field – e.g., RFPs, forms, brochures, MOUs, marketing materials – 344 downloaded 3,487 times State Expertise 10 11 Teleconferences X On-Site Technical Assistance Topics based on grantee needs ¾ Monthly all grantee calls ¾ Smaller work groups calls – Average 26 grantees of 43 since Nov; 65 participants per month X X X X Background materials and/or slides in advance Use of web-based meeting capability Expert or state representatives featured Summary, including questions and answers, posted on website ¾ X Onsite requests from grantee or identified need by funders Support grantees with other stakeholders X Facilitate meetings X Individualized TA needs X Monthly calls also recorded and available for future access on the website 12 National Meetings X X Opportunity for peer-to-peer TA X Tackle issues more in-depth X Reinforce federal messages X Two each year X Other Forums Permit in-person exchange among grantees ¾ 13 ¾ 1-2 days ¾ Between 100 and 250 attendees Online Peer-to-Peer Exchange ¾ ¾ ¾ X 30 topics with 101 posts e.g., naming the project and customer satisfaction survey 2,872 total hits FAQs to Funders ¾ ¾ 14 questions and answers 3,220 hits – Most for single question – 836 on Medicaid eligibility determination X Also send TA staff to other national meetings that grantees attend Weekly newsletter ¾ ¾ New resources Upcoming events 14 Feedback Mechanisms X TA and Grant Management Online surveys for all monthly calls and national meetings ¾ ¾ 15 X ¾ ¾ ¾ ¾ ¾ – Possibly because of dinner for two incentive X Funders ask about TA in their semi-annual calls ¾ X “In my 20 years of state government services, I have never seen anything so comprehensive and useful as the ADRC technical assistance website” 2005 ADRC project coordinator Informal mechanisms ¾ ¾ Web-based TA Tracking Tool Record grantee requests and TA responses Prioritize TA activities Ensure responsiveness to grantees Coordinate multiple TA providers Identify common themes to maximize resources and plan activities ¾ Accountability to funders Poor response rate for calls – most=9, mode=4 Better for national meetings – 30-50% X TA leads solicit in regular one-on-one calls with grantees Ask at end of every peer workgroup call Online semi-annual report tool ¾ ¾ – Feedback on format – Topics for future calls X 16 Grantees submit narrative, check box and outcomes info. Database allows easy of analysis Produce reports for internal and external purposes 17 Grantee Baseline & Progress X Sources of information ¾ ¾ X Website – www.ADRC-TAE.org X Primary mechanism to disseminate & exchange information Over 1,200 registered users Averages 70 visits and 15,000 hits per day X Average 2,000 to 3,000 visits and 500,000 hits per month X Built a grantee online community X Baseline from initial needs assessment calls Progress from – Semi-annual reports, – TA requests and activity related case notes for grantees (TA Tracking Tool) – AoA-CMS Grants Monitoring call notes X ¾ Provides information for evaluative efforts Up from 40 visits and 3,200 hits per day a year ago 18 19 Audience of Implementers – NOT Researchers, sooo … Website – www.ADRC-TAE.org X Know your audience: X Attract and keep their interest: ¾ ¾ ¾ ¾ Boil relevant research down to the high points Repeat messages frequently and in variety of ways Provide a couple (not too many) of resources for more depth X Meet them where they are: X Monitor what works and what does not: X Try new things: ¾ ¾ ¾ ¾ ¾ 20 Preferred method of receiving information, tech savvy, concerns and challenges Stage information based on readiness Solicit feedback constantly, both formally and informally ACT on the feedback!!! Keep eyes and ears open for how other successfully teach/support Experiment with different formats (e.g, consultancies) 21