Technical Assistance to Support the Aging and Disability Resource Center (ADRC) Grantees Academy Health 2006 Lisa Alecxih The Lewin Group lisa.alecxih@lewin.com (703)-269-5542 Karen Linkins, The Lewin Group Susan Reinhard, Rutgers University 0 CMS & AoA VISION To have Aging and Disability Resource Centers in every community serving as highly visible and trusted places where people of all incomes and ages can turn for information on the full range of long term support options and a single point of entry for access to public long term support programs and benefits. 1 Research in Support of ADRCs People do not know who to turn to for information about long term support services Most think that Medicare will cover long term support needs and do not understand Medicaid is means-tested Rosalynn Carter Institute, 2006 and numerous grantee surveys, 2004-2005 AARP, 2003 Providing the right information, assistance, and access to services at the right time can delay or prevent costly institutionalization Feinberg, 2003 and AARP 1996 2 AGING AND DISABILITY RESOURCE CENTER GRANTEES AK WA VT MT ND MN NH OR SD ID Hawaii NY WI WY MI IL OH IN CO CA WV KS CT RI NJ DE PA IA NE NV ME MO KY VA MD NC TN AZ OK NM SC AR MS Northern Marianas AL GA TX LA FL Guam FY 2003 ADRC Awardees Louisiana Maine Maryland Massachusetts Minnesota Montana New Hampshire New Jersey Pennsylvania Rhode Island South Carolina West Virginia FY 2004 ADRC Awardees Alaska Arkansas California Florida Georgia Illinois Indiana Iowa New Mexico North Carolina Northern Marianas Wisconsin FY 2005 ADRC Awardees Alabama Arizona Colorado DC Guam Hawaii Idaho Kansas Kentucky Michigan Mississippi Nevada Ohio Tennessee Texas Vermont Virginia Washington Wyoming 3 Populations Served Number of Grantees (45 with 2 CA & 2 IL sites serving different populations) ADRC Populations 25 20 20 15 10 7 5 6 4 5 3 0 All Ages & Disabilities All Adults with Elderly & PD Elderly, PD & Elderly & DD Disabilities Only Other only PD = Physically Disabilities MI = Mental Illness Elderly & MI only DD = Developmental Disabilities 4 Pilot Site Operating Organizations Among 54 2003/04 Pilot Sites 25 20 19 20 15 10 5 4 2 2 2 2 2 1 0 5 ADRC Technical Assistance Exchange (ADRC-TAE) Led by The Lewin Group In conjunction with CMS TA that supports nearly all of CMS System Change grants – Rutgers University, Independent Living Research Utilization (ILRU), National Academy of State Health Policy, National Association of State Units on Aging, and others Focuses on grant major components/requirements Also addresses sustainability and scaling up Relies on multiple sources for knowledge transfer Uses proven techniques of reinforced learning 6 Functions of an ADRC Awareness & Information Assistance Public Education Information on Options ACCESS Options Counseling Benefits Counseling Employment Options Counseling Referral Crisis Intervention Planning for Future Needs CONSUMER Access Eligibility Screening Private Pay Services Comprehensive Assessment Programmatic Eligibility Determination Medicaid Financial Eligibility Determination One-Stop Access to all public programs AWARENESS & INFORMATION ASSISTANCE 7 The Audience Primary Audience Secondary Audience 43 state/territory grantees 62 pilot sites currently and 106 by end of 2006 Over 1,200 registered website users Policymakers Researchers Others interested in access to long term support services and information and assistance Varying levels of understanding of: Key grant components Use of the web and technology 8 Coordinated Knowledge Transfer Framework Knowledge Needs/Materials Refinement Feedback Information Sources • TA Requests • LTC-TAC Faculty • LTC Experts • State Peers • Research Literature • Grantee Meetings/ Teleconferences • Listserv Discussions • Web Site • Needs Assessments Knowledge Development/ Synthesis • Issue Briefs • Matrices • Tools • Summaries of Meetings & Work Groups • Grantee Progress Reviews Knowledge Dissemination & TA • ADRC Website • Weekly Newsletter • Bi-annual National Grantee Meetings • Monthly All Grantee Calls • Peer Work Groups • One-to-one TA/ mentoring Stakeholders • State Agencies • Aging Network • Disability Community • Indep. Living Centers • Consumers/Families • Service Providers • Program Staff • Private Insurers • Legislators/Regulators • General Public Knowledge Exchange/ Feedback On-Site TA Recipients & Grantees 9 Reinforced Learning Process On-site Assistance Work Groups Listservs Individualized Standardized Knowledge Knowledge Web Site Content Teleconferences Needs Assessment, TA Plans AoA, CMS, Experts, TA Collaborative National Meetings & Regional Teleconferences State Expertise 10 Written Materials Issue Briefs Consolidate research and highlight key elements Make relevant to ADRCs – Provide “real life” examples – bridge research and practice Try to keep to less than 10 pages Provide sources for more detail 25 downloaded 3,762 times Resource Documents and Tools Consolidated information for a particular topic – e.g., Information & Referral Software Matrix and Web-based Resource Databases – 70 downloaded 1,662 times Documents from the field – e.g., RFPs, forms, brochures, MOUs, marketing materials – 344 downloaded 3,487 times 11 Teleconferences Topics based on grantee needs Monthly all grantee calls – Average 26 grantees of 43 since Nov; 65 participants per month Smaller work groups calls Background materials and/or slides in advance Use of web-based meeting capability Expert or state representatives featured Summary, including questions and answers, posted on website Monthly calls also recorded and available for future access on the website 12 On-Site Technical Assistance Onsite requests from grantee or identified need by funders Support grantees with other stakeholders Facilitate meetings Individualized TA needs 13 National Meetings Permit in-person exchange among grantees Opportunity for peer-to-peer TA Tackle issues more in-depth Reinforce federal messages Two each year 1-2 days Between 100 and 250 attendees Also send TA staff to other national meetings that grantees attend 14 Other Forums Online Peer-to-Peer Exchange 30 topics with 101 posts e.g., naming the project and customer satisfaction survey 2,872 total hits FAQs to Funders 14 questions and answers 3,220 hits – Most for single question – 836 on Medicaid eligibility determination Weekly newsletter New resources Upcoming events 15 Feedback Mechanisms Online surveys for all monthly calls and national meetings Poor response rate for calls – most=9, mode=4 Better for national meetings – 30-50% – Possibly because of dinner for two incentive Funders ask about TA in their semi-annual calls “In my 20 years of state government services, I have never seen anything so comprehensive and useful as the ADRC technical assistance website” 2005 ADRC project coordinator Informal mechanisms TA leads solicit in regular one-on-one calls with grantees Ask at end of every peer workgroup call – Feedback on format – Topics for future calls 16 TA and Grant Management Web-based TA Tracking Tool Online semi-annual report tool Record grantee requests and TA responses Prioritize TA activities Ensure responsiveness to grantees Coordinate multiple TA providers Identify common themes to maximize resources and plan activities Accountability to funders Grantees submit narrative, check box and outcomes info. Database allows easy of analysis Produce reports for internal and external purposes 17 Grantee Baseline & Progress Sources of information Baseline from initial needs assessment calls Progress from – Semi-annual reports, – TA requests and activity related case notes for grantees (TA Tracking Tool) – AoA-CMS Grants Monitoring call notes Provides information for evaluative efforts 18 Website – www.ADRC-TAE.org Primary mechanism to disseminate & exchange information Over 1,200 registered users Averages 70 visits and 15,000 hits per day Up from 40 visits and 3,200 hits per day a year ago Average 2,000 to 3,000 visits and 500,000 hits per month Built a grantee online community 19 Website – www.ADRC-TAE.org 20 Audience of Implementers – NOT Researchers, sooo … Know your audience: Attract and keep their interest: Stage information based on readiness Monitor what works and what does not: Boil relevant research down to the high points Repeat messages frequently and in variety of ways Provide a couple (not too many) of resources for more depth Meet them where they are: Preferred method of receiving information, tech savvy, concerns and challenges Solicit feedback constantly, both formally and informally ACT on the feedback!!! Try new things: Keep eyes and ears open for how other successfully teach/support Experiment with different formats (e.g, consultancies) 21