The impact of regulation on quality in UK nursing homes. Professor Ciaran O’Neill School of Policy Studies, University of Ulster, Northern Ireland. Structure • • • • • Industry background Regulatory arrangements Assessment of regulation Assessment of quality Implications Supported by a Harkness Fellowship from the Commonwealth Fund Background • Growth in demand for LTC • Dominance of private sector provision • 91% of nursing home beds, 75% of residential home beds (England 2000) are for- profit, almost 75% of all care beds are in private sector • Dominance of public sector finance – • 70% of $16bn LTC industry is publicly funded Regulatory arrangements • Low reimbursement rates – impact on closures and care quality (Netten et al, 2003) • Average weekly fees in 2003- $805 and $582 in nursing and residential homes respectively: weekly cost in an NHS bed for care of elderly $1821. Average weekly Medicaid reimbursement 2001 $824 (BDO, 2003) • Occupancy rates are high – rose from 90.4% to 91.8% 2002- 2003, 88% in US (NNHS, 1997) • Total market size – 577,301 adult care home places (2003) Assessment of regulation • Concerns regarding market failure – • Competition – self-regulation effected by informed sovereign consumers • Government regulation – effected by informed independent regulators with effective disciplinary powers Super- complaint by Consumers Association and 28 charities to Office of Fair Trading (OFT) in 2003 prompts investigation – • Lack of transparency on prices • Lack of transparency in contracts – contracts may not always exist • Market failure may be evident in the UK 1 Government regulation Until April 2004 Care Standards Act 2000 (CHI) (NCSC) (inspection and enforcement) NHS Private sector nursing homes (189,000 beds) (193,000 beds) (26%) Private sector residential homes (345,000 beds) (74%) CHI = Commission for Health Improvement NCSC = National Care Standards Commission NCSC activity specifically on nursing and residential care not reported but • Inspection – only 62% of planned unannounced inspections undertaken • Complaints – 8,311, 74% investigated by NCSC the remainder by the industry. • Statutory notices – 120, Prosecutions – 0, • Maximum fine available = $8,850 Still: • 8,311 complaints in 2002/03- not all relate to nursing home care • Worst case (all relate to NH) complaint per facility would be approximately 1.93, compared with 2.3 in US (HealthGrades 2003) • Mean time spent by nurses with patients higher in England compared with US, 155.5 minutes vs 115.9 minutes per day (Carpenter et al, 1997) • Trained nurse time as percentage of total, higher in England than US 53.2% vs 7.5% (Carpenter et al 1997) Concerns regarding government regulation – • Regulators are under- resourced- 7fold increase in beds, 3 fold increase in inspectors 1983 - 99 (Pollock 2004) • Regulators lack intermediate sanctions and are reluctant to use extreme measures • Standards are not legally enforceable, (no minimum staffing ratio), and are open to interpretation • Regulators risk “capture” by industry – industry represented on Regulatory Impact Unit, consumers are not. Industry has ear of government. Health and Safety Executive 2003 • Notices issued = 102, Prosecutions = 12 Includes instances where patient was severely scalded despite 7 warnings from NCSC regarding failure to comply with standards, as well as an instance of resident death (HSE database 2004) • Maximum fine is unlimited – maximum issued to date $88,500, NCSC maximum fine $8,500 More effective enforcement activity by other agencies? Assessment of quality • Concerns regarding quality – • Concerns regarding prescribing, staffing, access to medical care, patient documentation (O’Neill et al, 1999; Turrell,2001) • House of Commons Health Committee report on Elder Abuse April 2004 – highlights lack of information 2 • But fundamentally a lack of information is apparent “The lack of reporting (on elder abuse) results in difficulties in determining the true scale of the problem and this is compounded by a dearth of research.” (House of Commons, 2004) • Inspection reports are available on web for England – but not Scotland, Wales or Northern Ireland. They are not moreover readily interpretable. • Concerns regarding validity and reliability of inspection – “capture of the regulators by industry” (Kerrison, 2001) • Change in regulatory arrangements as of April 2004 NCSC replaced by Commission for Social Care Inspection- lack of continuity Implications • Strengthen regulation: • User representation in the design of regulations and standards • Appropriate funding of inspectorate • Improve operation of market • Better information for consumers and advocates – not necessarily more information • Higher reimbursement – but linked to performance 3