Improvement in Asthma Care After Enrollment in SCHIP Peter G. Szilagyi MD, MPH1,2 Andrew W. Dick PhD2 Jonathan D. Klein MD, MPH1,2 Laura P Shone, MSW, DrPH1 Alina Bajorska MS2 Jack Zwanziger PhD4 Lorrie Yoos, PhD, PNP1,3 1Dept. of Pediatrics 2Dept. Of Community & Preventive Medicine 3School of Nursing 4School of Public Health, Univ. of Chicago University of Rochester Background - SCHIP State Children’s Health Insurance Program $40 billion, block grants to states (10 years) Low-income children not eligible for Medicaid SCHIP in New York State (2002) Acts like a separate program (not Medicaid) Administered through MCOs Enrollment = 600,000 (18% of US) Important to measure how well SCHIP works For children in general and those with chronic conditions Children with Asthma Most common chronic physical child condition 5-10% of children More prevalent and problematic among the poor High utilization and costs (visits, medications) NHLBI guidelines for care exist Preventive visits and meds Prior studies: Problems with access if no coverage Study Objectives Describe characteristics of SCHIP enrollees with asthma Prevalence in SCHIP Severity of asthma Measure effect of SCHIP on children with asthma Utilization of services Quality of care Asthma outcomes Study Design Pre-Post telephone interviews of parents of SCHIP enrollees T1 Interview Soon after enrollment Measurement Period Year before SCHIP T2 12 months later 1st year during SCHIP Comparison group who enrolled 1 year later To test for secular trends (few trends found) Subjects: Main Study- All Children Stratified sample of children by: – – – NYC, NYC environs, upstate urban, rural 0-5 yr, 6-11 yr, 12-18 yr White NH, Black NH, Hispanic 2,644 first-time SCHIP enrollees – – Region: Age: Race/ethnicity: Enrolled between Nov 2000 and March 2001 2,290 (87%) completed interviews 1 year later (2001-2002) 400 Comparison group subjects – Random sample Asthma Screener Methods* 1. During past year, did MD say child had asthma or 2. Did child have any of the following apart from a cold? Wheezing or whistling in chest Chest sounding wheezy during or after exercise Waking from sleep because of cough or wheeze Wheezing severe enough to limit speech *Questions adapted from NHLBI guidelines – Child had asthma if YES to either #1 or #2 Asthma Screener: Prevalence Time Period # Children Asthma during: T1 334 (13%) Year before SCHIP T2 364 (14%) Year during SCHIP T1 and T2 213 (8% of T1) Both years T1 or T2 472 Either year Asthma Screener: Prevalence Time Period # Children Asthma during: T1 334 (13%) Year before SCHIP T2 364 (14%) Year during SCHIP T1 and T2 213 (8% of T1) Both years T1 or T2 472 Either year Children “grow out” and “grow into” asthma between T1 & T2 Limitations exist in any choice of sample to study Analyses performed multiple ways same results Asthma Screener: Prevalence Time Period # Children Asthma during: T1 334 (13%) Year before SCHIP T2 364 (14%) Year during SCHIP T1 and T2 213 (8% of T1) Both years T1 or T2 472 Either year Children “grow out” and “grow into” asthma between T1 & T2 Limitations exist in any choice of sample to study Analyses performed multiple ways same results Questions to Identify Asthma Severity* - Frequency of asthma symptoms - Limitations of activities - Nighttime awakening due to asthma “Mild” *Questions adapted from NHLBI guidelines “Moderate to severe” Questions to Identify Asthma Severity – at T1 - Frequency of asthma symptoms - Limitations of activities - Nighttime awakening due to asthma 334 “Mild ” 202 (60%) “Moderate to Severe” 132 (40%) Measures and Analyses Measures Access: Use of care: Quality measures: Asthma-specific: Usual Source of Care (USC), Unmet needs Preventive, acute, specialty % of visits to USC, parent ratings of quality Use of care, severity, quality Analyses Bivariate and multivariate Comparing measures: “pre-SCHIP” vs “during SCHIP” Secular trends: Study group vs Comparison group (few found) Results weighted using STATA to account for complex sampling design Results: Demographics of Children with Asthma (N=472) Region: 64% New York city, 18% around NYC Age: balanced across ages from 0-17 years Gender: half male Race and ethnicity: 23% white, 40% black, 34% Hispanic Income: 80% below 160% of FPL Parent Employment: 83% had > 1 parent working Prior Insurance: 71% uninsured >12m before SCHIP Access: USC Before SCHIP and 1 Year After Enrollment Had Usual Source of Care 100 * 99 95 Accessibility Measures (Children with Asthma) 90 % 80 Travel > ½ hour to MD Before After 29% to 6% ( p<.001) Difficulty getting appt. 12% to 4% ( p<.01) 70 60 * p<.001 Wait > 15 minutes at visit No improvement Access: Unmet Health Care Needs Before SCHIP and 1 Year After Enrollment % All kids 50 45 40 35 30 25 20 15 10 5 0 * Before After * Any Preven. Acute * * * Specialty ED Meds *p<.05 Utilization: Percent with Visit/Med Before SCHIP and 1 Year After Enrollment % 100 90 80 70 60 50 40 30 20 10 0 * Before After ED Specialty Acute Preventive Meds *p<.05 Quality: Proportion of Visits to USC 100% 90% 80% 70% 60% 50% 40% 30% 20% 10% 0% All Most Some None Before After * p<.001 Quality: Parent Rating of Quality of Care 10 9 8 7 6 1-10, 10 is highest 8.8 7.8 * Before 5 4 3 2 After 1 Overall Rating * p<.001 Quality: CAHPS Ratings of Providers % Yes 100 90 80 70 60 50 40 30 20 10 0 * 88 75 * 93 84 88 92 89 * 67 Before After Listens Explains Respects Time *p<.05 General Health Status 40 35 32 30 % 25 * 20 15 13 13 12 17 Before 12 After 10 5 0 Fair/Poor Health Much Worry Less Healthy Than Others *p<.05 Problems Getting Care or Meds If Asthma Attack % Yes 20 18 16 14 12 10 8 6 4 2 0 16 Before 9 After 4 To USC 3 2 To ED * 2 Medications p<.05 Problems Getting Care or Meds If Asthma Attack Reasons for Problems -Cost (60%) -Convenience (10%) % Yes 20 18 16 14 12 10 8 6 4 2 0 16 Before 9 After 4 To USC 3 2 To ED * 2 Medications p<.05 Quality Measures-- ASTHMA Before SCHIP and 1 Year After Enrollment Percent of Children with Moderate/Severe Asthma Who Had: % 100 90 80 70 60 50 40 30 20 10 0 69 58 Before After 38 24 8 2 Asthma Tune-up Visit Preventive Med Action Plan p = NS Change in Asthma or Quality Since Last Year (asked at T2) For ALL children with asthma 100% 90% 80% 70% 60% 50% 40% 30% 20% 10% 0% Much Worse Worse Same Better Asthma Quality of Asthma Care Much Better Reasons for Improvement in Asthma (Among the 75% Who Improved) Decrease In Severity 39% Better Quality of Asthma Care Medicines 26% 9% Insurance now 1% 18% Just less symptoms 7% 8% Environment 7% 3% Now has care 58% Multivariate Results Adjustments for Demographics did not affect findings The “SCHIP effect” remained significant for most measures Improvement in “unmet needs” only among Mild Asthma For most other measures, similar pattern if Mild or Severe “SCHIP Effect” ------Mild Asthma------ Unmet Needs Most Visits to USC Unadjusted OR P .2 .006 Adjusted OR P .2 .007 ------Severe Asthma-----Unadjusted Adjusted OR P OR P .6 .6 .7 .6 11 <.001 15 <.001 12 <.001 12 <.001 Multivariate Results Adjustments for Demographics did not affect findings The “SCHIP effect” remained significant for most measures Improvement in “unmet needs” only among Mild Asthma For most other measures, similar pattern if Mild or Severe “SCHIP Effect” ------Mild Asthma------ Unmet Needs Most Visits to USC Unadjusted OR P .2 .006 Adjusted OR P .2 .007 ------Severe Asthma-----Unadjusted Adjusted OR P OR P .6 .6 .7 .6 11 <.001 15 <.001 12 <.001 12 <.001 Limitations and Strengths Limitations: Internal Validity Self-report (especially for quality measures) No perfect definition of asthma Possible regression to the mean External Validity: One state SCHIP (and not Medicaid) Strengths: First study of SCHIP & asthma, Large N, High follow-up rate Conclusions Many children with asthma enrolled in SCHIP For children with asthma, during SCHIP: Still suboptimal quality on several measures in spite of SCHIP Improved access to care and reduced unmet needs Change in pattern of care– more care at the USC Improved quality- general (Overall rating, CAHPS, continuity) Improved quality-asthma (Getting asthma care/meds, severity, rating) Reduced parent worry Reasons for improvements- now getting care or meds Tune-up visits and preventive meds for severe asthma No improvement in general health status after SCHIP Implications for Clinicians Many children with asthma enrolling in SCHIP Their baseline quality of care is poor even though most had a USC Better use of medical home is associated with higher quality during SCHIP Need to do more to improve quality measures Asthma tune-up visits, preventive meds for severe asthma Implications for Health Plans Many children with asthma enrolling in plans Quality of asthma can improve with coverage but will not reach standards Encourage clinicians to improve quality of care for children with asthma Implications for Policy Makers SCHIP reduces barriers to asthma care and improves access and quality of asthma care Coverage of asthma medications is important SCHIP changed pattern of utilization More use of USC, not more high-cost services (specialty, ED) SCHIP may cause higher initial costs for asthma SCHIP can have spill-over benefits: less parent worry/stress SCHIP (?insurance) more likely to affect a conditionspecific measure than a global health status measure Funders Agency for Healthcare Research and Quality (AHRQ) The David and Lucile Packard Foundation Health Resources and Services Administration (HRSA)