Posters Poster Session Saturday, June 25 • 1:15 p.m. - 2:30 p.m. ● Medical Errors, Mortality, and Teaching Hospitals for Pediatric Injury Hospitalizations Thomas Bannister, M.D., John M. Tilford, Ph.D. Presented by: Thomas Bannister, M.D., Fellow PCCM, Pediatrics, University of Arkansas for Medical Sciences, 800 Marshall Street, Little Rock, AR 72202-3591; Tel: (501) 364-1008; Fax: (501) 364-1552; E-mail: bannisterthomasw@uams.edu Research Objective: Quality of care studies comparing teaching to non-teaching hospitals have found worse outcomes in teaching hospitals for pediatric patients. Estimates are needed for population-based studies with appropriate measures for severity adjustment. This study examines the association between medical errors and mortality in teaching and non-teaching hospitals for hospitalizations involving pediatric injuries. Study Design: A retrospecitve analysis of injury hospitalizations was conducted using a nationaly representative sample from the Healthcare Cost and Utilization Project. Hospitalizations involving a medical error were identified based on ICD-9 CM codes 996-999 and 995.2 following previous studies. Injury severity scores were calculated using ICDMAP90 software. Rates of medical errors and mortality were assessed by specific characteristics for teaching and non-teaching hospitals. Separate logistic regression analysis was conducted by teaching and nonteaching hospitals to assess the contribution of medical errors to hospital mortality. Population Studied: All hospitalizations with a primary or secondary diagnosis of injury were abstracted from the 2000 Kids’ Inpatient Database (KID). Children between the ages of 0-20 were included. Principal Findings: The overall rate of medical errors differed significantly between teaching and non-teaching hospitals with a higher rate of errors in teaching hospitals (2.7% vs. 1.8%; p<0.001). Rates of medical errors differed by specific characteristics with higher rates noted in younger and more severely ill patients. Injury severity scores were similar between teaching and non-teaching hospitals. Logistic regression analysis indicated a significant relationship between medical errors and mortality for teaching hospitals (OR=1.40; 95% CI 1.02-1.92) but not for non-teaching hospitals (OR=1.59; 95% CI 0.79-3.21). Conclusions: After controlling for injury severity, teaching hospitals had higher rates of medical errors and mortality relative to non-teaching hospitals. Administrative databases such as the KID may be useful for monitoring error rates in teaching hospitals following changes in rules regarding work hours. Implications for Policy, Delivery or Practice: Despite most studies finding improved outcomes in teaching hospitals for adult conditions, pediatric studies continue to find worse outcomes. Additional research is needed to understand the specific factors contributing to higher rates of medical errors in teaching hospitals involving pediatric patients. Primary Funding Source: HRSA, Maternal and Child Health Bureau ● Medical Injuries and Mortality Following Congenital Heart Surgery Oscar Benavidez, M.D., M.P.P., Oscar Benavidez, M.D., M.P.P., Kimberlee Gauvreau, Sc.D., Kathy J. Jenkins, M.D., M.P.H. Presented by: Oscar Benavidez, M.D./M.P.P., Cardiology Fellow, Cardiology, Children's Hospital, Boston, 300 Longwood Avenue, Boston, MA 02115; Tel: (617) 355-8895; Fax: (617) 739-5022; E-mail: oscar.benavidez@cardio.chboston.org Research Objective: Despite complexity of care and high death risk, there has been no broad assessment of medical injury rates or its association with mortality following congenital heart surgery. Our objectives were to examine 1) the rate of medical injuries and 2) the independent effect of medical injuries on risk-adjusted mortality following congenital heart surgery. Study Design: We selected discharges of congenital heart surgery from the Healthcare Cost and Utilization Project Kid’s Inpatient Database 2000 and applied a validated method 60% sensitive, 97% specific - for identifying medical injuries using ICD-9-CM codes. Cases of medical injury were identified using this method; injuries were classified into four categories: 1) drugs; 2)procedures; 3)devices, implants, and grafts; and 4)radiation related. Adjustment for case-mix was performed using the Risk Adjustment in Congenital Heart Surgery method, RACHS-1. We examined the independent effect of the presence of a medical injury or medical injury subcategory on unadjusted and risk-adjusted mortality using generalized estimating equations incorporating RACHS-1 variables, as well as gender, race, insurance type and surgical volume. Population Studied: Children ages < 18 years discharged with ICD-9-CM codes indicating surgical repair of a congenital heart defect. Principal Findings: Among the 10,032 congenital heart surgical discharges, 3159 cases or 32% had at least one medical injury code; there were a total of 5242 medical injury codes, 523 injuries per 1000 discharges. Procedure related injury codes represented 78% of all injury codes, 408 per 1000 discharges; Device, implant, or graft related injuries were 18%, 96 per 1000 discharges; drug related injuries 4%, 19 per 1000 discharges; no radiation injury codes were identified. In unadjusted analyses, children with a medical injury code had a substantially greater odds of death compared to children without injury codes, OR 3.0, p<0.001; medical injury subcategories: procedure OR 2.9, p<0.001; device, implant, or graft OR 2.6, p<0.001; drug OR 0.7, p=NS. Case-mix, gender, race, and surgical volume were significantly related to mortality. Adjusting simultaneously for case-mix, gender, race, and surgical volume, cases with medical injury codes continued to show a substantially greater odds of death compared to cases without medical injury codes, OR 2.4, p<0.001. Medical injury subcategories: procedure OR 2.3, p<0.001; device, implant, or graft OR 2.8, p<0.001 related injuries; drug related injuries OR 0.7, p=NS. Conclusions: Codes for medical injuries during admissions for congenital heart surgery are common. These injuries codes are associated with more than two-fold increase in riskadjusted mortality following congenital heart surgery. Codes reporting device, grafts or implant related medical injuries, are associated with the greatest risk for death. Implications for Policy, Delivery or Practice: Strategies to reduce medical injury may result in a substantial reduction in risk of death in this complex pediatric population. Primary Funding Source: N/A ● Can Hospital Discharge Data Complement Birth Defects Surveillance? James M. Robbins, Ph.D., T.M. Bird, M.S., John M. Tilford, Ph.D., Mario A. Cleves, Ph.D., Charlotte A. Hobbs, M.D., Ph.D. Presented by: T.M. Bird, M.S., Research Associate, Pediatrics, University of Arkansas for Medical Sciences, 800 Marshall Street, Little Rock, AR 72202; Tel: (501) 364-3300; Fax: (501) 364-1552; E-mail: BirdTommyM@uams.edu Research Objective: State birth defects surveillance systems vary in their case ascertainment methodology, case definitions, and inclusion of pregnancy terminations in counts of defect occurrences. Because of differences in methodologies, state systems are not designed to generate birth defect rates for the country as a whole, and are not intended to allow comparison of rates across states. Because states submit hospital discharge information in a standardized format for inclusion in the Kids' Inpatient Database (KID), the KID may be used to generate rates of newborn hospitalizations for select birth defects that are comparable across states and can be combined to yield national estimates. Study Design: The KID is the only publicly available, nationally representative database of newborn hospitalizations. The KID includes an 80% sample of newborn discharge records from hospitals in each of 27 participating states. Newborns with 37 ICD-9 codable major birth defects reported by 21 state surveillance systems can be identified in the KID. State surveillance systems are classified by intensity of surveillance as active (on-site ascertainment of cases by abstractors), or passive (reliance on hospital discharge reports), and by inclusion or exclusion of pregnancy terminations. Rates generated by the KID were compared to rates reported by state surveillance systems, stratified by intensity of surveillance and inclusion of fetal deaths. Rate ratios (RR) were calculated by dividing the rate derived from the KID by the rate observed by state surveillance systems. Rate ratios less than 1.0 indicate that the KID identifies fewer defects than state surveillance systems. Population Studied: Hospital births and birth defects from 21 states, 1997 to 2001. Principal Findings: KID defect rates closely approximate state rates for most cardiovascular defects (RR = .87 - 1.17) and orofacial defects (RR = 1.00 - 1.05). The KID consistently underestimates central nervous system defects (RR = .37 - .80) and limb reduction defects (RR = .66 - .70) except when those defects were reported by states that do not include fetal deaths (RR = .82 - 1.16). Overall, defect rates generated by the KID were most congruent with rates reported by states systems that do not include fetal deaths. The KID overestimates rates of patent ductus arteriosus (RR = 1.48), gastroschisis/omphalocele (RR = 1.73), and congenital hip dislocation (RR = 1.33). These defects may be overdiagnosed at birth (minor umbilical hernia) or resolve soon after birth. Conclusions: While the KID lacks confirmatory diagnostic information and does not include information on fetal deaths, KID-based rates closely approximate rates of defects reported by passive state surveillance systems and systems that do not include pregnancy terminations. In contrast to the variability of state-based systems, the KID employs a single methodology to derive national rates of birth defects among livebirths and allows direct state-to-state rate comparisons. Implications for Policy, Delivery or Practice: Birth defect rates generated by the KID can be used to monitor conditions of the newborn, evaluate the impact of societal-wide public health interventions, and provide rates of birth defects for participating states with no surveillance system. States that do not routinely survey fetal deaths may be better served by devoting surveillance resources to research on the causes and management of birth defects. Primary Funding Source: CDC ● Developing Measures of Pediatric Oral Health-Related Quality of Life to Better Understand Oral Health Disparities in Children Joan Bohlke, M.A. - Public Policy, Noelle L. Huntington, Ph.D., Dante Spetter, Ph.D., Judith Jones, D.D.S., M.P.H., Avron Sprio III, Ph.D. Presented by: Joan Bohlke, M.A. - Public Policy, Research Assistant, Health Policy & Health Services Research, Boston University, 560 Harrison Avenue, Boston, MA 02118; Tel: (617) 414-1144; Fax: (617) 638-6381; E-mail: jbohlke@bu.edu Research Objective: To develop a set of measures of pediatric oral health-related quality of life (POQOL), suitable for use with children and adolescents, that examines the impact of oral health on the lives of children and their families. Study Design: In the first step, impact statements were created by an expert panel to address three domains of functioning: social/role, psychological, and physical. Focus groups then were used to collect qualitative data from children and their parents on the impact of a child’s oral health status. Using these data, impact statements were revised creating three four-page questionnaires: (Child Self Report, Parent Report on Child, and Parent Self Report). The questionnaires asked how often an event occurred, how bothered the child was by this event, and why it happened. In the fourth step, a sample of children and their parents completed the questionnaires and engaged in a five-minute debriefing on clarity, format and content. The final step, currently underway, is administering the questionnaire to several hundred children and parents. Item reduction for the final version will result from the frequency, importance and cause of individual events as well as parent-child concordance. Population Studied: Diverse, middle to low income pediatric patients and their parents at oral health clinics and schools associated with Boston University’s School of Dental Medicine. Principal Findings: Throughout the process, multiple revisions of the questionnaire were made in form and content. The focus groups created a number of new items not anticipated by the expert panel, and made clear the need to distinguish between the effects of disease v. normative development (“why it happened”). Barriers to recruitment in step four included the lack of interest in completing a somewhat cumbersome and lengthy questionnaire in the context of a busy waiting room as well as lower literacy skills. To adjust for this, several shortened versions of all three questionnaires were created that consisted of different subsets of ten impact questions asked in two different ways: either “how often” and “how bothered,” or “how often” and “why.” In this way, all impact questions included in the original longer version were distributed throughout the smaller versions and reviewed through a debriefing. Data collected from a broad distribution of the survey will create a more useable final version with fewer items. Conclusions: To fully develop a pediatric quality of life instrument that reflects what is important to the population, children and their parents need to be involved at each step of questionnaire development and pilot testing needs to occur in the same context in which the measure will be used. In addition, flexibility in item construction and testing must be allowed. Implications for Policy, Delivery or Practice: The methods described here will establish POQOL measures that can fully assess oral health-related QOL in children. The results of a wide distribution of the final questionnaire will draw attention to the needs of a population which consistently lacks quality oral health care Primary Funding Source: Other, NIH/NIDCR ● Racial/Ethnic and Socio-Economic Disparities in Early Intervention Participation Karen Clements, Sc.D., Wanda D. Barfield, M.D., Nancy Wilber, Ed.D., Milton Kotelchuck, Ph.D. Presented by: Karen Clements, Sc.D., Research and Evaluation Specialist, Bureau of Family and Community Health, Massachusetts Department of Public Health, 250 Washington Street, Boston, MA 02108; Tel: (617) 624-5596; Fax: (617) 624-6062; E-mail: karen.clements@state.ma.us Research Objective: Children living in impoverished socioeconomic settings are at risk for developmental delay. Access to early developmental intervention for this group is critical. Massachusetts (MA) includes children age 0-3 at social risk in a federally mandated Early Intervention (EI) program. It is unknown whether disparities exist in access to and participation in EI. Our objective was to use population-based linked data to examine maternal socio-economic characteristics associated with EI referral, evaluation, and enrollment in MA. Study Design: The Pregnancy to Early Life Longitudinal (PELL) data system contains population-based birth certificate and hospital discharge data of infants born in MA linked to EI program records. Maternal characteristics (race/ethnicity, age, education, US/foreign born, language, poverty rate in town of residence) and infant risks (eg. birth weight, gestational age) were obtained from PELL. Outcomes included referral to EI, evaluation for eligibility among referrals, and program enrollment among children evaluated and eligible for services. Multivariate logistic regressions identified independent predictors of referral, evaluation, and enrollment, adjusting for maternal and infant characteristics. Population Studied: 219,037 in-state births to MA resident women, January, 1998-September, 2000, excluding neonatal deaths. Principal Findings: Overall, 37,397 children, 18.8% of births, were referred to EI. Of referrals, 32,075 (85.8%) were evaluated for eligibility, and of those eligible, 25,968 (93.0%) enrolled in EI. Most indicators of low socioeconomic status (SES) were positively associated with referral, but racial/ethnic disparities existed. Adjusting for infant and maternal characteristics, children of foreign-born mothers were less likely to be referred than children of US-born mothers (OR = 0.70, 95% CI=0.680.73). Referral was negatively associated with non-English language preference (OR=0.87, 95% CI=0.83-0.91) and Asian race (OR=0.88, 95% CI=0.82-0.94). Among referrals, race/ethnicity and some indicators of low SES were associated with disparities in evaluation. Children born to black (OR=0.69, 95% CI 0.62-0.76) and Asian mothers (OR=0.88,95%CI=0.82-0.94) were less likely to be evaluated. Evaluation was negatively associated with having a teen mother (OR = 0.64, 95% CI=0.58-0.73), having no health insurance (OR=0.77, 95% CI 0.63-0.91), and >15% poverty rate in town of residence (OR=0.69, 95% CI 0.64-0.75). Among those eligible, enrollment was negatively associated with some indicators of low SES, including having a teen mother (OR = 0.51, 95%CI=0.45-0.58 ) and >15% poverty rate (OR = 0.71, 95% CI=0.62-0.81). Conclusions: After controlling for infant and maternal risks, several disparities existed in referral, evaluation, and enrollment in EI in MA. The types of social risk associated with disparity in referral for differed for the most part from those associated with disparity in evaluation and enrollment. Implications for Policy, Delivery or Practice: These analyses identified subsets of the MA population who may face barriers to EI participation. Some foreign-born women may be avoiding contact with EI due to documentation concerns. This information will be utilized by perinatal and EI programs to improve referral among these women. Additional support and follow-up with teen mothers, women with no health insurance, and women living in high poverty areas will be developed to improve the percentage of referrals who are evaluated and enrolled. Primary Funding Source: CDC ● Measuring Relative Quality and Resource use for Congenital Heart Surgery Jean Connor, D.N.Sc., R.N., C.P.N.P., Kimberlee Gauvreau, Sc.D., Kathy J. Jenkins, M.D., M.P.H. Presented by: Jean Connor, D.N.Sc., R.N., C.P.N.P., Research Fellow, Cardiology, Children's Hospital Boston, 300 Longwood Avenue Farley 135, Boston, MA 02115; Tel: (617) 355-8890; Fax: (617) 739-5022; E-mail: jean.connor@cardio.chboston.org Research Objective: To develop a composite measure reflecting both quality and resource use for pediatric heart surgery and to examine regional variation for this measure. Study Design: Cases meeting criteria for the Risk Adjustment for Congenital Heart Surgery method (RACHS-1) were placed into risk categories. One state with only 5 identified cases was eliminated. Relative quality and resource use was examined using the product of the standardized mortality ratio (SMR) and standardized charge ratio (SCR). This product was termed the Efficiency Product. For each state, SMR was defined as observed mortality/expected mortality; expected mortality was adjusted for baseline case mix differences using RACHS-1 risk category, age, prematurity, major non-cardiac structural anomaly, and multiple surgical procedures. Similarly, the SCR was defined as observed mean charges/expected mean charges; expected mean charges were obtained from a linear regression model adjusting for the above variables plus chromosomal abnormality and weekend admission predicting log transformed charges. A state with mortality and charges both equal to expected would have an Efficiency Product equal to 1. States were ranked from lowest to highest using the Efficiency Product. In addition, the relationship between the mean charge differential for each state, defined as observed minus expected mean charges, and the SMR was examined. Population Studied: Cases of congenital heart surgery < 18y were identified from the Health Care Utilization Project KID 2000 database (27 states) using ICD-9-CM codes Principal Findings: Using data from 9,406 cases of congenital heart surgery, the mortality rate was 4.1% and the average median charges was $49,722. Across the 26 states, the mean charge differential per state ranged from -$27,892 to +$24,020. Mortality rates per state ranged from 0.6% to 6.1%. The SMR ranged from .13 to 1.87 and SCR ranged from .47 to 1.4. The Efficiency Product ranged from .12 to 1.86. CO, MA, ME, MD, OR, and WI had a Efficiency Product <0.50. CT, GA, IA, MO, NC, NY, PA, SC, and UT had an Efficiency Product 0.50 to .99. CA, FL, HI, TN, VA, WA, and WV had an Efficiency Product 1.00 to 1.49. AZ, KY, NJ, and TX had an Efficiency Product = 1.50. There was no correlation between the SMR and mean charge differential. Conclusions: States varied considerably in a risk-adjusted measure of quality and resource use for congenital heart surgery procedures. This novel approach of assessing efficiency in this population may be the first step in identifying optimal charge structures for delivering care. Implications for Policy, Delivery or Practice: Identification of optimum charge structures to delivery quality care may be used by health care providers, institutions, payors, and policy makers when formulating interventions and policies to allocate resources for congenital heart surgery. Primary Funding Source: Other, T32 HS00063-10 ● Measuring the Physician-Parent Relationship in Pediatric Care Elizabeth Cox, M.D., M.S., Maureen Smith, M.D., M.P.H., Ph.D., Roger Brown, Ph.D., Mary Anne Fitzpatrick, Ph.D. Presented by: Elizabeth Cox, M.D., M.S., Assistant Scientist, Population Health Sciences and The Center for Women's Health & Research, University of Wisconsin-Madison Medical School, 610 Walnut Street, 634 WARF Building, Madison, WI 53726; Tel: (608)263-9104; Fax: (608)263-2820; E-mail: ecox@wisc.edu Research Objective: As provider-patient relationships are key to shared decision-making (SDM), assessing this relationship has received considerable attention. However, no standard measure exists. Prior work has summed Roter Interaction Analysis System (RIAS) items to create a measure of ‘relationship building’ although no published work has examined the psychometrics of such a measure. Using RIAS, we examine this commonly-used measure as well as develop and test a model of the physician-parent relationship for the pediatric visit that incorporates two established relationship domains (“liking” and “understanding”) for physicians and for parents. Study Design: Videotapes of the children's visits were coded with RIAS which categorizes utterances into 34 mutually exclusive categories. ICCs of >0.70 for all RIAS codes ensured interrater reliability. We replicated the prior RIAS ‘relationship building’ summed scale based on personal remarks, laughter, agreement, approval, compliment, disapprovals, concern, reassurance, and empathy spoken by physician or parent. Our new model included additional indicator and latent variables based on prior literature and theory. All models were evaluated using confirmatory factor analysis (CFA) in LISREL 8.54 with polychoric correlation matrices, asymptotic variance/covariance matrices and the weighted least squares estimation procedure as appropriate to data with variables whose correlations are not bivariate normal. Population Studied: 100 parent-child dyads visiting one of 15 pediatricians or family physicians for acute concerns Principal Findings: Physicians were 60% pediatricians and 26% non-white with a range of practice experience. Parents were predominantly mothers with high school or college educations. Unidimensional models of physician or parent “relationship building” based upon the nine indicators commonly summed in prior work with RIAS codes demonstrated poor model fit (?2 of 111.4 with 28 degrees of freedom; RMSEA of 0.17). An alternative single factor model of the physician-parent relationship using nine indicators (including compliments as well as statements of understanding, approval, agreement, and empathy) had good model fit (?2 of 38.6 with 27 degrees of freedom; RMSEA of 0.07). A 4-factor model included latent variables for liking (indicators included approvals, agreements and compliments) and understanding (indicators included empathy and understanding) by both physician and parent. Model fit was good with ?2 of 27 with 21 degrees of freedom and an RMSEA of 0.05. The ?2 difference between the final two models was 11.5 with 6 degrees of freedom, representing no significant change in model fit (p<0.10). Equating factor loadings within either of the final two models resulted in significant model misfit (ie, ?2 of 95 with 32 degrees of freedom and RMSEA >0.1). Conclusions: CFA supported a multidimensional measure of the physician-parent relationship, suggesting the existence of multiple domains such as “liking” and “understanding” for both the parent and the physician. Additionally, item weighting is indicated when creating a physician-parent relationship measure. Future work will explore a second order factor structure and expand the measure to include non-verbal indicators as well as other relationship domains. Implications for Policy, Delivery or Practice: Previously used measures of the physician-patient relationship may not accurately reflect the physician-parent relationship in pediatric healthcare. Primary Funding Source: AHRQ ● A Comparison of Pediatric and Non-Pediatric Nurse Workload Perceptions Karen Cox, Ph.D., Cathryn A. Carroll, Ph.D., Susan L. Teasley, R.N., Kathy Sexton, R.N., Arif Ahmed, Ph.D. Presented by: Karen Cox, Ph.D., Senior Vice President, Patient Care Services, Children's Mercy Hospitals and Clinics, 2401 Gillham Road, Kansas City, MO 64108; Tel: (816) 234-3933; Fax: (816) 346-1333; E-mail: kcox@cmh.edu Research Objective: To compare and contrast workload perceptions of pediatric nurses in comparison to their peers working in non-pediatric institutions. Study Design: A cross-sectional study of the perceptions of a convenience samples of over 2300 nursing professionals. The validated 38-item Individual Workload Perception Scale (IWPS) was administered to the study population working within and external to the pediatric practice environment. Responses were provided on a five-point Likert scale with 1 = Strongly Disagree to 5 = Strongly Agree. Univariate statistics were use to characterize mean values for each of the five domains (managerial support, peer support, unit support, intent-to-stay, and nurse satisfaction) assessed by this validated instrument and to evaluate whether statistically significant differences would be observed in responses obtain from pediatric nurses. Population Studied: Over 2300 nursing professionals working within and external to the pediatric practice setting. Principal Findings: Pediatric nurse perceptions of their work environment are generally more positive than nurses working in non-pediatric environments. Statistically significant differences were observed with respect to peer support, unit support, workload, intent-to-stay and overall nurse satisfaction. Although higher levels of managerial support were reported by pediatric nurses, these results were not statistically significantly different than their peers. Conclusions: Pediatric nurse appear to have higher levels of professional support and satisfaction than their colleagues working in non-pediatric environments. Implications for Policy, Delivery or Practice: Support for pediatric nursing practice appears adequate to foster positive perceptions of the work environment. Nurses working in other professional settings may wish to evaluate and potentially adopt pediatric best practices fostering a more positive work environment. Primary Funding Source: N/A ● How Soon Do Children in Medicaid and S-SCHIP Receive Dental Visits Peter Damiano, D.D.S., M.P.H., Elizabeth Momany, Ph.D., Steve Flach, M.D., Ph.D., Knute Carter, B.Sc. (Hons), Michael Jones, Ph.D. Presented by: Peter Damiano, D.D.S., M.P.H., Professor and Director, Health Policy Research Program, Public Policy Center, University of Iowa, 227 South Quadrangle, Iowa City, IA 52242; Tel: (319) 335-6813; Fax: (319) 335-6801; E-mail: peter-damiano@uiowa.edu Research Objective: To determine the amount of time it takes for children newly enrolled in Medicaid and S-SCHIP to receive their first dental visit and the factors associated with the time to the first dental visit. Of particular interest is whether the plan design (traditional Medicaid fee-for-service, and three different types of HMOs in the S-SCHIP plan) are related to the length of time to the first dental visit. Study Design: Survival analytic techniques were used to study factors related to the length of time children were in the Medicaid and S-SCHIP program prior to receiving a dental visit. Primary dependent variable: time to first dental visit. Primary covariate: health plan, controlling for age, gender, race and urban/rural location. Bivariate relationships were estimated using the life table method, due to the large sample size. Cox proportional hazard modeling was completed for the regression analysis of factors related to the time to first dental visit. Population Studied: Children newly enrolled in Medicaid and S-SCHIP between July 1, 2000 through June 30, 2003. Children were considered “newly” enrolled if they had not been enrolled in the program in the 12 months preceding the first indication of enrollment during the study period. 96,704 children met this criteria with about three-quarters enrolled in Medicaid (74%); and 7%, 7% and 12% respectively in the three S-SCHIP plans. Principal Findings: After 6 months in the program, between 21% and 36%, depending on the plan, had a dental visit. This increased to 39% to 56% after one year and 73% to 88% after three years. After controlling for age, race, gender and urban/rural location, the health plan in which the child was enrolled was significantly related to whether they received a dental visit sooner. Conclusions: The type of dental plan was significantly related to how soon after enrollment a child received a dental visit. The closed panel private HMO produced lower utilization rates than a traditional fee-for-service Medicaid program, a private open panel HMO or a private traditional indemnity plan. Implications for Policy, Delivery or Practice: Although access to Medicaid dental is low in many areas, alternative approaches to providing services should be considered carefully so that access to care is not further hindered as managed care is implemented for Medicaid and S-SCHIP programs. Primary Funding Source: AHRQ ● Cost Utilization Analysis of a Pediatric Emergency Department Diversion Project: Implications for Policy, Delivery & Practice Cheng Wang, M.Sci., M.A., Michelle Doldren, M.P.H., C.H.E.S., Deborah Mulligan, M.D., F.A.A.P., F.A.C.E.P., Toran Hansen, M.S., Mike DeLucca, M.H.M. Presented by: Michelle Doldren, M.P.H., C.H.E.S., Research Scientist, Institute for Child Health Policy, Nova Southeastern University, 3200 S. University Drive, Suite 1213, Fort Lauderdale, FL 33328; Tel: (954) 262-1932; Fax: (954) 262-3263; E-mail: mad@ichp.nova.edu Research Objective: Test the effectiveness of a pilot emergency department (ED) diversion project developed to reduce costs associated with the use of hospital emergency departments for non-urgent care, by offering extended office hours, multiple access locations, and provision of care coordination. Study Design: This study compared claim data of 13,000 children enrolled in an enhanced access program (intervention group), and data of 19,000 Medicaid eligible children who received services from other local community primary care providers (control group). Multiple regression analyses were performed to analyze the claim data collected for this project. Three variables were used as dependent variables to investigate various aspects of the cost utilization: Per Member Per Month cost, Per Thousand Members Per Month Encounter frequency, and Per Encounter cost. Thus, comparisons were made between the intervention and control group over the project period on ED claim data, as well as for the overall cost of care data. Population Studied: Medicaid recipients less than 18 years of age that utilize a large private primary care pediatric practice in Broward County, Florida. Principal Findings: In the initial 12-month period, the average Per Member Per Month costs for ED utilization in the intervention group were $1.36 less than that of Control group. However, there was no significant difference in terms of per visit cost related to ED utilization. Therefore, the savings came as a result of a reduction in ED visits, not on reduced cost per visit. On the average, children in the intervention group visited the ED 8 fewer times per thousand members per month than that of the control group. There was no significant difference in overall cost of care between the intervention and control groups. Conclusions: Analysis from the first year of this pilot program; reveal that by providing extended office hours, multiple access locations, and provision of care coordination to children receiving Medicaid significantly lowered the utilization of the emergency department for non-urgent care among healthy children, while the overall cost of care remained the same. Implications for Policy, Delivery or Practice: These findings support the need for innovative programs to reduce Medicaid costs associated with the over utilization of emergency room services for non-urgent care among the pediatric population. The results of this study can also be utilized by the managed care system in the development of strategies to reduce ED costs among generally healthy children who are not a part of the Medicaid system. Primary Funding Source: Other, AHCA ● Preventable, Post-Neonatal Deaths of African American Infants in Hamilton County, Ohio Edward F. Donovan, M.D., Steven J. Englender, M.D., M.P.H., Kari K. Dunning, Ph.D., Harry Atherton, B.S.E.E., M.S., MaryAnn Hamilton, M.A., Barbara Rose, M.P.H Presented by: Edward F. Donovan, M.D., Director, Cincinnati Children's Hospital Medical Center, Child Policy Research Center, 3333 Burnet Avenue, MLC 7014, Cincinnati, OH 452293039; Tel: (513) 636-0180; Fax: (513) 636-0171; E-mail: edward.donovan@cchmc.org Research Objective: To determine whether cause specific, age-of-death specific differences in infant mortality help identify potential, specific intervention targets. Study Design: Using Perinatal Periods of Risk methods (PPOR, http://www.citymatch.org/), post-neonatal, African American(AA) infant deaths in Hamilton County, Ohio were identified as potentially preventable. National Center for Health Statistics, electronic, linked birth-death files were used to identify cause-specific, U.S. infant mortality. Using the same linked birth-death file, rates for Hamilton County resident infants were compared to overall U.S. rates using rankings and statistical comparisons of proportions. Population Studied: All AA births and infant deaths of Hamilton County, Ohio residents from 1/1/1995 through 12/31/1998 were compared to all U.S. AA births and infant deaths for the same time period. Principal Findings: PPOR identified that risk of post-neonatal death (28-364 days of age) was four-fold greater for Hamilton County AA infants with birth weights greater than 1500 grams. Comparing Hamilton County and the overall U.S., AA, causespecific, post-neonatal death rates revealed Hamilton County rates were greater for injuries of any type: 13.9 vs 4.9 per 10,000 births (95% confidence interval for the difference: 2.9, 11.5). For the top ten causes of post-neonatal death (84% of all deaths), there were 25 excess or possibly preventable AA deaths during this four year time period. All AA, Hamilton County infant deaths (0-364 days) that were associated with LBW were also higher than the U.S. (41 vs 28/10,000 births, p < 0.05). In addition, for all Hamilton County infant deaths (0364 days), the cause-specific rate for maternal complications of pregnancy was greater than that for the U.S. (9.6 vs 5.7/10,000 births, p < 0.05). Conclusions: Comparisons of cause and age-of-death specific death rates identify opportunities for targeted interventions to reduce infant mortality. Implications for Policy, Delivery or Practice: Racial/ethnic disparities in infant mortality and difficulties in meeting Healthy People 2010 infant mortality targets may be addressed by identifying cause and age-specific preventable infant deaths. Primary Funding Source: Other, Hamilton County Child and Family Health Services Consortium ● Possible Errors in Interpreting Population Measures of Perinatal Health John Besl, M.A., Edward F. Donovan, M.D., Edward F. Donovan, M.D., Barbara Rose, M.P.H., Harry Atherton, B.S.E.E., M.S., Terry Byczkowski, Ph.D. Presented by: Edward F. Donovan, M.D., Director, Cincinnati Children's Hospital Medical Center, Child Policy Research Center, 3333 Burnet Avenue, MLC 7014, Cincinnati, OH 452293039; Tel: (513) 636-0180; Fax: (513) 636-0171; E-mail: edward.donovan@cchmc.org Research Objective: To estimate the change over a ten year period (1990-2000) in county low birth weight rate (LBW) that is attributable to change in the county's racial composition of births. Study Design: Retrospective, population-based, observational comparison of race-mix-adjusted and unadjusted low birth weight rates. Population Studied: Low birth weight rates (LBW, proportion of all live births with birth weights less than 2500 grams) between 1990 and 2000 for all 289 U.S. counties with populations greater than 100,000 and at least 100 annual African American (AA) births. Principal Findings: LBW risk for U.S. African Americans in 2000 was 111 per 1000 births compared to 60 per 1000 for whites (NCHS). There were over 2.9 million and over 2.8 million resident births in the study counties in 1990 and 2000, respectively. Overall county-level changes in LBW between 1990 and 2000 ranged from a decrease of 38 LBW births per 1000 total births to an increase of 35 LBW births per 1000. Among these same counties, the proportion of total births accounted for by AA either increased or decreased between 1990 and 2000 (-13% to +25%). For the 112 counties with an improved LBW between 1990 and 2000 (39%), some had a simultaneous decrease in the proportion of AA births and an improvement in AA LBW both of which would tend to decrease overall LBW. For the CHSR poster, the magnitude and direction of differences between race-mix adjusted and unadjusted changes in county-level LBW will be explored. Conclusions: With a two fold spread in race-specific LBW risk, changes in race-mix should be considered in evaluating possible improvements in overall population health. Implications for Policy, Delivery or Practice: Changes in racial composition can lead to both qualitative and quantitative errors in conclusions related to overall population health. Public policy makers should consider race-mix adjusted perinatal statistics when evaluating changes in population health. Primary Funding Source: Other Foundation, Cincinnati Children's Hospital Medical Center ● Making the Case for Improving Children's Healthcare Quality: No Needless Deaths Denise Dougherty, Ph.D., Melissa Romaire, M.P.H., Charles Homer, M.D., Lisa C. White, M.P.H., Lisa A. Simpson, M.B., B.Ch., M.P.H., F.A.A.P. Presented by: Denise Dougherty, Ph.D., Senior Advisory, Child Health and Quality Improvement, Office of Extramural Research, Education, and Prioirty Populations, USDHHS Agency for Healthcare Research and Quality, 540 Gaither Road, Rockville, MD 20850; Tel: (301) 427-1868; Fax: (301) 427-1562; E-mail: ddougher@ahrq.gov Research Objective: To develop estimates of the number of child deaths that could potentially be prevented with improved quality and patient safety. Study Design: We applied published estimates of increased survival from studies on quality improvement interventions to available national and state level discharge and surveillance data for selected leading causes of child death ("case examples"). Sensitivity analyses were performed. Population Studied: Children who died in 2000 due to potentially preventable causes in NICU care, from SIDS, from medical errors during inpatient hospitalizations, from pediatric trauma, and pediatric cardiac surgery. Principal Findings: In 2000, between 5- and 10,000 child/adolescent deaths would have been prevented if health care quality and patient safety had been at achievable levels in only these five case examples. The greatest numbers of preventable deaths thru quality improvement were for highrisk infants in NICUs and inpatient medical errors. Referrals to appropriate levels of trauma care could have prevented 314 pediatric trauma deaths, and regionalization of pediatric cardiac surgery was hypothesized to prevent 41-83 deaths in California. Improved Back to Sleep message delivery could have saved the lives of 256-770 African-American infants, according to our estimates. Conclusions: Child lives can be saved with improved attention to quality and patient safety in a range of health care settings and thru appropriate referrals. Implications for Policy, Delivery or Practice: Efforts to invigorate the quality, patient safety, and healthcare disparities reduction movements are increasingly framing their messages in terms of lives saved (IHI; To Err is Human; Woolf et al.). Although the number of child lives that could be saved is far less than the larger numbers applied to all Americans combined (e.g., 100,000), knowing that child lives could be saved thru these efforts might help "make the case" that health care for children should be part of larger efforts. Primary Funding Source: NO FUNDING SOURCE., intramural staff support ● Have We Made Any Progress? The Use of Emergency Services by Medicaid-eligible Children in New York City Over the Past 10 Years Bertha Fertil, M.P.H., M.G.A., DelRoy Williams, M.S.W., Tracy Victor-Grant, M.S.W. Presented by: Bertha Fertil, M.P.H., M.G.A., Senior Policy Analyst, Mental Hygiene, NYC Department of Health and Mental Hygiene, 93 Worth Street, Room 407, New York, NY 10032; Tel: (646) 271-3008; E-mail: BFertil@aol.com Research Objective: Prior to 1996, the number of children using New York City emergency room as their access to primary care was over half a million. Disturbed by these statistics, over the past ten years both New York State and New York City has aggressively worked to enroll its children in public health insurance programs such as Medicaid and Children Health Plus. By insuring its children, the city believed that each child and his or her family would develop a relationship with a primary care provider who would ensure that the child received the appropriate level of preventative care. As a result of the City’s efforts, the number of children who used the emergency room declined by nearly 40 percent from 1992 to 2002. However, among children who are insured, there is a segment who continue to use the emergency room as their primary source of health care. This research seeks to find out why these families continue to use the emergency room as their primary health care provider. Study Design: The design of this study was twofold. The first part entailed a review of the New York State’s Department of Health Online PC Database in order to find the rate at which Medicaid enrolled children were using the emergency room over the past ten years. Once these numbers were ascertained, a sample was taken from each year in order to discover which diagnosis were associated with the children who obtained care in the emergency room. The New York State Welfare Management System (WMS) billing database was then used to analyze the utilization data for each case. Each sampling was done using a 99% confidence interval and a +/-2 margin of error. The second part of the study involved a survey of current Medicaid families who used the emergency room for their medical care services. For 4000 currently active public health insurance cases for children between the ages of 0 to 20 years who are receiving Medicaid, we analyzed the following variables: 1) Whether children were eligible for public health insurance; 2) Number of case closings on file, 3) Parent’s knowledge of whether child(ren) enrolled in health plan; 4) Number of Address Changes on file); and 5) Coverage History. This sampling was done using a 99% confidence interval and a +/-2 margin of error. Population Studied: Families of New York City children ages 0 to 20 years who use the emergency room and are enrolled in the Medicaid program. Principal Findings: • New York State has made a 40% reduction in the number of Medicaid children obtaining primary care in the emergency room. • There still remain a significant percentage (20%) of Medicaid children who continue to use the emergency room for their primary care needs. • Those children (87%) who use the services of the emergency room are predominantly Black and Hispanic children. • Many of the parents (87%) who took their children to the emergency room were unaware that the child’s Medicaid case was active. • Many parents (90%) were unaware that their child was enrolled in a managed care plan. • The following services were provided to these children: asthma, colds, high fevers, mental health issues and other primary care needs. • Long engrained socio-medical behaviors may exist amongst the families who use the emergency room for their child’s primary care needs. • There is a slow increase in the number of children using the emergency room to access primary care. In both 2000 and 2001 there was a small increase in the number of children using the emergency room for preventative care. Conclusions: Even with the aggressive implementation of managed care programs in New York City over the past 10 years, 20% of children on Medicaid continue to use emergency services, the most costly form of care, for their primary care and mental health needs. Implications for Policy, Delivery or Practice: There are numerous policy and practice implications to these findings. The first and most important is that beyond enrolling lowincome children and families into the Medicaid programs or health plans, there also need to be education put in place so these families can truly understand how to use their health insurance in a more preventative manner. Another implication is that children are not getting access to the preventative health care they need during their formative years. Finally, if these children are enrolled in managed care organizations (MCO), what then is it obligation of the MCO to ensure that these children have access to primary care services? Primary Funding Source: N/A, None inpatient, outpatient, pharmacy, and special costs, which included physical and speech therapy, and emergency room visits. Non-parametric (Dunn Test) and parametric (Generalized Linear Model) comparisons of post-diagnosis costs were completed. Age, gender, insurance plan type, and costs in the pre-diagnosis period were controlled for within the multivariate model. Population Studied: The study population was comprised of children aged 3 – 17 years newly diagnosed with autism (N = 470), diabetes (N = 522), or asthma (N = 550). All subjects were continuously enrolled in an HMO, PPO, or Medicaid plan type throughout the study’s duration. Principal Findings: The autistic cohort exhibited a higher proportion of male subjects (80.6%) and a lower mean age (9.4 years) than the diabetic children (49.8%, 12.6 years) or asthmatic children (52.9%, 9.9 years). Autistic children exhibited significantly greater median total healthcare costs than children with asthma ($2103.58 vs. $850.27, P < 0.05) or diabetes ($2103.58 vs. $1605.20, P < 0.05) in the 12-month post-diagnosis period. After controlling for confounders, autistic children exhibited significantly greater 12-month postdiagnosis total healthcare costs than asthmatic children (P < 0.0001); the difference in total healthcare cost between autistic and diabetic children was non-significant (P = 0.84). Conclusions: Results from this study in a privately insured population suggest that autistic children may incur equivalent or significantly greater healthcare costs than children diagnosed with diabetes or asthma in the 12-month postdiagnosis period of their diseases. Implications for Policy, Delivery or Practice: This study highlights the costs of care associated with autism as they compare to other growing public health concerns for children, such as asthma and diabetes. Primary Funding Source: Other, Janssen Medical Affairs ● The Burden of Illness in Austim: A Study of the Direct Cost of Treatment Scott Flanders, Ph.D., M.S., Julie Whitworth, Pharm.D., Mohamed A. Hussein, M.S.C.S., M.S.P.H., Daniel R. Vanderpoel, Pharm.D., Timothy Sandman, M.B.A., Luella Engelhart, M.S. Presented by: Alison Galbraith, M.D., M.P.H., Instructor, Department of Ambulatory Care and Prevention, Harvard Pilgrim Health Care and Harvard Medical School, 133 Brookline Avenue, 6th Floor, Boston, MA 02215; Tel: (617)509-9893; Fax: (617)859-8112; E-mail: alison_galbraith@hms.harvard.edu Research Objective: To determine whether socioeconomic disparities exist in the financial burden of out-of-pocket health care expenditures for families with children, and whether health insurance coverage decreases financial burden for lowincome families. Study Design: Cross-sectional family-level analysis. The main outcome was financial burden, defined as the proportion of family income spent on out-of-pocket health care expenditures. We aggregated annual out-of-pocket expenditures for all family members. Family insurance coverage was categorized as: 1) all members publicly insured all year, 2) all members privately insured all year, 3) all members uninsured all year, or 4) a mixture of private, public, and/or no insurance. We used bivariate statistics to examine if financial burden varied by poverty level. Multivariate linear Presented by: Scott Flanders, Ph.D., M.S., Associate Director, Regional Outcomes Research, Outcomes Research, Janssen Medical Affairs, 740 Waterford Drive, Grayslake, IL 60030 Research Objective: To compare the direct treatment costs for children newly diagnosed with the pervasive developmental disorder autism, versus children newly diagnosed with diabetes or asthma, in a privately insured population. Study Design: A retrospective database analysis was completed using claims derived from the administrative database of a health benefits organization. Six months of prediagnosis and 12 months of post-diagnosis direct healthcare cost claims were analyzed for children newly diagnosed with autism, diabetes, or asthma. Healthcare costs included ● Out-of-pocket Financial Burden for Low-income Families with Children: Socioeconomic Disparities and Effects of Insurance Alison Galbraith, M.D., M.P.H., Sabrina T. Wong, R.N., Ph.D., Sue E. Kim, Ph.D., M.P.H., Paul W. Newacheck, Dr.P.H. regression models were used to assess whether family insurance coverage was associated with level of financial burden for low-income families. Population Studied: Families with a child <19 years old in the Household Component of the 2001 Medical Expenditure Panel Survey. Principal Findings: There was a regressive income gradient in financial burden such that families with incomes <100% of the Federal Poverty Level (FPL) had a disproportionately greater financial burden than families with higher incomes. For lowincome families (< 200% FPL), financial burden was significantly less for families with full-year public insurance compared to those without insurance all year and compared to those with full-year private insurance. Conclusions: Socioeconomic disparities exist in the financial burden of out-of-pocket health care expenditures for families with children. However, financial burden is reduced for lowincome families with full-year public coverage. Full-year public coverage provides substantially greater protection for lowincome families than full-year private coverage. Implications for Policy, Delivery or Practice: Public insurance programs play an important role in protecting lowincome families with children from burdensome out-of-pocket expenses. Private insurance plans may place low-income families at greater risk for financial burden from health care expenditures. Policies to expand health insurance coverage to the uninsured should consider the effects of cost sharing on financial burden for families. Primary Funding Source: AHRQ ● Factors Associated with Behavioral Care Decisions in Children James Guevara, M.D., M.P.H., Donald Schwarz, M.D., M.P.H., David Shera, Sc.D., Christopher Forrest, M.D., Ph.D., Kelly Kelleher, M.D., M.P.H., Aileen Rothbard, Sc.D. Presented by: James Guevara, M.D., M.P.H., Assistant Professor, Pediatrics, The Children's Hospital of Philadelphia, 3535 Market Street, Room 1531, Philadelphia, PA 19104; Tel: (215) 590-1130; Fax: (215) 590-0426; E-mail: guevara@email.chop.edu Research Objective: Previous research suggests that primary care providers desire to co-manage behavioral problems in children with mental health professionals, but provider characteristics and managed care policies may influence how treatment decisions are made. Our objective was to determine factors that are associated with behavioral care treatment decisions among primary care providers. Study Design: Secondary analysis of the Child Behavior Study, a nationwide cross-sectional study of children with behavioral problems conducted in 2 large practice-based research networks. Population Studied: Children aged 4 to 15 years were identified by clinicians with one or more of 11 behavioral problems at the time of a non-urgent visit. Provider decisions at this visit were categorized into mutually exclusive groups: primary care (PC) treatment only (psychotropic prescription and/or counseling), mental health (MH) treatment only (mental health referral or ongoing mental health care), joint (JT) treatment (primary care and mental health treatment) or neither (NT). Child-, family-, provider-, and practice-level factors were examined in multinomial models for association with provider decisions. Principal Findings: Over 4000 children (20%) aged 4 to 15 years from 201 practices in 44 states and Puerto Rico were identified with a behavioral problem. Attentional/hyperactivity problems (50%), behavioral/conduct problems (40%), other emotional problems (19%), and developmental delay (17%) were among the most common problems. Provider decisions were distributed fairly evenly: PC (36%), MH (21%), JT (25%), or NT (18%). Children with psychosocial dysfunction were more likely to receive MH (OR 1.5, 95% CI 1.3-1.9) or JT (OR 1.9, 95% CI 1.6-2.3) but less likely to receive NT (OR 0.7, 95% CI 0.6-0.9) than PC. Children with family dysfunction were more likely to receive JT (OR 1.4, 95% CI 1.2-1.8) than PC but did not differ in their likelihood of receiving MH or NT. Children whose providers had greater MH orientation were more likely to receive JT (OR 1.1, 95% CI 1.0-1.3) but less likely to receive MH (OR 0.8, 95% CI 0.7-1.0) than PC. There were minor geographic differences in care, but a measure of managed care penetration was not associated with decisions. Conclusions: Child and family characteristics had the strongest effects on behavioral care treatment decisions and were associated with decisions to co-manage with or refer to mental health professionals. Provider beliefs regarding psychosocial aspects of care influenced decisions in favor of co-management, but a measure of managed care had no effect. Implications for Policy, Delivery or Practice: These results suggest that clinicians consider the needs of children and their families independent of other factors in treatment decisions involving behavioral problems. Provider beliefs about psychosocial aspects of care may also independently influence decisions, but future study is needed to determine whether educational interventions that influence beliefs will have an impact on decision-making. Primary Funding Source: Other Govt. ● Mothers in Transition from Welfare to Work: Child Care for their Preschool Age Children Ruchi Gupta, M.D., M.P.H., Laura B. Amsden, M.S.W., M.P.H., Jane L. Holl, M.D., M.P.H. Presented by: Ruchi Gupta, M.D. M.P.H., Physician, Pediatrics, Institute for Health Services Research and Policy Studies and Children's Memorial Hospital, 339 E. Chicago Avenue, Room 712, Chicago, IL 60611-3071; Tel: (312) 503 0429; Fax: (312) 503 2936; E-mail: r-gupta@northwestern.edu Research Objective: To describe the child care arrangements of low-income mothers of pre-school age children in transition from welfare to work, and to determine the role of child care in a mother’s choice to work and her work stability. Study Design: We conducted a cross-sectional study of a cohort of pre-school age, low-income children in Illinois. The sample is representative of all Illinois households who were receiving welfare in 1998. The sample was stratified by region to ensure adequate representation of welfare families in smaller Illinois counties. Weights were developed to adjust for non-response and for stratification by region. Population Studied: The youngest child between 0 and 3 years old at the time of the Year 1 interview (2000) was selected in each household. An in-person interview with questions about work, welfare, and child care was conducted annually with the parent/guardian of each child. This study is based on interview data from Years 1-3 (2000-2003). The sample consisted of 554 (Yr.1), 494 (Yr.2), and 445 (Yr.3) children. Principal Findings: The most commonly reported child care arrangement was “staying with a grandparent or other relative” (60%) with no significant change over the three years. Only 10% of children were in a child care center and 5% in a non-relative home child care. Children attending nonrelative, home childcare decreased significantly from 10.2% in Year 1 to 4.8% in Year 3 (p<0.01). Concerns about the quality of child care decreased significantly from 22.8% in Year 1 to 5.8% in Year 3 (p<0.01). Similarly, concerns about child care safety and dependability decreased from 16.4% and 16.8% to 2.3% and 4.7% respectively in Year 1 and in Year 3 (p<0.01). Child care costs were reported as “too much” for 21.1% of mothers in Year 1 compared with 3.7% of mothers in Year 3 (p<0.01). Fortythree percent of families with preschool children did not receive any child care subsidies in Year 3 despite nearly all families having a median income of $13,750. Approximately 47% of all mothers in the study were working in any given year of the study. In Year 3, 20.4% of mothers stated problems with child care as a primary reason for not working; and 17% of mothers stated that being pregnant or needing to care for a child was their reason for not working. Among employed mothers who stopped working, 10.3% indicated that a problem with child care was a main reason for quitting. Conclusions: 37.4% of mothers on welfare choose not to work for reasons related to child care. An additional 10.4% of employed mothers state child care as the reason for quitting their job. Remarkably few children receive child care in a Center (10%) and children receiving child care in a home-care setting has decreased dramatically. These findings are substantially different from the 60-75% of children nationally who are in a formal child care setting. However, mothers do seem more satisfied with the quality, safety, dependability and cost of child care over a three year period. Implications for Policy, Delivery or Practice: In Illinois, few children of mothers in transition from welfare to work are benefiting from child care subsidies; few children are cared for in formal child care settings; and a substantial number of mothers are not working for reasons related to child care. Child care issues remain a key barrier to work and work stability for mothers in transition from welfare to work. Primary Funding Source: AHRQ, NICHD RO-1 39148 ● School Health Services: How Well are They Meeting the Needs of Children with Asthma? Marianne Hillemeier, Ph.D., M.P.H., Maryellen Gusic, M.D., Yu Bai, M.S. Presented by: Marianne Hillemeier, Ph.D., M.P.H., Assistant Professor, Health Policy and Administration, The Pennsylvania State University, 116 Henderson, University Park, PA 16802; Tel: (814) 863-0873; Fax: (814) 863-2905; E-mail: mmh18@psu.edu Research Objective: Most children spend 7-10 hours a day in school, and the capacity for appropriate asthma care in school settings is critical for optimal disease management. The objective of this study is to assess the availability of appropriate asthma-related equipment and services in Pennsylvania public schools. Study Design: Surveys were mailed to nurses in public schools that were randomly selected from each of the Commonwealth’s 500 school districts. Two schools per district were included in the sample with the exception of 4 districts that each contained only one school. Out of the total sample of 996 there were 757 completed surveys returned, resulting in a response rate of 76%. The surveys elicited information about schools’ asthma management plans, policies on asthma medication administration, and the availability of medical equipment and services for children with asthma and their families. Population Studied: The study population consisted of nurses employed in urban and rural schools throughout Pennsylvania. Principal Findings: Management plans for children with asthma were not uniformly available and existing plans lacked recommended information: 48% had procedures for storing and administering medications, 32% had peak flow monitoring procedures, 62% had an emergency protocol, 56% contained emergency physician contact information, 69% had emergency contact information for parents, 45% listed specific environmental triggers, and 40% included a plan for physical education participation. In one-third of schools children are not allowed to carry their inhalers, and 3 schools reported children have no access to inhalers during school even in the health office. Asthma-related equipment was not uniformly available, with half of schools having nebulizers and peak flow meters, and less than one-third having spacers. Only 81% of schools reported that staff who know what to do for a severe asthma attack are always available, and just 64% have rapid communication systems that link to EMS. Case management for students with frequent asthma-related problems was available in 31% of schools, and the presence of support services for children and their families was reported in only 19%. Conclusions: This study provides evidence that schools do not consistently maintain recommended standards of care for children with asthma. In some schools, lack of knowledgeable staff and equipment represents a threat to child safety in the event of a severe asthma attack. Implications for Policy, Delivery or Practice: Improvements are needed in school settings including more comprehensive asthma management plans, increased access to medication, equipment and emergency services, enhanced asthma education for school personnel, and greater availability of case management and supportive services for children and their families. Primary Funding Source: Other, Center for Rural Pennsylvania ● Systemic Analysis of Patient Safety Related Clinician Communication in Pediatric Medical Care Jane Holl, M.D., M.P.H., Donna M. Woods, Ed.M., Ph.D., Edward S. Ogata, M.D., M.M., Gregory Makoul, Ph.D., Kevin B. Weiss, M.D., M.P.H. Presented by: Jane Holl, M.D., M.P.H., Assistant Professor of Pediatrics and Preventive Medicine, Institute for Health Services Researchand Policy Studies, Feinberg School of Medicine, Northwestern University, 339 E Chicago Avenue, Room 717, Chicago, IL 60611; Tel: (312) 503-0392; Fax: (312) 503-2936; E-mail: j-holl@northwestern.edu Research Objective: Effective team communication was identified as important to improved patient safety in the Institute of Medicine Report, “To Err is Human: Building a Safer Healthcare System.” At the time, very little was understood about the manifestations of patient safety problems related to clinician communication and teamwork in pediatrics. This study will illuminate the nature and contexts of risk related to clinician communication in pediatrics and distinguish pediatric specific systemic contexts for communication risk. Study Design: Thirty-five focus groups including over 100 clinicinans were convened by profession and by professional level (resident physician, attending physician, staff nurse, advanced practice nurse) for different units and services. The focus groups were facilitated by trained focus group facilitators and focus group discussion centered on effective communication and problematic communication between clinicians on the same service and across services. Population Studied: Pediatric clinicians (physicians and nurses). Principal Findings: Thirty-five focus groups directed at problematic and effective clinician communication in pediatric medical care including over 100 pediatric clinicians were convened. Five problematic communication contexts were described in the focus group discussions. Three of these contexts have been previously described in the adult patient safety literature, two have not. Those previously described included: (1) transitions (patient transfers between services or units, changes in attending/fellow/resident “coverage”, nursing shift changes and scheduling of and getting studies and procedures performed); (2) ICU patients managed by clinicians not primarily located in the ICU and therefore requiring intensivist management to improve safety, (3) patients with complex medical/surgical conditions being cared for by multiple services leading to breakdowns in communication. Two problematic patient safety related communication contexts were described by pediatric clinicians that have not been previously described in adult medicine. These included contexts in which non-pediatric trained clinicians, particularly surgical clinicians, are responsible for the care of medical (non-surgical) conditions. Most pediatric surgical residents have had little pediatric medical training. During a surgical rotation, however, they must manage co-morbid medical conditions in their surgical patients (i.e., asthma, diabetes, etc.). In addition, the training of pediatric surgical attendings is focused on surgical care and provides little pediatric medical training. Another described context of patient safety risk specific to pediatrics included nurses (including experienced nurses) being placed in specialty care contexts for which they did not have specific specialty care experience. This situation largely arose in response to the nursing crisis. In person, face to face communication was described as most effective. Medical work-rounds and clinical conferences were the most commonly described examples, particularly when everyone on the team was present. The effectiveness of team communication was degraded in the context of medical workrounds, if critical members of the team were not present. Conclusions: Some contexts of patient safety communication related problems are common to both pediatric and adult medicine. This study reveals two additional contexts of pediatric specific medical care risk for further study and attention for patient safety improvement. Implications for Policy, Delivery or Practice: To improve patient safety critical communication in pediatric medical care, systemic and structural issues in the organization pediatric medical care and training will require further assessment and patient safety focus. Primary Funding Source: AHRQ ● Identification of Actionable Items for Systems Improvement through Executive Walkrounds in a Pediatric Hospital Lisa Horowitz, Ph.D., M.P.H., Melissa McClay, M.P.H., Allan Frankel, M.D., James Mandell, M.D., Eileen Sporing, M.S.N., R.N., Donald Goldmann, M.D. Presented by: Lisa Horowitz, Ph.D., M.P.H., Quality Improvement Consultant / Psychologist, Program for Patient Safety and Quality, Children's Hospital Boston, 300 Longwood Ave-Wolbach 001, Boston, MA 02115; Tel: (617) 355-7447; Fax: (617) 730-0632; E-mail: lisa.horowitz@childrens.harvard.edu Research Objective: To use comments elicited during Patient Safety Executive Walkrounds to identify themes and actionable items in order to resolve potential safety concerns. Study Design: As part of a multi-center study, the Children’s Hospital Executive Walkrounds Team (EWT) visited a different unit in a large pediatric teaching hospital for one hour three times per month. Three rotating executives conducted semistructured interviews with groups of staff including staff physicians, physician trainees, nurses and pharmacists, using standardized questions and explicitly encouraging staff to share concerns free of retribution. To identify key themes and actionable items, all staff comments were recorded verbatim by a scribe during the rounds and entered as text into a database. Comments were then numbered and coded by two observers into thematically distinct categories, and summarized in an Action Plan – a key tool for ensuring follow up of actionable items. One week later a Debrief Session including the EWT and clinical leaders from the specific unit was convened to discuss each item in the Action Plan, determine actionability, and assign responsibility for resolving the item. 12 weeks later, staff who participated in Executive Walkrounds received feedback and progress-to-date in the form of the updated Action Plan. Each comment was then labeled “completed,” “in progress,” or “tracked in database,” depending on the action taken. Population Studied: Three rotating senior hospital executives and 550 multidisciplinary staff members, including staff physicians, physician trainees, nurses, and pharmacists, of a large urban teaching hospital participated from February through December 2004. Principal Findings: Twenty-seven Executive Walkrounds were conducted in unique clinical areas. Attendance at Executive Walkrounds ranged from 8-47 (mean 12) staff per round. Of 384 items, 14 thematically distinct categories were identified by 2 observers, with an agreement rate of 90%. The top five themes were: Workload/Resources (89% of Executive Walkrounds), Communication (78%), Facilities (78%), Information Systems (63%), and Documentation (52%). Pediatric-specific concerns, such as child safety in medical exam rooms and sterilizing toys in the waiting area, were present in 15% of the comments. In a sub-sample of the first 12 Executive Walkrounds, 83% of items incorporated into the database were considered “actionable” and assigned to clinical leaders for resolution. At the end of 12 weeks, 32% of the actionable items were deemed “completed.” Efforts to resolve the remainder of the items are ongoing. Conclusions: Concerns regarding workload, resources and communication were identified frequently by staff as impacting patient safety. Actionable items were identified and addressed through the Action Plan. One third of the items were resolved comprehensively. Implications for Policy, Delivery or Practice: Conducting Patient Safety Executive Walkrounds is feasible and effective in a large tertiary care teaching hospital, and allowed this institution to recognize and address systems issues with the potential to compromise high quality healthcare delivery. The Action Plan is an important tool that helps in assigning accountability for resolving staff concerns, allows for ease in feeding back information to staff, and enables the Executive Walkrounds Team to track what would have been otherwise unmanageable data. Primary Funding Source: No Funding ● California’s Children’s Health Initiatives: Towards Universal Insurance Coverage Among Children Dana Hughes, Embry Howell, Christopher Trenholm, Ian Hill, Martha Kovac, Genevieve Kenney Presented by: Dana Hughes, Assistant Professor, Institute for Health Policy Studies and Family and Community Medicine, University of California San Francisco, 3333 California Street, Suite 265, San Francisco, CA 94143; Tel: (415) 476-0780; E-mail: dhughes@itsa.ucsf.edu Research Objective: To describe the development, financing and implementation of county-initiated efforts to provide universal insurance coverage for children in California Study Design: In 2001, Santa Clara County, California, introduced the Children’s Health Initiative, an ambitious program designed to assure insurance coverage to all children in the county. Since then, 9 additional counties, including San Mateo and Los Angeles counties, have created similar programs, and several other counties are in the planning process. This presentation will provide an overview of the children’s universal coverage movement in California, including the financing, leadership, implementation challenges, and the likely future prospects and is designed to provide context for subsequent presentations which describe evaluation findings. Population Studied: Low income, uninsured children. Principal Findings: In California nearly one million children were uninsured in 2001. Of these, two-thirds are eligible for either Medi-Cal or Healthy Families. The remaining children are ineligible for public programs because they live in families with incomes too high to qualify or because they are undocumented. To address these gaps in health insurance coverage, several counties in California have created new initiatives to insure children. Referred to as “Children’s Health Initiatives” (or CHIs), these efforts include a two pronged approach: creation of a new insurance product for children ineligible for Medi-Cal or Healthy Families due to income or documentation status called “Healthy Kids,” and coordinated outreach and enrollment among county agency outreach workers, community based organizations and schools across all three programs. The initiatives are led by generally informal coalitions comprised of representatives of county health and social services, local health plans, First 5 Commissions community based organizations and foundations. Funding comes from a wide range of public entities (local First 5 Commissions, city and county resources, healthcare districts) and private foundations. To date, these programs have cumulatively enrolled more than 50,000 children in Healthy Kids while also finding and covering tens of thousands more under Medi-Cal and Healthy Families. The major challenge facing the CHIs is securing long-term funding. Conclusions: In a time of severe budget short falls and a week state and local economies, several counties in California have managed to extend health insurance to many thousands of children. Implications for Policy, Delivery or Practice: The Children’s Health Initiatives have made great strides towards universal coverage for children in the counties within which they operate. Its replication in so many counties holds the promise of genuine universal coverage state-wide and is a model for other jurisdictions outside of California. Primary Funding Source: Multiple sources ● Parents Perceive Pediatric Residents as Providing High Quality Care Scott Krugman, M.D., Janet R. Serwint, M.D. Presented by: Scott Krugman, M.D., Chairman, Department of Pediatrics, Franklin Square Hospital Center, 9000 Franklin Square Dr, Baltimore, MD 21093; Tel: (443)777-7128; Fax: (443)777-7130; E-mail: scott.krugman@medstar.net Research Objective: To measure the quality of resident primary care using a version of the Parent's Perception of Primary Care (P3C) and compare to previously published community standards. Study Design: A 23 question version of the P3C was administered to all parents of children who receive care from residents at 19 CORNET continuity sites over a two week period May-June 2004 (n=2107). The average response rate at each site was 85%. The primary scale was analyzed by calculating the mean score (scale of 100) and internal consistency for each question, each primary care domain, and the total scale. Population Studied: Parents of children who receive care from residents. Principal Findings: Families who completed the survey were 39% Hispanic, 33% African-American, and 16% Caucasian; 81% of the children had medical assistance, 76% were under 5 years old and 19% of the parents had less than a high school education. The survey demonstrated high internal consistency with an overall alpha of 0.93. Parents of residents rated the care they receive highly compared to the community sample (mean overall score of 76.9 vs 62.07). Resident scores were higher than the community sample in all primary care domains except longitudinal continuity (resident mean score 51.87 vs community 53.34). The domains rated most highly by parents of residents included communication (mean 89.15) and coordination (mean 79.61). Parents of children under 6 years old rated the care they received significantly higher for all domains except longitudinal continuity. Conclusions: Parents perceive that pediatric residents provide high quality pediatric care as compared to a previously reported community sample. Implications for Policy, Delivery or Practice: The P3C can be used to assess resident care delivery and guide educational interventions. Primary Funding Source: Other, Ambulatory Pediatric Association ● All Improvement is Local: Evaluating the Use of an Innovative, Multi-Faceted Intervention by a National Professional Organization to Translate its Guidelines into Practice Suzanne Lazorick, M.D., M.P.H., Virginia L.H. Crowe, R.N., M.S., Judith Dolins, M.P.H., Carole M. Lannon, M.D., M.P.H. Presented by: Suzanne Lazorick, M.D., M.P.H., Primary Care Research Fellow, The Center for Children's Healthcare Improvement, UNC Chapel Hill, 200 Timberhill Place, Suite 200, CB#7226, Chapel Hill, NC 27599-7226; Tel: (919)843-8115; Fax: (919)9669203; E-mail: lazorick@email.unc.edu Research Objective: Professional organizations have not engaged in partnership at local levels to translate guidelines into practice. The objective of this study was to understand facilitators, barriers, and outcomes of using American Academy of Pediatrics (AAP) chapters to implement the evidence-based guidelines for diagnosis and treatment of Attention Deficit Hyperactivity Disorder (ADHD). With support from a quality improvement (QI) organization, this intervention targeted: 1) leadership of AAP state chapters and 2) primary care practices (including participation in online education modules, attendance at a workshop, completion of chart reviews, and ongoing coaching in QI). Study Design: Qualitative analysis of responses from semistructured interviews and chapter monthly progress reports. Two researchers coded responses for factors related to program implementation. Outcomes assessed were development of infrastructure to support participating practices, or future plans for expansion. Practices audited charts to identify gaps and track improvements in care based on the guidelines Population Studied: Five state chapters were selected from 22 applications. We interviewed project leaders from the four chapters that completed the intervention phase: the physician champion, executive director, and project director, where applicable. One state deferred participation due to competing state priorities. Principal Findings: All nine project leaders, representing 60 practice teams, were interviewed and all 22 reports were reviewed. Facilitators to involving practices, sustaining interest, and stimulating changes included: personal contact from local opinion leaders, a face-to-face gathering of teams, involvement of office staff in addition to a physician, regular conference calls with teams and chapter staff, involving experts on calls, frequent contact from project administrators, and use of measurement to identify gaps in care. Baseline chart audits demonstrated that no practice was providing care consistent with the seven components of the guidelines, but few teams continued ongoing measurement. Barriers included time commitment, lack of reimbursement for children’s mental health services, competing clinical priorities (e.g., winter “flu” season), time required for clinicians to complete online modules, and lack of availability of data about progress for tracking changes in care. Three chapters plan ongoing activities with current practices in improving ADHD care. Two have secured funding to expand the program and engage additional practices. Three have specific plans to use the QI infrastructure developed to address additional clinical topics. Conclusions: Chapter leaders believe this intervention helped them develop the nascent infrastructure needed to support local practice teams in quality improvement activities. Direct contact from state opinion leaders and a face-to-face meeting engaged participants and facilitated collaboration. Use of baseline measurement identified gaps in care and motivated participation; however, lack of ongoing measurement inhibited the use of data to drive further improvements. Support from the national AAP and a QI organization was important. Implications for Policy, Delivery or Practice: These findings will be applied in the next project year involving six additional chapters. Professional societies at the national and state level are interested in and can develop local infrastructure for improvement and translation of guidelines into practice. Coaching, tools, and support from the national organization and quality improvement experts are helpful in facilitating these efforts. Primary Funding Source: AHRQ ● Differences in Emergency Department (ED) Use Patterns for Medicaid and Commercially Enrolled Children in the Same Managed Care Organization. Patrick Vivier, M.D., Ph.D., William Lewander, M.D., William J. Lewander, M.D., Stephanie D. Schech, M.P.H., Jeffrey D. Blume, Ph.D., James G. Linakis, Ph.D., M.D. Presented by: William Lewander, M.D., Professor of Emergency Medicine, Emergency Medicine, Brown University/Hasbro Children's Hospital, Box G-RIH, Brown University, Providence, RI 02912; Tel: (401) 444-6882; Fax: (401) 444-6552; E-mail: WLewander@Lifespan.org Research Objective: The objective of this research is to examine differences in ED use for Medicaid and commercially enrolled children in the same managed care organization. Study Design: We performed a cohort study using administrative datasets maintained by the managed care organization. Data was conducted using Stata (version 8.2) and Excel. All confidence intervals have level 95%. Multivariate regression analyses were performed using an over-dispersed Poisson regression model. The primary diagnoses for visits were grouped into the 17 ICD9 categories, E code or V code categories. Population Studied: All children enrolled in the managed care organization for any length of time from January 1, 2000 through December 31, 2002, who resided in one northeastern state were included in the study. All enrollment days from all enrollments during the study period until the day before the 18th birthday were included. An algorithm was used to identify all ED visits that occurred while study children were enrolled in the managed care organization during the study period and before their 18th birthday. Principal Findings: The 30,720 commercially enrolled children made 9,270 ED visits in 36,045 years of enrollment time for an ED use rate of .25 visits per year of enrollment. The 35,465 Medicaid enrolled children made 28,740 visits in 50,458 years of enrollment for an ED use rate of .57 visits per year of enrollment. In a multivariate regression analysis controlling for age and gender the ED use rate of Medicaid enrolled children was more than twice that of the commercially insured children (rate ratio 2.15, CI 2.08-2.21). Sunday had the greatest proportion of ED visits for both the Medicaid (16.13%) and commercially (17.27%) insured children, followed by Saturday (15.58% for Medicaid and 15.90% for commercially enrolled) and Monday (14.82% for Medicaid and 14.06% for commercially enrolled). The ten most common diagnostic categories were the same, in the same order, for both the Medicaid and commercially insured children, accounting for 94% of visits for each group. While the relative rank of diagnoses was the same, there were differences in the percentage of visits in each category. Injury and poisoning was the most common diagnostic category for both groups, accounting for 42.21% of visits in the commercial group and 29.46% in the Medicaid group. Conclusions: The ED use rate for Medicaid enrolled children was twice that of children enrolled commercially in the same managed care organization, even when controlling for age and gender. The pattern of day of the week for visits was similar for both groups. The top primary diagnostic categories were also the same, though there were differences in the proportion in each category. Implications for Policy, Delivery or Practice: This study demonstrates that Medicaid enrolled children use the ED substantially more than commercially enrolled children in the same managed care organization. Ambulatory care patterns must be examined to determine whether this greater ED use by Medicaid enrolled children is related to lower use of nonED ambulatory services. The high proportion of ED visits for injury and poisoning in both groups emphasizes the importance of injury prevention programs for all children. Primary Funding Source: Center For Health Care Strategies ● Ambulatory Use Patterns for Medicaid and Commercially Enrolled Children in the Same Managed Care Organization. Patrick Vivier, M.D., Ph.D., James Linakis, Ph.D., M.D., James G. Linakis, Ph.D., M.D., William J. Lewander, M.D., Stephanie D. Schech, M.P.H., Jeffrey D. Blume, Ph.D. Presented by: James Linakis, Ph.D., M.D., Associate Professor of Emergency Medicine, Emergency Medicine, Brown University/Hasbro Children's Hospital, Box G-RIH, Brown University, Providence, RI 02912; Tel: (401) 444-6680; Fax: (401) 444-6552; E-mail: James_Linakis_PhD@Brown.edu Research Objective: The objective of this research is to examine ambulatory use for Medicaid and commercially enrolled children in the same managed care organization. Study Design: We performed a cohort study using administrative datasets maintained by the managed care organization. Data was conducted using Stata (version 8.2) and Excel. All confidence intervals have level 95%. Multivariate regression analyses were performed using an over-dispersed Poisson regression model. Population Studied: All children enrolled in the managed care organization for any length of time from January 1, 2000 through December 31, 2002, who resided in one northeastern state were included in the study. All enrollment days from all enrollments during the study period until the day before the 18th birthday were included. All ambulatory visits that occurred during the study period, prior to the child’s 18th birthday were included. Principal Findings: The 30,720 commercially enrolled children made 139,791 ambulatory visits in 36,045 years of enrollment time for an ambulatory use rate of 3.88 visits per year of enrollment. The 35,465 Medicaid enrolled children made 184,683 ambulatory visits in 50,458 years of enrollment for an ambulatory use rate of 3.66 visits per year of enrollment. In the multivariate regression analysis controlling for age and gender the rate of ambulatory visits for Medicaid enrolled children was somewhat less than that of the commercially enrolled children (rate ratio .85, CI .84-.87). A majority of ambulatory visits for both groups were to office based practices (94.83% for commercially enrolled and 74.10% for Medicaid enrolled children). However a substantially greater proportion of visits of Medicaid children were to hospital based clinics (20.53% versus 3.67%). Pediatrician was the most common physician specialty at ambulatory visits for both groups (71.91% for Medicaid enrolled and 67.79% for commercially enrolled children). Ambulatory care was uncommon on the weekends for both groups (3.92% of ambulatory visits for Medicaid enrolled and 5.82% of ambulatory visits for commercially enrolled). Conclusions: The ambulatory use rate for Medicaid enrolled children was somewhat less than that of children commercially enrolled in the same managed care organization, when controlling for age and gender. While a majority of ambulatory visits for both commercial and Medicaid children were to office based practices, substantially more visits for Medicaid enrolled children were to hospital based clinics compared to commercially enrolled children. Implications for Policy, Delivery or Practice: The somewhat lower rate of ambulatory use and the greater proportion visits to hospital-based clinics for Medicaid enrolled children may have implications for other care indicators such as emergency department use. Primary Funding Source: Center for Health Care Strategies ● Factors Associated with Family-Centered Care for Children with Special Health Care Needs (CSHCN) Jacalyn Yingling, M.S., Gregory Liptak, M.D., M.P.H., Monica Serdinow, Au.D., Mark Orlando, Ph.D., Karen Nolan, P.T., M.S., Amy Luvera, M.S., O.T., Emily Kuschner, M.A. Presented by: Gregory Liptak, M.D., M.P.H., Professor of Pediatrics, Pediatrics, University of Rochester Medical Center, 601 Elmwood Avenue, Rochester, NY 14642; Tel: (585) 275-5962; Fax: (585) 275-3366; E-mail: Gregory_Liptak@urmc.rochester.edu Research Objective: Family-centeredness is a critical element of health care for all children, and provides the context in which health and health-related services are delivered to the child and family. Care that is family-centered can promote the psychosocial well-being of children and their parents, and increase satisfaction with services. The purpose of the study was to evaluate the family-centeredness of care delivered to CSHCN. Study Design: Secondary analysis of data obtained from the State and Local Area Integrated Telephone Survey (SLAITS), developed by the Centers for Disease Control and Prevention. Data were analyzed using SUDAAN statistical software. Family-centered care (FCC) was evaluated by creating a composite variable, the sum of responses on five questions that focused on attributes of FCC. Each attribute was scored using a Likert-scale that ranged from 1 (never) to 4 (always). Interactions between the FCC score and demographic, financial characteristics, access, and coordination of health care services were assessed. Population Studied: Families of 36,453 CSHCN (weighted sample size of 8,742,837), younger than 18 years, responding to the SLAITS Principal Findings: The possible range of scores on the FCC was 5-20. The mean was 17.16, (SE mean 0.03), with a median of 18; 33% lacked =1 component of FCC. The factor rated the lowest was getting sufficient information about the child’s condition (5% said they ‘never’ received specific information). Using multiple linear regression, family-centeredness was significantly associated (all p<0.01) with the providers’ ability to communicate with other providers, measures of access to care (including delay in care, continuity of care, and health insurance), severity of the condition, and care coordination. The overall R2 for the model was 0.32. Conclusions: Although families of CSHCN generally perceive that their care is family-centered, gaps exist. Families often do not receive sufficient information about their child’s care or condition. FCC is associated with (1) providers' communication skills, (2) access to care, including continuity of care, (3) severity of the condition (including impact on the family), and (4) care coordination. Implications for Policy, Delivery or Practice: Models of care delivery, such as the Medical Home, may be able to address these issues and improve FCC. Continuing education for providers that includes communication skills and knowledge of CSHCN may be able to improve FCC as well. Primary Funding Source: Other Govt, DHHS: Maternal and Child Health Bureau; Leadership Education for Neurological and Related Disabilities ● Factors Associated with Early Intervention Utilization among Infants with Hearing Loss in Massachusetts Chia-ling Liu, R.N., M.P.H., Sc.D., Chia-ling Liu, R.N., M.P.H., Sc.D., Janet Farrell, B.A., Sarah Stone, B.B.A., Wanda Barfield, M.D., M.P.H., Nancy Wilber, Ed.D. Presented by: Chia-ling Liu, R.N., M.P.H., Sc.D., Research and Evaluation Specialist, Bureau of Family and Community Health, MA Dept. of Public Health, 250 Washington Street, Boston, MA 02108; Tel: (617) 624-5262; Fax: (617) 624-6062; E-mail: penny.liu@state.ma.us Research Objective: Every year, about 200 newborns in Massachusetts (MA) are affected by a hearing loss. Without appropriate intervention, children with hearing loss can experience delays in cognitive, verbal, behavioral, and emotional development, which later affect academic achievement and employment success. Our objective is to examine factors associated with the receipt of Early Intervention (EI) services among infants with hearing loss in MA. Study Design: We analyzed data from birth certificates, audiologic evaluation reports, and EI reports for infants with hearing loss. Multivariate logistic regression was estimated on EI enrollment, adjusting for infant factors (birth weight, laterality, type, and severity of hearing loss) and maternal factors (age, race/ethnicity, preferred language, country of birth, education, health insurance, and poverty status in town of residence). For children who were not enrolled in EI, we conducted qualitative analysis based on information from family reports collected through outreach activities and audiologic evaluation reports from infants’ Audiologic Evaluation Centers (AECs). Population Studied: This study consists of 403 MA residents born in 2002-2003 that were diagnosed with hearing loss through the 26 state-approved AECs by December 2004. Principal Findings: A total of 285 (71%) study children received EI services. Having more severe forms of hearing loss, other health risks, or living in more affluent towns was associated with EI utilization for infants with hearing loss in MA. Families were more likely to enroll children in EI services if the hearing loss was bilateral (adjusted odds ratio (aOR)= 4.4, 95%CI= [2.6, 7.2]) or severe/profound (aOR= 2.7, 95%CI= [1.4, 5.2]). Furthermore, being low-birth-weight (aOR= 5.3, 95%CI= [2.4, 11.7]) or residing in towns with <10% families living below the poverty line (aOR= 2.1, 95%CI= [1.2, 3.9]) strongly predicted the receipt of EI services for infants with hearing loss in Massachusetts. Qualitative analysis revealed that both parents and providers were responsible for failing to enroll infants with hearing loss in EI programs. Of those who did not receive EI services (n=118), 74 (63%) reported hearing testing was still ongoing. About one-third of parents of the non-enrolled children believed that 1) their child’s hearing was fine, 2) their child did not need EI services, or 3) they wanted to “wait and see” how things went. Five percent of families reported that their pediatrician did not encourage EI services. In addition, 70% of audiologic evaluation reports for these non-enrolled children indicated that no EI information was discussed with families during the visits. Conclusions: Children’s health status and residence significantly predict EI utilization among infants with hearing loss in MA. Pending diagnosis as well as parental and providers’ attitude toward EI services prevent infants with hearing loss from EI participation. Implications for Policy, Delivery or Practice: Timely diagnosis, provider and parental education on the need to use EI services for infants with milder hearing loss, as well as outreach efforts to communities with higher poverty concentration are key factors to improve EI utilization among infant with hearing loss in MA. Primary Funding Source: CDC, MCHB ● Are We There Yet? The Distances Children Travel to Obtain Pediatric Subspecialty Care Michelle Mayer, Ph.D., M.P.H., R.N. Presented by: Michelle Mayer, Ph.D., M.P.H., R.N., Research Assistant Professor, Cecil G. Sheps Center for Health Services Research, University of North Carolina, 725 Airport Road, CB 7590, Chapel Hill, NC 27599; Tel: (919) 966-5967; Fax: (919) 966-5764; E-mail: michelle_mayer@unc.edu Research Objective: There is currently concern that the supply of pediatric subspecialists is not sufficient to meet the needs of children; however, the adequacy of pediatric subspecialists supply relative to patient demand or need has not been assessed. Geographic accessibility is one important measure of workforce adequacy. To date, no one has estimated the distances that children must travel to obtain pediatric subspecialty services in the United States. Our objective was to estimate the distance between pediatric populations in the United States and identify county characteristics that are associated with greater distances to pediatric subspeciality care. Study Design: Using physician data from the American Board of Pediatrics and county level data from the Bureau of Health Professions Area Resource File (ARF) and the Bureau of the Census, we calculated the straight line distance between each county in the United States and the nearest pediatric subspecialty provider. We merged 2003 estimates of the under-18 population from the United States Bureau of the Census. Using distance and population data, we calculated the percentage of the pediatric population living within 10, 1150, 51-100, 101-200, and 200 or more miles of a provider for each specialty. Using county level observations for all pediatric subspecialties simultaneously, we performed random effects logit to identify county characteristics associated with living more than 50 miles from a pediatric subspecialty provider. Population Studied: Nationally representative study of US pediatrician specialists and children. Principal Findings: Across all counties in the United States, the population-weighted average distance to a board-certified pediatric subspecialist ranged from 12.6 miles for neonatology to 76.7 miles for pediatric sports medicine. For most pediatric subspecialties, more than 75% of the pediatric population lives within 50 miles of a certified physician. Adolescent medicine, developmental and behavioral pediatrics, pediatric rheumatology, and pediatric sports medicine are exceptions. Non-metropolitan counties and those in the Pacific and Mountain regions of the United States were significantly more likely to be located more than 50 miles from a pediatric subspecialist. Conclusions: For most pediatric subspecialties, more than 75% of the under-18 population lives within 50 miles of a provider. Pediatric subspecialists in adolescent medicine, developmental pediatrics, rheumatology, and sports medicine are less widely available. Implications for Policy, Delivery or Practice: These results suggest that the practice locations of pediatric subspecialists parallel the geographic distribution of children in the United States. Nonetheless, children from non-metropolitan counties and those in selected regions of the United States face significant geographic barriers to receipt of pediatric subspecialty care. Future studies should identify ways to improve access for those children living in areas without a nearby provider and should evaluate the extent to which pediatric subspecialist supply is adequate to meet patient demand in the areas that currently have providers. Efforts to expand access through innovative physician networks and care delivery systems are warranted to expand access to children who reside in areas that lack sufficient population density to support pediatric subspecialists. Primary Funding Source: AHRQ ● Measurement Dependent Variations in Prevalence of ADHD and ADHD-Related Conditions in Children Elizabeth Momany, Ph.D., Peter C. Damiano, D.D.S., M.P.H. Presented by: Elizabeth Momany, Ph.D., Assistant Research Scientist, Public Policy Center, The University of Iowa, 227 South Quad, Iowa City, IA 52242; Tel: (319) 335-6812; Fax: (319) 335-6801; E-mail: elizabeth-momany@uiowa.edu Research Objective: To determine the prevalence of Attention Deficit/Hyperactivity Disorder in an S-SCHIP program utilizing 3 different methods of defining the group with ADHD and to describe the population with ADHD in a publicly funded program. Study Design: Encounter and enrollment data were used to determine the proportion of children within the S-SCHIP program who had ADHD during 2001. Three methods of determining prevalence rates were utilized. Method 1 included all children regardless of length of enrollment and counted a child as having ADHD if they had one encounter during 2001 with a diagnosis code of 314.00, 314.01, or 314.9. Method 2 included all children regardless of enrollment period, utilized the same diagnosis codes and added children with at least one filled prescription for Adderall, Cylert, Dexedrine, Methylphenidate Hydrochloride, Pemoline, Ritalin, or Strattera. Method 3 followed Method 2, but limited the prevalence to children with 11-12 months of enrollment. Population Studied: Children ages 3-18 years enrolled in the Iowa S-SCHIP program for at least 1 month during calendar year 2001. Principal Findings: The prevalence of ADHD for all children using diagnosis codes, Method 1, was 1.0%-children 3-6, 4.5%-children 7-9, 5.3%-children 10-12, 4.1%-adolescents 13-15, and 1.9%-teens 16-18. Prevalence increased when determined through diagnosis and prescriptions, Method 2, to 1.5%children 3-6, 6.8%-children 7-9, 8.5%-children 10-12, 6.8%adolescents 13-15, and 3.0%-teens 16-18. When the prevalence rate was limited to children who were eligible for 11-12 months who had a diagnosis of ADHD or a filled prescription, Method 3, there were even greater increases. The prevalence for this method was 2.2%-children 3-6, 9.3%-children 7-9, 12.2%children 10-12, 9.8%-adolescents 13-15, and 4.1%-teens 16-18. 8% of children who didn't have a diagnosis code of ADHD and/or a filled prescription for an ADHD medication were reported to have attention problems by their paretns. In addition, 28% of children who did have a diagnosis of ADHD and/or a filled prescription for an ADHD medication were not reported as having attention problems by their parents. In keeping with previous research, we found that the prevalence of ADHD was higher for boys than girls across age categories. We also found that the prevalence of ADHD was highest for caucasians. Conclusions: A variety of characteristics need to be taken into account in prevalence calculations. Time of enrollment, type of data, and method of identifying the disease are all important aspects of the methodology. For ADHD the most valid prevalence rate was determined using a popluation that has been in the program for 11-12 months and had a diagnosis of ADHD on a medical encounter or a filled prescription for an ADHD medication. In addition, parental survey reports and secondary data sources cross-validate whether a child has ADHD. Implications for Policy, Delivery or Practice: When managing health care for a large population of children and adolescents, ADHD becomes a major source of cost. Accurate determinations of prevalence are required to anticipate the resources needed to meet the needs of this population. Awareness of different prevalence rates based on methodologic approach is important to understand. Primary Funding Source: Other Govt, State of Iowa Department of Human Services ● An Exploratory Study of Dental Health Status and Risk Factors for Dental Disease: Findings from a Network of Child Care Centers in the Mississippi Delta Linda Southward, Ph.D., Angela Robertson, Ph.D., Elisabeth Wells-Parker, Ph.D. Presented by: David Parrish, M.S., Research Associate III, Social Science Research Center, Mississippi State University, 1 Research Boulevard, Suite 103, Mailstop 9628, Mississippi State, MS 39762; Tel: (662) 325-7127; Email: david.parrish@ssrc.msstate.edu Research Objective: This paper describes caries prevalence among preschool children in the Mississippi Delta, associated parent and child oral health practices, and oral health environments of the15 child care centers in which they are enrolled. Study Design: Exploratory study to determine the prevalence of caries in a preschool, population. Parental self-report surveys were conducted regarding their own oral health status, their child. Child care directors also completed surveys on the oral health practices within the child care setting. A pediatric dentist completed on-site oral health assessments. Population Studied: Convenience sample of 346 children, ages 3-5 attending 15 child care centers in a twelve-county Mississippi Delta region. Principal Findings: Children (3-5 yrs) with public insurance were twice as likely to have caries history, caries present, early childhood caries and urgent treatment compared to children with private insurance. Among parental factors, soft drink consumptions of parent and parent abscess history were strong predictors of presence of caries and urgent treatment needs, respectively in their children. While not statistically significant, children 3 years and older attending centers without center based oral care programs were twice as likely to have urgent dental needs compared to children attending centers with no center based oral health programs. Conclusions: The importance understanding a broad array of risk factors within young children’s environment is critical. The combined use of the two variables: parental soft drink consumption, and parental abscess history, appears promising for prediction of early caries experience. Oral health prevention and treatment programs that may be implemented in child care venues merit further exploration, particularly among young children at greatest risk for developing caries. Implications for Policy, Delivery or Practice: Potential outcomes of defining a caries risk assessment instrument include: reduced disease rates, delay of onset of disease, decreased need for treatment and subsequent reduction of dental costs for treatment. Primary Funding Source: AHRQ ● Children's Racial Heritage and the Child Health Behaviors/Beliefs of Their Child Care Directors Ruchi Gupta, M.D., M.P.H., John Pascoe, M.D., M.P.H., Linda Southward, Ph.D., Paula Duncan, M.D., Peter Gorski, M.D., M.P.A., Robert Greenberg, M.D. Presented by: John Pascoe, M.D., M.P.H., Physician, Pediatrics, Children’s Medical Center, One Children’s Plaza, Dayton, OH 45404; Tel: (937) 641-3277; Fax: (937) 641-3278; E-mail: john.pascoe@wright.edu Research Objective: To examine the child health related beliefs and behaviors of child care administrators in child care settings that serve primarily Hispanic-American, AfricanAmerican or Euro-American young children. Study Design: : Telephone survey of a random sample of over 2000 licensed child care center directors from a total of four states including Northeastern, Southeastern and Western states. Population Studied: Child care directors in four states including Mississippi, Vermont, Florida, and New Mexico were randomly selected for the study. Principal Findings: 2201 directors (response rate=89%) completed the survey. 1713 (78%) reported that at least 50% of the children attending their centers were Hispanic-American (HAC) (N=182), African-American (AAC) (N=557) or EuroAmerican (EAC)(N=974). Lack of funds was a significant barrier to health education in AAC (34%) compared to HAC (19%) and EAC (20%), p<0.0001. HAC directors were more likely to cite difficulty with English as a barrier to health education (28%) compared to directors of AAC (8%) or EAC (8%), p<0.0001. HAC were more likely to screen for health problems (78%)compared to AAC (65%) or EAC (64%), p=0.003. HAC directors were also more likely to be concerned about children s dental health (40% vs 12%-AAC, 11%-EAC, p<0.0001), children s weight (19% vs 8%-AAC, 11% -EAC, p<0.001) and physical inactivity (49% vs 17%-AAC, 28% -EAC, p<0.0001). In addition, HAC were more likely to have nutritionist consultants (36%) compared to AAC (23%) or EAC (16%), p<0.0001. AAC directors were less concerned that parental smoking was having an impact on children s health (47%) compared to HAC (58%) or EAC (61%) directors , p<0.0001. Conclusions: HAC directors had more health concerns related to childhood obesity and dental health for the children in their centers compared to AAC or EAC directors. HAC directors were more likely to cite difficulty with English as a barrier to health education efforts at their centers, while AAC directors were more likely to cite lack of funds. AAC directors were less concerned about the impact of parental smoking on children s health compared to HAC and EAC directors. Implications for Policy, Delivery or Practice: Targeted health promotion interventions must be developed for preschool children in child care. Understanding important health issues based on race/ethnicity will help us focus our interventions to better serve individual populations. Primary Funding Source: none, MSU SSRC ● Emergent and Non-Emergent Visits to a Children's Hospital's Emergency Department Between 1987 and 2003 John Pascoe, M.D., M.P.H., Adrienne Stolfi, M.S.P.H., Arthur Pickoff, M.D., Carla Clasen, M.P.H., Katherine Cauley, Ph.D. Presented by: John Pascoe, M.D., M.P.H., Professor, Pediatrics, Wright State University School of Medicine, One Children's Plaza, Dayton, OH 45404; Tel: (937)641-3277; Fax: (937)641-3278; E-mail: susan.howard@wright.edu Research Objective: To examine the annual proportions of emergent/non-emergent visits to a children's hospital Emergency Department over 17 years (1987-2003). Study Design: The Emergency Department Profiling Algorithm created by John Billings, M.D. and his colleagues at the New York University Center for Health and Public Service Research was applied to the administrative records of all children seen at The Children's Medical Center of Dayton's Emergency Department (ED) from 1987-2003. The four algorithm categories included: Non-Emergent, Emergent/Primary Care Treatable, Emergent/ED Care Needed but Preventable, and Emergent/ED Care Needed, Not Preventable. The algorithm was developed by a panel of emergency department physicians and is based on information abstracted from a total of 5700 emergency department records of children and adults from six Bronx, New York hospitals in 1994 and 1995. For each diagnosis a specific proportion of patients was assigned to each of the four categories noted above, thus the sum of the proportions for each diagnosis equals 100%. Population Studied: There were 717,355 visits to the Emergency Department at The Children's Medical Center of Dayton for children less than 19 years old between 1987 and 2003 and 461,796 visits "mapped" to the algorithm. Principal Findings: The most common Emergency Department diagnoses that "mapped" to the algorithm were otitis media (64,199), asthma (42,306), acute URI(40,692), fever(39,878) and gastroenteritis(33,043). The overall mean+/standard deviation(SD) of proportions for each of the algorithm's four categories over 17 years: Non-Emergent .35+/-.27, Emergent/Primary Care Treatable .36+/-.25, Emergent/ED Care Needed, but Preventable .17+/-.31, Emergent ED Care Need, Not Preventable .12+/.21. The proportion of Non-Emergent visits ranged from .29 to .37 between 1987 and 1996. The State Child Health Insurance Plan was enacted by Congress in 1997 and the proportion of Non-Emergent visits dropped to .25 in 1997, .26 in 1998 and .30 in 1999. Between 2000 and 2003 Non-Emergent visits ranged from .37 to .45. During the same interval (1997-2003) Emergent visits, Not Preventable ranged from .10 to .17. Total ED visits at The Children's Medical Center of Dayton that "map" to the algorithm have almost doubled between 1987(n=17269) and 2003(n=32504) while total ED visits have increased from 29913 (1987) to 46834 (2003). Conclusions: Children with common primary care diagnoses (e.g., otitis media, acute URI) are often seen at The Children's Medical Center of Dayton's Emergency Department. Mean Non-Emergent visits (.35) for children less than 19 years are less common in Dayton compared to Non-Emergent visits to New York emergency departments (.42) as reported by Dr. Billings in 1998. Emergent Visits/Not Preventable were similar for Dayton (.12) and New York (.15). There was a temporal association between enactment of the State Child Health Insurance Program and a decrease in Non-Emergent visits for two to three years. However, Non-Emergent visits have risen during the last several years to more typical levels. Implications for Policy, Delivery or Practice: Emergency department physicians at The Children's Medical Center of Dayton have provided health care to thousands of children over many years for non-emergent conditions. The State Child Health Insurance Plan has not resulted in permanent change to fewer Non-Emergent visits. While improving access to the primary care delivery system for children and adolescents is a complex task, it is a vitally important component of any comprehensive strategy that aims to provide high quality, cost effective medical care for children and adolescents in the 21st century. Primary Funding Source: N/A ● Potentially Medically Unnecessary Transports (PMUTs) of Public Emergency Medical Services (EMS) Systems Among Children 17 Years and Younger Daniel Patterson, Ph.D., M.P.H., Janice C Probst, Ph.D. Presented by: Daniel Patterson, Ph.D., M.P.H., AHRQ-NRSA Post Doctoral Research Fellow, Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, 725 Airport Road CB #7590, Chapel Hill, NC 27599; Tel: (919) 966-0047; Fax: (919) 966-5764; E-mail: dpatterson@schsr.unc.edu Research Objective: Estimate the prevalence of Potentially Medically Unnecessary Transports (PMUTs) by public Emergency Medical Services (EMS) among children in three counties of a Southeastern state. Study Design: To estimate the prevalence of PMUTs we merged administrative billing data collected from one EMS billing entity representing three public EMS systems with ED data from a state-level ED data repository. These data include EMS transports for all children ages 0 to 17 years to any hospital within one Southeastern state. A PMUT was defined using emerging criteria developed at the Neely conference held in Panama City, Florida January 2003. Independent variables include rural-urban status, age, gender, race, insurance status, and dispatcher impression. Population Studied: All patients aged 17 years and younger transported by one of three public EMS systems within one Southeastern state over the course of 27 months. Principal Findings: A total of 5,693 children were transported between January 1, 2001 and March 31, 2003. One in every six EMS transports was potentially medically unnecessary. The most common primary diagnosis among PMUTs was ICD9 code 382, Acute Suppurative Otitis Media. The prevalence of PMUTs was higher among transports originating from a rural location versus urban (18.6% versus 15.8%; p=0.02). As age increases, the prevalence of PMUTs decreases ranging from 24.4% for 0-4 year olds to 13.3% for 13-17 year olds (test for trend p<0.0001). This study found no significant differences between males and females. The proportions of PMUTs across race, insurance status, and dispatch impression were highest among children of races other than white, African American, and Hispanic (20.8%, p<0.0001), Medicaid insured (21.7%, p<0.0001), and children assumed to be suffering from a behavioral emergency by EMS dispatch (46.5%, p<0.0001); e.g. hysteria, fainting, overdose, psychiatric/behavioral, impairment similar to alcohol, or altered mental status. In looking further at children transported for behavioral emergencies, the most common diagnosis for children for age 10 and less was ICD9 code 79.9 and 312.8; unspecified viral infection, and other specified disturbances of conduct, not elsewhere defined. For children 11 and older, the most common diagnosis was ICD9 code 305, 311, and 312.8 nondependent abuse of drugs, depressive disorder, and other specified conduct, not elsewhere defined. Conclusions: This study provides evidence that one in every six child related transport is potentially medically unnecessary. A greater understanding of PMUTs among children, and whether or not disparities in access to care contribute, is needed. Implications for Policy, Delivery or Practice: Most public EMS systems respond, provide care, and transport patients for a variety of illnesses and conditions regardless of need. Due to rising costs and decreases in reimbursement, many systems have adopted no-transport policies for patients determined to not need EMS services. Widespread adoption of no-transport policies could have a significant impact on the type of prehospital care many very young patients receive. Primary Funding Source: AHRQ ● Blood lead testing in Medicaid Children: Comparison of Parental Responses with Medicaid Claims and with Surveillance Data Barbara Polivka, Ph.D. Presented by: Barbara Polivka, Ph.D., Associate Professor, College of Nursing, The Ohio State University, 1585 Neil Avenue, Columbus, OH 43201; Tel: (614) 292-4902; Fax: (614) 292-4948; E-mail: polivka.1@osu.edu Research Objective: Screening for lead poisoning in children receiving Medicaid is federally mandated at ages 12 and 24 months, yet only about one-third of Ohio’s eligible children at this age are screened. Using the Access to Care model as a guiding framework, this study compared parental/caregiver self-report of blood lead testing with blood lead testing evidence in Medicaid claims data or in blood lead surveillance data. Study Design: Data from parents/caregivers were collected via a mailed survey of a random sample of 1,372 parents; blood lead testing data were validated with Ohio Medicaid claims and lead surveillance databases. Population Studied: Survey respondents (n=542) were primarily white (76%), female (97%), with at least a high school education (79%). Principal Findings: Fifty-six percent (n=296) reported their child had a blood lead level (BLL) drawn; 16% did not know. A blood lead testing could be not confirmed with claims/surveillance data for 44% (n=140) of these children. For 23% (n=54) of those reporting their child had not been tested, claims/surveillance data indicated blood lead testing had been completed. Logistic regression revealed the odds of a blood lead test per claims/surveillance data was 3.1 (CI=1.9,4.9) times greater if the child had a well-child visit in the previous three years; 1.8 (CI=1.2,2.7) times greater if they were an urban dweller, 1.8 (CI=1.2,2.7) times greater if the parent reported receiving a reminder to have their child tested, 1.6 (CI=1.1,2.4) times greater if the child was over 2 years old; and 1.6 (CI=1.1, 2.5) times greater if the parent reported receiving lead poisoning prevention information. Conclusions: Results suggest parents may not be aware if their child had actually been tested for blood lead. Multivariate analyses to determine factors related to a recorded blood lead test and to parental report of blood lead testing indicated a greater likelihood if a reminder, card, letter or call was made and if the respondent recalled receiving information on lead poisoning. Implications for Policy, Delivery or Practice: Healthcare providers need to supply parents with documentation regarding blood lead testing, assure reminders are sent to parents, and provide lead poisoning prevention education to all parents of young children. Primary Funding Source: Other, Ohio Department of Job and Family Services and Ohio Board of Regents ● Impact of Patient-Centered Decision-Support on Quality of Asthma Care in the Emergency Department Stephen Porter, M.D., Peter Forbes, M.S., Henry Feldman, Ph.D., Donald Goldmann, M.D. Presented by: Stephen Porter, MD, MPH, MSc, Assistant Professor, Division of Emergency Medicine, Children's Hospital Boston, 300 Longwood Avenue, Boston, MA 02115; Tel: 617 355 2136; Fax: 617 730 0335; E-mail: stephen.porter@childrens.harvard.edu Research Objective: We evaluate the impact of the asthma kiosk on measures of quality during ED care, specifically, parent-reported satisfaction with communication and provider compliance with guideline-endorsed processes of care. Study Design: An intervention trial was conducted at a single tertiary care pediatric ED. Eligible subjects were English or Spanish-speaking parents of children age 1 to 12 years with a respiratory complaint and history of asthma. Parents used the kiosk to report children's symptoms, current medications and unmet needs. During baseline, no output from the kiosk was shared and usual care proceeded. During intervention, the output was shared with ED clinicians. Subjects completed a telephone follow-up interview one week after discharge. Primary outcomes were: 1) prescription of controller medication to patients not on controllers whose disease severity met persistent criteria, and, 2) mean problem ratings for domains of information-sharing and partnership. Population Studied: Eligible subjects were English or Spanish-speaking parents of children age 1 to 12 years with a respiratory complaint and history of asthma Principal Findings: Over 5 months, 1090 parent-child dyads were screened and 430 were eligible. 286/430 (66.5 percent) parents enrolled in the trial. The kiosk generated severity classifications for 264/286 (92.3 percent) of children. 131 subjects enrolled during baseline, 13 during a run-in phase, and 142 during intervention. Baseline subjects were older (mean age 5.3 yr) compared to intervention (4.4 yr) but did not differ on chronic severity, current use of controllers, or race. During the intervention phase, providers gave a significantly higher proportion of inhaled corticosteroid to eligible patients compared to baseline (9/50 versus 2/43, p less than 0.05). Between baseline and intervention, the reported number of partnership problems rose from a mean of 1.4 (SD 1.7) to a mean of 1.8 (SD 1.4, p less than 0.05); the number of information problems was unchanged. When ED providers acted on kiosk data, reports of information problems were fewer with a mean of 0.6 problems (SD 0.8), than when no action was taken, mean 1.2 (SD 1.1, p equals 0.06.) Conclusions: The asthma kiosk successfully produced actionable output during ED care. The technology intervention demonstrated modest and variable impact on quality. ● Improving Child Health Measures with Item Response Theory Anastasia Raczek, M. Ed., John E. Ware, Jr., Ph.D., Michael A. DeRosa, M.A. Presented by: Anastasia Raczek, M. Ed., Scientist, QualityMetric Incorporated, 235 Wyman Street, Waltham, MA 02451; Tel: (781) 890-8882 X323; Fax: (781) 890-0910; E-mail: sraczek@qualitymetric.com Research Objective: Item response theory (IRT) and computerized adaptive testing (CAT) hold much promise in improving assessments of child health. Currently, fixed-item surveys present trade-offs when used for identifying disability, measuring functional status, or evaluating progress as children age or receive treatment. Short-forms may not be sufficiently precise for individual monitoring, or suffer from floor or ceiling problems. On the other hand, comprehensive long-form surveys may prove burdensome to complete. CAT uses a computer interface to administer an assessment specifically tailored to the unique functional level of a particular child. This poster will present the application of CAT and IRT in child health through two projects: 1) A pilot test in a clinical setting of a computerized, adaptive application for measuring mobility in children based on one scale of the Pediatric Evaluation of Disability Inventory (PEDI) (Haley Coster, Ludlow, Haltiwanger, & Andrellos, 1992); and 2) An improved measure of child functioning developed using IRT to analyze items from two widely-used surveys, and generating a combined measure with an expanded range. Study Design: 1) CAT Pilot Test: Items were calibrated using the Rasch model, differential item functioning was assessed, and a CAT was developed. The CAT and a corresponding paper-and-pencil survey were administered to 80 children/ clinicians. Scoring comparability and respondent burden were compared. Participants also completed a post-assessment evaluation. 2) Improved Functional Measure: The Rasch model was used to calibrate items from functional scales on the PEDI and Child Health Questionnaire (CHQ), two widely-used surveys of child disability and functioning. Population Studied: 1) CAT Pilot Test: IRT analyses were completed using an existing database of 881 children age 6 months to 17 years; 469 children were receiving rehabilitation services. The CAT was completed by clinicians or caregivers for 80 children in an urban children's hospital and rehabilitation center: 39 children with disabilities (6 months to 18 years), and 41 children without disabilities (6 months to 7.5 years). 2) Improved Functional Measure: In addition to the PEDI sample, data from a representative sample (N=391) of the non-institutionalized general U.S. population, ages 5-18, collected in 1994 as part of the National Survey of Functional Health Status were used; 55% reported having one or more of a list of physical and psychosocial conditions. Principal Findings: 1) CAT Pilot Test: Field test results confirmed the correspondence between scores from the two forms (full-length fixed and brief adaptive, r=0.98, p<.0001). The pediatric CAT was much less burdensome to complete, requiring about 15% the number of items and 21% the administration time. Participants generally preferred the computerized assessment. 2) Improved Functional Measure: items from the PEDI instrument tended to measure the “low” end of the functional continuum well, although the range of measurement was somewhat narrow. Items from the CHQ tended to measure a wider range. IRT can be used to co-calibrate items measuring the same construct, producing improved measures. Conclusions: Implications for Policy, Delivery or Practice: As pediatric rehabilitation and other health services are increasingly called on to demonstrate effectiveness, more precise, yet easy-toadminister, tools for documenting progress will be needed. Advantages of CAT applications include more precise measurement over a wider range of score levels and substantial reductions in respondent burden. Primary Funding Source: Other Govt, National Institute of Child Health and Human Development (NICHD) ● Provider-Level Differences in Psychotropic Medication Use Among Children in the Child Welfare System Ramesh Raghavan, M.D., Ph.D., Bonnie T. Zima, M.D., M.P.H., John Landsverk, Ph.D. Presented by: Ramesh Raghavan, M.D., Ph.D., Policy Director, The National Center for Child Traumatic Stress, University of California, Los Angeles, 11150 W Olympic Boulevard, Suite 650, Los Angeles, CA 90064; Tel: (310) 235-2633, x233; Fax: (310) 235-2612; E-mail: rraghavan@mednet.ucla.edu Research Objective: To estimate the prevalence rate of and variations in psychotropic medication use by type of provider visit (specialty only, primary care only, or both) among a nationally representative sample of children in the child welfare system. Study Design: We merged child-level data from the National Survey of Child and Adolescent Well-Being, and county-level provider supply data from the Area Resource File. We performed logistic regressions to estimate the odds of psychotropic medication use among children with a past year contact with specialty, primary care, and both types of providers for a mental health problem, adjusting for child-level characteristics and county-level provider supply variables. Population Studied: 3041 children aged between 2 and 16 years investigated by child welfare agencies for suspected child maltreatment between November 1999 and April 2002. Principal Findings: Overall, 14% of children were taking psychotropic medications. Male gender, history of sexual abuse, and a borderline score on the internalizing subscale of the Child Behavior Checklist (CBCL) predicted medication use among children with specialty provider visits. Older age, African-American race/ethnicity, and a borderline score on the externalizing subscale of the CBCL predicted medication use among children with primary care provider visits. For children who saw both specialty and non-specialty providers, male gender, history of sexual abuse, and a borderline score on the externalizing subscale of the CBCL were predictive of medication use. Controlling for sociodemographic variables and CBCL scores, the probability of psychotropic medication use was 0.3 for children with a specialty provider visit, and 0.5 for children with a non-specialty provider visit. Conclusions: There exist differences in the use of psychotropic medications by children in child welfare settings that are not explained by sociodemographic characteristics, abuse history, or family/placement status. These differences are likely related to the type of provider doing the prescribing. Implications for Policy, Delivery or Practice: Provider-level differences in psychotropic prescribing need to be understood if children in child welfare settings are to receive high-quality mental health care. Primary Funding Source: AHRQ ● Reductions in Newborns Diagnosed with Fetal Alcohol Syndrome in the United States, 1993 to 2002 James M. Robbins, Ph.D., James M. Robbins, Ph.D., T.M. Bird, M.S., John M. Tilford, Ph.D., J. Alex Reading, M.S., Mario A. Cleves, Ph.D., Mary E. Aitken, M.D., M.P.H. Presented by: James M. Robbins, Ph.D., Professor, Pediatrics, University of Arkansas for Medical Sciences, 800 Marshall Street, Little Rock, AR 72202; Tel: (501) 364-3300; Fax: (501) 364-1552; E-mail: robbinsjamesm@uams.edu Research Objective: Consumption of alcohol during pregnancy has declined over the past 10 years. Variation in birth defect surveillance system methodologies across states limits our understanding of whether rates of fetal alcohol syndrome have declined along with rates of drinking during pregnancy. This study uses national hospital discharge data to determine whether rates of newborn hospitalizations for fetal alcohol syndrome have declined over the past 10 years. Study Design: Data from the Healthcare Cost and Utilization Project Nationwide Inpatient Sample were used to estimate rates of newborn hospitalizations with the ICD-9-CM discharge code of fetal alcohol syndrome for years 1993 through 2002. Rates of newborn hospitalizations for fetal alcohol syndrome per 1,000 live births in the United States were determined. Additional analyses using the Kids' Inpatient Database compared changes in rates for whites, blacks, and Hispanics, and changes in rates for newborns from low, middle, and high-income families from 1997 to 2000. Drinking rates during pregnancy were obtained from the Behavioral Risk Factor Surveillance System for 1993 through 2002. Population Studied: All hospital births in the United States from 1993 through 2002. Principal Findings: Newborn hospitalizations with the discharge diagnosis of fetal alcohol syndrome declined from .73 per 1,000 live births in 1993 to .17 per 1,000 live births in 2002. Among blacks the rate declined from 2.03 in 1993 to .56 in 2002. From 1997 to 2000, rates declined significantly for lower income blacks and for middle and higher income whites. Rates declined concurrently with rates of alcohol consumption during pregnancy. Conclusions: Rates of fetal alcohol syndrome among newborns have declined 75% over the past 10 years. Results may be due to decreases in drinking during pregnancy, changes in hospital coding tendencies, or increased exposure to maternal protective nutrients such as folic acid. This study is limited by an ecological research design, ascertainment of cases in the newborn period only, and lack of independent validation of the fetal alcohol syndrome diagnosis. Implications for Policy, Delivery or Practice: Drastically declining rates of newborns with fetal alcohol syndrome may reflect greater concern with toxic fetal exposures as emphasized in the media and as legislated via warning labels on alcoholic beverages. National hospital discharge databases provide an important public health surveillance mechanism for conditions of the newborn. Primary Funding Source: CDC ● Development of the SF-10 for Children™ Version 2: A Tool to Monitor Pediatric Health Outcomes Renee Saris-Baglama, Ph.D., Michael DeRosa, M.A., Diane Turner-Bowker, Ph.D., Jakob Bjorner, M.D., Ph.D. Presented by: Renee Saris-Baglama, Ph.D., Scientist, QualityMetric Incorporated, 640 George Washington Highway, Lincoln, RI 02865; Tel: (401) 334-8800; E-mail: rsbaglama@qualitymetric.com Research Objective: The objective of this research is to develop a caregiver-completed, alternative short-form of the Child Health Questionnaire™ (CHQ) that is comprehensive, reliable, and valid. The primary goal of this study is to select a small set of items from a larger pool of CHQ items that reproduces the CHQ-50 physical (PHS) and psychosocial (PSS) summary component scales. Study Design: The SF-10 for Children™ Version 2 (v2) was derived from cross-sectional CHQ data obtained through the National Survey of Functional Health Status (NSFHS). Items from the pool (k=68) were categorized by the CHQ content domain and submitted to a series of forward stepwise regressions. Results were evaluated by how consistently items (independent variables) entered the model as strong predictors of the criterion dependent variables (summary scale scores). The psychometric properties of the resulting items and scales were examined. Population Studied: Participants were parents/guardians (N=411) who responded to questions about their child’s health-related quality of life (HRQOL) through the NSFHS, conducted by the National Opinion Research Center in 1994. More than half of the children were male (54%) and the mean age of the children was 11 years. Principal Findings: Ten items emerged as strong predictors of the PHS and PSS summary scales. Five items score the PHS-10 summary scale and five items score the PSS-10 summary scale. Summary component scores are norm-based scored (standardized to a mean of 50 and SD of 10 in the general US population) allowing scores to be directly comparable to one another and interpreted in relation to population-based norms. Scale-level discriminant and relative validity tests show that the SF-10 for Children (v2) retains the validity of the CHQ with substantially less respondent burden. Internal consistency reliability met the minimum of 0.70 for group comparisons. Conclusions: Development of the SF-10 for Children (v2) was a data-driven process resulting in an empirically sound and useful tool for measuring HRQOL in a pediatric population. Traditional HRQOL measures such as the CHQ typically are comprehensive, reliable, and valid, but include numerous items and can be impractical for use in some settings. Although not as precise as longer alternative forms, a brief instrument like the SF-10 for Children (v2) offers many advantages for practical application and yields results that are comparable to those that would be obtained with the longer form CHQ in population studies. Implications for Policy, Delivery or Practice: Standardized generic HRQOL measures may be used to identify those at risk for psychological or physical problems; quantify the effectiveness of treatment; monitor progress over time; and describe variations in treatment response and long-term prognosis in chronically ill children. With just 10 items on a one-page form, the SF-10 for Children (v2) can be easily integrated into many settings including routine clinical practice, disease management, and quality improvement initiatives. Enhancing the practicality of children’s HRQOL tools will make the management of children’s health more effective in meeting patient care needs. Primary Funding Source: N/A ● Child Characteristics and Enrollment Patterns for Medicaid and Commercially Enrolled Children in the Same Managed Care Organization Patrick Vivier, M.D., Ph.D., Stephanie Schech, M.P.H., Stephanie D. Schech, M.P.H., Jeffrey D. Blume, Ph.D., James G. Linakis, Ph.D., M.D., William J. Lewander, M.D. Presented by: Stephanie Schech, M.P.H., Researcher, Center for Health Care Policy and Evaluation, 12125 Technology Drive, Eden Prairie, MN 55344; Tel: (952) 833-7085; Fax: (952) 8337090; E-mail: stephanie_d_schech@uhc.com Research Objective: The objective of this research is to examine differences in child characteristics and enrollment patterns for Medicaid and commercially enrolled children in the same managed care organization. Study Design: We performed a cohort study using administrative datasets maintained by the managed care organization. Data was conducted using Stata (version 8.2) and Excel. All confidence intervals have level 95%. Population Studied: All children enrolled in the managed care organization for any length of time from January 1, 2000 through December 31, 2002, who resided in one northeastern state were included in the study. All enrollment days from all enrollments during the study period until the day before the 18th birthday were included. Principal Findings: There were 30,720 children enrolled in the managed care plan commercially and 35,465 enrolled through Medicaid. The Medicaid enrolled children were younger (7.14 years, CI 7.09-7.19) at the start of their first enrollment period as compared to the commercially enrolled children (mean 8.69 years, CI 8.64-8.75). Children under four years of age accounted for 40.59% of the Medicaid children as compared to 28.34% of the commercially insured children. Children ten years and older accounted for 32.53% of the Medicaid enrolled children and 44.47% of the commercially enrolled children. There was a small overall male predominance for both Medicaid enrolled (50.28% male) and commercially enrolled (51.11% male) children, with the gender proportions varying somewhat by age group. The mean number of days of enrollment was substantially greater for Medicaid enrolled children (519.31 days, CI 516.81-521.80) as compared to commercially enrolled children (428.27 days, CI 425.55430.99). The 25th, 50th and 75th percentile for days of enrollment for the Medicaid enrolled group was 312 days, 625 days and 730 days respectively. The 25th, 50th and 75th percentile for days of enrollment for the commercially enrolled group was 214 days, 366 days and 730 days respectively. Conclusions: Medicaid enrolled children were younger at the start of their first enrollment and had more mean days of enrollment as compared to children enrolled commercially in the same managed care organization. Implications for Policy, Delivery or Practice: While turnover in enrollment of Medicaid enrolled children has been identified as a concern, their time of enrollment in this managed care organization was longer than among commercially enrolled children. The specific findings of Medicaid children being younger and having longer enrollment periods may not be generalizeable to all managed care plans serving both Medicaid and commercially enrolled children. However, these differences do underscore the importance of taking into account such factors when comparing utilization patterns of Medicaid and commercially enrolled children, even when both groups are enrolled in the same managed care organization. Primary Funding Source: Center for Health Care Strategies ● Mental Health Services for Children with Severe Emotional Disturbance: Understanding Abuse Related Characteristics Christine Walrath, Ph.D., Angela Sheehan, M.P.A., Michele Ybarra, Ph.D., Barbara J. Burns, Ph.D., E. Wayne Holden, Ph.D. Presented by: Angela Sheehan, M.P.A., Research Associate, Applied Research Division, ORC Macro, 116 John Street, Floor 8, New York, NY 10038; Tel: (646) 695-8122; Fax: (212) 941-7031; E-mail: Angela.K.Sheehan@orcmacro.com Research Objective: Child abuse in this country remains an alarming problem, with 2.3 children per 1,000 physically abused and 1.2 children per 1,000 sexually abused (DHHS, 2002). Child abuse has been linked to various psychological and psychosocial problems among children, including higher rates of internalizing and externalizing problems, suicidality, aggressive/criminal behavior, and addiction/risk behaviors. The purpose of this study was to gain an understanding of the unique characteristics associated with abuse in efforts to inform policy-makers and service providers when making treatment decisions for children with abuse histories seeking community-based mental health services. Study Design: This study used information collected during the baseline assessment of children and their families who participated in the National Evaluation of the Comprehensive Community Mental Health Services for Children and Their Families Program (CMHS, 1999). This mental health service initiative funds local communities to develop systems of care to serve children with severe emotional disturbance (SED). Data used in the current study were collected between 1997 and 2003. Population Studied: This study was based on a sample of children (n=4,358) with caregiver reported abuse history data, who participated in the national evaluation. The majority of the children in the study sample were male (68.2%), White (56.0%), with an average age of 12.3. Based on caregiver reports, 14.5% had a history of physical abuse, 10.2% of sexual abuse, and 11.8% of co-occurring abuse. Principal Findings: Children with a history of running away and suicidality were each significantly more likely to have a history of abuse after adjusting for other characteristics. Substance abuse among caregivers was also associated with a reported history of abuse. Clinically, children with internalizing problems were more likely to have abuse histories. Children with histories of multiple types of abuse presented certain characteristics similar to children with physical abuse only histories and certain characteristics similar to children with sexual abuse only histories. Being female and sexually abusive was each associated with a reported history of sexual abuse and a reported history of multiple types of abuse. Family history of domestic violence appeared to be related to a child history of physical abuse and multiple types of abuse. Conclusions: The study results suggest that multiple abuse history is as prevalent as physical and sexual abuse alone; that a spectrum of characteristics are influential in discriminating children as a function of their abuse history; and that children reporting multiple abuse types demonstrate characteristics similar to children who have experienced physical abuse alone and other characteristics similar to children who have experienced sexual abuse alone. In sum, while psychosocial characteristics differentiate children with various abuse histories, the current findings suggest that the most risky behaviors (e.g., running away, suicide attempt) and negative life experiences (e.g., exposure to domestic violence, family mental illness) are associated with co-occurring abuse. Implications for Policy, Delivery or Practice: Understanding the unique characteristics associated with abuse histories is key to developing individualized treatment plans for children with reported histories of abuse and in identifying effective and evidence-based practices available to treat children with these complicated abuse experiences. Primary Funding Source: Other Govt, SAMHSA, Center for Mental Health Services ● School-Based Health Centers: What Services, For Whom Debra Tennyson, Ph.D., M.B.A., M.T.(ASCP) Presented by: Debra Tennyson, Ph.D., M.B.A., M.T.(ASCP), Associate Professor, Health Service Administration, Our Lady of the Lake College, 7443 Picardy Avenue, Baton Rouge, LA 70808; Tel: (225) 214-6969; Fax: (225) 768-0819; E-mail: dtennyso@ololcollege.edu Research Objective: To analyze the utilization and frequency patterns, and population demographics of those who use school-based health centers in a public school system. To compare the demand among school-based health centers which differ in student grade level and age of the clinic. Study Design: Archival record review of multiple established school-based health centers in a public school system during academic year 2003-2004. Blanket permission forms were sent to all school-enrolled parents for their child to use the school-based health center. Population Studied: The data of a Southern city’s public school system which has school-based health centers. The school-based health centers were established in different years, ranging from two- to 16-year affiliations. All youths who attended seven of the schools: three high schools, three middle schools and one elementary school, and utilized the affiliated health center were compiled and analyzed. School demographics and health center age were also factors included in the analysis. Principal Findings: Approximately 53 percent of the 5,400 students enrolled at these seven schools utilized the schoolbased health center at least one time. The 2,788 students used the clinic an average of five times over the academic year, with a range of 1-41 visits per patient. Out of the 14,684 visits, 76 percent were by AfricanAmericans, 56 percent were by those who were either uninsured or on Medicaid, and 57 percent were females. An overall compilation of the cases seen showed that the categories titled general preventative medicine,23.6%, mental health, 15.9%, head and central nervous system, 8.9%, muscular skeletal/trauma, 8.3%, and nose/ear/throat, 7.8% were the most common reasons for the visits. Health counseling and education only comprised an overall average of 4.3 percent of the visits, with a range of 0.2 percent in a high school to a high of 19 percent in a middle school. Further findings from combining insurance coverage, gender, primary diagnosis group and frequency of visit were also analyzed. Although the school with the newest, only two years, affiliated health center had the lowest percentage of youths utilizing its services, in general, there were no consistent pattern differences between patient utilization, age of clinic and school affiliation and school grades included in access. Conclusions: School-based health centers prove to be an important site for the delivery of health care, especially for uninsured and Medicaid covered youths. Surprisingly, lifestyle behavior-related reasons were least often seen conditions, such as drug abuse, pregnancy, sexually transmitted diseases and nutrition issues. This may be at least partially influenced by what procedures are traditionally reimbursed. This finding needs further study, as does the potential for school-based health centers to be independently, financially viable. Implications for Policy, Delivery or Practice: School-based health centers are well-positioned sources of health care delivery to vulnerable, dependent, school-age youths. Although school-based health centers provide a valuable service in the delivery of health care, their role appears to have potential to be more influential and pivotal in caring and educating our youth. Primary Funding Source: No Funding ● Do Ambulatory Care Use Patterns Explain the Greater Emergency Department (ED) Use for Medicaid Enrolled Children as Compared to Commercially Enrolled Children in the Same Managed Care Organization? Patrick Vivier, M.D., Ph.D., Jeffrey D. Blume, Ph.D., Stephanie D. Schech, M.P.H., William J. Lewander, M.D., James G. Linakis, Ph.D., M.D. Presented by: Patrick Vivier, M.D., Ph.D., Associate Professor of Community Health and Pediatrics, Community Health, Brown University/Brown Medical School, Box G-A4, Brown University, Providence, RI 02912; Tel: (401) 863-2034; Fax: (401) 863-3699; E-mail: Patrick_Vivier@Brown.edu Research Objective: Previous work determined that ED use rates were twice as high among Medicaid enrolled children as compared to commercially enrolled children in the same managed care organization, while ambulatory use was somewhat less for Medicaid enrolled children. The objective of the research presented in this abstract is to examine ambulatory care use as a potential explanatory factor for the greater ED use among Medicaid enrolled children as compared to commercially enrolled children in the same managed care organization. Study Design: We performed a cohort study using administrative datasets maintained by the managed care organizations. Data was conducted using Stata (version 8.2) and Excel. All confidence intervals have level 95%. Multivariate regression analyses were performed using an over-dispersed Poisson regression model. Population Studied: All children enrolled in the managed care organization for any length of time from January 1, 2000 through December 31, 2002, who resided in one northeastern state were included in the study. All enrollment days from all enrollments during the study period until the day before the 18th birthday were included. All ED and ambulatory visits that occurred during the study period, prior to the child’s 18th birthday were included. Principal Findings: In the multivariate analysis controlling for ambulatory use rates, as well as for age and gender the ED use rate of Medicaid enrolled children was still more than twice that of the commercially enrolled children (rate ratio 2.30, CI 2.23-2.37). Conclusions: Differences in ambulatory use rates do not explain the greater ED use by Medicaid enrolled as compared to commercially enrolled children in the same managed care organization. Implications for Policy, Delivery or Practice: It is not the case that low ambulatory use rates explain the greater ED use among Medicaid enrolled children. Primary care factors that need to be further investigated include the timing of ambulatory visits, sources of primary care and issues related to the quality of ambulatory care. Additional work must also focus on whether greater health care needs of Medicaid enrolled children may explain ED use differences. Primary Funding Source: none, Center for Health Care Strategies ● Healthcare Costs and Patterns of Illness in Military Dependants: Identifying Children at Risk Kathleen Walsh, M.D., Arlene S. Ash, Ph.D., Jennifer R. Fonda, M.A., Thomas V. Williams, Ph.D. Presented by: Kathleen Walsh, M.D., Fellow, Pediatrics, Boston Medical Center, 91 E Concord Street, Maternity 4104, Boston, MA 02118; Tel: (617) 414-5736; Fax: (617) 414-3679; E-mail: kathleen.walsh@bmc.org Research Objective: The U.S. Department of Defense manages the military health system (MHS), one of the largest integrated health care systems in the world, offering care to almost 2 million children under age 18. Nearly two thirds of these eligible children are enrolled in TRICARE Prime, a pointof-service health plan that delivers care through clinics and hospitals operated by the MHS or its civilian contractors. A small fraction of these children have special health care needs or are chronically ill, and use a large proportion of healthcare resources. Improved understanding of these vulnerable child beneficiaries will indicate how the MHS can best meet their needs and improve the quality of their care. Our first objective was to describe the patient and family demographics and diseases of the top 5% of pediatric healthcare utilizers among military dependant children in 2002. Our second objective was to use demographic and diagnostic information to predict, among all military dependant children in 2001, which would be high utilizers in 2002. Study Design: This was a retrospective cohort study of military dependant children under 18 years of age in fiscal years 2001 and 2002. High utilization is defined as having total annual healthcare costs above the 95th percentile in 2002. The total annual healthcare cost for each patient was the sum of the costs of inpatient and outpatient treatment plus medications. Demographic variables included rank and branch of service of parent sponsor, region of the country, urban/suburban/rural location, and proximity to military healthcare facilities (that is, living within the “catchment area” of a medical treatment facility). Administrative diagnostic codes (ICD-9-CM) were used to identify illness burden. For our second objective, we used Diagnostic Cost Group models (applied to 2001 age, sex and diagnoses) and total spending in 2001 to predict total cost in 2002. Population Studied: We used the Defense Eligibility and Enrollment Reporting System, which describes each person eligible to receive benefits through the MHS, to identify the study population. We included dependents of active duty and retired members of the armed forces who were under age 18 as of 30 Sept 2001, residents of the continental U.S., Alaska, or Hawaii, and were enrolled in TRICARE Prime throughout the study period of FY2001-2002. Principal Findings: There were 775,329 children in this study. Of these children, 5% were under 1 year old as of 30 September 2001, 19% were 2-4 years old, and 49% were 5-12 years old. Parents of this population were 36% Army, 30% Air Force, and 32% Navy with ranks of 7% Jr Enlist, 71% Sr Enlist, 7% Jr Officer, 13% Sr Officer, and 2% Warrant. Most (68%) lived close to military healthcare facilities (within a military treatment facility “catchment area”) and 83% lived in urban areas, 14% suburban. Heath care costs for these children totaled $758 million in 2002 (average cost=$978). Children with total annual healthcare costs above the 95th percentile cost $320 million in 2002 (average = $8,275), and absorbed 42% of the total population costs. In bivariate analyses, high utilizers were significantly more likely to be in the 0-1 or 13-17 year age groups, to be female, to live in proximity to military healthcare, and to be Air Force dependants. The most common diagnoses in 2001 were the same for both the 2002 high utilizers and others, with the top two categories being “screening” and “other ENT.” Our best model to prospectively identify high cost cases in 2002 located a high risk group (the 5% with the highest predicted 2002 cost) with average costs of $4,960 (more than 5 times the population average); 50% of the high risk group had costs over $2,105, 36% actually had costs in the top 5% (>$3,130) and 10% had costs over $9,250. Conclusions: Children in the youngest and oldest quartile, females, and children living in proximity to military treatment facilities were more likely to be in the top 5% of healthcare utilizers. The most frequent disease codes for high utilizers in 2002 and the lower-cost 95% of the population did not differ in 2001; however, we were able to prospectively identify a group with highly elevated risk of being costly in the following year (well over 1/3 of our high risk group ended up in the 5% of the population with the highest costs in 2002). Implications for Policy, Delivery or Practice: Although most of the children in our study were healthy, and some high costs were “surprises,” we were able to find a group with sufficiently serious medical problems in 2001, and expectations of high utilization in 2002, to justify proactive management. Familybased outreach programs and appropriate case management of such high-risk children will likely achieve more efficient and effective health care. Primary Funding Source: Other Govt. ● Risks and Resilience: A Conceptual Model for Pediatric Patient Safety Donna Woods, Ed.M., Ph.D., Jane L Holl, M.D., M.P.H., Munisha Mehra, M.D., Edward Ogata, M.D., M.M., Kevin B Weiss, M.D., M.P.H. Presented by: Donna Woods, Ed.M., Ph.D., Fellow, Institute for Health Services Research and Policy Studies, Feinberg School of Medicine, Norhtwsestern University, 339 E Chicago Avenue, Room 717, Chicago, IL 60611; Tel: 847-571-2593; Fax: 312-503-2936; E-mail: woods@northwestern.edu Research Objective: Children are different than adults in many ways, but which of these differences is meaningful and impactful in the context of patient safety? This study seeks to discern and describe which differences are meaningful and must be attended to in the design and implementation of patient safety interventions. Study Design: Extensive review of the formal and informal pediatric literature, including pediatric texts, published reports, peer reviewed literature, websites of pediatric healthcare professional organizations, conference presentations and proceedings, was performed to identify factors specific to children and/or children’s healthcare that could contribute to patient safety problems in children’s medical care. This review focused on specific characteristics of children, the adaptations made by pediatrics to compensate for these differences, and the different types of contact that children have with the health care system (e.g., differences in epidemiology of illnesses and treatments), as well as pediatric patient safety studies. These factors were then assessed to understand their impact on factors that have been shown to increase the risk of error. Population Studied: Children, birth through 20 years of age. Principal Findings: Analysis of three epidemiologic studies of pediatric patient safety each employing different source data and methodologies together suggest specific contexts of risk. Additionally, child-specific-factors contribute to patient safety risk. These child-specific-factors include: I. Physical Characteristics A. Small size, weight and morphology. B. Varied physical characteristics II. Development A. Physiological development and growth: B. Cognitive social emotional development III. Minor Legal Status A. Decision-making and consent B. Parental responsibility for medical management: C. Confidentiality: D. Supervision requirements. These child-specific-factors create the following conditions that have been shown to increase error risk. 1) Increased variability (medication dosages, equipment and devise sizes, in signs and symptoms, examination of infants versus adolescents), 2) visual difficulty distinguishing differences in sizes and amounts (i.e., equipment, devises, medications) 3) increased complexity in medical care processes (medication ordering, dispensing and administration), 4) decreased response time for communication and coordination (increase physiological volatility), 5) decreased information (children’s limited ability to communicate), 6) increased technical difficulty (insertion of intravenous line). In addition, child-specific-resiliency-factors were identified. Children’s physiological resilience and healing ability can protect children in the context of increased error risk. Most hospitalized children’s underlying health status is essentially healthy, which leads to a physiological resilience that protects from cascading failure of multiple physiologic systems. However, those children with multiple co-morbidities lose this resilience and are at a greater risk for error related injuries. This review demonstrated differences in children’s epidemiology of illness and intervention. Procedures shown to be high risk in adults are infrequently if ever performed in children. Conclusions: This review identifies specific characteristics in children and children’s health care that contribute to patient safety risks in children. These factors must be accounted for in the design and implementation of patient safety improvement interventions. Implications for Policy, Delivery or Practice: The more we learn through pediatric patient safety research, the more we find that in order to successfully improve the safety of children’s medical care, specific attention must be paid to designing safe practices with the special characteristics of children in mind. Primary Funding Source: AHRQ ● Health Care Utilization of Children With Muscular Dystrophy Byung-Kwang Yoo, M.D., Ph.D., Scott Grosse, Ph.D. Presented by: Byung-Kwang Yoo, M.D., Ph.D., Fellow, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, 1600 Clifton Road, Mail Stop E-87, Atlanta, GA 30333; Tel: (404) 498-3553; Fax: (404)-498-3070; E-mail: ddz7@cdc.gov Research Objective: To assess health care utilization of children with Muscular dystrophy (MD). MD includes a group of genetic disorders characterized by progressive muscle weakness and varying degrees of paralysis. Different kinds of MD have different genetic causes, affect people at different ages, and affect different muscles. The different types of MD, e.g., Duchenne MD, do not have separate ICD-9 codes, which limits the usefulness of administrative data for assigning costs to specific etiologies. Because MD is rare, with a prevalence of perhaps 2 cases per 10,000 people, it is not possible to assess costs using national survey data. In this analysis we used data from an administrative dataset covering a privately insured population. Study Design: Secondary data analysis, using the 2002 Medstat MarketScan® Health Insurance Claims Database. Direct medical expenditures were calculated among MD patients, defined by ICD-9 codes 359.0 or 359.1. This database consists of 45 large self-insured employers and 100 payers. Health care utilization among children, 19 years of age or younger, was calculated for children enrolled in a plan for an entire year. Additional estimates were made for subpopulations based on sex, age, and three types of insurance plans (health maintenance organization (HMO) plans, plans with other types of partial or full capitation, and non-capitated plans). Population Studied: (Defined in Study Design) Principal Findings: Out of 1,608,954 total child enrollees, 183 children with a diagnosis of MD had non-zero cost claims. Means for outpatient care, prescribed medications, and inpatient care were $15,600, $1,270, and $6,500, respectively. Because of a skewed expenditure distribution, medians were lower, $5,200, $210, and $0, respectively. Mean age-specific medical expenditures for 2002 were as follows: 1-through-4year-olds: MD $31,100, no MD $1,200; 5-through-9-year-olds: MD $16,000, no MD $900; 10-through-4-year-olds: MD $12,100, no MD $1,100; 15-through-19-year-olds: MD $37,300, no MD $1,500. Incremental costs ranged from $11,000 to $35,000 per year. Total medical expenditures per child with MD were 10 to 25 times higher than for children without MD. Comparing the 25th, 50th, and 75th percentiles of medical expenditures, children in HMO (n=19) and non-capitated plans (n=134) had the lowest and highest expenditures, respectively, among the three types of insurance plans. Conclusions: Privately insured children with MD utilize a substantially greater amount of medical expenditures than those without MD. The 10:1 to 25:1 ratio of medical costs between MD-affected and unaffected children is high compared with the threefold difference recently reported for all children with or without disabilities in Medical Expenditure Panel Survey (MEPS), a nationally representative survey, data. Among MD patients, expenditure distributions were skewed to the right, reflecting heterogeneity in the severity and the progress of MD. Because of the small number of hospitalized patients in our dataset, estimates for hospitalization expenditures cannot be precisely estimated. The higher expenditures among subjects in fee-for-service insurance plans probably more accurately reflected actual utilization, because of underreporting in capitated plans. Implications for Policy, Delivery or Practice: A large private insurance claims dataset is useful to assess health care utilization of children with a rare disease like MD, though it is not nationally representative. Primary Funding Source: CDC ● Incremental Cost of Providing SCHIP Coverage for Children with Special Health Care Needs Hao Yu, Ph.D., Andrew Dick, Ph.D., Peter Szilagyi, M.D. Presented by: Hao Yu, Ph.D., RAND, 201 North Craig Street, Pittsburgh, PA 15213; Tel: (412)683-2300 ext4460; E-mail: hao_yu@rand.org Research Objective: In spite of evidence on the beneficial effects of providing health insurance for uninsured children, few studies have focused on children with special health care needs (CSHCN). This study aims to inform policy-making by providing new information about two issues of health care financing for CSHCN: (1). How does enrollment in the State Children’s Health Insurance Program (SCHIP) affect utilization and expenditures by CSHCN? (2). What is the incremental cost to society of providing SCHIP coverage for those CSHCN who are eligible but uninsured? Study Design: The study has four components. The first one identifies the number of CSHCN who are eligible for SCHIP but uninsured. The second one investigates change in utilization after CSHCN become enrolled in Child Health Plus (CHPlus), the SCHIP program in New York State. The third one examines contribution to total annual expenditures by different types of utilization. Putting together the first three components, a simulation analysis is run to estimate the incremental cost to society of providing the CHPlus-type SCHIP coverage for the eligible but uninsured CSHCN. Three major datasets are used in the study, including the 2001 National Survey of Children with Special Health Care Needs (NSCSHCN), the 2000 Medical Expenditure Panel Survey (MEPS), and a survey of the New York State’s CHPlus, a relatively mature SCHIP program with the nation’s largest number of SCHIP enrollees in 2002. Population Studied: 38,866 CSHCN interviewed by the NSCSHCN, 973 CSHCN identified by the MEPS, and 567 CSHCN who were newly enrolled in the CHPlus, and were randomly selected by the survey of CHPlus. Principal Findings: Nationally, there were 141,464 CSHCN who were eligible for SCHIP but uninsured in 2000. Their annual expenditures on health care were 223.3 million, or $1,581 per CSHCN per year. Enrollment in CHPlus resulted in more utilization of all types of health services, except visits to emergency room. If all the eligible but uninsured CSHCN become enrolled in a SCHIP program similar to CHPlus, the incremental cost to society was $31.7 million, or $224 per CSHCN per year. In other words, on average, one CSHCN who were SCHIP-eligible but uninsured had an annual expenditure of $1,581, and after enrollment in SCHIP, his/her annual expenditure would increase by $224. The incremental cost represented an increase of 14.2% in the societal cost, or 12.4% in government budgetary cost. Conclusions: This study found that providing SCHIP coverage to CSHCN, which help improve their access to health care, would result in relatively small incremental cost to society, or to government budget. Implications for Policy, Delivery or Practice: For policymakers concerned with health care financing, it is worth noting that it is a good investment to provide SCHIP coverage for the eligible but uninsured CSHCN because this group of children will have improved access to health care with limited increase both in the societal cost and in the government budget. Moreover, because the additional health services used by the newly enrolled CSHCN tends to have substantial longterm benefits, the provision of public coverage may be viewed as “an investment in the future”. Primary Funding Source: Other, Maternal and Child Health Bureau ● Consultation in Child Care Centers: Supporting Young Children's Healthy Development Maggie Zraly, M.S., S.M., Jeffrey Longhofer, Ph.D., L.I.S.W., Barbara Streeter, M.S., L.P.C.C., Thomas Barrett, Ph.D., Mara Buchbinder, M.A. Presented by: Maggie Zraly, M.S., S.M., Research Fellow, Hanna Perkins Center for Child Development, 19910 Malvern Road, Shaker Heights, OH 44122; Tel: (216) 225-4907; Fax: (216) 991-5472; E-mail: maggie.zraly@case.edu Research Objective: Previous studies of consultation practices in child care centers have found that consultation services can support healthy social and emotional development among young children by increasing the overall quality of centers. However, the causal relationships between consultation practices and outcomes for children have not yet been elucidated. The primary research objective of this study was to examine how the National Child Care Consultation Alliance (NCCCA) consultation practice related to the processes of consultation and caregiving in child care centers in order to identify potential pathways of these causal relationships. Study Design: The NCCCA consultation practice is designed to promote the healthy social and emotional development of young children by improving the quality of child care centers. The NCCCA model is grounded in multiple consultation theories: organizational, psychodynamic, constructivist learning, social learning, and diffusion of innovations. In 1993, the Early Childhood Intervention Alliance (ECIA) initiative implemented the NCCCA model at five child care center sites. During 1999 and 2000, evaluation research was conducted to assess the emerging outcomes of the ECIA initiative. In order to investigate: 1) how consultation affects changes in child care center quality, and 2) how these changes support young children’s healthy development, this study used the evaluation research data to examine the experiences and perceptions of NCCCA consultation processes and outcomes among the ECIA initiative study population. Population Studied: The five ECIA child care center sites were located in: Utica, MI; San Diego, CA; San Bernardino, CA; Huntsville, AL; and Scotsdale, AZ. The study population was composed of the child care center caregivers, child care center directors, and the NCCCA child care center consultants at each of the five sites. Principal Findings: Qualitative data on the emerging outcomes were collected through four research methods: 1) focus groups of caregivers at each site, 2) a focus group of the directors from all of the sites, 3) a focus group of the consultants from all of the sites, and 4) open-ended questionnaires with consultants. The data collected through each of these methods were entered into Altas.ti software and systematically coded to analyze the themes related to the processes and outcomes of consultation. By triangulating the coded themes across sites, participant professions, and methods, the results of this analysis indicate that NCCCA consultation was associated with: 1) understanding children’s behavior as communication, 2) developing trusting relationships with parents, and 3) elevating the professionalism of caregivers. Conclusions: NCCCA consultation involves attitudinal shifts, conceptual change, collaboration, culture and empowerment. The pathways between these processes and understanding children’s behavior, developing trusting relationships, and elevating the professionalism of caregivers play a role in improving child care center quality. These pathways may prove to be important for supporting young children’s healthy social and emotional development in child care centers. Implications for Policy, Delivery or Practice: This research on the ECIA initiative supports the literature that demonstrates the efficacy and impact of consultation in child care centers for young children’s mental health and future learning. It also suggests that the provision of consultation may be most efficacious at specific moments of the “daily rounds” of the center day. Primary Funding Source: Other Foundation, The TRW Foundation