Todd 1 Transition to Post-School Outcomes: Parent and Teacher Reference Guide An Honors Thesis (HONRS 499) By Megan Todd Dr. Paul Ranieri Ball State University Muncie, Indiana May 2013 Expected Date of Graduation May 2013 57pCo}) LJ n de r,9rqd ,he 5/~ Todd 2 1-D ';)L/e9 . ;?.i c )3 .163 !}. Abstract In education, it is important that learning continues beyond the classroom for all students. However, for students in special education, the continuation for education beyond the classroom sometimes requires more care. All students within special education have an individualized education plan (IEP) which gUides teachers how to aid the students in their education. When the student reaches sixteen years of age, or fourteen as required by Indiana law, students with an lEP have a specialized transition IEP (TIEP). The TIEP is a planning and legally binding component of the lEP, which details the projected post-school outcomes for the student. Planning for this TIEP should begin in middle school and become more formalized as students progress towards graduation. The change and progression towards the TIEP can be very overwhelming for individuals (teachers and parents) not familiar with the process. The following reference guide aims to give background to the transition process, as well as include information that may be helpful to create a well rounded and individually appropriate TIEP. Some items are directed more specifically at teachers, while other at parents or student. However, all items included are meant to guide, help facilitate, or explain a component of the transition process. Acknowledgements I would like to thank Dr. Paul Ranieri for advising me through this thesis project. His guidance was helpful in all aspects of the thesis project, especially narrowing and defining my focus and editing. I would like to thank Danielle Rhymer and Anna Epperly for their help in sorting through the various transition components and finding specific forms that would be most helpful in gUiding the transition process. I would like to thank Janet Todd, Nathan Deig, and Elizabeth Hudson for encouragement and general help with this major project. Todd 3 Author's Statement This project began as a parent guide for what to expect in special education. The original objective of the project was to communicate to the parents the realities of school, and what they can do to best aid their children through their school experience. This was chosen as the aim because, for students within special education, the relationship between family and school is all the more important and requires a specific balance for the best results to be attained. By communicating with parents about the reality of school, the gap between school and their students' progress can be better understood and managed. However, as I began research on the topics, it became evident the topic was too broad. The thesis would have been too massive to take on if any depth of the topiC was desired. For this reason, I chose to target one component of the special education curriculum that requires a high level of parent support to be successful. By choosing the topic of transition to post-school outcomes in special education, I keep parents as the main audience. I moved forward from this point, trying to target information specifically for parents regarding transition. However, I was extremely surprised to find out that very few resources exist. After talking with Anna Epperly and Danielle Rhymer, two individuals who head the transition fair for Muncie Community Schools, it became evident that the majority of the resources were aimed at teachers. As they explained, teachers are supposed to guide the transition process, teaching and the parents, while advocating for the student. Once this was brought to my attention, I chose to widen my target audience to teachers and parents, with the understanding that both audiences would be working together with the included resources as a guide. While parents generally hold more information about their student than teacher, teachers are responsible for completing the transition process and are legally held accountable. By creating a parent and teacher reference guide, both groups can work together more productively to complete the child's transition individualized education plan (TIEP). Yet, I also assumed that teachers will be responsible for teaching the parents more complex topics and aiding them in understanding the overall process. The outcome of the thesis project is a comprehensive resource including reference documents, surveys, and interview forms to personalize the transition process and guide students toward a most appropriate TIEP and post-school outcome. Some documents are more teacher-directed, others parent-directed, and yet others are student-directed. To break down the comprehensive resource, several categories of transition, noted by the Indiana Secondary Transition Resource Center, were used: Student Development and Student-Directed Planning (combined), Parent Involvement, Interagency Collaboration, and Program Structures. Each of these categories is broken down and explain within its given section, and contain specific resources that would be helpful when explaining and meeting requirements of the transition process. Throughout this thesis project, I have learned a vast amount of about transition. With the possibility of being in secondary education, I knew that it would be important to know how to facilitate transition as a teacher. I believe that this Todd 4 transition resource guide will greatly help in the endeavor. Before this semester, I had completed one TIEP, but was still very unsure of what I would be able to complete without the guidance of a college classroom teacher. By completing this project, I have become more aware of the resources that are available for parents, and can be used to make less of a mystery the transition to post-school outcomes for students with special needs. This will profit the families and students that I teach in the future. Todd 5 Transition to Post-Secondary Outcomes: The Definition and Importance of Transition for Students with Disabilities All adolescents go through a period of transition from school to post-school outcomes. In earlier decades, the transition began earlier, commonly in middle schooL as the students entered the work force and were taught all of the skills needed for success in the chosen field of work. In this time, only students who desired higher level jobs continued with post-secondary schooling. However, this pattern has increasing swayed in the current century, with the time frame for transition to post-school outcomes lengthening to include those ages 10 to the mid­ 20s. This lengthening of transition time has allowed for students to spend more time discovering different components of adolescence, including relations with peers, role of working, mass media's effect on society, pursuit of independence, extra­ curricular activities, risk taking, post-secondary education, and parental influence. For all students, transition can be a scary and overwhelming time. It is when the student moves from one juncture of life and choose how he or she desires to set the foundation for Transition= the process of moving from one status to the rest of life. For students with disabilities, the another transition to post-school outcomes can become even more complicated because of special needs. Transition Planning= a program Transition planning helps these students to find that offers stepping stones to help meaning in their educational activities, and therefore an individual to move into adulthood tailor their education to the desire and hopes for the future. Additionally, the Individual with Disabilities Education Act requires the practices of transition to post-school outcomes. The law states that: Transition services means a coordinated set of activities for a student, with a disability, that: (A) is designated within an outcome-oriented process, that promotes movement from school to post-school activities, including postsecondary education, vocational training, integrated employment (including supported employment), continuing and adult education, adult services, independent living, or community participation; (B) is based on the student's needs, taking into account the student's preferences and interests; and (C) includes instruction, community experiences, the development of employment and other post-school objectives, and, when appropriate, the acquisition of daily living skills and functional vocational evaluation. (IDEA 1990, Section 602) In order to better be able to explain the components of transition, I have split the process into four components: student-focused planning, family involvement, and interagency collaboration. Student focused planning should begin with the student. The end goal that the student desires should aim the whole transition process. Beginning at the end goal and planning backwards from the end goals, the student's individualized education plan (IEP) is tailored to meet the need of the student. Without a student-focused plan, the student is less likely to find meaning in his or her education and, therefore, will have a harder time reaching the goals set. Todd 6 Family involvement is key. Not only will the family have the ability to shape the student career goals and outcomes, they are monumental in making sure that the plan is carried out. However, for parent input to be reliable, the parents must be informed on a range of options, have the ability to evaluate options, have knowledge of the child's skills, have knowledge of the child's preferences, have knowledge of how to get services, and have knowledge of how to advocate for services. If the parents are not knowledgeable or comfortable in one or more of these areas, the parents should be given support to increase knowledge and confidence. Parents are often the driving force behind transition planning because after the teachers are gone and secondary education has ended, the parents are still present and able to guide the student. Interagency collaboration is important to increase and build the lines of communication and opportunities between school and the outside community. Much of employment, for any person, is based on connections. By supplying connections to the outside community during the time spent in the classroom, the students will be able to better transition into the community post-school. Agencies commonly support the student with work experience, adaptations or modifications, and many other opportunities. Transition is a complex, and possibly confusing, process. By working together to create a student-centered program, which works to empower parents and make essential connections with community agencies, the student will have the best outcome in his or her post-school outcome. Without the transition process, many of our students would be left floundering and unsure of what step to take to move into adulthood. Todd 7 Appendices Descriptions APPENDIX A: Student-Focused Planning and Student Development Education should always begin with the student, whether deciding how to teach a lesson or planning for the future. Keeping this in mind, transition should be based on the student, not a fabricated, routine process. Each student brings a different background, strengths, weaknesses, and needs. Similarly, each student will most likely desire to reach a different end goal. Everything is individualized. For this reason, the teacher, parents, and all other members of the case conference committee (those reviewing the student's individualized education plan) must take the time to listen to the student's preferences and desires. While the student might need to be redirected, he or she does generally know the most about his or her desired direction. The people who are next likely to know information are the parents, then the teachers, and so on. Once members of the case conference committee have listened to the desires of the students, they must decide what the next course of action will be to move toward a desired post-school outcome. This could include classes, employment opportunities, targeted teaching of life skills, etc. It depends totally on the student. In the end, every decision should come back to what is best for the student. However, when there is not a distinct starting place for the post-school outcome, surveys and interviews are commonly used to gain insight. These surveys and interviews give a starting place for those on the case conference committee to talk about preferences and realistic post-school outcomes for the student. In order for the TIEP to be appropriate for the student many areas need to be considered. Additionally some area or skills may need to be developed in order to ultimately reach the post-school goal. For ease of description and location of resources, the topics for student-focused planning and student development have been divided into categories: instruction notes, general transition forms, self advocacy/self determination, academic, life skills, employment, post-secondary education, and assistive technology. Instruction Notes: This section includes general information for teachers and parents. The majority of the information is written in narrative form or is depicted on Power Point slides. The section includes information on self-advocacy, self-determination, appropriate goal writing, and resources for transition assessment. General Transition Forms: This section includes forms that apply to the overall transition process. Some of the forms are general surveys for students and parents, while others are to aid in the synthesis of an appropriate TIEP. Todd 8 SelfAdvocacyjSelfDetermination: Self-advocacy is an individual's ability to communicate, negotiate, or assert his or her own interest, desires, needs, and rights in everyday situations. It is based in the ability to make informed decisions and to accept responsibility. Self-determination is the concept that all individuals have the right to direct their own life. A variety of interview and surveys are included in this section, all of which aim to determine the students levels of self-determination/self-advocacy and preferences and desires. Academic: This section includes surveys and interview forms that pertain to academic content, including study habits/skills and learning styles. Other more specific academic topics such as writing and Internet browsing are also covered. Life Skills: Life skills are any skill needed to care for oneself or advocate for help with care. This section includes a variety of interview forms and surveys on various topics: social skills, basic living skills, financial skills, housing, recreational activities, self-care abilities, emotions, and relationships. Employment: Employment is often a post-school outcome for students. This section includes resources to help determine an appropriate setting, explanation of skills needed for employment, and determine preferences in employment settings. Post-Secondary Education: This section details information for attending a post-secondary education institution (career, technical, or traditional 4-yr college). Articles detailing the differences between high school and post-secondary education are noted, as well as topics such as finance. Assistive Technology: Assistive technology is sometimes needed for student to easily complete schoolwork and to communicate with those around them. When this is the case, assistive technology should be considered for post-school outcomes as well. This section includes several resources to guide the process. APPENDIX B: Disability Descriptions Every disability has different characteristics and needs. These needs in turn affect the post-school outcomes that are chosen and advocated for the student. In order for the case conference committee to be on the same page the disability characteristics and specific characteristics of the student must be explained thoroughly. Todd 9 In order to include a succinct and clear description of the disabilities for the case conference team, the following disability description pages have been included. Please note that not all possible disabilities are included. Disabilities Included: Attention-Deficit/Hyperactivity Disorder Autism Spectrum Disorders Cerebral Palsy Deaf-Blindness Developmental Delay Down Syndrome Emotional Disturbance Epilepsy Deafness and Hearing Loss Intellectual Disabilities Learning Disabilities MUltiple and Severe Disabilities Other Health Impairment Speech and Language Impairments Spina Bifida Specific Learning Disabilities Traumatic Brain Injury Visual Impairments APPENDIX C: Family Involvement Family involvement is key. Not only will the family have the ability to shape the student career goals and outcomes, they are monumental in making sure that the plan is carried out. However, for parents input to be reliable, they must be informed as to the range of options, have the ability to evaluate options, have knowledge of the child's skills, have knowledge of the child's preferences, have knowledge of how to get services, and have knowledge of how to advocate for services. If the parents are not knowledgeable or comfortable in one or more of these areas, the parents should be given support to increase knowledge and confidence. Parents are often the driving force behind transition planning because after the teachers and secondary education has ended, the parents are still present and able to guide the student. Resources Included: . Parents Role in the Transition Process How Parents Can Develop Soft Skills Parent Guide to Transition APPENDIX D: Interagency Collaboration Interagency collaboration is important to increase and build the lines of communication and opportunities between school and the outside community. Much of employment, for any person, is based on connections. By supplying connections to the outside community during the time spent in the classroom, the students will be able to better transition into the community post-school. Agencies commonly support the student with work experience, adaptations or modifications, and many other opportunities. Todd 10 Resources Included: Description of Interagency Collaboration References to Learn About Interagency Collaboration Medicaid Information APPENDIX E: Program Structures Transition planning is required for those individuals in special education. If the protocol is not followed, then the school corporation can be deemed out of compliance and disciplinary actions can be taken. For this reason, the components in this section are to be used as a guide and reference throughout the transition process. Resources Included: Descriptions and Examples of All Areas of Transition Examples of Post-School Goals Diploma and Certificate Considerations Glossary of Commonly Used Transition Terms Summary of Predictors of Post-School Outcomes Indicator 13/14 (Indiana Compliance Laws) Todd 11 Appendices Descriptions APPENDIX A: Student-Focused Planning and Student Development Appendix Label Title of Document PDF Page Instruction Notes A1 A2 A.3 A4 AS A6 A7 A8 From Writing Scripts to Making Blockbusters: Improving Transition IEPs Self-Determination: A Toolkit for Teachers Self Advocacy Leading to Student Led Annual Case Reviews Cognitive Behavioral Interventions: An Effective Approach to Help Student with Disabilities Stay in School Transition Assessment Resource Guide by INSTRC Transition Assessment and Curriculum Matrix SamQle Instruments for Transition Assessment Online Resources for Transition Assessment 3 12 17 20 27 34 66 70 Transition General Forms A9 A10 All A12 A13 A14 A15 A16 Transition Assessment: Student (and Parent) Interview Form Summary of My Performance Student Transition Planning Folder Behavioral Observation Data for Planning Possible Postsecondary Expectations Personal Student Profile Life Skills Inventory: Independent Living Skills Assessment Individual Program Planning Guide Thinking About the Future Infographic 73 75 78 80 82 85 94 107 Self-Advocacy and Self-Determination A17 A18 A19 A20 A21 A22 A23 A24 A25 Self-Determination/Self-Advocacy Checklist Self-Determination Checklist (Student Self-Assessment) Self-Advocacy Checklist Informal Inventory of Independence and Self-Advocacy Skills for Deaf/Hard of Hearing Students Self-Determination Observation Checklist It's My Choice It's My Choice: Looking At My Own Life Quality Values Inventory AIR Self-Determination Scale (Student Form) 109 110 112 115 117 119 141 153 157 Todd 12 Appendix . Label A.26 A.27 A.28 Title of Document The ARC's Self-Determination Scale Chart Your Own Future: How Your IEP Can Hel~ The Self-Directed IEP (Self Assessmentl PDF Page 165 173 175 Academics A.29 A.30 A.31 A.32 Study Habits Questionnaire Study Skills Inventory World Wide Web Self-Assessment Skill Checklist Writing Self-Assessment: Skills and Attitudes 177 179 181 182 Life Skills A.33 A.34 A.35 A.36 A.37 A.38 A.39 A.40 A.41 A.42 A.43 A.44 A.45 A.46 A.47 A.48 A.49 Learning Style What Is Your Learning Style School and Community Social Skills Rating Checklist Planning for Community Living Worksheet Parents of Teenagers Survival Checklist Adolescent Autonomy Checklist Assessment of Financial Skills and Abilities It's My Choice: A Place of My Own Checklist It's My Choice: Housing Checklist Survey of Indoor and Outdoor Recreational Activities Self-Care Abilities Listing Adaptation of Analyzing Behavior States and Environment Model for Use with Youth with Significant Intellectual Abilities Employability/Life Skills Assessment [Ages 14-21) Employability/Life Skills Assessment Parent Form (Ages 14-21) Getting To Know Your Anger Sexuality Assessment Let's Look At Interpersonal Relationshi~ 184 189 191 195 196 200 206 208 211 218 221 223 225 229 233 234 235 Employment A.50 A.51 A.52 A.53 A.54 A.55 A.56 Mastering Soft Skills for Workplace Success Unit 1: Self-Determination ...the BIG Picture Unit 2: Disclosure...What Is It and Why Is It So Important? Unit 3: Weighing the Advantages and Disadvantages of Disclosure Unit 4: Rights and Res~onsibilities Under the Law Unit 4: Appendix A - Basic Facts About the Americans with Disabilities Act Unit 4: Appendix B - Summary of Legislation 237 251 259 264 272 282 284 Todd 13 Appendix Label A57 A58 A59 A60 A61 A62 A63 A64 A65 A66 A67 A68 A69 A70 A71 A72 A73 A74 A75 A76 Title of Document Unit 5: Accommodations Unit 6: Postsecondary Disclosure ...Why, When, What, to Whom, and How? Why to Disclose in Social Settings Visit Your One-Stop Career Center Disclosure Glossary Student Dream Sheet Personal and Professional Goals Worksheet Job-Related Interest and Preference Inventory This Is How I See Myself "Satisfactions" You Need Community Based Assessment_Questionnaire JobTips Assessment Work Characteristics and Environment Preferences Work Personality Profile Career Portfolio Career Clusters Interest Survey It's My Choice: Staff Evaluation Form It's My Choice: Workplace Checklist Social and Vocational Abilities Listing Some Questions You May Want to Ask When Choosing an EmplqymentAKency PDF Page 287 294 305 313 315 319 321 322 324 326 328 332 338 341 343 344 350 351 355 357 Post-Secondary Education A77 A78 A79 A80 A81 A82 A83 The Right Fit: Colleges and Universities PreQaring Students for the Post-Secondary Experience Vocational Behavior Is College For You? Setting Goals and Taking Action A Guide to Assessing College Readiness (For Parents of College-Bound with Learning Disability Information of Postsecondary Education for Students with Disabilities, from US Dept. of Ed College Funding for Students with Disabilities 375 377 3791 381 393 399 401 Assistive Technology A84 A85 A86 Hey! Can I Try That! Student Handbook for Choosing and Using Assistive Technology Wisconsin Assistive Technology Initiative: Student Information Guide for Self-Determination and Assistive Technology Management Assistive Technology Protocol for Transition 408 424 426 I Todd 14 APPENDIX B: Disability Descriptions Appendix Label B.l 8.2 8.3 8.4 8.5 8.6 8.7 8.8 8.9 8.10 8.11 8.12 8.13 8.14 8.15 8.16 8.17 8.18 8.19 8.20 8.21 8.22 8.23 PDF Page 2 8 14 20 26 30 34 38 44 51 57 63 69 75 78 86 93 99 103 109 115 118 126 Title of Document Attention-Deficit Hyperactivity Disorder Autism Spectrum Disorders Autism Spectrum Disorders (Parent Guide) Cerebral Palsy Deaf- Blindness College Students Who Are Deaf-Blind Developmental Delay Down Syndrome Emotional Disturbance Epilepsy Deafness and HearinK Loss Intellectual Disabilities Learning Disabilities Multiple and Severe Disabilities Other Health Impairment Speech and LanguaKe Imgairments Sgeech or Language Impairments (Parent Guidel Sgina Bifida Specific Learning Disabilities Traumatic Brain Injury Traumatic Brain Injury (Parent Guide) Visual Impairments, Including Blindness Visuallmgairments (Parent Guide) APPENDIX C: Family Involvement Appendix Label C.l C.2 C.3 C.4 Title of Document Tapping into the Power of Families: How Families of Youth with Disabilities Can Assist in Job Search and Retention Helping Youth Develop Soft Skills for Job Success: Tips for Parents and Families Ten Tips that May Help Your Child's Transition to Adulthood Introduction: The Transition Process I PDF Page 2 4 10 12 Todd 15 APPENDIX D: Interagency Collaboration Appendix Label 0.1 0.2 0.3 0.4 0.5 0.6 0.7 0.8 0.9 0.10 I, Title of Document I Interagency Collaboration and Transition Interagency Collaboration Annotated Bibliography Transition in Practice: Interagency Collaboration DOE and VRS Policy to Practice Summary Introduction to Medicaid Waivers Indiana Medicaid Home and Community -Based Services Waiver Program: A Guide for Consumers WorkOne Centers +Schools: Collaboration =Success Resources for Life After High School College and Post-Secondary Services for Persons with Disabilities in Indiana High School Student with Disabilities Transitioning to IvyTech PDF Page 2 6 13 15 21 28 78 84 86 101 APPENDIX D: Interagency Collaboration Appendix Label E.1 E.2 E.3 E.4 E.5 E.6 E.7 E.8 E.9 E.10 Title of Document Transition Services: Definition and Examples Examples of Postsecondary Goals for Student with High Support Needs (Severe and Multiple Disabilities) DiQloma and Certificate Considerations NSTTAC Summary of Predictor Categories, Outcome Areas, Level of Evidence, and Descriptions Instructions: Indiana Transition Requirements Checklist (Compliance Indicator 13) Understanding Measurable Postsecondary Goals NSTTAC Indicator 13 Checklist Form A (Meets Minimum SPP / APR Requirements) NSTTAC Indicator 13 Checklist: Form B (Enhanced for Professional Development) Continuous Improvement Monitoring Guidance Document: Indicator 14 Indiana Graduate Follow-up: Student Exit Interview PDF Page 2 14 16 18 25 29 30 34 39 42 Todd 16 References 1 2 3 4 5 6 7 8 9 10 11 12 13 14 Adapted from Guy, B., Mulligan Ault, M. & Guess, D. 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