QUALITY ACCOUNTS 2014 - 2015 Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 1 Chief Executive’s Statement Welcome to our quality account report which is written to provide a focus solely on the quality of the care we provide to our patients and their families and in light of the national drive to recognise the significance and importance of quality, compassionate care. The reporting period is 2014-15, providing a snap shot of now 2014 and the action planned for continuous improvement going forward into 2015. Bolton Hospice is an independent charity (registered no 518704) and constituted as a company limited by guarantee (registered no 0211495). The Hospice is governed by a Board of Trustees and run by the Chief Executive and the Senior Management Group (Palliative Care Consultant, Clinical Nurse Manager, Finance & Corporate Services Manager and Income Generation & Communications Manager). We provide the following services: 16-18 Inpatient beds Medical Outpatient Clinics Direct Clinical Day Support Services Nursing 24 Hour Advice Line Care Hospice at Home Lymphoedema Clinic Physiotherapy Occupational Therapy Complementary Therapy Social Work Services Bereavement Support Education and Training Hair and Image Services Chaplaincy and Reflection Creative Therapy Cancer Information and Support Service All of our services are provided free of charge to patients and their families, we income generate 80% of our £3.75 million total annual running costs through charitable donations, our lottery and retail operation. We receive a 28% contribution towards our direct clinical care costs from the NHS via Bolton Clinical Commissioning Group (CCG). The charity, through its Trustees, are accountable to the Charity Commission, Companies House and its membership, who are drawn from the local community. We are registered with and inspected by the Care Quality Commission; the CQC are our regulators who obtain information about our services from a number of sources and use these to build a picture of the quality of the care we provide. The CQC inspect our services annually and report on the outcome quotes from which are referenced in the body of this report. The Trustees, the Senior Management Group, our staff and volunteers are totally committed to the delivery of compassionate, quality care to our patients, their family and friends and we commend this report to you as evidence of just how integral to our culture as a Hospice, quality and compassion is and how it is embedded throughout our purpose, values, strategic aims and objectives. Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 2 Our core purpose is to support people to live well until they die, by focussing everything we do on the care of the patient and their family in a warm, caring, inclusive and compassionate way. Our Values are based on: Being inclusive and non-judgemental Being open, transparent, accountable and objective Giving support to the whole family Constantly striving for excellence and continual improvement Being committed to embracing, valuing and respecting diversity Respecting, supporting and celebrating our volunteers Trust, respect, honesty and integrity in all we do A compassionate, appropriate and proportionate response to meeting need Appreciating the value of every £1 donated to our cause and using it wisely Strategic Aims: 1. 2. 3. 4. 5. To provide the best possible palliative and end of life care for the people of Bolton and their families To enable people to live well through the course of their illness To help families cope with the impact of end of life To support the people of Bolton in achieving the principles of a good death for all, wherever possible To work with Bolton CCG, Bolton NHS FT and Bolton Council to help deliver their palliative and end of life care strategic objectives too Strategic Objectives: 1. For Bolton Hospice to continue to be the number one provider of specialist palliative and end of life care for the people of Bolton 2. For Bolton Hospice to remain financially viable and able to invest in meeting the future palliative and end of life care needs of the people of Bolton 3. To have a safe, well built, fit for purpose, welcoming environment where operational need, patient safety and comfort is balanced with therapeutic design and the needs of family and loved ones. 4. To be the hub of specialist knowledge, training, education and community awareness around palliative and end of life care. 5. For Bolton Hospice to remain true to its core principles, values and charitable purpose 6. To ensure Bolton Hospice can deliver its mission and core purpose by being well led, well run, cost effective, financially sustainable, inclusive, excellent, well known, valued and respected Leigh Vallance Chief Executive Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 3 WHAT OUR ORGANISATION IS DOING WELL Patient Safety We strive to treat people in a safe environment and protect them from avoidable harm (NHS Outcome Framework Domain 5 Department of Health 2014). o In August 2013 we had an unannounced Care Quality Commission Inspection and were fully compliant in all Outcomes assessed. http://www.cqc.org.uk/directory/1-106965965?referer=widget1 Patients’ comments made during the inspection: “I can’t praise them enough - if I want it I can have it“ ”They try and keep my spirits up, if I am down they come and hold my hand” “They regulated my pain and I feel much better” The Inspector saw evidence of staff awareness of safeguarding procedures and all complaints/concerns were taken seriously and followed up appropriately. o We now submit monthly data for the NHS Safety Thermometer in line with other service providers within the NHS. o Our bed occupancy has reduced this year due to the refurbishment and upgrade of our Inpatient (IPU) facilities. In addition to the 3898 IPU occupied bed days there has been 565 Outpatients Consultations and 1566 Day Therapy Patient attendances. Of these patients, 44 experienced a fall which resulted in No Harm and 14 had a fall resulting in Low Harm and 1 experienced a fall of Moderate Harm. This is a reduction from last year’s figures which is contributed to by reduced bed occupancy, falls prevention awareness and purchase of increased sensory equipment. Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 4 o We complied with the EU Safer Sharps Directive (May 2013). o Bolton Hospice deals promptly with all incidents and fosters an open culture whereby risk management and incident reporting are encouraged. This year we have adopted a generic incident proforma, which promotes reflection and learning for individuals, teams and the organisation. o Development of a patient information booklet for pain relief and opioids now adopted within the Foundation Trust. o We have undertaken an NHS Medicine Security Self-Assessment and all controlled drug errors and drug destruction are now reported within 48 hours via NHS England 2013 Controlled Drug Reporting mechanism. o A full review of the clinical skill mix has been undertaken in light of increased bed capacity to ensure we do not compromise patient safety and the quality of the service we provide. o The multi-professional Nutritional Group ensures all aspects of our patients and their families’ hydration and nutritional needs are met. PLACE patient assessors scored this highly on choice, taste, temperature, consistency and availability. o In March 2014, we undertook our first PLACE (Patient Led Assessment of the Clinical Environment), which we passed with some positive feedback from our Patient Assessors and External Validator. Extract from the summary report completed by Patient Assessors at Bolton Hospice PLACE Inspection - 27th March 2014. The assessors report said of Bolton Hospice: "Considering there is extensive building works on site, the cleaning was excellent/immaculate and no dust could be found. Nursing and other staff including the environment and food was exceptional to the extent that we would be happy to spend our final days here - Well done!" Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 5 OTHER PATIENTS’ SAFETY DATA Total Number of Drug Errors: An increase of 2 errors (this figure is broken down as below): 31 Near Misses Prescribing Error Omissions Administration Dispensing Error Stock Delivery Documentation Number of controlled drug errors reportable to NHS England 2013-2014 This is a decrease of 5 compared to last year Number of pressure ulcer occurrences: (a reduction of 48% attributed to reduced beds, education and training and safety thermometer) Grade 1 Grade 2 Grade 3 5 5 5 7 3 3 3 16 3 13 0 Number of formal complaints Number of informal complaints 0 2 Number of patients infected with MRSA whilst on the Inpatient Unit 0 Number of patients with C.Difficile whilst on the Inpatient Unit 2 Inpatient’s assessment for VTE 2 100% Sharps Injuries 2 Clinical Effectiveness o o o o o o o o o The appointment of a Hospice Speciality Doctor now strengthens the medical team. We have phased out the use of the Liverpool Care Pathway and been involved in development of network wide End of Life Care documentation. We have provided 24 Hour Telephone Advice to 254 Professionals and 226 Patients and Carers which demonstrates an increased usage. We have improved clinical recording of nutritional and hydration needs of all patients. Multi-disciplinary team meetings are held weekly with appropriately trained staff in line with peer review. We have worked in collaboration with Bolton CCG and Macmillan in the development of the Bolton Cancer Information and Support Services. We have increased our nurses with lymphoedema training to support Hospice patients. Key worker and concerns thermometer embedded within Day Therapy and Outpatients. We continue to work in partnership with District Nurses and Hospice at Home received 154 referrals compared with 107 in the previous year allowing 99% of patients to die at home. Extracts from Hospice at Home relatives’ survey of the care their family members and themselves received at the end of their life: “The care, compassion and friendship that the team provided Dad and his family and the dignity you allowed him will remain with us always”. “In this painful experience, we could not have asked for more, thank you all”. Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 6 Audit and Quality o o o o o We have undertaken 36 audits which is a 33% increase on 2013-2014 and 21 surveys using both internal and external audit tools. Examples of changes to practice are evident with improved waste segregation, revised cleaning schedules, external company sourced to undertake legionella checks, creation of soft food menu options, the implementation of meet and greet system on the Inpatient Unit, improved carers support and improved system to monitor our response to a request for admission. We take part in the Specialist Palliative Care North West Audit Group, which allows us to benchmark our practices with other local Hospices against national guidance. We have participated in research into the Practical Needs of Carers with Lancaster University and this has resulted in the production of a practical guide for Carers. Bolton Hospice submitted Audit Data to the National Minimum Data Set for Specialist Palliative Care. Results are available publicly, from the National Council for Palliative Care: http://www.ncpc.org.uk/sites/default/files/MDS%20Report%202013_1.pdf Education and Training o We have invested in our o o o o o Education Department and are now a key provider of End of Life Training within Bolton. Our Clinical Learning Profile demonstrates the specialist skills within the Bolton Hospice workforce. We achieved 100% compliance with mandatory and competency based training in 2013-2014, which is an excellent achievement. All clinical staff will have completed a full day training package on all aspects of living, dying and caring for someone with Dementia by summer 2014. We have undertaken the delivery of our first Bolton University End of Life Care Module at Level 6 with excellent student evaluation. Death, dying and bereavement touches all our lives and we have facilitated training for those working in Health and Social Care, Schools, Universities and Chaplaincy, which also raises the awareness within our Community as part of the Dying Matters Campaign http://dyingmatters.org/ Extracts from attendees’ evaluation forms: “Before I came, I did not have any experience of ‘End of Life’ care or how to deal with it in my working life – this course has been a revelation”. “This session has added to my toolbox of skills for both professional and personal life”. “Be brave discussing death, don’t be ambiguous”. “A brilliant session, really informative and focused on what is really important about Hospice services”. http://www.boltonhospice.org.uk/training Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 7 Patients’ and Families’ Experience Bolton Hospice strives to ensure that people have a positive experience of our care (NHS Outcome Framework Domain 4 Department of Health 2014) All our services have undertaken an annual satisfaction survey this year, which has generated learning for teams, services and the organisation. These are some of our results:100% of Inpatients stated that they had confidence in the staff caring for them; however, response to nurse call was not as effective during handover. Adequate staff now remain on the ward during handover. 100% of Day Therapy patients stated, dignity, privacy and compassion were always shown; however, some patients were left guessing if a patient had been discharged or died and this is now included in daily handovers. 100% of Hospice at Home patients’ relatives were very satisfied with the care their loved one received; however for one daughter she felt different agencies should have a joined up approach and more advice was needed about what to do next when her father died. We are continually striving to ensure care is seamless. 100% of bereaved relatives known to Bolton Hospice knew about our bereavement service, 97% of these felt the bereavement pack was very useful and 33% of these accessed our bereavement services. 100% of patients and carers surveyed felt complementary therapies helped them cope with the symptoms associated with their illness or carer’s role. 96% of inpatients’ relatives who were surveyed following the death of a loved one felt that symptoms were well controlled at the end of life. However, some families felt noise levels from other patients and ward kitchen areas could be disturbing. Within the refurbishment, separate kitchen areas will be made available for volunteers. We surveyed patients’ and families’ experiences of the care they received at Bolton Hospice. These are some of their responses: “Only to say that I will be forever grateful for the care, kindness, gentleness and compassion and professional way you treated my dear husband and myself”. “The Hospice took unbelievable care of me, there were times when I wanted to give up but a natter with the staff made me think differently”. “In this painful experience I could not have asked for more”. Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 8 We take all comments and feedback seriously and record any concern raised about care as a clinical incident. We received 2 informal complaints about care during 2013-2014, a daughter who expressed concerns that a nurse’s attitude was abrupt and a son who believed information about his deceased father should not be shared with other family members. Both incidents were dealt with promptly and sensitively and individual and team reflection took place. When we asked about ‘one thing large or small which would make a difference for you and your family’, they replied:“As a carer, I did not always feel like my psychological needs were addressed”. “Regular sessions with other patients would be helpful to discuss problems and symptoms”. “Only a tiny thing but there was one volunteer who didn’t knock before entering our room – it’s a courtesy/manners thing that I’ve got”. Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 9 WHERE IMPROVEMENTS IN SERVICE QUALITY ARE REQUIRED Bolton Hospice is a key service provider for Specialist Palliative and End of Life Care within Bolton. We are accountable to our Commissioners and those who raise funds for us for the quality of the care we deliver. We cannot and should not stand still in our quest for continuous service improvements and it is only with this collaboration and shared vision of all those involved in End of Life Care that we can truly influence the experiences of those living with and dying from life limiting illnesses. Patient Safety o o o o o o o To develop and implement an electronic incident reporting and risk management register To continue to embrace the NHS Safety Thermometer Improved sensory equipment for patients’ rooms Ensure our environment complies with dementia friendly requirements Develop and deliver a Management of Medicines training package for the clinical team Utilise our trained volunteers to provide observational support to patients with dementia Ensure the usage of the PRONE monitoring tool for vulnerable patients Clinical Effectiveness o Review all patient literature and circulate widely o Engage with other stakeholders in End of Life Care o Start to utilise ELQuA, EPaCCS and ELCA and evidence our practices o Utilise the provision of grant application to fund our education programmes o Become the Hub for the delivery of Palliative Care education across health and social care o To improve clinical data collection and information technology systems o To work closely with the Bolton CCG to develop the End of Life Care Strategy for Bolton o Be instrumental in the development of individualised care planning for End of Life o Improve the supportive networks available to staff and volunteers Patients’ and Families’ Experiences o o o o o Provide comfortable facilities for families, friends and children visiting our patients Increase the support and education available to carers Explore the concept of survivorship and how we contribute to this through supportive services Generate real time feedback from patients and families instead of annual satisfaction surveys Improve our entrance area to promote the dignity of patients on admission Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 10 OUR PRIORITIES FOR 2014-2015 o Our reputation for quality care is essential to our existence and how we demonstrate this comes in a variety of ways. Our quest to meet statutory requirements allows us to benchmark ourselves against other providers. However, much of our reputation is built on trust, individuals’ experiences, word of mouth and a willingness from the people of Bolton to support and value the work of the Hospice in providing Specialist and End of Life Care for patients and families. o We need to prepare, commission, fund and open our new patient facilities, which includes 11 ensuite rooms, new Pharmacy, family accommodation, Cold Room facilities and a new Multi-Faith Centre, ensuring that all staff and volunteers are trained in all aspects of patient safety and security. o The development of an Integrated Communication Strategy across all Hospice services will allow us to work in a more uniform way. o We will remain cost effective whilst demonstrating service improvements and continued quality for all. o We will move towards increased use of Information Technology that streamlines patient information whilst generating meaningful data. o We will work on addressing any issues raised through our staff satisfaction surveys and Trustees visits and maximise staff consultation. o We will monitor our achievements in respect of the following priorities on pages 12 and 13 by internal and external reporting mechanisms which include Bolton Hospice Quality and Standards Group, Clinical Governance, Audit and Quality, Bolton CCG, Care Quality Commission, Cancer Network and ultimately through Bolton Hospice Board of Trustees. QUOTE FROM A PATIENT “Thank you for your sensitivity during what was a very difficult time. The Hospice is a lovely peaceful environment, but it is you staff and volunteers who make it such a special place” Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 11 Patient Safety Priorities Monitored By We will strive to minimise all patient harms NHS Safety Thermometer/Clinical Governance Group To continue to meet Care Quality Commission Outcomes for Quality and Safety CQC/Quality & Standards Ensure we are open and transparent and make all relevant reports available to the public www.boltonhospice.org CQC/Communication Strategy Group/ Quality & Standards Open new patient facilities ensuring patient safety is paramount Patient Feedback/Clinical Governance Develop a Workforce Strategy for the next 5 years Board of Trustees/Quality & Standards Source Leadership & Management Training for key staff Education Strategy Group/Board of Trustees Clinical Effectiveness Priorities Monitored By Work collaboratively with our partners to help prevent unnecessary deaths in hospital. Bolton CCG /Bolton Hospice Audit Group/ Bolton Palliative Care Strategy Group/NHS Transforming EoLC in acute hospitals programme Provide robust data for Bolton Clinical Commissioning Group Bolton CCG/Informatics Group/Palliative Care Funding Review Implement End of Life Care individualised care planning and provide internal and external training Bolton Palliative and End of Life Care Strategy/Cancer Network/Education Strategy Group All employees of Bolton Hospice will undertake Equality and Diversity Training 2014-2015 Education Strategy Group/Internal training records Collaboratively, Bolton Hospice, Bolton CCG, Macmillan and the Project Lead will progress with setting up the Cancer Information Support Service across Bolton by May 2015 Bolton Hospice/CCG/Macmillan Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 12 Patients’ and Families’ Experiences Priorities Undertake a listening event for patients and families Monitored By Senior Management Group Promote the refurbishment of Hospice services to Income Strategy Group stakeholders, professionals and the general public Hold 2 training days for carers of patients with Dementia Education Strategy delivering the “Forgotten Conversations Programme” Capture patient and family feedback in a timely and Audit & Quality Group/Clinical continuous manner Governance/ Quality & Standards Group Embed the 6 Cs principles within everyday practices:– Care – Compassion – Competence – Communication – Courage - Commitment Education Strategy/ Quality & Standards To work with families to ensure their pre and post Bereavement Support Strategy/ bereavement needs are acknowledged and addressed Clinical Governance Extracts from letters and cards received 2013-2014 “Your kindness was much appreciated and please note that I don't want to be an inpatient anywhere else!” “She died a happy lady.” “During the last weeks of his life it was a very upsetting and stressful time for us all but it was made easier with your support and kindness. I wish you could have known him in the good times”. “Nothing was too much trouble. Everyone who entered her room acknowledged her, which meant so much to us all”. “Until recently, I had been blissfully unaware of the importance of the role of a Hospice. The simple things that you, as a Hospice do cannot be ‘ticked off’ on any government checklist. The initial welcome and smile of the Receptionist to the human, non-jargonal conversations that we have with nurses and doctors, the cleanliness of the building and the willingness to care for her, do everything to make this exceptionally difficult time as manageable as it possibly can be. Never underestimate the super powers that you have”. Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 13 Chairman’s Statement The Quality Accounts for Bolton Hospice 2014/2015 once again show to all those people we serve; our patients, their families and carers that quality and effectiveness is at the heart of all we strive to do here at Bolton Hospice. We are committed on a daily basis to ensure that we deliver, at all times, the highest possible standard of palliative care to all those people who access our services from the Inpatient Unit to our Hospice at Home service. This commitment encompasses Corporate and Clinical Governance in all we do. In Corporate Governance, the board seeks to ensure that we have systems and processes in place to maintain our growth as a viable organisation, ensuring that we at least, maintain our income and wherever possible develop further, our income generation to a greater level as without these funds we could not continue to deliver the level of care needed to ensure our quality service. The addition of four more beds on the Inpatient unit and the creation of en-suite facilities once again add to the quality of service we can provide but also places upon us the need for creative and effective management of our resources to ensure those facilities can be fully utilised for the people of Bolton when needed. Clinical Governance is critical to the smooth running of all our services to ensure that we deliver to the highest possible standard at all times and whilst clinical targets are an important element, once again, it is the human service which is such an integral part of our mission, particularly in ensuring that patients are treated with respect, compassion and dignity at all times. The Quality Accounts also contain extracts from letters we have received from families and patients. These are such a small sample of the many letters we receive and are the best testament to what we do here at Bolton Hospice and as Chairman of the Board of Trustees, I have great pleasure in endorsing the Quality Accounts and on behalf of all the members of the Board and our dedicated and caring staff, pledge our commitment to continue to build upon our existing strengths to improve quality wherever possible. Judith Bromley Chairman Comment made by a daughter of an Inpatient: “One can pay back a loan of gifts, but one dies forever in debt to those who are kind. Thank you for helping our dad”. Bolton Hospice Quality Accounts 2014-2015 JE/dw/June 2014 14