Mission Statement Bolton Hospice exists to provide specialist palliative and end of life care that focuses on symptom control whilst also supporting people and their families to live well through their illness and cope with the end of life. Our core purpose is to improve the experience of dying by supporting people to live well until they die, by focussing everything we do on the care of the patient and their family in a warm, caring, inclusive and compassionate way. BOLTON HOSPICE Quality Accounts - April 2013–March 2014 Bolton Hospice Quality Accounts 2013-2014 JE/dw/June 2013 Chief Executive’s Statement These Accounts are prepared to report on the qualitative aspects of the care delivered by Bolton Hospice in compliance with the Health Act 2009. In light of the Francis Report into standards of care within the NHS Hospital Stafford, this quality account is now even more important than ever. Bolton Hospice is an independent charity (registered number 518704) and constituted as a company limited by guarantee (registered number 02114925). The charity is governed by a Board of Trustees and run by the Chief Executive and the Senior Management Group (Palliative Care Consultant, Clinical Nurse Manager and Finance & Corporate Services Manager). Bolton Hospice makes no charge to its patients or their families and carers for the care that we provide. 71% of the £3.63m needed to run the charity is generated by our own fundraising via, our lottery and retail operation as well as through voluntary donations from individual members of the public and local businesses, the remaining 29% is provided through the Bolton Clinical Commissioning Group (CCG). The charity, through its Trustees, is directly answerable to its membership, who are drawn from the local community we serve. The Hospice is also answerable to the general public of Bolton in a more direct way for if they were to ever find fault or were not satisfied with the care we provide or the actions we take, they have the power to stop supporting us and end their fundraising relationship that is essential to our very existence. Quality has, therefore, to run through everything we do in relation to those we serve. It is a fundamental tenet of the provision of Hospice care that our services are delivered to a high standard. The public, as the main contributors of funds, do so in the expectation that those members of their community who require the Hospice’s services will receive high quality care. The Trustees and Managers of Bolton Hospice believe that the quality of our services is not an adjunct to the delivery of these services; it is an integral part of the work of all our staff and volunteers. Ensuring the quality of our work, at all times, is part of the ethos of all staff and volunteers; it is simply a way of life here. However, this does not mean that there is no room for improvement, nor does it negate the requirement of Hospices to be open and transparent about all aspects of the charity’s work and this includes qualitative assessment of performance, contained in reports such as this one. The quality of services delivered by Bolton Hospice is considered by the Trustees and Managers to be safe and delivered to a high standard and that improving delivery of care is as much a matter for front line staff as it is for the Senior Management Group and the Board of Trustees. Trustees and Managers therefore foster a culture where staff and volunteers take ownership of the services they provide and feel free to challenge, raise issues and concerns knowing they work in an open, transparent, no blame organisation where quality really counts. The challenge in presenting Quality Accounts is to quantify and provide an evidence base of the quality of our services, to describe the ongoing measures we are taking to further improve what we do and to identify some specific measures against which we have set targets and which we can measure year on year. However, the qualitative elements of the service are not easy to separate into easily measureable units and therefore they focus on descriptions, assessment and feedback. The Board of Trustees and the Senior Management Group are committed to the delivery of a high quality service to our patients and their families and friends. We also believe that there is always room for improvement. We must never become complacent. These accounts will identify measureable areas of quality, which are essential to the provision of a high standard of care. They will continue to evolve in the years to come in line with expected standards of reporting. Leigh Vallance Chief Executive Bolton Hospice Quality Accounts 2013-2014 JE/dw/June 2013 WHAT OUR ORGANISATION IS DOING WELL Patient Safety We strive to treat people in a safe environment and protect them from avoidable harm (NHS Outcome Framework Domain 5 Department of Health 2013). o In November 2012, we had an unannounced Care Quality Commission Inspection and were fully compliant in all Outcomes assessed. http://www.cqc.org.uk/directory/1-106965965?referer=widget1 Patients’ comments during the inspection: “There is nothing too much trouble, they think about what is best for you”. ”They don’t treat you like a child”. The Inspector saw evidence of individualisation as likes and dislikes, personal preferences, spiritual needs and things of importance to the patient were recorded. o We have educated all our staff on the NHS Initiative of Harm Free Care and are currently in the process of registering with the NHS Safety Thermometer Survey. o Of the 5797 bed days and the additional attendance of 611 Outpatients, 68 patients experienced a fall which resulted in No Harm and 7 had a fall resulting in Low Harm. o All staff involved in nutritional care of our patients have received food safety training and we have adopted the role of the Meal Co-ordinator, who ensures that patients receive adequate assistance and are not disturbed during meal times. o We are a learning organisation which deals promptly with all incidents and fosters an open culture whereby risk management and incident reporting is encouraged and staff are informed of the lessons we all learn from this. o Catering and Housekeeping Services are now well established within clinical services and the benefits to patients and the organisation are many. o An Occupational Stress Survey was undertaken of all employees with positive results. o This year has seen the review of nursing documentation with the development of a Catheter Care Plan, documentation to assess pain more effectively for those living with dementia and a revision of the Intentional Rounding Tool. Extract from a letter received in 2013 “From the lovely receptionist, cleaners, doctors, nurses and everyone else who is connected to Bolton Hospice, you gave my mum the very best care and attention during her final days. I could not have asked for anything more. You made all my family welcome and always had a smile, even during the hardest times”. Bolton Hospice Quality Accounts 2013-2014 JE/dw/June 2013 OTHER PATIENTS’ SAFETY DATA Total Number of Drug Errors: A reduction of 7% (this figure is broken down as below): 29 Near Misses Prescribing Error Omissions Administration Dispensing Error Stock Delivery Documentation Number of controlled drug errors reportable to the Local Intelligence Network This is an increase of 3 compared to last year 5 2 4 3 5 2 1 Number of pressure ulcer occurrences: 25 12 12 1 Grade 1 Grade 2 Grade 3 7 Number of complaints 1 Number of patients infected with MRSA whilst on the Inpatient Unit 0 Number of patients with C.Difficile whilst on the Inpatient Unit 1 Inpatient’s assessment for VTE 100% Sharps Injuries 2 Clinical Effectiveness o o o o o o o o We have completed self assessment against the Specialist Palliative Care Measures required by The National Cancer Peer Review. We continue to promote choice to our patients and advocate the benefits of Advanced Care Planning. We have implemented the Key Worker concept in Day Therapy and Outpatients. The Liverpool Care Pathway has been used for 78% of our patients and families are given sensitive information and explanation especially in light of recent media attention. We have provided 24 Hour Telephone Advice to 227 Professionals and 202 Patients and Carers this year. We run a Lymphoedema Clinic monthly for palliative care patients. We continue to work in partnership with District Nurses and Hospice at Home delivering 1002 visits and together allowing 98% of patients to die in their own home. We continue to offer bereavement support to those known to us and work alongside patients, families and carers helping them to cope and adjust to their losses. Extract from a letter from a relative “My mother, my children’s grandmother and great grandmother, had a few extra wonderful days, all thanks to you. She helped so many people in her life and your support at the end of her life was priceless”. Bolton Hospice Quality Accounts 2013-2014 JE/dw/June 2013 Audit and Quality o o o o o o We have undertaken 24 audits and 21 surveys using both internal and external tools. All staff are actively encouraged to take part in all aspects of the audit process. Examples include annual patient satisfaction surveys of all Hospice services; student nurses’ experiences, pressure ulcer incidents, patients’ records, credibility of the Accountable Officer, adherence to Uniform Policy, staff occupational stress, response to nurse call, care of the deceased, decision making and prescribing for LCP patients and waste segregation. Our Quality Monitoring Calendar is reviewed monthly and recommendations and actions fed back to staff through education and quarterly newsletters. We value feedback from all people who use our services with the inclusion of staff, volunteers, families, patients, friends, carers and other healthcare professionals and have implemented a “Have your Say” comments scheme. Bolton Hospice submitted Audit Data to the National Minimum Data Set for Specialist Palliative Care. Results are available publicly, from the National Council for Palliative Care: http://www.ncpc.org.uk./publication/index.html Education and Training o We have a workforce that is skilled within palliative care. o Mandatory and competency based training is given priority within the organisation. o We are a highly regarded provider of palliative care based education and training for health o o o o and social care providers in Bolton. Communication skills training is offered to all our staff and volunteers. Working in partnership with another charity, a training package has been developed which explores living and dying well with dementia. We have also delivered training on adult and child bereavement, communication skills, spirituality and all aspects of symptom management. In line with The Dying Matters Campaigns to raise awareness in all members of society, people employed in areas other than health have valued the training offered as death, dying and bereavement affects us all. http://dyingmatters.org/ Extracts from attendees’ evaluation forms: “Before I came, I did not have any experience of 'End of Life' care or how to deal with it in my working life - this course has been a revelation”. “I learnt that it does not need to be scary. With careful thought and planning, we can be equipped and useful”. “I learnt not to be afraid of silence” “I learnt that I do not have to have all the answers”. http://www.boltonhospice.org.uk/training Bolton Hospice Quality Accounts 2013-2014 JE/dw/June 2013 Patients’ and Families’ Experience Bolton Hospice strives to ensure that people have a positive experience of our care (NHS Outcome Framework Domain 4 Department of Health 2013) o o o o We welcome feedback both positive and negative and this allows us to change, develop and adapt to the needs of those for whom we provide care. Patients and relatives were invited to a consultation meeting prior to the design of the Inpatient Unit and though all were in favour of en-suite facilities, they would not want the ward corridor used as access to the Multi-faith Centre. We have become more confident in our approach to gathering this rich and valuable data and redesigned our satisfaction surveys to explore aspects of choice, how to make a complaint, family needs and information requirements about end of life. We undertake an annual Patient Satisfaction Survey for all Hospice services; these are some of the results: All patients rated privacy, dignity and compassion highly; however for 2 patients having to use a shared bathroom and toilet facilities was not fully satisfactory. This has been taken into account within the refurbishment of the Inpatient Unit with the provision of en-suites. 100% of those surveyed had confidence in the staff caring for them, though some would like to feel more involved in their plan of care. Staff now complete their care planning at the patient’s bedside. Though many of our patients want more information about what to expect at the end of their life there are those that choose not to discuss this. Staff are all trained in effective communication and the ability to tailor information needs to what the patient wants. Some patients didn’t know how to make a complaint if they needed to so we have increased the number of notices around the Hospice. When we asked, one thing large or small which would make a difference for you and your family they replied:“More comfortable chairs for relatives”. “Choice of later Outpatient appointment”. “Me and my family are totally satisfied”. “Perfection rules OK”. “Coming to the Hospice is the one place I can be myself, wish you could bottle the atmosphere for me to take home”. We surveyed families’ experiences of the care their loved ones received at the end of their lives. These are some of their responses: “The whole atmosphere in the Hospice is very positive”. “She was cared for with the utmost respect and dignity in her last weeks of life”. “Would have helped to understand what it is like when someone dies, before it happens”. “My husband and my family were cared for exceptionally well with care, understanding and dignity”. Bolton Hospice Quality Accounts 2013-2014 JE/dw/June 2013 WHERE IMPROVEMENTS IN SERVICE QUALITY ARE REQUIRED Bolton Hospice is a key provider for Specialist Palliative and End of Life Care within Bolton and as such, we are accountable for the quality of the care we deliver. We cannot stand still as the very core of our existence relies heavily on those who help fund us. We pride ourselves on the ability to care for those in our local community at a difficult time in their and their families’ and friends’ lives. Patient Safety o o o o o o o To ensure effective communication internally and externally. Continue to monitor patient’s harm. Purchase new high grade mattresses which meet patient’s preferences. Re-evaluate safe skill mix due to increased beds. To embed the Medication Error Reporting Proforma into practice. Further reduce interruptions during medication dispensing. Ensure we have staff with the right skills to care for patients with dementia. Clinical Effectiveness o o o o o o o To continue to work towards the requirements of Cancer Peer Review. To ensure patients’ choices about their end of life care is clearly documented. To develop a better Marketing Strategy for all our services. To expand our capacity to deliver palliative care education across health and social care. To improve clinical data collection and information technology systems. Embrace the NHS Equality Delivery System within the Hospice. To continue to contribute to the Bolton Palliative and End of Life Care Strategy Group, to ensure effective planning and delivery of services. Patients’ and Families’ Experiences o o o o o o Utilise patients and families in the development of services even more effectively. Undertake a Satisfaction Survey of people attending Bereavement Support. Encourage other groups to work alongside patients within Bolton Hospice Support Services. Explore the benefits of providing Carer and Family support. Undertake annual Patient Satisfaction Survey. Explore survivorship and its implications for the future shape of our service delivery. Bolton Hospice Quality Accounts 2013-2014 JE/dw/June 2013 OUR PRIORITIES FOR 2013-2014 o Our reputation for excellence in practice is the core to our success, past, present and in the future. Threaded throughout this is the ability to deliver and demonstrate that we provide harm free, effective and efficient quality specialist palliative and end of life care to the people of Bolton. o We face many challenges over the coming months as we embark on upgrading our Inpatient facilities, increasing our beds to 18, en-suite in 11 and relocating our Pharmacy, Prayer and Reflection Room and Cold Room facilities. o Our greatest task will be to ensure all aspects of quality is not affected, bed closures are kept to a minimum and services are provided in an alternative way, allowing patients to remain within the community. o Providing high quality care is still achievable despite the current economic climate. Our focus at Bolton Hospice will be to foster a culture that manages its resources effectively and supports staff and volunteers through change, whilst continuing to deliver high quality care for patients and their families. o We will monitor our achievements in respect of the following priorities by reporting progress through Bolton Hospice Quality and Standards Group, Clinical Governance, Audit and Quality and ultimately through the Board of Trustees: Patient Safety Priorities Monitored By Dementia training to be undertaken by clinical staff Training Profile Reduce patient falls by 10% Clinical Governance Audit Group Register with NHS Safety Thermometer to monitor falls, pressure ulcers, urinary infections and VTE Clinical Governance Audit Group To continue to meet Care Quality Commission Outcomes for quality and safety CQC Inspection Compliance Patient Feedback Publish Bolton Hospice’s response to the Francis Report on our website. Public and Professional Awareness Group Patient safety and standards of care is not compromised during refurbishment Incident Reports Operational Design Team Clinical Governance Develop a Workforce Strategy for the next 5 years Board of Trustees Senior Management Group Help the Hospices Bolton Hospice Quality Accounts 2013-2014 JE/dw/June 2013 Clinical Effectiveness Priorities Monitored By Develop a better Strategy for Marketing of all Hospice Services Increase in referrals/reduced hospital admissions Provide robust data for Bolton Clinical Commissioning Group Funding for services CCG Measure ourselves against the NICE Outcomes for Palliative and End of Life Care Bolton Palliative and End of Life Care Strategy Group/Cancer Network/Peer Review Implement Bolton Hospice IT Strategy Informatics Group Meet the required standards for Peer Review. Cancer Network/Bolton Palliative and End of Life Care Strategy Group All staff to have access to Education and Training Education Strategy Group Patients’ and Families’ Experiences Priorities Monitored By Involve service users in all aspects of clinical services upgrades Audit and Quality Group Undertake annual patient satisfaction survey of all Hospice Services and publish on website Audit and Quality Group Produce patient information on pain and symptom management Nice Guidance/Peer Review Work in partnership with Bolton CCG and Macmillan to explore development of Patient/Carer Information Centre at Bolton Hospice. CCG Macmillan Bolton Hospice Develop relationship with Bolton CCG to aid strategic priorites in End of Life Care in Bolton CCG Extracts from letters and cards received 2012-2013 “What a wonderful institution, we would have been snookered without you. The care was wonderful; I am going to change my will”. “Thank you to all the staff for the wonderful, dignified care you have given to my dear wife”. “I am so grateful that it was possible for you to admit my husband to the Hospice and I saw daily how much effort the nursing staff put into making him as comfortable as he could be. All of you worked so hard to make it possible for him to die with dignity and without pain and for that, words cannot express my gratitude”. “We were desperate when we came to you and you helped my husband spend his last days with his sickness and pain under control. You treated him with both dignity and respect. I will never forget the care both of us received”. Bolton Hospice Quality Accounts 2013-2014 JE/dw/June 2013 Chairman’s Statement I have great pleasure to endorse the Quality Accounts for Bolton Hospice for 2013/2014. It will be evident to all our patients, their families and carers that Quality is at the centre of everything that we do and the Board of Trustees has a commitment to ensure that the highest standard of palliative care is delivered to those in need of our services. This commitment encompasses Corporate and Clinical Governance. In Corporate Governance, the Board ensure that systems and processes are in place to maintain our growth as a viable organisation and that our income streams are assured because without these funds, we could not continue with the level of care required by our patients. Clinical Governance is critical to ensure that our services are of the highest possible standard as confirmed in our Mission Statement. Whilst Clinical targets are an important element in the service we provide, it is the human service that is such an integral part of our mission, particularly ensuring that patients are treated with respect, compassion and dignity. Elsewhere in the Quality Accounts are extracts from the letters we have received from patients and families. These are typical testaments to what we do at Bolton Hospice and as Chairman of the Board of Trustees; I pledge our commitment to continue to build improved quality, based on the feedback we receive from patients, families and carers. Graham Yardley Chairman Comment made on a Patient Satisfaction Survey: “Bolton Hospice, its staff and volunteers create a wonderful environment. We will be eternally grateful for the care you have provided to our mother. Thank you so much”. Bolton Hospice Quality Accounts 2013-2014 JE/dw/June 2013