Martlets Hospice Quality Accounts 2011-2012 Part 1 CHIEF EXECUTIVE STATEMENT Statement by Caroline Lower, Chief Executive Welcome to the Quality Account Report, 2011-12, of the Martlets Hospice. The Martlets Hospice continues to fulfil its vision for supporting all those in Brighton & Hove who are facing the end of life, in particular those with complex needs regardless of their diagnosis. Through its ability to generate significant income from a variety of sources the Martlets also continues to supplement the NHS in providing end of life care to the level of over £3m a year. On behalf of myself and the Board of Trustees, I would like to thank all of our staff and volunteers for their achievements over the past year. Despite the huge challenges arising from a shortfall in our charitably raised funding which, is a direct consequence of the current economic climate, the Hospice has continued to provide high quality services. Regretfully we were forced to close our Day Hospice and to make other significant reductions to our salary budget but this has resulted in financial stability. We are thus able to commence the new financial year in a stronger position. Our report provides you with a summary of our performance against selected quality measures for 2011/12 and our initiatives and priorities for 2012/13. The Martlets Hospice is highly committed to quality improvements at all levels of its services. We have developed this approach to quality over many years and have worked hard to embed a culture of clinical improvement within all our services. This is achieved in two ways through the Clinical Governance Group, made up of representatives from all of the services, which meets bi monthly and undertakes all audits and ensures implementation of desired quality improvements. Secondly a formal Sub-Committee of the Board, chaired by a Trustee maintains a watchful overview of all clinical governance and quality improvement processes. This report demonstrates our continued commitment to ensuring our patients receive the best possible care. Within the clinical practice of the Hospice there is a culture of continuous quality improvement, in which shortfalls or complaints are identified and acted upon quickly. The Patient Satisfaction Survey is one of the mechanisms we use to identify those areas of required improvement. We are also starting to involve patients or carers and in a number of different ways. Two of our carers participated in a community engagement event when over 50 local healthcare providers and voluntary groups attended the hospice to discuss issues such as ‘what is a good death’ and what are the barriers locally to good joined up end of life care. Also this past year we have achieved notable success in improving the recording of patient falls which will enable us to reduce the number of preventable falls in the future. Another initiative is a new service in the form of a Martlets Hospice Quality Accounts 2011-2012 2 designated respite bed that has been introduced in response to the expressed needs of families and carers. The respite bed allows patients to be cared for at home for longer than may otherwise be possible due to carer exhaustion. This has been well received. I am very pleased to have the opportunity to convey all that we are trying to achieve and to confirm my personal commitment to continuous improvement. I am responsible for the preparation of this report and its contents. To the best of my knowledge, the information reported in this Quality Account is accurate and a fair representation of the quality of healthcare services provided by our Hospice. Caroline Lower Chief Executive Martlets Hospice Quality Accounts 2011-2012 3 Part 2 LOOKING FORWARD: PRIORITIES FOR IMPROVEMENT 2012 – 2013. 2.1 Priorities for improvement Throughout 2011-2012 we identified many quality improvements that could be made over the next 12 months. In selecting our priorities we have been mindful of national and local policy as well as those issues which are of concern to our service users, our workforce, our partners and our Trustees. Following our assessment the top priorities for the year 2012-2013 are set out below:Priority 1: Increasing volunteer involvement. Priority 2: Becoming more proactive in gaining service users views – both positive and negative. Priority 3: To increase the safety and well being of patients by the installation of an updated nurse call system. Priority 1: Increase volunteer involvement. There has been a change in the needs of the hospice as well as the traditional volunteer. By increasing volunteering opportunities with a greater variety of tasks it is hoped that we will attract a wide range of volunteers of different ages, different walks of life and skills which can only be beneficial to the hospice and be more fulfilling to the volunteer. How was this identified as a priority? The hospice has an excellent team of volunteers who have possibly been underutilised in many areas. Volunteers have always been an important part of the hospice and contribute in many ways. Through meetings some volunteers have expressed that they would like to become more involved with the support of patients and/or their families. How will this be achieved? A team of volunteers will provide art and craft activities to patients and visitors on the In-Patient Unit. The development of a team of specifically trained volunteers providing regular home visits to support a socially isolated person, who is either a patient, or a close family member of a patient of the Martlets Hospice/Macmillan Community Team. Priority 2: Become more proactive in gaining patient/carer views – both positive and negative. The nurse in charge of In-Patient Unit will meet with patients and families within the first few days after admission. This informal meeting will be a chance for the nurse in-charge to introduce them self and to discuss with the person using the service what the hospice is doing right but also what could be improved. Martlets Hospice Quality Accounts 2011-2012 4 How was this identified as a priority? The hospice does already distribute questionnaires to both patients and their carers to gain feedback about the service. The feedback we get is usually good however we know that we can always do better but often people are just so grateful to be in the hospice they do not like to suggest improvements. It is hoped that by having an informal discussion with a skilled communicator ways to improve will be identified. How will this be achieved? The nurse in charge will arrange to meet with each new patient and their family within two days of admission – although sometimes this would not be appropriate. The discussion will be an opportunity for the patient and their family to ask questions and also for the nurse to find out what is working well and what needs to be improved. This information will be recorded and discussed at the Hospice Clinical Governance Meetings. Priority 3: To increase the safety and well being of patients by the installation of an updated nurse call system. The nurse call system is used by our patients and their families to request assistance. Our existing nurse call system is 15 years old, certified as obsolete and needs urgent replacement. We have great difficulty finding replacement parts for repair and extension. How was this identified as a priority? The call points often break and we have had to take some rooms out of action for weeks while we wait for replacement parts. Our existing system also offers very limited portability. All nurse call points are either fixed bell cords, such as in toilets and by beds, or they are on short leads. This restricts the areas in which a patient can safely sit or move about whilst being able to remain in reach of the nurse call bell. The new system will reduce the risk of accidents and incidents. It will offer better comfort, re-assurance and safety to our patients, whilst supporting their independence and choice. How will this be achieved? We are applying for a grant to fund the replacement. The appropriate nurse call system that would be best for the needs of the patients has been identified. Martlets Hospice Quality Accounts 2011-2012 5 LOOKING BACK: PRIORITIES FOR IMPROVEMENT 2011 – 2012. Following our assessment the top priorities for the year 2011-2012 were as follows: Priority 1: Formation of a volunteer’s involvement group. Priority 2: Decreasing the number of patient falls. Priority 3: Improving documentation of health records through the introduction of an Electronic Patient Records (EPR) system. Priority 1: Formation of a Volunteer’s Involvement Group. The formation of a Volunteer’s Involvement Group was to improve communication and to promote greater involvement of hospice volunteer representatives. It had been hoped that the volunteer forum would have been in place by 2012. This unfortunately has not happened due to key staff changes within the hospice and the need to prioritise other events. The increasing financial pressures and the subsequent closure of the day hospice has taken priority during the past 12 months. As an outcome of the day hospice the focus has been on meeting with volunteers to support and maintain motivation as well as harnessing their skills to support other clinical areas. A positive outcome includes the planned development of art and craft activities for hospice In-Patients and carers and a Community Volunteer Visiting Service. Further discussions have since taken place around the formation of a Volunteer Involvement Group and alternative suggestions have been raised as possibly being more suitable. These include open afternoons or drop in sessions to which all volunteers are invited and discussions can be had or concerns can be raised either as a group or individually. Priority 2: Decreasing the number of patient falls. The aim of this initiative was to provide practical guidance to managers and staff in order to minimise the risk of harm and maintain patients and staff safety. Patient safety has to be balanced with maintaining independence, privacy and dignity. This is particularly pertinent in hospices where patients are supported to maintain their independence for as long as possible. However, this does mean that falls are not uncommon. To decrease the number of falls preventable risks need to be identified and precautionary action put in place. For example, this could just mean replacing loose slippers with better fitting slippers. Patient falls within the In-Patient Unit have been carefully recorded and monitored over the last 12 months. In addition statistics relating to falls are reported to a hospice benchmarking group to compare the numbers with other hospices. However, within this group there have been similar numbers of falls in all the participating hospices. With the number of falls recorded accurately in the past 12 months we have been able to set a baseline from which all future initiatives to reduce the number of patient falls will be able to be accurately evaluated for effectiveness. Falls are reviewed regularly at the bi-monthly Clinical Governance Meetings and hospice guidelines have been produced to support staff in identifying and Martlets Hospice Quality Accounts 2011-2012 6 managing the risks that may contribute to falls. There has also been an initiative to improve the reporting of falls where senior staff are checking the initial submitted report of a fall to ensure adequate detail is being recorded and staff are identifying preventative action wherever possible. Priority 3: Improving the delivery of patient care through the successful introduction of an Electronic Patient Records (EPR) system. An electronic health record is a digital version of an individual’s medical record. The electronic patient record system has been introduced over the last 12 months and is now in use throughout the hospice. The key benefits of the system include increased effective and more secure access to patient information by health professionals involved in the patients care. The new system also enables accurate data for statistical reporting to be collected more efficiently, saving staff time and cost. Martlets Hospice Quality Accounts 2011-2012 7 PART 3 STATEMENT OF ASSURANCE The following are statements that all providers must include in their Quality Account. Many of these statements are not directly applicable to palliative care providers however we are still required to include specific statements. 3.1 Review of Services During 2011-2012 the Martlets Hospice supported the NHS commissioning priorities with regard to the provision of local specialist palliative care by providing: Hospice at Home services which includes end of life care as well as respite care. In-Patient Unit which also includes NHS Continuing Healthcare Funded Beds In addition the Hospice has provided the following services through charitable funding: Day Hospice (Closure in October 2011) Bereavement Support Services Outpatient Breathing Clinic During the reporting period of 2011-2012, the Martlets Hospice provided two NHS services. The Martlets Hospice has reviewed all the data available to them on the quality of care in all of these services. Martlets Hospice Quality Accounts 2011-2012 8 3.2 Income generated The income generated by the NHS services reviewed in 2011-2012 represents less than one third of the total income generated by Martlets Hospice for 20112012. The NHS provided money through a grant for the partial running costs of InPatient beds. Through contracts funding was also provided for two NHS continuing healthcare beds and the Hospice at Home services. The remaining income is through charitable donations and through fundraising events, shops and lottery. 3.3 Participation in Clinical Audit During 2011-2012 no national clinical audits or confidential enquiries covered NHS services provided by the Martlets Hospice. The Martlets Hospice only provides palliative care. During the 2011-2012 period the Martlets Hospice participated in no national clinical audits and no confidential enquiries as it was not eligible to participate in any. The national clinical audits and national confidential enquiries that the Martlets Hospice was eligible to participate in during 2011-2012 are as follows: None The Martlets Hospice was not eligible in 2011-2012 to participate in any national clinical audits or national confidential enquiries and therefore there is no information to submit. As a provider of specialist palliative care the Martlets Hospice is not eligible to participate in any of the national clinical audits or national confidential enquiries. This is because none of the 2011-2012 audits or enquiries related to specialist palliative care. The Hospice will also not be eligible to take part in any national audit or confidential enquiry in 2012-2013 for the same reason. 3.4 Hospice Clinical Audits Clinical audits have taken place within the Martlets Hospice; these form part of the annual audit cycle programme. The monitoring, reporting and actions following these audits ensure care delivery that is safe and effective. The clinical audit cycle includes audits around documentation, medicine management, pressure ulcer management, infection control and care of the dying audit. Martlets Hospice Quality Accounts 2011-2012 9 Audit/review Date completed Spiritual care audit focussing on documentation of spiritual needs. January 2011 Recording of consent. October 2011 Auditing the appropriate use of antibiotics. April 2011 Manual handling risk assessment audit looking at the correct completion of these forms. October 2011 Monitor the frequency of patients with pressure ulcers on admission and patients that develop pressure ulcers whilst as the hospice. September 2011 Reviewing of all accidents, incidents and near misses recorded. Infection control audits: 1. Hand Hygiene 2. Environment 3. Kitchen area (General) 4. Disposal of waste 5. Handling and disposal of linen 6. Spillage and/or contamination with blood/body fluids 7. Personal Protective Equipment 8. Safe handling and disposal of sharps 9. Specimen handling 10. Management of patient equipment 11. Uniform 12. Short term urethral catheter management Identification audit (patient wristbands) to check that all patients had a wristband to enable correct identification of patients when dispensing medication. Reporting every 4 months September 2011 September 2011 Reviewing of drug errors to ensure that areas of improvement have been addressed. Medication – to ensure correct controlled drug use, order, delivery, receipt and stock to demonstrate best practice. Medication – that the Accountable Officer for controlled drugs has met the requirements of the current law and regulations Reported every 4 months Feedback from Counselling Service showing the numbers that access the service and satisfaction. January 2011 Feedback from Bereavement Support Service showing a high degree of satisfaction with what is provided. January 2011 Care of the Dying Pathway Audit looking at documentation Reviewing of all complaints whether informal or formal and discussing what lessons could be learned. November 2011 November 2011 November 2011 Reported every 4 months Audit on admission documentation & procedures December 2011 Review of acupuncture to evaluate the current service November 2011 Martlets Hospice Quality Accounts 2011-2012 10 3.5 Research The number of patients receiving NHS services provided or subcontracted by the Martlets Hospice in 2011-2012 that were recruited during that period to participate in research approved by a research ethics committee was: None. 3.6 Use of the Commissioning for Quality and Innovation (CQUIN) payment framework The Martlets Hospice income in 2011-2012 was not conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation payment framework because it is a third sector organisation and as such was not eligible to participate in this scheme during the reporting period. 3.7 The Care Quality Commission The Martlets Hospice is required to register with the Care Quality Commission. The Martlets Hospice is required to undertake only regulated activities at the following location: Martlets Hospice, Wayfield Avenue, Hove, East Sussex. BN3 7LW. The Martlets Hospice is subject to periodic reviews by the Care Quality Commission and the last on-site inspection was June 2009. The Martlets Hospice has not participated in any special reviews or investigations by the Care Quality Commission during 2011-2012. 3.8 Data Quality The Martlets Hospice did not submit records during 20112012 to the Secondary Users service for inclusion in the Hospital Episode Statistics which are included in the latest published data. This is because the Martlets Hospice is not eligible to participate in this scheme. However, the Martlets Hospice does submit data to the Minimum Data Set (MDS) for the Specialist Palliative Care Services collected by National Council of Palliative Care on an annual basis, with the aim of providing an accurate picture of hospice and specialist palliative care service activity. The service activity for the Hospice at Home service is in Part 4. 3.9 Information Governance Toolkit attainment levels The Martlets Hospice is not required to use the Information Governance Toolkit, however, as a standard for good practice we are currently working towards reaching 100% level 2 compliance by the end of March 2013. 3.10 Clinical coding error rate The Martlets Hospice was not subject to the Payment By Results Clinical Coding Audit during 2011-2012 by the Audit Commission. Martlets Hospice Quality Accounts 2011-2012 11 Part 4 QUALITY OVERVIEW We have chosen to present an overview of the Hospice at Home service. The Hospice at Home service offers end of life care and respite care in a patient’s own home. It is a vital service that is instrumental in helping patients to stay at home for as long as possible and to die at home if that is what they choose. Total number of patients cared for in 2011-2012 Age 19-24 years 25-64 years 65-74 years 75-84 years 85 years and over Patients with a non cancer diagnosis Total face to face contacts Total telephone contacts Patients who died at home Patients who died in care home Patients who died in hospice Patients who died in hospital Average length of care 382 0 24% 19% 34% 23% 26% 3852 visits 4919 telephone calls 77% 3% 11% 9% 22 days The hospice asks for feedback from patients and carers who receive care and support from the hospice. Below are just some of the positive comments we receive every year from people who have experienced the Hospice at Home services. “Just wonderful – every single member of the team who visited were caring, compassionate and highly professional. I cannot comment highly enough about the home team.” “Her wish was to stay in her own home until the end of her life, without you it would not have been possible.” “I can’t express how much it meant to us as a family, to have them visit each day for assistance, advice and comfort. I know that my husband’s final days were made so much more comfortable and that he was greatly helped by their calm and gentle presence.” “Thank you for all your dedicated hard working trying to keep my husband pain free and comfortable at home. You are a wonderful crowd and I could not have done it without your support and help.” “You were all incredibly kind and gentle to mum and us. You never gave me the impression of being hurried and you never left our house without making sure we were all ok and our questions had been answered.” Martlets Hospice Quality Accounts 2011-2012 12 “Thanks to the help given by yourselves, her doctor and the district nurses she was able to have the death she wanted and for that I will be eternally grateful.” We would also like to highlight one element of community service that has been a huge success to date. The Macmillan Volunteer Welfare Benefits Partnership is a four-way partnership between the Martlets Hospice, Age UK, Macmillan Cancer Support and Sussex Community Trust. The aim of the project is to support people with life limiting illnesses with welfare benefits advice and support. The uptake and results have been fantastic. From January 2011- March 2012 there were... 315 Referrals 372 Home visits 835 telephone contacts The results were... 165 Attendance Allowance Claims to the value of £621,488 126 Disability Living Allowance claims to the value of £819,000 Totalling £1,440,488 This project shows the value of different organisations working together to achieve the best for patients and carers, and for this particular project alleviating financial hardship and deprivation for many patients and families. Martlets Hospice Quality Accounts 2011-2012 13 SUPPORTING STATEMENTS As required by the regulations, this document has been sent to the Brighton and Hove Local Involvement Network (LINk), Overview and Scrutiny Committee (OSC) and the Primary Care Trust (PCT) for Brighton and Hove for comment. Brighton & Hove Clinical Commissioning Group Response to Martlets Hospice Quality Account 2011/12 Brighton & Hove Clinical Commissioning Group [CCG] welcomes a copy of your Quality Account for 2011-12 for comment. The document outlines your commitment to quality through patient safety, patient experience and measuring clinical effectiveness. Though quantitative targets are not detailed, your focus is clear and the document is well set out and readable. Against your priorities set in 2011-12, the CCG recognises the improvements the Martlets have made in relation to reducing falls. This has been done through accurate data collection and benchmarking with similar organisations to determine your own measurable targets. The production of your guidelines for staff to reduce the risk of falls is a key quality indicator for inpatient units nationally and we note your emphasis on balancing independence and privacy against patient and staff safety. The introduction of electronic patient records has improved efficiency in access and security for patient records. This supports patient safety and facilitates accurate statistical reviews to build on the extensive audit programme you have undertaken. We note that the formation of a Volunteer’s Involvement Group was not achieved last year due to staff changes and other pressures but your Quality Account recognises the dependence on, and appreciation of the valuable role played by volunteers in the organisation. We look forward to the development of the volunteer role in 2012-13 in supporting socially isolated people by regular home visits. The Quality Account for 2012-13 reflects the high national priority in eliciting patient experience to learn from their perceptions and improve the way your services are delivered. The highly personal approach of a skilled nurse seeking the views or patients and carers within 2 days of admission we hope will extend to the clients using the Hospice at Home service, that the CCG commissions for the residents of the city. Though there is no specific mention of advanced care planning including the preferred place of care and avoidance of hospital admission, we trust these will be captured in your conversations and patient care plans and considered in the development of services. The CCG supports the national priority for patient safety through the reduction of accidents and incidents in all providers of healthcare. We share your aspiration to improve nurse responsiveness, reduce falls and improve patient dignity and independence through the securing of an updated nurse call system. Martlets Hospice Quality Accounts 2011-2012 14 We look forward to closer working with the Martlets in achieving your identified quality priorities for the coming year. Marilyn Eveleigh, Head of Clinical Quality & Risk, Brighton & Hove CCG 27th June 2012 The Martlets Hospice would like to thank everyone for their contribution to this Quality Account. We look forward to working with all stakeholders over the coming year to deliver the improvements to which we are committed. Martlets Hospice Quality Accounts 2011-2012 15