Quality Account 2014 -15 Mission Statement Teesside Hospice Care Foundation (THCF) is committed to enhancing the quality of life of those suffering from life limiting illness, offering specialist palliative care and support to patients and their carers in the belief that each person is entitled to dignity and choice within the best provision of care. Teesside Hospice 1, Northgate Road, Linthorpe, Middlesbrough, TS5 5NW Registered Charity Number - 512875 1 “As ever, the Hospice and all their staff were beyond reproach. The Hospice are a beacon of professionalism, their care and commitment. Both myself and my family are indebted to you all.” Patient comment – Inpatient Unit Satisfaction Survey 2014/15 “First impression when walking into the building was the feeling of comfort and relaxing atmosphere. The staff and volunteers are warm and welcoming and will do anything that is asked of them with pleasure.” Patient comment – Day Hospice Satisfaction Survey 2014/15 “The lymphoedema clinic is excellent. Staff are friendly, approachable, and knowledgeable and are highly skilled. The whole team always have time for you.” Patient comment – Community Lymphoedema Satisfaction Survey 2014/15 The best thing about Teesside hospice was:“The caring nature of ALL the staff involved in my wife's care and the support given to the family. They all lived up to your motto.” “The way things were put together to give a total comprehensive and very caring attitude to … and I from the moment of walking through the doors. We couldn't have hoped in our wildest dreams for anything better. You all pulled together as a lovely caring team. Well done all of you! And thanks from the bottom of our hearts!” “Every member of staff are wonderful! Everyone took the time to get to know my dad and myself and support us and nothing was too much trouble. They truly are amazing people and thank you so much for everything”. Bereaved Carer 2014/15 2 PART 1 Statement from Chief Executive Teesside Hospice Care Foundation is committed to delivering the best possible experience for patients and their families. Through the Hospice’s Consultant led multi professional team we aim to provide the highest standard of specialist palliative care we can achieve. We are committed to continuous improvement within the Specialist Palliative Care we deliver. This Quality Account will hopefully demonstrate the level of commitment we have to deliver, review and improve the quality of the service we provide to patients and their families that access our services. We rely on the feedback from patients and families who use our services. The Care Quality Commission made an unannounced inspection to the Hospice in January 2014. The report on this inspection did not identify any areas where remedial action was required, nor were any recommendations or suggestions made. The Board of Trustees continues to oversee the corporate governance of the organisation, with various sub committees having trustee representation. Policy review and new documentation is developed with the inclusion of the appropriate management and staff. We receive 32% funding from the NHS but rely heavily on our Trading Company together with the very generous support of local businesses and supporters to make up the remaining 68% of the required funding. Legacy income is not a guaranteed source of income but is needed to ensure the Hospice has vital reserves going forward. Teesside Hospice is a local Charity based in Middlesbrough. Throughout 2014 / 15 the Hospice has continued to ensure strong financial stability. I would like to thank all staff, volunteers and supporters for their dedication in contributing to make our patients and families have the best experience of palliative care we can deliver. To the best of my knowledge the details within these accounts reflects an accurate and a fair representation of the quality of care provided by Teesside Hospice. Maureen Thompson Chief Executive 3 PART 2 Looking ahead: Key priorities for improvement for 2015/16 2.1 Introduction Teesside Hospice Care Foundation (THCF) was established in 1982 as a specialist palliative care centre to enhance the quality of life of those suffering from life limiting illnesses. It offers Consultant led specialist palliative care and support to patients and their carers. Our aim is to provide the relief of complex symptoms with regard to physical, social, psychological and spiritual aspects of patient/family care, thus enabling them to return home or to another care environment. The majority of care to patients, families and carers focuses upon pain and symptom control and end of life care. An annual patient survey is undertaken and managed by THCF Clinical Audit Group. The outcome of the survey is shared with the Clinical Governance Committee, Council of Management Trustees and summaries of the survey are displayed as posters in each department to inform patients, their families and other visitors to the organisation of the outcome of the survey. A carer support programme is established alongside the Day Hospice Service and where possible patient and carer views are sought prior to specific changes or service developments. In January 2014, Teesside Hospice satisfied the Care Quality Commission (CQC) that standards are being met through both self-assessment and an unplanned CQC inspection. The CQC inspection was extremely successful and Teesside Hospice was deemed fully compliant. We are in the process of submitting the Provider Information Return (PIR) to the CQC and await an unannounced inspection in the coming months as part of the ongoing CQC inspection process. Teesside Hospice monitors the quality of care that is provided across the organisation via its Clinical Governance Committee. The importance of providing quality care is underlined by the membership of the committee which includes the organisations most senior clinicians, the Director of Patient Services and representatives from the Board. The Hospice’s catchment area is predominately Middlesbrough, Redcar and Cleveland areas however, we are also contracted to provide a specialist community lymphoedema service to patients from the North and South CCG areas. A major capital improvement programme was completed in March 2015 funded jointly by the Department of Health and the Hospice. All areas and departments of the 4 Hospice were upgraded, with the main reception area and an extension to the Inpatient Unit being the most significant developments. 2.2 Improvement Aspirations Aspiration 1 - Patient Safety Why choose the it asquality a priority? To improve of the patient hand over process on the Inpatient Unit. Why choose this as a priority? Poorly structured, verbal handovers have been identified as a common source of patient related errors in continuity of care, evidence recommends the standardisation of the handover process to include structured checklists and protocols. The Nursing and Midwifery Council (2009) highlight good record keeping and communication as an integral part of practice and essential to the provision of safe and effective care. The primary purpose of nurse handover is the clear exchange of information from the outgoing nurses to the incoming nurses to enable the latter to nurse appropriately. To further improve the quality of the patient handover process the use of the Situation, Background, Assessment and Recommendation (SBAR) evidence based tool will be reviewed. It is recommended by the NHS and the World Health Organisation. SBAR will be used to frame clinical discussions and form the structure of the handover. This will aim to focus, clarify and avoid repetition of information shared between nursing shifts and the multi-disciplinary team. How will this priority be achieved? The Inpatient Unit Sister has recently undertaken her nursing degree and identified a need to improve nursing hand over on the unit through this academic work. A small group of staff will form a group to work on the SBAR tool. A pilot of the new tool will be undertaken over a 3 month period and evaluated. Consideration will also be given to the supportive and debriefing function of the handover for staff as the emotional demands on staff working with palliative care patients are well-documented. How will this priority be measured? The audit evaluation will be reviewed in terms of staff satisfaction, effectiveness and clarity of information and communication as a result of the nursing handover process. This will be shared with the senior team and members of the multi-disciplinary team prior to a decision being made regarding changes to the verbal handover process. 5 Aspiration 2 – Clinical Effectiveness To ensure that End of Life Care provided to patients at Teesside Hospice is patient centred, high quality and in accordance with the recent review of end of life care, ‘One Chance to get it Right’. Why choose this priority? An independent review of the Liverpool Care Pathway (LCP) conducted by Baroness Julia Neuberger and published in July 2013 concluded that the LCP should be phased out. Following this, the Leadership Alliance for the Care of the Dying People published ‘One Chance to Get it Right’. This sets out the approach to caring for dying people that healthcare organisations and staff should adopt in England. The approach focuses on achieving five priority areas for care: Recognition, Communication, Shared decisionmaking, Exploring other’s needs and Individualisation. Teesside Hospice prides itself on delivering individualised, patient centred, high quality end of life care and as a result we want to be sure we are achieving this. How will this be achieved? We have developed a new patient centred, individualised care plan (Assessment, Care and Treatment in the last days of life – ACT), to be used for patients who we recognise may die within the next few days or hours. The plan of care is individual to each patient, involving the patient themselves and those identified as being important to them e.g. family, carers. It has been developed using the 5 priorities of care at its core. The ACT document is currently being piloted. During the pilot all staff are encouraged to feedback their thoughts and comments regarding their experience of using the new care plan. How will this be measured? An audit tool has been created with criteria developed from the ‘5 Priority Areas’ from the Leadership Alliance for Care of Dying People’s report ‘One Chance to get it Right’. A retrospective audit has taken place looking at documentation prior to the introduction of the ACT document and also an initial prospective re-audit to assess changes in documentation and care resulting from the use of our new ACT care plan has been undertaken. Ongoing evaluation and review continues and a further audit to complete the audit cycle will take place. A report on the pilot including audit results and staff feedback regarding end of life care and the documentation of this will be completed. We plan to have End of Life Care as one of the topics for our ‘Awareness Education Program’ in the coming months when results of the pilot can be cascaded to staff. Feedback from bereaved carers continues to be another important way for us to monitor the quality of end of life care and the experience of relatives of patients who have died at the hospice. 6 Aspiration 3 – Patient Experience Increase the social interaction of Inpatient Unit and Day Hospice patients and families. Why choose it as a priority? We strive to continually improve the standard of care for patients and their families by listening to the stories of their experiences. We also receive feedback through surveys, suggestion boxes and user forums. It was identified that a dedicated communal area within the Inpatient Unit was needed for patients and their families. Previously we had a small family room but this was not situated near the Inpatient Unit and therefore was used infrequently. Some examples of the feedback were:“We found the family room rather unwelcoming – blinds drawn, poor décor and lighting, no flowers or tissues”. “Better facilities for relatives needed i.e. extra family room, beds to sleep in, microwave etc.” “Increased awareness of family room and its purpose”. Also during a User Forum one lady recalled how she found it difficult to eat and drink in her partner’s room when he was no longer able to eat or drink and would have loved to have a place to go with all the family. “A room that families can use as a slightly more social element where families can escape for a little bit …..have a more open access where families can go in and sit and have a cup of coffee or a little chat.” “I felt I was isolated, no one to discuss things with” As part of the capital improvement bid funded jointly by the Department of Health and Teesside Hospice it was decided that the provision of a new family room for patients and families with bathroom and kitchen / dining facilities was a priority and became an important focus of the bid. The aim of this room was to: Increase social interaction between patients and families. Avoid social isolation of patients. Create an area where families can spend time together. Encourage socialisation between Day Hospice and Inpatient Unit patients How will this priority be achieved? The new family room has now been built and named the Rowan Room by patients and significant progress has been made towards achieving its aims. Further work is still required to ensure it is used to its full potential and the future plans include:7 New activity projects Joint IPU and Day Hospice activity sessions Families will be encouraged to use the room on an evening or weekend to have family time together away from the patient bedroom Encourage patients to spend time out of their room where possible to socialise with other patients i.e. meal times, morning coffee and cake etc. How will this priority be measured? This priority will be measured by reviewing the Patient Satisfaction Surveys and having it as the subject of a User Forum session to ask patients and carers whether they felt the room was being used to its full potential and if they were using the facilities. Those involved in specific planned activity sessions in the Rowan Room will be asked to give their feedback through an evaluation form. Staff will also be surveyed as to the use of the room by patients and family and to comment on the effect of having this facility. 2.3 Statements of Assurance from the Board - (Formal statements required by the Department of Health) The following are statements under various headings that all providers of NHS healthcare services must include in their Quality Account, even though many of the statements are not directly applicable to Teesside Hospice. a. Review of Services During the reporting period 2014/15 Teesside Hospice provided the following Specialist Palliative Care Services to the NHS: • • • • • Inpatient Unit – 10 beds Day Hospice Services Specialist Community Lymphoedema Services Medical Out Patient Services Adult and Children’s Bereavement Counselling Service 8 Teesside Hospice has reviewed all the data available to us in terms of the quality of care delivered. Activity data is provided to the Commissioners of these services on a quarterly basis and is reviewed at quarterly meetings with the Commissioner, Chief Executive (CE) and Director of Patient Services (DPS). The income generated by the NHS services reviewed by this quality account represents 32% of the total income generated from the provision of NHS services by Teesside Hospice for 2014/15. This 32% represents only part of the funding required to provide services at Teesside Hospice. The remaining 68% of income is generated through fundraising, charity shops income, lottery activity and investment income and we are dependent on the generosity of the local community in sustaining this income. The NHS contract means that all services delivered by Teesside Hospice are partly funded by the NHS and partly funded from charitable funds. b. Participation in Clinical Audit During 2014/15, there were no national clinical audits and no national confidential enquiries covering NHS services relating to palliative care. Therefore, during that period Teesside Hospice was not eligible to participate in any national clinical audits and national confidential enquiries. c. Research The number of patients receiving NHS services provided by Teesside Hospice in 2014/15 that were recruited during that period to participate in research approved by a research ethics committee was ZERO. There was no appropriate, national, ethically approved research studies in palliative care in which we could participate. d. Commissioning for Quality and Innovation (CQuIN) Payment Framework A proportion of Teesside Hospice’s NHS income in 2014/15 was conditional on achieving quality improvement and innovation goals agreed between Teesside Hospice and the commissioning CCG. The improvement conditions that were agreed were: • NHS Safety Thermometer - collecting data and demonstrating a reduction in the incidence of pressure ulcers, falls and urinary infection in patients with a catheter 9 • Undertaking a local patient experience survey and implementing actions resulting from the survey and including Friends and Family Test in the survey. The two CQuIN measures represent 2.5% of the overall contract value with both being successfully achieved with full payment. e. The Care Quality Commission Teesside Hospice is required to register with the Care Quality Commission and its current registration status is for the following regulated activities: • • • Treatment of disease, disorder or injury Diagnostic and screening procedures Transport services, triage and medical advice provided remotely Teesside Hospice is registered with the following conditions: • • • Services are provided for people over 18 years old The maximum of 10 patients may be accommodated overnight Notification in writing must be provided to the Care Quality Commission at least one month prior to providing treatment or services not detailed in the Statement of Purpose The last unannounced routine inspection of Teesside Hospice took place on 6th January 2014. The report on this inspection did not identify any areas where remedial action was required, nor were any recommendations or suggestions made. Teesside Hospice has not participated in any special reviews or investigations by the Care Quality Commission in 2014/15. f. Data Quality Teesside Hospice did not submit records during 2014/15 to the Secondary Users service for inclusion in the Hospital Episode Statistics which are included in the latest published data. Teesside Hospice is not eligible to participate in the scheme. g. Information Governance Toolkit attainment levels Teesside Hospice has an information sharing agreement with South Tees NHS Trust, whereby we have a remote access provision to patient IT systems. We also store patient information on our own network. All organisations that have either direct or indirect access to Health and Social Care Information Centre (HSCIC) Services must complete an annual Information Governance Toolkit Assessment. It is in a selfassessment format. We have successfully submitted our voluntary sector organisation self-assessment for 2014/15 achieving a pass level 2 on all applicable requirements. We have developed a completion plan for next year which aims to move to level 3 (maximum score) where feasible. h. Clinical Coding Error Rate Teesside Hospice was not subject to the ‘Payment by Results’ clinical coding audit by the Audit Commission during 2014/15. 10 Part 3 Review of Quality Performance The quality improvements outlined in the 2014/15 Quality Account have all been satisfactorily achieved, however, in all areas continuous improvement is planned. The Board of Trustees has been in full support of the improvement areas over the past year and has received regular reports on progress. Services users have been consulted with where appropriate. 3.1 Improvement Priority 1 (Patient Safety) To reduce the number of patient falls Falls are identified, as a significant problem in the elderly and frail patient populations. Therefore, as the number of older adults with cancer increases in the future, the prevention of falls in this population is even more critical. Reduction of falls is an ongoing priority for THCF reflecting the importance that the organisation places on this. THCF has reviewed the process we follow regarding falls. As a result we have introduced an adapted version of the Hospice UK tool. This is to ensure that an evidence-based and more effective process is followed in the management and prevention of falls in the Inpatient Unit and Day Hospice care setting. Data collected by THCF regarding incidents of falls has demonstrated a reduction in falls since the introduction of the new tool however, we have only collected this data since January 2014 and more data will need to be collated before we can attribute this improvement to the new tool. However, a recent audit of this tool has demonstrated a continued improvement in the assessment of patients at risk and the effectiveness of prevention. The tool has supported the nursing team in using the information gathered to introduce preventative measures at the earliest opportunity. The tool helps the nursing team to identify the appropriate intervention such as the new sensor pads on either patient’s beds or chairs and to consider the need for hourly monitoring of patients. Falls are one of the 3 safety indicators that the hospice UK collect data on, to support hospices across the UK to benchmark their practice. THCF have been part of this pilot and this is now an ongoing process, the data is collated giving a national and hospice category average which has demonstrated excellent results for THCF. Furthermore, we have introduced a comprehensive care plan which identifies key fall risk factors and have included the incident report form as part of the process. This ensures that the circumstances of any fall are described completely and meaningfully in order to analyse and use reports of falls to learn about contributing factors. 3.2 Improvement Priority 2 (Clinical Effectiveness) To increase accessibility and awareness of the acupuncture service and its benefits to patients in the holistic management of symptoms, within the Day Care and Inpatient services ensuring that the delivery of acupuncture to patients is beneficial and improves their quality of life. The acupuncture service at THCF now has 2 qualified practitioners, who work across the Day Hospice service and Inpatient services which allows for greater accessibility. 11 The Medical Practitioner has been able to promote the use of acupuncture in the Inpatient Unit by educating staff on the symptoms/conditions which can be treated by acupuncture and also by directly identifying patients who may benefit. Having 2 practitioners has also allowed for a cross-over of patients who can then be followed up within each setting. The annual Acupuncture Audit was undertaken in September 2014, using statistical analysis of patient uptake and the MYCAW (Measure Yourself Concerns and Wellbeing) assessment tool to measure the effectiveness of treatments on symptoms and well-being. The audit demonstrated that there has been a 21% increase in the number of patients treated across both services, with a 41% increase in patients treated within the Inpatient unit. The number of treatments given across the services increased by 38%. The MYCAW score for symptoms, measured that there was an average change in symptoms of -2.57, this correlates with an improvement in symptoms (a change of 1.5 or more is considered to be significant). The range of change in symptoms was from 0 to -4. The average change in Well-being score was -1.83. It is important to take into consideration that many of the patients treated had advanced disease and the acupuncture successfully treated specific symptoms but other problems arose which impaired general well-being. The results of the audit have been shared with the Medical and Nursing staff and to the Clinical Audit Group. 3.3 Improvement Priority 3 (Patient Experience) To improve the experience of Day Care Patients by introducing a new individualised programme of support A six week programme of support called the ‘Be in Charge’ (BIC) group was piloted as an alternative to the traditional model of Day Hospice and was developed from the review of Day Hospice services that involved patients, carers and professionals. The programme was delivered by a multi-professional team and involved sessions such as anatomy of the lungs & breathing techniques; coping with sleep problems; fatigue & exercise tolerance; modifying your diet & food preparation; coping with anxiety to 12 patients. The programme provided education, information, practical advice and support to patients on ways to manage their own symptoms, education on new skills and coping strategies to help reduce and manage exacerbations and action to take in the event of sudden worsening of condition. 12 The BIC programme was delivered by a skilled workforce experienced in supporting patients with long term conditions and their varied and complex needs and more specifically experienced in identifying when patients are approaching end of life and in supporting discussions around patient’s priorities and preferences of care and death. The BIC group was well-designed and delivered a self-management programme which demonstrated improvements in clinical symptoms, improvement in attitudes and behaviours and improved quality of life. Evaluations forms were given to patients on the last session of the six week programme and results were collated and supplemented by qualitative information from patients at each of the 6 sessions. In total 11 completed evaluation forms were returned 92% return rate. All patients who attended also completed a Holistic Assessment Tool (HAT) prior to attending the group and afterwards to try and assess what benefit the group had made to their needs. The patient scored their concerns on a scale of 1-10 (10 meaning great distress). The average reduction in distress was -2.5 at the end of the session. Overall, the results were extremely positive identifying that the BIC group was a real success. Most patients found the sessions beneficial. The HAT identified that out of the 29 concerns identified by patients before the start of the group 23 had shown improvement by the end which is a remarkable achievement. A proposal has been put forward to the CCG for funding to continue this programme as an alternative model for new patients referred into the service. 3.4 2014/15 Performance a. What patients and families say about the services they receive We value the feedback we receive from patients and families as an important aspect of how we can identify issues, resolve problems and improve the quality of the care Teesside Hospice provides. As part of our commitment to ensuring patients and families have a voice we give a survey to all appropriate patients discharged from the Inpatient Unit and send a survey to the family of patients who die in our care. A patient survey is also given to all Day Hospice and Lymphoedema Service patients. The results of these surveys are collated and shared with Trustees, staff/volunteers and patients/carers by PowerPoint or poster presentations. The surveys are anonymous but where concerns are raised and people identify themselves this is followed up in a timely manner to resolve the issue and to learn from what has gone wrong. The Bereavement Counselling service gives all clients an evaluation sheet and this was reported in September 2014. Since this report all new referrals are now discussed at a weekly assessment meeting and appointments given which has resulted in clients being seen more promptly. 13 The lymphoedema team undertook a 3 monthly analysis of a questionnaire given to all discharged patients in that period and this was reported in Feb 2014. This has resulted in all patients being sent a printed map of how to get to the Hospice in their appointment letters and the plan to put a google map link on to our website. The In Patient (IPU) & Day Hospice Survey - Summary of Results The annual IPU Satisfaction Survey from April 2014 – March 2015 had a response rate of 49% (75 out of 152 patients). Some of the key findings from this report were: 100% patients stated they were always or most of the time treated with respect. 100% patients felt their privacy was always or most of the time respected. 100% patients were always or most of the time satisfied with the response when they needed to ask for assistance. 98% patients felt supported in making decisions about their care either always or most of the time. 97% patients felt very satisfied or satisfied with their involvement in planning their care. 100% patients stated staff introduced themselves either always or most of the time. 100% patients stated staff always or most of the time explained what they were doing prior to any procedure. 97% patients felt they always or most of the time understood explanations given to them regarding their treatment and care. 100% patients stated staff always or most of the time made an effort to meet their individual wishes. 97% patients felt the general environment and surroundings were either excellent or good. 86% patients stated they were offered verbal or written feedback following MDT meeting Patients are invited to “Comment on anything you were particularly happy with or unhappy with giving an example if possible, as this will help to improve our service for patients in the future”. A selection of responses are included below: All staff were caring, they helped me improve. I was very happy with the care I received and couldn't ask for better care. From day one my mind was put at ease by the professional attitude of all staff members from the junior to senior. Nursing staff give 100% to the patients and will go out of their way to help with anything. As ever, the Hospice and all their staff were beyond reproach. The Hospice are a beacon of professionalism, their care and commitment. Both myself and my family are indebted to you all. 14 I have been looking for something to criticise but I've been completely satisfied so I'm afraid I can't offer up any new ideas to improve things. Sorry. The staff in every discipline have been amazing. I cannot speak highly enough of the care me and my family have received. Unhappy with wearing a sling in the bath/shower but did ask about this and was removed on request. Every member of staff have time to listen and are trying hard to get the correct pain relief. I feel *** is safe when I'm not there especially during the night when the staff put a sensor in his room so they know if he is moving around with pain and can't reach his buzzer. From the cleaners, volunteers, nurses, doctors, physio everyone who works in this Hospice including main people I forgot, cooks 100% wonderful. The Day Hospice Satisfaction Survey – Summary of Results The survey was undertaken from April 2014 – March 2015 and had a response rate of 71% (79 out of 111 patients). Some of the key findings from this report are as follows: 100% patients stated they were always or most of the time treated with respect. 100% patients felt their privacy was always or most of the time respected. 100% patients stated staff always or most of the time made an effort to meet their individual wishes. 100% patients felt the general environment and surroundings were either excellent or good. 100% patients felt very satisfied or satisfied with their involvement in planning their care. 100% patients stated staff always or most of the time explained what they were doing prior to any procedure. 100% patients rated helpfulness of volunteers as either excellent or good. 100% patients rated standard of Nursing Care as either excellent or good. 100% patients felt the standard of the room furnishings / comfort were either excellent or good. 100% patients felt the cleanliness of the Hospice was either excellent or good. 100% patients felt the comfort of hospice transport was either excellent or good. 100% patients felt the punctuality of hospice drivers was either excellent or good. 100% patients felt they were able to ask questions about their care either always or most of the time. 99% patients felt they always or most of the time understood explanations given to them regarding their treatment and care. 99% patients rated helpfulness of reception staff as either excellent or good. 99% patients rated the standard of Medical Care and emotional support as either excellent or good. Patients are invited to “Comment on anything you were particularly happy with or unhappy with giving an example if possible, as this will help to improve our service for patients in the future”. A selection of responses are included below: 15 I think the nurses and volunteers are really nice and friendly and always polite The initial introduction to the group settled any miss givings I held about joining the group. The welcome you get when you first arrive. Had totally different opinion of hospice before I came. Have settled down to love coming Relieved at how soon felt welcome and accepted in the community by staff, volunteers and members. I noticed that each person made a point of showing acceptance to a new member. First impression when walking into the building was the feeling of comfort and relaxing atmosphere. The staff and volunteers are warm and welcoming and will do anything that is asked of them with pleasure. Support and help with anything. We, as I mean me had a few black moods, but I now look forward to Monday’s, from being picked up by … and … in ambulance to going back home. It is a good day and will be sorry when comes to an end. Special mentions in dispatches to many. The staff and volunteers made my weekly day visit very happy. I am just sorry my 6 weeks has expired. It has flown by and something I will miss is the staff who made my visits so enjoyable. The Bereaved Carers Survey- Summary of Results The annual Bereaved Carers survey from (Jan 2014 – Dec 2014) had a response rate 49% (37 out of 75 sent out to carers). From previous research, bereaved carers were found to be the most open to providing feedback on hospice facilities and services. Therefore, a questionnaire was devised with user involvement as a way of evaluating services and increasing levels of user involvement in the future. Questionnaires are posted out 8 weeks following the death of the patient – this was the advisory period given by members of the focus group. Some of the key findings from this report are: 100% bereaved carers stated they would definitely recommend this service to a member of their family or friends. 100% bereaved carers rated standard of Medical Care was excellent. 100% bereaved carers rated standard of Nursing Care, emotional support, Physiotherapy, Dietetic Support, Chaplaincy / Spiritual Care, Complimentary Therapies, Hairdressing, food service/menu choice, room furnishing / comfort and room cleaning as either excellent or good. 100% bereaved carers rated helpfulness of reception staff and volunteers as either excellent or good. 97% bereaved carers rated the standard of catering as either excellent or good. 16 95% bereaved carers rated standard of Occupational Therapy as either excellent or good. 92% bereaved carers rated standard of Social Work Support was either excellent or good. Those completing the survey were also asked “What was the best thing about Teesside Hospice” and “Have you any thoughts that might help other patients and families using the hospice in the future?” Numerous comments were received and a selection are detailed below. “Amount of time given to my mother by the medical team. Truly amazing the lengths & breadths they went to in adjusting the medications to alleviate her symptoms. The presentation, quality & variety of food, excellent, exemplary - lovely the way the food was brought at a pace to suit my mother not all at once – excellent. Delightful when some of the cooks came to visit Mum. Finally being allowed the total freedom to be and care for my mum which she expressly wanted me to do. I am so grateful to have been able to do all that I did. Her named nurse was so understanding and caring towards me”. “Caring. Calm and peaceful environment. We much appreciated kindness at a difficult time”. “Every member of staff are wonderful! Everyone took the time to get to know my Dad and myself and support us and nothing was too much trouble. They truly are amazing people and thank you so much for everything”. “Everyone is very caring. Nothing was too hard to try to meet my wife's needs and everything was done to give her the best quality of life whilst in the Hospice. Everything was explained clearly to myself and I was never left in the dark as to what was happening to my wife’s care plan from day to day.” ……. truly got us through this life changing time and we will be forever grateful to them. Day Care fantastic … in inpatients gave me the strength to say my goodbye to Dad and the whole experience was wonderful, peaceful, dignified. ….chef most respectful kind man” “The privacy and respect my husband received during the short stay he had with you was very touching for myself and my daughter. His last moments he had were painfully sad but left this world with all our love in his heart”. 17 Key projects / outcomes In the last 12 months the CGC and its sub groups have been actively working on a number of projects and initiatives: End of the Liverpool Care Pathway (LCP) The senior clinical team led a project to ensure that we have taken account of the recommendations of the Neuberger Review, More Care Less Pathway. Whilst we are very confident in the quality of end of life care given at Teesside Hospice we need to ensure that appropriate documentation supports this delivery and to that end we drafted an ‘Assessment, Care and Treatment in the Last Days of Life’ document. This was introduced prior to the deadline date of 1st July for the phasing out of the LCP nationally. The Clinical Audit Group The Audit Group have met 11 times from April 2014 to March 2015. It has been well attended within that time with regular attendance from the Audit & Education Facilitator, Consultant, Associate Specialist, Director of Patient services, Clinical Team Leader, IPU & Day Hospice Sisters, Medical Secretary and a representative from Bereavement Counselling, AHP team and nursing staff. We are hoping to get a regular representative from Lymphoedema this year. The audit group facilitated the usual audit programme but there were a number of new audits undertaken this year. These included the clinical waste audit, a COSHH audit including every department in the hospice, new administration of medicines audit of the whole organisation, a complete audit cycle for end of life care, Transmucosal Fentanyl use, review of the use of analgesia in neuropathic pain and an evaluation of the Be in Charge pilot group. The creation of an MDT audit is underway. The audit group facilitated a large project creating new patient leaflets for Hospice specific information. This included the creation of a new Welcome Pack for all Inpatients and a bereavement pack given to all families whose loved one died at the Hospice. This project finished April/May 2014 but there is now a system in place to ensure yearly review of all these leaflets. The audit group completed the patient experience report for 2014 – 2015 and ensured quarterly information for contract local quality requirements were undertaken each quarter throughout the year. Staff Support / Clinical Supervision Following the summary of the staff support focus groups and reflective practice session, an action plan was drawn up in February 2014. As it was evident that this was not going to be a ‘one size fits all’ solution, a variety of projects were recommended and implemented. Both Day Care and IPU have introduced the opportunity for staff to debrief and discuss complex situations on a regular basis as part of handover and end of day de-brief. If there are times when an objective facilitator is required, it was suggested Sarah Ramsden, Chaplain would be appropriate. It was also suggested to have a regular opportunity after the weekly MDT for staff to remember everyone 18 who had died and also be given the opportunity to reflect on their care and any issues that staff wanted to raise. Regular reflective practice sessions are held which are open to all staff who can bring issues pertinent to their work. Further particular needs pertinent to differing departments were to be identified on an individual basis at appraisal by line managers throughout the organisation, and as a result regular Administration meetings have been implemented. A weekly 15 minute ‘Breathing Space’ was piloted from January 2015 until March 2015 by the Chaplain and Head of Counselling. This has recently been reviewed as a very positive form of support and it is intended for it to continue. A leaflet has been produced by our Chaplain for all staff highlighting all the support which is available at the hospice. Staff receive a lot of informal support from colleagues and line managers and the subject of more formal supervision is to be reviewed in the future if necessary. Enhancing the environment for patients with dementia and cognitive impairment THCF applied for a grant in October 2013 and were successful in obtaining £10,000. The particular focus for the Rank Foundation Grant is to enhance the environment for patients with dementia and cognitive impairment. The aim was to create a calming environment by making a number of changes. The existing nurse call system which is currently an audible alarm was changed to a non-audible system; the bedrooms were redecorated in toned down colours and signage was reviewed and improved. Information technology for patients – A grant application was submitted to the Towergate Charitable Foundation to improve communication for patients with verbal impairment and also access to information for patients attending the Day Hospice and Inpatient Unit. As a result we have purchased a Lite Writer and 2 more iPad’s. IMProVE – End of Life Commissioning Group THCF submitted applications for 4 projects to be funded. These are: o BIC - Be in Charge Day Care project o Out Patient Cognitive Behavioral Therapy Service o C4C - Carers Group o ABC - Anticipatory Bereavement Counselling These submissions were supported by the Board of Trustees and to date we are awaiting the outcome. 19 The Board of Trustees Statement The Board of Trustees is fully committed to the provision of a high quality service at Teesside Hospice. The Hospice has a well-established clinical and corporate governance structure, with members of the Board playing an active part in ensuring that Teesside Hospice fulfils its mission, according to its charitable intentions and in ensuring that the organisation remains responsible and compliant in all areas of CQC registration, health and safety, employment law and other relevant legislation. This Quality Account was approved 16th June 2015 Signed Professor Brian Footitt OBE, Chairman, Board of Trustees of Teesside Hospice Care Foundation Healthwatch Middlesbrough Catalyst House 27 Yarm Road Stockton on Tees TS18 3NJ Tel 01642 688312 healthwatchstockton@pcp.uk.net www.healthwatchstocktonontees.co.uk Click here to enter text. Mr Brian Footitt OBE Teesside Hospice 1 Northgate Road, Linthorpe, Middlesbrough TS5 5NW 22nd June 2015 Dear Brian, Teesside Hospice Quality Account 2014/15 Thank you for your email dated 17th June 2015, providing the opportunity for Healthwatch Middlesbrough to make comment on Teesside Hospice Quality Account 2014/15. 20 The Quality Account was circulated to the Healthwatch Middlesbrough Executive Board for comments. The chair of Healthwatch Middlesbrough, board members and staff were all offered the opportunity to comment and feedback. Overall, Healthwatch Middlesbrough welcomes the opportunity to respond to the Quality Account and would hope it will continue to reflect the views the residents. It is clear from the report that you value the opinions of your patients and carers and we applaud the active way in which you involve them in helping shape future services and improvements for example the redecoration and improvements of the family room. Yours sincerely Paul Crawshaw Healthwatch Middlesbrough Chair Statement from NHS South Tees Clinical Commissioning Group (ST CCG) for the Teesside Hospice Quality Account 2014/15. The CCG welcomes the opportunity to review and comment on the Quality Account for Teesside Hospice for 2014/15 and would like to offer the following commentary. NHS South Tees Clinical Commissioning Group (CCG) is committed to commissioning high quality services from Teesside Hospice and take seriously their responsibility to ensure that patients’ needs are met by the provision of safe, high quality services and that the views and expectations of patients and the public are listened to and acted upon. Overall the CCG feels that the report is well written and presented in a meaningful way for both stakeholders and users and provides an accurate representation of the services delivered during 2014/15 within the Hospice. We recognise the significant work that the Hospice has undertaken to drive quality improvements throughout the year, particularly in relation to reducing patient falls, with a focus on prevention, risk management and comprehensive care planning. The benefits expressed by patients, through the introduction of a pilot individualised programme of support, demonstrates the Hospice’s commitment to test innovative and new ways of improving patient experience. The CCG supports the priorities for 2015/16, specifically the focus on improving the quality of patient handovers, through the adoption of an evidence based tool. We also commend the commitment to delivering the expectations of ‘One Chance to Get it Right’, in relation to end of life care; building on existing practice which positively promotes and is underpinned by individualised, patient centred approaches. The CCG looks forward to continuing to work in partnership with the Hospice to assure the quality of services commissioned in 2015/16. Amanda Hume Chief Officer NHS South Tees Clinical Commissioning Group 21 22