1 Introduction As Chair of Trustees of St Catherine’s Hospice, it gives me great pleasure to introduce this year's Quality Account. This has been my first full year as Chair and it has been a year of significant change at St Catherine's Hospice, with the appointment of a new Chief Executive, Giles Tomsett and Director of Care Services, Penny Jones. St Catherine's Hospice has always enjoyed an excellent reputation locally as a provider of high quality end of life care services and we continue to seek to strengthen our reach and range of services building on our mission to lead the community in support of all those facing death and bereavement. Like many other organisations however, while we receive fantastic affirmation from our patients and their families about our care, we know that we can do more to truly provide assurance that ALL facets of our service and our support arrangements are genuinely patient-centred and fully grounded in enabling us to be the organisation that we aspire to be. To make this more robust, we have made a significant investment into demonstrating our commitment to quality 'from ward to board' this year. This has included a comprehensive review of governance across the organisation, and the setting up of four new board committees to scrutinise various aspects from clinical quality and safety to resources, remuneration and board development. At the same time, I am delighted to report that the Senior Management Team has made a commitment to introduce a hospice wide, externally accredited Quality Management System and has appointed a Quality and Information Manager to co-ordinate the quality agenda across all aspects of the hospice. Significant progress has been made with respect to gathering feedback from staff and service users in a more systematic way, and using this to inform plans and service design. It was fantastic for the Board of Trustees to hear the 'patient voice' when the new Service User Engagement Coordinator fed back the initial results of our new Friends and Family Test. I am also delighted to report that St Catherine's Hospice maintained its status as an Investors in People accredited organisation following external re-assessment in March. We look forward to much more in 2015-16 and in strengthening the role of our over 800 volunteers who underpin what we do each and every day. It is down to the dedication of our staff and volunteers that we ensure our patients and their families get the best care that they deserve at this difficult time and we are continuing to invest in building their skills to strive constantly for excellence. This report is a reflection of the journey we are on to provide more and deeper evidence that the experiences of patients and their families are the best they can be. We are committed to continuous improvement and the steps we have taken this year reflect the feedback from patients and their families who are at the centre of everything we do. I hope the information presented in the Quality Account gives you a sense of the organisation and its dedication to its role in end of life care. Simon Turpitt Chair of Trustees 2 Part One - Report on 2014/15 Improvements We identified a number of quality improvements to achieve in 2014/15. Here we report on the progress we have made in these areas. Introduction of new governance structures, processes and controls Following a comprehensive review involving trustees and the leadership team, a new governance structure for the Hospice has been established. Four new board groups have been set up including one that has specific responsibility for scrutinising quality. This is supported by a Quality & Safety Committee, which has a membership of trustees and staff. This committee is responsible for developing and delivering an integrated quality, safety and risk management programme for the whole organisation, and for providing assurance to the Board that high standards of care are provided by the hospice at all times. The following groups have been set up as part of the new governance framework, and report monthly to the Quality & Safety Committee in order to provide pan hospice reporting on all quality matters: Information Governance Group - to ensure the Hospice has effective policies and management arrangements covering all aspects of Information Governance in line with current legislation, NHS guidance and professional codes of practice Clinical Leads Group - to advance clinical practice and ensure a consistent approach to clinical care and management across all Hospice services Medicines Management Group - to ensure that medicines are managed safely, securely and cost-effectively, and in accordance with legal requirements, local guidance and best practice Health & Safety Group - to establish and maintain standards of health, safety and welfare in keeping with legal requirements and in accordance with the organisation policy Research Group - to enable and promote the Hospice to be a 'research active hospice', ensuring any research undertaken is in line with best practice, and promotes evidencebased practice in all clinical services. Clinical Audit Group - to inspire, motivate and support staff to participate in clinical audit, contributing to improved patient safety and clinical effectiveness. Learning & Development Group - to ensure the Hospice identifies and meets the learning and development needs of staff, to create and maintain a skilled and effective workforce. Specific quality initiatives that have been undertaken this year include: the development and roll out of a comprehensive pan-organisation complaints policy and procedure, that ensures all complaints and concerns are handled in a prompt, professional and consistent manner; and that learning from these events are shared and used to identify and embed improvements. the introduction of a web-based software application to improve management of incidents. 3 Implementation of 'Patient Led Assessment of Care Environment' assessments This year we invited a team of assessors (which included service users) to carry out our first PLACE assessment, a national initiative to evidence patients are treated with care, compassion and dignity, in a clean and safe environment. The results showed that we meet a good standard. There were a number of suggestions for further improvements which have been actioned. We will be repeating the PLACE assessment in 2015 as part of our commitment to continuous improvement and service user involvement. Strengthening our involvement in research Last year we recognised the need to establish a more formal research culture at St Catherine's Hospice. During this year we have: - established a research policy and procedures - nominated a lead for research - created a research nurse post - participated in multiple research studies (eg SEED - Supporting Excellence in End of life care in Dementia) This is helping St Catherine's Hospice to follow best practice and ensure our care is evidence-based. Development of an outcomes and evidence framework Following the development of a comprehensive set of outcomes for St Catherine's Hospice in 2014, we have started to use a range of measures and tools to enable us to define and assess the quality and impact of our services. These include: - VOICES questionnaire (to collect bereaved people's views on the quality of care provided to a friend or relative at the end of life) - Friends & Family Test (real time feedback on quality of services) - Well-being Star (to define and assess progress against patients' own wellbeing goals). Create new post of Quality & Information Manager The Quality & Information Manager post was created in June 2014 and is a pan-hospice, non-clinical role. So far, improvements have been implemented in complaints and incident management, service user engagement, information governance, and in data management and quality. Implementation of a Hub In May 2014 the pilot of a nurse lead Triage service commenced as the precursor to the development of an integrated central service hub providing a single point of contact for all incoming calls from patients, carers and healthcare professionals. The Triage service has become well established and now over 2500 inbound calls are received each month. The service is to be expanded in 2015 into a Care Co-ordination Centre and the range of information, and advice services provided by telephone will also be reviewed in order to provide more holistic care to a more diverse patient group including the frail elderly. Hospice website re-design Work is progressing on this project and the new website will offer more interactive functionality and ensure better communication with all our stakeholders. We have extended the timeframe for completion to 2015/16. This is to ensure the website supports our recent service redesign and to allow for a coordinated launch with our new brand. 4 Part Two - Priorities for Improvement 2015/16 St Catherine's Hospice is committed to the delivery of high quality care and has identified an ambitious programme of work during 2015/16 to deliver improvements across all areas of the Hospice. Driving this will be the development of a pan hospice quality management system. 5 Part Three - Partnerships & Collaboration At St Catherine's Hospice we recognise that integrated whole systems working is the best way to deliver excellent care for patients. In 2014 we have built more effective relationships through closer collaboration with a number of organisations locally and the following examples illustrate this: Our clinicians now work with palliative care colleagues at Surrey and Sussex Healthcare, our local acute hospital in Redhill. This has improved co-ordination of care and lead to increased opportunities for shared learning. Our Education team co-ordinated a bid with other local hospices to provide compassion training and were awarded the contract as preferred supplier by Health Education Kent, Surrey and Sussex. So far sessions have been delivered to 1500 people and further training will be provided in 2015. Our Dementia Working Group has developed a range of relationships with local organisations working to raise awareness and understanding of people with dementia and was highlighted by the Alzheimer’s Society through their national awards. We are proud to be members of the award winning Dementia Friendly Crawley initiative. We continue to work closely with our Clinical Commissioning Groups and are grateful for the support and collaboration they continue to offer St Catherine's Hospice: - NHS Coastal West Sussex CCG - NHS Crawley - NHS East Surrey CCG - NHS High Weald Lewes Havens CCG - NHS Horsham and Mid Sussex CCG - NHS Surrey Downs CCG We have valued the opportunity to work more closely with other hospices in our region, both to explore the potential for joint initiatives and to share and learn from each other's work. 6 Part Four - Monitoring Activity Figures submitted to the Minimum Dataset Project Hospice figures: 2013/14 In-patient Location before admission: from home from care home from hospital - acute from hospital - community Average length of stay (all patients) Completed stays - total discharged and deaths: Location after end of stay: died home care home hospital acute hospital - community 2014/15 260 3 123 1 13 days 387 244 8 115 4 14 days 371 249 110 23 4 1 234 108 25 2 1 Day Therapy: new patients total patients .. of which cancer/malignant diagnosis .. of which other diagnosis 138 197 166 31 167 235 187 48 Community: new patients total patients .. of which cancer/malignant diagnosis .. of which other diagnosis Deaths: at home at care home at hospice at community hospital at acute hospital other Length of care episode (ave) 1,199 1,827 1,424 399 1,080 368 292 216 13 188 3 162.8 days 1,248 1,837 1,376 456 1,117 329 366 200 27 185 10 159.4 days Patient and Family Support Team: total referrals new assessments total sessions delivered 731 532 2,540 7 701 485 3,074 8