Quality Account 2015 - 2016 Vision Statement Our vision is that every adult and child within our area can choose how and where they want to be cared for towards the end of life, knowing that they will receive high quality specialist care Charity No. 1140386 www.renniegrove.org 1 TABLE OF CONTENTS TITLE PAGE AND VISION STATEMENT CONTENTS PART 1 CHIEF EXECUTIVE AND MISSION STATEMENT PART 2 PRIORITIES FOR IMPROVEMENT AND STATEMENT OF ASSURANCES FROM THE BOARD PRIORITIES FOR IMPROVEMENT 2015/2016 REPORT ON PRIORITIES FOR IMPROVEMENT 2014/2015 STATEMENT OF ASSURANCE FROM THE BOARD 2a REVIEW OF SERVICES 2014/15 2b PARTICIPATION IN NATIONAL CLINICAL AUDIT 2c PARTICIPATION IN RESEARCH RESEARCH PROPOSAL 2014-15 2d CSNAT(Carers Support Needs Assessment Tool) 2014 UPDATE 2e USE OF THE CQUIN PAYMENT FRAMEWORK. 2f STATEMENT FROM THE CARE QUALITY COMMISSION 2g DATA QUALITY 2h CLINICAL CODING ERROR RATE PART 3 REVIEW OF QUALITY PERFORMANCE QUALITY MARKERS TABLES QUALITY AND AUDIT REPORT 2014/15 INFECTION CONTROL INFORMATION GOVERNANCE 2014-15 FEEDBACK FROM PATIENTS CARERS AND HEALTHCARE PROFESSIONALS STATEMENTS ENDORSING 2014/15 QUALITY ACCOUNT APPENDICES 1. Criteria applied to Prevention of Admissions 1a Overnight team Audit form 2. RGHC Audits/Surveys 2014/15 3. Key questions from Surveys H@H Patient and Carers Clinical Services at Grove House Paediatric survey (Pepper) Working party review 2014 Health Care Professional Survey Charity No. 1140386 www.renniegrove.org PAGE 1 2 3 4 5-7 8-10 11 12 12-13 13 13 14 14 14-15 16 16 17 17 18 18-19 19 20 21-23 24 25 26 27-31 27 28 29 30 30-32 2 Part 1: RENNIE GROVE HOSPICE CARE Chief Executive and Mission Statement Our Mission is: To offer excellent palliative and end-of-life care based around patients and their families both day and night. Our Values are based on: Excellence, collaboration, respect, dignity and professionalism. It gives me great pleasure to present the third Quality Account for Rennie Grove Hospice Care (RENNIE GROVE HOSPICE CARE) for 2015-2016. We welcome the opportunity to promote the high quality of the services we provide for our patients and carers and to demonstrate to all stakeholders our commitment to quality care. The patient is at the heart of all Rennie Grove Hospice Care and we endeavour to ensure that all our care is both patient centred and of the highest standard through clinical governance. In 2014/15 Rennie Grove Hospice Care Hospice at Home service cared for 1,627 patients, an increase of around 9% on the previous year. Over 2,000 patients and carers were seen by the wider Rennie Grove services and 534 were contacted by our Family Support Services. We provide our care at no cost to our patients and families thanks to the income generated by local fundraising, local retail and trading and a small contribution from the NHS. Our ability to offer community hospice services including hospice at home and day services is possible thanks to our dedicated staff and the commitment of over 1,500 volunteers. I am responsible for the preparation of this report and its contents. To the best of my knowledge, the information reported in this Quality Account is accurate and a fair representation of the quality of health care services we provide. Jennifer Provin Chief Executive Charity No. 1140386 www.renniegrove.org 3 Part 2: Priorities for improvement and statements of assurance from the Board Priorities for Improvement 2015-2016 The priorities for quality improvement we have identified for 2015/16 are set out below. These priorities have been identified in conjunction with staff, stakeholders and as far as possible by consulting our patient and carer group. The priorities we have selected will impact directly on each of the priority categories: Patient safety –The Introduction of McKinley syringe drivers across Buckinghamshire. Clinical effectiveness- An Evaluation of the night Service leading to a research proposal. Patient experience – The HCA role. Evaluation of the role and a Pilot project which looks at the role of the HCA, including reviewing need for complex respite, carer support and practical care. Charity No. 1140386 www.renniegrove.org 4 Priority One: Patient Safety (2015-16) In December 2010, The National Patient Safety Agency (NPSA) in the UK issued a Rapid Response Report regarding ambulatory syringe drivers. All Graseby syringe drivers were to be replaced by December 2015 due to errors in use, including the wrong rate of infusion caused by inaccurate measurement of fluid length or miscalculation or incorrect rate setting of the device. To ensure that all our clinical staff are trained in and competent to use the McKinley T34 syringe pump - being introduced in Buckinghamshire in 2015. CNS's are to access the Buckinghamshire Community Trust (BCT) Train the Trainer sessions and disseminate the training to RGHC staff. Continuous audit of training and the number of errors will be undertaken to monitor performance and patient safety. How was this identified as a priority? This is a national directive and subsequently a priority for the organisation. Herts trust changed to McKinley T34 in 2013 and since then we have recognised a risk within the organisation for staff working with 2 types of syringe drivers across the teams. We are now able to work in collaboration with BCT to provide consistency across the organisation. The key outcomes are to prevent errors associated with the new pumps and to reduce adverse drug incidents. How will priority two be achieved? Working with Florence Nightingale Hospice we will ensure all RGHC staff and community staff are trained and conversant in the new pump. Plans for train the trainer sessions by McKinley are underway. A user guide/procedure for the safe practice and use of the McKinley T34 syringe pump has been added to the RGHC Medicine and Syringe Pump Procedures and Guidelines 2013. How will progress be monitored and reported? Progress will be monitored through audit of training received and review of medication incidents reported. Staff will attend annual training updates on the McKinley T34 pump. Charity No. 1140386 www.renniegrove.org 5 Priority Two: Clinical Effectiveness (2015-16) Rennie Grove Hospice Care (RGHC), previously known as Iain Rennie Hospice at Home, has been a provider of Hospice at Home services for 30 years. The service provides 24 hour planned and responsive care to patients in the community. A review of the service was carried out in 2010 and a dedicated waking night shift was piloted for 3 months from November 2010. This progressed to a fully established waking night service to strengthen and maintain 24/7 service availability for patients. RGHC has written a research proposal and intends to win sufficient grants to undertake research into the evaluation of the hospice at home night service with a particular emphasis on the prevention of hospital admission during the night. How was this identified as a priority? Hospice at Home has been consistently well evaluated and the responsive 24/7 element has been especially highly evaluated by patients and carers. Recent commissioning priorities have highlighted the need to prevent unnecessary hospital admissions. There have been many previous attempts to positively identify incidences of prevention of admission to hospital but assessment is highly subjective. RGHC hopes to contribute to the evidence base through the development of a structured assessment which will be used to evaluate the effectiveness of the night service How will priority three be achieved? Each patient visit and intervention between 21.15 and 07.15 hours will be assessed using a structured assessment tool and the findings recorded on the Night Team Audit form. The form was adapted in August 2014 and updated in January 2015 with increased detail for complex symptoms. How will progress be monitored and reported? The information collated from the overnight audit forms will provide assessed and standardised information that can be evaluated and used as evidence for the planned research project. Identified prevention of admissions are reported on monthly and per CCG. (See Appendix 1, 1a page 24, 25.) Charity No. 1140386 www.renniegrove.org 6 Priority Three: Patient Experience (2015-16) Rennie Grove Hospice at Home teams have included Health Care Assistant (HCA) roles across some or all of the teams for a number of years. Securing additional funding from the Chiltern Clinical Commissioning Group in 2013-14 provided the opportunity to increase the numbers of HCA roles and for a pilot to be undertaken to review the role profile and associated competencies in order to maximise the impact on the service to patients. All Hospice at Home Adult teams now include HCAs. ‘The Health Care Assistant role will be developed to provide a broader range of support to patients and families improving the patient experience. The aim is to develop additional clinical skills related to patient care to further enhance the provision of Hospice at Home. These will include clinical observations, medications management and phlebotomy where the HCA is already competent. The HCA’s will work more cohesively as a team and independently, to ensure the range of needs for patients across the locality are met. This will be in addition to providing respite (which may be complex and responsive at times), personal care, wound care, emotional support and practical care for the patient and family.’ How was this identified as a priority? Ongoing increases in the number of referrals to the service has created the need to increase the capacity of the teams in an efficient and cost effective way, therefore it has been necessary to broaden the skill mix within the teams. Each of the HCA’s has brought a range of skills and experience to the positions, allowing us to explore the potential development of the role. The nursing teams are seeing the benefits of having an HCA allocated to their team and recognise the further potential for ongoing support. Access to other services in some areas of the community, (particularly personal care for people who are very near the end of life), is often difficult to obtain in a timely and consistent manner How will the priority be achieved and monitored. The HCA team will be supported by the Locality Nurse Managers and Professional Development department to develop a consistent and more cohesive approach to patient care. A coordinating role will exist within the HCA team to support the management and allocation of workload. A training program and competencies will be developed to ensure patients receive a consistent service from the team. Progress will be monitored through the number on patients on RGHC caseloads with associated HCA input. Referrals for HCA input will be recorded. HCA’s will have IPR processes for competency sign off. Team nurses will feed back through Line managers and team meeting processes. Charity No. 1140386 www.renniegrove.org 7 Report on Priorities for Improvement 2014-15 Priority One: Patient Safety N3 access remains a key strategic initiative as:-. Local NHS community teams are continuing to work towards a ‘paper light’ patient notes system. This will eventually be transferred to an electronic record which Rennie Grove will be expected to update directly. The Clinical Commissioning Groups (CCGs) have also been asking for some time that we share and input patient information within their data reporting structures and a centralised end of life patient register. Neither outcome will be possible without N3 access. During 2014 several unsuccessful attempts were made to resubmit the N3 application but all were rejected (for varying reasons). As a result the plan was scaled back to providing N3 access on a smaller group of specific PCs. This would be less accessible and therefore less useful but would at least enable the organisation to develop some understanding of the solution while utilising the system in some way. However this application was also rejected. Liaison with our Southern Commissioning support team has identified there may be an alternative technical solution but Rennie Grove require expert support to achieve N3 access. Rennie Grove believes it fulfils the security requirements and has shown its commitment to improve Information Governance practice on a number of levels. Significant resources have been dedicated to improving our level of compliance monitored by an Information Governance Committee and enforced by new organisational practices. Level 3 compliance (with the NHS Information Governance toolkit) was achieved in March 2015. Recent discussions with St Christopher’s and Pilgrims Hospices have confirmed the real value in direct access to Trust records such as Oncology, Pathology and Ambulance services, creating a more accurate and effective patient record and reducing admin time spent on correspondence and phone calls and improving patient care if only N3 access can be achieved. Charity No. 1140386 www.renniegrove.org 8 Priority Two: Clinical Effectiveness (2014-15) In order to identify the required essential skills to carry out the safe assessment, planning and delivery of specialist palliative care for patients being nursed in their own home it is necessary to undertake a Skills Needs Assessment across all levels of nursing staff. This is in response to the changing needs of patients and carers within the community and the changes to service provision across other agencies. A mandatory training needs analysis was completed for all clinical staff. The induction programme has been evaluated and reviewed taking into account our recruitment of Health Care Assistants to the organisation. Competencies around Medicine Management have been written and are being implemented with new staff to the organisation. Plans are in place to develop HCA competencies in line with KSF dimensions at IPR Twice yearly meetings with the Education Team and the LMNs have taken place to identify the staff who wish to undertake post graduate training, reviewing Personal Development Plans and course application requests informing budget planning. Clinical skills training has taken place in History taking and Assessment skills of the abdominal and respiratory system for 24 nurses by an external provider A collaborative education programme has been put together and will be delivered throughout the year by RGHC, Hospice of St Francis, Peace Hospice and Herts Community Trust. Additional equipment such as pulse Oximeters and additional training have been made available to nurses to extend their assessment skills. Charity No. 1140386 www.renniegrove.org 9 Priority Three: Patient Experience (2014-15) Working Closely with G.P. providers and other healthcare professionals in 2013, Grove House identified the need to redesign and restructure a new model of service provision in 2014-15. The aim was to provide a more flexible model of care to meet the changing needs in the community and to increase professional and self referral, creating the opportunity for improve access and increased use of the service for patients and families. The restructure of the existing Day Hospice, reducing the days from four to three, gave additional hours to create a ‘Drop In’ on a Tuesday from 9-1pm which is open to all. In addition Carer Support groups, Yoga, Tai Chi and Auricular Acupuncture Courses have been developed. An ‘Inspire’ group supporting patients with breathlessness on a more flexible basis has also been introduced Following the restructure there has been a marked increase in patients’ attendance, not only in the Day Hospice but also through the Drop In and in the classes/groups available. Patient evaluation of the new services has shown a positive response and clinical outcome benefits from those attending. To date there has been a 45% increase in attendances in the Day Services over the last 11 months and with 321 people using the Drop In service. The ‘Inspire’ group have continued to support patients with breathlessness both in the group sessions with peer support, education and gentle exercise and also via ‘virtual’ support when they are not well enough to attend the class and this has proved a very valuable service. In addition, collaborative working with external providers has led to the planned introduction of a ‘Caring with Confidence Course’ over 5 weeks every Monday from February and a planned workshop for patients in the Breast Clinic at St Albans Hospital where we already have close links. Charity No. 1140386 www.renniegrove.org 10 Statement of Assurance from the Board The following are statements that all providers must include in their Quality Account. Many of these statements are not directly applicable to specialist palliative care providers, and therefore explanations of what these statements mean are also given. 2a. Review of Services 2014/2015 In 2014/15 Rennie Grove Hospice Care’s provision of local specialist palliative care in the communities of Herts and Bucks included part funded; Hospice at Home Day Hospice Outpatient services to support and promote wellbeing Occupational Therapy Physiotherapy Home sitters Cancer Information Complementary Therapies Cancer the Next Step Family support Services, including bereavement support services and spiritual care The 3 CCG commissioning groups fund 14% of the total income generated with the remaining being generated through our fundraising, Retail and Trading (23 shops), Hospice Lottery activity and investments. Charity No. 1140386 www.renniegrove.org 11 2b. Participation in National Clinical Audit During 2014/15 and prior to this document, no national clinical audits or confidential enquiries covered NHS services provided by Rennie Grove Hospice Care. During that period Rennie Grove Hospice Care participated in no national clinical audits and no confidential enquiries of the national clinical audits and national confidential enquiries as it was not eligible to participate in any. The national clinical audits and national confidential enquiries that RENNIE GROVE HOSPICE CARE are eligible to participate in during 2014/15 are as follows: NONE. The national clinical audits and national confidential enquires that Rennie Grove Hospice Care participated in during 2014/15 are as follows: Not applicable The national clinical audits and national confidential enquires that RENNIE GROVE HOSPICE CARE participated in and for which data collection was completed during 2043/15 are listed below alongside the number of cases submitted to each audit or enquiry as a percentage of the number of registered cases required by the terms of that audit or enquiry. Not applicable The reports of 0 national clinical audits were reviewed by the provider in 2014/15. This is because there were no national clinical audits relevant to the work of RENNIE GROVE HOSPICE CARE. RENNIE GROVE HOSPICE CARE was not eligible in 2014/15 to participate in any national clinical audits or national confidential enquiries and therefore there is no information to submit. Charity No. 1140386 www.renniegrove.org 12 What this means: As a provider of specialist palliative care RENNIE GROVE HOSPICE CARE is not eligible to participate in any of the national clinical audits or national confidential enquires. This is because none of the 2014/15 audits or enquiries related to specialist palliative care. The Hospice will also not be eligible to take part in any national audit or confidential enquiry in 2015/16 for the same reason. 2c. Participation in Research The number of patients receiving NHS services provided or subcontracted by RENNIE GROVE HOSPICE CARE in 2014/15 that were recruited during that period to participate in research approved by a research ethics committee was NONE. A Research Proposal for 2014-15. Prevention of acute hospital admissions at night for patients approaching the end of their lives. Unlike most models of hospice care in the UK, Rennie Grove Hospice Care at night is provided by a dedicated team comprising of a palliative care nurse and health care assistant who respond to calls for assistance and visit patients in their own homes. Under the supervision of our Chairman Stephen Spiro (Professor of respiratory medicine) we ran a 6 month pilot study in 2014 using agreed criteria to assess the reasons for a night call and to judge whether our care prevented unnecessary admission to hospital. This showed that we prevented 59 hospital admissions at night over that period. Working with the Marie Curie Department of Palliative Care at University College London, we now plan to conduct a 2 year study. See Appendix page for key questions raised in the proposal. The hypothesis we are testing is that ‘Rennie Grove’s approach keeps people with end of life conditions at home and that we do this more cheaply and with higher levels of satisfaction than through admissions to acute hospitals’. The Rayne Foundation has kindly agreed to support this proposal (with a grant towards the costs of the project) and we anticipate that we will be making a start using lessons learned from the pilot to inform the next stage of the research during 2015. Charity No. 1140386 www.renniegrove.org 13 2d. CSNAT (Carers Support Needs Assessment Tool) 2014 Update During 2013 Rennie Grove Hospice Care participated in the implementation of the Carers Support Needs Assessment Tool (CSNAT). (CSNAT is an evidence-based direct measure of carer’s support needs in 14 domains and is suitable for both endof-life research and practice.) The research project was supported by Manchester and Cambridge Universities in partnership with the National Association for Hospice at Home. Two Rennie Grove hospice at home teams participated in the project which aimed at all carers having access to an assessment of their needs. The CSNAT tool enables nurses to complete a more comprehensive, structured assessment which leads to discussion around support needs imperative for shared action planning. This part of the study ended in November 2013. Since the end of the project Rennie Grove has provided training for all nursing teams including those working in the Day Hospice and has rolled out the tool to incorporate all Hospice at home teams. The tool is used or given to each carer at the first visit. At this point we have not audited the responses but plan to review its usage in 2015. The continued use of CSNAT in practice however demonstrates our commitment to assess the support needs of carers. 2e. Use of the CQUIN payment framework Up to 2.5% of RENNIE GROVE HOSPICE CARE income in 2015/16 is CQUIN dependant and conditional on achieving quality improvement and innovation goals agreed between RENNIE GROVE HOSPICE CARE and any person or body they entered into a contract, agreement or arrangement with for the provision of NHS services, through the Commissioning for Quality and Innovation payment framework. 2f. Statement from the Care Quality Commission RENNIE GROVE HOSPICE CARE is required to register with the Care Quality Commission and is currently registered to carry out the regulated activities: Treatment of disease, disorder or injury and personal Care. Charity No. 1140386 www.renniegrove.org 14 Statement of reasons The registration of the provider of these regulated activities is subject to a registered manager condition under Regulation 5 of the Care Quality Commission (Registration) Regulations 2009 These regulated activities may only be carried out from the following locations: Grove House Gillian King House Rennie House Waverley Road Three Households Unit 3 St. Albans Chalfont St. Giles Tring Industrial Estate Herts Bucks Tring AL3 5QX HP8 4LS Herts T 01494 877200 HP23 4JX T 01727 731000 T 01442 890222 The Care Quality Commission has not taken any enforcement action against RENNIE GROVE HOSPICE CARE during 2014/15. RENNIE GROVE HOSPICE CARE has not participated in any special reviews or investigations by the Care Quality Commission during 2014/15 but has not yet been inspected for 2014/15. Charity No. 1140386 www.renniegrove.org 15 2g. Data Quality Statement of relevance of Data Quality and actions to improve Data Quality. RENNIE GROVE HOSPICE CARE did not submit records during 2014/15 to the Secondary Users service for inclusion in the Hospital Episode Statistics which are included in the latest published data. Why is this? This is because RENNIE GROVE HOSPICE CARE is not eligible to participate in this scheme. However, in the absence of this we have this year worked to complete and submit the Information Governance toolkit to level 2 with a view to obtaining an N3 connection to connect with our NHS partners. With patients consent, we share data with other health professionals to support the care of patients in the community. An audit of the signing of patient consent forms occurs annually. Our data protection policy is reviewed and updated annually. 2g. Information governance toolkit attainment levels 2h. Clinical coding error rate RENNIE GROVE HOSPICE CARE was not subject to the Payment by results clinical coding audit during 2014/15 by the Audit Commission. This is because RENNIE GROVE HOSPICE CARE receives payment under a block contract and not through tariff and therefore clinical coding is not relevant. Charity No. 1140386 www.renniegrove.org 16 Part 3: Review of Quality Performance Quality Markers Tables RENNIE GROVE HOSPICE CARE continues to work on consolidating our data from the clinical, nursing and family support databases. Data is submitted to the CCGs and CQC quarterly and annually. We will present annual data returns for 2014-15 to the National Council for Palliative Care (NCPC) minimum data set which is the only information currently collected nationally on hospice activity. Quality Markers we have chosen to measure. Comparatives year on year In addition to the limited number of suitable quality measures in the national data set for palliative care and hospice at home, we have chosen to measure our performance against the following: Prevention of hospital admission Clinical Complaints Deaths At Home Patients Achieved Preferred Place of Care (PPC) (if wish expressed) Drug Errors Adverse Incidents (Prevention of hospital admission data is in it’s formative stages, pilot data suggests that 104 hospital admissions may have been prevented during 2014-5 see Appendix 1,1a for criteria pages 24, 25) INDICATOR April/Mar 13/14 Total number of complaints (clinical) 1 withdrawn April/Mar 14/15 0 The number of complaints completed 0 0 The number of complaints process ongoing 0 0 No. Patient Deaths at Home 613 680 Total number of deaths 881 977 INDICATOR April 2013/14 PPC 84% April 2014/15 Drug Errors 7 2 Adverse Incidents 15 10 Charity No. 1140386 www.renniegrove.org 17 Quality and Audit Report 2014/15 Audit is a way in which the organisation can learn and improve the delivery of its services, the outcome for patients and the experience they have. The Rennie Grove Hospice Care Quality Assurance Programme 2014-15 included a programme of Clinical and Non Clinical Audits. Progress on the action plans following audits undertaken is monitored through the Clinical Audit Group and reported to the Clinical Governance Committee and Trustees. Safeguarding of Vulnerable adults and the Section 11 audit (for Children) were completed to ensure that as an organisation we are monitoring our SOV process and adequately supporting staff with training as appropriate. An audit of our Human Resources (HR) department (using a tool adapted from the CQC Essential Standards assessment) demonstrated that we have adequate safe recruitment and workforce practices in place with an IPR process including Clinical Supervision and mentorship for all clinical staff.(as well as other educational opportunities such as Action workshops Clinical Nurse Specialist forums and, Journal Club.) Clinical staff are also involved in the audit processes. Link nurses from the Clinical Audit Group took part in reporting 2 consent form audits and the process of adapting consent form wording to inform tighter regulation in consent for patients who do not have capacity. The Grove House Day Hospice staff continued to use the SKIPP (St Christopher’s Index of patient priorities) Questionnaire. A short audit on the quality of life question continues to demonstrate that attendance at Day Hospice has a positive effect on patients’ quality of life and overall sense of wellbeing. The annual Audit of the Non Medical Prescribers supports non medical prescribing practice in line with Rennie Grove Procedure. All prescribers are following safe practice guidelines. Following the audit one change in practice was made – to retain unused/wasted scripts for audit purposes before shredding (in line New NHS Protect England guidance 2013). Prescribers now have an up to date British National Formulary (BNF) and access to the Palliative Care Formulary at every base. Charity No. 1140386 www.renniegrove.org 18 Infection Control. The Infection Control team have undertaken a number of audits over the last twelve months. At Grove House we have completed Laundry, Cleaning and Building Audits. Within Hospice at Home we have undertaken Hand hygiene, Sharps and Personal Protective Equipment Audits. The first Dress Code Audit (Hospice at Home) and Uniform Audit for Day Hospice nurses at Grove House have been completed this year. Education sessions where clinical staff have an opportunity to practice with the Globox have been introduced across the organisation, with five sessions scheduled for 2015, one of which is at the day hospice in Grove House. New staff also have Infection Control training as part of their induction, and non clinical staff including volunteers, receive our quarterly newsletter to keep them up to date on timely topics and changes to practice within the organisation. All staff also receive seasonal Infection Control updates via e-mail. Information Governance 2014-15 The Quality and Audit department has worked closely with the Information Governance Committee in the completion of the organisational requirements as noted in the N3 connection application. A number of requirements were designed and carried out by the audit team to support this process. These included a staff awareness questionnaire (based on the requirements of Data Protection Act), A short patient questionnaire was carried out (with a selection of hospice at home patients over the telephone, patients at the day hospice and electronically by the User involvement group) to assess whether patients trusted the organisation with the use of their personal and sensitive information. A two week pilot of spot checks was also organised to assess and highlight risk of information breaches across the organisation. This is in the process of being reported and the development of an ongoing managerial spot check system is anticipated to be the way forward. All outcomes from this work were reported to the Information Governance Committee in a timely fashion for the completion of the second stage of the N3 application deadline at the end of March 2015 where we were successful as an organisation in gaining level 3 compliance. Appendix 2 page 26 shows the audit/survey plan that was undertaken in 2014/2015 Charity No. 1140386 www.renniegrove.org 19 Feedback from Patients Carers and Health Care Professionals We value the feedback that we receive from patients and their carers as this is an important way in which staff can identify issues, resolve problems and improve the quality of the care we provide. As part of our commitment to ensure that patient’s and their carers have a voice (and to demonstrate commitment to improving response rates) we have completed a review of the Hospice at Home and Clinical Services surveys in 2014/15. The questionnaires have been shortened and smartened with the aim of improved usage of patient and carer sensitive data. As the new surveys are anonymous but where concerns are raised and the respondent has chosen to be identified, their issues are followed up and resolved where possible. The biennial Paediatric survey (sent to parents/ carers together with specially designed children’s questionnaires appropriate to their age) were also completed in 2014 with positive responses. The Health Care Professionals with whom we work are also sent biennial surveys. This year’s survey was completed in April 2015 and includes hospitals, GP practices, district nurses and specialist services such as MacMillan. Feedback from this survey in 2015 has helped improve communication but has also helped the organisation identify areas for development including the identification of Skills Needs Assessment (across the spectrum of nurses) from HCA to CNS in 2014/15 Quality Account. Responses to key questions from all surveys published in 2014-15 can be seen in Appendix 3 pages 27-32 Charity No. 1140386 www.renniegrove.org 20 NHS Chiltern and Aylesbury Vale CCGs response to Rennie Grove Hospice Care (RENNIE GROVE HOSPICE CARE) Quality Account 2015/16 Chiltern & Aylesbury Vale (CCG) has reviewed Rennie Grove Hospice Care Quality Account for 15/16. As in previous years RGHC has used a range of data to provide assurance that the services it delivers are safe and of a high quality. Chiltern and Aylesbury Vale CCGs are satisfied as to the accuracy of the data contained in the Account. There is evidence that Rennie Grove Hospice Care has used both soft and hard data in addition to evidence of active and collaborative stakeholder engagement in providing assurance on the quality and safety of its services. RGHC has shown commitment and tenacity in their journey to gain the necessary permissions for an N3 connection despite several setbacks outside their control. This connection will further enable patient’s wishes to be met through improved communications. There is evidence of investment in people with the continued move to improving the skill set of their staff. The reorganisation of services provided has increased the numbers of patients now accessing the support they need. The commissioners are pleased to see the priorities of care for 15/16. The planned introduction of new Syringe drivers is an excellent example of the collaborative working that we see between RGHC and our other providers and health care professionals in Bucks. We welcome the plan to add to a robust evidence base through their research proposal and we hope they are successful in securing the necessary grants to achieve this. Conclusion The Quality Account is a comprehensive view of the Quality of services currently being provided to the local community and how these are being further developed with local stakeholders by Rennie Grove Hospice. Commissioners look forward to continuing to work in partnership with the service in meeting the needs of local service users, their carers, and staff in providing high quality flexible care. Charity No. 1140386 www.renniegrove.org 21 Statement from Herts Valleys Clinical Commissioning Group End of Life Care Commissioning Manager and Community Contracts Manager Herts Valleys CCG see Rennie Grove Hospice Care as a key partner in the delivery of integrated end of life care for the patients of West Hertfordshire. We value the excellent open and regular communication that we have and we are committed to working with them to continue to deliver a high quality and much valued service to our population. During 14/15 Rennie Grove Hospice care continued to provide high quality Hospice at Home Care and expanded their services to patients within the St Albans and Harpenden locality. Rennie Grove Hospice Care continued to prioritise patient safety, clinical effectiveness and enhancing patients’ and their families’ experience. Progress towards these improvements was monitored through regular contract review meetings. Looking forward to 15/16, Herts Valleys CCG is delighted to continue to work closely with the hospice as a key partner in helping us to achieve our End of Life Strategy. The strategy reflects the aims of both organisations to continually improve and provide good quality end of life care to its patients and the community. April 2015 Charity No. 1140386 www.renniegrove.org 22 Healthwatch Hertfordshire’s response to Rennie Grove Hospice Care Quality Account 2015 Healthwatch Hertfordshire is again pleased to submit a response to Rennie Grove Hospice Care Quality Account. Priorities for improvement in 2015/16 are simply and clearly stated and these have been developed in conjunction with staff, stakeholders, patients and carers whenever possible. We very much welcome the focus on preventing hospital admissions and the desire to create a robust methodology for assessing this. The Research proposal provided in the quality account provides further detail on this. The priority focusing on patient experience and enhancing the role of the HCA seems good practice, both for efficient running of the organisation and for enhancing patient care. Progress on the 2014-15 priorities is reported clearly and transparently, and the frustration of not having N3 access is evident. The clinical effectiveness focus on assessing necessary skills has proved useful and Rennie Grove have responded to the assessment with key improvements. Perhaps the most notable development has been the reconfiguration of day services with a 45% increase in attendance reflecting the new more flexible approach implemented. Also worth mentioning from the review of performance section is the sharp increase in out of hours’ activity. The quality and audit report provides useful evidence of the good governance in place and we welcome the continued use of SKIPP. The involvement of patients to assess their level of trust in the organisation’s use of information is welcomed as is the programme of spot checks on risks of information breaches. Finally the report provides as appendix 3, feedback from patients and their families. The quantitative responses give impressive results, but these are overshadowed by the powerful comments from those who have benefitted from the services provided Michael Downing, Chair Healthwatch Hertfordshire, June 2015 Charity No. 1140386 www.renniegrove.org 23 Appendix 1 Criteria applied to Prevention of Admission( POA) Assessment from (1.8.14) 1. 2. 3. 4. 5. 6. 7. 8. 9. Complex symptoms Medication administration Sudden change in condition/symptoms Anxious/agitated patient Anxious / agitated relative or carer Carer breakdown/family dynamics Bladder/bowel symptoms Haemorrhage/clinical crisis Other ( plus explanation on bottom of form please ) Amended Criteria applied to POA (from 1.1.15) 1. Pain 2. Nausea & vomiting 3. Sepsis 4. Seizure 5. Fall 6. Bladder/bowel symptoms 7. Haemorrhage/clinical crisis 8. Medication – administration/change required 9. Sudden change in condition/symptoms 10. Anxious/agitated patient 11. Anxious/agitated relative/carer 12. Carer breakdown/family dynamics 13. Other ( with explanation ) Charity No. 1140386 www.renniegrove.org 24 Appendix 1a. OVERNIGHT TEAM AUDIT FORM Total Mileage: Total travel time: Total number of deaths attended - Herts: Total number of incoming calls: Total number of hospital admissions: Date: Bucks: On duty staff names: Bucks * PLEASE TICK appropriate boxes . 2 QUESTIONS need YES/NO as indicated Identify Herts or Bucks patient and put * H/B H/B H/B H/B H/B if patient surgery is one of the following : Edlesborough/Pitstone, Aston Clinton, Wendover, Cross Keys, Wellington House Time of Call Reason for Incoming Call 1. planned visit from late shift 2. symptom control 3. carer support 4. death 5. death verified by night team Yes/No 6. message 7. other eg personal care, equipment issue 8. advice required by other HCP Reason for Not Visiting 1. patient/carer reassured/settled by tel advice 2. managing another patient 3. other service required 4. incoming message/feedback 5. end of shift/time management Passed to Other HCP/Service 1. early shift nurse 2. DN service 3.GP service 4. ambulance service 5. hospital team Reason call passed to other HCP 1. prescription needs 2. new symptom/unexpected change 3. urgent medical attention necessary 4. involved with another patient 5. admission necessary Reason for Hospital Admission 1. complex acute symptoms 2. discharge complications 3. patient/carer choice 4. carer breakdown 5. other Was hospital admission prevented Yes /No Rationale ? See key & record number Charity No. 1140386 www.renniegrove.org H/B 25 H/B Appendix 2 Rennie Grove Hospice Care Audits/Surveys Apr 2014 - Mar 2015 Audit/Survey Month SOV Safeguarding Adults audit H@H and Clinical services Survey reports Section 11 Paediatric SOV audit Quality Account published GH Laundry audit Paediatric Survey HR Audit Safe recruitment l Non Medical Prescribing audit RGHC Consent Audit H@H and Clinical Services survey reports H@H Sharps and PPE audit Working party review of H@H and Clinical services surveys GH building audit (Infection Control) Hand Hygiene Audit Information governance review of audit requirements Consent audit (Info gov) SKIPP analysis Day hospice Info governance staff questionnaire Spot checks process review(info gov) Pilot draft survey Day hospice patients Consent audit (Info gov) Info gov Tel questionnaire H@H/DH patients Infection control Dress code audit Health care Professional survey MAR 15 New surveys published Quality Account to CCGs APR 15 Charity No. 1140386 www.renniegrove.org MAR14 APR 14 MAY 14 JUN 14 JUL 14 JUL-AUG 14 SEP 14 OCT 14 NOV 14 DEC 14 JAN 15 FEB 15 26 APPENDIX 3 Key Questions from surveys Hospice at Home Patient Satisfaction Survey Sept 14 – March 15 Question Response Skipped Question Answer On the whole, do you find the experience of H@H caring for you: 47 1 Very satisfactory Satisfactory Dissatisfactory Very dissatisfactory Do you feel your privacy and dignity are respected by RGHC staff? Do you feel the RGHC staff make an effort to meet your individual needs and wishes in relation to culture, faith and disability? Do you feel you are treated with courtesy by H@H staff? 46 2 42 6 42 6 Results Sept 14 85% 15% Results Mar 15 39 7 0 83% 15% 0 1 2% Always Most of the time Some of the time Never Always Most of the time Some of the time Never 98% 2% 44 2 96% 4% 91% 9% 38 3 0 1 91% 7% 0 2% Always Sometimes Occasionally Never 98% 0 0 2% 42 100% Some of the comments we have received from our patients in the last six months: They are all fantastic. They treat us with empathy and always do what they say they are going to do. You have helped me through a very difficult time. Cancer plus death of my husband and daughter’s illness would be very difficult without your wonderful support. I have been amazed at how hands on and excellent this hospice is. Long may it continue to provide such an essential service to this community. Everyone we have seen from RG has been knowledgeable and helpful. Everything has been wonderful. I can’t praise the nurses enough. Some of the comments we have received from our carers from our most recent report (during Apr 14 to Sept 14):. We had experienced such care, consideration and sympathy that left us so grateful. Such a pillar of support – second to none. Faultless attention to detail and communication – particularly in regards to education of my mother’s carers practically and in regard to the carers unrealistic expectations. You are at a loss to deal with something you know nothing about. As soon as your team came on board, we felt so much better, knowing they knew what to do. They were supportive, understanding, caring and compassionate, a true pleasure to have around. My husband was always reassured just by the presence of one of the team. Charity No. 1140386 www.renniegrove.org 27 Clinical Services Survey for users of Grove House facilities April 14 – September 14 Question Response Skipped Answer Question 6 10 (Excellent) 9 8 7 6 5 How would you rate the quality of care/treatment that you received from Grove House? Scale 1(poor) – 10 (excellent) - 28 Did staff involved in your care introduce themselves to you? 33 1 Did you feel involved 29 in the decisions made about your care and support at Grove House? How did you feel that 29 staff and volunteers respected your privacy and dignity? Did you feel that you 25 were treated fairly with regards to culture, faith and disability? Having used this 31 service, how likely are you to recommend it to other members of your family or friends? 5 3 Results Sep 14 22 2 2 1 0 1 79% 7% 7% 4% 0 4% 10(Always) 9 8 7 Always Usually Sometimes 25 4 1 3 22 5 2 76% 12% 3% 9% 76% 17% 7% 5 Always Usually 26 3 90% 10% 9 Always Most of the time 22 3 88% 12% Extremely likely Likely Neither likely nor unlikely Extremely unlikely 24 6 77% 19% 1 3% Some of the comments we have received from our users of Grove House facilities from our most recent report (Apr to Sept 14): It also provided the opportunities to find out that you are not alone in what you experience and that help is available. It encouraged you to think about yourself more. I think the time I spent at Grove House gave me confidence and attitude – I always felt better after a day there. Having the opportunity to talk to other patients. So much of what worried me was common but I didn’t know that. I’ve made some very special friends. The medical support was also great. Lots of tips, advice and reassurance which helped me cope. There is a very good chef and the meals are excellent. Charity No. 1140386 www.renniegrove.org 28 Everyone at Grove House should be congratulated for the care and service they offer. We are all lucky to be helped in this way. Thank you. Comments for Review (Clinical services survey) Several respondents felt that more detail on services offered would be useful. New information sheets for each service subsequently produced. Several respondents mentioned the acoustics in the Day Hospice. Acoustics cannot be addressed at the moment but will be a priority for future development. A separate room is available for conversations with staff. Paediatric Survey Results (Pepper Team) – August 2014 Nine completed surveys were returned (27%). All families felt that: The Pepper team worked well with other professionals If they needed it, they had received support in emergencies or in times of crises. If not an emergency, all felt that they would feel able to speak to a member of the Pepper team day or night. They were supported with their child’s physical needs. The nurses were calm and reassuring and they trusted their judgement and felt confident leaving their child in their care. The nurse visits enable families to take time out for themselves. Some of the comments we received from families whose child was being cared for by the Pepper team: Always very caring and understanding. The Pepper nurses provide a wonderful service and make a real difference. We very much appreciate all they do for us. “L” is an amazing support to our family…. we are extremely lucky and blessed to have her in our lives. Charity No. 1140386 www.renniegrove.org 29 Working Party review of Patient / Carer Feedback Questionnaire 2014 The new questionnaire (to replace the Hospice at Home and the Clinical Services questionnaires) was developed as part of a review of RGHC existing patient and carer satisfaction questionnaires. It was introduced into the organisation in April 2015. As RGHC has a 6 monthly reporting cycle, the first results using the new questionnaire will not be available until the Autumn of 2015. During the review the focus was on simplifying the questionnaire and restricting it to essential data collection only. It is hoped that this will maximize the response rate, which is currently one of the key questions asked for by CCG’s in the quarterly report.. Health Care Professionals Survey May 2015 The following feedback was given to questions about referrals to and from IRGH services, and to working relationships. Agree strongly I have a good working relationship with the RGHC team(s) RGHC respond efficiently to requests for help The involvement of RGHC promotes patient choice The additional resources RGHC brings can help a patient to stay at home Agree No opinion Disagree Disagree strongly 48% 43% 9% 0 48% 45% 7% 0 50% 39% 11% 0 56% 30% 14% 0 0 0 0 0 Some of the positive comments received included: Excellent services We have a great working relationship with the Pepper nurses. Always available or will ring back if needed. I have rung main number on referral form - always very helpful. The service provided is extremely important and helpful to patient and carers. V useful 2 way communication re patients. We value the monthly palliative care meeting at the surgery Excellent service, thank you. A great team. Thank you, really helps us getting people home. Excellent team, great communication skills and a pleasure to work with. Very useful to have your nurses involvement at out MDT when they are available. Thank you for attending pal care MDT in hosp. Charity No. 1140386 www.renniegrove.org 30 Some constructive criticism Communication issues Sometimes confusion between role/input hospice at home and district nurses Hospice at Home. We receive phone calls but it would be nice to be copied into written correspondence Overall the process works well. However, unless I contact team I rarely receive a call to talk through referral. Unless I fax further info I never get a request for further info. There have been times when a first contact with patient has been delayed, neither pt nor I have been contacted re reason why. There have been times when I have had to chase referrals due to no contact within the stated time slot on SPA form. Perhaps sharing/communicating, re patients between teams could be improved. This applies to us aswell! Works both ways. South Bucks and Wycombe teams rarely update us regarding patients and also don't let us know when patients RIP. This can be very variable in practice. Often not advised of patient who have RIP. Would also be useful to know when patients had first visit. Very little feedback from teams. Poor at reporting back after referral. Increase awareness of services. Often not advised of patient who have RIP. Would also be useful to know when patients had first visit (as above). Dacorum/Ridgeway team are excellent at communicating, very efficient team. Collaboration Hold a meeting in the home to give staff an update. Continue to work collaboratively in regards to our day services avoiding duplication. Advise staff/by teaching Always good to know if somebody is coming in as an emergency, thank you. Could a member of your team arrange a visit to us to discuss your services? Having syringe driver training booked would like some teaching sessions regarding end of life care. Referrals and case load management On occasions, due to workload, patients may have to "wait" to be seen or "books closed" to new referrals. Referrals via SPA are straightforward. However, how soon referrals are picked up is completely unpredictable. We have had experience of response times being slow when you are at capacity otherwise great service. But I do find the interface with district nursing a challenge have to refer to IRH@H and DN - why must we do 2 referrals when you share the care? We make our referrals at the end of the day. Don't always manage to talk to somebody if we need to. Better than it was with new nights service. If I put on form to contact before visit doesn't always happen. Charity No. 1140386 www.renniegrove.org 31 Ensure communication @ referral point to ensure patient does not have to duplicate info already given when meeting RGHC. Discuss delayed referrals. To ensure RGHC aware of all info to date, limited space on SPA form. I do try to give as much info as I can to support referral to RGHC. Guidelines and referral criteria information to give to our patients/families on what to expect from service/time scales for visiting. Rennie Grove provide a great service to our community patients. However, I feel that the teams are now so busy with increased caseloads that the level of input has dropped. We do have patients admitted who say they have been occasionally disappointed at the response they have had when ringing the out of hours number. Saying this, still believe the service is providing comprehensive specialist palliative care. Please address the referrals to DN/yourselves for same pt when you are sharing care. Improve communication which now feels very one way. ? referral to some services because of delays in pick up due to high case loads - esp in S Bucks services. Condense referral form a little! Occasionally "To be aware referrals" not always clear what to do with these. Other See more people! Greater parity of service provision across the different teams and in relation to other palliative care providers. Delays in take up of patient’s (?). Team meetings needing to happen before 1st visit? Why? Palliative care support for non-cancer diagnosis eg heart or respiratory disease. Charity No. 1140386 www.renniegrove.org 32