Shifting to a Global Perspective A Comprehensive Approach to Stuttering Treatment Mateleine Eshnaur, M.S., CCC-SLP Metro Speech-Language Symposium February 8th, 2014 Oh no, not a stutterer… Many SLPs report feeling uncomfortable with treating fluency cases (National Stuttering Foundation). Where does this discomfort come from? A sense of being ill-equipped and/or unsuccessful with treatment? What is more important? Helping your student become the most fluent speaker he/she can be? Helping your student be the most effective communicator he/she can be? Is there a difference between the two? The Iceberg Analogy: Overt vs. Covert Stuttering “Your stuttering is like an iceberg. The part above the surface, what people see and hear, is really the smaller part. By far the larger is the part underneath the shame, the fear, the guilt, all those other feelings that we have when we try to speak a simple sentence and can't,” Dr. Joseph Sheehan Message to a Stutterer Shifting the Perspective In line with Sheehan’s analogy, effective treatment must also address the covert aspects of stuttering, rather than focus solely on the overt aspects. “Stuttering is a result of approach-avoidance conflict, of opposed urges to speak and hold back from speaking. The ‘holding back’ may be due to learned avoidances or to unconscious motives,” (Sheehan, 1953). This model shifts the perspective from valuing fluent speech as the primary treatment objective, to placing more value on the speaker’s attitudes, feelings, and beliefs about his/her ability to speak. Shifting the Perspective… In making this shift, the whole treatment environment changes for both the SLP and students. Speech modification techniques are taught within a larger context of changing attitudes and beliefs around talking, and forming new, more positive experiences. Attitudes of both SLP and student become more accepting of stuttering. Treatment focus shifts to effective communication by combining speech modification techniques with exercises to improve speaker attitudes. Break-out #1: Selecting a Case Study (8 minutes) Use the handout provided to select a student (past or present). Handout will guide you on providing necessary information. Share your case study briefly with someone near you. Why did you select this case? PLEASE DO NOT SHARE INFORMATION THAT COULD RESULT IN A BREACH OF CONFIDENTIALITY (PERSONALLY IDENTIFYING INFORMATION) “I've stuttered all my days. I guess I'm one of those incurable stutterers. Everyone has his own personal demon and mine is stuttering. I found that once I accepted it as a problem and learned to cope with it by not avoiding or hiding or struggling with it, my demon lost its hold on me.” Dr. Charles Van Riper So why is it that the same person, given a consistent level of impairment, can experience different degrees of impact throughout his/her lifetime? Impairment vs. Disability World Health Organization (WHO) Impairment is defined as the disruption to normal body function or structure. Disability is defined as the impact the impairment has on life functions, to include activity limitations and participation restrictions. Contextual factors refer to the environmental and personal factors that influence disability (create barriers or access). Adapted from Yaruss & Quesal (2004) The research shows… A study of adult stutterers in South Africa showed, “most participants felt that stuttering had affected their self-esteem and selfimage...findings suggest the need to incorporate subjective feelings about stuttering into clinical practice,” (Klompas and Ross, 2004). Eight out of ten children who responded to a survey conducted in 2009 by the NSA (National Stuttering Association) reported being bullied because of their stuttering. From the same survey, 40% of adults reported being denied a promotion or job due their stuttering. This is not the future we want for our students… In a survey conducted by Klein & Hood (2004) of 232 PWS over 18years: 71% reported that stuttering decreases chances of being hired 70% reported that stuttering interferes with promotional possibilities 65% agreed that “average person who stutters believes their stuttering interferes with job performance” 385 college students were asked to report on their perceptions of PWS in different professions; perceptions were largely negative indicating perceived inability to perform due to stuttering (Gabel, Blood, Tellis, Blood & Althouse, 2004) This is just a small sample of the research that shows stuttering frequently and significantly impacts people in all aspects of life, personal and professional. As SLPs we are tasked with minimizing the impact, or disability, of stuttering. How…? The elements of the model that SLPs can directly influence: 1. Function: By teaching the SWS (student who stutters) about normal speech production, and how to positively impact his/her own speech production through speech modification (i.e., fluency shaping and stuttering modification). 2. Environmental Factors: By educating the SWS, those in the school setting, and family about stuttering in an effort to create awareness and acceptance. By proactively dealing with negative social consequences (e.g., teasing/bullying). 3. Personal Factors: By changing attitudes about self and speaking. Capturing the Elusive… Understanding attitudes, thoughts, feelings, beliefs, and associated behaviors in determining life impact (a mouth full!), when assessing stuttering. Relationship to the Colorado Severity Rating Scale School-based clinicians are required to answer if the student engages in “escape behaviors and avoidance.” We must also determine if disfluencies: occasionally, frequently, or consistently impact a student’s participation in educational settings. We need to consider assessing these aspects when determining if a student will receive an SLI (speechlanguage impaired) eligibility for a fluency disorder. How can we effectively assess attitudes, beliefs, feelings, and thoughts? How do we understand these needs, that are individual and variable for each student, in the assessment and planning process? Observation… Interview: students, teachers, parents… Self-report measures… Observation is a crucial skill, but… Looking for signs of: tension, struggle, avoidance, circumlocation, secondaries, etc. are an important part of the evaluative process and helps us in understanding the severity of the stuttering… But how much can we observe at any given moment of time? How much do our observations help us understand impact if impact is largely internal? Observation does not lead to understanding of: thoughts, feelings, beliefs (i.e., attitudinal components). Assessment: Interviews Interview forms can be provided from a variety of sources or may be self-created Important points: Do not ask leading questions; try to maintain an openended format that does not “color” or lead the questions Try not to insert your own descriptors: “How does that make you feel when you can’t get the words out?” versus “Does that make you feel nervous/anxious/bad, etc.?” Focus on listening, not questioning Take time to develop a rapport Be sensitive to the needs of the interviewee; take breaks as needed But interviews have significant limitations… Outside of directly interviewing SWS, other people can only give insight into observable behaviors, but cannot tell you what the student is directly experiencing. Interviews can be valuable and should be included in the assessment process, but there are a variety of factors that can influence the quality of information gained from interviews such as: memory/accuracy, how forthright the interviewee is, quality of relationship between interviewer/interviewee, communication barriers (e.g., language, cultural, SES), bias (e.g., of parent, teacher), anxiety, distrust etc.. OASES OASES: Overall Assessment of the Speaker’s Experience of Stuttering (Quesal & Yaruss, 2010) Protocols for ages: 7-12; 13-17; 18 and older Aligns with the WHO’s IFC model in examining the impact of stuttering in examining four areas: general information, reactions to stuttering, communications in daily situations, and quality of life. Provides an impact score in each area, from mild to severe. Is helpful in planning treatment; manual gives general guidelines for treatment depending on which area(s) the client/student scores higher in. For instance, a PWS who scores high in section II (reactions to stuttering) would benefit from treatment that includes, “strategies aimed at desensitizing the speaker to stuttering…and helping the speaker to accept stuttering,” (Quesal & Yaruss, 2010). Break-out session #2: Assessing your student (10 minutes) How did you assess these elements of the Colorado Severity Rating Scale when determining eligibility. If the assessment was done by another SLP, do you think these aspects were addressed? Would you assess differently now given this information? How would you plan to assess this student currently if you had to reevaluate? Go over your plan briefly with another SLP. Planning Treatment HOW TO INCORPORATE BOTH OVERT AND COVERT ASPECTS OF STUTTERING INTO TREATMENT PLANNING Locus of Control Locus of control refers to a concept in psychology where an individual tends to place control of outcomes in their lives on internal or external forces or factors. Those with an internal locus of control feel more in charge of their lives and destinies, because they attribute outcomes to their own actions, efforts, and beliefs. Establishing an internal locus of control in treatment: stuttering is something that comes from me not something that happens to me. If stuttering is something that happens to me I have no control; if stuttering is something that comes from me, I can effect my own stuttering. “Those who continue to rely on the clinician and the clinical environment for reinforcement and who fail to take the necessary responsibility for their fluency are more likely to relapse once formal treatment is completed,” (Manning, 2001). Providing Speech Modification within a Larger Context Tools for modifying speech are more likely to be used if provided within a more comprehensive treatment program that addresses the covert aspects of stuttering and minimizes the negative impacts of stuttering CITE. A review by McClure and Yaruss of a survey conducted by the NSA (National Stuttering Association) of 710 of its members reported, “greater success with speech treatment that focuses on attitudes than on speech modification,” (2003). Changing Environmental and Personal Factors Attitudes: change attitudes by creating… Acceptance: both of self and in others (students, staff, family) Awareness: self-awareness and awareness within the student’s school community and family Broadening view of self: beyond speaking alone Becoming the expert: on one’s own stuttering and then sharing that knowledge Challenging established beliefs: of what stuttering is and how stuttering has to be Creating new thoughts: of self and speaking abilities Speaker Attitudes The cognitive-behavioral model links thoughts and feelings with physiological responses and behavioral reactions CITE. Negative predictions such as, “They’ll think I’m stupid,” or “I won’t ever get the words out,” create a negative feed-back loop of anxiety, fear, shame, etc., which results in a heightened physical state and avoidant behaviors. Treatment seeks to change this feedback loop through changing environmental and personal factors, thereby creating new speaking experiences. Treatment Activity: Catch a Mistake Ask student to make a point of observing other speakers to “catch mistakes.” Encourage student to do this with a variety of speakers: you, other students, parents, teachers, people on T.V., etc.. Student takes notes and shares observations of what mistakes they have caught with others speakers. Point: To help broaden student’s understanding of “normal” speech production Acceptance & Awareness Creating a treatment environment where stuttering is accepted and the content of the message is considered more than the delivery Desensitization Activities: Openly stuttering (student and SLP); self-disclosure Education: Materials given to students, teachers, and parents that educate on creating supportive communication environments and habits; student takes active role in educating others and self-advocacy Support: Linking students to supports (local, national) Treatment Activity: Did you know…? Research a famous person who stutters that the student is interested in. How did he/she overcome stuttering? Treatment Activity: Linking Supports Help student discover different ways of creating support to include: family, teachers, friends, local support groups, national organizations. Create a chain link with the student where he/she describes different forms of support (e.g., My friends can listen to me when I’m upset.) Create a virtual memories book describing a time when different people gave support. Broadening View of Self Discussing aspects of student beyond speaking behaviors and experiences alone Creating a view of self that is not dominated by stuttering Example activity: All About Me book that discusses student holistically (e.g., family make-up, likes/dislikes, hobbies, strengths, etc.) Break-out #3: Design an Activity (8 minutes) Partner with 1-2 other people Design a treatment activity (individual and/or group) that targets: attitudes, acceptance, awareness, and/or view of self. If time allows, reflect on how this activity may help the student you have selected for your case study. Becoming the Expert Building foundational knowledge and vocabulary around normal speech production Learning to be aware of what is happening during moments of stuttering and being able to describe those behaviors with specific terms Example Activities: The Speech Machine; Tool Box Being able to relate knowledge of normal speech production with stuttering behaviors and what tools (i.e., speech modification strategies) to use when Being able to teach others (e.g., teachers, parents, friends) about stuttering Example Activity: class presentation Treatment Activity: Speech Man (or Woman) Allow student to select color of paper Outline/draw/photograph torso of student (adjusted for age, appropriateness) Have cut-outs of basic speech parts: brain, lips, tongue, voice-box, lungs, diaphragm (can adjust language based on developmental/educational level) Students paste cut-outs in appropriate locations, label, and briefly describe function Helps students become more familiar with speech anatomy and creates a tool that can be used in future sessions Challenging Established & Creating New Beliefs Identifying current beliefs (e.g., I can’t talk right ever; everyone else talks perfectly) Challenging those beliefs (e.g., seeing that there are times where talking is successful; studying other people talking to see that everyone makes mistakes when speaking) Creating new belief systems: I’m in control of my speaking, it’s okay if I stutter, they won’t think I’m stupid, I can tell them I stutter, no one speaks perfectly all the time, etc.. Treatment Activity: Cartooning Student creates a cartoon of what he/she imagines stuttering to be Student then creates himself/herself in a cartoon, super hero form Various situations with stuttering can be cartooned using these and other characters to include: confronting avoided situations, practicing issues around bullying, and countering negative beliefs/thoughts (Murray). Treatment Activity: Role-playing/Confronting Role-playing difficult communication situations and building to a level of confronting the actual situation.4 Example: making a telephone call to a local library. Analyzing the speaking situation with the SLP to look at both the positive and negative aspects of the exchange. Accentuate the positive, and frame negative aspects as something that can be changed for future situations. Creating New Experiences Purposeful stuttering: starting with the treatment environment and moving into the school community Self-disclosure Educating self and others Participation in support groups: local to national; your treatment sessions can double as a support group Confronting feared/avoided speaking situations Social Consequences: Bullying Minimizing Bullying for Children Who Stutter: A Practical Guide for SLPs (Murphy, Quesal, ReardonReeves,Yaruss, 2013). Talks not only about what SLPs can do to help students with bullying, but what students, parents, teachers, and school administrators can do regarding bullying within the unique context of SWS. Comparing the SLP and Student roles (Murphy, Quesal, Reardon-Reeves, Yaruss, 2013) SLP needs to… Teach about stuttering Teach about bullying Help the student think differently about stuttering Help develop appropriately assertive responses Help educate others (other students, teachers, parents) Help link students to resources for support Student needs to… Learn the facts (e.g., stuttering is not my fault, bullying is not right) Give the facts by talking to others in a variety of situations (e.g., discussing with teachers, parents, peers) Learn how to help themselves (e.g., learn purposeful ignoring; learn how to self-advocate) Gain support of others Treatment Activity: Let’s Make a Movie (adapted from Minimizing Bullying…) Role-play scenarios: real or imagined Record, review, respond: record role-play (after practicing), review in a comfortable environment, talk about possible responses, decide on response(s), record the “new way.” Allows for repeated practice in a fun, inventive, and inovative way, “repeated practice will increase children’s mastery and confidence so they can manage to respond appropriately, even in the face of increased anxiety,” (Murphy, Quesal, Reardon-Reeves,Yaruss 2013). Allows for opportunities to create community amongst SWS, as well as involve other peers and even staff to extend community and support (as well as provides natural opportunities to educate and create awareness). Preschool Making mistakes in general okay Approach stuttering in a relaxed, comfortable way that does not convey concern, anxiety, or disapproval; encourage others to do the same Approach talking with appropriate turntaking, time allotted for extended wait-time as much as possible, reduced questions MODEL what you want to hear (slower, easier talking); encourage parents/teachers to do the same; discourage comments like “slow down” Be a good listener, pay attention to the message not the content Preschool Contd. Teach basic awareness of body and talking as is developmentally (and individually) appropriate Learning to be aware of the body (relaxed versus tense) Thinking good things about self Teaching to parents and preschool staff Approach the topic of stuttering with parents and staff in a direct, but comfortable, manner Provide educational materials/links to support