Using trauma-informed care in health care practice to respond to difficult situation: triggers & disclosure Candice Schachter, P.T., Ph.D. April 23, 2015 Sensitive Practice Project Researchers Candice L. Schachter, PT, PhD School of PT, College of Medicine, U of Saskatchewan Carol A. Stalker, RSW, PhD Eli Teram, PhD Faculty of Social Work Wilfrid Laurier University Gerri Lasiuk, RN, MN, PhD Faculty of Nursing University of Alberta Alanna Danilkewich, MD College of Medicine U of Saskatchewan 2 Objectives Session Two has been designed to help participants to use traumainformed framework to: http://images.google.ca/imgres?imgurl=http://3.bp.blogspot.c om/_8_qdV9hPklg/S1VVZ4kYdFI/AAAAAAAAAAM /V8mg mGdmOww/s 160/Shouldnt% 2Bhurt%2Bto%2Bbe%2Ba% 2Bch ild.JPG&imgrefurl=http://www.notwithm ychild.org/&usg=__EqA8Gy_mQObPMVuKiZh5EeyXN00=&h= 122&w=160&s z=8&hl =en&start=117&itbs= 1&tbni d= wBl NdaToJ FQM0M:&tb nh=75&tbnw=98&prev=/i mages%3Fq%3Dit% 2Bshouldnt%2Bhurt% 2Bto% 2Bbe% 2Ba%2Bchild%26star t%3D108%26hl%3Den%26s a%3D N%26gbv%3D 2%26ndsp%3D18%26tbs %3Disch:1 explore practical responses to 'difficult situations' in clinical practice (e.g., triggers/flashbacks) when working with adult survivors of adverse childhood experiences and abuse; explore practical strategies to help avoid such 'difficult situations'; consider responses to an adult patient's disclosure of childhood abuse; develop questions for ongoing self-reflection about one's own work to ensure that it is trauma-informed. 3 During this Presentation Quotations from survivors of childhood sexual abuse to illustrate points; Questions to facilitate self reflection; Discussion in dyads and triads to provide time for reflection. Please do what you need to do to take care of yourself. 4 Trauma-informed care is an issue for all health care practitioners (HCP) Prevalence of childhood sexual abuse As many as one third of women and 14% of men are survivor of childhood sexual abuse. All health care providers – whether they know it or not – encounter survivors of interpersonal violence in their practices. 5 Developing the Handbook: Research method I • Interviews with survivors about experiences with health care practitioners II • Working groups of survivors and health care practitioners III • Consultations with participants + additional health care practitioners to develop 2nd Edition of Handbook 6 2009 7 Specific behaviours and feelings arising during health care encounters • Distrust of authority figures; • Fear and anxiety; • Discomfort with persons who are the same gender as their abuser(s); • Triggers and dissociation; • Ambivalence about the body; • Fear of judgment; 8 Specific behaviours and feelings arising during health care encounters Need to feel ‘in control’; Feeling unworthy of care; Body pain; Conditioning to be passive; Self harm. These difficulties and discomforts contribute to ‘difficult situations’. 9 Understanding symptoms and behaviors using the trauma informed approach Symptoms, (behaviors, feelings, needs during health care etc.) Can be seen as coping strategies adopted by the survivor. Symptoms likely arose within the context of trauma. 10 Understanding symptoms and behaviors using the trauma informed approach Individuals with complex PTSD may experience these characteristics of complex trauma during health care encounters: Reexperiencing Avoidance Hyperarousal Dysfunctional or distorted beliefs can develop out of an attempt to make sense of the abuse. (Clark 2014) Key areas for health care providers Clark 2014 suggest that: Areas most sensitive to disruption due to trauma: safety, trust, esteem, intimacy/connection, power/control Understanding survivors’ experiences of relationships can inform the provider about how to build relationships that are empowering rather than traumatizing. 12 Principles of Sensitive Practice The primary goal of Sensitive Practice is to facilitate feelings of safety for the patient. Creating relationships that are safe and empowering can be profoundly positive. The umbrella of safety 14 • A patient might become very upset and angry, fearful, anxious, or sad during treatment • The health care provider may not know why this has happened. • Such emotionally charged, “difficult situations” may leave the health care provider feeling unsure about how to respond. 15 Contributing to difficult situations... Transference Occurs when an individual displaces thoughts, feelings, and/or beliefs about past situations onto a present experience. Triggers A trigger is anything (e.g., a sight, sound, smell, touch, taste or thought) associated with a past negative event that activates a memory, flashback or strong emotion. 16 Relationships: abusive vs therapeutic Abusive Relationships Therapeutic Relationship Betrayal, boundary Violation of boundaries, violation trust Unheard/denied/invalidat Survivor perspective ed victim voice unheard Power imbalance Powerlessness powerlessness Abuser’s reality + Reality = HCP’s values interpretation dominate Symptoms redefined by HCP Secret---knowledge, information, relationships Transference One woman said: Too many things in my mouth at once...You’re making me hold my mouth open too long, because you have to do that when somebody’s forcing you to do oral sex, like when you’re a child... 18 Triggers One woman said: During my first experience in physical therapy, they didn’t have any Kleenex, and the minute [the physiotherapist started] touching me I just started sobbing without having any idea of why. 19 Dissociation A disruption in the usually integrated functions of consciousness, memory, identity, or perception of the environment” that may be sudden or gradual, transient or chronic; Can be seen as a continuum from day dreaming → → highway hypnosis → → Dissociative Identity Disorder 20 Non verbal indicators of discomfort, distress, or dissociation Physiological reactions resulting from extreme stress (sympathetic nervous system’s fight or flight response) Rapid heart rate and breathing (breath holding or sudden change in breathing pattern may also be seen); Pallor or flushing; 21 How might a patient appear? Sweating; Muscle stiffness, muscle tension, and inability to relax; Startle response; Sudden flooding of strong emotions (e.g., anger, sadness, fear, etc.); 22 How might a patient appear? Cringing, flinching, or pulling away; Trembling or shaking; • Decreased concentration level; • POSSIBLY-no noticeable difference. 23 Questions for reflection: Triggers Considering my type of practice: List 3 actions that I might do that could be triggering to a survivor. List 3 things about being a patient in my practice that might be triggering for a survivor (excluding my actual actions). 24 Questions for reflection: Triggers List 5 actions that a health care provider might do that could be triggering to a survivor. List 5 things about being a patient seeing a health care provider that might be triggering for a survivor (excluding the actions of a health care provider). 25 Responding to Difficult Situations: Stop The SAVE strategy Appreciate Validate Explore 26 S top treatment 27 Appreciate what is going on for the patient Try to appreciate and understand the person’s situation by using empathy and immediacy. Immediacy is verbalizing one’s observations and responses in the moment, using present tense language. 28 A ppreciate For example, ‘Your fists are clenched and you look angry. What is happening for you?’ ‘You seem upset’ or ‘I doubt there is anything that I can say that will make this easier. Is it okay with you if I sit here with you for a few minutes? 29 A ppreciate If the patient is unable or unwilling to answer, the practitioner can shift the focus to determining possible ways to be helpful e.g. “How can I help you?” 30 Appreciate Orient patients to the present; Encourage slow, rhythmic breathing; Do not touch them; Offer verbal reassurance in a calm voice; 31 Appreciate Avoid asking complicated questions; Offer a glass of water; Normalize the experience; Ask what the clients need right now. 32 V alidate the patient’s experience Such interactions can be difficult; Health care encounters are difficult for many people. For example, “Given what you have just told me, it makes sense that you feel angry.” 33 Explore Explore the next step. For example… • “Who can I call to come and stay with you?” • “This has been difficult for both of us. I am not sure where to go from here. Can I call you tomorrow to see how you are doing?” 34 E xplore ways to work together that would feel better for the patient Reassure the patient that you would like to find the best way to work together. Discuss implications for future treatment. 35 Questions for reflection: SAVE The appointment has been going well. Suddenly, the patient’s words and tears and other body language suggest great upset. How do I respond? The appointment has been going well. Suddenly, the patient begins to shout at me and sounds very angry. I feel fearful. How do I respond? 36 Task-specific inquiry Asking about sensitivities and difficulties that may be part of an examination, treatment, or other care. 37 Task-specific inquiry All clinicians should use task-specific inquiry with all patients during each and every visit. 38 Using task-specific inquiry A health care provider might ask… “Have you ever had difficulty with examinations/procedures like this one?” If the individual answers ‘Yes’, follow-up using an open-ended question such as: “What can I do to make it easier for you?” 39 Using task-specific inquiry • Before beginning an exam, offer one additional opportunity to disclose something the patient thinks might be relevant: • Is there anything else you think I should know before we begin the examination? 40 Task-specific inquiry • Task-specific inquiry should be used: • during an initial meeting • before any new exam or procedure • any time body language suggests discomfort or difficulty 41 Why use task-specific inquiry? Help alert you to potential difficulties; Demonstrates to patients that you recognize they may be having difficulty and that you want to work with them to decrease their discomfort. Provides the survivor an opportunity to disclose as much as comfort/trust allow. 42 If attention to these points is missing… Your patient may find that she or he: can’t be present-listen and take information in; is unable to tolerate certain care; has problems with adherence; can’t take responsibility for health care; And possibly, CAN’T RETURN FOR FURTHER TREATMENT. 43 Questions for reflection: Task specific inquiry Considering my type of practice: Formulate three questions to use when asking about potential task-specific difficulties. During an examination, a patient’s body language suggests increased discomfort. What task specific questions can I as? 44 Inquiring about past abuse There is no one correct way to ask about a history of childhood abuse. Direct approaches are a relief to some survivors, but too intrusive for others. Explain why you are asking. For example: You ask everyone this question; Past abuse can affect the way that a clinician and patient interact, and affect health… 45 Asking effectively Spend time developing an initial rapport; Ask in a non judgmental way; Communicate empathy verbally and non verbally; Develop comfort asking and talking about trauma; Be aware of your own feelings about trauma and violence; Use behavioral language instead of general terms. E.g. “Has anyone ever forced you to engage in sexual behavior when you did not want to?” 46 Responding effectively to disclosure Accept the information; Express empathy and caring; Clarify confidentiality; Normalize the experience by acknowledging the prevalence of abuse; Validate the disclosure; 47 Responding effectively to disclosure Address time limitations; Offer reassurance to counter feelings of vulnerability; Collaborate with the survivor to develop an immediate plan for self care; Recognize that action is not always required; Ask whether it is a first disclosure; 48 Responding effectively to disclosure At the time of disclosure or soon after: Discuss the implications of the abuse history for future health care and interactions with clinician; Inquire about social support around abuse issues. 49 Responding effectively to disclosure Let the person know that the child who is abused is not at fault for the abuse; Link disclosure to the care you provide. 50 Questions for reflection: Disclosure What do I say when inquiring about history of interpersonal violence? A patient who has previously denied a history of childhood abuse, suddenly discloses such a history of childhood abuse in the middle of a physical examination. How do I respond? 51 Questions for reflection: Disclosure • Does my environment foster a sense of safety for potential disclosure? • Are there any steps I could take to increase their feelings of trust and safety? 52 Questions for reflection: Disclosure • • How do I want to integrate routine inquiry about trauma? How would I feel if a client disclosed a history of child sexual abuse or other trauma? How would I know whether my reactions are helpful for my patients? 53 Practitioners’ self-care Self care (e.g. sleep, exercise, food, relaxation, et cetera) is crucial! In addition, practitioners may need to seek the support of a colleague or counsellor to talk about their own reactions to disclosures of childhood sexual abuse or other difficult situations with patients. Can be done while maintaining patient confidentiality. Practitioners’ self-care For health care providers who are also survivors: It is recommended that individuals work through and come to terms with their on history of childhood sexual abuse to avoid confusing their own difficulties with those of their patients. 55 The health care provider’s roles when working with survivors of childhood violence Herman 1992: “No intervention that takes power away from survivors can foster recovery no matter how much it appears to be in her best interest” (p 133) 56 What about SCOPE of PRACTICE? …I can’t fix all of their problems True—but survivors are not asking you to, either! 57 The health care provider’s roles when working with survivors of childhood violence Empowerment Positive patient-clinician relationship that includes: Working collaboratively Sharing control, information, responsibility Emphasizing a sense of safety, trust, choice, collaboration Encouraging active participation in health care and providing information on some ways to do this. 58 The health care provider’s roles when working with survivors of childhood violence Reconnection and Connection Clinician can facilitate and encourage new and healthy connections between the survivor and her/his body; Clinician can contribute to positive connection between the survivor and the clinician. 59 Questions for reflection: General Might any of my current practices be interpreted as insensitive by survivors? What needs to change? In what ways might I adapt my own practice to incorporate specific guidelines? 60 Questions for reflection: General Do any of these guidelines seem unrealistic or unworkable in my practice? What are some alternative ways of following such guidelines? How committed am I to incorporating these guidelines into my routine practice and into the routine practice of those who assist me in my work? What does this level of commitment mean to my patients? 61 Questions for reflection: Triggers Considering my type of practice: List 3 actions that I might do that could be triggering to a survivor. List 3 things about being a patient in my practice that might be triggering for a survivor (excluding my actual actions). 62 Questions for reflection: Triggers List 5 actions that a health care provider might do that could be triggering to a survivor. List 5 things about being a patient seeing a health care provider that might be triggering for a survivor (excluding the actions of a health care provider). 63 Questions for reflection: Task specific inquiry Considering my type of practice: Formulate three questions to use when asking about potential task-specific difficulties. During an examination, a patient’s body language suggests increased discomfort. What task specific questions can I as? 64 Questions for reflection: SAVE The appointment has been going well. Suddenly, the patient’s words and tears and other body language suggest great upset. How do I respond? The appointment has been going well. Suddenly, the patient begins to shout at me and sounds very angry. I feel fearful. How do I respond? 65 Questions for reflection: Disclosure What do I say when inquiring about history of interpersonal violence? A patient who has previously denied a history of childhood abuse, suddenly discloses such a history of childhood abuse in the middle of a physical examination. How do I respond? 66 Questions for reflection: Disclosure • Does my environment foster a sense of safety for potential disclosure? • Are there any steps I could take to increase their feelings of trust and safety? 67 Questions for reflection: Disclosure • • How do I want to integrate routine inquiry about trauma? How would I feel if a client disclosed a history of child sexual abuse or other trauma? How would I know whether my reactions are helpful for my patients? 68 Questions for reflection: General Might any of my current practices be interpreted as insensitive by survivors? What needs to change? In what ways might I adapt my own practice to incorporate specific guidelines? 69 Questions for reflection: General Do any of these guidelines seem unrealistic or unworkable in my practice? What are some alternative ways of following such guidelines? How committed am I to incorporating these guidelines into my routine practice and into the routine practice of those who assist me in my work? What does this level of commitment mean to my patients? 70 Summary Keep the umbrella of safety OPEN by using trauma informed care at all times with all patients; Apply the S A V E strategy to all difficult situations; Use task-specific inquiry with all patients; 71 Summary Ask about a history of violence and be ready to respond to disclosure; Work WITH the patient to identify and evaluate alternatives that work for both the patient and health care provider; Reflect on your practice to improve the care you provide. 72 Handbook on sensitive practice for health care practitioners: Lessons from adult survivors of childhood sexual abuse. Schachter, CL, Stalker, CA, Teram, E, Lasiuk, GA, Danilkewich, A. (2009). Public Health Agency of Canada: Ottawa ON. Available free of charge online. See archived material on child sexual abuse, National Clearinghouse on Family Violence. Treating the trauma survivor: An essential guide to trauma-informed care. Clark, C, Classen, C, Fourt, A, Maithili, S. Routledge. 2014. 73 Comments and Questions 74