English Somali Parkinson’s and you Cudurka Parkinson iyo adiga A guide for people new to the condition. Hagaha loogu talagalay dadka ku cusub cudurka. Being diagnosed with Parkinson’s can be a very emotional experience. Some people feel shocked or confused – others feel angry or anxious. Some people even feel relieved to have an explanation for their symptoms. Markii qof lagu ogaado cudurka Parkinson wuxuu bukaanku dareemi karaa waayoaragnimo shucuureed. Qaar ka mid ah dadka waxay dareemaan shook iyo jaahwareer – kuwo kalena waxay dareemaan xanaaq ama wel-wel. Kuwo kalena way farxan, maxaa yeele waxaa loo sheegey waxa sababey calaamadaha cudurka ay isku arkeen. This booklet aims to answer questions about what Parkinson’s is, how the condition can be treated and how it might affect your everyday life. It also has details of where you can find useful information and support. Buug-yarahaan wuxuu ka jawaabaa su’aalaha khuseeya cudurka Parkinson, sida cudurka loo daawayn karo iyo sida uu saamayn ku yeelan karo noolol maalmeedkaaga. Wuxuu xittaa ku macnayn doonaa meesha aad ka heli kartid macluumaad waxtar leh iyo taageerid. When you’re ready to find out more, our booklet Living with Parkinson’s looks at how the condition might affect different aspects of your life, including work, relationships and parenting. It also goes into a lot more detail about symptoms and how they can be managed. Markii aad diyaar u noqoto inaad warar ka badan ogaato, buug-yaraheena Living with Parkinson’s (La nololka cudurka Parkinson) ayaad ka heli kartaa warar ku saabsan sida u cudurka saamayn ku yeelan doono dhinacyada kala duwan ee nooloshaada, ay ku jirto shaqada, xiriirka lammaano iyo waalidnimada. Wuxuu xittaa faah-faahin ka badan ka baxshaa calaamadaha cudurka iyo sida loo maamuli karo. Contents Tusmada Quick facts Xaqiiqooyinka oo kooban About Parkinson’s Ku saabsan Parkinson What is Parkinson’s and what causes it? Waa maxay cudurka Parkinson iyo maxaa sababa? What are the symptoms? Waa maxay calaamadaha? Does everyone have these symptoms? Miyuu qof walba qabaa calaamadahaan? How is Parkinson’s diagnosed? Sidee lagu ogaadaa cudurka Parkinson? How quickly does the condition progress? Waa maxay horumarka cudurka? Is there a cure? Miyaa la daawayn karaa? Can people die from Parkinson’s? Dadku miyeey ku dhiman karaan cudurka Parkinson? Are my children at risk of Parkinson’s? Carruurtayda miyeey ku jiraan halis inuu ku dhaco cudurka Parkinson? Is Parkinson’s infectious? Miyaa la iska qaadaa cudurka Parkinson? How many people have Parkinson’s? Imisa qofood ayuu ku dhacaa cudurka Parkinson? How old are people when they get Parkinson’s? Waa imisa jir dadka markuu ku dhaco cudurka Parkinson? Treatments and therapies Daaweynta iyo dabiibyada How is Parkinson’s treated? Sidee loo daaweeya cudurka Parkinson? What is impulsive and compulsive behaviour Waa maxay akhlaaqda sal-fududka iyo midda and can Parkinson’s medication cause it? khasabka ah iyo miyuu daaweynta cudurka Parkinson sababey? What surgical options are there? Waa maxay qalliinka la heli karo? Which professionals can help me? Waa kuwee khabiirada I caawin karo? Do complementary therapies have any benefit? Miyaan waxtar ka heli karaa daawoyinka siyaadada ah? I have another medical condition as well as Parkinson’s. What should I do? Waxaan qabaa cudur kale oo dheeraad u ah cudurka Parkinson. Maxaan sameeyaa? Living with Parkinson’s La nololka cudurka Parkinson Will I be able to carry on working? Miyaan awoodi karaa inaan sii shaqeeyo? Am I entitled to any benefits? Miyaan xaq u leeyahay ceyr? Will I still be able to drive? Miyaan weli baabuur wadi karaa? Do I have to tell the DVLA that I have Parkinson’s? Miyaan u baahanahay inaan u sheego DVLA inaan qabo cudurka Parkinson? Do I have to tell my insurance company that I Miyaan u baahanahay inaan u sheego have Parkinson’s? shirkadeyda caymiska inaan qabo cudurka Parkinson? Will my medication affect my driving? Daaweyntayda miyuu saamayn ku yeelan karaa baabuur-wadidda? What should I do if I live alone? Maxaan sameeyaa haddii aan keligayga meel ku noolahay? Should I change my diet? Miyaan beddelaa cuntada aan cuno? Can protein affect Parkinson’s medication? Borootiinka miyuu saamayn ku yeelan karaa daaweynta cudurka Parkinson? Can I still exercise? Miyaan weli samayn karaa jimicsi? Are there any other ways I can improve my mobility? Miyeey jiraan habab kale aan ku wanaajin karo dhaq-dhaqaaqeyga? What sort of equipment might I need? Waa maxay qalabyada aan u baahan karo? My relationships with others Xiriiryada aan dadka kale la leeyahay How will my family be affected? Sidee ayuu cudurkayga saamayn ku yeelan doonaa qoyskayga? How do I tell people I have Parkinson’s? Sidee dadka u sheegaa inaan qabo cudurka Parkinson? How do I tell my children about my condition? Sidee u sheegaa carruurtayda inaan qabo cudurka Parkinson? How will my intimate relationships be affected? Sidee ayuu cudurka Parkinson saamayn ku yeelan karaa xiriirkayga galmo? How does Parkinson’s affect pregnancy? Sidee ayuu cudurka Parkinson saamayn ku yeelan karaa uurka? Emotional issues Arrimaha shucuurta Staying positive Ku joogista si wanaagsan Staying active Ku joogista si fir-fircoon I’m feeling down – is there anything I can do? Waan murugsanahay– maxaan samayn karaa? Stress and anxiety Cadaadiska iyo wel-welka Depression Murugada Frustration Jaah-wareerka Counselling Hanuuninta For family, friends and carers Loogu talagalay Qoyska, Saaxiibada iyo daryeelayaasha More information and support Macluumaad iyo taageerid ka badan My contacts list Liiskayga xiriirka Non-motor symptoms questionnaire Su’aalo-weydiimaha calaamadaha aan xiriir ku leheen dhaq-dhaqaaqa References Tixraacyada Quick facts Xaqiiqooyinka oo kooban Parkinson’s is a progressive neurological condition.1 We are still trying to understand why people get Parkinson’s. Around one person in every 500 has Parkinson’s.2 Most people who get Parkinson’s are aged 50 or over, but younger people can get it too.1 Parkinson’s is not infectious and doesn’t Parkinson waa cudur horu-socod leh ee dareen-wadayaasha.1 Weli waxaan baarnaa sababta uu cudurka Parkinson dadka ku dhaco. Qiyaas ahaan hal qof 500 kiiba ayaa ku dhaco cudurka Parkinson.2 Badanaa dadka ku dhaco cudurka Parkinson waa 50 jir ama ka wayn, laakiin wuxuu xittaa ku dhici karaa dadka dhallinyarada ah.1 Cudurka Parkinson ma ahan mid faafa iyo usually run in families.3 Everyone’s experience of Parkinson’s is different.4 Although there’s currently no cure, there are a range of medicines and treatments available to manage the symptoms of the condition.5 Although at times life with Parkinson’s can be difficult, many people with the condition lead active, fulfilling lives. qoysaska ma kala dhaxlaan.3 Qof walba ee qaba cudurka Parkinson wuxuu qabaa waayo-aragnimo kala duwan.4 Inkastoo weli uusan jirin hab cudurka lagu daaweyn karo, waxaa jiro daawoyin lagu maamulo calaamadaha cudurka.5 Inkastoo marmar dhib ahaan karo la nololka cudurka Parkinson, dad badan ee cudurka qabo waxay qabaan nolol firficoon, iyo way ku qancaan noloshooda. About Parkinson’s Ku saabsan cudurka Parkinson “I sat in front of the mirror and tried to see what was different. Nothing. Not a single thing had changed. I still had to comb my hair, take a shower, eat as normal. That’s when the truth began to dawn on me – of course I was still me! I looked the same, I am the same.” Dave, diagnosed in 2010 “Waxaan hor-fadhiistey muraayad iyo waxaan eegey haddii aan arki karo iyo inkale wixii jirkayga ka beddelmey. Waxba ma arkin. Hal wax kama beddelmin. Weli waxaan u baahanahay inaan timaha shanleysto, qubaysto iyo cunto cuno. Taasi waa markii aan dhab ahaan ogaadey – dabcan waxaan weli ahay isla qofka! Isku mid ayaan u ekahay, isku mid ayaan ahay.” Dave, cudurka lagu ogaadey 2010 What is Parkinson’s and what causes it? Waa maxay cudurka Parkinson iyo maxaa sababa? Parkinson’s is a progressive neurological condition.1 This means that it causes problems in the brain and gets worse over time. waa cudurka horu-socodka dareenwadayaasha.1 Kani waxaa loola jeedaa inuu dhibaato u keeno maskaxda iyo ka sii daro waqti ka dib. People with Parkinson’s don’t have enough of the chemical dopamine because some of the nerve cells in their brain that make it have died.5 Without dopamine people can find their movements become slower so it takes longer to do things.5 Dadka qabo cudurka Parkinson ma lahan kimikada dopamine oo ku filan sababtoo ah qaar ka mid ah unugyada maskaxdooda ee kimikada sameeyo ayaa dhintay.5 Dopamine la’aan dadka waxay isku arkaan in dhaqdhaqaaqooda sii gaabtamo iyo waqti ka badan ayuu ku qaataa wax-qabadyada.5 We don’t know yet exactly why people get Parkinson’s, but researchers suspect it’s a combination of genetic and environmental factors that cause the dopamine-producing nerve cells to die.6 Weli ma naqaanno sababta uu dadka ku dhaco cudurka Parkinson, laakiin cilmibaareyaasha waxay u maleeyaan in xaalado deegaaneed iyo hiddo-wadeyaal sabab u yihiin dhimashada unugyada soo saaro dopamine.6 “I don’t have much of a tremor. Instead I “Sidaas uma gariiro. Beddelkeedi jirka ayaan sway, and make rather exaggerated gestures as though I was in a boat on a gently billowing sea.” Caroline, diagnosed in 2009 gees-gees u dhaqaajiyaa, iyo dhaqaaqyo wayn ayaa sameeyaa sida qof saaran doon bad ku socda.” Caroline, cudurka lagu ogaadey 2009 What are the symptoms? Waa maxay calaamadaha? The symptoms most often associated with Parkinson’s are tremor, stiffness and slowness of movement.5 Calaamadaha badanaa lagu aqoonsado cudurka Parkinson waa gariirka, giigsanaanta iyo dhaqaaqa oo gaabsamo.5 Tremor4 Gariirka4 Parkinson’s may cause some people’s hands and bodies to shake, which can make everyday activities difficult. Unlike other types of tremor, which affect people while they are moving, a Parkinson’s tremor is more likely to be a resting tremor and tends to affect people while they are still. It may also become more noticeable if someone with the condition is anxious or excited.7 The tremor usually starts on one side of the body and may spread to the other side, as the condition progresses.4 Cudurka Parkinson wuxuu sababi karaa in qaar ka mid ah dadka gacmahooda iyo jirkooda gariiro, kaasoo wax-qabadka maalin walba ka dhigi karo dhib. Wuu ka duwan yahay noocyada gariir ee kale, oo badanaa ku dhaco dadka markii ay dhaqaaqaan, gariirka cudurka Parkinson waa gariir dadka ku dhaco markii aysan dhaqaaqin. Wuxuu xittaa noqon karaa mid si ka badan la ogaan karo haddii qofka cudurka qabo wel-welsan yahay ama faraxsan yahay.7 Gariirka caadi ahaan wuxuu ka bilaabmaa hal dhinac ee jirka iyo wuxuu ku faafaa dhinaca kale ee jirka, markuu cudurka sii hormaro.4 This is probably the most well known of Kani waa caalamadda ugu caansan ee Parkinson’s symptoms, but not everyone with cudurka Parkinson, laakiin qof walba ee the condition has a tremor. cudurka qabo ma gariiro. Muscular rigidity or stiffness Adkaanta ama giigsanaanta murqaha Because their muscles are stiff, some people with Parkinson’s have problems turning around, getting out of chairs, turning over in bed5 or making fine-finger movements, such as writing or fastening a button.5 Inkastoo murqahooda qalafsan yiihiin, qaar ka mid ah dadka qaba cudurka Parkinson waxay dhibaato ku qabaan dhinac u jeedashada, ka istaagida kursi, ku jeesashada sariir5 ama si fiican u dhaqaajinta faraha, tusaale ahaan dhib ayeey ku qabaan wax qoridda ama xirashada galuus.5 Some people find that over time their posture becomes stooped or the muscles in their face become stiff or rigid, making facial expressions more difficult.5 Qaar ka mid ah dadka waxay isku arkaan in waqti ka dib, qaab-jireedkooda wuxuu noqdaa mid foororsan ama murqaha wajigooda ayaa noqdo kuwo adag ama giigsan, kaasoo dhibaato ka dhigo tacbiirada wajiga.5 Slowness of movement Dhaqaaqa oo gaabsamo Starting to move can be more difficult for people with Parkinson’s. They can find it takes longer to do things and they get tired Dhaqaaqa wuxuu dhib u ahaan karaa dadka qaba cudurka Parkinson. Waxay isku arki karaan inuu waqti ka dheer ku qaato wax- more easily. A lack of co-ordination can also be a problem.8 qabadka iyo si ka fudud ayeey u daalaan. Wada-shaqayn la’aanta murqaha wuxuu xittaa ku noqon karaa dhibaato.8 Other symptoms Calaamado kale As well as difficulties with movement, people with Parkinson’s might experience other symptoms such as tiredness, pain, depression, problems with memory, swallowing and sleep, problems urinating, anxiety, and constipation.5 These are often referred to as non-motor symptoms and can have an impact on people’s day-to-day lives.5 Dhibaatoyinka dhaqaaqa dadka qabo cudurka Parkinson waxaa dheeraad u ah calaamado kale sida daalka, xanuunka, murugada, dhibaatada xasuusta, dhibaatada liqidda iyo hurdada, dhibaatada kaadida, wel-wel iyo calool-fadhi.5 Kuwaani waxaa badanaa loo yaqaana calaamadaha aan xiriir la leheen dhaqaaqa jirka iyo waxay raad ku yeelan karaan nolosha maalinlaha ee bukaanka.5 Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Parkinson’s symptoms can be affected by stress9 or illness.10 So, if you are worried, anxious, stressed, nervous or become ill, your Parkinson’s symptoms may become more noticeable. If you notice a change in your symptoms, speak to your GP, specialist or Parkinson’s nurse (if you have one) to rule out any other problems. Calaamadaha cudurka Parkinson waxaa saamayn ku yeelan karo cadaadis 9 ama jirro.10 Sidaa awgeed haddii aad wel-welsan tahay, walaacsan tahay, cadaadis qabtid, cabsanaysid ama jiran tahay waxaa badan karaa calaamadahaada cudurka Parkinson. Haddii aad isku aragto in calaamadahaada cudurka is-beddeleen, la hadal takhtarkaaga guud (GP), takhtarka khabiirka ama kaaliyaha caafimaad ee cudurka Parkinson (haddii aad mid qabtid) si aad u hubiso inaadan dhibaato kale qabin. Does everyone have these symptoms? Miyuu qof walba qabaa calaamadahaan? Not everyone with Parkinson’s experiences the same combination of symptoms – they vary from person to person.4 Qof walba qabo cudurka Parkinson ma lahan isla calaamado – way kala duwan yihiin qof walba.4 Also, how Parkinson’s affects someone can change from day to day, and even from hour to hour – symptoms that may be noticeable one day may not be a problem the next.11 Sidoo kaleba, habka uu cudurka Parkinson saamayn ku yeesho qof walba wuu is beddeli karaa maalin ka maalin, xittaa saacad ka saacad – calaamadaha maalin la arki karo waxay noqon karaan kuwo aan dhibaato eheen maalinta xigta.11 How is Parkinson’s diagnosed? Sidee lagu ogaadaa cudurka Parkinson? Parkinson’s tends to develop gradually12 and it can be a number of months, or even years, before the symptoms become obvious to someone with Parkinson’s – or their family – and for them to talk to their doctor. Cudurka Parkinson waa mid tartiib tartiib u horumaro12 iyo wuxuu ahaan karaa dhowr bilood, ama xittaa dhowr sano, ka hor intii calaamadaha qofka qaba cudurka Parkinson – ama qoyskooda – u noqon kuwo la arki karo iyo ku khasbo inay la hadlaan takhtarkooda. It is not easy to diagnose the condition, so it’s Ogaashada cudurka ma ahan wax fudud, important to see a Parkinson’s specialist to sidaa awgeeda waa muhiim in la arko get an accurate diagnosis.5 takhtarka ku takhasuusan cudurka Parkinson si loo helo cudur ogaansho sax ah.5 The specialist will usually look for slowness of movement plus at least one of the other main symptoms of Parkinson’s tremor and stiffness.5 Takhtarka khabiirka wuxuu badanaa baari doonaa dhaq-dhaqaaqa oo gaabsamey iyo calaamado kale wayn oo dheeraad ah ee cudurka Parkinson sida gariirka iyo giigsanaanta.5 They will also consider your medical history and carry out an examination before making a diagnosis. Your symptoms may have other causes and you may be referred for further tests and scans to rule these out. Waxay xittaa eegi doonaan taariikhdaada caafimaad iyo waxay samayn doonaan baaritaan ka hor intii ay cudurka kugu ogaanin. Calaamadahaada waxaa sababi karo cuduro kale iyo waxaa suurtogal ah in laguu diro baaritaanyo iyo skaan kale si kuwaani laga saaro. “My GP was reluctant to refer me in the beginning. Eventually, he wrote a letter to a specialist. After four months, I had blood tests and an MRI scan. In all, it took two years to get the diagnosis.” Kris, diagnosed in 2004 “Takhtarkayga wuu diidanaa inuu ii gudbiyo takhtarka khabiirka. Ugu dambayntii, wuxuu warqad u qorey takhtarka khabiirka. Afar bilood ka dib, waxaa laygu sameeyey baaritaanka dhiigga iyo skaanka MRI. Gebi ahaan wuxuu ku qaatey labo sano ogaanshada cudurka.” Kris, cudurka lagu ogaadey 2004 How quickly does the condition progress? Waa maxay horumarka cudurka? The symptoms someone might have and how Calaamadah uu qofka qabo iyo sida uu quickly the condition develops will differ from cudurka u horumaro wuu kala duwanaan one person to the next.13 karaa qofkiiba.13 For many people, the condition can take years to progress to a point where it can have a real impact on daily life. Many of the symptoms can be treated or managed with medication. 5 Dad badan, cudurka waqti badan ayuu ku qaadan karaa horumarkiisa ilaa uu saamayn wayn ku lahaado noloshooda maalinlaha. Badanaa calaamadaha waxaa lagu maamuli karaa daawoyin. 5 Is there a cure? Miyaa la daawayn karaa? There is no cure for Parkinson’s at the moment. Researchers and scientists are making advances in understanding the condition, its causes and how best to treat it. In fact, research has made more progress towards finding a cure in the last decade than ever before. There have also been some exciting new areas of research, including gene therapy and stem cell therapy. Iminka ma jiro wax gebi ahaan lagu daaweeyo Cudurka Parkinson. Cilmibaareyaasha iyo cilmi-yaqaanada waxay bilaabeen inay gartaan cudurka, waxyaabaha sababo iyo sida loo daawayn karo. Dhab ahaan, cilmi-baareyaasha tobanka sano ee la soo dhaafey waxay horumar wayn ka sameeyeen helitaanka daawo. Waxaa xittaa cilmi-baaris laga sameeyey aago cusub sida daaweynta hiddo-wadeyaasha iyo daaweynta unugyada asliga ah. Parkinson’s UK is the largest charity funder of Parkinson's research in Europe. We've already made enormous strides in our understanding of the condition and developed better treatments and therapies. But despite recent progress we're still searching for a cure. You can find out more about our current research at parkinsons.org.uk/research Parkinson’s UK waa ururka samafalka ugu wayn ee Yurub ee maalgeliyo cilmi-baarista cudurka Parkinson. Waxaan tallaaboyin wayn ka sameyney garashada cudurka iyo samaynta daawayn iyo dabiibyada (noocyo daaweyn kale). Laakiin xittaa inkastoo aan dhowaan horumar sameyney weli waxaan raadineynaa daawayn. Waxaad ogaan kartaa wax intaa ka badan ee ku saabsan cilmibaarisyadeena markaad tegto parkinsons.org.uk/research You may also be interested in joining our Research Support Network. If you join, we’ll send you emails with the latest opportunities to support Parkinson's research. For information email research@parkinsons.org.uk. Waxaa suurtogal ah inaad rabtid inaad ku biirto Shabaakadeena Taageerida Cilmibaarista. Haddii aad ku biirto, waxaan kuu soo diri doonnaa email ku qoran fursadaha ugu dambeeyo ee lagu taageero cilmibaarista cudurka Parkinson. Si aad macluumaad u hesho email u dir research@parkinsons.org.uk. Can people die from Parkinson’s? Dadku miyeey ku dhiman karaan cudurka Parkinson? For most people, their life expectancy won’t change much because of Parkinson’s.14 However, some of the more advanced symptoms can lead to increased disability and poor health, which can make someone more vulnerable to infection.13 Dadka badankooda saadaalinta noloshooda isma beddelo markuu ku dhaco cudurka Parkinson.14 Hase-yeeshe, markuu ku dhaco calaamadaha waa-wayn ee cudurka waxay sababi karaan caafimaad-xumo iyo naafonimo kaasoo qof nugul ka dhigi karo inuu infakshan ku dhaco.13 The most important thing is to try to manage Waxa ugu muhiimsan waa inaad isku daydo your condition as best as you can with the inaad maamusho xaaladdaada sida ugu fiican support of specialist healthcare professionals. adigoo taageerid ka helaayo xannaaneyayaasha caafimaadka ku takhasuusan cudurka. Are my children at risk of Parkinson’s? Carruurtayda miyeey ku jiraan halis inuu ku dhaco cudurka Parkinson? It’s rare to find more than one person in a family who has Parkinson’s. Researchers believe the condition can sometimes be inherited, but this only happens in rare cases.3 Waa dhif in qoys laga helo hal qof ka badan ee qabo cudurka Parkinson. Cilmibaareyaasha waxay aaminsan yihiin in cudurka mar mar la iska dhaxli karo, laakiin in kani dhif yahay.3 Is Parkinson’s infectious? Miyaa la iska qaadaa cudurka Parkinson? No, Parkinson’s can’t be caught like the flu or Maya, cudurka Parkinson uma faafo sida measles. No one knows what causes it, but experts agree that it is not infectious.15 jadeecada ama hargabka. Weli lama oga waxa sababa, laakiin khabiiraada waxay ku heshiiyeen inuusan eheen cudur faafa ee la iska qaado.15 How many people have Parkinson’s? Imisa qofood ayuu ku dhacaa cudurka Parkinson? In the UK, there are around 127,000 people with the condition, and each year, about 10,000 people are diagnosed.2 Dalka UK, waxaa ku nool qiyaas ahaan 127,000 qofood ee qaba cudurka, sanad walbana 10,000 qofood ayaa cudurka lagu ogaadaa.2 How old are people when they get Parkinson’s? Waa imisa jir dadka markuu ku dhaco cudurka Parkinson? The risk of developing Parkinson’s increases with age. Most people who get Parkinson’s are aged 50 or over, but younger people can get it too.1 Halista in qof ku dhaco cudurka Parkinson wuxuu ku sii koraa da’da qofka. Dadka badankood ee ku dhaco cudurka Parkinson waa 50 jir ama ka wayn, laakiin wuxuu ku xittaa ku dhici karaa dad ka da’ yar.1 “I find my tremor is linked to periods of anxiety or excitement and to cold weather. One trick which often helps is to turn the hand so the palm is facing the ceiling. Holding this position for a couple of minutes helps still the tremor.” John, diagnosed in 2005 “Waxaan isku arkey in gariirkayga xiriir la leeyahay waqtiyada aan walaacsanahay ama faraxsanahay iyo jawiga qabow. Hal hab aan ku yareeyo gariirka waa kor u qaadida calaacalaha gacmaha. Sidaan ayaan gacmaha ku haayaa dhowr daqiiqo, gariirkana wuu joogsadaa.” John, cudurka lagu ogaadey 2005 Treatments and therapies Daaweynta iyo dabiibyada “I was prescribed medication when I was diagnosed with Parkinson’s. I have since also benefited from courses of speech therapy, physiotherapy and conductive education.” Ali, diagnosed in 2005 “Waxaa la ii siiyey daawo markii laygu ogaadey cudurka Parkinson. Waxaa xittaa kaa faa’ideystey daaweynta hadalka, fisiyoterabi iyo waxbarashada tabinta leh.” Ali, cudurka lagu ogaadey 2005 How is Parkinson’s treated? Sidee loo daaweeya cudurka Parkinson? Although there’s currently no cure, a range of Iminka ma jiro daawayn ama daawo, waxaa drugs, treatments and therapies are available jiro daawayn iyo dabiibyo lagu maamulo to manage many of the symptoms.5 calaamadaha cudurka.5 Medication is usually the main treatment for Parkinson’s,5 but you should also have access to health and social care professionals from different teams, who can offer different types of therapy, such as speech and language therapy and physiotherapy. See page x for more information. Daawo ayaa badanaa lagu maamulaa cudurka Parkinson,5 laakiin waa inaad xittaa hesho xannaanada khabiiraada caafimaadka iyo bulshada ee ka socdo kooxyo kala duwan, iyo ku siin karo daawayn kala duwan, sida daawaynta hadalka, luqada iyo fisiyoterabi. Macluumaad ka badan ka eeg bogga x. There are several types of drugs used to treat Waxaa jiro dhowr daawoyin loo isticmaalo Parkinson’s, and they work in different ways to relieve some of the symptoms.5 For a lot of people who have just been diagnosed, Parkinson’s drugs can be a great help. However, if your symptoms are mild, you might decide, together with your specialist, to postpone drug treatment until your symptoms increase. This is because Parkinson’s drugs can become less effective over time,16 or you might start to develop side effects after taking them for a while.16 cudurka Parkinson, iyo si kala duwan ayeey u shaqeyaan si ay u yareeyaan calaamadaha cudurka.5 Dad badan oo dhowaan lagu ogaadey cudurka Parkinson, daawoyinka aad ayeey u caawin karaan. Hase-yeeshe, haddii calaamadahaada dhex-dhexaad yihiid, waxaad adiga iyo takhtarkaaga khabiirka isla go’aamin kartiin inaad dib u dhigto isticmaalka daawoyinka ilaa ay calaamadaha kordhaan. Sababta waxaa weeye, daawoyinka cudurka Parkinson waqti ka dib saamayn yar ayeey kugu lahaan karaan,16 ama waqti ka dib ayeey waxyeello ku gaarsiin karaan.16 Whether or not you decide to take medication in the early stages, it’s important to make sure your lifestyle is as healthy as possible, focusing on exercise, relaxation and diet. Haddii aad go’aamiso iyo inkale inaad isticmaasho daawoyinka marxaladaha kowaad, waxaa muhiim ah inaad hubiso in hab nololeedkaaga ahaado midka ugu caafimaad badan ee suurtogalka ah, adigoo diiradda saaraayo jimicsiga, nasashada iyo cunto qaadasho nidaamsan. If you do need medication you might need to take several different drugs, and the dosages you take may increase as your symptoms change.5 It will be important to set up a good system for getting your prescriptions and for ensuring you take your drugs at the right times. Haddii aad u baahan tahay daawo, waxaa lagu siin karaa daawoyin badan oo kala duwan iyo waxaa la sii kordhin karaa qiyaasta aad isticmaasho markii calaamadahaada isbeddelo.5 Waxaa muhiim noqon doono inaad diyaariso nidaam fiican aad rijeetoyinka daawada ku soo qaado si aad u hubiso in daawada kaa go’in iyo qaadato waqtiga saxda ah. If you do choose, alongside your healthcare professionals, to take medication for your condition, it is important that you don’t stop taking it without first discussing it with your specialist or Parkinson’s nurse. Haddii aadiga iyo xirfadlahaada daryeelka caafimaadka go’aamisaan inaad daawo u isticmaashaan cudurkaaga, waxa muhiim ah inaadan joojinin isticmaalka daawada ka hor intii aadan la hadlin takhtarkaaga khabiirka ama kaaliyaha caafimaadka cudurka Parkinson. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. What is impulsive and compulsive behaviour? Waa maxay akhlaaqda sal-fududka iyo midda khasabka ah? Impulsive and compulsive behaviour is a possible side effect of some Parkinson’s drugs.17 Although only a relatively small Akhlaaqda sal-fududka iyo midda khasabka ah waa waxyeellada ka yimaado daawoyinka cudurka Parkinson.17 Inkastoo tiro yar oo number of people experience it, it can have a qofood ku dhaco, wuxuu raad wayn ku big impact on the person affected and those lahaan karaa dadka uu saamayn ku yeeshay around them. iyo dadka ku heeraaro. Impulsive behaviour is when a person can’t resist the temptation to carry out certain activities that could lead them to harm themselves or others. In a lot of cases, this behaviour is out of character. Akhlaaqda sal-fududka waa markii qof uu adkaysan karin jirrabaadda (duufsiga) inay qabtaan waxyaabo waxyeellayn karo ayaga ama dad kale. Marar badan akhlaaqdaan waa mid aan caadi eheen. Compulsive behaviour is when a person has an overwhelming drive to act in a certain way, often repetitively, to reduce the worry or tension that they get from their urge. These behaviours can include addictive gambling, eating and shopping, or an increase in sexual thoughts and feelings. Often, people may have more than one of these behaviours. Akhlaaqda khasabka ah waa markii qof dareen xad-dhaaf u leeyahay inuu si gaar ah u dhaqmo, badanaa si noq-noqod leh, si ay u yareeyaan wel-welka iyo xiisadda ay dareemaan. Akhlaaqdaan waxaa ka mid ah uu caadeysi khamaar, cunto iyo dukaamaysi, ama fikrad iyo dareen galmo. Badanaa, dadka waxay lahaan karaan hal ka mid ah akhlaaqyadaan. Talk to your healthcare professional about these side effects, when you are prescribed Parkinson’s medication. Markii laguu qoro daawoyinka cudurka parkinson, u sheeg xirfadlahaada daryeelka caafimaadka. If you think you’re experiencing impulsive and compulsive behaviour, or if you are a family member, carer or friend of someone with Parkinson’s and notice them behaving differently, don’t be afraid to seek help. Your healthcare professional will have spoken to others who have experienced these symptoms, and everything you tell them remains confidential. Haddii aad u maleyso inaad qabtid akhlaaq sal-fudud iyo khasab ah, ama haddii aad xubin qoys, daryeele ama saxiib u tahay qof qaba cudurka Parkinson iyo ku aragto akhlaaq ka duwan, ha ka cabsan inaad caawinaad soo codsato. Xirfadlahaada daryeelka caafimaadka wuxuu la hadley dad kale ee wax-yeelloyinkaan soo marey, iyo wax walba aad u sheegto waxaa lagu hayn doonaa si sir ah. Remember, it is important to take your medication as prescribed. If you are worried about any symptoms, speak to your specialist or Parkinson’s nurse before changing your medication. Xasuuso, waa muhiim inaad daawadaada u qaadato si laguu qorey. Haddii aad ka welwelsan tahay calaamadaha, la hadal takhtarkaaga khabiirka ama kaaliyaha caafimaad ee cudurka Parkinson ka hor intii aadan beddelin daawadaada. You can call our free confidential helpline on 0808 800 0303 (calls are free from UK landlines and most mobile networks) or email hello@parkinsons.org.uk Waxaad wici kartaa khadkeena sirta oo bilaashka ah, ka wac 0808 800 0303 (wicitaanyada waxay bilaash ka yihiin khadadka dhulka ee dalka UK iyo badanaa shirkadaha telefoonka gacanta) ama email u soo dir hello@parkinsons.org.uk Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. What surgical options are there? Waa maxay qalliinka la heli karo? Deep brain stimulation is a form of surgery used to control some of the symptoms of Parkinson’s. It involves passing small electrical currents through electrodes that are implanted in the brain.16 Waxaa jiro nooc qalliin lagu magacaabo kicinta qaybta hoose ee maskaxda ee loo isticmaalo si lagu maamulo qaar ka mid ah calaamadaha cudurka Parkinson. Waxaa koronto yar la marsiiyaa fiiloyin lagu xirey maskaxda.16 This isn’t a suitable option for everyone and, like any surgery, there are some risks involved. It is normally only considered as an option if your medication no longer helps with your medication.5 Kan ma ahan xulasho qof walba lagu talagalay iyo, sida qalliin walba wuxuu leeyahay halisyo. Waxaa la isticmaalaa oo kaliya haddii daawoyinkaaga waxba kuu qaban. 5 Talk to your specialist for more details. La hadal takhtartaaga khabiirka si aad u hesho macluumaad ka badan. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Which professionals can help me? Waa kuwee khabiirada I caawin karo? Many people may be involved in helping you manage your condition. Some will have a bigger role than others, depending on your symptoms. Dad badan ayaa kugu caawin karo maamulka xaaladdaada. Ayadoo ku xiran calaamadahaada, qaar waxay lahaan karaan door ka wayn kuwa kale. Your GP, specialist or Parkinson’s nurse can make referrals to the health and social care professionals listed on pages x to x. In some areas, you may be able to refer yourself. GP’gaaga, takhtarka khabiirka ama kaaliyaha caafimaadka cudurka Parkinson ayaa kuu gudbin karo xirfadlayaasha bulshada iyo daryeelka caafimaadka ee ku qoran bogga x ilaa x. Qaar ka mid ah deegaanada, adiga ayaa adeeg isku gudbin kara. Parkinson’s UK information and support workers can also provide information about, and links to, your local services. See page xx for details of how to find your local information and support worker. Shaqaalaha macluumadka iyo taageerida Parkinson’s UK waxay xittaa ku siin karaan macluumaadka iyo xiriiryada adeegyada deegaankaaga. Eeg bogga xx si aad u hesho faah-faahinta habka loo helo shaqaalaha macluumaadka iyo taageerida xaafaddaada. Assessing the full range of Parkinson’s symptoms – especially those not related to movement – can be difficult. Parkinson’s UK has a questionnaire available to help you and your GP, specialist or Parkinson’s nurse look at your non-motor symptoms.18 Qiimeynta calaamadaha oo dhan ee cudurka Parkinson – gaar ahaan kuwa aan xiriir la leheen dhaqaaqa – wuxuu ahaan karaa dhib. Parkinson’s UK wuxuu qabaa su’aaloweydiimo oo adiga iyo GP’gaaga, takhtarka khabiirka iyo kaaliyaha caafimaad ee cudurka Parkinson idinku caawinaayo eegida calaamadaha aan dhaq-dhaqaaqa xirir la leheen. 18 You can download the questionnaire from our website – parkinsons.org.uk/content/non-motorsymptoms-questionnaire – or use the copy included on page x. Waxaad su’aalo-weydiimaha ka soo baxsan kartaa boggeena internetka – parkinsons.org.uk/content/non-motorsymptoms-questionnaire – ama isticmaal koobiga ku yaalo bogga x. At the back of this booklet, there’s also a space for you to keep details of all the professionals you see. You can take this along to your GP, specialist or Parkinson’s nurse appointments to remind you which professionals you would like to be referred to. Buug-yarahaan dibediisa waxaa xittaa ku yaalo meel aad ku qori kartid faah-faahinta dhammaan khabiirada aad u tegto. Waxaad kani u geyn kartaa GP’gaaga, khabiirkaaga ama kaaliyaha caafimaad ee cudurka Parkinson si ay kuu xasuusiyaan takhtarka khabiirka aad rabtid in laguu gudbiyo. Dietitians can help if you have problems with your diet, for example if you are under or overweight or have digestive problems, such as constipation. Xirfadlaha cuntada nidaamsan ayaa ku caawin karo haddii aad dhibaato ku qabtid cuntadaada, tusaale ahaan haddii culayskaaga hooseeyo ama sarreeyo ama dhibaato ku qabtid habka dheef-shiidka, sida calool fadhiga. GPs can refer you to a range of healthcare professionals, such as hospital specialists, psychologists and physiotherapists. GP’yada waxay kuu gudbin karaan xirfadlayaal daryeel caafimaad, sida khabiirada isbitaalka, takhaatiirta cilminafsiga iyo takhtarka daaweynta dabiiciga. Your GP may know you well, which can be helpful. But the average GP, generally, has only three or four patients with Parkinson’s, and it’s unlikely they will know as much about the condition as specialists do. We recommend you see a specialist for advice about your Parkinson’s. GP’gaaga ayaa si fiican u og, kaasina waxtar ayuu leeyahay. Laakiin caadi ahaan GP’yada waxay qabaan oo kaliya seddax ama afar bukaan oo qaba cudurka Parkinson, iyo waa dhif inay ka aqoon badan yihiin khabiirada. Waxaan kula talineynaa inaad u tegto khabiir si aad talo ka hesho cudurkaaga Parkinson. Occupational therapists5 (often known as OTs) can help people with disabilities to stay as independent as possible. They assess how able you are to carry out day-to-day activities and suggest ways of making your home and workplace safer or more manageable. They can advise you about appropriate adaptations, aids or equipment. Occupational therapists can also tell you about leisure activities that can help you stay fit and that you may enjoy. Daaweeyayaasha wax-qabadka5 (badanaa lagu yaqaano OT) waxay dadka naafonimo qabo ku caawiyaan inay ahaadaan madaxbannaan. Waxay qiimeeyaan sida aad u awoodoo inaad u qabato wax-qabadyada maalinlaha iyo waxay talo ka baxshaan sida gurigaaga ama goobtaada shaqo looga dhigi karo meel ka ammaansan iyo la maamuli karo. Waxay kugu talin karaan la qabsashada, qalabyada laguu rakibi karo. Daaweeyayaasha wax-qabadka waxay xittaa kuu sheegi karaan wax-qabadyada waqtiga raaxada ah aad qaban kartid oo si habboon kugu haynaayo iyo aad ka heli kartid. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Parkinson’s nurses5 have specialist experience, knowledge and skills in Parkinson's. They have an important role in the care of people with Parkinson’s, including offering guidance on managing medication. Kaaliyayaasha caafimaad ee cudurka Parkinson5 waxay waayo-aragnimo gaar ah, aqoon iyo xirfad ku qabaan cudurka Parkinson. Waxay door wayn ku leeyihiin xannaanada dadka qabo cudurka Parkinson, ay ku jirto bixinta hanuunin ama maamulka daawoyinka. Currently, not all areas have access to a Parkinson’s nurse. If you want to find out more about the healthcare services available in your area you can ask your GP, or your local Parkinson’s UK information and support worker can help you. See page xx for details of how to find your local information and support worker. Iminka, deegaanada oo dhan ma lahan kaaliyayaasha caafimaadka cudurka Parkinson. Haddii aad rabtid inaad ogaato wax intaa ka badan ee ku saabsan adeegyada daryeelka caafimaadka laga heli karo deegaankaaga waxaad caawinaad ka codsan kartaa GP’gaaga, ama shaqaalaha macluumaadka iyo taageerida Parkinson’s. Ka eeg bogga xx faah-faahinta sida loo helo shaqaalaha macluumaadka iyo taageerida xaafaddaada. Parkinson’s specialists5 are doctors, usually neurologists or geriatricians (specialists in the care of older people) with a particular interest in Parkinson’s. Khabiirada cudurka Parkinson5 waa taakhaatiir, badanaa taakhatiirta maskaxda ama takhaatiirta ku takhasuusan xannaanada dadka duqa ah oo aqoon gaar u leh cudurka Parkinson. Make sure you are referred to a specialist because Parkinson’s is a complex condition that is difficult to diagnose, and can require complex drug treatment. The clinical guidelines on Parkinson’s recommend that people are referred to a specialist by their GP without treatment.5,19 Hubi in laguu gudbiyo khabiir sababtoo ah cudurka Parkinson waa cudur dhib ah in la ogaado, iyo u baahan daawoyin dhib ah. Taloyinka caafimaad ee cudurka Parkinson wuxuu ku taliyaa in GP’ga dadka u gudbiyo khabiir daaweyn la’aan.5,19 Check that your neurologist or geriatrician is Baar in takhtarkaaga khabiirka maskaxda ama a Parkinson’s specialist as not all of them are. khabiirka dadka duqa uu ku takhasuusan yahay cudurka Parkinson, sababtoo ah dhammantooda takhasuus kuma ahan. If you are referred for an appointment with a specialist in England, you are able to choose where you are treated, and where appropriate, which named specialist-led team you would like to be treated by. Haddii gudbinta takhtarka khabiirka lagu sameeyo England, waxaad awoodda inaad xulato meesha lagugu daaweyn doono, iyo haddii uu habboon yahay, kooxda khabiirka ku daaweyn doono. If you live in Northern Ireland, Scotland or Wales and you’re not happy with the specialist you’re referred to, tell your GP. They may be able to make an appointment Haddii aad ku nooshahay Waqooyiga Ayrland, Skotland ama Wales iyo aadan ku faraxsaneen takhtarka khabiirka laguu gudbiyey, u sheeg GP’gaaga. Waxaa suurtogal for you with another specialist, either at the ah inay ballan kaaga sameyaan khabiir kale, same hospital or elsewhere. But it’s isla isbitaalka ama meel kale. Laakiin xasuuso important to keep in mind that this may delay in kani daahin karo daaweyntaada. your treatment. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. You may find that access to other professionals, such as Parkinson’s nurses, therapists and dietitians, might be easier through your specialist, as they often work in teams with other related healthcare professionals. Waxaad arki kartaa in helitaanka khabiiro kale sida kaaliyayaasha caafimaadka cudurka Parkinson, daaweeyayaasha dabiiciga iyo xirfadlayaasha cuntada nidaamsan ka fududaan karo markaad u mareyso khabiirkaaga sababtoo ah badanaa waxay koox ahaan la shaqeyaan xirfadlayaasha daryeelka caafimaadka kale. “The Parkinson’s nurse was immensely helpful – coming to my house when I was newly diagnosed and explaining Parkinson’s to me so well and clearly that I remember many of her exact words.” Diana, diagnosed in 2004 “Kaaliyaha caafimaadka cudurka Parkinson isla markiiba way I caawisey – guriga ayeey igu timid markii dhowaan laygu ogaadey cudurka iyo waxay si fiican iyo cad ii sharraxdey cudurka Parkinson, waxaana weli xasuusta ereyoyinka saxda ah ay isticmaashey.” Diana, cudurka lagu ogaadey 2004 Pharmacists can help you understand the medication you are prescribed and explain how to take it. Farmashiistayaasha wuxuu kugu caawin karaa garashada daawoyinka laguu qorey iyo wuxuu kuu sheegi karaa sida loo qaato. If you have other illnesses or conditions you need medication for, your pharmacist can guide you on how to take these alongside your Parkinson’s medication. Haddii aad qabtid cuduro kale oo aad daawo ugu baahan tahay, farmashiistahaada ayaa kugu talin karo sida kuwaan lala qaato daawadaada cudurka Parkinson. They can also advise on dispensing aids, such Waxay xittaa talo kaa siin karaan qalabyada as pill timers, and offer advice if you find daawoyinka lagu shubo, sida kuwa lagu opening bottles difficult. xasuusto kaniiniyada, iyo waxay ku siin karaan talo haddii aad dhibaato ku qabtid furitaanka dhaloyinka. Physiotherapists5 use physical treatments, including exercise, to help manage any stiffness in joints and to restore muscle strength and mobility. They can also advise your carer (if you have one) on safe ways to help you if you have problems moving and suggest ways to prevent falls. Seeing a physiotherapist can make a real difference, so we recommend that you ask to be Takhaatiirta fisiyoterabiga5 waxay sameeyaan daaweyn jireed ay ku jirto jimicsi si lagugu caawiyo maamulka kala-goysyada adkaadey iyo kuu soo celiyaan xoogga muruqa iyo dhaqaaqa. Waxay xittaa daryeelahaada (haddii aad mid qabtid) siin karaan talo ku saabsan habab ammaan ah ay kuu caawin karaan haddii aad dhibaato ku qabtid dhaqaaqa iyo waxay ku talin karaan referred. hab laga hortago kufidda. U tegidda takhtarka fisiyoterabiga wuxuu kuu siin karaa isbeddel dhab ah, sidaa awgeeda waxaan kugu talineynaa inaad codsato in laguu gudbiyo. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Practice nurses work in GP practices. They carry out regular checks and run advice sessions. They can be a useful source of information, particularly about general health problems. Kaaliyayaasha caafimaadka waxay ka shaqeeyaan rugaha GP’ga. Waxay sameyaan baaritaanyo caadi ah iyo waxay baxshaan talo. Waxay noqon karaan ilo macluumaad waxtar leh, gaar ahaan ku saabsan dhibaatoyinka caafimaadka caadiga ah. “For the past six years I have been having one-to-one Pilates lessons, which have been extremely helpful. I enjoy it immensely and it makes me feel refreshed and ready to go. My instructor is always thinking up new exercises to try and keep my brain and body alert!” Thelma, diagnosed in 1983 “Lixda sano ee la soo dhaafey waxaan sameeyey jimicsiga Pilates, kaasoo aad ii caawiyey. Aad ayaan uga heley iyo waxay iga dareensiiyaan nafis iyo diyaar inaan wax qabto. Macallinkayga wuxuu mar walba ka fikiraa jimicsi cusub si uu jirkayga iyo maskaxdeeda u diyaariyo!” Thelma, cudurka lagu ogaadey 1983 Psychologists and counsellors can support people who might need help coming to terms with their condition. They can also help you manage any feelings of anxiety, low mood or depression. Talo-bixiyayaasha iyo takhaatiirta nafsiga waxay caawin karaan dadka dhibaato ku qabo ogolaanshada iyo la qabsashada cudurka. Waxay xittaa kugu caawin karaan maamulka dareen walaac, murugo ama welwel walba. Social workers can advise on home support, claiming benefits and respite care. They are also responsible for your community care assessment and for carers’ assessments. Contact your local Social Services Department, or Social Work Department if you live in Scotland, for access to a social worker. Shaqaaleyaasha bulshada waxay talo kaa siin karaan taageerida guriga, codsiga ceyrta iyo xannaanada nasashada. Waxay xittaa mas’uul ka yihiin qiimeynta xannaanada jaaliyaddaada iyo qiimeynta daryeelayaasha. La xiriir Waaxda Adeegga Bulshada Deegaankaaga, ama Waaxda shaqada bulshada haddii aad ku nooshahay Skotland, si aad u hesho shaqaale bulsho. Speech and language therapists5 (often known as SALTs) are healthcare professionals who specialise in all aspects of communication, from facial expression and body language to speech and communication aids. They are also experts in swallowing problems. Speech and language therapists can be extremely helpful, so we recommend you speak to one as soon as you can. Daaweeyayaasha hadalka iyo luqada5 (badanaa lagu yaqaano SALTs) waa xirfadlayaal daryeel caafimaad oo ku takhasuusan dhammaan dhinacyada isgaarsiinta , laga bilaabo tacbiirka wajiga iyo luqada jirka ilaa qalabyada lagu fududeeyo isgaarsiinta iyo hadalka. Waxay xittaa khabiir ku yihiin dhibaatoyinka liqidda. Daaweeyayaasha luqada iyo hadalka aad ayeey kuu caawin karaan, sidaa awgeeda waxaan kugu talineynaa inaad mid sida ugu dhaqsi badan la hadasho. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Do complementary therapies have any benefit? Miyaan waxtar ka heli karaa daawoyinka siyaadada ah? There is no simple answer to this question. We’ve heard from many people who feel they have benefited from using these therapies. For example, some people have told us they can help to manage symptoms, reduce stress, and provide an overall sense of wellbeing. And many of our local groups organise complementary therapy sessions at their meetings to encourage people to give them a try. Ma jiro hab fudud ee su’aashaan looga jawaabi karo. Waxaan war ka helney dad badan ee inoo sheegey in waxtar u lahaadey daaweyntaan. Tusaale ahaan, qaar ka mid ah dadka waxay inoo sheegeen inay ku caawin karaan maamulka calaamadaha, yareynta cadaadiska, iyo inuu siiyo dareen caafimaad qab. Iyo kuwo badan ee ka mid ah kooxaheena deegaanka waxay qabanqaabiyaan daaweyno dheeraad ah markii ay kullamo sameynayaan si ay dadka ku dhirrigeliyaan inay tijaabiyaan. However, there has not been a lot of medical research about their effectiveness to treat Parkinson’s symptoms.20 So there isn’t enough scientific evidence to say for certain that complementary therapies have benefits for Parkinson’s symptoms. And, because there are so many types of therapy, it is impossible to generalise as to whether they work or not. Hase-yeeshee, cilmi-baaris badan lagama sameynin waxtarka daawoyinka calaamadaha cudurka Parkinsons.20 Sidaas awgeeda ma jiro caddayn saynis ku filan e lagu xaaqijiyo in daawoyinka siyaadada waxtar u leeyihiin calaamadaha cudurka Parkinson. Iyo, inkastoo ay jiraan daaweyn badan, suurtogal ma ahan in gebi ahaan la sheego haddii ay waxtar leeyihiin iyo inkale. It will also depend on what you expect from them. For example, you may not feel a particular therapy is having a positive effect on your Parkinson’s symptoms, but you may enjoy the experience. In this case, you may feel this is enough of a benefit for you to continue.21 Wuxuu xittaa ku xirnaan doonaa wixii aad ka fileyso. Tusaale ahaan, ma dareemi kartid haddii daaweyn gaar ah saamayn fiican ku yeeshey calaamadaha cudurkaaga Parkinson, laakiin waxaad jeclaan kartaa waayoaragnimada. Kiiskaan, waxaad dareemi kartaa in kani faa’iido kugu filan ku siiyo iyo inaad sii wado.21 We recommend you consult your GP, specialist or Parkinson’s nurse for advice if you’re interested in trying complementary therapies, to find out if they are suitable for you. This is particularly true of herbal medicines or any therapy that involves taking vitamins, as some of these might interfere with Parkinson’s medication.22 It is also Waxaan kugu talineynaa inaad la hadasho iyo talo ka raadsato GP’gaaga, khabiirkaaga ama kaaliyaha caafimaad ee cudurka Parkinson, si aad u ogaato inay kuu habboon yihiin isticmaalka daawoyinka siyaadada ah. Kani wuxuu gaar ahaan dhab u yahay daawoyinka dabiiciga ama daaweyn kale oo ku saabsan qaadashada fiitamin, sababtoo ah qaar ka important to use a qualified complementary therapist – GP surgeries can often provide a list of local practitioners. mid ah kuwaani waxay faragali karaan daawoyinkaaga cudurka Parkinson.22 Waxaa xittaa muhiim ah in la isticmaalo daaweeyaha siyaadada – rugaha GP’ga ayaa badanaa ku siin karo liiska magacyada kuwa ka shaqeeyo deegaanka. Find out more: see our booklet Complementary therapies and Parkinson’s. Ogow wax intaa ka badan: eeg buugyareheena Daawoyinka siyaadada ah iyo cudurka Parkinson. I have another medical condition as well as Parkinson’s. What should I do? Waxaan qabaa cudur kale oo dheeraad u ah cudurka Parkinson. Maxaan sameeyaa? If you have another medical condition and are concerned about how this will affect your Parkinson’s or vice-versa, speak to your GP, specialist or Parkinson’s nurse. Haddii aad qabtid xaalad caafimaad kale iyo aad ka wel-welsan tahay sida uu kani saamayn ku yeelan doono cudurkaaga Parkinson, la hadal GP’gaaga, takhtarkaaga khabiirka ama kaaliya caafimaadka cudurka Parkinson. Make sure that all the healthcare professionals involved in your care are aware of your health issues. Also, tell them about any treatments that have been suggested or prescribed any another healthcare professional you may have seen. This will ensure you receive the best all-round care. Hubi in dhammaan xirfadlayaasha caafimaadka ee ka qayb galo daryeelkaaga ay og yihiin dhibaatoyinkaaga caafimaad. Sidoo kaleba, u sheeg wax ku saabsan daawayn walba ee laguu taliyey inaad isticmaasho ama laguu qorey iyo xirfadle caafimaad kale ee aad aragtey. Kani wuxuu hubin doonaa inaad heli doonto daryeelka ugu fiican ee dhibaatoyinkaaga oo dhan. Living with Parkinson’s La nololka cudurka Parkinson “I was diagnosed with Parkinson’s in March 2012. Getting a name for what I was experiencing was actually a weight off my shoulders, after the initial shock. I am still in full-time employment and am determined Parkinson’s will not rule mine, or my family’s lives.” David, diagnosed in 2012 “Waxaa cudurka Parkinson laygu ogaadey Maarso 2012. Shooki koowaad ka dib waan degay, sababtoo ah waxaan ogaa magaca cudurka ii haayey. Weli waqti buuxa ayaan shaqeeyaa iyo waxaan go’aansadey in cudurka Parkinson xukumi doonin noloshayda iyo midda qoyskayga.” David, cudurka lagu ogaadey 2012 Will I be able to carry on working? Miyaan awoodi karaa inaan sii shaqeeyo? For people who are in full- or part-time work, being diagnosed with Parkinson’s may be a concern. Work is an important source of income, but can also build confidence, selfesteem and personal satisfaction. Dadka waqti buuxa ama waqti dhiman shaqeeyo, wel-wel ayuu u ahaan karaa ogaanshada cudurka Parkinson. Shaqada waa meel muhiim ahaan dhakhli ka soo galo, laakiin wuxuu xittaa dhisi karaa isku kalsoonaan iyo qanacsanaan shaksiyadeed. Just because you’ve been diagnosed with Markii lagugu ogaado cudurka Parkinson, Parkinson’s, it doesn’t mean you have to stop loogama jeedo in la rabo inaad shaqada work. joojiso. If you do need or want to carry on working, it is really important to work out the most effective treatment for your symptoms with your specialist. Haddii aad rabtid ama u baahan tahay inaad sii shaqeyso, waxaa muhiim ah inaad takhtarkaaga khabiirka kala hadasho daaweynta calaamadaha cudurka ugu fiican ee aad isticmaali kartid. If work causes practical problems, an occupational therapist can do an assessment and help you to find solutions. Speak to your employer about getting an assessment. Haddii shaqada kugu sababo dhibaatoyin camali ah, daaweeyaha wax-qabadka ayaa qiimeyn kugu samayn karo iyo kula heli karo xal. Weydii shaqo-bixiyahaada inuu ku siiyo qiimeyn. Of course there are some jobs that might cause problems for you. For example, if your job requires a lot of energy or physical strength or if your tremor interferes with your ability to use your hands for writing. If this is the case, you might need to consider an alternative role. Dabcan waxaa jiro shaqoyin dhibaato kuu keeni karo. Tusaale ahaan, haddii shaqadaada u baahan yahay inaad lahaato quwad badan ama xoog ama haddii gariirka kaa dhax-galo awoodda aad ku isticmaasho gacmaha markaad wax qoreyso. Haddii uu sidaan yahay, waxaad u baahan tahay inaad qabato shaqo kale. Your employer has a legal duty to make ‘reasonable’ adjustments and make changes to your employment where necessary. This might include being flexible about your hours or getting equipment to help you with your role. Shaqo-bixiyahaaga waxaa saaraan waajibaad sharciyeed inuu is-beddel ‘macquula ah’ sameeyo iyo inuu beddelo habka aad u shaqeyso haddii loo baahdo. Kani waxaa ka mid ah ahaanshada shaqo-bixiye bed-bedeli karaa saacadaha aad shaqeyso ama helidda qalabyo kugu caawiyo shaqadaada. If you do decide to stop working, it is important to think carefully about the financial, emotional and practical implications. Haddii aad go’aamiso inaad joojiso shaqada, waxaa muhiim ah in si fiican laga fikiro saamaynta camaliga ah uu kaasi ku lahaan doono dhaqaalahaada iyo shucuurtaada. Our advice is not to rush into a decision – give your treatment time to settle down. Taladeena waa in go’aan si degdeg ah loo gaarin – waqti sii daaweyntaada sidii uu waxtar u lahaado. Even if you’re happy with your decision to stop working early, it’s worth talking to employers and professional or trade organisations to establish the best terms for you, and decide exactly when you want to leave. Xittaa haddii aad ku faraxsan tahay go’aankaaga inaad joojiso shaqada, waxaa waxtar leh inaad la hadasho ururyada ganacsiga ama xirfdlayaasha iyo shaqada si aad u qaban-qaabiso heshiis shaqo joojin adiga kuu fiican, iyo go’aamiso goorta saxda ah aad bixi doonto. You may find it useful to be more informed about your employment rights and what the duties of your employer are (if this is relevant to you). Waxaa waxtar leh inaad hayso macluumaad ka badan ee ku saabsan xuquuqyadaada shaqada iyo waajibaadka shaqo-bixiyahaada (haddii uu kani adiga ku khuseeyo). If you have questions about working with Parkinson’s, you can contact our helpline on 0808 800 0303 or email hello@parkinsons.org.uk. You can also get advice and information from your local Citizens Advice Bureau (see page xx for contact details) and your local welfare benefits service. Haddii aad su’aalo ka qabtid la shaqeysiga cudurka Parkinson, waxaad la xiriiri kartaa khadkeena caawinta 0808 800 0303 ama email u dir hello@parkinsons.org.uk. Waxaad xittaa talo iyo macluumaad ka heli kartaa Xafiiska Talo-siinta Muwaadinka (eeg bogga xx si aad u hesho faah-faahinta xiriirka) iyo adeegga gargaarka ceyrta ee xaafaddaada. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Am I entitled to any benefits? Miyaan xaq u leeyahay ceyr? Having enough money to support yourself is essential and you might be eligible for financial help. The rules about access to benefits are complex and can change. For more information and guidance contact: Haysashada lacag kugu filan si aad isku taageerto waa muhiim iyo waxaad xaq u lahaan kartaa gargaar maaliyadeed. Sharuudaha helidda ceyrta waa kuwo dhib ah iyo way is-beddelmi karaan. Si aad macluumaad iyo hanuunin ka badan u hesho la xiriir: our helpline on 0808 800 0303 our information and support workers (call our helpline or visit parkinsons.org.uk/isw) your local Citizens Advice Bureau (see page x for contact details) your local benefits office (found in the telephone directory under ‘Government’) benefits advice agencies disability rights officers from your Social Services/Social Work Department khadkeena caawinta waa 0808 800 0303 Shaqaalaheena macluumaadka iyo taageerida (wac khadkeena caawinta ama u booqo parkinsons.org.uk/isw) Xafiiskaaga Talo-siinta Muwaadanka (eeg bogga x si aad u hesho faah-faahinta xiriirka) xafiiskaaga ceyrta (laga helo buugga lambarada telefoonka, ka raadi ‘Dawladda’) hay’adaha baxsho talo ceyr sarkaalada xuquuqyada naafonimada ee Waaxda Adeegga Bulshada/Shaqada Bulshada Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Will I still be able to drive? Miyaan weli baabuur wadi karaa? Having Parkinson’s doesn’t necessarily mean your licence will be affected. However, you may need to have a medical or driving Haysashada cudurka Parkinson loogama jeedo in shatigaaga baabur-wadidda saamayn ku yeelan doono. Hase-yeeshe, waa in lagugu assessment. sameeyo qiimeyn caafimaad ama baabuurwadid. Do I have to tell my driving licensing agency that I have Parkinson’s? Miyaan u baahanahay inaan u sheego hay’addeyda shatiga baabuur-wadidda inuu igu dhacey cudurka Parkinson? Yes. Anyone applying for a driving licence has to complete a section on the application form indicating any health problems they may have. Haa. Qof walba ee shatiga baabuur-wadidda dalbado waa inuu soo buuxiyo qaybta ku yaalo foomka codsiga ee lagu weydiinaayo dhibaatoyinka caafimaad ay qabaan. If you already have a licence, you are required by law to inform your licensing agency of any medical condition that may affect driving, including Parkinson’s. In England, Scotland and Wales the licensing agency is the DVLA and in Northern Ireland it is the DVA. See page x for contact details. Haddii aad horey shati u qabtey, waxaa sharci ahaan lagaa rabaa inaad u sheegto hay’addaada shatiga baabuur-wadidda wixii xaalad caafimaad ee saamayn ku yeelan karo awooddaada baabuur-wadidda, ay ku jirto cudurka Parkinson. Dalka England, Skotland iyo Wales hay’adda shatiga baabuur-wadidda waa DVLA iyo Waqiiyiga Ayrland waa DVA. Faah-faahinta xiriirka ka eeg bogga x. Do I have to tell my insurance company that Miyaan u baahanahay inaan u sheego I have Parkinson’s? shirkadeyda caymiska inaan qabo cudurka Parkinson? Anyone who knowingly drives while unfit may invalidate their insurance cover, so it is essential to inform your insurance company of any change in your health that might affect your ability to drive. Qof walba ee baabuur ku wado aayagoo awood u leheen waxay burinayaan caymiskooda, sidaa awgeeda waa muhiim inaad u sheegto shirkaddaada caymiska wixii is-beddel ah e caafimaadkaaga oo saamayn ku yeelan karo awooddaada baabuurwadidda. It is against the law to make a false statement Waa sharci-darro in been la sheego ama or withhold information in order to get car macluumaad dhab ah la siinin shirkadda insurance. caymiska baabuurka si caymis loo helo. Will my medication affect my driving? Daaweyntayda miyuu saamayn ku yeelan karaa baabuur-wadidda? Drowsiness is a side effect of some Parkinson’s drugs and this can sometimes be severe.5 Some Parkinson’s medications can also cause excessive daytime sleepiness or sudden onset of sleep. This may be more likely in people with advanced Parkinson's on multiple medications and when increasing certain types of medication.5 Dawakhsanaanta waa hal ka mid ah waxyeellada ka yimaado daawoyinka cudurka Parkinson, kanina marmar wuxuu ahaan karaa mid aad u xun.5 Qaar ka mid ah daawoyinka cudurka Parkinson waxay xittaa sababi karaan hurdo badan waqtiga maalinta ama dareen hurdo kadis ah. Kani wuxuu badanaa ku dhici karaa dadka cudurka Parkinson waqti badan haayey iyo daawoyin badan qaato iyo markii la kordhiyo nooc gaar ah ee daawoyinka.5 Although this is concerning, the DVLA has stated that the risk of sudden onset of sleep is low and that taking Parkinson’s drugs should not automatically mean you have to stop driving. However, if you experience any excessive daytime sleepiness or sudden onset of sleep you should not drive and you should inform your GP, specialist, or Parkinson’s nurse. Inkastoo kani yahay wax laga wel-welo, DVLA waxay sheegeen in halista hurdada kadiska ah yar yahay iyo in la rabin in baabuurwadidda si otomaatik ah loo joojiyo qaadashada daawoyinka cudurka Parkinson awgeed. Hase-yeeshe, haddii uu kugu dhaco hurdo kadis ah ama hurdada subaxa waa inaadan baabuur wadin iyo waa inaad u sheegto GP’gaaga, khabiirkaaga, ama kaaliyaha caafimaad ee cudurka Parkinson. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. What should I do if I live alone? Maxaan sameeyaa haddii aan keligayga meel ku noolahay? For some people with Parkinson’s living alone is a concern, but many people with the condition live on their own and manage very well. A common concern is fear of falling, but a lot can be done to make the home less hazardous, including: Qaar ka mid ah dadka qabo cudurka Parkinson way wel-welaan, laakiin dad badan oo qabo cudurka Parkinson ayaa kaligooda guri ku nool iyo si fiican ayeey u maamulaan cudurkooda. Wel-welka ugu wayn waa cabsida in la kufo, laakiin shaqoyin badan ayaa guriga lagu samayn karaa si laga dhigo mid aan sidaa khatar u eheen, ay ku jiro: rearranging furniture to make rooms safer removing loose mats or rugs adding grab rails around the house (stairs, bath or shower, for example) making lighting brighter to make moving around much safer dhaqaajinta alaabta guriga yaalo si qolalka laga dhigo kuwo ammaan ah ka bixinta rogagga ama katiifayaasha ku xiridda guriga oo dhan birta gacanqabsiga (tusaale ahaan jaranjarada, ama musqusha) nalalka laga dhigo kuwo ka iftiin badan si ammaan laga dhigo ku dhax-dhaqaaqa guriga You may find it useful to discuss these ideas Waxaa waxtar kuu lahaan karo inaad and where to get help to carry them out with daaweeyaha wax-qabadka kala hadasho an occupational therapist. fikradahaan iyo meesha aad ka heli kartid qof guriga alaabtaan kugu rakibo. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Should I change my diet? Miyaan beddelaa cuntada aan cuno? There are no specific changes you need to make but, like everyone, you will benefit Ma jiraan is-beddeloo gaar ah ee lagaa rabo inaad sameyso laakiin, sida qof walba, from eating as healthily as possible. waxaad ka fa’iidi doontaa cuntada ugu dheelitiran ee suurtogal ah. A balanced and nutritious diet including three meals a day (or four smaller meals) is recommended. You should aim to eat a mix of starchy foods (such as bread, rice, potatoes, noodles, cereal, crackers, oats, yams), fruit and vegetables, dairy products, and proteins (meat, fish, eggs, beans or pulses). Fatty or sugary foods should be eaten in moderation. Waxaa lagugu talinayaa inaad cunto cunto hellitiran oo nafaqo leh seddax mar maalintiiba (ama afar cunto yar maalintiba). Waa inaad isku eegto inaad cunto cuntoyin ku jiro (rooti, bariis, baradho, nuudal, badarka subaxa lagu quraacdo, buskut, boorash iyo baradhada macaanka ah), miro iyo khudaar, badeecoyinka ka sameysan caanaha iyo borootinka (sida hilibka, kalluunka, ukunta, digirta madow ama noocyo kale ee digir ah). Cuntoyinka dufanta iyo sonkorta leh waa in qiyaas dhexdhexaad ah laga cuno. It is also important to drink plenty of fluids. Unless your doctor has advised you otherwise, alcoholic drinks in small amounts are not harmful. Waxaa xittaa muhiim ah in la cabo dareere badan. Aysan ka eheen haddii takhtarkaaga si kale kula taliyey, qiyaas yar ee cabitaanada khamriga ku jiro waxyeello kuuma keeni doonaana. Many people with Parkinson’s find that they get constipated. Exercise, combined with a regular intake of fluids and fibre-rich foods, such as cereal grains, wholemeal bread and pasta, brown rice, seeds, nuts, fruit, vegetables and pulses, will usually help.23 Dad badan ee qabo cudurka Parkinson waxaa ku dhaco calool-fadhi. Jimicsiga oo lagu darey dareere joogto ah iyo cunto liil badan leh sida badarta quraacda, rootiga ka sameysan qamadiga madow iyo baastada, bariiska kafeega, ininyada, looska, miro, khudaar iyo digirta ayaa badanaa caawinaad leh.23 If you are overweight, you may need to cut down on fatty foods and carbohydrates. Losing weight will also help you to move around, as it will ease the strain on your joints. Haddii aad buuran tahay waa inaad yareyso cunidda cuntada dufanta badan leh iyo karbohidraadka. Yareynta culayskaaga wuxuu xittaa kugu caawin doonaa dhaq-dhaqaaqa, sababtoo ah wuxuu yareyn doonaa cadaadiska saaraan kala-goysyadaada. If, as sometimes happens, you lose weight without trying to,24 you may need special dietary supervision and supplements. Make sure you talk to a doctor or dietitian before considering any changes to your diet. Haddii, sida marmar dhaco, culayskaaga hoos u dhaco adigoo ku talagalin,24 waxaad u baahan kartaa cunto nidaamsan iyo waxyaabaha siyaadada u ah cuntada. Hubi inaad la hadasho takhtarkaaga ama aqoonyahaanka cuntada nidaamsan ka hor intii aadan beddelin cuntada aad cunto. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Can protein affect Parkinson’s medication? Borootiinka miyuu saamayn ku yeelan karaa daaweynta cudurka Parkinson? A small number of people taking a Parkinson’s medication called levodopa (one of the main drugs used to treat the condition)16 may find a meal that’s high in protein affects how well their medication works.25 If you notice this, we recommend talking to your specialist or Parkinson’s nurse. Some people may find taking their medication about 30 minutes before their meals is more effective. Tiro yar ee dadka qaata daawada cudurka Parkinson lagu magacaabo levodopa (hal ka mid ah daawoyinka badan ee loo isticmaalo daaweynta calaamadaha cudurka)16 ayaa lagu arkey in cunto ku jiro borootiin badan saamayn ku yeelan karo waxtarka daawada.25 Haddii aad kani isku aragto, la hadal takhtarkaaga khabiirka ama kaaliyaha caafimaad ee cudurka Parkinson. Qaar ka mid ah dadka waxay dareemeen in qaadashada daawada 30 daqiiqo ka hor cuntada uu waxtar u leeyahay. “Exercise is really important for people with Parkinson’s and there is growing evidence that it can bring many benefits. Exercise doesn’t necessarily mean having to go to the gym – you can do exercises at home, and can even do them sitting down. Fitting some form of exercise into your daily routine is most beneficial.” Fiona, a physiotherapist “Jimicsiga wuxuu muhiim u yahay dadka qaba cudurka Parkinson iyo waxaa jiro caddayn sii kordhaysa inuu u keeni doono faa’iidoyin badan. Jimicsiga loogama jeedo in lagaa rabo inaad gym tegto – guriga ayaad ku samayn kartaa jimicsiga, waxaa xittaa samayn kartaa adigoo fadhiya. Waa caafimaad-qab in waxqabadkaaga maalinlaha ku darto jimicsiga.” Fiona, daweeyaha fisiyoterabi Can I still exercise? Miyaan weli samayn karaa jimicsi? Yes. In fact, exercise is especially important for people with Parkinson’s. Keeping fit will help muscles and joints from becoming stiff and rigid. Haa. Dhab ahaan, jimicsiga wuxuu gaar ahaan muhiim u yahay dadka qaba cudurka Parkinson. Jimicsiga wuxuu ku caawin doonaa in murqaha iyo kalagoysyada ahaadaan kuwo aan giigsaneen ama adkayn. As well as helping with mobility, exercise can lift your mood.26 It can also be a social experience if you join a local group or sports club for example. Dhaq-dhaqaaa ka eheen jimicsiga wuxuu xittaa kor u qaadi karaa dareenkaaga shucuureed.26 Waxaad xittaa ka heli kartaa waayo-aragnimo bulshadeed haddii tusaale ahaan ku biirto koox deegaan ama naadi isboorti. There are also a number of ‘low-key’ exercise options to keep you flexible and active and which may also reduce the risk of falls, such as yoga, t’ai chi, walking, gardening, golf and daily stretches. Waxaa xittaa jiro dhowr jimicsi ‘fud-fudud’ oo kugu haynaayo si dabacsan iyo fir-fircoon iyo yarayn karo halista inaad kufto, waxaa ka mid ah yoga, t’ai chi, socodka, ka shaqeynta beerta, ciyaarta golf iyo kala-bixidda murqaha ee maalin walba la sameeyo. If you are unsure about the suitability or safety of any exercise you would like to do, talk to your GP or ask for a referral to a Haddii aadan hubin habboonaanta ama ammaanka jimicsi aad rabtid inaad sameyso, la hadal GP’gaaga ama weydii in laguu physiotherapist. gudbiyo daaweeyaha fisiyoterabi. The main thing is to try to stay active, but do things at your own pace, even if it takes longer than expected. Waxaa ugu muhiimsan waa inaad firfircoonaato, laakiin si tartiiba ku sameyso, xittaa haddii uu ku qaadaanayo waqti ka badan wixii aad fileysey. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Are there any other ways I can improve my mobility? Miyeey jiraan habab kale aan ku wanaajin karo dhaq-dhaqaaqeyga? Exercise, medication and generally staying active are the best ways to stay as mobile as possible. But, depending on your symptoms, there is a wide range of equipment available that might also help. Jimicsiga, daaweynta iyo caadi ahaan ku joogista si fir-fircoon waa hababka ugu fiican aad ku joogto si dhaq-dhaqaaq ah. Laakiin, ayadoo ku xiran calaamadahaada, waxaa jiro qalabyo baaxad ah ee ku caawin karaa. “Our local support group has funded several sessions of gentle exercise with a fitness instructor. He takes us through about 30 minutes of exercise which includes coordination, balance, stretching, warm ups, cool down and a short session using t’ai chi techniques: all to some quite nice music. I come away feeling relaxed and energised.” Joyce, diagnosed in 2009 “Kooxdeena taageerida deegaanka waxay maalgeliyeen iyo qaban-qaabiyeen macallin jimicsi oo ina baro dhowr jimicsi fudud. Waxuu sameeyaa qiyaas ahaan 30 daqiiqo oo jimicsi oo ku jiro isu-duwidda, isu-qiyaasidda, kala fidinta jirka, kululeynta murqaha, is qaboojinta iyo waqti yar wuxuu ina baraa t’ai chi: dhammaan waxaa lagu sameeyaa musiko fiican. Markaan dhameeyo waxaan dareemaa nasasho iyo tabar fiican.” Joyce, cudurka lagu ogaadey 2009 What sort of equipment might I need? Waa maxay qalabyada aan u baahan karo? It can be difficult to accept the need to start using aids, but many people find specialist equipment, for example grab rails or walking sticks, actually help them become more independent. Waa dhib in la ogolaado in loo baahan yahay in la isticmaalo qalabyo, laakiin dad badan waxay isku arkeen in qalabyada gaarka ah, tusaale ahaan gacan-qabsiga ama usha lagu socdo, dhab ahaan ku caawiyo noqoshada madaxbannaan. There are all kinds of aids and equipment available to help people who might have problems doing things, such as washing, bathing, reaching, eating and drinking. Waxaa jiro qalabyo badan ee caawiyo dadka dhibaato ku qabo wax-qabadyada sida wax dhaqidda, qubayska, meel gaaridda, wax cabidda iyo wax cunidda. If you are thinking about buying equipment to help you day to day, we strongly advise you have an assessment from the relevant therapist first. Haddii aad ka fikirtey inaad iibsato qalab kugu caawiyo nolol-maalmeedkaaga, waxaan kula talineynaa inaad marka horey qiimeyn ka hesho daaweeyaha ku shuqul leh. A physiotherapist or occupational therapist can advise on what is available to suit your needs. Daaweeyaha fisiyoterabi ama wax-qabadka ayaa kugu talin karo wixii la heli karo si loo qanciyo baahidaada. If the therapist suggests equipment, he or she should be able to advise you on suppliers and any funding that may be available. Talk to your GP about referrals to these services. Haddii daaweeyaha ku taliyo isticmaalka qalab, asaga ama ayada ayaa kugu talin doono shirkadaha qalabka sameeyo iyo maalgelinta la heli karo. La hadal GP’gaaga oo ka codso inay kuu gudbiyaan adeegyadaan. “My mother used to try and get me to open up, to ask questions. I would look away, change the subject, or do what I do best when I’m scared, get angry. Blocking things out is a pretty terrible way to deal with life, but sometimes it’s far easier to pretend its not happening.” Katherine, whose mum has Parkinson’s “Hooyadayda waxay iga codsan jirtey inaan ra’yigayga sheego, su’aalo weydiiyo. Waan inkiri jirey, ama waxaan beddeli jirey mawduuca, ama waan xanaaqi jirey saabtoo ah waan cabsanaayey. Inkiridda dhibaatoyinka waa hab xun ee lala qabsado nolosha, laakiin marmar waxaa ka fudud in la iska ikiro cudurka.” Katherine, oo hooyadeeda qabto cudurka Parkinson My relationships with others Xiriiryada aan dadka kale la leeyahay How will my family be affected? Sidee ayuu cudurkayga saamayn ku yeelan doonaa qoyskayga? Everyone copes with life in different ways, but if someone in the family is diagnosed with Parkinson’s, it can have a big effect on everyone. Qof walba nolosha si kala duwan ayuu ula qabsadaa, laakiin haddii qof ka mid ah qoyska lagu ogaado cudurka Parkinson, wuxuu saamayn wayn ku lahaan karaa qof walba. If you or your loved ones have any concerns or worries, you might find talking to a counsellor helpful. They can also call our helpline on 0808 800 0303 for information and support. You or your family may also find speaking to one of our information and support workers helpful. You can ask the helpline for the details of your local information and support worker or visit parkinsons.org.uk/localtoyou Haddii qofka aad jeceshahay uu wel-welsan yahay ama walaacsan yahay, waxaa caawinaad kuu lahaan karo inaad la hadasho la-taliye. Waxay xittaa khadkeena caawinta ka wici karaan 0808 800 0303 si ay u helaan taageerid iyo macluumaad. Adiga ama qoyskaaga waxaa idin fududaan doono inaad la hadashaan hal ka mid ah shaqaaleheena taageerida iyo macluumaadka. Waxaad khadka caawinta ka codsan kartaa faahfaahinta shaqaalaha taageerida iyo macluumaadkaaga xaafaddaada ama u booqo parkinsons.org.uk/localtoyou Roles within families may gradually change as your Parkinson’s progresses because you might need more help. These changes can be difficult for everyone, but discussing them openly with your family may make things easier. Doorarka qoyska gudahiisa way is-beddeli doonaan markuu cudurka Parkinson sii horumaro, sababtoo ah waxaad u baahan kartaa caawinaad ka badan. Is-beddeladaan qof walba ayeey dhib u ahaan karaan, laakiin kala hadalka qoyskaaga wuxuu fududeyn doonaa hawsha. You may also find it useful to tell people when you’re having difficulties so they can help you. Make sure you also let them know Waxaa xittaa caawinaad ku noqon doono inaad dadka u sheegto markii aad dhibaato qabtid si ay kuu caawiyaan. Hubi inaad u when you’re not having any problems – your family and friends will want to help you as much as they can, but it’s important for you to stay as independent as possible. sheegto markaad dhibaato qabin – qoyskaaga iyo saaxiibadaada ayaa rabi karo inay ku caawiyaan, laakiin waxaa muhiim ah inaad madaxbannaan ahaato markuu suurtogal yahay. Try to keep doing the things you have always enjoyed as a family. Remember that Parkinson’s shouldn’t dominate everything. Sii wad inaad sameyso isla waxyaabaha aad ku raaxeysan jirteen qoys ahaan. Xasuuso cudurka Parkinson waa inuusan wax walba xukumin. You may find it helpful to discuss your wishes with your family or friends about your care should your condition worsen. This could help reduce their fears and worries as they may be reluctant to bring up the conversation with you. Waxaa caawinaad kuu lahaan karo inaad qoyskaaga iyo saaxibadaada u sheegto waxyaabaha aad rabtid in laga sameeyo daryeelkaaga haddii xaaladdaada sii xumaado. Kani wuxuu yarayn karaa cabsidooda iyo wel-welkooda sababtoo ah waxaa laga yaabaa inaysan rabin inay arrintaan kaala hadlaan. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. How do I tell my children or grandchildren about my condition? Sidee cudurkayga uu sheegaa carruurtayda iyo carruurta aan ayeeyo u ahay? Having a loved one with Parkinson’s can be difficult for some children or young people. It might help for them to have someone to talk to and ask questions about Parkinson’s, such as a GP or Parkinson’s nurse. It also helps if they can get hold of information about the condition easily. Carruurta iyo dhallinyarada dhib ayuu ku noqon karaa in qof ay jecel yihiin qabo cudurka Parkin. Waxaa caawinaad u lahaan karo inay lahaadaan qof ay la hadlaan iyo weydiiyaan su’aalo ku saabsan cudurka Parkinson, tusaale ahaan GP’ga ama kaaliyaha caafimaad ee cudurka Parkinson. Waxaa xittaa caawinaad leh haddii ay si fudud u heli karaan macluumaad ku saabsan cudurka. Parkinson’s UK has several publications that may help you talk about your condition with the young people in your family. For children aged three to seven, we have a range of children’s books: Parkinson’s UK waxay qabaan dhowr buugyaro ku qoran hababka aad dhallinyarada qoyskaaga kala hadasho cudurka. Carruurta seddax ilaa toddobo jir, waxaan qabnaa buugaag loogu talagalay carruurta: My grandad has Parkinson’s Awoowgayga wuxuu qabaa cudurka Parkinson My mum has Parkinson’s Hooyadeyda waxay qabtaa cudurka Parkinson My dad has Parkinson’s My gran has Parkinson’s Aabehayga wuxuu qabaa cudurka Parkinson Ayeeyadeyda waxay qabtaa cudurka Parkinson These could also be read by older children alone. For teenagers we have Parkinson’s in your life: a guide for teenagers. You may also find our information sheet Talking to children about Parkinson’s useful. Kuwaani waxaa xittaa akhrin karoo dhallinyarada kaligooda. Dhallinyarada waxay akhrin karaan Cudurka Parkinson ee noloshaada: hage ku toosan dhallinyarada. Waxaa xittaa caawinaad kuu ahaan karo xaashida warbixinta Kala hadalka carruurta cudurka Parkinson. You may also find our A quick introduction to Parkinson’s leaflet useful for facts about the condition. Our easy read booklet Information about Parkinson’s can be used to explain the condition to anyone with learning difficulties or for anyone who wants a simple guide to the condition. Waxaa xittaa faah-faahin ku saabsan cudurka laga heli karaa buug-yaraha Soo bandhigid kooban ee cudurka Parkinson. Buugyaraheena si fudud loo akhrin karo Macluumaad ku saabsan cudurka Parkinson ayaa la isticmaali karaa si xaaladda loo macneeyo qof walba qaba dhibaato waxbarasho ama qof walba ee rabo hage fudud ku saabsan cudurka. “I firmly believe that once I accepted myself as a person with Parkinson’s, and did not think of myself as a lesser person because of this, then other people did the same. It is not the most important thing about me.” Caroline, diagnosed in 2003 “Waxaan aaminsanahay in markii aan aqbalo inaan ahay qof qaba cudurka Parkinson, iyo aan isku fikirin sida qof awood yar leh cudurkaan awgiis, markaasna dadka kale sidaas ayeey sameeyeen. Cudurka ma ahan qaybta ugu muhiimsan ee aniga I khuseeya.” Caroline, cudurka lagu ogaadey 2003 How do I tell people I have Parkinson’s? Sidee dadka u sheegaa inaan qabo cudurka Parkinson? Telling people you have Parkinson’s can be daunting. It’s hard to find the right words, especially if you’re worried about how people may react. You might worry that if people know you have Parkinson’s, they’ll judge or identify you by what they know or think about the condition. U sheegida dadka inaad qabtid cudurka Parkinson waa wax niyad jebis leh. Waa dhib in la helo ereyoyinka saxda ah ee la isticmaalo, gaar ahaan haddii aad ka welwelsan tahay sida ay dadkuu ka jawaabi doonaan. Waxaad ka wel-weli kartaa in haddii ay dadka ogaadaan inaad qabtid cudurka Parkinson, ay bilaabi doonaan inay kugu arkaan ama aqoonsadaan waxa ay ka og yihiin ama fikradda ay ka qabaan cudurka. Who you tell and what you tell them is up to you. But you might find the following tips helpful. Qofka aad u sheegi doontid iyo waxa aad u sheegi doontid adiga ayuu ku khuseeyaa. Laakiin waxaa caawinaad kuu lahaan karo taloyinkaan: Tell at least one person close to you. This will give you someone to talk to about your Parkinson’s. They may also be able to help you tell other people. U sheeg ugu yeraan hal qof ee kuu dhow. Kani wuxuu ku sinayaa awoodda aad qof kala hadasho cudurka Parkinson. Waxay xittaa kugu caawin karaan inaad u sheegto dad kale. Choose carefully when and how you tell people. You may want to get everyone together to tell them all at once, or to tell people only when you need to. Some people find it easier to tell people in a letter or an email, rather than face to face. Practise what you want to say. Prepare yourself by thinking through the possible reactions you may get and how you might feel. Talk to people with Parkinson’s about how they told others about their condition. They may be able to give you tips. You can try contacting them through your local Parkinson’s UK group, or our online forum, parkinsons.org.uk/forum Si taxadar ah u xulo gorta iyo qofka aad u sheegi doonto. Waxaad rabi kartaa inaad qof walba hal mar u wada sheegto, ama u sheegto dadka markaad u baahato. Qaar ka mid ah dadka waa u fudud inay warqad ama email dadka ugu sheegaan intii ay ku wajigooda ugu sheegi lahaayeen. Tababar u qaado wixii aad rabtid inaad sheegto. Is diyaari adigoo ka fikiraayaa jawaab celinta suurtogalka ah aad ka heli kartid iyo sida aad dareemi kartid. Dadka kale ee qaba cudurka Parkinson weydii sidii ay dadka kale u sheegeen cudurkooda. Waxay ku siin karaan taloyin. Waxaad isku dayi kartaa inaad kala xiriirto adigoo u maraayaa kooxda deegaanka ee Parkinson’s UK, ama boggeena internetka, parkinsons.org.uk/forum Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. How will my intimate relationships be affected? Sidee ayuu cudurka saamayn ku yeelan doonaa xiriirkayga galmo? Having Parkinson’s doesn’t necessarily mean you’ll have difficulties, but sometimes the condition can have an effect on intimate relationships. Haysashada cudurka Parkinson loogama jeedo inuu lagama marmaan yahay inaad dhibaato galmo qabi doontid, laakiin marmar xaaladda wuxuu saamayn ku yeelan karaa galmada. Parkinson’s can make it harder to move freely5 and make spur-of-the-moment gestures. A spouse or sexual partner might also find it hard to switch from supporting you to being intimate in a sexual way. Stress and anxiety can also have an effect. Cudurka Parkinson wuxuu dhibaato ka dhigaa dhaq-dhaqaaqa caadiga ah5 iyo samaynta dhaqaaqyo horey loo qaban-qaabin. Lammaanaha wuxuu xittaa dhibaato ku qabi karaa kala beddelka kofiyadda, ayagoo mar ku ah daryeele kadibna noqonaayo qof galmo sameeyaa. Cadaadiska iyo wel-welka ayaa xittaa saamayn ku yeelan karo. If you experience any of these problems, there are ways to manage them. Talking to your partner about how you feel can help. If tiredness is a problem you could try changing the time you have sex. Haddii aad la kullanto dhibaatoyinkaan, waxaa jiro habab loo maamuli karo. Waxaa waxtar leh inaad lammaanahaada u sheegto sida aad dareemeysid. Haddii daalka uu dhibaato yahay waxaad beddeli kartaa waqtiga aad galmo sameyso. Other problems may arise due to the emotional change in the relationship. As Parkinson’s progresses, you may find you and your partner taking the roles of carer and cared for. Some couples find it hard to see each other as equal partners in these new roles. Keep talking to each other about any concerns you have. Dhibaato kale ayaa ka dhalan karo sida isbeddelka shucuureed ee xirrika lammaananimo. Markuu cudurka Parkinson sii horumaro, waxaad arki doontaa in doorka idinka dhaxeeyo adiga iyo lammaanahaada noqon doono daryeele iyo u daryeele. Qaar ka mid ah lammaanayaasha waxay dhibaato ku qabi karaan inay isku arkaan sida lammaano isku mid ah marii ay doorarkaan cusub yeeshaan. Sii wada inaad isla hadashaan iyo kala qaybsataan wixii wel-wel ah aad qabtiin. Discussing any issues with your specialist or Parkinson’s nurse may also be useful and they can refer you to other sources of help, such as a couples counsellor or psychosexual therapists. Waxaa xittaa caawinaad kuu noqon karo inaad dhibaato walba u sheegto takhtarkaaga khabiirka ama kaaliyaha caafimaad ee cudurka Parkinson sidii ay kuu gudbiyaan iloyin kale ku caawin karo, sida la taliyaha lammaanayaasha ama daaweeyaha dhibaatoyinka nafsiga iyo galmada. Remember that Parkinson’s shouldn’t stand in the way of an enjoyable and fulfilling sex life. Xasuuso in cudurka Parkinson la rabin inuu hor istaago nolol galmo raaxo iyo farxad leh. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. How does Parkinson’s affect pregnancy? Sidee ayuu cudurka Parkinson saamayn ku yeelan karaa uurka? It’s hard to know for certain what happens to women with Parkinson’s when they get pregnant, because of the small numbers involved in research. Some women’s symptoms get worse and some do not.27 It is encouraging that the majority of cases written about ended in full-term delivery of healthy babies.28 Waa dhib in si hubaal ah la ogaado wixii ku dhaco haweenada uurka leh markuu ku dhaco cudurka Parkinson, sababtoo ah tiro yar ayaa ka qayb qaatey cilmi-baarista. Qaar ka mid ah calaamadaha haweenada qaba cudurka wuu sii xumaadaa kuwo kalena maya.27 Waxaa dhirrigelin leh in xaaladaha badankooda carruur caafimaad-qab ah lagu dhaley.28 If you are worried about being or becoming pregnant with Parkinson’s, speak to your Parkinson’s nurse or specialist. Haddii aad ka wel-welsan tahay inaad uur qabtid ama uur qaado markaad qabtid cudurka Parkinson, la hadal kaaliyahaada caafimaadka cudurka Parkinson ama takhtarkaaga khabiirka. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Emotional issues Arrimaha shucuurta Staying positive Ku joogista si wanaagsan Many people with Parkinson’s lead active and fulfilling lives, not by pretending that nothing is wrong, but by understanding how their Parkinson’s affects them and working around it. Although living with your condition may be difficult at times, exploring what having Parkinson’s means for you and trying to think positively about what you can still do may help. Dad badan ee qaba cudurka Parkinson waxay leeyihiin nolol fir-fircoon iyo fulin leh, ma iska dhigaan kuwo aan dhibaato qabin, laakiin waxay gartaan sida cudurka Parkinson saamayn ku yeesho iyo waxay isticmaalaan hab ay la qabsadaan. Inkastoo mar mar dhibaato ahaan karo in lala nolaado cudurka, ogaashada macnaha uu adiga kuu leeyahay cudurka Parkinson iyo niiyad fiican ku fikirka waxyaabaha kale aad weli awooddo inaad qabato ayaa ku caawin karo. Staying active Ku joogista si fir-fircoon Spending time socialising also helps keep many people positive and active. The attitude of family and friends can influence this. They need to encourage you to lead as normal and active a life as possible. Waqti u qaadashada dhax-galka bulshada wuxuu xittaa dad badan ka dhigaa kuwo firfircoon iyo niiyad fiican. Akhlaaqda qoyska iyo saxiibada ayaa kani saamayn ku yeelan karo. Waa inay kugu dhirrigeliyaan inaad lahaato nolol caadi ah iyo fir-fircoon. Finding leisure activities you enjoy and feel benefit from is essential for leading a healthy life. This is true whether you have Parkinson’s or care for someone with the condition. Helidda waxyaabo la qabto waqtiga firaaqada oo aad jeceshahay iyo u maleyso inaad ka faa’idi doonto wuxuu lagama marmaan u yahay lahaanshada nolol caafimaad leh. Kani waa run haddii aad qabtid cudurka Parkinson ama daryeesho qof cudurka qabo. You might like playing sports or going to the Waxaad jeclaan kartaa inaad isboorti gym, spending time on hobbies such as art or sameyso ama tegto gymka, sameynta music or taking part in drama groups. hiwaayado sida farshaxanka ama musikada ama ka qay-bgalka kooxaha tiyaatarka matalo. There are also a lot of educational opportunities you might like to think about, from crafts, languages or martial arts through to university degrees. Waxaa xittaa jiro fursado waxbarasho badan oo aad rabi kartid inaad ka fikirto, sida farsamadaha gacanta, fasalada luqada ama fanka legdinka ilaa shahaado jaamacad. I’m feeling down – is there anything I can do? Waan murugsanahay– maxaan samayn karaa? Most people with Parkinson’s struggle with their emotions from time to time. It’s natural to feel angry, depressed or anxious – particularly when you are first diagnosed. As time goes on, these feelings may subside, but they can also reappear from time to time as your condition progresses. Badanaa dadka ee qaba cudurka Parkinson waxay mar mar dhibaato ku qabaan shucuurtooda. Waa caadi in la dareemo xanaaq ama walaac – gaar ahaan markii dhowaan lagugu ogaadey cudurka. Waqti ka dib shucuuradaan way yeraan doonaan, laakiin mar mar dib ayeey u soo noqon karaan markii xaaladdaada sii horumaro. Stress and anxiety Cadaadiska iyo wel-welka If you are feeling stressed, it might help to speak to your GP, specialist or Parkinson’s nurse about your concerns. They may help to ease your mind by offering information and by signposting you to professionals who can help. Talking to your family and close friends might also make you feel better. Haddii aad dareemeysid cadaadis, waxaa caawinaad leh inaad wel-weladaada u sheegto GP’gaaga, takhtarka khabiirka ama kaaliyaha caafimaad ee cudurka Parkinson. Maskaxdaada ayeey kuu dejin karaan ayagoo ku siinaayaa macluumaad iyo kugu toosinaayo xirfadlayaasha ku caawin karo. La hadalka qoyskaaga iyo saaxibadaada ayaa xittaa kugu caawin karo inaad dareento ficnaan. Anxiety or stress can make symptoms worse.29 They can also interfere with sleep, leaving you feeling tired and worn down, so it’s really important to find ways to relax. Walaaca ama cadaadiska waxay xumayn karaan calaamadaha cudurka.29 Waxa xittaa dhaxgeli karaan hurdada, kaasoo kaa dhigi karo qof daalaan, sidaa awgeeda waa muhiim inaad hesho hab aad u nasato. Exercise can help you unwind and improve your sense of wellbeing. Some people have also found complementary therapies, such as aromatherapy, yoga, reflexology and music and art therapy, have helped improve their mood and relieved feelings of anxiety and stress. See pages xx for more information. Jimicsiga ayaa xittaa kugu caawin karo wanaajinta dareenkaaga wanaagsanaan. Qaar ka mid ah dadka waxay dareemaan in daaweynta siyaadada ah ku caawiyey wanaajinta shucuurtooda iyo yareeyey dareenka walaac iyo cadaadis, tusaale ahaan daaweynta udugga, yoga, duugista lugaha iyo daaweynta farshaxanka iyo musikada. Eeg bogagga xx si aad u hesho macluumaad ka badan. It’s important to get advice if you find feelings like anxiety or stress are seriously interfering with your life. Speak to your GP, specialist or Parkinson’s nurse if you have any concerns. Waxaa muhiim ah inaad talo raadsato haddii walaaca ama cadaadiska saamayn ku yeeshaan noloshaada. Haddii aad wel-wel qabtid la hadal GP’gaaga, takhtarka khabiirka ama kaaliyaha caafimaad ee cudurka Parkinson. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Depression Murugada A lot of people with Parkinson’s experience feelings of depression at some point.5 This can be due to the chemical changes in the brain caused by the condition. It’s also an understandable reaction to the effect Parkinson’s has on your life. Symptoms of depression may include low mood or self- Dad badan ee qabo cudurka Parkinson waxay mar mar dareemaan murugo.5 Kani waxaa sababi karo is-beddelada kimikada uu cudurka ku sameeyo maskaxda. Sidoo kaleba waa ficil celinta la garan karo ee saamaynta uu cudurka Parkinson ku leeyahay noloshaada. Calaamadaha murugada waxaa esteem, a lack of interest in things you usually enjoy, tiredness and difficulty sleeping.30 ka mid ah kalsooni ama niyad hooseeyo, aadan dib u xiiseynin waxyaabaha aad caadi ahaan jeceshahay, daal iyo dhibaato hurdo.30 Your GP may suggest you take antidepressants, which can be very effective as long as they are compatible with any medication you are taking for Parkinson’s. Counselling and cognitive behaviour therapy can also be beneficial. 30 Exercise can also help ease feelings of depression.31 GP’gaaga wuxuu kugu talin karaa inaad qaadato daawoyinka murugada, oo waxtar fiican kuu lahaan karo marba haddii lala qaadan karo daawoyinka aad u qaadato cudurka Parkinson. Daaweynta hanuuninta iyo caqiiqa ayaa sidoo kaleba waxtar lahaan karo. 30 Jimicsiga ayaa xittaa kugu caawin karo yareynta dareenka murugada.31 It can be hard for family or close friends if someone has serious depression, especially if they are involved in their care. Being aware of the symptoms and learning a bit more about the condition is important and can make the situation easier to manage. This is especially important if you’ve had depression before being diagnosed with Parkinson’s. Dhibaato ayuu u ahaan karaa qoyska ama saxiibada sokeeyo haddii qof qabo murugo aad u xun, gaar ahaan haddii ay ka qayb qaataan daryeelkooda. Ogaashada calaamadaha iyo barashada wax ka badan ee ku saabsan cudurka aad ayuu muhiim u yahay iyo wuxuu fududeyn karaa maamulka xaaladda. Kani wuxuu gaar ahaan muhiim yahay haddii aad murugo qabi jirtey ka hor intii lagugu ogaanin cudurka Parkinson. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. Frustration Jaah-wareerka If you are having problems moving, the extra effort it takes to do things can make you feel frustrated. Haddii aad dhibaato ku qabtid dhaqaaqa, dadaalka dheeraadka ah aad u baahan tahay inaad wax ku qabato ayaa kugu dhalin karo jaah-wareer. It is difficult to avoid this frustration altogether, but finding the best possible treatment and support, keeping active and learning how to organise your day can help. Waa dhib in laga hortago jaah-wareerkaan, laakiin waxaa waxtar kuu lahaan karo inaad hesho daaweynta iyo taageerida ugu fiican, iyo fir-firconaato iyo barato si aad u qabanqaabiso maalinta. Many people ask: “Why me?” Unfortunately there is no answer to this question, but there are lots of people living with Parkinson’s who have found ways to accept the situation as best as they can and get on with their lives. Dad badan waxay weydiiyaan: “Maxuu aniga igu dhacey cudurkaan?” Nasiib xumo su’aashaan ma lahan jawaab, laakiin waxaa jiro dad badan oo cudurka Parkinson qaba iyo heley hab ay ku ogolaadaan xaaladdooda iyo sida ugu fiican isku dayo inay noloshooda sii wataan. There is no one way to do this, but your frustration (and any other emotional difficulties) may be eased by talking to Ma jiro hab kale ee kani lagu samayn karo, laakiin jaah-wareerkaaga (iyo dhibaato shucuureed kale) waa la yareyn karaa markii someone who understands. This might be a close friend, someone else with Parkinson’s or an expert, such as your Parkinson’s nurse. lala hadlo qof xaaladdaada yaqaano. Kani wuxuu ahaan karaa saaxiib soke, qof kale oo qabo cudurka Parkinson ama, qof khabiir ah, sida kaaliyaha xaafimaad ee cudurka Parkinson. “I do the things I can. The things I can’t … well, someone else can do. Don’t hide away. You must keep going. Take one day at a time and smile.” Derek, diagnosed in 2009 “Waxaan sameeyaa waxyaabaha aan awoodo. Waxyaabaha aan awoodinna … dabsan, qof kale ayaa samayn karo. Ha dhuumanin. Waa inaad noloshaada sii wadato. Ilko caddey iyo maalin-ka-maalin u noolow.” Derek, cudurka lagu ogaadey 2009 Emotional support Taageerida shucuureed At your local Parkinson’s UK group you can meet other people in a similar situation. Kooxdaada xaafadda ee Parkinson’s UK waxaad la kulmi kartaa dad kale ee ku jiro isla xaaladdaada. To find out about your nearest group, visit parkinsons.org.uk/localgroups. You can also contact our helpline on 0808 800 0303 or at hello@parkinsons.org.uk Si aad u ogaato warar ka badan ee kooxda ku dhow, u booqo parkinsons.org.uk/localgroups. Waxaad xittaa la soo xiriiri kartaa khadkeena caawinta, ka wac 0808 800 0303 ama email u dir hello@parkinsons.org.uk You could also speak to your local Parkinson’s UK information and support work. You can find their details by contacting our helpline or by visiting parkinsons.org.uk/local-support Waxaad xittaa la hadli kartaa shaqaalaha macluumaadka iyo taageerida xaafadda ee Parkinson’s UK. Waxaad faah-faahintooda ka heli kartaa markii aad la xiriirto khadkeena ama u booqato parkinsons.org.uk/localsupport You can also join our online forum to share your experiences and chat to other people. Visit parkinsons.org.uk/forum Waxaad xittaa ku biiri kartaa boggeena wadahadalka internetka iyo dad kale ayaad la sheekeysan kartaa iyo la qaybsan kartaa waayo-aragnimadaada. U booqo parkinsons.org.uk/forum Counselling Hanuuninta Even the most optimistic and energetic person may find it difficult to be positive after they’ve been diagnosed. Others who are prone to worry might always find it hard, but it is certainly worth trying the positive approach. Xittaa qofka niyad fiican leh iyo fir-fircoon ayaa ku dhibaatoon karo kor u haynta niyadda kadib markii lagu ogaado cudurka. Dadka caadi ahaan niyad jaban way sii dhibaatoon karaan , laakiin waxaa fiican in la isku eego in niyadda kor loo qaado. If you’re having difficulties in being positive, Haddii aad dhibaato ku qabtid kor u qaadidda you should talk to your GP, specialist or Parkinson’s nurse who may be able to give you details of local counsellors. They may also be able to refer you for psychological support, if this is available. niyaddaada, la hadal GP’gaaga, takhtarka khabiirka ama kaaliyaha caafimaad ee cudurka Parkinson oo ku siin karo faahfaahinta taliyayaasha xaafaddaada. Waxay xittaa kuu gudbin karaan taageerida nafsiga, haddii kani la heli karo. Your local information and support worker may be able to give you further information about services in your area. (See page xx for details of how to get in touch with your local information and support worker.) Shaqaalahaada macluumaadka iyo taageerida xaafadda ayaa ku siin karo macluumaad dheeraad ah ee ku saabsan adeegyada laga heli karo xaafaddaada. (Faah-faahinta sida lala xiriiro shaqaalaha macluumaadka iyo taageerida xaafaddaada ka eeg bogga xx.) There are also organisations you can contact if you wish to speak to a counsellor. See the More information and support section on page xx for details of who to contact for counselling. Waxaa xittaa jiro ururyo aad la xiriiri kartid haddii aad rabtid inaad la hadasho la taliye. Faah-faahinta taliyayaasha aad la xiriiri kartid ka eeg qaybta ku qoran macluumaad iyo taageerid ka badan ee bogga xx. “As a couple who often had weekends away, Sheila found packing hard, so we would prepare a list together, and tick things off as we packed them. I have also found friends and family to be very supportive, which has been good for my self-confidence.” David, whose wife has Parkinson’s “Inkastoo aan nahay lammaano wikeendi walba meel tego, Sheila waxaa dhib ku noqdey isku aruuriska alaabta la geliyo boorsoyinka, sidaa awgeeda waxaan iminka sameyna liiska alaabta la rabo inaan aruurinno, iyo liiska ayaan ka tirtirnaa markii aan boorsada gelino. Waxaan xittaa arkey in qoysaska iyo saaxiibada taageerid fiican leeyihiin, oo u fiican isku kalsoonidayda.” David, oo xaaskiisa qabto cudurka Parkinson For family, friends and carers Loogu talagalay qoyska, saaxiibada iyo daryeelayaasha If you provide support to someone who has Parkinson’s, you are sometimes considered to be their ‘carer’. Not everyone likes this term, and it can mean different things to different people. You may provide emotional support, practical help or personal care for someone for a varying amount of time each week. Haddii aad taageerto qof qaba cudurka Parkinson, waxaa laguu qaataa inaad tahay ‘daryeelahooda’. Qof walba ma jeclo ereygaan, iyo qof walba macno kala duwan ayuu u leeyahay. Waxaad qof waqti go’an usbuuc walba siin kartaa taageerid shucuureed, taageerid camali ah ama shakhsiyadeed. It’s important to recognise how the condition affects someone can change from day to day. Think about when to allow them to rest and when to offer help. These are not easy judgements to make, so don’t be discouraged if you sometimes get it wrong. And make sure you think about your own needs as well as those of the person you care for. Waxaa muhiim ah in la aqoonsado in cudurka uu qofka maalin ka maalin si gooni ah saamayn ugu lahaan karo. Ka fikir markii ay u baahan yihiin inay nastaan iyo goorta loo baahan yahay in caawinaad la siiyo. Kuwaani ma ahan go’aano si fudud loo samayn karo, sidaa awgeeda ha niyad jabin haddii mar mar khalad sameyso. Iyo hubi inaad ka fikirto baahidaada iyo midda dadka aad daryeesho. Here are some tips: Halkaan ka hel dhowr taloyin: Try to maintain your own support network outside of your relationship with the person you care for. It’s important to have someone you can talk to. This may be a family member, trusted friend or other carer. Think about your feelings and try to talk about them with the person you care for. Be clear about what you are able or willing to do as a carer so there are no unrealistic expectations. Find help for the tasks you are not able or willing to do before any difficulties crop up. Look after yourself, particularly your health, and keep some time for your own social life, hobbies or pastimes. Try to carry on doing the things you both enjoy together. Try to keep your sense of humour and keep things in perspective. As a carer, you may be entitled to financial support. Call our helpline on 0808 800 0303 or Carers UK on 0808 808 7777 for more information. Isku day inaad taageer ka hesho dibedda xiriirka qofka aad daryeesho. Waxaa muhiim ah inaad lahaato qof aad la hadasho. Kani wuxuu ahaan karaa xubin qoys, saaxiib aad ku kalsoon tahay ama daryeele kale. Ka fikir waxyaabaha aad dareento iyo isku day inaad kala hadasho qofka aad daryeesho. Si cad u sheeg waxa aad awooddo ama diyaar u tahay inaad sameyso daryele ahaan sidii aysan u jirin himilooyinka aan waaqici ahayn. Caawinaad u hel hawlaha aadan rabin ama awoodin inaad sameyso ka hor intii dhibaatoyin dhalanin. Adiga is-daryeel, gaar ahaan caafimaadkaaga, iyo waqti u qaado noloshaada bulshadeed, hiwaayado ama wax-qabadyada waqtiyada nasashada. Isku day inaad sameyso waxyaabaha aad labadiina jeceshihiin inaad isla sameysaan. Isku day inaad hayso dareenkaaga kaftan iyo waxyaabaha ku hay si aragti leh. Daryeele ahaan, waxaad xaq u lahaan kartaa taageerid maaliyadeed. Khadkeena caawinta ka wac 0808 800 0303 ama Carers UK ka wac 0808 808 7777 si aad macluumaad ka badan u hesho. Find out more: call our helpline 0808 800 0303, an interpreting service is available. Ogow wax intaa ka badan: Khadkeena caawinta ka wac 0808 800 0303, waxaad ka heleysaa adeeg turjubaan. More information and support Macluumaad iyo taageerid ka badan Support and information from Parkinson’s UK Taageerida iyo macluumaadka Parkinson’s UK Knowing where to find answers to your questions or having someone to talk to can Ogaashada meesha aad ka heli kartid jawaabta su’aalahaada, ama haysashada qof make a real difference to life with Parkinson’s. aad la hadasho wuxuu is-beddel dhab ah ku lahaan karaan la nololka cudurka Parkinson. You can call our free confidential helpline for general support and information. Call 0808 800 0303 (calls are free from UK landlines and most mobile networks) or email hello@parkinsons.org.uk Waxaad wici kartaa khadkeena caawinta sirta ee taageerid iyo macluumaad guud lagu baxsho. Wac 0808 800 0303 (wicitaanyada waxay bilaash ka yihiin khadadka dhulka ee dalka UK iyo badanaa shirkadaha telefoonka gacanta) ama email u soo dir hello@parkinsons.org.uk Our helpline can also put you in touch with one of our local information and support workers, who provide one-to-one information and support to anyone affected by Parkinson’s. They can provide links to local groups and services as well. Khadkeena caawinta wuxuu xittaa kugu xiriirin karaa hal ka mid ah shaqaaleheena macluumaadka iyo taageerida xaafadda, oo macluumaad iyo taageerid waji ka waji siiyo qof walba uu cudurka Parkinson saamayn ku yeeshey. Waxay xittaa kugu xiriirin karaan kooxaha iyo adeegyada xaafadda. Our website parkinsons.org.uk has a lot of information about Parkinson’s and everyday life with the condition. You can also find details of your local support team and your nearest local group meeting at parkinsons.org.uk/localtoyou Boggeena internetka parkinsons.org.uk wuxuu qabaa macluumaad badan ku saabsan cudurka Parkinson iyo la nololka maalin walba cudurka. Waxaad xittaa faah-faahinta kooxdaada taageerida iyo kullanka kooxdaada xaafadda ka heli kartaa parkinsons.org.uk/localtoyou You can also visit parkinsons.org.uk/forum to Waxaad xittaa boggeena wada-hadalka speak with other people in a similar internetka la hadli kartaa dad kale ee qabo situation on our online discussion forum. isla xaaladdaada, ka booqo halkaan parkinsons.org.uk/forum. In addition, you can find us on Facebook and Twitter. Visit: www.facebook.com/parkinsonsuk www.twitter.com/parkinsonsuk Waxaa kaasi dheeraad u ah, waxaad xittaa naga heli kartaa Facebook iyo Twitter. U booqo: www.facebook.com/parkinsonsuk www.twitter.com/parkinsonsuk Information resources Iloyinka maclumaadka Another great way to find out more about living with Parkinson’s is through our publications, DVDs and audio tapes. Hab kale fiican ee lagu ogaado wax intaa ka badan ee ku saabsan la nololka cudurka Parkinson waa ayadoo loo maraayo qalabyadeena faafista macluumaadka sida, DVDs iyo cajalad. They cover a range of topics, including symptoms, treatments, benefits and emotional issues. And you can ask us about translating our resources into other languages. Waxay ka hadlaan mawduucyo baaxad leh, ay ku jirto calaamadaha, daaweynta, ceyrta iyo arrimaha shucuurta. Iyo waxaad naga codsan kartaa inaan iloyinkeena ku turjumno luqado kale. You can download the publications from our Waxaad macluumaadkeena ka soo baxsan website at parkinsons.org.uk/publications or kartaa boggeena internetka contact us for a catalogue and order form of everything that’s available. 0845 121 2354 resources@parkinsons.org.uk parkinsons.org.uk/publications ama ina soo weydii buug-yaraha iyo foomka codsiga dhammaan waxyaabaha aan hayno. 0845 121 2354 resources@parkinsons.org.uk Peer support service Adeegga teegeerida dadka isku midka tihiin If you’d like to talk things through on the phone with someone affected by Parkinson’s, you can use our peer support service. We can put you in touch with a trained volunteer who has a similar experience of Parkinson’s to you. Haddii aad rabtid inaad telefoonka la hadasho qof kale ee qabo cudurka Parkinson, waxaad isticmaali kartaa adeeggeena taageerida dadka isku midka tihiin. Waxaan kula xiriiri karnaa mutadaawaciin tababaran oo isla waayo aragnimo ku leh cudurka Parkinson. This could be anything to do with Parkinson’s, Kani wuxuu xiriir la lahaan karaa cudurka such as: Parkinson, sida: personal experiences of treatments waayo-aragnimada shakhsiyadeed ee daaweynta ways of coping with the condition hababka lala qabsado cudurka ways of caring for someone with Parkinson’s hababka loo daryeelo qof qaba cudurka Parkinson Call our helpline to access the peer support service. Wac khadkeena caawinta si aad u hesho adeegga taageerida dadka isku midka tihiin. A path through Parkinson’s Waddada cudurka Parkinson This is a self-management programme developed by Parkinson’s UK and people living with the condition. It aims to give you information, an opportunity to think, and help to decide what your priorities are. We run self-management groups for people fairly recently diagnosed; those who have been living with Parkinson’s for longer; and for mixed groups. All groups are also for carers and partners. Kani waa barnaamaj is-maamul ay soo saareen Parkinson’s UK iyo dadka. Ujeddada waa inay ku siyaan macluumaad, fursad aad ku fikirto iyo lagugu caawiyo inaad go’aamiso waxyaabaha mudnaan ku ah. Waxaan qabnaa kooxo is-maamul ee dadka goor dhow lagu ogaadey cudurka; kuwa waqti dheer cudurka qabo; iyo kooxo isku qasan. Dhammaan kooxaha waxaa xittaa loogu talagalay daryeelayaasha iyo lammaanayaasha. Come along and you’ll have the opportunity Imow iyo waxaad heli doontaa fursad aad to learn from others with a similar experience wax ka barato dad kale ee qabo isla-waayoof Parkinson’s. The groups will discuss: aragnimadaada cudurka Parkinson. Kooxda wuxuu ka haldi doonaa: what self-management is wuxuu is-maamulka yahay looking ahead and plans for the future eegida mustaqbalka iyo qorsheynta mustaqbalka relationships, feelings and emotions xiriiryada, dareemyada iyo shucuurada what’s important waxyaabaha muhiimka ah top tips taloyinka ugu fiican taking care of yourself is-daryeelka support from Parkinson’s UK taageerida Parkinson’s UK Self-management groups are run by trained volunteers, who have first-hand experience of Parkinson’s, and run for two, three or six weeks. Kooxaha is-maamulka waxaa ka shaqeeyo mutadaawiciin tababaran, oo waayo-aragimo toosan ku leh cudurka Parkinson, waxaana la qabtaa labo, seddax ama lic usbuuc. For more information on dates and locations in your area or to book a place please visit parkinsons.org.uk/selfmanagement email selfmanagement@parkinsons.org.uk, or call our helpline. Si aad u hesho macluumaadka taariikhyada iyo goobaha laga qabto aagagga ama si aad meel ka dalbato fadlan u booqo parkinsons.org.uk/selfmanagement email u dir selfmanagement@parkinsons.org.uk, ama wac khadka caawinta. Useful contacts Xiriiryo waxtar leh Age UK (formerly Age Concern and Help the Aged) www.ageuk.org.uk Age UK (mar horey lagu magacaabi jirey Age Concern iyo Help the Aged) www.ageuk.org.uk Age Cymru 0800 022 3444 Age Cymru 0800 022 3444 Age NI 0808 808 7575 Age NI 0808 808 7575 Age Scotland 0845 125 9732 Age Scotland 0845 125 9732 Action on Depression (Scotland) 0131 243 2786 admin@actionondepression.org www.actionondepression.org Action on Depression (Skotland) 0131 243 2786 admin@actiondepression.org www.actiondepression.org The Afiya Trust This voluntary organisation aims to remove the disadvantage in health care services experienced by black and Asian groups and other minority communities in England. 020 7803 1180 info@afiya-trust.org www.afiya-trust.org The Afiya Trust Ururkaan samafalka wuxuu ka shaqeeyaa ka saaridda faa’iido darrada adeegyada xannaanada caafimaadka ay qabaan kooxaha madow iyo Aasiyaanka ah iyo jaaliyadaha kale ee laga tiro badan yahay iyo ku nool dalka England. 020 7803 1180 info@afiya-trust.org www.afiya-trust.org British Association for Counselling and Psychotherapy 01455 883 300 Textphone 01455 560 606 British Association for Counselling and Psychotherapy 01455 883 300 Telefoonka qoraalka 01455 560 606 bacp@bacp.co.uk www.bacp.co.uk bacp@bacp.co.uk www.bacp.co.uk Carers Trust England 0844 800 4361 Scotland 0300 123 2008 Wales 0292 009 0087 info@carers.org www.carers.org Carers Trust England 0844 800 4361 Skotland 0300 123 2008 Wales 0292 009 0087 info@carers.org www.carers.org Carers UK advice@carersuk.org www.carersuk.org Adviceline (England, Scotland, Wales) 0808 808 7777 (Monday-Friday, 10am-4pm) Adviceline (Northern Ireland) 028 9043 9843 Carers UK advice@carersuk.org www.carersuk.org Khadka talinta (England, Skotland, Wales) 0808 808 7777 (Isniin-Jimco, 10am-4pm) Adviceline (Waqooyiga Ayrland) 028 9043 9843 Cause (Northern Ireland) Cause is a unique peer-led regional charity offering services to families, partners and friends across Northern Ireland caring for a loved one who has experienced serious mental illness. 0845 603 0291 www.cause.org.uk Cause (Waqooyiga Ayrland) Cause waa urur samafal goboleed oo maamulo dad aad isku mid tihiin oo Waqooyiga Ayrland ku caawiyo qoysaska, lammaanayaasha iyo saaxiibada daryeelo qof ay jecel yihiin iyo dhibaato ku qabo xagga maskaxda. 0845 603 0291 www.cause.org.uk Citizens Advice England 0844 411 1444 Wales 0844 477 2020 Text Relay 0844 411 1445 www.citizensadvice.org.uk Website for online advice: www.adviceguide.org.uk Talo-siinta Muwaadinka England 0844 411 1444 Wales 0844 477 2020 Fariinta qoraalka 0844 411 1445 www.citizensadvice.org.uk Bogga internetka laga baxsho talo: www.adviceguide.org.uk Northern Ireland www.citizensadvice.co.uk Waqooyiga Ayrland www.citizensadvice.co.uk Scotland 03454 040 506 www.cas.org.uk Skotland 03454 040 506 www.cas.org.uk Depression Alliance Charity supporting people with depression and their families. 0800 123 2320 (voicemail only) info@depressionalliance.org www.depressionalliance.org Depression Alliance Urur samafal taageero dadka qabo murugo iyo qoyskooda. 0800 123 2320 (farriin kaliya) info@depressionalliance.org www.depressionalliance.org Disability Action (Northern Ireland) This organisation works to ensure that people with disabilities attain their full rights as citizens, by supporting inclusion, influencing government policy and changing attitudes in partnership with disabled people. 028 9029 7880 Textphone 028 9029 7882 hq@disabilityaction.org www.disabilityaction.org Disability Action (Waqooyiga Ayrland) Ururkaan wuxuu u shaqeeyaa si uu u hubiyo in dadka naafonimo qabo ay helaan xuquuqyadooda buuxa muwaadin ahaan, ayagoo taageraayo ka mid noqoshada, saamayn ku yeelanaayo siyaasadda dawladda iyo beddelida sida lala dhaqmo iskaashatada dadka naafonimada qaba. 028 9029 7880 Telefoonka qoraalka 028 9029 7882 hq@disabilityaction.org www.disabilityaction.org Disability Living Foundation 0300 999 0004 (Monday-Friday, 10am-4pm) helpline@dlf.org.uk www.dlf.org.uk Disability Living Foundation 0300 999 0004 (Isniin-Jimco, 10am-4pm) helpline@dlf.org.uk www.dlf.org.uk Disabled Parents Network 07817 300103 disabledparentsnetwork.org.uk Disabled Parents Network 07817 300103 disabledparentsnetwork.org.uk Disability Pregnancy and Parenthood International 0800 018 4730 (Tuesdays, Wednesdays and Thursdays, 10.30am-2.3-pm) info@dppi.org.uk www.dppi.org.uk Disability Pregnancy and Parenthood International 0800 018 4730 (Talaado, Arbaco iyo Khamiis, 10.30am-2.3-pm) info@dppi.org.uk www.dppi.org.uk Driver and Vehicle Agency (DVA) (Northern Ireland) 0845 402 4000 (Monday-Friday, 9am-5pm) 028 7034 1380 (textphone) dva@doeni.gov.uk Driver and Vehicle Agency (DVA) (Waqooyiga Ayrland) 0845 402 4000 (Isniin-Jimco, 9am-5pm) 028 7034 1380 (telefoonka qoraalka) dva@doeni.gov.uk Driver and Vehicle Licensing Agency (DVLA) (England, Scotland, Wales) 0300 790 6802 (driver licensing enquiries) (Monday-Friday, 8am-7pm, Saturday 8am2pm) 18001 0300 123 1278 (text phone) www.dvla.gov.uk Driver and Vehicle Licensing Agency (DVLA) (England, Skotland, Wales) 0300 790 6802 (khadka codsiga shatiga baabuurka) (Isniin-Jimco, 8am-7pm, Sabti 8am-2pm) 18001 0300 123 1278 (telefoonka qoraalka) www.dvla.gov.uk Local health services Adeegyada caafimaadka deegaanka Find your nearest primary care trust (in England), Health Board (in Scotland or Wales) or Health and Social Care Trust (Northern Ireland) in your local phone book or on the following websites: England www.nhs.uk Northern Ireland www.hscni.net Scotland www.show.scot.nhs.uk Wales www.wales.nhs.uk Ka hel ururka caafimaadka ku dhow (dalka England), Guddiga Caafimaadka (ee Skotland ama Wales) ama Ururka Caafimaadka iyo Bulshada (Waqooyiga Ayrland) buuggaaga telefoonka xaafadda ama ka eeg bogaggaan internetka: England www.nhs.uk Waqooyiga Ayrland www.hscni.net Skotland www.show.scot.nhs.uk Wales www.wales.nhs.uk Mind Mind Northern Ireland Association for Mental Health Northern Ireland Association for Mental Health No Panic A charity that helps people to overcome anxiety disorders. No Panic Urur samafal ee dadka ku caawiyo inay ka hor yimaadaan dhibaatoyinka walaaca. The Outsiders A club for people who are isolated because of their disability. Also offers advice for people who have concerns about sexual or personal relationships. The Outsiders Naadi loogu talagalay dadka cidlada ah, naafonimadooda awgeeda. Wuxuu xittaa talo siyaa dadka wel-wel ka qabo xiriirka shakshiyadeed ama galmo. Sex and Disability Helpline 07074 993527 (Monday-Friday, 11am-7pm) Sex and Disability Helpline 07074 993527 (Isniin-Jimco, 11am-7pm) Relate Provides relationship counselling and support services, delivered at 400 locations, by phone and online. Relate Wuxuu 400 meelood telefoon iyo internet ku baxshaa hanuuninta xiriirka iyo adeegyada taageerida. Relationships Scotland 0845 119 2020 (Monday-Friday, 9am-5pm) Relationships Skotland 0845 119 2020 (Isniin-Jimco, 9am-5pm) Scottish Association for Mental Health Scottish Association for Mental Health My contacts Xiriiryadeyda GP Takhtarka Guud (GP) Specialist Takhtarka khabiirka Parkinson’s nurse Kaaliyaha caafimaadka cudurka Parkinson Information and support worker Shaqaalaha macluumaadka iyo taageerida Physiotherapist Daaweyaha fisiyoterabi Occupational therapist Daaweeyaha shaqada Speech and language therapist Daaweeyaha hadalka iyo luqada Parkinson’s UK local group contacts Xiriirka kooxaha xaafadda Parkinson’s UK Local authority Dawladda hoose Other Wax kale In an emergency please contact Markuu jiro xaalad degdeg ah la xiriir Non-motor symptoms questionnaire18 Su’aalo-weydiimaha calaamadaha aan xiriir la leheen dhaq-dhaqaaqa18 Assessing the full range of Parkinson’s symptoms – especially those not related to movement – can be difficult. It may be helpful to fill in this questionnaire before you visit your specialist or Parkinson’s nurse so they can assess any non-motor symptoms you have. Tick anything that affects you and use this to build a list of priorities to talk about at your next appointment with your specialist or Parkinson’s nurse. 1 Dribbling of saliva during the daytime. 2 Loss or change in your ability to taste or smell. 3 Difficulty swallowing food or drink or problems with choking. 4 Vomiting or feelings of sickness (nausea). 5 Constipation (less than three bowel Qiimeynta dhammaan calaamadaha cudurka Parkinson – gaar ahaan kuwa aan xiriir la leheen dhaq-dhaqaaqa – wuxuu ahaan karaa dhib. Waxaa caawinaad kuu lahaan doono inaad su’aalo-weydiimahaan buuxiso ka hor intii aadan u booqan takhtarkaaga khabiirka ama kaaliyaha caafimaad ee cudurka Parkinson si ay u qiimeyaan calamaadaha aad qabtid oo aan dhaq-dhaqaaqa xiriir la leheen. Sax wax walba ku khuseeyo si aad u sameyso liiska mudnaanta oo ku qoran waxyaabaha aad rabtid inaad ballanka xiga kala hadasho takhtarkaaga khabiirka ama kaaliyaha caafimaad ee cudurka Parkinson. 1 Afka ayaa candhuuf ka tif-tifqa waqtiga maalinta 2 Isbeddelka ama lumiska awooddaada wax dhedheminta ama wax urinta. movements a week) or having to strain to pass a stool. 6 Bowel (faecal) incontinence. 7 Feeling that your bowel emptying is incomplete after having been to the toilet. 8 A sense of urgency to pass urine makes you rush to the toilet. 9 Getting up regularly at night to pass urine. 10 Unexplained pains (not due to known conditions such as arthritis). 11 Unexplained change in weight (not due to change in diet). 12 Problems remembering things that have happened recently or forgetting to do things. 13 Loss of interest in what is happening around you or in doing things. 14 Seeing or hearing things that you know or are told are not there. 15 Difficulty concentrating or staying focused. 16 Feeling sad, ‘low’ or ‘blue’. 17 Feeling anxious, frightened or panicky. 18 Feeling less interested in sex or more interested in sex. 19 Finding it difficult to have sex when you try. 20 Feeling light-headed, dizzy or weak standing from sitting or lying. 21 Falling. 22 Finding it difficult to stay awake during activities such as working, driving or eating. 23 Difficulty getting to sleep at night or staying asleep at night. 24 Intense, vivid or frightening dreams. 25 Talking or moving about in your sleep, as if you are ‘acting out’ a dream. 26 Unpleasant sensations in your legs at night or while resting, and a feeling that you need to move. 27 Swelling of the legs. 28 Excessive sweating. 29 Double vision. 30 Believing things are happening to you that other people say are not. 3 Dhibaato ku qabtid liqidda cunto ama cabitaan ama qabtid dhibaato mergasho. 4 Matag ama dareen lallabo. 5 Calool fadhi (xaarto in ka yar seddax mar usbuuciba) ama u baahan tahay inaad si xoog ah ku xaarto. 6 Ceshan karin xaarka. 7 Dareemida inaad si buuxa uu firaaqaynin caloosha markaad soo xaarto ka dib. 8 Dareen degdeg ah inaad u baahan tahay inaad kaadiso. 9 Si joogto ah habeenka soo toosto si aad u kaadiso. 10 Qabtid xanuun aan la garan karin (oo aan sababin xaalado sida bararka kalagoysyada jirka). 11 Isbeddel aan la garan karin ee culayska jirka (oo uusan sababin beddelka cuntada aad cunto). 12 Dhibaato ku qabtid xasuuska waxyaabaha goor dhow dhacey ama hilmaamto inaad wax qabato. 13 Sida horey u xiiseynin waxyaabaha ka dhaco meelaha kugu heeraan ama samaynta waxyaabo. 14 Aad aragto ama maqasho wax aad og tahay inuusan jirin ama laguu sheegey inuusan jirin. 15 Dhibaato ku qabtid inaad hawl xoog ama diiradda saarto. 16 Dareento murugo, ‘niyad hooseeya’ ama ‘niyad-jab’. 17 Dareento wel-wel, cabsi ama argagax. 18 Dareento inaadan aad u xiiseynin galmada, ama wax badan xiiseyso galmada. 19 Ku dhibaatoodo galmada markaad isku daydi inaad sameyso. 20 Dareento dawakhsanaan, wareer ama tabar la’aan markaad istaagto adigoo jiifa ama fadhiya. 21 Kufto. 22 Dhibaato ku qabtid inaad soo jeedo waqtiyada wax-qabadka sida shaqada, baabuur-wadidda ama cunto cunidda. 23 Dhibaato ku qabtid seexashada habeenka ama sii hurdida habeenimada. 24 Qabtid riyo cad ama cabis-gelin leh. 25 Hadasho ama dhaqaaqdo markaad hurdayso, sida qof ka qayb-qaadaanayo riyada. 26 Dareen xun isku aragto lugaha waqtiga habeenka ama markaad nasaneyso, iyo dareen inaad u baahan tahay inaad dhaqaaqdo. 27 Bararka lugaha. 28 Dhidid aad u badan. 29 Aragga oo labalaabma. 30 U maleyso in waxyaabo kugu dhaco kaasoo dadka kale kuu sheego inuusan sidaas eheen. Thank you to everyone who contributed to and reviewed this booklet: Waxaan u mahad-celineynaa qof walba ee ka qayb qaatey iyo dib u eegis ku sameeyey buug-yarahaan: John Hindle, Consultant Physician, Care of the Elderly, Betsi Cadwaladr University Health Board and Bangor University John Hindle, Takhtar Khabiir, Care of the Elderly, Betsi Cadwaladr University Health Board iyo Bangor University Gina Robinson, Academic Senior Nurse and Senior Lecturer at Sunderland University Gina Robinson, Kaaliye Caafimaad Sare iyo Macallinka Sare ee jaamacadda Sunderland University Claire Hewitt, Information and Support Worker, Parkinson’s UK Claire Hewitt, Shaqaalaha Macluumaadka iyo Taageerida Parkinson’s UK Thanks also to our information review group Waxaan xittaa u mahad-celineynaa and other people affected by Parkinson’s kooxdeena dib u eegida macluumaadka iyo who provided feedback. dadka kale ee saamayn ku yeeshey cudurka Parkinson oo jawaab-celin ina siiyey. We make every effort to make sure that our services provide up-to-date, unbiased and accurate information. We hope that this will add to any professional advice you receive and will help you to make any decisions you may face. Please do continue to talk to your health and social care team if you are worried about any aspect of living with Parkinson’s. Waxaan ku dadaalney inaan hubino in adeegyadeena yahay mid casri ah, aan eex lahayn iyo macluumaad sax leh. Waxaan rajeynaynaa in kani dheeraad u noqdo talo xirfadeed walba aad hesho iyo kugu caawiyo go’aan gaarid walba aad sameyn doonto. Fadlan sii wad inaad la hadasho kooxdaada xannaanada caafimaadka iyo bulshada haddii aad ka wel-welsan tahay dhinac walba ee la nololka cudurka Parkinson. References for this booklet can be found in the Microsoft Word version at parkinsons.org.uk/publications Tixraacyada buug-yarahaan waxaa laga heli karaa weerinta Microsoft Word ee parkinsons.org.uk/publications How to order our resources 0845 121 2354 resources@parkinsons.org.uk Sida loo dalbado iloyinkeena 0845 121 2354 resources@parkinsons.org.uk Download them from our website at parkinsons.org.uk/publications Ka soo baxso boggeena internetka adigoo tegaaya parkinsons.org.uk/publications Can you help? Miyaad ina caawin kartaa? At Parkinson’s UK, we are totally dependent on donations from individuals and organisations to fund the work that we do. There are many ways that you can help us to support people with Parkinson’s. If you would like to get involved, please contact our Supporter Services team on 020 7932 1303 or visit our website at parkinsons.org.uk/support. Thank you. Parkinson’s UK, waxaan si buuxa ku xirannahay deeqyada ay shakshiyaadka iyo ururyada ina siiyaan si aan ku maalgelinno hawsha aan qabanno. Waxaa jiro habab kala duwan aad nagu caawin kartid taageerida dadka qabo cudurka Parkinson. Haddii aad jeceshahay inaad ka qayb qaadato, fadlan la xiriir kooxdeena Taageerayaasha Adeegyada, ka wac 020 7932 1303 ama u booqo boggeena internetka parkinsons.org.uk/support. Mahadsanid. Every hour, someone in the UK is told they Saacad walba dalka UK qof ayaa loo sheegaa have Parkinson’s. Because we’re here, no one inuu qabo cudurka Parkinson. Inkastoo aan has to face Parkinson’s alone. halkaan joogno qof walba ma ahan inay keligooda ka hortagaan cudurka Parkinson. We bring people with Parkinson’s, their carers and families together via our network of local groups, our website and free confidential helpline. Specialist nurses, our supporters and staff provide information and training on every aspect of Parkinson’s. Waxaan isku keenna dadka qaba cudurka Parkinson, daryeelahooda iyo qoyskooda annagoo u mareyno shabakaddeena kooxaha deegaanka, boggeena internetka iyo khadka caawinta sirta oo bilaash ah. Kaaliyayaasha khabiirka ah, taageerayaasheena iyo shaqaaleheena waxay macluumaad iyo tababar ka baxshaan dhinac walba ee cudurka Parkinson. As the UK’s Parkinson’s support and research Inkastoo aan nahay ururka samafalka UK ee charity we’re leading the work to find a cure, and we’re closer than ever. We also campaign to change attitudes and demand better services. taageero iyo cilmi-baaro cudurka Parkinson, waxaan hoggaaminna raadinta daaweyn, iyo xilligaas ayaan aad u dhowaanney. Waxaan xittaa u ololeynaa beddelka dabeecadaha iyo codsiga adeegyo ka fiican. Our work is totally dependent on donations. Help us to find a cure and improve life for everyone affected by Parkinson’s. Hawsheena wuxuu si buuxa ku xiran yahay deeqyo. Inagu caawi helidda daaweyn iyo wanaajinta nolosha qof walba saamayn ku yeeshey cudurka Parkinson. Parkinson’s UK Free* confidential helpline 0808 800 0303 (Monday to Friday 9am–8pm, Saturday 10am–2pm). Interpreting available. Text Relay 18001 0808 800 0303 (for textphone users only) hello@parkinsons.org.uk parkinsons.org.uk *Calls are free from UK landlines and most mobile networks. Parkinson’s UK Khadka caawinta bilaashka* iyo sir ah wac 0808 800 0303 (Isniin ilaa Jimco 9am–8pm, Sabti 10am–2pm). Turjubaan ayaa la heli karaa. Lambarka qoraalada loo gudbiyo 18001 0808 800 0303 (telefoonka qoraalka oo kaliya) hello@parkinsons.org.uk parkinsons.org.uk *Wicitaanyada waxay bilaash ka yihiin khadadka dhulka ee dalka UK iyo badanaa shirkadaha telefoonka gacanta. Last updated October 2014. Next update available October 2017. B181S © Parkinson’s UK, October 2014. Parkinson’s UK is the operating name of the Parkinson’s Disease Society of the United Kingdom. A charity registered in England and Wales (258197) and in Scotland (SC037554). Goorta uga dambeeyo ee la casriyeeyey waa Oktoobar 2014. Casriyeynta xigta waxaa la qaban doonaa Oktoobar 2017. B181S © Parkinson’s UK, Oktoobar 2014. Parkinson’s UK waa magaca shaqada ee Parkinson’s Disease Society of the United Kingdom. Shirkad samafal ku diiwangashan England iyo Wales (258197) iyo Skotland (SC037554). Parkinson’s and you (2014) Cudurka Parkinson iyo adiga (2014) If you have comments or suggestions about this booklet, we’d love to hear from you. This will help us ensure that we are providing as good a service as possible. We’d be very grateful if you could complete this form and return it to Editorial and Creative Services, Parkinson’s UK, 215 Vauxhall Bridge Road, London SW1V 1EJ. Or you can email us at publications@parkinsons.org.uk. Thanks! Haddii aad faalloyin ama taloyin ka qabtid buug-yarahaan, waxaan rabnaa inaan kaa war helno. Kani wuxuu hubin doonaa inaan bixinno adeeg aad u fiican. Waxaan aad ugu farxi doonnaa haddii aad soo dhamayn kartid foomkaan iyo u soo celin kartid Editorial and Creative Services, Parkinson’s UK, 215 Vauxhall Bridge Road, London SW1V 1EJ. Ama waxaad email u soo dir kartaa publications@parkinsons.org.uk. Mahadsanid! I have Parkinson’s. When were you diagnosed? …………………………………… Waxaan qabaa cudurka Parkinson. Gormee lagugu ogaadey? …………………………………… I’m family/a friend/a carer of someone with Parkinson’s Waxaan saaxiib/qoys /daryeele u ahay qof qabo cudurka Parkinson I’m a professional working with people with Parkinson’s Waxaan ahay xirfadle la shaqeeya qof qabo cudurka Parkinson Where did you get this booklet from? Halkaad ka heshey buug-yerahaan? GP, specialist or Parkinson’s nurse GP’ga, takhtarka khabiirka ama kaaliyaha caafimaad ee cudurka Parkinson Information and support worker Shaqaalaha macluumaadka iyo taageerida Parkinson’s UK local group or event Kooxda deegaanka ama dhacdo u sameeyey Parkinson’s UK Ordered from us directly Annaga ayaad si toos ah naga dalbatey Our website Boggeena internetka Other Wax kale How useful have you found this booklet? (1 is Sidee waxtar kuu lahaadey buug-yerahaan? not useful, 4 is very useful) (1 waxtar ma lahan, 4 aad ayuu waxtar u 1234 leeyahay) 1234 Have you found the publication easy to read/use? Yes No Miyuu buug-yaraha yahay mid si fudud loo akhrin karo/isticmaali karo? Haa Maya Has this resource given you information that might help you manage your condition better? NA It hasn’t helped It has helped a little It has helped a lot Miyuu buug-yarahaan ku siiyey macluumaad kugu caawin karo maamulka cudurkaaga? Ima khuseeyo Ima caawinin In yar ayuu I caawiyey aad ayuu I caawiyey Continued over the page Sii socdo bogga xigga What aspects did you find most helpful? Waa maxay qaybta ugu waxtar leh? Were you looking for any information that wasn’t covered? Miyaad u baahneed macluumaad aan lagu qorin buug-yaraha? Do you have any other comments? Miyaad qabtaa faallooyin kale? If you would like to become a member of Parkinson’s UK, or are interested in joining our information review group (people affected by Parkinson’s who give us feedback on new and updated resources), please complete the details below and we’ll be in touch. Haddii aad rabtid inaad xubin ka noqoto Parkinson’s UK, ama aad rabtid inaad ku biirto kooxdeena dib u eegida macluumaadka (Dadka uu cudurka Parkinson saamayn ku yeeshey waxay jawaab-celin naga siiyaan iloyinka cusub ama did loo eegey), fadlan faah-faahintaada ku qor hoos iyo waan kula soo xiriiri doonnaa. Membership Information review group Xubinimada Dib u eegida macluumaadka Name Magaca Address Cinwaanka Telephone………………………………………… Email Telefoonka………………………………………… Emailka What is your ethnic background? Please tick….. Asian or Asian British Black or Black British Chinese Mixed White British White other Other (please specify) Waa maxay asalkaaga? Fadlan sax sanduuqa ku khuseeyo. Aasiyaan ama Aasiyaan British Madow ama Madow British Shiino Isku qasan Caddaan British Caddaan kale Wax kale (fadlan caddey) 1. Choices N (2012) 'NHS Choices Parkinson’s disease' http://www.nhs.uk/Conditions/Parkinsonsdisease/Pages/Introduction.aspx [Accessed: April 2014] 1. Choices N (2012) 'NHS Choices – cudurka Parkinson' http://www.nhs.uk/Conditions/Parkinsonsdisease/Pages/Introduction.aspx [La galey: Abriil 2014] 2. Parkinson’s prevalence in the United Kingdom (2009) http://www.parkinsons.org.uk/sites/default/f iles/parkinsonsprevalenceuk_0.pdf [Accessed: March 2014] 2. 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