Our Programme Today…………
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What is Parkinson’s?
Symptoms and Impact of Parkinson’s
Managing Parkinson’s
The work of Parkinson’s UK
Dr James Parkinson (1755 – 1824)
Essay on the Shaking Palsy
“….involuntary tremulous motion, with
lessened muscular power, in parts
not in action …… with a propensity to
bend the trunk forward, and to pass
from a walking to a running pace ……
the senses and intellect being
uninjured.” 1817
Hoxton Square
Shoreditch, London
What is Parkinson’s…….
• Parkinson’s is a
progressive & fluctuating
neurological condition
• Parkinson’s occurs when
80% of dopamine
producing cells are lost
from the part of the brain
that controls movement
• The cause of loss of
dopamine is being
researched……..
Dopamine
Parkinson’s – Incidence & Prevalence
1 in 500 of general population
127,000 in UK in 2012
>
162,000 in UK by 2020
Average age of diagnosis 55 - 74 years
Does not discriminate – all ethnic groups
Parkinson’s is rarely a hereditary condition (5% of cases)
General Practice Research Database (GPRD) 2009
NICE
• If Parkinson’s is suspected,
patients should quickly be
referred (untreated) to a
neurologist or to a
geriatrician with a special
interest in Parkinson’s
• Follow up every 6 -12
months to optimise treatment
and reassess the diagnosis
Diagnosis - Main Physical Symptoms
Slow Movements (bradykinesia)
• Ability to start a movement (initiation)
• Reduced size of movements (amplitude)
• Coordination of movements (sequencing)
Stiff, Rigid or Frozen Muscles
• Problems with turning, getting out of a chair, turning over in bed
• Fine detailed movements – activities of daily living
• Stooped posture, difficulty with facial expressions
Pill Rolling Tremor
• 70% of people with Parkinson’s have a tremor
• More noticeable when a person is anxious
Impact of Parkinson’s
Communication problems
• Mask - Bradyphrenia - Voice
• Eating & drinking difficulties
• Saliva, swallowing issues
Mobility problems
• Hypotension
• Falls & “Freezing”
Bladder & bowel problems
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Pain/Dystonia
Anxiety/Depression
Dementia
Sleep problems
Tiredness
Tremor
General health
Complex medication
Parkinson’s Medications
Medication & GIOT (Day & Night)
• Levodopa
• Dopamine agonists
• MAO-B inhibitors
• COMT inhibitors
• Glutamate antagonist
• Anticholinergics
Challenges of Medication
• Fluctuations in response (“On/Off” effect)
• Hallucinations, nightmares, confusion
• Impulsive / Compulsive behaviour (ICB’s)
• Dyskinesia (involuntary movements)
Parkinson’s UK
Join our Conversation
(web viewed by 95,000 people each month)
www.parkinsons.org.uk/forum
www.parkinsons.org.uk/blog
www.facebook.com/parkinsonsuk
www.twitter.com/parkinsonsuk
www.flickr.com/parkinsonsuk
FREEPHONE CONFIDENTIAL HELPLINE
0808 800 0303
Sudhansu
Parkinson’s Nurse Specialist Service
• In 1989 we pioneered the first Parkinson’s Nurse
Specialist
• Since then we have invested over £8 million in
funding these nurses
• There are now 336 specialist nurse posts across the
UK, so over 75% of people now have access to a
Parkinson's nurse
• They offer a targeted service to greatly improve the
care of PwP
Information & Support Workers
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Up-to-date information on Parkinson’s
Emotional support for PwP’s & family
Information about benefits and applications
Information about and links to local services
A supporting voice
Links to other Parkinson’s Services:
– Helpline
– Website
– Information Resources
– Local Branches and Support Group
Volunteer Educators
• Raise awareness of
Parkinson’s
• 1 hour talks to care &
nursing homes
• Across the South
West
Parkinson’s Research
• We are the largest charitable funder of
Parkinson’s research in the UK.
• We have invested over £55 million so far…….
90 Projects (£17 million)
• 40 projects investigating the causes of
Parkinson’s
• 20 projects to improve life with Parkinson’s
• 30 projects exploring better treatment and a cure
Olympic
Torch
South West OlympicDavid
Torch
Bearers
Denmead (Cornwall)