ASSESSING THE EFFECTIVENESS OF A COMMUNITY - BASED EARLY INTERVENTION PROGRAM FOR CHILDREN WITH DISABILITIES IN HUE CITY Nguyen Viet Nhan; Ute Schwabe; Hoang Thi Dieu Hong; Tran Thi Phuong Anh; Huynh Thi Cam Tu THE UNIVERSITY OF SYDNEY WORLD REPORT ON DISABILITY SYMPOSIUM 5-6 DECEMBER 2011 Hue College of Medicine and Pharmacy Hue city VIETNAM Office of Genetic Counseling and Disabled Children (OGCDC) Introducing the community- based Early Intervention program of OGCDC Support children with disabilities under 6 years of age Assess the effectiveness of early intervention in the community for children with disabilities using the PORTAGE ASSESSMENT and INTERVENTION TOOL Method Children Intake / Developmental Screening Eligible for services (33) NOT eligible for services Medical Examination Portage assessment Individualized service plan INTERVENTION Evaluation Teachers Parents Supervisors Document Portage: Parent’s guide & Checklist Vietnamized Vineland and Portage Checklist Portage: Vietnammized tool kit A set of documet Training for home visitors and parents The interdisciplinary meeting Training for parents Training for home visitors Evaluation the result of EI Subject Kinds of disabilities Mute and deaf (1) 3% Age: 1 y/o (2) 6.1% 2 y/o (7) 21.2% 3 y/o (14) 42.4% 4 y/o (5) 15.2% 5 y/o (4) 12.1% 6 y/o (1) 3.1% Intellectual disabilities (11) 34% Learning dificulties (2) 6% Male (20) 60.6% Down syndrome (7) 21% Autism (10) 30% Female (13) 39.4% Cerebral palsy (2) 6% Assessment and home visit Medical examination of child Assess childs abilities in 5 sessions Home-visits by a teachers Playgroup activities Creating opportunities for parents to share together Results Education of children pre- and post-participation the program Before intervention After intervention (January/2010) (December/2010) Valid Frequency (n=33) Percent Frequency (n=33) Percent No school 25 75.8 8 27.3 Kindergarten 8 24.2 13 36.4 Special school 0 0.00 5 15.2 Normal primary school 0 0.00 1 3.0 Early intervention class 0 0.00 6 18.2 Comparison of the developmental level of children’s skills after one year of intervention by Portage assessment checklist second assessment (Dec 2010) first assessment (Jan 2010) Skills 20.15 Language 12.97 36.12 Motor 24.61 27.91 Cognitive 16.45 33.18 Self help 22.58 31.39 Socialization 20.91 0 5 10 15 20 25 Mean age in months 30 35 40 Comparison of the developmental level of childrens’ skills between groups after one year intervention First assessment Mean age in months Skills No in first assessment Down Cerebral Autism palsy 9.33 Learning difficulties Intellectual disabilities Mute and deaf Sig. 1 Socialization 25.86 11.43 30.60 20.89 30.00 p < 0,05 2 Self help 24.00 20.33 18.29 29.40 20.56 28.00 p > 0,05 3 Cognitive 17.71 14.00 10.71 27.80 14.56 16.00 p < 0,05 4 Motor 23.43 16.67 23.71 32.00 24.11 27.50 p>0,05 5 Language 15.29 15.00 19.80 11.33 13.00 p < 0,05 7.00 Comparison of the developmental level of childrens’ skills between groups after one year intervention Second assessment Mean age in months Skill No in second assessment Down Cerebral palsy Autism Learning Intellectual Mute and difficulties disabilities deaf Sig. 1 Socialization 41.14 13.67 25.43 44.60 26.00 36.00 p<0.05 2 Self help 38.71 27.33 34.43 39.80 25.22 37.50 p > 0,05 p1 = 0.012 3 Cognitive 32.86 16.67 28.14 44.40 18.44 28.00 p2 = 0.06 p3 = 0.003 4 Motor 40.43 19.33 38.29 50.20 27.89 40.50 p<0.05 5 Language 24.86 18.00 14.29 33.40 15.67 14.50 p<0.05 Conclusion Achievements Raising awareness and skills of families. Group activities for parents sharing their emotions and experiences in caring for their disabled children Providing knowledge and enhancing skills for the teachers in supporting children with disabilities. Beginning interdisciplinary cooperation: geneticist, paediatricians, psychiatrists, speech therapists, physical therapists, etc... Children with disabilities have more opportunities to participate in social activities with their families and other children. Difficulties Limited of staff and supervisor in number and skill comparing to the current needs. There is not really good cooperation yet among the interdisciplinary team in the program Difficulties in diagnosis and assessment of skills of children with autism. Experiencing limitations in intervention strategies for children with autism. There are still a lack of schools / centers for children with autism to be integrated. Hue , my city Thank you for your attention!