CPCRN HPV Workgroup
2007-2009
Co-Chairs:
Roshan Bastani, PhD (Los Angeles)
Vicky Taylor, MD MPH (Seattle)
Jennifer Allen, PhD (Boston)
HPV Workgroup Participants
•Matt Kreuter
•Debbie Pfeiffer
•Vicky Taylor
•Gloria Coronado
•Jennifer Allen
•Lorraine Wallace
•Cathy Melvin
•Alexis Moore
•Catherine Rohweder
•Kurt Ribisl
•Holly Hough
•Rebecca Williams
•Karen Glanz
•Michelle Carvalho
•Roshan Bastani
•Beth Glenn
•Ritesh Mistry
•Jennifer Tsui
•Maria Fernandez
•Maureen Sanderson
•Sandra Tyson
•Guillermo Tortolero-Luna
•Dan Blumenthal
•LeRoy Reese
•Reagan Tuff
HPV Workgroup Projects
• Measures Review
• Cognitive Testing of
• Survey Items Survey of Latino
Parents
• Policy Analysis
HPV Measures Review Group
Purpose: To conduct a systematic review of measures used in study of
HPV vaccine acceptability
Established: November 2007
Chair: Jennifer Allen (Boston)
•Gloria Coronado
•Jennifer Allen
•Rebecca Williams
•Cam Escoffery
•Beth Glenn
•Reagan Tuff
•Maria Fernandez
•Patricia Dolan Mullen
HPV Measures Review Group
Products Completed:
• Submitted manuscript co-authored by participating CPCRN
sites and CDC:
Allen JD, Coronado GD, Williams RS, Glenn B, Escoffery C,
Fernandez M, Tuff R, Wilson KM, Mullen PD (2009). A Systematic
Review of Measures Used in Studies to Assess Acceptability of the
Human Papillomavirus (HPV) Vaccine. Under Review.
• Presentation at American Society of Preventive Oncology:
Allen JD, Fernandez ME, Krueter M, Kahn JA. Integrating clinical,
community and policy perspectives on the HPV vaccine.
American Society for Preventive Oncology. Annual Meeting.
Bethesda, MD, March 16, 2008.
• Inventory of HPV survey items from CPCRN network centers
(available on CPCRN website)
HPV Cognitive Testing Group
Purpose: To produce a set of cognitively tested survey items that can be used
in future research of HPV vaccination behavior
Established: October 2008
Chair: Noel Brewer (North Carolina)
•Lauren Arnold
•Lori Garibay
•Debbie Pfeiffer
•Vetta Sanders-Thompson
Participants:
•Vicky Taylor
•Jocelyn Talbot
•Gloria Coronado
• NCI:
• Sarah Kobrin
• CDC:
Katherine
Wilson
•Jennifer Allen
•Noel Brewer
•Alice Richman
•Kurt Ribisl
•Rebecca Williams
•Beth Glenn
•Roshan Bastani
•Jennifer Tsui
•Maria Fernandez
•Jasmin Tiro
HPV Cognitive Testing Group
• Identified 20 survey items to cognitively test among parents of vaccine
eligible daughters (ages 9-17 years) from a candidate list of 114 items in
the literature or used in ongoing research. All cognitive testing was
conducted in English.
• Each CPCRN site identified two target racial/ethnic groups for cognitive
testing:
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African Americans (UNC, UCLA, WU)
Latino (UT, UW, Harvard)
White (UNC, UT, UW, WU)
Other: Asians (UCLA), Haitians (Harvard)
• Examples of constructs:
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Awareness of where to go for more HPV information
Discussion of vaccine with health care provider
Readiness for decision-making
Influence of HPV vaccine ads
Social norms/influences
Perceived side effects of vaccine
Barriers to receiving vaccine
HPV Cognitive Testing Group
Products Completed:
• Cognitive testing of 20 survey items for parents of vaccine
eligible daughters (n=5-10 participants/site)
• Total N=62 parents
• Analysis of findings from participating centers
Products Continuing:
• Cross-center manuscript to be submitted to the journal of
Sexually Transmitted Infections
HPV Latino Survey Group
Purpose: Assess HPV vaccine behavior, attitudes, and barriers among
Latino parents of vaccine eligible girls (9-17 yrs); compare
across different groups & geographic regions; inform
intervention development and implementation
Established: October 2008
Chair: Roshan Bastani (Los Angeles)
Participating Sites:
•Vicky Taylor
•Gloria Coronado
• UNC Coordinating
Center: Rebecca
Williams
• CDC: Katherine Wilson
•Roshan Bastani
•Beth Glenn
•Ritesh Mistry
•Jennifer Tsui
•Maria Fernandez
•Sally W. Vernon
•Soledad Liliana Escobar-Chaves
HPV Latino Survey Group
• Identified constructs relevant to: HPV vaccination behavior and to guide
intervention development
• Selected/Adapted 24 Core Questionnaire items:
majority from existing surveys at participating CPCRN sites, HPV Measures
Group, and national surveys
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• Cognitively Tested + Translated into Spanish
• Examples of constructs:
Knowledge & awareness
 Acceptability/intention to vaccinate
 Perceived susceptibility to HPV
 Perceived severity of HPV
 Perceived efficacy of vaccine
 Barriers to obtaining vaccine
 Decision related factors
 Social norms/influences
 Self-efficacy
 HPV vaccine uptake
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HPV Latino Survey Group
Products completed:
• Core HPV Survey administered in Spanish to
parents of vaccine eligible girls (ages 9-17) at three
sites
Los Angeles (n=202)
• Telephone surveys of callers from county
health hotline for low-income, uninsured
women
Houston (n=44)
• Face-to-face interviews of residents living
the Lower Rio Grande Valley
• Telephone interviews of callers from United
Way Gulf Coast 211 Helpline (just begun)
Seattle (n=80)
• Face-to-face interviews of mothers residing
in Yakima Valley of Eastern Washington
HPV Latino Survey Group
Products Continuing:
• Continue data collection at all three
sites
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Los Angeles (n=300)
Houston (n=200-400 from 211)
Seattle (n=100)
• Cross-center manuscript to describe
similarities and differences across
regions
HPV Policy Analysis Group
Purpose: To describe and compare state legislation on HPV vaccine and to identify
correlates of policy activities
Established: November 2008
Chair: Ritesh Mistry (Los Angeles)
Participants:
•Vicky Taylor
•Noel Brewer
•Kurt Ribisl
•Rebecca S. Williams
•Ritesh Mistry
•Miriam Laugesen
•Roshan Bastani
•Theresa Byrd
•William Callo
HPV Policy Analysis Group
Products Completed:
• Database of details about state legislative bills regarding HPV vaccination
from January 2006 - June 2008
• Grant proposal to RWJ to continue and extend this work (not selected)
Products Continuing:
• Manuscript in preparation:
Laugesen M, Caramelli K, Mistry R, Needleman J, Taylor V,
Bastani R. “All Over the Map: State Legislation on Human
Papillomavirus Vaccine.”
• Manuscript at conceptual stage:
Mistry R, Laugesen M, Ribisl K, et al. “State-level correlates
of HPV Vaccine legislation.”
HPV Workgroup Projects
Accomplishments in 1.5 Years (2007-2009)
• Measures Review
• Cognitive Testing of Survey Items
• Survey of Latino Parents
• Policy Analysis
HPV Workgroup Participants
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Emory University - Karen Glanz, Michelle Carvalho
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Harvard/Boston University - Jennifer Allen, Lorraine Wallace
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Morehouse School of Medicine - Dan Blumenthal, LeRoy Reese, Reagan Tuff
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University of California, Los Angeles - Roshan Bastani, Beth Glenn, Ritesh Mistry,
Jennifer Tsui
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University of North Carolina - Kurt Ribisl, Holly Hough, Rebecca Williams, Cathy
Melvin, Alexis Moore, Catherine Rohweder
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University of Texas - Maria Fernandez, Maureen Sanderson, Sandra Tyson,
Guillermo Tortolero-Luna
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University of Washington - Vicky Taylor, Gloria Coronado, Peggy Hannon, Nancy Healy
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Washington University in Saint Louis - Matt Kreuter, Debbie Pfeiffer
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National Cancer Institute - Jon Kerner, Sarah Kobrin
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Centers for Disease Control & Prevention - Katherine Wilson