Safeguarding and Personalisation – the legal issues

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Think Local, Act Personal – despite
the difficult times
(the law, seen as a beacon through the fog
and as an essential strategic tool
for TLAP systems design)
Belinda Schwehr
Care and Health Law
01252 725890 / 07974 399361
belinda@careandhealthlaw.com
© Belinda Schwehr, 2011
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How the law has ensured that the public and people with disabilities are not
forgotten during policy decisions about raising the FACS threshold higher and higher.
How the law has supported the need for providers to be properly consulted, in terms
of the market price of services.
Universal, preventative and re-ablement services – how the law gives councils clear
powers to buy or grant fund services both above and below the line
First contact and proper assessment of eligibility – what the law teaches us to avoid,
however tempting it might be, to cut corners! And what it says about following
government guidance such as FACS and the ordinary residence guidance.
Direct payment basics vs managed personal budgets – the law and regs make it clear
what they can be spent on, who can exceptionally be employed, who is responsible
for what, how an incapacitated person can now have one through a Suitable Person
and how public money is protected.
Rational funding schemes – how the law has shown that they must be indicative
only, and cannot operate on an irrational basis. How does yours shape up?
Support planning mistakes – how the law now helps councils exercise ultimate control
over the client’s choice of service and deployment arrangement, but ensures their
central place in the process
Signing off the preferred outcomes with a finalised resource allocation – how the law
makes it clear why it crucially matters.
Cases I am not going to go on about today ....
but which do really matter for modern social care
• Pembrokeshire care homes won a JR about not being properly
genuinely consulted about a nil percent increase – the case
means that all commissioners have got to take all relevant
considerations – including the risk to the viability of a market
in social care – into account when negotiating prices.
• Birmingham lost a case about not doing sufficient impact
assessment before raising the FACS threshold to ‘critical’.
• But Lancs has won their case because they did it properly.
• Manchester, Hillingdon and Cheshire West have lost cases
about safeguarding - the last about failing to commission
proper services that should clearly have been part of the care
plan. The courts are making councils pay the costs of not
knowing that they are not In Control when it comes to
people’s personal and private lives.
© Belinda Schwehr, 2011
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The most obvious systemic TLAP legal pitfalls
to avoid (or exploit!)
• The Council denies access to ‘self-directed assessment’ to any
individual or client group, as if it had a choice in the matter. All
the client need do is establish a right to assessment and ask
for a direct payment, and they have to be treated within the
law. The law requires that government guidance be followed,
unless there’s a very good reason not to!
• The Council rations assessment so that it takes much longer to
start, after the first contact is made, and naturally a lot longer
to finish – with a final plan. Nothing is supplied or funded in
the meantime. The law says that there must be an interim
response after eligibility has been established.
• The Council ignores eligibility altogether, and simply expects
support planning to work out within the allocated resource
based on a self- or supported- assessment questionnaire,
against a foggy background of desired outcomes and a budget
driven cost ceiling. The law says that eligibility assessment is a
council function, and that assessment must be needs-led.
More popular pitfalls....
• The questionnaire does not enable people to see how their
asserted needs are being scored. The law says that people must be
given a fair chance to understand what it is that they have got to
satisfy the authority about…and how it will be measured. See
Savva, and Cambridgeshire cases...
• The questionnaire leaves out areas or domains which are clearly
associated with community care services described explicitly in the
legislation, like transport to services, or facilitating recreation. The
law says that assessment must be offered across all potential
community care services listed in the legislation.
• The Council ignores local authority/public law about what sort of a
person has to make which sort of decisions, regarding the care
package and funding – giving the job to a local charity or reablement organisation, for instance. The law says that the function
of assessment – the actual decision making about eligibility,
funding or services and the deployment route (managed budget
or direct payment) is for the council or its lawful delegates (that
means the health service). Not a contractor.
© Belinda Schwehr, 2011
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More of same….more systemic pitfalls
• The Council raises expectations too high, and then seems to be
working according to wholly different rules about what sort of
services it ever “provides” to anyone – and thus will fund, such
as announcing ‘we don’t do night-sitting’ or ‘we don’t do
cleaning’… ‘and therefore you can’t have any money for it….’ –
this is an unlawful fetter on its discretion.
• The Council’s resource allocation scheme applies an automatic
discount for the mere fact that the client lives with another
person. Or fails to inform people that it’s not a take it or leave it
amount. Or is based on figures that have been plucked out of
the commissioning units fantasy about managing the market,
rather than real, local current costs... All challengeable by way
of legal proceedings.
• The Council’s Resource Allocation is described as ‘indicative’ but
people are merely told to complain, if they are not happy with
the amount. The law now says that they must be given written
reasons for any refusal of money or items or services – by the
actual decision maker – before they have finished their jobs.
© Belinda Schwehr, 2011
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How does the law support the buying of universal and
preventive services?
• Councils have always had very wide powers to make a difference locally, by
means of interesting partnerships with Health, the voluntary sector, and
other councils. These projects are for joint strategic needs and involve
agency contributions, rather than solely the money of any one
organisation.
• Even without doing any assessments, Councils have got wide powers to
buy or otherwise procure (ie through grants) the existence of both
generally desirable and specifically community care type services for the
area, in chunks, so that they’re just there for people to go and get for
themselves, at a subsidised price, direct from the provider – or through
charged-for social care services. These don’t have to be in a care plan, to
be charged for.
• Re-ablement and Intermediate Care are perfect examples – chargeable
after the first 6 weeks.
• Nobody gets a direct payment, however, unless they’ve been assessed as
eligible. So nobody gets a personal budget for universal services....
© Belinda Schwehr, 2011
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How the law has developed an individual adult’s
social care rights – since 1997….
• Anyone with an apparent disability or long term condition is entitled to
assessment of needs for services of a community care type.
• These services are defined in s46 of the NHSCCA 1990 and cover 5 bits of
current legislation, all worded subtly differently – and quite ambiguously.
• Councils are entitled and obliged to consider whose needs are ‘eligible’,
by reference to current Fair Access to Care Services guidance, based on
the amount of ‘risk to independence’ arising from the needs, if no social
care input were to be forthcoming, after everything else that might
feasibly meet the need has been considered.
• The threshold is local because social care is a local council function; and it
can be raised due to financial shortage. But the approach to individuals’
presenting needs is fixed nationally. The 2003 FACS guidance said that the
indicators of risk could only be added to, not changed so as to make them
more restrictive.
© Belinda Schwehr, 2011
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An ‘assessment’ covers
three main things, if it is to be legal:
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An assessment is not ‘done’ (in the sense of done properly and finished,
discharging the council’s full duty) until someone’s needs (for community care
services) have been
a) identified and classified, as to whether the needs are even for social care;
b) put through eligibility criteria, resulting in a decision as to which needs are so
needy as to be eligible, and then
c) care planned for, so that any eligible unmet needs are met appropriately (ie
reduced down to the local FACS threshold)
…in each case, all this has to be done by the local authority or a lawfully
authorised delegate (eg under Partnership arrangements with Health). Finalised
assessment decisions cannot (yet) be fully delegated through contract to outsiders,
such as re-ablement providers or independent social workers.
It’s coming though – via independent social work pilots.... In the next 3 years
probably.
The concept of meeting need ‘appropriately’ is a woolly one, but it does boil down
to three things, from the case-law:
– not unreasonably, in terms of professional consensus and social work values,
– lawfully, in light of the rest of the UK’s general laws, like the Choice Directions
and discrimination laws, and
– compliantly with UK human rights, properly understood (eg art 3, arts 5,8, 9)
© Belinda Schwehr, 2011
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Are the council’s inevitable resources difficulties
relevant to what’s appropriate in the first place?
• A lack of resources (money in the social services coffers) is legally irrelevant
to the duty to meet need appropriately in this sense: it’s not an excuse for
not meeting need. It is a corporate (an LA’s, not just social services) absolute
duty.
• A council can use its financial position as one consideration in a range of
considerations when determining what to offer a person to meet their needs.
A cheaper setting can be offered, a cheaper service can be offered, so long as
they are all adequate and appropriate.
• A complete lack of resources - in terms of non-existence of any appropriate
service to buy - is not something that the law can change, but the law says that
something must be done or arranged in the interim, ie the next best thing,
even if it costs more than was expected for the level of need concerned, in the
short term.
• If the authority agrees that the need can only be met in one way,
appropriately, then the cost of any other inappropriate way is completely
irrelevant – because it would not be lawful in the first place to use that other
method.
• Local authorities cannot therefore assume that everyone ‘can’ have their
needs met for the cost of a residential care place, because for some at least,
albeit only the exceptional few, it would never be appropriate, in terms of
professional judgment.
© Belinda Schwehr, 2011
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More on the relevance of resources
• However, the local FACS threshold can be put UP, because
of economic hardship – so long as there is proper
consultation beforehand. Two authorities are being sued at
the moment for drawing a line through one of their bands,
and I don’t think that that is lawful.
• And, the person’s needs may be re-worded in a more
general way, on a re-assessment, allowing for more room
for manoeuvre, in relation to what would feasibly be seen
to meet that newly described need. See McDonald
• And also, in times of economic hardship, judges will be
sympathetic to the contention that less than perfect ways
of doing things, are at least not inappropriate, such that it
will probably be seen to be lawful to offer the not so
perfect means of meeting need, even though no-one thinks
it’s that wonderful. That is the harsh truth deriving from
the fact that all this money is public money – tax payers’
money, ultimately.
© Belinda Schwehr, 2011
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Community care legislation – in England –
containing specific wording about services
• S117 Mental Health Act – pretty well anything for someone
discharged from compulsory section for their mental health aftercare
needs
• S2 Chronically Sick and Disabled Persons Act – home based services
for disabled and ill people – home owners, tenants and licensees.
• S29 and s21-26 National Assistance Act – general welfare services for
disabled people, including the mentally ill, and care together with
accommodation for eligible people without care and attention
otherwise available to them
• Sched 20 NHS Act 2006 – health related aftercare and preventative
services, from social services, not the NHS.
• For these last two, above, see here for the directions which make some
such services into duties:
http://www.dh.gov.uk/en/Publicationsandstatistics/Lettersandcirculars/LocalAuthorityCirculars/AllLocalAuthority/DH_4004121
• S45 Health Services and Public Health Act (pretty well anything for
promoting the welfare of old people)
So, what CAN the money be spent on?
The wording of these Acts, means that - always assuming an assessed
eligible need, and a proper resource allocation for the agreed deployment
route – councils and clients can buy the following things:
• Anything in the way of care and attention or support or supervision
• Any items that would add to the person’s comfort safety or convenience
• The cost of membership or entry to activities that count as recreational
facilities
• Items or activities that enable the keeping up of contact with the world
and society
• Transport to services or events above and beyond other concessionary
transport that is offered, if it is appropriate for use by the individual.
• Anything that the legislation comprising the full range of community care
services could possibly be stretched to cover – that’s fully 5 Acts of
Parliament at this point A “wireless, TV or similar recreational facility” is
the language used in the CSDPA statute, for instance – and it is clearly able
to be stretched to cover a computer, if that is cost-effective enough to
convince the council that it’s appropriate to fund.
What is the test for what the budget can NOT be
spent on?
• But not things that are clearly outside the language: for instance – using the Budget to pay off a tribunal claim brought by a Personal
Assistant for personal wrongdoing of the employer.
– services which are clearly specialist enough to strike anyone as nursing
services – NHS money is for that, not social services’ money.
– speculating on the hedgefund market!
• Not something that it would be unlawful for anyone to buy – eg class A
drugs.
• Not – if the client has taken a direct payment, on in-house services – the
consensus seems to be that if a person wants a council-provided service,
s/he must leave the cost of that service in the managed part of the
budget, and cannot spend a direct payment on buying services direct from
the council. That could be different if one’s provider were a local authority
trading company.
• Not anything that the council chose to forbid in advance, or at sign-off,
because it feared reputational damage when dealing with the flak from
the media, even if it wasn’t illegal and wasn’t outside the community care
services legislation….
• Not anything that the council refused to approve in the support plan, on
grounds of disproportionate risk management issues, or the impact on
others in the community.
Where do ‘Fair Access’ Criteria fit?
• The guidance says that one central thing is being assessed – the
amount of risk to independence if no social services are put in –
after all one’s friends’/ neighbours’/ relatives’ willing and able
assistance, and access to other things, (health, housing, etc) have
been deducted. ..
• It is not the person, nor the extent of the person’s
disability/illness, itself, being assessed – it’s unmet eligible
assessed need – in particular domains relevant to social care.
• So the system already allows for people to help themselves, or be
helped by their families etc. – but it impacts on their entitlement.
• Withdrawal of crucial informal support logically increases need,
and hence eligibility. But what is a want, as opposed to a need? It’s
the council which gets to decide, subject only to judicial review.
• Why? Because it’s public money paying for it!
© Belinda Schwehr, 2011
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Legal status of the 2010 guidance
• The new guidance is virtually mandatory for councils – here is the link:
http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/@ps/do
cuments/digitalasset/dh_113155.pdf
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It is issued under the auspices of s7 Local Authorities Social Services Act 1970
which compels Councils to act under the general guidance of the Secretary of
State:
“7 (1)
Local authorities shall, in the exercise of their social services functions,
including the exercise of any discretion conferred by any relevant enactment, act
under the general guidance of the Secretary of State.”
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Virtually mandatory, that is, because no guidance is absolutely binding; it would
not be guidance, if it was - it would be LAW.
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But this means that if a council’s decision makers (whoever they may be…)
– Don’t know about it
– Don’t appear to follow it, or
– Don’t explain why they are not going to follow it in a given case
…the council would be open to judicial review… and if it were to lose, the funding
decision would be void, and would have to be taken again, properly, second
time around.
Critical needs/risks to independence –
if no social services are provided
Critical – it’s when – if nothing is done about it • life is, or will be, threatened; and/or
• significant health problems have developed or will develop; and/or
• there is, or will be, little or no choice and control over vital aspects of
the immediate environment; and/or
• serious abuse or neglect has occurred or will occur; and/or
• there is, or will be, an inability to carry out vital personal care or
domestic routines; and/or
• vital involvement in work, education or learning cannot or will not be
sustained; and/or
• vital social support systems and relationships cannot or will not be
sustained; and/or
• vital family and other social roles and responsibilities cannot or will
not be undertaken.
© Belinda Schwehr, 2011
So what does the actual guidance do?
• The guidance re-states what may seem like an obvious truth – the
bands do not represent particular types of need, or risk, in a hierarchy
of seriousness - but instead, refer to the size of the risk to a person’s
independence, in particular domains of living, being caused by the
totality of their particular difficulties.
• So not being able to undertake any, or only one or two normal
domestic routines could be deemed to be a critical risk, if a vital
routine was involved, even if what is required to solve this was a
cleaning service, and not personal care. Likewise with social inclusion
risks, inability to access services, etc.
• It is a complete myth that cheap services or small packages are the
outcomes of low or moderate needs. There is no logical correlation
between the cost of a package for someone from the LD client group
who scores x across the domains of a, b, c, d and e, and the cost of a
package for someone who scores the same over different domains.
The descriptors are not in a hierarchy and the domains generate
different needs for different types of service, not all of which are
charged by the hour.
• NO system of RA is determinative, because it is used before support
planning and negotiations with families.
FACS is even helpful on clarifying the relevance of the
client’s own funds
Para 77. From the beginning of the process, councils
should make individuals aware that their individual
financial circumstances will determine whether or
not they have to pay towards the cost of the support
provided to them.
However, an individual's financial circumstances should
have no bearing on the decision to carry out a
community care assessment providing the qualifying
requirements of section 47(1) of the NHS and
Community Care Act 1990 are met.
Neither should the individual’s finances affect the level
or detail of the assessment process.
Relevance of the client’s own
money to eligibility:
Para 71. This means that once a person has been identified as
having an eligible need, councils should take steps to ensure that
those needs are met, regardless of the person’s ability to
contribute to the cost of these services. An assessment of the
person’s ability to pay for services should therefore only take
place after they have been assessed as having eligible needs.
A person's ability to pay should only be used as a reason for not
providing services in circumstances where a person has been
assessed as needing residential accommodation, the person has
the means to pay for it and if the person, or someone close to
them, is capable of making the arrangements themselves.
© Belinda Schwehr, 2011
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The risk of ignoring the ordinary residence guidance
• Buckinghamshire decided to sue another council for dumping a person
into independent living in Bucks’ area.
• It’s interesting that nobody sued Bucks for absolutely refusing to assess a
person who was already living there with a disability!
• The ordinary residence guidance makes it clear that a person with capacity
moves their place of ordinary residence when they take up a tenancy in
another area, and are entitled to assessment from the new authority. Not
necessarily services of course, because the threshold might be different.
But that means that the exporting council’s care managers jolly well need
to liaise before ‘facilitating’ these moves, in the name of Valuing People (!)
• Bucks lost the case on the issue of mental capacity, because Kingston’s
care planners had genuinely followed the Mental Capacity Act duty to
maximise the person’s understanding of what she was being invited to
sign!
• The case sets out a usefully very low test for mental capacity to sign a
tenancy – but there is still a test!
© Belinda Schwehr, 2011
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• The Law on the implications of the two
deployment routes that can be used for
personal budgets...
• And on some particular aspects of direct
payments – the ‘preferred form’ for a
personal budget – by 2013.
© Belinda Schwehr, 2011
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Deployment routes…
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There are essentially two ways to take a personal budget – as a direct payment or
as a ‘managed’ personal budget.
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‘Managed’ – in this context - means the council’s officers concluding the contract
for the service, in as personalised a way as providers will allow, or feel it would be
necessary or feasible to offer.
NB - If the client agrees to have a direct payment, and gives it to someone to
manage, the client will obviously think of that as a “managed” personal budget as
well, so you do need to be careful here with language.
The council managed PB route is always subject to public procurement rules and
standing orders. If the council changes providers, TUPE will or at least MAY apply.
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Direct payment clients’ purchases are not subject to public procurement. They
are individual private purchases, even though the money came from local
government.
With a Direct Payments PB, the client is the purchaser, the employer, the
contractor – and thus owes the legal obligations associated with all those roles –
and is bound by any legal rules governing direct payments.
It could be the council that the Direct Payment client would like to manage the
payroll or the payment system for purchases. What is then done by any such
council is NOT public procurement – that’s the council choosing to act as the
client’s agent – under s2 of the Local Government Act 2000.
Who is the purchaser?
• In a direct payment the client decides who to contract with and how to
carve up their own budget, subject only to the constraints of the direct
payment agreement they will have signed with the council.
• In a managed personal budget, the council is the contractually liable
party in terms of payment. The contract is ‘for’ the client in one sense,
but does not lumber the client with any formal contractual obligations.
• When contracting, the council is bound by its own standing orders,
procurement law, and the state aid rules.
• It does not have to offer choice of provider to the client, in legal terms,
but the performance targets from central government require and most
councils accept that if they are to use these routes to delivering
services, that the client is happy that they have been able to control the
manner and timing of the services.
• Note that NI130 does not say the identity of the provider, for managed
personal budgets!
© Belinda Schwehr, 2011
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What does the personal responsibility of
the client mean under a direct payment?
• Well, it means that the provider can’t go to the council for payment, if the
client doesn’t pay, for instance.
• The provider cannot be told by the council what quality of service to provide,
or how much to charge.
• The provider doesn’t have to be an approved provider of the council. Or even
regulated, if it’s an individual buying the service for themselves or a family
member, from another individual.
• The council can tell providers how much it proposes to offer to clients to fund
various types of care, but that is not binding on the provider, who may well
say that that rate is no use at all to them. Market forces will ultimately
determine who is right.
• The client is liable for employment law wrongs, not the council (unless the
council has behaved wrongly at an earlier stage....)
• The client owns the equipment bought with a DP and must be responsible for
taking care of it...
© Belinda Schwehr, 2011
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The law on the displaced functions and obligations of the responsible
authority – the duty to care gets suspended when a DP is taken...
14.—(1) Except as provided by paragraph (2), the fact that a
responsible authority makes a direct payment shall not affect
their functions with respect to the provision under the relevant
enactment of the service to which the payment relates.
(2) Where a responsible authority make a direct payment, they
shall not be under any obligation with respect to the provision
under the relevant enactment of the service to which the
payment relates as long as they are satisfied that the need
which calls for the provision of the service will be secured by—
(a) in the case of direct payments under section 57(1) of the
2001 Act or section 17A(1) of the 1989 Act, the payee’s own
arrangements; or
(b) in the case of direct payments under section 57(1A) of the
2001 Act, the arrangements made by S (the Suitable Person).
© Belinda Schwehr, 2011
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Would it be wrong to spend a direct payment on
something outside the support plan?
The fact that
A) the amount of a direct payment has to be worked out by reference
to the likely cost of the services in the care plan, (not just the
‘outcomes’ or ‘objectives’) and
B) there are recovery provisions for misuse; and that
C) not spending the money on the services in the support plan is also
a ground for recovery
… suggests to me that ordinary Direct Payments ARE implicitly so linked
to the community care services that would otherwise have to be
provided by a council.
Even the Audit Commission’s web-page said about DPs: “The money can
only be spent on a narrow selection of traditional social care
services (specified in the care plan). The focus is inputs, rather than
outcomes.”
© Belinda Schwehr, 2011
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The law on repayment of direct payments
15.—(1) A responsible authority which have made a
direct payment may require the payment or part of the
payment to be repaid where they are satisfied that—
(a) the direct payment or part of the payment has not
been used to secure the provision of the service to
which it relates; or
(b) a condition imposed under regulation 11 or 12 has
not been complied with.
(2) Any sum falling to be repaid by virtue of paragraph
(1) shall be recoverable as a debt due to the
responsible authority.
© Belinda Schwehr, 2011
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The law that permits Direct Payments to be spent on spouses,
or close relatives in the same household if the council agrees
it’s really the only way forwards
11.—(1) A direct payment under section 57(1) of the 2001 Act
or section 17A(1) of the 1989 Act shall be subject to the
condition that the service in respect of which it is made shall
not be secured from a person mentioned in paragraph (2)
unless the responsible authority are satisfied that securing the
service from such a person is necessary —
(a) in the case of a relevant service as defined in paragraph
(a)(i) or (ii) of the definition of that term in regulation 1(2), to
meet satisfactorily the prescribed person’s need for that
service….
© Belinda Schwehr, 2011
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Direct payments and Pre-Paid cards
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The essence of a direct payment is a payment. Ordinary people would think of a
payment as receiving a sum of money and it passing to the recipient.
If you’re not giving people the money, but keeping the money in a council bank
account and just giving out cards, I don’t think you can call it a direct payment.
Virtual control over it would have to be argued to amount to the same as owning it,
legally, and whilst I can see that you could have a good go, I don’t think the courts
would go for it.
If it’s not a direct payment, then the client isn’t the real purchaser of the service. The
council would be the real purchaser. That raises public procurement and standing
order issues, and even employment of PA issues, but they are not insoluble.
The only other way councils could be doing this through something called a direct
payment is if they got people’s acceptance of a direct payment and then could
document asking them whether they’d like the council to manage it for them.
On that footing it might be argued that the fact that the money is in a corporate
account is not an issue that defeats it being a direct payment: the council is acting
only as agent for the DP holder, with the person’s capacitated consent. That way
councils would only be purchasing services or providing a payment service as agent
for each client as an individual principal and would not be contractually liable..
© Belinda Schwehr, 2011
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Can the client buy council-run services with their
direct payment?
• The legal consensus seems to be ‘no’, because local authorities are
creatures of statute and can only do what they have power to do under
statute – they don’t have a power to sell services directly to the public...
• They can provide social services, of course, in return for a charge, but that’s
a statutory charge, and the supply is not under a contract, and that’s why it
doesn’t need the consent of a client – useful if the client lacks capacity.
• The client can simply leave the part of their budget that they want to spend
on in-house services, with the council in a managed personal budget, in the
council’s account, to offset the cost of the in-house services, instead of
taking it as a direct payment, so it doesn’t really matter.
• But some councils are preparing to hive-off trading arms, called LATCs, so
that council in-house staff can be used as secondees, or TUPE over to that
organisation, to provide commercially-priced services to direct payments
clients who choose to buy them, and to fully private self-funders….
Can councils pay for voids on top of managed personal
budgets or direct payment clients’ own deals?
• Yes, in my view – they can do it under their general social care
powers, or for the well-being of the community or because they
have to, in order to develop the market.
• Councils have statutory power to make arrangements for social
care services, whether or not there are clients who are formally
eligible for them.
• Their community care powers enable them to procure blocks of
service for whoever is then sent in that direction. Also they can
give grants to ensure that certain things happen in the
community.
• Providers who have clients with care packages and direct
payments, or council contracts for within-resource allocation
amounts, may well need voids commitment contracts on top to
enable them to function viably.
© Belinda Schwehr, 2011
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• Helpful law and regulations connected with
direct payments for incapacitated people...
© Belinda Schwehr, 2009
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The new direct payment framework for
incapacitated people who can’t consent
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On November 9th, 2009, new regulations came into force which govern the
giving of direct payments to people who lack capacity to consent to one in
person.
The person who consents, lets the council off the provision hook, and then
takes and spends the money is dubbed the service user’s ‘Suitable Person’.
Most such people who might step forward to take on this responsibility will
not be lawfully authorised to act in any OTHER way, so as to make them the
formal agent of the service user.
They will not usually be an attorney or a deputy, so they won’t have access to
the person’s own money, unless they have a joint bank account already, with
that person.
And they will not be able to be deemed to have been ‘appointed’ the person’s
agent, by the person him or herself, because the person will, by definition,
have nil or barely any capacity, with which to make that choice.
So – the Suitable Person, AND NOT THE CLIENT - WILL BECOME THE REAL
EMPLOYER OF WHOEVER IS THEN GIVEN THE Personal Assistant role, or the
PURCHASER of the services rendered or the goods supplied.
So taking on this role carries criminal and other civil legal responsibilities which you would naturally want to know about, before saying yes!
© Belinda Schwehr, 2011
34
What can a Suitable Person DO with a person’s direct payment,
legally?
• They don’t have any lawful authority to act ‘for’ the client as agent in relation
to the Direct Payment that counts as the client’s money once it’s been passed
over.
• They can’t make a formal contract with the money, at least not in the name of
the client.
• They are the recipient of the money and have lawful access to it, because they
have been chosen by the local authority who would otherwise have had to
provide or purchase.
• They have lawful access to the money, but it’s an interesting question whether
it’s the client’s money – in legal terms. Who has legal ownership of the money?
I think it’s the Suitable Person.
• One of the conditions is that they act in the Best Interests of the client, but
there is no Ct of Protection regulation of them.
• They can make contracts in their own name with the DP money for the
purposes set out in the support plan.
• It doesn’t make them an appointee, for management of benefits, automatically.
My view is that they should be acknowledging the conditions, directly, in their
own name with the local authority, so that they are acknowledging the
conditional nature of the appointment thereby making it feasible to prove
misuse or abuse of that position.
© Belinda Schwehr, 2011
35
From the perspective of the provider
The Suitable Person scheme …
• Enables the provider to contract directly with a
person who is fully capacitated for communication
and liability purposes
• Enables the council or the provider to review support
plans with a fully capacitated person, annually.
• Enables the council to put even more people onto
direct payments, and then control the money supply
that governs what providers may think it’s feasible to
charge, subject only to judicial review for
unreasonableness etc
© Belinda Schwehr, 2011
36
From the perspective of the Suitable Person…
• The scheme enables them to organise care without having to
be CRB’d or risk being barred, and without checking for the
status of the staff they choose to take on, if the SP is an
individual unpaid friend or family member of the service user,
making private arrangements with workers.
• If they are unpaid friends or family of the service user, SP
status means that they do not have to register with the CQC
as providers (arrangers) of personal care.
• They are not exposed to risk of being barred, despite doing
regulated activities under the SVGA, if they are family or
unpaid friends, doing the arranging.
• Whether this is good or not, of course, for the client, is a moot
point.
© Belinda Schwehr, 2011
37
From the perspective of the council
Appointing a suitable person …
• Involves having a policy, staff and paperwork to do your legal
duties; most still don’t...
• Gets direct payment numbers up – if there are any
incapacitated people still around who haven’t already been
given an unlawful one
• Ensures accountability for the public money, in the hands of
someone who can be pursued, properly, for breach of
conditions and misuse
• Protects the client from risk of liability that could never be
easily enforced
• Saves on care planning time, because it passes over the job to
the Suitable Person, who must work in an MCA-compliant
way.
© Belinda Schwehr, 2011
38
• Resource allocation law and guidance
• Due process, fairness, transparency and
reasons – from the beginning of the system,
right through to the end!
© Belinda Schwehr, 2009
39
The resource allocation system – DH guidance
129. The aim of the RAS should be to provide a transparent system
for the allocation of resources, linking money to outcomes
while taking account of the different levels of support people
need to achieve their goals. It allows people to know how much
money they have available to spend so that they can make
choices and direct the way their support is provided.
130. Calculating what resources should be made available to
individuals should not detract from a council’s duty to
determine eligibility following assessment and to meet eligible
needs. Rather a RAS should be applied as a means of giving an
approximate indication of what it may reasonably cost to meet a
person’s particular needs according to their individual
circumstances. It is important for councils to ensure that their
resource allocation process is sufficiently flexible to allow for
someone’s individual circumstances to be taken into account
when determining the amount of resources he or she is
allocated in a personal budget.
Running out of money – the English FACS
guidance says ‘Tough’!
124. Councils should plan with regards to outcomes, rather than
specific services. They should consider the cost-effectiveness
of support options on the merits of each case and may take
their resources into account when deciding how best to
achieve someone’s agreed outcomes. However, this does not
mean that councils can take decisions on the basis of
resources alone.
Once a council has decided it is necessary to meet the eligible
needs of an individual, it is under a duty to provide sufficient
support to meet those needs. Councils should provide
support promptly once they have agreed to do so, but where
waiting is unavoidable, they should ensure that alternative
support is in place to meet eligible needs.
Procedural fairness – the newly explicit
requirements in the government guidance!
Para 106 of the FACS guidance from 2010:
Where councils do not offer direct help following
assessment, or where they feel able to withdraw the
provision of support following review, they should
put the reasons for such decisions in writing, and
make a written record available to the individual.
Councils should tell individuals who are found
ineligible for help that they should come back if their
circumstances change, at which point their needs
may be re-assessed. A contact number in the council
should be given.
The first reported case on the rationality and
transparency of RA systems – Mrs Savva
• Mrs Savva was a 70 year old client, who suffered from
diabetes, heart and respiratory problems, and was arthritic
with poor eyesight. She had had a stroke some 10 years ago,
and she had been in receipt of care services from the Local
Authority since that time.
• The challenge related to the decision first made in late 2009,
to provide the Claimant with a personal budget of £170.45p
per week.
• It had started off at £82.91 when she was first put through
the RAS in the summer. She HAD got 16 points on the RAS at
first.
• Later the points score was adjusted to 28 points and the
funding was adjusted to £132.56p, and this was then finally
increased to £140 odd and then to £170.45p - without any
more points being ‘granted’.
© Belinda Schwehr, 2011
43
The arguments in Savva
The council said as follows, at court, in defence of its use of a RAS:
“The RAS tool is a mathematical tool which has been promoted by the
DH and adapted for use by the Council. The rationale behind the
tool is to ensure objective consistent needs-based decision making
in the context of community care. The RAS tool is designed to help
the Panel in its analysis. It generates an indicative budget only.”
The “indicative budget” generated by the Council’s November 2009
RAS, when translated from a points score of 28 points to a
monetary value, amounted to £112.21p. This sum, of course, was
an increase from the £82.91p generated subsequent to the July
SAQ. This sum was then adjusted to £142.02p per week.
“Analysing the claimant’s needs in the round, the panel considered
that the ‘indicative budget’ of £142.02p per week was too low and
did not properly meet the Claimant’s needs particularly in terms of
meal preparation. Therefore, the panel increased the indicative
figure and allocated a weekly budget of £170.45 to the Claimant.”
© Belinda Schwehr, 2011
44
On the need for reasons….
The Directors of Adult Social Services in their document “Common Resource
Allocation Framework” dated October 2009 state that ‘up-front allocation’
means that the person is told, before a support plan is agreed, roughly
how much money is likely to be required to fund such support.
The same document emphasises ‘Transparency.’ It says that the RAS should
be transparent, which means being clear how decisions are made and
making the system public. This guidance from the senior social workers in
this field provides support for the view that policy in this area favours a
transparent approach which provides service users with clarity on how
decisions are made prior to a support and care plan being agreed.
Thus, although there is no statutory duty to give the reasons why a Panel
arrives at a particular monetary personal budget, all of the documents
produced by the Government Departments and by the Association of
Directors of Social Services point to transparency, openness, and
consultation, prior to the drawing up of an agreed Care and Support
plan.
© Belinda Schwehr, 2011
45
Reasons for funding sign off and for DP sums
“The personal budget must be sufficient to purchase the services and is
needs-led, and it seems to me that the only way in which a service user
can be satisfied that the personal budget has been correctly assessed by
the Panel is by a reasoned decision letter.
...Without being able to properly understand the use made of the RAS, the
service user and anyone acting on her behalf, is left totally in the dark as
to whether the monetary value of £170.45 is adequate to meet the
assessed need of a 28 point score.
• The process of conversion made by the Panel is not explained to the
service user. It should have been underpinned by an evidential base, and
it was not.”
• The stage of production of the support plan and the care plan, in my
view, is too late for the Claimant to be provided with reasons for the
budget.
• That cannot represent an adequate discharge of the obligation on a local
authority to explain the reasons for its decision in this area in a
transparent manner.”
© Belinda Schwehr, 2011
46
Both sides appealed :• The Court of Appeal dismissed both the appeal
challenge to the legitimacy of using a RAS at all and
the appeal challenge to the need to give reasons
• The Court refused to decide whether it would be
enough to discharge the duty of fairness to hand the
money over just saying ‘You can always ask us for
reasons if you want them’…!
• The council has done a wonderful thing for disabled
clients by appealing, because it has set a precedent,
now, which must be followed!
© Belinda Schwehr, 2011
47
The judgment in Savva suggests that councils need to be able
to offer two things if it wants a RAS at all:
a) a rational articulation of why the Resource Allocation system deserves to be seen as
a sensible guesstimate of the cost of meeting particular levels of needs in particular
domains.
Ie a basic explanation, in leaflet or website format, of the council’s decision to rely on a
‘comparable current cost’ approach, or some other approach and why the figures lay
claim to being based on a rational evidence basis.
However, neither of these explanations of policy, would suffice in themselves, without
something focusing on the individual service user’s situation, at the final sign-off of a
Plan, the size of the budget or the size of a direct payment. So the second thing needed
would be
b) a reasoned decision as to why the final allocation is then thought to be adequate, to
achieve the meeting of the assessed needs in the manner agreed in the Support Plan.
The decision would have to address the service user’s reasons and evidence for saying
that it would not reasonably be seen to be sufficient, with the council’s reasons for
deciding that it would in fact suffice, or have to suffice, despite not fully enabling the
service user’s preferred outcomes, in terms of the manner of, or setting for, the meeting
of the need.
© Belinda Schwehr, 2011
48
Two important paragraphs from the FACS guidance on the
contents of and approach to the support plan
121. Councils should agree a written record of the support plan with the individual which
should include the following:
•
•
•
•
•
•
•
•
A note of the eligible needs identified during assessment;
Agreed outcomes and how support will be organised to meet those outcomes;
A risk assessment including any actions to be taken to manage identified risks;
Contingency plans to manage emergency changes;
Any financial contributions the individual is assessed to pay;
Support which carers and others are willing and able to provide (voluntarily);
Support to be provided to address needs identified through the carer’s assessment, where appropriate;
and
A review date.
124. Councils should plan with regards to outcomes, rather than specific services. They
should consider the cost-effectiveness of support options on the merits of each case and
may take their resources into account when deciding how best to achieve someone’s
agreed outcomes. However, this does not mean that councils can take decisions on the
basis of resources alone. Once a council has decided it is necessary to meet the eligible
needs of an individual, it is under a duty to provide sufficient support to meet those needs.
Councils should provide support promptly once they have agreed to do so, but where
waiting is unavoidable, they should ensure that alternative support is in place to meet
eligible needs.
© Belinda Schwehr, 2011
49
Cambridgeshire 2011 – a bit of a retreat on reasons, where direct
payments are concerned – but still consistent with legal principle
• Cambridgeshire’s RA Scheme (based on direct payment costs, not
commissioned costs) had a ‘higher costs’ table for higher cost care packages.
• The triggers were night time care, 2:1 care, specialist care and specialist AND
2:1 care.
• They worked out a man’s package, using an independent social worker, who
recommended £120K a year. The council accepted the assessment of need,
but not the extent of the services he’d recommended to meet need, and
offered £75K instead, using the higher cost table, and the expertise of a
senior manager, in order to figure out how much was needed. The
remainder, after personal care and support had been accounted for, was an
apparently unexplained sum drawn from the council’s mainstream RAS.
• The decision was upheld, with the court saying that there was no need in a
direct payment personal budget to explain exactly how the money would
even theoretically be enough. That was the whole point of direct payments –
choice and control for the client.
• However, the judge stressed that the approach taken to the vast bulk of the
funding and its adequacy was clearly not irrational, even if it was not spelt
out exactly. He didn’t say anything about the need for reasoning about the
remaining chunk of the money for leisure and recreation.
The Court of Appeal’s approach
• The man’s appeal failed because
• (a) the local authority, whose funds were not limitless, was both entitled
and obliged to moderate the assessed needs to take account of the
relative severity of all those with community care needs in its area,
• (b) the local authority was not obliged to meet an individual’s needs in
absolute terms;
• (c) the use of the RAS (THIS RAS, Belinda thinks, not all RASs!) as a starting
point was lawful and the local authority’s decision did not have to extend
in every case to explaining the RAS in detail
• (d) The explanation given by the local authority to K as to how the sum of
£84,678 was arrived at was rational. It properly showed how that sum had
been reached, and sufficiently demonstrated that that sum would meet
K’s assessed needs
• Link for the case: http://www.bailii.org/cgibin/markup.cgi?doc=/ew/cases/EWCA/Civ/2011/682.html&query=title+(+
cambridgeshire+)+and+"resource+allocation"&method=boolean
© Belinda Schwehr, 2011
51
The Cambridgeshire case - analysis
•
•
•
•
When finalising the amount of a direct payment, social care decision-making
panels/staff are only obliged to convey a rational justification for believing that the
funds awarded are broadly equivalent to the reasonable cost of securing the
provision of the service concerned.
The ‘arrangement’ for meeting need that must be put into the support plan might
well be a Direct Payment – if that’s what’s been agreed, in which case the client
can choose, ultimately, how to spend it, so that the amount allocated need only be
broadly justified, not explicitly calculated by reference to identified services.
When finalising the resource allocation for a direct payment form of personal
budget, the council must still have a rational view based on competent staff’s
opinion, of how much of a generic type of service would actually be required to
meet need, in order to be able to explain why the amount finally allocated
deserves to be seen as not arbitrary, and as reasonable.
A resource allocation calculation cannot ‘drive’ the assessment of need, which
must still be needs driven, and not budget driven – and that the final amount must
focus on the individual, even if final costing is done by reference to the average
cost of meeting the needs of the client group of which he or she is a member.
© Belinda Schwehr, 2011
52
“We think that £x will be enough…”
•
•
•
•
•
•
•
•
Faced with the council’s position that the client ‘should’ be able to make do with
£x, the client or their advocates should ask – because they are entitled to know
the basis for the council’s opinion –
Why, please?
Who from, please?
Why do you think that that’s an adequate appropriate service for me as an
individual, given that….[fill in the blanks]
Why do you think that the unit cost of So and So’s services would enable you (or I)
to buy sufficient services for my particular needs at the price you’ve offered to
fund me for, given my needs are specialist or high cost because of [fill in the
blanks]?
Even so, shall we ask them if they’ve even got a vacancy or capacity to take ME
on?
Or say:
I don’t think that I fancy a direct payment at all, thanks. I’d rather you lot
commissioned an appropriate service for me and invoice me for my contribution,
but I’d like it personalised as to the timing and manner of its provision, like the
government guidance says it should be….
© Belinda Schwehr, 2011
53
• Support planning legal developments
• Reviews, re-assessments and rewording the
needs....
© Belinda Schwehr, 2009
54
Careful Process on Reviews – from
government guidance on FACS
109. Councils should exercise considerable caution and sensitivity when
considering the withdrawal of support. In some individual cases, it may
not be practicable or safe to withdraw support, even though needs may
initially appear to fall outside eligibility criteria. Councils should also
check any commitments they gave to service users or their carers at the
outset about the longevity of support provided. If, following a review,
councils do plan to withdraw support from an individual, they should be
certain that needs will not worsen or increase in the short term and the
individual become eligible for help again as independence and/or wellbeing are undermined.
[This is warning about evaluating the real risks that will arise from removing
services, and the possibility of a claim based on legitimate expectation based
on past assurances.
It gives councils a legitimate footing on which to put extra criteria in the
bottom of their lowest category along the following lines: “This extent of risk
is not really in this eligible category, but it would be within a very short time,
in the absence of services – so it would be daft to ignore it”.]
Reasons on conclusion of reviews – DH
guidance
143. Councils should record the results of reviews with
reference to these objectives. For those service users
who remain eligible councils should update the
support plan. For those people who are no longer
eligible, councils should record the reasons for
ceasing to provide support and share these with the
individual both verbally and in writing. They should
also offer information about the forms of support
that may be available to the individual in the
community.
But who really is the final decision-maker
for support planning? It’s the councils...
Elaine McDonald v Kensington & Chelsea London BC
• Where a local authority was obliged to meet the
assessed needs of a lady who had a neurogenic bladder
as a result of a stoke, they were entitled to meet the
need in the most economic manner – they could lawfully
leave her to provide incontinence pads rather than fund
a night time carer to take her to the toilet.
• The National Health Service and Community Care Act
1990 gave the Local Authority some flexibility as to how
the needs could be met.
• On appeal – there had been no Disability Discrimination
or breach of human rights, or breach of public law, after
her needs were re-formulated more generally than
before, as the authority had conscientiously sought to
treat her the same as everyone else – lawfully.
© Belinda Schwehr, 2011
57
The background to the McDonald incontinence pads case
•
•
•
•
•
•
She had been given funding for night time assistance as what was described as
‘a concession’, pending an application to the Independent Living Fund, as a
short term measure only. That ILF application does not appear to have been
accepted.
The council had been proposing for some years that she should be willing to use
incontinence pads or special Kylie sheeting to urinate into which would avoid
the need for a night-time carer.
The council said that this would provide the appellant with greater safety
(avoiding the risk of injury whilst she is assisted to the commode), independence
and privacy, besides reducing the cost of her care by some £22,000 per annum.
Ms McD was appalled at the thought of being treated as incontinent (which she
is not) and having to use pads. She considered this an intolerable affront to her
dignity.
Lords Dyson Brown and Walker agreed it was not an unlawful approach, on the
part of the council, nor a breach of her human rights, nor a breach of the DDA
legislation. Lord Kerr agreed but for different reasons.
She was so contemptuous of the others’ reasoning that they got upset and
were pretty rude about her too!
© Belinda Schwehr, 2011
58
McDonald - the Supreme Court’s decision
– July 2011
Ms McDonald has lost her case in the highest court in the
land. She may now go to Europe, but it is unlikely, in my view.
It’s a judgment that makes it a lot harder for others to
challenge the adequacy of the support plans that are
ultimately signed off.
13. “… the council could hardly have gone further in
compliance with the Secretary of State’s Directions in their
efforts to consult the appellant and if possible agree with her
the services they were considering providing to meet her
needs. The 2010 Review rightly described the client’s
position on this as “entrenched” and the situation reached, as
at an “impasse”.
© Belinda Schwehr, 2011
59
Why she lost:– irrationality is the test for Judicial
Review, and there was the following evidence:
• “Lady Hale's judgment, agreeing with Age UK's argument that RBKC have
been "irrational in the classic Wednesbury sense", seems to me to ignore
completely the evidence of Mr Thomas Brown, the very experienced Head
of Assessment at RBKC's Adult Social Care Department:
– "The court should be aware that the solution of incontinence pads in a case of this
nature is not exclusive to RBKC, nor did the suggestion that the claimant should wear
them originate from social services, as my previous statement makes clear [it came from
her own GP]. In my experience the use of incontinence pads for patients who are not
clinically incontinent is both widespread and accepted practice in the provision of
social services. Whilst RBKC accepts that the claimant is not clinically incontinent of
urine, it is important to emphasise that her difficulty is that, due to impaired mobility,
she cannot safely transfer from bed to a commode at night. In practical terms this
presents substantially the same problems as a person who is incontinent.
“Miss
McDonald strongly differs from this view, and so may others. But I
do not see how it could possibly be regarded as irrational.”
© Belinda Schwehr, 2011
60
The witness also said this, about ‘practice’:
•
•
•
•
“I am aware of guidance (DOH 2000) to the effect that incontinence pads should not
be offered 'prematurely' in order to prevent dependence on them. I am also aware
that aids and adaptations should be explored before such an option is considered.
Unfortunately the claimant's situation is such that there is no equipment or
adaptation which will enable her to access the toilet or commode without
assistance. In any event any movement, even assisted, carries a risk to the claimant's
safety. The primary care need of the claimant is to ensure her safety by protecting
her from the risk of further falls, and I remain of the view that the use of night-time
pads and/or absorbent sheets maximises the claimant's safety.
Having regard to the guidance and to the particular circumstances of the claimant as
well as to the cost indications of the care options, I remain satisfied that the use of
continence products is appropriate notwithstanding the claimant's objections.
I note her concerns about privacy and dignity and about the need to maintain her
relationship with her partner. It is the council's view that the use of continence
products provides greater privacy and dignity than the presence of a carer assisting
with personal and intimate functions at night-time."
© Belinda Schwehr, 2011
61
The hypothetical faeces factor…it was maybe not so very
hypothetical!
• Mr Brown’s evidence continued thus:
– "It is my experience based on 16 years in social care (most of them working with
older people) and another four years working in a large general hospital that, in
medical and residential care settings, it is general practice in the management of
functional incontinence [such as in Ms McD’s case]to use night-time incontinence
pads or absorbent sheets as a means of ensuring safety in patients/residents with
severely compromised mobility.
– This management technique was suggested to the council by the claimant's GP Dr
Parameshwaran on 19 September 2006 and also by the district nursing service, and
the suggestion is consistent with my own knowledge of the care management of
such persons.
– The management plan would remain the same if the claimant needs to pass
faeces at night, although good practice would be to encourage toileting last thing
at night when her night-time carer visits and to encourage appropriate dietary
changes.
– The need for morning bathing will arise whether or not faeces are passed at night
and it is practical within the care package offered by the council. It should be noted
that the need to pass faeces at night was not raised as an issue at the most recent
review held in March 2010. © Belinda Schwehr, 2011
62
What to avoid when support planning
•
•
•
•
•
Support planning that broke some other law
– “You can choose from these two homes in the area, as they are the cheapest
available. That’s your Choice Rights”.
– “You will be provided with this food, even though it is against your religious
and cultural sensibilities;
Support planning that ignored mental incapacity (ie “We will put you in this
tenancy even though you can’t understand it, and don’t have a deputy, and it
saves us money because it will be out of our area.”)
Support planning that was only resources-led – ie in Bromley’s case some years
ago they said no to a great but high-cost placement found by the client’s mother,
before finding any other options with which to compare it.
Taking a blanket approach to support planning for a particular group on reassessment: “We will bring everyone out of area back to their home county,
regardless of their local roots and relationships established over many years.”
Taking the view that the person’s friends and relatives must provide
accommodation or care – regardless of whether they are willing or able, this is not
the case for an over 18 year old – it may be an unmet need.
© Belinda Schwehr, 2011
63
Conclusions
• Proper re-assessments must be done before any cuts are
proposed;
• Resource allocation scheme guestimates are lawful as a
starting point, but indicative only;
• The more rational and the less arbitrary the underpinning
to the RAS, the fewer cases will have to be moderated with
reasons;
• Sign-off of a plan is an essential part of the statutory
function and of following guidance;
• Saying no to a request for more than first offered must be
done with reasons, or at least explained, so as to stake a
claim to being rational, and not merely budget-led.
© Belinda Schwehr, 2011
64
Thank you so much for attending!
• Belinda can be contacted on belinda@careandhealthlaw.com,
or Tel 01252 725 890 or 07974 399361.
• My website, www.careandhealthlaw.com, offers free (and
some charged-for) topic overviews about health and social
care law; ‘hot news’ emails when an important case has been
decided by the courts, and access to these web-based training
courses.
• For traditional face-to-face training, and regional events,
contact Mary Humphrey, my reservations manager,
on 01379 678 243 or by email on
mary.humphrey@nationalhomecarecouncil.co.uk
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