Presented by: Sara Ann Cameron B.F.A. (Hon), D.T. A.T.I. Bereavement Services Coordinator 169 Front Street South, Orillia, ON, L3V 4S8 Phone: 705.325.0505 Fax: 705.325.7328 www.nsmhpcn.ca Sara Cameron BFA, DTATI Bereavement Services Coordinator Client care Design and implement programs/commemorative events Provide education and resources to the community Inge Stothers RN, CHPCN (c) Palliative Care Nurse Consultant Focus on supporting primary care providers and residents and families in LTC (Orillia & South Muskoka) and Retirement Homes (South Muskoka) So What Do the Terms Mean? Bereavement: the state of being “torn apart”- something is irreversibly changed and a new world begins Grief: A natural response to loss. The internal process of integrating a loss into one’s life- establishing a new normal Mourning: Grief gone public- the external acknowledgement of grief (i.e: wearing black, rituals/ceremonies, etc.) Anticipatory Grief Kubler- Ross was actually describing the common emotions experienced by someone who is dying There is a point in life when we realize we are mortal and that we will die one day The Invisible Wound Everyone Who Loves, Grieves “Grief is Love Transformed” ~Sameet Kumar (2005) “Your experience of grief will be unique. No one can tell you what the process will be or how long it will take. Grief takes as long as it takes” ~Fred Nelson, Canadian Virtual Hospice The Grief Process Much gratitude Kubler-Ross for what you’ve shown us! We have grown so much in our understanding from your pioneer theory! Understanding the Place of the 5-Stage Theory… Denial, Anger, Bargaining, Depression, Acceptance Descriptive NOT prescriptive!!! There is no one way Grief is not a linear progression where you somehow “arrive” at “acceptance” and then it’s over… Grief is an oscillation process where you learn to integrate your loss into your life You do have to allow yourself to grieve Grief is a Journey, Not a Goal! Grief has been described as a labryith…you must move inward, before you move outward… Though it seems that there are twists and turns and deadends, you are always moving forward… Acknowledging the New World We must be gentle with ourselves as we develop a new normal A new world without the physical presence of your loved one or the way life used to be We cannot expect things to go back to the way they were before, because they will never be the same We must relearn the world around us!!! In my personal as well as professional experience, everyone is changed by the experience of grief ~Alan Wolfelt Why Does it Hurt So Much? Humans have the natural capacity to connect at the soul level Bereavement literally translates to being “torn apart”- this is what happens to our soul We may understand this as a “broken heart” With time and WORK, the pain will lessen Allow yourself to grieve, and for times not to grieve Fixing vs. Companioning “You should….” vs. “Can you tell me about your experience with this loss?” Rather than give advice, just listen ‘Com’ translates to ‘with’, ‘pan’ to ‘bread’, so to companion is to “break bread with an equal” Create an Image of Companion So Why is Bereavement Support Important? We all have good intention when we say something to someone who is grieving…but it is important to consider how it sounds from their perspective Understanding the Power and Meaning of Words…. What Not to Say… I know how you feel You should be grateful you You need to get over it had a long life together At least they had a long life You’re loved one wouldn’t want you to…(experience some emotion) You have to move on Don’t cry You have to be strong God can only give you as much as you can handle It is God’s will They are in a better place Using Our Words…What to Say… I am so sorry you are experiencing this This must be so difficult for you right now How are things for you in this moment? How have things been for you today? Wow, what an incredible person that touched so many lives I can tell you love them very much…can you tell me about them? The pain doesn’t ever fully go away, but it will lessen over time as you let yourself grieve You are entitled to grieve You don’t get over a loss, you get through it Just be with them, silent, present, let them express their emotions Some Other Things to Keep in Mind… Mention their loved one by name Don’t be afraid to say that they died The Concept of the Continued Relationship Some people come into our lives and quickly go. Some stay for a while and leave footprints on our hearts. And we are never, ever the same ~Flavia Weedn Silly Freud…. It was Freud who got us all thinking that we must break ties with our loved one and “move on” investing our energy only on people living physically in the world It was only at the end of his own life that he realized and admitted that some losses are irreconcilable The earlier concept still lingers in our ways of thinking today…but we are starting to acknowledge the continued relationship Being Comfortable with the Uncomfortable Silence is necessary sometimes. It helps us to: -process - reflect - integrate something new - give a chance to just be/companion someone Ground yourself, pay attention to breath Learning & Teaching Compassion How Do You Draw in Support? Let them know what resources are available in the community Invite them to initiate dialogue and ask for what they need Let them know if things change, they can call anytime Rituals and Commemorative Events Putting on a light Create a memory page Lighting a candle Create a collage of things Smudging/blessing a room Release a balloon with a message Create a memory quilt or memory bear Write about how their life touched you/memories that remind you of them Open a window Say a prayer Write a condolence card Start a sharing circle Other Ways to Honour the Dead… Build a library Tee off once a year in their Name a wing honour Donate to their favourite cause for their birthday Fund a scholarship Buy some bricks Start a charity Plant a tree, or bulbs that come up every year Name a star Adopt an animal Stitch a quilt And… Record a song Observe a moment of silence Paint them Learn something from their death Taking Care of Yourself Remember the importance of breath Eat well Exercise Cool glass of water Hot shower or bath Treat yourself to a relaxation massage, facial or pedicure Call a friend Allow yourself to express emotion Be gentle with yourself Butterfly Story A man found a cocoon of a butterfly. One day a small opening appeared. He sat and watched the butterfly for several hours as it struggled to force its body through that little hole….So the man decided to help the butterfly. He took a pair of scissors and snipped off the remaining bit of the cocoon. The butterfly then emerged easily. But it had a swollen body and small, shriveled wings…the butterfly spent the rest of its life crawling around with a swollen body and shriveled wings. It never was able to fly. What the man, in his kindness and haste, did not understand was that the restricting cocoon and the struggle required for the butterfly to get through …so that it would be ready for flight once it achieved its freedom from the cocoon. Sometimes struggles are exactly what we need in our lives. If we went through our lives without any obstacles, it would cripple us. We would not be as strong as what we could have been. We could never fly! ~Author Unknown Let’s Take a Moment to Breath… References Hospice Victoria Select slides borrowed from Cori Johnson and Sue Martin Kumar, S. M. Grieving mindfully: A compassionate and spiritual guide to coping with loss. Oakland, CA: New Harbinger. Neimeyer, R. A. (2001). Meaning reconstruction and the experience of loss. Washington, D.C.: American Psychological Association. References (con’t) Neimeyer, R. A. (2014). Techniques of grief therapy: Creative practices for counselling the bereaved. Presented at Marquis Gardens, Hamilton, Ont. Taylor, K. (2014). Well-intentioned people say dumb things. Presented at Sharon-Hope United Church, Sharon, Ont. Wolfelt, A. D. (2006). Companioning the bereaved: A soulful guide for caregivers. Fort Collins, CO. Companion Press. Contact Info For any further information or inquires, please contact: Hospice Orillia www.hospiceorillia.ca Phone: 705.325.0505