January - December 2013 Laurie Lee, RN, BSN, CCM FIMR Coordinator The FIMR Case Review Team meets 9x/year. Review process developed by the American College of Obstetrics & Gynecology is used. Information abstracted from birth, death, prenatal care, Healthy Start, WIC, hospital and autopsy records. Efforts are also made to interview the family. All information is de-identified. Purpose is to determine specific medical, social, financial and other issues that may have impacted the poor birth outcome. Recommendations for community action drafted annually based on findings. Prepared by Llee NEFL FIMR Healthy Start Coalitio The purpose of FIMR is to examine cases with the worst outcomes to identify gaps in services that might be addressed through community action. Cases selected for review based on specific criteria such as: Zip codes with high infant mortality rates Fetal losses over 36 weeks gestation or 2500 grams Deaths in outlying counties, etc. Prepared by Llee NEFL FIMR Healthy Start Coalitio Rate per 1,000 Live Births 18.0 16.0 Total 16.7 White Black 14.0 12.0 10.0 8.0 6.0 4.0 9.6 10.6 7.5 6.1 4.6 2.0 Source: Florida Vital Statistics 20 18 NE FL FL US 16 14 12 10 8 6 9.5 7 10.4 8.9 8.2 7.2 7.2 8 7.1 7.2 7.9 6.9 7.3 6.5 7.3 2011 2012 6.5 6.4 7.96 6 6.1 4 2 0 2004 2005 2006 2007 2008 2009 2010 141 infant deaths in 2013 2013 Prepared by L.Lee Source: Birth and Death Certificates/Vital Stats 20 NEFL FL 18 16 14 12 10 8 6 6.6 5.5 4 7.6 5.3 6.2 5.6 5.9 6.3 5.2 5.5 4.9 4.9 5.8 5.6 4.02 4.6 4.6 4.6 5.96 4.6 2 0 2004 2005 2006 2007 2008 2009 2010 2011 68 white infant deaths in 2013 2012 2013 Prepared by L.Lee Source: Birth and Death Certificates/Vital Stats 20 FL 18.8 Black 18 16 15.9 12.8 14 12 10 14.2 11.5 12.5 11.8 12.9 12.2 13.2 13.2 11.8 12 12.9 12.5 13.4 13.2 10.7 10.6 8 6 2004 2005 2006 2007 2008 2009 2010 65 black infant deaths in 2013 2011 2012 2013 Prepared by L.Lee Source: Birth and Death Certificates/Vital Stats Infant Deaths Births IM Rate Baker 13 1031 12.6 Clay 31 6258 5.0 Duval 305 37413 8.2 Nassau 10 2254 4.4 St .Johns 23 5695 4.0 Prepared by Llee NEFL FIMR Healthy Start Coalition 100% 80% 31% 31% 22% 30% 69% 69% 78% 70% 42% 60% 40% 58% 20% 0% 2009 2010 2011 2012 2013 n=155 n=127 n=108 n=127 n=141 Neonates Postneonates 50% 58% Prematurity Congenital Anomalies 30% RDS/BPD/Pulmonary Hypoplasia Infection 20% 18% Sleep related 20% 40% IVH Cause of Death 5% 2% 4% 0% 7% 9% 10% NEC Multiple Organ Failure *records may have more than one cause of death listed n=141 < 500 grams (< 1.1 pounds) 500-1499 grams (1.1-3.29 pounds) 1500-2499 grams (3.3 - 5.49 pounds) 2500+ grams (> 5.5 pounds) 20% 30% 13% 37% Northeast Florida Sleep related deaths 2009 2010 2011 2012 2013 # 22 16 14 21 25 % of deaths 15.1% 12.6% 12.9% 16.5% 17.7% Prepared by Llee NEFL FIMR Healthy Start Coalition Baker # deaths 1 (Macclenny) Clay 2 (Fleming Island and Middleburg) Duval Nassau St Johns 18 0 4 (3 different zips in St. Aug; 1Hastings Duval county detail: •In 2013, there were 18 deaths in 14 zips. No zip with > 2. Target area had 6. Risk Factor N=70 Unsafe sleep surface 80% Not on back to sleep 63% Not in an infant bed 70% Never breast fed 63% Unsafe items in bed 63% Second/third hand smoke 47% Sharing sleep surface 63% Prepared by Llee NEFL FIMR Healthy Start Coalition •84% single •60% in their 20’s; 24%-30’s; 16%-teens •60% black; all others white •64% inadequate prenatal care •12 % with no high school diploma •48% are overweight or obese; only 4 of these involved co-sleeping •All singletons except one twin •88% Medicaid •84% term •52% male 25 White Target Area Black Total 12.8 12.6 14.1 14.1 13.8 20 15 15.9 13.6 8.4 11.7 8.8 8.1 5.5 5.8 10 5 7.3 8.3 4.9 8.8 6.1 2.8 0 2009 2010 2011 2012 111 deaths:43-W; 62-B; 20-T 2013 Prepared by L.Lee Source: Birth and Death Certificates/Vital stats Births 7600 7400 7200 7000 6800 6600 6400 2009 2010 2011 2012 2013 Births 4800 4700 4600 4500 4400 4300 4200 2009 2010 2011 2012 2013 Birth Cohort Death Cohort: n=190 Race W=56%; B=35% Age Teens trended down since 2007, currently about 7%; 20-29 year olds represent 55%; 30’s has steady increase over last 20 yrs, currently at 35%; 40+ varies, but overall, increase in last 20 years, currently at 3% Slightly higher % of teens (8.6%) and 20’s (58%); slightly lower 30’s and 40’s (32% and <1 %, respectively). 48% last 5 years Had decreased from 65% to 57% last 5 years; now 70% 13.8% Was about 30%, now at 16.2% Single Marital Status No HS Diploma W=37%; B=58% Birth Cohort Death Cohort Smoking 6.9% Was trending down 17 – 12% over last 4 yrs; now 15% Overweight/Obese BMI 50.3% 42.8% (plus 8% underweight) Inadequate prenatal care 28.2% Was trending down over last 5 yrs-40 to 33%; now at 36% Pregnancy Interval < 12 mos State tracks < 18 mos; now 39.5% Was trending down 22-14% last 6 years; now 20% 60% Pre-existing conditions such as hypertension, diabetes, asthma, etc. 56% 50% 40% History of fetal or infant loss 33% History of previous preterm or low birth weight baby 30% 20% 17% 15% 17% 10% History of STD or other GU infection History of elective termination 0% Maternal Medical and OB History 79% all FIMR cases had medical history issues 35% 30% Obesity 37% 25% 20% 15% 10% 5% 17% Inadequate Nutrition (underweight BMI or anemia at 1st trimester pnc visit) 0% Pre-existing Nutritional Issues Prepared by L.Lee Source: FIMR/CRT case reviews Life Course Perspective Issues 35% 30% 25% 35% 32% Maternal Age < 21 or > 35 27% 20% 25% Poverty 15% 10% 5% 0% Socioeconomic Other emotional stressors during pregnancy such as loss of job, loss of loved one, incarceration, divorce, natural disaster, etc.) Prepared by L.Lee Source: FIMR/CRT case reviews Maternal Infections other than STD's STD's 50% 48% 45% 40% 44% Preterm Labor 35% PROM/PPROM 30% 25% 20% 15% Anemia 29% 26% 23% 21% Placental Abruption 10% 5% 0% Medical Conditions During Pregnancy Prepared by L.Lee Source: FIMR/CRT case reviews Contributing Factors in FIMR Cases 2011-2013 N=81 60% 50% Inadequate pnc 70% 75% 40% 30% 32% 20% 10% Kick counts; signs of decreased fetal movement and when to call MD Family Planning 16% 0% Substance abuse -10% Parental Knowledge/Compliance Issues Prepared by L.Lee Source: FIMR/CRT case reviews Contributing Factors in FIMR Cases 2011-2013 N=81 20% Medical and social services/community inadequate to meet needs 18% 16% 12% 14% 12% Medical and social services/community resources available, but not used 10% 8% 5% 6% 4% 2% Patient fear of/dissatisfaction with system 2% 0% Service Issues Prepared by L.Lee Source: FIMR/CRT case reviews Contributing Factors in FIMR Cases 2011-2013 N=81 50% 45% 46% 40% 40% 35% Prematurity 30% 25% Infection 20% Cord Problem 15% 11% 10% 5% 0% Fetal/Infant Medical Issues Prepared by L.Lee Source: FIMR/CRT case reviews • Continue to focus on preventing sleep related deaths. • The number of sleep related deaths has increased over the last 3 years. The number of deaths for years 2011, 2012 and 2013 were 14, 21 and 25 respectively. When compared to all causes of death in infants for years 2011, 2012 and 2013, this represents 13%, 16.5%, and 18%, respectively. • Education should focus on babies sleeping alone on a safe sleep surface. The following are potential partners: • Healthy Mothers Healthy Babies to revive the Cribs 4 Kids programs • Americorp • Faith based organizations for “Safe Sleep Sundays” • Make a Noise, Make a Difference • Curriculum for health advisors • Baptist Community Health • Video link • Safe Kids Coalition • National SIDS Foundation • Free educational materials • WIC • Include safe sleep in breast feeding courses • CDC • Video to use in educational settings • City Match • LifeCourse board game • The Players Center For Child Health at Wolfson Children’s Hospital- Ready, Set Sleep program Continue to focus on dangers of smoking during pregnancy. ◦ The Community Action Team’s “Don’t Blow Smoke” campaign is gaining momentum. Phase I (target area-Health Zone 1) Phase 2 (social media and expansion outside the target area to include the 32218 and 32244 zip codes) have been implemented. ◦ The percentage of moms in the death cohort that self-reported tobacco use was 12% in 2012. It rose to 15% in 2013. Self-reported tobacco use in the 2013 birth cohort is 6.9%. Any questions?