WHAT I WISHED I HAD KNOWN
ABOUT THE CDC WHEN I WAS
A UCEDD DIRECTOR
Mark E. Swanson, MD, MPH
(meswanson@cdc.gov)
National Center for Birth Defects and
Developmental Disabilities
Disclaimer
• The findings and conclusions in this
report have not been formally
disseminated by the Centers for
Disease Control and Prevention/the
Agency for Toxic Substances and
Disease Registry and should not be
construed to represent any agency
determination or policy.
Prevention Research Centers
Conduct research projects on health- or population-specific
issues
Build research teams of multidisciplinary faculty
Seek outcomes applicable to public health program and policies
Create research networks for priority health issues, such as
aging and oral health
Build long-term relationships for engaging communities as
partners in research
Grantees include: Universities. of WA, AZ, CO, NM, MI, KY,
MN, SC, NC, OK, WV, OR Health Sciences, UC-Berkeley,
UCLA, UCSD-San Diego St., U of So. FL, Tulane, J
Hopkins, SUNY-Albany, Pitt, UT-Houston, TX A&M, St.
Louis, Columbia, Emory, Morehouse, UAB, Harvard, Yale,
Boston U., Rochester, U of IL-Chicago
http://www.cdc.gov/prc/index.htm
Public Health Injury Surveillance
and Prevention Program
PHISP has three primary objectives:
• Build a solid infrastructure for injury prevention and
control;
• Collect, analyze, and use injury data; and
• Implement and evaluate interventions.
States with PHISP programs: AZ, CA, CO, CT, FL, GA, HI,
KS, KY, LA, ME, MD, MA, MN, NE, NV, NM, NY, OH, OK,
OR, PA, RI, SC, TN, UT, VT, VA, WA, WI
http://www.cdc.gov/ncipc/profiles/core_state/default.htm
Public Health Injury Surveillance
and Prevention Program
• States with TBI Surveillance Programs
– CO, MN, OK, UT
• States with TBI Service Linkage Programs
– CO, MN, OK, RI, SC
State Disability and Health Capacity
Grants
• Develop and utilize a consumer-driven advisory board
•
•
and a strategic plan for the Disability and Health
program.
Work closely with state Healthy People coordinators to
integrate people with disabilities into their state’s public
health agenda.
Coordinate with the state Behavioral Risk Factor
Surveillance team to assess risk behaviors and health
status by age, gender, and ethnicity. Coordinate with
other health department divisions to include people with
disabilities in health promotion activities and to make
clinical preventive services ADA accessible.
State Disability and Health Capacity
Grants
• Collaborate with universities, UCEDDs, centers for
independent living, advocacy organizations, vocational
rehabilitation and senior or elderly services to facilitate
health promotion efforts targeting people with
disabilities.
• Inform the public about employment, independent living,
access, transportation, physical activity, assistive
technology, peer support and other state initiatives to
improving the health of people with disabilities e.g.
statewide annual conferences.
States with D & H grants: AR, CA, DE, IA, KS, MA, MN, MT,
NC, NM, NY, OR, RI, SC, UT, WA
• http://www.cdc.gov/ncbddd/dh/DHstateprograms.htm
State-Based Examples of Network
Innovation, Opportunity, and Replication
(SENIOR) Grants
• Assesses and sustains health-related needs,
•
activities, and partnerships occurring between
state health departments and state units on
aging for ensuring the health of the nation's
older adults and to support health promotion
and disease prevention programs for older
adults at the state and local level.
AZ, CO, FL, IA, MA, NC, NJ, NY, OR. PA, SC
AUTISM SURVEILLANCE
• Projects track the number of children who have
an ASD, conduct studies to find out what factors
make it more likely that a child will have an ASD,
and offer education and outreach programs for
researchers, families, and others affected by ASD
• AL, (AR), FL, MO/IL, (NJ), SC, (UT) ADDM
• (CA), CO, MD/DE, NC, PA CADDRE
Public Health Preparedness
The Centers for Public Health Preparedness (CPHP)
program was initiated in 2000 to strengthen terrorism
and emergency preparedness by linking academic
expertise to state and local health agency needs. The
program has grown to become an important national
resource for the development, delivery, and evaluation of
preparedness education. Within the CPHP program,
colleges and universities provide preparedness education
to public health workers, healthcare providers, students,
and others.
http://www.bt.cdc.gov/training/cphp/
Colleges of Public Health
The Association of Schools of Public Health (ASPH) is the
only national organization representing the deans,
faculty and students of the accredited member schools
of public health and other programs seeking
accreditation as schools of public health.
http://www.asph.org/
University Centers of Excellence in
Developmental Disabilities
Research Topic of Interest (RTOIs)
• facilitating state-based surveillance and research of birth
defects and developmental disabilities;
• developing educational resources and curricula for health
care Massachusetts,
practitioners,
researchers,
and
trainees;
Florida, Iowa,
New
Jersey, New York,
North
Carolina, Oregon, Pennsylvania
• disseminating materials and information to state public
health departments, policy makers, and advocates;
• strengthening expertise in the fields of birth defects and
developmental disabilities through training of
professionals in public health and related fields
http://www.aucd.org/
http://www.aucd.org/projects/NCBDDD/rtois.htm
National Health Interview Survey
Statistics on illness, accidental injuries,
disability, use of hospital, medical, dental,
and other services, and other healthrelated topics, all based on data collection
in the continuing national household
survey.
http://www.cdc.gov/nchs/nhis.htm
Behavioral Risk Factor Surveillance
System
The BRFSS, the world’s largest telephone
survey, tracks health risks in the United
States. Information from the survey is
used to improve the health of the
American people. State- and nationallevel data.
http://www.cdc.gov/brfss
National Health and Nutrition
Examination Survey
NHANES assesses health and nutritional
status of children and adults, combining
interviews and physical examinations.
Public use data released in two-year
increments continuously
http://www.cdc.gov/nchs/nhanes.htm
Children with Special Health Care
Needs – SLAITS
The primary goal of this module is to assess
the prevalence and impact of special
health care needs among children in all 50
States and the District of Columbia and to
evaluate change since 2001.
http://www.cdc.gov/nchs/about/major/slaits
/cshcn_05_05.htm