What is motor neurone disease?
• A fatal, rapidly progressive disease that affects the
brain and spinal cord.
• Attacks the nerves that control movement so muscles
no longer work. MND does not usually affect the
senses such as sight, sound, feeling etc.
• It can leave people locked in a failing body, unable to
move, talk and eventually breathe.
What is motor neurone disease?
• It kills six people per day in the UK, this is just
under 2,200 per year.
• It kills a third of people within a year and more
than half within two years of diagnosis.
• It affects up to 5,000 adults in the UK at any one
time.
• It has no cure.
The MND Association
• The only national charity in England, Wales and
Northern Ireland focused on MND care, research and
campaigning
• Formed in 1979 by a group
of volunteers with experience
of living with or caring for
someone with MND
The MND Association
• Over 7,000 people give their time to volunteer and
fundraise on our behalf.
• We have over 9,000 members helping to
strengthen our voice to ensure everyone with MND
has access to the best possible care.
• We support hundreds of health and social care
professionals who provide and manage services for
people with MND.
• We work with and support scientific and clinical
research communities in the UK and worldwide
Our mission
We improve care and support for people with MND,
their families and carers.
We fund and promote research that leads to new
understanding and treatments, and brings us closer
to a cure for MND.
We campaign and raise awareness so the needs of
people with MND and everyone who cares for them
are recognised and addressed by wider society.
The XXX Branch/ Group
• One of 89 volunteer-led branches and groups across
England, Wales and Northern Ireland
• Covers the area of xxxx
• Volunteers work together to:
– Provide local support
– Raise awareness
– Campaign
– Fundraise
on behalf of people living with MND
The XXX Branch/ Group
Insert additional information about your branch or group, for
example:
• Your support meetings (where/ how often/ format)
• What you have funded
• Your newsletter/ website
• Your Association Visitor team
The Future
People living with MND can’t wait.
We need your help!
How you can help
• Fundraise:
– A fantastic way to involve friends and family
– Help fight back against MND and have some
fun
– Ideas and events to suit all ages and abilities
– We will be on hand to support you every step
of the way
Every donation makes a difference
• £10 provides an information pack for a newly
diagnosed person with MND
• £75 funds an MND expert researcher for half a day
• £250 buys attendant controls to enable a powered
wheelchair user to transfer control to a carer when
required
• £1,000 buys a specialist joystick to enable
someone to continue working
How you can help
Campaigning:
• Join our online network of campaigners and receive
regular updates on our campaigning activities and
information on how you can get involved
• For example
– Ask your GP to use our Red Flags tool
• Visit: www.mndassociation.org/campaigns
How you can help
Volunteering:
• Get involved in our branch/ group
– We are looking for volunteers to join our
committee to help us to make a difference locally
• Become an Association Visitor
– By offering confidential, emotional support,
accurate information and help to access the right
services and equipment, you can enable people
affected by MND to live their life more easily and
make informed choices
How you can help
Raise awareness:
• Hold your own event or get involved with our
current awareness campaign
• Visit www.mndassociation.org
How you can help
Become a member:
• Help us to strengthen our voice as we campaign to
ensure everyone living with MND has access to the
best possible care, no matter where they live
• You will become part of a powerful support
network and can meet with others and share
experiences at our local and national events and
conferences
• Visit www.mndassociation.org/membership
Find out more/ Keep in touch
Website: www.mndassociation.org
Facebook: www.facebook.com/mndassociation
Twitter: www.twitter.com/mndassoc
Branch/ Group website: www.insertwebaddress.org
Facebook: www.facebook.com/yourfacebookname
Twitter: www.twitter.com/yourtwittername
Questions?