ALLIED PROFESSIONALS FORUM
THON Hotel EU, Brussels, Belgium
4 December 2014
PROGRAMME
8.30
8.40
8.50
9.10
9.30
9:50
10.10
10.30
11.00
11.20
11.40
12.00
12.20
12.40
14.00
14.20
14.40
15.00
15.20
15.50
16.10
16.30
16.50
17.10
Welcome and Introductions
Steve and Rod
About the International Alliance of ALS/MND Associations
Carol Birks
Executive function disorders: Engaging the team
Laurie Sterling
To do or not to do? The conundrum the therapist faces in advising level of
Helen Carey
“doing” in MND
Role of the speech-language therapist in the multidisciplinary ALS clinic:
Emily K. Plowman
Insights learned and shared
Developing an outreach service to set up NIV for patients with ALS/MND in
Bernie Corr
their homes thereby averting hospital admission
An evaluation of the airway clearance adjuncts prescribed in an Irish MND
Rachel McConnell
multidisciplinary clinic
Morning Tea
Examing the impact of YouTube to teach patient care skills in ALS
Beth Stephens
Looking beyond the drug: A study exploring the experiences of MND patients
Malabaika Ghosh
attending a Drug Trial
Care services navigators: Supporting personalisation and choice for people
Pauline Matheson
with MND
Developing a comprehensive and candid guide on end-of-life decisions for
Kaye Stevens
people with MND
What children need to know and how leaving it helps with closure
Gabrielle Eirew
Lunch and Networking
Compassion fatigue and burnout: Supporting staff with coping strategies
Sara Jane Murray
Helping staff and volunteers to deal with compassion fatigue
Kathleen O’Hara
The end-of-life experience of people with MND: Bereaved family carers’
Moira O’Connor
accounts
Exploring experience and awareness of bereavement support in family carers Mary O’Brien
of people with MND
Afternoon Tea
Equipment utilization in the ALS/MND population: Trends and timing
Sara Feldman
Eyes That Speak: Social inclusion, work dignity and life quality for ALS
Eduardo Jauregui
patients
ALS digitalk (ALS and communication)
Aline Ollevier
Use of a myoelectric orthotic to enhance functional performance in persons
Amber Ward
with ALS/MND
Close
Co-Chairs: Steve Bell, MND Association; Rodney Harris, MND Victoria
This event is supported by:
USA
UK
USA
Ireland
Ireland
USA
UK
UK
UK
UK
UK
UK
Australia
UK
USA
Argentina
Belgium
USA