Concept paper Contact Information Project Name Wheels of Hope Organization Dirghajeevi Voluntary Group (DVG) Primary Contact Samir Shrestha Contact Address Kirtipur Telephone # +977 9808039901 Campaign Information Email Address [email protected] Type of Project √ Awareness & fundraising Project start Location Kalanki, Kathmandu Project Start Date _______ Targeted Amount to raise $25000 Introduction of Organization Dirghajeevi Voluntary Group (DVG) is a Non-Governmental and Non-profitable Organization which is actively working for the welfare and benefit of the Children suffering from and undergoing treatment for Cancer since 2006 21st August. We the current DVG committee member were at first involved as a volunteer at the time DVG was not introduced as Dirghajeevi but was known as 'Chiranjeevi'. Later, we decided to organize it as an NGO and so on is the current DVG. We aim to ease the life of children battling with cancer through various means such as recreational programs and necessary counseling to the patient and their parents as well. We also aim to play an important role to facilitate the life after the cancer of each children with cancer through counseling programs as a lifelong follow-ups schedules in their interest. Executive Summary Childhood cancer in Nepal is evident especially in the rural communities where people lack education, awareness and access to health services. According to the registration rate in Kanti Children’s Hospital, most of the cases are admitted only in the second or third stages of cancer due to parents’/guardian’s lack of knowledge. So, childhood cancer is not only associated as a biological disease but deeply associated with soci-cultural traditions and practices in Nepal. The complexity of the disease is due to the lack arrival in the hospital after immense practice rural practice of treatment. The post treatment period is also challenging for rural poor people. They are not aware of the preventive measures to be taken after the treatment. Many people often say that the cancer medicated children has to face the isolation in society. They are sometimes treated as ‘untouchables’ as well. This stigma creates a psychological effect both to the child and parents. So, even after the treatment phase; they need to undergo through counseling and awareness on social reintegration, secure future, healthy life, self-motivations. Mainly, Awareness should be taken as a perfect medium for preparing our society for the future, about the life-thrilling disease like Cancer. Problem Statement In Nepal, there are number of underprivileged family and in the cases of children who have finished their cancer treatment, their family are unable to provide the proper environment which is most important for each child who have finished their cancer treatment. From DVG’s 9 years of work experience at Oncology ward of Kanti Hospital and as well in other hospitals problem analysis, they have identified major problem faced by post medicated childhood cancer children’s in re-integration at community and live a normal life. Most of the family, of cancer victim children, is not able to stay in the expensive environment of Kathmandu, which had become one of the reasons for number of parents to pull back or discontinue children’s treatment. Parents, for the treatment of their children with cancer has their own sentiments and tragic moments of collecting a money for the treatment, most of them are forced by their fate, to engage in different riskier works such as helper in house, hotel/school dishwasher, put a Nanglo (a kind of material made by bamboo) shop on the busy street and others, at all kinds of works they are engage are also involved with their cancer victim children along with them. In the present context of low-capita income in Nepal, the parents have very few opportunities to have their child being treated and if treated also, have to go through many difficulties which create a situation of stressful and hopeless environment in their poor economic life. At the same time while they are at hospital for the treatment of their one child, most of the parents with few more children, has to face the difficulties on handling the situation: whether to take care of the children at village or at hospital becomes a great dilemma ever in their life. Many of the parents becomes homeless and landless and out of any other kind of solid property for their future, since they had started the treatment of their child. Below are the major problem statements in points : Most of the Children have to face the psyho-social problems for an instance, still the people will claim to them that they will have the short life and unsure life. Most of the Children will not get sufficient care, nutritious food, hygine maintainance, excercise and the other kinds of the refreshment which need to be considered after their post medication. Parents will also have a psychological impact with a fear of relapse of the disease of their Cancer treated child. Some Data on Chidhood cancer from Kanti Children's Hospital 2001 2002 2003 2004 2005 Total Expired 6 6 9 15 9 45 Completed chemotherapy 26 7 9 8 3 53 On follow up 25 23 22 49 31 150 Drop outs 8 11 9 6 1 35 LAMA(Left Against Medical Advice) 3 4 8 12 10 37 Table showing the status of the children with cancers who entertained themselves with the services of the oncology unit of Kanti Children’s Hospital. Rationale of the Campaign We had chosen this cycling campaign for the Childhood Cancer awareness. Cycling is both environmental and health friendly activity. Due to the environmental pollution disease like Cancer is becoming more effective in human life. Cycling needs few more energy to complete than any other means of travel but is friendly to us. We have learnt cycling in our Childhood and still we can cycle easily. CAUSE of Cycle Campaign As mentioned above in ‘problems statement’, it’s clear that there is a basic needs for the children with cancer for the ease of their treatment. We have a mission to build a ‘Transit shelter’ (a kind of shelter where children with cancer could accommodate themselves free of costs during their treatment, so that, they don’t have to leave the treatment just because they can’t afford the stay in the expensive city like Kathmandu. We have a hope that this shelter will help hundreds of children to have their treatment continue if they get a safe and free of costs place to stay a long years during their treatment. Project Goal "Fundraisers and Public awareness on childhood cancer." Objectives of the project The main objective of the project is to raise awareness against childhood cancer. Researches proclaim that the majority of final stages of childhood cancer is due to the lack of awareness. The specific objectives of the organization are as follows: a. To promote public awareness against childhood cancer in the periphery of Kathmandu – Karnali. b. To raise the fund to support the construction of Transit Shelter Detailed information of the cycling route This Campaign will start from ‘Kalanki’ a entry point of Kathmandu city. It will than have a stop in a distance of 145 km at Chitwan and after a stay of one more day, cyclist will head toward western part crossing the Chitwan to Butwal. In this way campaign will take a rest in each cities and will distribute the Pamphlets of Childhood cancer awareness as well. Cyclist will have a ride of minimum 100 km per day to reach the goal distance in a short period of time. Expected outcome of the Project: a. About an estimated of 35000 people, will be benefitted along the Kathmandu- Karnali route with precise awareness against childhood cancer. b. About an estimated of 300 people will participate this campaign as a donor partners (supporters) to contribute towards social responsibility. c. Targeted amount of donations will be raised. Media Assistance: National Medias and Magazines. Donation details Distance in Kilometer 50 km 150 km 250 km 350 km 450 km 550 km 600 km Donation amount (in Euro) 5 8 15 20 25 30 50 Note: The amount given is a minimum amount of donation.