Stigma and schizophrenia: Attitudes of the general public, Schizophrenia Society members, and medical students Angus H. Thompson Department of Psychiatry and Alberta Centre for Injury Control & Research, University of Alberta Invited address to the 1st International Congress on Reducing Stigma & Discrimination Because of Schizophrenia, World Psychiatric Association, Leipzig, September 2, 2001. WPA CAMPAIGN AGAINST STIGMA Community Attitudes Project Colleagues: Julio Arboleda Florez, MD, PhD Chair, Psychiatry Queens University Roger Bland, MB Chair, Psychiatry University of Alberta Ruth Dickson , MD Dir., Psychiatry P. Lougheed Hospital Heather Stuart, PhD Assoc. Prof. Queens University Richard Warner, MD Medical Director Boulder MH Ctr, USA ACKNOWLEDGEMENTS • Alberta (Canada) Mental Health Board • Eli Lilly Canada • Population Health Unit Calgary Regional Health Authority Pilot Site for the WPA Campaign Against the Stigma of Schizophrenia Comparison Site WPA Pilot Sites PURPOSE • Comparison with Pilot Site findings PURPOSE • Comparison with Pilot Site findings • Compare stigma of addicts, criminals, ... PURPOSE • Comparison with Pilot Site findings • Compare stigma of addicts, criminals, ... • Examine attitudes of advocates PURPOSE • Comparison with Pilot Site findings • Compare stigma of addicts, criminals, ... • Examine attitudes of advocates • Examine medical student attitudes METHODS Survey Samples Study 1 N Subject Selection Mode Ret. Edmonton 420 Random within sex/age Telephone 72% Schiz. Society 40 Meeting attendees Paper & Pencil 44%1 Med. Students 67 Enrolees Paper & Pencil 100% This is an underestimate. An unknown number of people attended the meeting who were officials of agencies that serve people with schizophrenia, and were thus not eligible to complete the questionnaire. Demographics Edm Sex Male Female Schiz Soc 49.0% 32.5% 51.0% 67.5% Med Stud. 50.7% 49.3% Age 15-29 30-59 60+ 25.5% 15.8% 55.3% 63.2% 19.2% 21.1% 90.5% 9.5% 0.0% Education Elem 0.5% 0.0% Jr High 5.8% 2.5% High Sch 40.2% 27.5% Coll/Tech 22.4% 15.0% Univ 31.1% 55.0% 0.0% 1.6% 1.6% 0.0% 96.8% METHODS Surveys included the following content areas: Symptoms of schizophrenia Causes of mental illness Relative seriousness of schizophrenia Acceptability of community residences Social distance Befriend/marry one with schizophrenia? Perceived dangerousness Rx and dangerousness Taxes and better services What should be done Medication and/or psychosocial Rx PERCEIVED CAUSES OF SCHIZOPHRENIA 100% 80% 60% Community Schiz Soc Med Students 40% 20% 0% Brain Chem Genetics Stress Trauma Parenting Abuse Soc Values Poverty PERCENTAGE OF RESPONDENTS REPORTING A CONDITION TO BE THE "MOST DISABLING" 80% 60% Community 40% Schiz Soc Med Students 20% 0% Loss of Mind Blindness Bedridden Disfigured Note: For the Community sample, "Blindness" also includes "Deafness" Sex Percent who would befriend or marry someone with schizophrenia Befriend Community Schiz. Soc. 83% 87% Students 79% Percent who would befriend or marry someone with schizophrenia Community Schiz. Soc. Befriend 83% 87% 79% Marry 27% 10% 6% Students PROPORTION OF RESPONDENTS IN OPPOSITION TO SELECTED HYPOTHETICAL "GROUP HOMES" 80% 60% Schiz Soc Med Students 40% Community 20% 0% Ex Con Drug Ab Alcohol Ab AIDS Victim Schiz Pt Type of Resident Ment Hcp Phys Disab PERCEIVED DANGEROUSNESS OF THE MENTALLY ILL AND THE EFFECTIVENESS OF TREATMENT 100% 90% Proportion of Respondents 80% 70% 60% 50% 40% 30% 20% 10% 0% Community Schiz Soc Dangerous Rx Effective Med Students Perceptions of the Most and Least Successful Types of Treatment Drugs Alone Psychosocial Alone Both (Together) Both (Equally * “Worse”) Schizophrenia Society (Most) Med. Students (Most) Edmonton 1997 (Most) Schizophrenia Society (Least) Med. Students (Least) 0 3% 7% 9% 16% 0 0 9% 44% 59% 100% 97% 85% 0 0 --- --- --- 47% 25% Perceptions of the Most and Least Successful Types of Treatment Drugs Alone Psychosocial Alone Both (Together) Both (Equally * “Worse”) Schizophrenia Society (Most) Med. Students (Most) Edmonton 1997 (Most) Schizophrenia Society (Least) Med. Students (Least) 0 3% 7% 9% 16% 0 0 9% 44% 59% 100% 97% 85% 0 0 --- --- --- 47% 25% PROPORTION IN FAVOUR OF SELECTED ADDITIONAL APPROACHES FOR DEALING WITH MENTAL ILLNESS 100% 80% 60% 40% 20% 0% Research Public Education Family/ Friends Work/ Recreation Community Rx Rx Group Homes Community Schiz Soc Med Students Self Help Drug Treatment Mental Hospitals PROPORTION OF RESPONDENTS IN FAVOUR OF PAYING MORE TAXES IN ORDER TO IMPROVE SERVICES FOR PEOPLE WITH SCHIZOPHRENIA 100% 80% 60% 40% 20% 0% Community Schiz Soc Med Students Discussion 1. It would appear that the mentally ill are not held in the same negative regard as they were 20 or 30 years ago. Discussion 1. It would appear that the mentally ill are not held in the same negative regard as they were 20 or 30 years ago. 2. The results do not support the view that medical students are particularly prone to negative attitudes. Discussion 1. It would appear that the mentally ill are not held in the same negative regard as they were 20 or 30 years ago. 2. The results do not support the view that medical students are particularly prone to negative attitudes. 3. The results do not support the utility of a broad approach for an anti-stigma campaign, but rather point to a more specific focus, such as perceived dangerousness. Discussion 1. It would appear that the mentally ill are not held in the same negative regard as they were 20 or 30 years ago. 2. The results do not support the view that medical students are particularly prone to negative attitudes. 3. The results do not support the utility of a broad approach for an anti-stigma campaign, but rather point to a more specific focus, such as perceived dangerousness. 4. It may be better to focus on a clearly definable problem (e.g. housing, relationships, employment), rather than treating stigma as if it is the primary issue. FIN OPPOSITION TO WORK OR LIVING ARRANGEMENTS FOR THOSE WITH SCHIZOPHRENIA Percent Opposed 50% 40% 30% 20% 10% 0% Live Near Work With SOCIAL DISTANCE Calgary Closer Drumheller Live With