Death and Grieving ©2008 McGraw-Hill Ryerson Ltd. Death and Grieving Defining Death and Life/Death Issues Death and Socio-historical, Cultural Contexts A Developmental Perspective on Death Facing One’s Own Death Coping with the Death of Someone Else ©2008 McGraw-Hill Ryerson Ltd. Defining Death and Life/Death Issues Issues in Determining Death Decisions Regarding Life, Death, and Health Care ©2008 McGraw-Hill Ryerson Ltd. Defining Death and Life/Death Issues Issues in Determining Death Brain death – a neurological definition of death that states a person is brain dead when all electrical activity of the brain has ceased for a specified period of time. ©2008 McGraw-Hill Ryerson Ltd. Defining Death and Life/Death Issues Issues in Determining Death The higher portions of the brain die first. The brain’s lower portions monitor vital functions. People whose higher brain areas have died may continue breathing & have a heartbeat. The current definition of brain death (for most physicians) includes the death of both the higher cortical functions & lower brain stem functions. ©2008 McGraw-Hill Ryerson Ltd. Defining Death and Life/Death Issues Decisions Regarding Life, Death, and Health Care Living Wills and DNRs Euthanasia Needed: Better Care for Dying Individuals ©2008 McGraw-Hill Ryerson Ltd. Defining Death and Life/Death Issues Living Will Recognizing that terminally ill patients might prefer to die rather than linger in a painful or vegetative state, an organization called “Choice in Dying” created the Living Will. The Living Will document is designed to be filled in while the individual can still think clearly & expresses their desire that extraordinary medical procedures not be used to sustain life when the medical situation becomes hopeless. ©2008 McGraw-Hill Ryerson Ltd. Defining Death and Life/Death Issues DNRs DNR, or Do Not Resuscitate is an order preventing medical staff within a medical institution to use either specified or all means to prolong a person’s life or to resuscitate the person if their heart stops. DNR can be arranged without a living will. ©2008 McGraw-Hill Ryerson Ltd. Defining Death and Life/Death Issues Euthanasia Euthanasia is the act of painlessly ending the lives of individuals who are suffering from an incurable disease or severe disability. Sometimes referred to as “mercy killing.” Passive euthanasia – occurs when a person is allowed to die by withholding available treatment, such as withdrawing a life-sustaining device. Active euthanasia – occurs when death is deliberately induced, as when a lethal dose of a drug is injected. ©2008 McGraw-Hill Ryerson Ltd. Defining Death and Life/Death Issues Attitudes about Euthanasia Passive euthanasia for terminally ill patients is accepted. Precise boundaries for passive euthanasia & the exact mechanisms by which treatment decisions should be implemented are not entirely agreed upon. Active euthanasia is a crime in most countries & in all U.S. states except Oregon. Walker, Gruman & Blank’s (1999) recent survey of more than 900 physicians found most opposed active euthanasia & believed that adequate pain control eliminated the need for active euthanasia. ©2008 McGraw-Hill Ryerson Ltd. Defining Death and Life/Death Issues Needed: Better Care for Dying Individuals The Canadian Senate report on end-of-life found: Only 1-in-10 Canadians received proper care as they die. Dying individuals often get too little or too much care. Many experience severe pain during their last days. Regulations are needed that allow physicians flexibility in prescribing painkillers for dying patients who need them. Many health-care professionals are not trained to provide adequate end-of-life care. ©2008 McGraw-Hill Ryerson Ltd. Defining Death and Life/Death Issues Palliative Care Palliative care is a humanized program committed to making the end of life as free from pain, anxiety, & depression as possible. Palliative care goals contrast with those of hospitals, which are to cure illness & prolong life. ©2008 McGraw-Hill Ryerson Ltd. Death and Socio-Historical Cultural Contexts Changing Historical Circumstances ©2008 McGraw-Hill Ryerson Ltd. Death in Different Cultures Death and Socio-historical Cultural Contexts Changing Historical Circumstances One historical change already presented is the increasing complexity of determining when someone is truly dead. Another change is the age group death strikes most often— 200 years ago it was children, now it is the elderly. Life expectancy has increased by 50 years since 1900. In the past, most people died at home. 80% of all deaths now occur in institutions, minimizing our exposure to death. Care of the dying has shifted away from families. ©2008 McGraw-Hill Ryerson Ltd. Death and Socio-historical Cultural Contexts Perceptions of Death In most societies, death is not viewed as the end of existence—though the biological body has died, the spiritual body is believed to live on. Some cultures: believe death is caused by magic and demons. believe death is caused by natural forces. focus on reincarnation. view death as punishment, while for others it represents redemption. fear death, while others embrace it. ©2008 McGraw-Hill Ryerson Ltd. Death and Socio-historical Cultural Contexts Death in Different Cultures North Americans are death avoiders & death deniers. People in many countries face death on a daily basis. In some countries, the presence of dying family members & large funeral attendance are part of everyday cultural reality. These aspects of life help prepare the young for death & provide them with guidelines on how to die. ©2008 McGraw-Hill Ryerson Ltd. Death and Socio-historical Cultural Contexts Evidence of the Denial of Death The funeral industry glosses over death & fashions lifelike qualities in the dead Euphemistic language for death is used (passed away). There is a persistent search for a fountain of youth Rejection & isolation of the aged, who may remind us of death, is common. Belief in the concept of a pleasant & rewarding afterlife, suggests that we are immortal Medical practices emphasis prolonging biological life rather than an emphasizing diminishing human suffering ©2008 McGraw-Hill Ryerson Ltd. A Developmental Perspective On Death Causes of Death and Expectations about Death Attitudes toward Death at Different Points in the Life Span ©2008 McGraw-Hill Ryerson Ltd. A Developmental Perspective on Death Causes of Death and Expectations about Death Death can occur at any point in the human life span. Childhood deaths occur mostly due to accidents or illness. Adolescent deaths are more likely to occur because of motor vehicle accidents, suicide, & homicide. Younger adults are more likely to die from accidents. Older adults are more likely to die from chronic diseases. Younger adults who are dying feel cheated by death more than do older adults who are dying. ©2008 McGraw-Hill Ryerson Ltd. A Developmental Perspective on Death Attitudes toward Death at Different Points in the Life Span Childhood Adolescence Adulthood ©2008 McGraw-Hill Ryerson Ltd. A Developmental Perspective on Death Childhood Infants have no concept of death, but once they develop an attachment, they can experience loss, separation & anxiety. Children 3–5 years old don’t have a true idea of what death really means, often confusing death with sleep. Young children believe death is reversible & the dead can be brought back to life spontaneously. Cuddy-Casey & Orvaschel’s (1997) research found children don’t understand death is universal & irreversible until about age 9. ©2008 McGraw-Hill Ryerson Ltd. A Developmental Perspective on Death Explaining Death to Children Psychologists recommend : honesty in discussing death with children. Answering children’s questions about death based on the child’s age & maturity level. Death can be explained to preschool children in simple physical & biological terms. Children need reassurance that they are loved & that they will not be abandoned. Regardless of age, adults should be sensitive & sympathetic, encouraging children to express their own feelings & ideas. ©2008 McGraw-Hill Ryerson Ltd. A Developmental Perspective on Death Adolescence The prospect of death is so remote for adolescents that it does not have much relevance. Death may be avoided, glossed over, kidded about, neutralized, & controlled by a cool spectator-like orientation. Adolescents have more abstract conceptions of death than children do. Adolescents develop religious & philosophical views about the nature of death & whether there is life after death. Adolescents are especially likely to think that they are invincible, unique & immune to death. ©2008 McGraw-Hill Ryerson Ltd. A Developmental Perspective on Death Adulthood There is no evidence that a special orientation towards death develops in early adulthood. An increase in consciousness about death accompanies individuals’ awareness that they are aging. Kalish & Reynolds’ (1976) study found adults at midlife fear death more than do young adults or older adults. Older adults think about death more & talk about it more than in previous adult stages. ©2008 McGraw-Hill Ryerson Ltd. Facing One’s Own Death Kubler-Ross’s Stages of Dying Perceived Control and Denial ©2008 McGraw-Hill Ryerson Ltd. The Contexts in Which People Die Facing One’s Own Death Kübler-Ross’s Stages of Dying Denial and Isolation Anger Bargaining Depression Acceptance ©2008 McGraw-Hill Ryerson Ltd. Facing One’s Own Death Denial and Isolation Kübler-Ross (1969) divided the behaviour & thinking of dying persons into 5 stages. In the first stage, denial & isolation, people refuse to believe that their condition is terminal. People attempt to convince themselves that lab tests were inaccurate or that the disease will go into remission. Dying individuals in this stage also seek isolation. ©2008 McGraw-Hill Ryerson Ltd. Facing One’s Own Death Anger In the 2nd stage of dying, anger, the dying person recognizes that denial can no longer be maintained. Denial gives way to anger, resentment, rage, & envy. The dying person’s question is: “Why me?” The dying person becomes increasingly difficult to care for, as anger may become displaced & projected onto physicians, nurses, family members, & God. The realization of loss is great & those who represent life are targets of resentment ©2008 McGraw-Hill Ryerson Ltd. Facing One’s Own Death Bargaining In the 3rd stage of dying, bargaining, Kübler-Ross states that the person develops the hope that death can somehow be postponed or delayed. Some people enter into a bargaining or negotiation—often with God—as they try to delay their death. In exchange for a few more days, weeks, or months of life, the person promises to lead a reformed life dedicated to God or to the service of others. ©2008 McGraw-Hill Ryerson Ltd. Facing One’s Own Death Depression In Kübler-Ross’ 4th stage of dying, depression, the dying person accepts that death is certain. At this point, a period of depression or preparatory grief may appear. The dying person may become silent, refuse visitors, & spend time crying or grieving. Attempts to cheer up the dying person at this stage should be discouraged because the person has a need to contemplate impending death. ©2008 McGraw-Hill Ryerson Ltd. Facing One’s Own Death Acceptance In the 5th stage of dying, acceptance, the person develops a sense of peace; an acceptance of one’s fate; & in many cases, a desire to be left alone. Feelings & physical pain may be virtually absent. Kübler-Ross views this stage as the end of the dying struggle, the final resting stage before death. ©2008 McGraw-Hill Ryerson Ltd. Facing One’s Own Death Criticisms of Kubler-Ross Psychology death expert Robert Kastenbaum refutes the existence of Kübler-Ross’ 5 stage sequence. Research has not demonstrated the process exists. Kastenbaum (2000) believes the stage interpretation neglects the patients’ total life situations, including relationship support, specific effects of illness, family obligations, & the institutional climate in which they were interviewed. Some psychologists prefer to describe the stages as reactions to dying. ©2008 McGraw-Hill Ryerson Ltd. Facing One’s Own Death Contributions of Kubler-Ross Kübler-Ross made the important contribution of calling attention to people attempting to cope with life-threatening illnesses. She did much to encourage needed attention to the quality of life for dying persons & their families. ©2008 McGraw-Hill Ryerson Ltd. Facing One’s Own Death Perceived Control and Denial Perceived control & denial may work together as an adaptive strategy for some older adults facing death. Individuals who believe they can influence & control events, become more alert & cheerful. Denial may be a useful way for some individuals to approach death. Denial protects us from the tortuous feeling that we are going to die. Denial can be maladaptive if it prevents treatment. ©2008 McGraw-Hill Ryerson Ltd. Facing One’s Own Death The Contexts in Which People Die For dying individuals, the context in which they die is important. 75% of Canadians die in hospitals or long-term care facilities. Hospitals offer important advantages in that professional staff members are readily available, & the medical technology may prolong life. Kalish & Reynolds (1976) identified most individuals say they would rather die at home. ©2008 McGraw-Hill Ryerson Ltd. Coping with the Death of Someone Else Communicating with a Dying Person Forms of Mourning and the Funeral Grieving Making Sense of the World ©2008 McGraw-Hill Ryerson Ltd. Losing a Life Partner Coping with the Death of Someone Else Communicating with a Dying Person Most psychologists believe that it is best for dying individuals to know that they are dying, & that significant others know they are dying. Dying individuals can thus close their lives in accord with their own idea of proper dying. They can complete plans and projects. They can make arrangements for survivors. They can participate in decisions about a funeral. They will have the opportunity to reminisce. ©2008 McGraw-Hill Ryerson Ltd. Coping with the Death of Someone Else Grieving Dimensions of Grieving Cultural Diversity in Healthy Grieving ©2008 McGraw-Hill Ryerson Ltd. Coping with the Death of Someone Else Dimensions of Grieving Emotional numbness, disbelief, separation anxiety, despair, sadness, & loneliness accompany the loss of someone we love. ©2008 McGraw-Hill Ryerson Ltd. Coping with the Death of Someone Else Dimensions of Grieving Pining or yearning reflects a recurrent need to recover the lost loved one. Separation anxiety includes pining but also focuses on places & things associated with the deceased, as well as crying. Numbness, disbelief, & outbursts of panic are typical immediate reactions. Despair, sadness, & hopelessness are part of grief. ©2008 McGraw-Hill Ryerson Ltd. Coping with the Death of Someone Else Cultural Diversity in Healthy Grieving In contrast to Western In Egypt, the bereaved are beliefs, maintenance of ties encouraged to dwell at with the deceased is length on their grief. accepted & sustained in In Bali, the bereaved are the religious rituals of encouraged to laugh & be Japan. joyful, rather than be sad. In the Arizona Hopi, the Diverse grieving patterns deceased are forgotten as are culturally embedded. quickly as possible & life is carried on as usual. ©2008 McGraw-Hill Ryerson Ltd. Coping with the Death of Someone Else Making Sense of the World A beneficial aspect of grieving is that it stimulates many individuals to make sense of their world. A common occurrence is to go over again & again all of the events that led up to the death. When death is caused by an accident or disaster, the effort to make sense of it is pursued more vigorously. The bereaved want to put the death in a perspective they can understand—divine intervention, a logical sequence of cause & effect, etc. ©2008 McGraw-Hill Ryerson Ltd. Coping with the Death of Someone Else Losing a Life Partner Those left behind after the death of an intimate partner suffer profound grief & often endure financial loss, loneliness, increased physical & psychological problems. ©2008 McGraw-Hill Ryerson Ltd. Coping with the Death of Someone Else Losing a Life Partner Those left behind after the death of an intimate partner suffer profound grief & often endure financial loss, loneliness, increased physical illness, & psychological disorders. The bereaved are also at increased risk for many health problems, including death. Optimal adjustment after a death depends on several factors. Women do better than men in our society, due to their networks of friends & close relationships. ©2008 McGraw-Hill Ryerson Ltd. Coping with the Death of Someone Else Forms of Mourning and the Funeral Mourning varies cross-culturally. Funeral rituals are an important aspect of mourning in many cultures. One consideration is what to do with the body. Approximately 80% of corpses are buried. Studies showed that bereaved individuals who were religious derived more psychological benefits from a funeral, participated more actively in rituals, & adjusted more positively to the loss. ©2008 McGraw-Hill Ryerson Ltd.