Quotations 1. "”Henrietta's cells have now been living outside her body for longer than they ever lived inside it,"” Defler said. If we went to almost any cell culture lab in the world and opened its freezers, he told us, we'd probably find millions -- if not billions -- of Henrietta's cells in small vials on ice” (4). -Significance of her cells, describes how rare/special they are 2. “For more than a year Henrietta had been telling her closest girlfriends something didn’t feel right. One night after dinner, she sat on her bed with her cousins Margaret and Sadie and told them, “”I got a knot inside me”” (14). -Depicts how uninformed/uneducated Henrietta was 3. “The public wards at Hopkins were filled with patients, most of them black and unable to pay their medical bills. David drove Henrietta nearly twenty miles to get there, not because they preferred it, but because it was the only major hospital for miles that treated black patients. This was the era of Jim Crow-when black people showed up at white-only hospitals, the staff was likely to send them away, even it meat they might die in the parking lot. Even Hopkins, which did treat black patients, segregated them in colored wards and had colored-only fountains” (15). -Historical documentation about medicine at that time 4. “It was no surprise that she hadn’t come back all those times for follow-up. For Henrietta, walking into Hopkins was like entering a foreign country where she didn’t speak the language….She, like most black patients, only went to Hopkins when she thought she had no choice” (16). -Proves that they were poor & uneducated, simile 5. “With Henrietta unconscious on the operating table in the center of the room, her feet in stirrups, the surgeon on duty, Dr. Lawrence Wharton, Jr., sat on a stool between her legs. He peered inside Henrietta, dilated her cervix, and prepared to treat her tumor. But first – though no one had told Henrietta that TeLinde was collecting samples or asked if she wanted to be a donor – Wharton picked up a sharp knife and shaved two dime-sized pieces of tissue from Henrietta’s cervix: one from her tumor, and one from the healthy cervical tissue nearby. Then he placed the samples in a glass dish” (33). 6. “The pubic didn’t learn about the Tuskegee study until the seventies, after hundreds of men enrolled in it had already died. The news spread like pox through black communities: doctors were doing research on black people, lying to them, and watching them die. Rumors started circulating that the doctors had actually injected the men with syphilis in order to study them” (50). -Prejudice in medicine 7. “There’s no indication that Henrietta questioned him; like most patients in the 1950s, she deferred to anything her doctors said. This was a time when ““benevolent deception”” was common practice-doctors often withheld even the most fundamental information from their patients, sometimes not giving them any diagnosis at all. They believed it was best not to confuse or upset patients with frightening terms they might not understand, like cancer. Doctors knew best, and most patients didn’t question that” (63). -Henrietta obeying her doctor as opposed to voicing concerns leading her to be taken advantage of 8. “”Now he sayin John Hopkin killed my mother and them white doctors experimented on her cause she was black”” (53). -Deborah’s (Henrietta’s daughter) view on the situation 9. “This was 1951 in Baltimore, segregation was law, and it was understood that black people didn’t question white people’s professional judgment” (64). -Briefing the readers on the common responses to doctors or people in power 10. “Though no law or code of ethics required doctors to ask permission before taking tissue from a living patient, the law made it very clear that performing an autopsy or removing tissue from the dead without permission was illegal. The way Day remembers it, someone from Hopkins called to tell him Henrietta had died, and to ask permission for an autopsy, and Day said no. A few hours later, when Day went to Hopkins….the doctors asked again about the autopsy. They said they wanted to run tests that might help the children someday. Day’s cousin said it wouldn’t hurt, so eventually day agreed and signed an autopsy permission form” (90). -Stating facts on the law regarding protocol with taking tissue 11. “”When I saw those toenails,”” Mary told me later, “”I nearly fainted. Oh jeez, she’s a real person. I started imagining her sitting in her bathroom painting those toenails, and it hit me for the first time that those cells we’d been working withal this time and sending all over the world, they came from a live woman. I’d never thought of it that way”” (91). -Mary Gey’s response to seeing Henrietta’s body during the autopsy 12. “So many people knew Henrietta’s name, someone was bound to leak it….Sure enough, on November 2, 1953, the Minneapolis Star became the first publication to name the woman behind the HeLa cells. There was just one thing-the reporter got her name wrong. HeLa, the story said, was “”from a Baltimore woman named Henrietta Lakes”” (105). -Proves the lack of concern with her name 13. “Berg didn’t explain how releasing Henrietta’s name to the public would have protected the privacy or rights of her family. In fact, doing so would have forever connected Henrietta and her family with the cells and any medical information eventually derived from their DNA”” (107). -Points out how the truth about Henrietta’s cells would have affected the Lacks family 14. “Henrietta’s children grew up hungry. Every morning Ethel fed them each a cold biscuit that had to last them until dinner. She put latches and bolts on the refrigerator and cupboard doors to keep the children out between meals” (111). -Emotionally appealing, presenting the situation to prove that Henrietta’s children suffered greatly from her loss 15. “A few minutes later, seemingly out of nowhere, he pointed to the dirt and said, "”You know, white folks and black folds all buried over top of each other in here. I guess old white granddaddy and his brothers was buried in here too. Really no tellin who in this ground now."” Only thing he knew for sure, he said, was that there was something beautiful about the idea of slaveowning white Lackses being buried under their black kin. "”They spending eternity in the same place,"” he told me, laughing. "They must've worked out their problems by now!" (122). -Observation made by Henrietta’s son on prejudice 16. “”Lillian’s skin was real light, even lighter than mom’s,”” Gary explained. “”She married a Puerto Rican somewhere in New York. Since she could pass, she disowned her blackness-converted to Puerto Rican because she didn’t want to be black no more”” (127). -Discusses the difficulty in being African American at the time b/c of prejudice 17. “He chose the Ohio prison because its inmates had cooperated in several other studies without resistance, including one in which they’d been infected with a potentially deadly disease called tularemia. Research on inmates would come under scrutiny and start being heavily regulated about fifteen years later, because they’d be considered a vulnerable population unable to give informed consent…were being used for research of all kinds-from testing chemical warfare agents to determining how X-raying testicles affected sperm count”” (129). -Example of how researchers operated 18. “Sixteen years earlier, on August 20, 1947, a U.S. –led war tribunal in Nuremberg, Germany, had sentenced seven Nazi doctors to death by hanging. Their crime was conducting unthinkable research on Jews without consentsewing siblings together to create Siamese twins, dissecting people alive to study organ function”” (131). -Another example of the research done & how unethical it was 19. “In response to the Southam situation, the NIH investigated all their grantee institutions and found that only nine out of fifty-two had any policy in place to protect the rights of research subjects. Only sixteen used consent forms” (135). -Describes how unfortunate the timing was 20. “’Do you have any friends or members of your family that can get you an attorney?”” “”No. Can’t afford one.”” -Example of how poor her children were/how they ran into a lot of trouble 21. “”Can you tell me what my mama’s cells really did?”” he whispered. “” I know they did something important, but nobody tells us nothing.”” When I asked if he knew what a cell was, he stared at his feet as if I’d called on him in class and he hadn’t done his homework. “”Kinda,”” he said. “”Not really”” (162). -How uneducated/unintelligent her son was even as an adult 22. “Day clenched his three remaining teeth. “”I didn’t sign no papers,”” he said. “’I just told them they could do a topsy. Nothin else. Them doctors never said nothing about keeping her alive in no tubes or growin no cells”” (164). -Henrietta’s husband’s response to being asked what the doctors had told him 23. “Some of the stories were conjured by white plantation owners taking advantage of the long-held African belief that ghosts caused disease and death. To discourage slaves from meeting or escaping, slave owners told tales of gruesome research done on black bodies, then covered themselves in white sheets and crept around at night, posing as spirits coming to infect black people with disease or steal them for research. Those sheets eventually gave rise to the white hooded cloaks of the Klu Klux Klan” (166). -Example of the history of how African Americans were misled by lies 24. “” Hopkins say they gave them cells away,”” Lawrence yelled, “”but they made millions! It’s not fair! She’s the most important person in the world and her family living in poverty. If our mother so important to science, why can’t we get health insurance”” (168). -Family’s feeling on not receiving any compensation for their mother’s cells 25. “Those guidelines had been implemented in 1966, in the aftermath of the Southam trial, and then expanded to include a detailed definition of informed consent in 1971. They were in the process f being codified into law when Hsu called Day” (184). -How many people could have been affected had the change in regulation had been earlier 26. “”Just tell them I’m really grateful. They should be very proud of the mother or the wife-I think that if they are angry, they probably didn’t realize how famous the cells are now in the world. It’s unfortunate thing what happened, they still should be very proud, their mother will never die as long as the medical science is around, she will always be such a famous thing”” (189). -Susan Hsu’s response to finding out that the cells were taken without permission 27. “The Crownsville that Elsie died in was far worse than anything Deborah had imagined. Patients arrived from a nearby institution packed in a train car. In 1955, the year Elsie died, the population of Crownsville was at a record high of more than 2,700 patients, nearly 800 over maximum capacity. In 1948, the only year figures were available, Cronwsville averaged 1 doctor for every 225 patients, and its death rate was far higher than its discharge rate” (275). -Description of the hospital for the Negro Insane 28. “Christoph kept talking about cell division, but Deborah wasn't listening. She stood mesmerized, watching one of her mother's cells divide in two, just as they'd done when Henrietta was an embryo in her mother's womb. Deborah and Zakariyya stared at the screen like they'd gone into a trance, mouths open, cheeks sagging. It was the closest they'd come to seeing their mother alive since they were babies” (265). -Deborah & Zakariyya finally getting information about their mother & her cells 29. “Then she knelt on the ground, next to the sunken strips of earth where she imagined her mother and sister were buried. "”Take one of me and my sister by her and my mother's grave,"” she said. “"It'll be the only picture in the world with the three of us almost together”” (287). -Deborah’s reaction to learning about her mother, emotional appeal in that it proves that Henrietta was a mother 30. “As we left Crownsville, Deborah thanked Lurz for the information, saying, "”I've been waiting for this a long, long time, Doc."” When he asked if she was okay, her eyes welled with tears and she said, "”Like I'm always telling my brothers, if you gonna go into history, you can't do it with a hate attitude. You got to remember, times was different"” (276). -Significance of Henrietta to her family