October - November 2015 Consultation response form Setting the mandate to NHS England for 2016 to 2017 Consultation Questions 1) Do you agree with our aims for the mandate to NHS England? The Orthotics Campaign believes that the overall aims of the mandate to NHS England are appropriate. However we also believe that it is also crucial to identify specific services that are known to be falling short and to identify and target these for improvement. It is widely recognised that NHS Orthotic services are failing to provide consistently good and equitable standards of care. The recent NHS England report entitled "Improving the quality of NHS Orthotic Care in England" illustrated this clearly: "Orthotics services play an essential role in enabling quality of life for people with long term conditions, disabilities and limb loss. Being able to access the right orthotics equipment, quickly, and with appropriate support, is of paramount importance. Unfortunately, this doesn't always happen. People can find themselves waiting a long time for equipment and develop secondary health complications. Long waiting times mean that children in particular may have grown before their orthotics equipment finally arrives. These are avoidable and unfair inequalities". Widespread failings in Orthotic care result in worse outcomes, poor patient experience poor value for public money and unnecessary costs to the NHS. In quantitative terms, the “Orthotic Pathfinder” report estimated that the economic and social consequences of denying patients orthotic care are significant, costing an estimated £390 million per annum based on 2004 data. It suggested that for every £1 spent on improving orthotics service provision, the NHS could save £4. It is therefore imperative that Orthotic care is specifically prioritised in the NHS Mandate. Failing to do so will hinder the improvement that is so desperately needed. In so doing it will prolong a situation where the NHS is failing to benefit from the savings that could be made in the health economy, if quality Orthotic care was provided to all patients in a timely fashion. If the NHS is to meet the needs of disabled people and reduce the health inequalities, Orthotic services must be clearly targeted in the mandate. The Orthotics Campaign is a group of service users and professionals who believe that NHS Orthotic care needs radical reform. Our members know all too well the impact of the lack of quality and consistency in NHS Orthotic services. We have heard terrible stories from patients: the story of a young boy, who due to a lack of timely and quality Orthotic care lost his mobility and had to rely unnecessarily on a wheelchair. Others who have had Page 1 of 5 Consultation response form to undergo what should have been avoidable surgery. Parents up and down the country are having to decide whether to force their child to wear an ill-fitting orthosis that causes their child pain and blisters or to have them go without it and increase the chance of their child becoming deformed. I support the work of the Orthotics Campaign in asking for Orthotic services to be specifically mentioned within the mandate. With the evidence that the Orthotics Campaign has been able to collate from the following sources, it is clear that positive change in Orthotic Care is essential if the aims of the mandate are to be achieved: • Events held by NHS England: Salford, March 2015 and London, November 2015 • Improving the Quality of NHS Orthotic Care in England https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2015/11/orthcsfinal-rep.pdf • Orthotic Service in the NHS: Improving Service Provision http://www.nsoc.org.uk/evidence/york-report.pdf • The economic impact of improved orthotic services provision http://www.bhta.net/sites/default/files/documentupload/2012/Orthotics_review_Cebr_report_04_07_2011.pdf • The Audit Commission report and update: http://www.communityequipment.org.uk/wp-content/uploads/Fully-equipped-2000.pdf http://www.communityequipment.org.uk/wp-content/uploads/Fully-Equipped-2002.pdf • Arthritis Research UK: A call to action: Providing better footwear and Orthoses http://www.arthritisresearchuk.org/~/media/Files/Policy%20files/Policy%20pages%20files/ Footwear_Report_ARUK%20(1).ashx • Other evidence can be found at: http://www.orthoticscampaign.org.uk/evidence.html 2) Is there anything else we should be considering in producing the mandate to NHS England? There needs to be more specific service improvement targets for NHS England within the mandate. This should state and prioritise a need for urgent improvement in orthotic services. NHS England has stated why and how Orthotic care needs to improve. There now needs to be a clear mandate to facilitate these urgent improvements. In this way the NHS could simultaneously improve quality of care and reduce costs. In so doing the lives of huge numbers of disabled people across England could be significantly improved and the effectiveness of other rehab services like physiotherapy can be enhanced. 3) What views do you have on our overarching objective of improving outcomes and reducing health inequalities, including by using new measures of comparative Page 2 of 5 Consultation response form quality for local CCG populations to complement the national outcomes measures in the NHS Outcomes Framework? We support this proposal. However it is important that smaller services such as Orthotics are specifically included in such measures. All too often Orthotics care is overlooked as insignificant, low priority, or too difficult to tackle. Often CCGs do not understand the complexities of commissioning a quality orthotic service. This type of service commissioning is extremely complex. However there are significant gains to be made if Orthotics commissioning is done properly: benefits to patients, enhancements in the effectiveness of other services and a cost saving to the wider health and social-care economies. If the NHS aims to reduce variation and poor quality, then it needs to target areas where there is greatest variation and where patient experience is known to be poor. Clearly Orthotic care is one of these areas and this should be identified and given priority in the mandate. 4) What views do you have on our priorities for the health and care system? The Orthotics campaign generally supports the priorities. However in order to achieve these priorities it will be necessary for Orthotic services to be specifically addressed. Without Orthotic care being named in the mandate it is likely that orthotic services will remain in the state they are now. This is how mandating Orthotic care improvements could directly contribute to the priorities set: Preventing ill health and supporting people to live healthier lives. Orthotic care does both of these things. By enabling people to maintain mobility and function, Orthotic care allows people to stay fit and active and avoid the secondary complications of immobility. For example, someone who has a progressive neuromuscular condition can be supported using Orthotic devices so they can mobilise or stand. This means they can maintain bowel, cardiac and respiratory functioning. Orthotic care contributes to falls prevention and can help people with diabetes avoid amputations. Many disabled people rely on their Orthotic devices and Orthotic footwear to allow them to work, access school, look after themselves and participate in social and leisure opportunities. Lack of timely and quality orthotic care can undermine all of these things. Creating the safest, highest quality health and care service. At present safety within orthotic care is of concern. Poorly commissioned services can often not find the time to explain to patients how to use and care for their devices. When devices begin to rub and blister patient’s bodies, they often have to wait for excessive periods before they can access the help they need to rectify their devices. This leaves patients at risk in the meantime. The risks are associated with damage to skin (which for diabetics could be catastrophic) and with the patient being unable to wear the device that they have an assessed clinical need for. Furthermore many services suffer from an imbalance in demand and capacity, meaning Page 3 of 5 Consultation response form appointment slots are reduced to potentially unsafe lengths. The national shortage of trained Orthotists is also of concern for patient safety, with some services unable to recruit the staff they need to fill vacancies. For more details about why the patient experience of orthotic care can be poor, please see this document: https://www.england.nhs.uk/wp-content/uploads/2015/11/orthcs-rep-attach-1.pdf Maintaining and improving performance against core standards while achieving financial balance, by ensuring the NHS meets the needs of patients and operates within its budget. There is clear evidence that the NHS is failing to fully benefit from the cost savings that Orthotic care provides. By making Orthotics a priority within the mandate we could increase the likelihood of being able to fully realise this cost saving. See report: http://www.bhta.net/sites/default/files/documentupload/2012/Orthotics_review_Cebr_report_04_07_2011.pdf Transforming out-of-hospital care, ensuring services outside hospital settings are more integrated and accessible. Orthotic users are generally people living with long term disabilities who would not consider themselves to be ‘sick’. However, they are usually provided with their Orthotic care in busy acute hospitals rather than in community-based settings. By recommissioning care into more appropriate and community environments, CCGs can give Orthotic users a much more accessible and positive experience of their care whilst releasing space pressure on acute hospitals. Driving improvements in efficiency and productivity by reducing waste and inefficiency to ensure every penny delivers the maximum possible benefit to patient care. Sadly at present there can be a lot of wastage in Orthotic services. This comes from devices taking so long to get to the patient that they are outgrown or unsuitable when they are fitted. As Orthotics products are often bespoke to the patient and are for single patient use, devices are then wasted. Furthermore Orthotists are having to see patients in clinical slots that are too short. This means higher chances of measuring errors, or crucial details being omitted from orders. These are symptoms of poor commissioning that are impacting patients across England. Supporting research, innovation and growth, and influencing global health priorities. There are many technologies that could enhance orthotic care and improve outcomes (eg 3D printing technology, 3D scanning). However due to the lack of investment in NHS Orthotic services over a long period of time, orthotists are generally still relying on outdated traditional measuring methods. Better commissioning of Orthotic services, that supports the use of innovation, is needed if patients are to benefit from these technologies and the NHS is to benefit from the reduction in waste. Ultimately technology can reduce error and waste, but unless Orthotic care is specifically mandated then this issue is unlikely to resolve. Making orthotic services a priority improvement area in the mandate would bring about huge benefits to patient and carer experience to what is currently an overlooked and Page 4 of 5 Consultation response form vulnerable, yet important, group of people. 5) What views do you have on how we set objectives for NHS England to reflect their contribution to achieving our priorities? Whilst it is necessary to have general objectives for NHS England, it must also be recognised that there are services which do not fit well into these generalised principles. Orthotics is a clear example of this and the quality of this service has suffered from being treated under a generalised approach. For too long services that focus on the needs of disabled people are seen as less important. For too long Orthotic care has been regarded as a commodity-based service that simply dishes out equipment; and not the highly specialist clinical service that it is. It is this kind of thinking that has led us to the poor state that services are now in. We believe that decisive action and prioritisation of Orthotic services is required now, if society is to benefit from the huge benefits that this service can provide. Unfortunately the budget holder for orthotics is not the one who benefits from the savings that Orthotics makes in the local health economy. As long as this is the case, it is critical that Orthotic care improvements are clearly stated and prioritised in the mandate. It is also important to see the needs of people with long-term conditions and disabilities being given as much priority as those with acute needs. The NHS needs to hear the voices of this group of patients and strongly reflect their needs when setting priorities. Page 5 of 5