Resources for Florida Advocacy

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Health Care Advocacy Resources

Listed below are web sites of government agencies, advocacy, research, state based organizations, and foundations that provide in-depth information or support on health policy issues including the Affordable Care Act (ACA).

EXECUTIVE BRANCH

White House

National HIV/AIDS Strategy http://www.whitehouse.gov/administration/eop/onap/nhas

PEPFAR, The President’s Emergency Plan for AIDS Relief (U.S.) http://www.pepfar.gov

FEDERAL AGENCIES

Department of Agriculture

USDA Economic Research Service http://www.ers.usda.gov/

Food, Nutrition, and Consumer Services http://www.fns.usda.gov/fns/

Food Safety Inspection Services http://www.fsis.usda.gov/

Department of Commerce

Census Bureau http://www.census.gov/

Economics and Statistics Administration http://www.esa.doc.gov/

Department of Defense

TRICARE http://www.tricare.mil/

Department of Education

National Institute on Disability and Rehabilitation Research http://www.ed.gov/about/offices/list/osers/nidrr/index.html

Department of Health and Human Services (HHS) http://www.dhhs.gov/

Office of the Secretary o Assistant Secretary for Planning and Evaluation (ASPE) http://aspe.hhs.gov/_/index.cfm

o Office of Disability, Aging, and Long Term Care Policy http://aspe.hhs.gov/_/office_specific/daltcp.cfm

o Office of the National Coordinator on Health Information Technology (ONCHIT) http://healthit.hhs.gov/portal/server.pt

o National Partnership to End Health Disparities, Office of Minority Health https://minorityhealth.hhs.gov/

Administration on Aging (AoA) http://www.aoa.gov/

Agency for Healthcare Research and Quality (AHRQ) http://www.ahrq.gov/ o Medical Expenditure Panel Survey (MEPS) http://www.meps.ahrq.gov/mepsweb/ o National Quality Measures Clearinghouse (NQMC) http://www.qualitymeasures.ahrq.gov/ o National Guidelines Clearinghouse (NGC) http://www.guideline.gov/ o U.S. Preventive Services Task Force (USPSTF) http://www.ahrq.gov/clinic/USpstfix.htm

Centers for Disease Control and Prevention (CDC) http://www.cdc.gov/ o National Center for Health Statistics http://www.cdc.gov/nchs/ o National Institute for Occupational Safety and Health (NIOSH) http://www.cdc.gov/niosh/ o National Health and Nutrition Examination Survey (NHANES) http://www.cdc.gov/nchs/nhanes.htm

Centers for Medicare & Medicaid Services (CMS) http://www.cms.gov/ o Medicare.gov http://www.medicare.gov/ o Medicare Evidence Development & Coverage Advisory Committee (MEDCAC) http://www.cms.gov/FACA/02_MEDCAC.asp

Food and Drug Administration (FDA) http://www.fda.gov/

Health Resources and Services Administration (HRSA) http://www.hrsa.gov/

Healthfinder http://www.healthfinder.gov

National Institutes of Health (NIH) http://www.nih.gov/ o National Library of Medicine http://www.nlm.nih.gov/hinfo.html

o Pub Med (Medline) http://www.ncbi.nlm.nih.gov/sites/entrez

National Committee on Vital and Health Statistics (NCVHS) http://www.ncvhs.hhs.gov/

Substance Abuse and Mental Health Services Administration (SAMHSA) http://www.samhsa.gov/

Department of Homeland Security http://www.dhs.gov/index.shtm

Department of Labor o Bureau of Labor Statistics http://www.bls.gov/ o Employee Benefits Security Administration http://www.dol.gov/ebsa/ o Occupational Safety and Health Administration (OSHA) http://www.osha.gov/

Department of Veterans Affairs http://www.va.gov/

Government Printing Office (GPO Access) http://www.gpoaccess.gov/ o Federal Register http://www.gpoaccess.gov/fr/

Council of Economic Advisors http://www.whitehouse.gov/administration/eop/cea/

Office of Management and Budget http://www.whitehouse.gov/omb/

Social Security Administration http://www.socialsecurity.gov/

CONGRESSIONAL SUPPORT AGENCIES

Congressional Budget Office (CBO) http://www.cbo.gov/

Government Accountability Office (GAO) http://www.gao.gov/

Library of Congress http://www.loc.gov/index.html

o Congressional Research Service (CRS) http://www.loc.gov/crsinfo/aboutcrs.html

o Thomas: Legislative Information on the Internet http://thomas.loc.gov/

Medicare Payment Advisory Commission (MedPAC) http://www.medpac.gov/

LEGISLATIVE BRANCH

U.S. House of Representatives o Committee on Appropriations http://appropriations.house.gov/ o Committee on the Budget http://budget.house.gov/ o Committee on Education and Labor http://edlabor.house.gov/ o Committee on Energy and Commerce http://energycommerce.house.gov/ o Committee on Ways and Means http://waysandmeans.house.gov/

U.S. Senate o Committee on Appropriations http://appropriations.senate.gov/ o Committee on the Budget http://budget.senate.gov/ o Committee on Finance http://finance.senate.gov/ o Committee on Health, Education, Labor, and Pensions (HELP) http://help.senate.gov/ o Special Committee on Aging http://aging.senate.gov/

INFORMATION RESOURCES

Census 2010 - Color-Coded Race Map http://demographics.coopercenter.org/DotMap/index.html

Center for Science in the Public Interest http://www.cspinet.org/

Clinicaltrials.gov http://clinicaltrials.gov/

Cochrane Collaboration http://www.cochrane.org/

Community Guide http://www.thecommunityguide.org/index.html

Consumers Union http://www.consumersunion.org/

Federal Register http://www.gpoaccess.gov/fr/

The Joint Commission (formerly JCAHO) http://www.jointcommission.org/

Medical Expenditure Panel Survey (MEPS) http://www.meps.ahrq.gov/mepsweb/

National Committee for Quality Assurance (NCQA) http://www.ncqa.org/

National Guidelines Clearinghouse (NGC) http://www.guideline.gov/

National Health and Nutrition Examination Survey (NHANES) http://www.cdc.gov/nchs/nhanes.htm

National Quality Forum (NQF) http://www.qualityforum.org/

National Quality Measures Clearinghouse (NQMC) http://www.qualitymeasures.ahrq.gov/

National Working Group on Evidence-Based Health Care http://evidencebasedhealthcare.org/

Public Library of Science (PLoS) http://www.plos.org/

Pub Med (Medline) http://www.ncbi.nlm.nih.gov/sites/entrez

Thomas: Legislative Information on the Internet http://thomas.loc.gov/

US Pharmacopeia (USP) http://www.usp.org/

THINK TANKS AND RESEARCH ORGANIZATIONS

AcademyHealth http://academyhealth.org

AIDS Alliance for Women, Infants, Children, Youth & Families http://www.aids-alliance.org

State Coverage Initiatives http://www.statecoverage.org/

Alliance for Health Reform http://www.allhealth.org/

American Enterprise Institute http://www.aei.org/home

Brookings Institution http://www.brookings.edu/

California Healthcare Foundation http://www.chcf.org/

Cato Institute http://www.cato.org/

Center for Health Care Strategies, Inc. http://www.chcs.org/

Center for Biosecurity (at University of Pittsburgh Medical Center) http://www.upmc-biosecurity.org/

Center for Studying Health System Change http://www.hschange.com/

Center on Budget and Policy Priorities http://www.cbpp.org/

ECRI Institute's Comparative Effectiveness Resource Center https://www.ecri.org/comparativeeffectiveness/Pages/default.aspx

Economic Success Clearinghouse (formerly Welfare Information Network) http://www.financeproject.org/index.cfm?page=24

Employee Benefit Research Institute http://www.ebri.org/

Georgetown University o Center for Children and Families http://ccf.georgetown.edu/ o Health Policy Institute http://hpi.georgetown.edu/

George Washington University o Center for Health Policy Research http://www.gwumc.edu/sphhs/institutescenters/center_for_health_Policy_research.cfm

Heritage Foundation http://www.heritage.org/

Health Affairs (Project HOPE) http://www.healthaffairs.org/

Institute for Health Policy Solutions http://www.ihps.org/index.shtml

Institute of Medicine http://www.iom.edu/

Joint Center for Political and Economic Studies — Health Policy Institute http://www.jointcenter.org/index.php/current_research_and_policy_activities/health_policy_institute

Kaiser Family Foundation http://www.kff.org/

Mathematica Policy Research, Inc. http://www.mathematica-mpr.com/

National Academies of Science http://www.nationalacademies.org/

National Association of Insurance Commissioners http://www.naic.org/

National Academy of Social Insurance http://www.nasi.org/

RAND Health http://www.rand.org/research_areas/health/

The AIDS Institute http://www.theaidsinstitute.org

Urban Institute http://www.urban.org/

STATE-CENTERED RESEARCH ORGANIZATIONS

American Public Human Services Association http://www.aphsa.org/Home/home_news.asp

Association of State and Territorial Health Officials http://www.astho.org/

Council of State and Territorial Epidemiologists http://www.cste.org/dnn/

Council on state Governments http://www.csg.org/

Florida Consortium for HIV/AIDS Research http://www.FCHAR.org

National Academy for State Health Policy http://www.nashp.org/

National Alliance of State and Territorial AIDS Directors (NASTAD) http://www.nastad.org/

National Association of County Health Officials http://www.naccho.org/

National Association of State Budget Officers (NASBO) http://www.nasbo.org/

National Association of State Medicaid Directors (NASMD) http://www.nasmd.org/Home/home_news.asp

National Conference of State Legislatures http://www.ncsl.org/

National Governors Association http://www.nga.org/portal/site/nga/menuitem.b14a675ba7f89cf9e8ebb856a11010a0

National Network of Public Health Insitutes http://www.nnphi.org/home/

Nelson A. Rockefeller Institute of Government http://www.rockinst.org/

State Health Access Data Assistance Center (SHADAC) http://www.shadac.org/

State Health Access Reform Evaluation http://www.shadac.org/share/

GLOBAL HEALTH RESEARCH ORGANIZATIONS

Center for Strategic & International Studies http://csis.org/

Global Health Policy Research Network http://www.cgdev.org/section/initiatives/_active/ghprn

Nuclear Threat Initiative http://www.nti.org/index.php

STATE HEALTH POLICY FORUMS

AR: Arkansas Center for Health Improvement http://www.achi.net/index.asp

CA: California Health Policy Forum http://www.cahpf.org/

CO: Colorado Health Institute http://www.coloradohealthinstitute.org/

FL: The AIDS Institute http://www.theaidsinstitute.org

FL: Florida HIV/AIDS Advocacy Network http://www.FHAAN.org

FL: Florida Chain http://floridachain.org/

GA: Georgia Health Policy Center (Georgia State University) http://aysps.gsu.edu/ghpc/

KA: Kansas Health Institute http://www.khi.org/

LA: Louisiana Public Health Institute http://lphi.org/home2/

MA: Massachusetts Health Policy Forum http://masshealthpolicyforum.brandeis.edu/

ME: Edmund S. Muskie School of Public Service (University of Southern Maine) http://muskie.usm.maine.edu/

MI: Michigan Health Policy Forum http://www.nursing.msu.edu/HPF/

ND: Center for Rural Health (University of North Dakota) http://ruralhealth.und.edu/

TX: Texas Institute for Health Policy Research http://www.healthpolicyinstitute.org/

WA: Resource Center for Health Policy (University of Washington) http://depts.washington.edu/rchpol/

WI: Population Health Institute (University of Wisconsin) http://uwphi.pophealth.wisc.edu/

CHARITABLE GIVING HEALTH FOUNDATIONS

Bill and Melinda Gates Foundation http://www.gatesfoundation.org/

Clinton Foundation http://www.clintonfoundation.org/

Commonwealth Fund http://www.commonwealthfund.org/

Elton John AIDS Foundation http://ejaf.org/

Robert Wood Johnson Foundation http://www.rwjf.org/

The Atlantic Philanthropies http://www.atlanticphilanthropies.org/

The David and Lucile Packard Foundation http://www.packard.org/

The John A. Hartford Foundation, Inc. http://www.jhartfound.org/

The Kresge Foundation http://www.kresge.org/

The SCAN Foundation http://www.thescanfoundation.org/

W. K. Kellogg Foundation http://www.wkkf.org/

AFFORDABLE CARE ACT RESOURCES AND GENDERAL INFORMATION

HIV Health Reform http://www.HIVHealthReform.org

Text of the Affordable Care Act, http://democrats.senate.gov/pdfs/reform/patient-protection-affordable-careact-as-passed.pdf

Kaiser Family Foundation: The Basics on Health Reform, http://healthreform.kff.org/the-basics.aspx

Community Catalyst: Health Insurance 101, http://101.communitycatalyst.org/

“Key Features of the Affordable Care Act, By Year,” http://www.healthcare.gov/law/timeline/full.html

“Summary of Coverage Provisions of the Patient Protection and Affordable Care Act,” http://www.kff.org/healthreform/upload/8023-R.pdf

Families USA information about the ACA’s Patients’ Bill of Rights and Other Protections, http://familiesusa2.org/assets/pdfs/health-reform/Patients-Bill-of-Rights.pdf

FEDERAL GOVERNMENT RESOURCES ON THE ACA

CCIIO (Center for Consumer Information and Insurance Oversight), http://cciio.cms.gov/

CMS (Centers for Medicare and Medicaid Services) health care page, http://www.cms.gov/home/aca.asp

CMS Marketplace http://marketplace.cms.gov/

HealthCare.gov Help Center https://www.healthcare.gov/help-center/

HealthCare.gov, http://www.healthcare.gov/law/index.html

HRSA Ryan White HIV/AIDS Program : http://hab.hrsa.gov/affordablecareact/

National Prevention, Health Promotion and Public Health Council, http://www.healthcare.gov/prevention/nphpphc/index.html

SAMHSA (Substance Abuse and Mental Health Services Administration) health care page, http://www.samhsa.gov/healthReform/

ORGANIZATIONS WITH RESOURCES ON ACA IMPLEMENTATION

AIDS Alliance for Women, Infants, Children, Youth & Families http://www.aids-alliance.org

Alliance for Health Reform http://www.allhealth.org/

Center for Children and Families at Georgetown University http://ccf.georgetown.edu/

Center for Health Care Strategies http://www.chcs.org/

Center on Budget and Policy Priorities http://www.cbpp.org/research/index.cfm?fa=topic&id=32

Community Catalyst http://www.communitycatalyst.org/

Enroll America http://www.enrollamerica.org/

Families USA http://www.familiesusa.org/

Health Reform GPS at George Washington University http://healthreformgps.org/

HIV Health Reform http://www.HIVHealthReform.org

Kaiser Family Foundation http://healthreform.kff.org/

Kaiser Health News http://www.kaiserhealthnews.org/

National Academy for State Health Policy http://www.nashp.org/

National Conference of State Legislatures http://www.ncsl.org/

The AIDS Institute http://www.theaidsinstitute.org

The Commonwealth Fund http://www.commonwealthfund.org/

Urban Institute http://www.urban.org/health/index.cfm

HELPFUL PUBLICATIONS ON GENERAL IMPLEMENTATION ISSUES

 “ACA Federal Funds Tracker,” http://healthreform.kff.org/federal-fundstracker.aspx?CFID=598578155&CFTOKEN=82092673&jsessionid=60306a4d37222e399bde7514774e171348

20

 “Affordable Care Act Implementation: How is it Affecting the Health Care Workforce?” http://www.rwjf.org/content/rwjf/en/about-rwjf/newsroom/newsroom-content/2011/04/affordable-care-actimplementation-how-is-it-affecting-the-healt.html

 “Implementing the Affordable Care Act: State Action on Early Market Reforms,” http://www.commonwealthfund.org/~/media/Files/Publications/Issue%20Brief/2012/Mar/1586_Keith_state_acti on_early_market_reforms_v2.pdf

 “10 Priorities for Health Reform Implementation,” http://nashp.org/sites/default/files/state.policymaker.priorities.for.health.reform.pdf

 “The Bottom Line: How the Affordable Care Act Helps America’s Families,” http://familiesusa2.org/assets/pdfs/health-reform/helping-families/National-Report.pdf

 “Implementing the Patient Protection and Affordable Care Act: A 2012 State To-Do List for Exchanges, Private

Coverage, and Medicaid,” http://familiesusa2.org/assets/pdfs/health-reform/Implementation-To-Do-List-

2012.pdf

TED TALK-The presentation below embodies; Healthcare, social determinants, prevention, delivery systems, the future of healthcare. http://www.ted.com/talks/rebecca_onie_what_if_our_healthcare_system_kept_us_healthy.html?source=email#

.UX6PTUp7YEV.email

 Kaiser Family Foundation “Health Reform Hits Main Street” video . http://healthreform.kff.org/theanimation.aspx

Kaiser Family Foundation - subsidy calculator for healthcare premiums www.kff.org/interactive/subsidycalculator

Kaiser Video/English http://www.youtube.com/watch?v=JZkk6ueZt-U

Kaiser Video /Spanish http://kff.org/health-reform/video/video-la-reforma-del-cuidado-de-la-salud-llega-alpublico/

To submit additional resources please send details to Michelle Scavnicky MScavnicky@theaidsinstitute.org

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