HIV infected women in Mexico: vulnerability, missed opportunities and late diagnosis MARTIN-ONRAET A.3, ALVAREZ-WYSSMAN V.1, VOLKOWFERNANDEZ P.3, GONZALEZ-RODRIGUEZ ANDREA2, VELAZQUEZ-ROSAS G.4,RIVERA-ABARCA L.4, TORRESESCOBAR INDIANA5, SIERRA-MADERO J.1 1Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, 2Clínica Especializada Condesa, 3Instituto Nacional de Cancerología, Mexico City, Mexico, 4 Centros Ambulatorios de Prevención y Atención en SIDA e ITS (CAPASITS) Oaxaca, 5Centros Ambulatorios de Prevención y Atención en SIDA e ITS (CAPASITS) Puebla. www.aids2014.org INTRODUCTION • HIV in Mexico is a concentrated epidemic driven by infection in MSM • Late presentation remains the most important challenge • Women represent 20% of affected population • Detection campaigns focus on high risk groups that do not include women • The only screening strategy for HIV detection in women is pregnancy • HIV infected women are particularly vulnerable and represent a double challenge www.aids2014.org GOALS • What are the sociodemographic and clinical characteristics of Mexican women recently diagnosed with HIV infection? • How are women diagnosed with HIV? • Are there specific factors reflecting increased vulnerability in women infected with HIV? www.aids2014.org STUDY DESIGN AND SAMPLE SUBJECTS: DATA: Mexican born HIV-infected women, diagnosed between 2009 and 2013, attending one of 4 HIV care centers of 3 different states: - Oaxaca - Puebla - Mexico City: Instituto de Nutrición and Clínica Condesa Structured face to face interviews and medical records: - Socio demographics, risk behavior, history of physical/sexual violence, circumstances of HIV diagnosis and access to medical and prenatal care - Clinical information from files • Standard statistical analysis was done with Stata 12.0 • Ethics approval was obtained, informed consent from women • Women were offered legal and psychological counseling www.aids2014.org RESULTS www.aids2014.org SAMPLE 331 women invited 30 did not accept 270 women interviewed 31 accepted file review 301 women included www.aids2014.org HIV Care center, n=301 N (%) Clínica Condesa 94 (31.2) Instituto de Nutrición 58 (19.3) Oaxaca 100 (33.2) Puebla 49 (16.3) SOCIODEMOGRAPHIC CHARACTERISTICS N(%) Indigenous language: - Speaks or understands Education: - illiterate - Primary school (incomplete and complete) - Secondary school (incomplete and complete) - High school/commercial career/incomplete degree - Complete degree Participates in household income Woman as the only provider for their family Monthly income in USD: - Less than 460 USD www.aids2014.org 39 (14) 23 (7.7) 70 (23.6) 113 (38.1) 79 (26.6) 12 (4) 134 (50.1) 51 (19.1) 222 (94) 31% 31% CLINICAL CHARACTERISTICS Any comorbidity* Co-infection HCV/HBV History of alcohol abuse History of illicit substance abuse Initiation of sexual activity in years, median (range) Number of pregnancies, median (range) Number of sexual partners, median (range) Age at first pregnancy, median (range) First pregnancy at 18 years or less Any sexually transmitted disease other than HIV at diagnosis: - HPV infection - Genital herpes - Syphilis - Other *Diabetes Mellitus (5.3%), arterial hypertension (4.4%), dyslipidemia (14.3), others (7.7%) www.aids2014.org N (%) 58 (21) 6 (2) 33 (11.5) 31 (10.8) 17 (10-31) 2 (0-13) 2 (1-300) 20 (12-38) 63 (28.5) 82 (33.6) 61 (72.6) 7 (8.3) 5 (6) 11 (13.1) VULNERABILITY FACTORS a History of physical violence at home : N(%) 126 (47) Who was the aggressor? a - Previous or current partner - Parents - brother - Others 97 (69.8) 22 (15.8) 4 (2.9) 16 (11.5) History of sexual abuse: ¿Who was the aggressor? a - Previous or current partner - Parents - brother - Others 78 (29.7) History of imprisonment: History of living in the US or the borders History of paid sex 11 (4) 16 (6) 26 (9.7) There might be more than one agressor per woman www.aids2014.org 35 (33.9) 5 (4.9) 12 (11.6) 51 (47.6) Clinical and socio demographic characteristics in different centers Condesa Nutrición Oaxaca Puebla P 29 (30.8) 20 (34.5) 48 (48) 24 (49) 0.04** Speaks or understands indigenous language, n (%) 8 (9.6) 4 (9.5) 25 (25.2) 2 (4.2) 0.001** Number of sexual partners, median (range) 3 (1-300) 2 (1-40) 2 (1-99) 2 (1-45) 0.018* History of paid sex, n (%) 12 (14.8) 1 (2.5) 9 (9.3) 4 (8.3) NS History of illicit substance use, n(%) 16 (18.8) 5 (9.4) 7 (7.2) 3 (6.12) 0.04** History of sexual abuse, n (%) 32 (39) 14 (36) 20 (21) 12 (25.5) 0.04** Baseline CD4 count, median (range) 217 111 298 194 <0.001* (3-1341) (1-913) (14-1138) (6-929) Recently diagnosed partner or offspring 34 (42.5) 14 (35) 36 (36.3) 16 (33.3) Symptoms 26 (32.5) 19 (47.5) 31 (31.3) 19 (39.6) Pregnancy 8 (10) 1 (2.5) 16 (16.2) 4 (10.9) Age at diagnosis <30 yo, n (%) Reasons for diagnosis, n(%): * Kwallis test, ** χ2 test a There were statistical differences between INCMNSZ and Oaxaca, for diagnosis through pregnancy (p=0.02) www.aids2014.org NSa SOURCE OF HIV INFECTION N(%) Likely source of infection: - Stable partner (current or partner) - I don’t know - Casual partner - Other reasons* Had ever done an HIV test previously Suspicion of being HIV infected before doing the test - Of those who suspected, how many had done a test before * 201 (75) 28 (10.5) 24 (9) 15 (5.5) 65 (24.3) 62 (23) 29 (46.7) tatoo (1), rape (5), sharing needles (1), transfusion (5), working accident (3) Reasons to get tested: Health care provider recommendation Other reasonsa aTesting www.aids2014.org campaigns, donation, prenuptial studies, getting to a lab N(%) 175 (65.3) 93 (34.7) CIRCUMSTANCES OF HIV DIAGNOSIS 45 40 38.1 34.7 35 30 % 25 20 16.6 15 10.6 10 5 0 Infected partner/offspring (n=101) www.aids2014.org Symptoms (n=92) Others (n=44) Pregnancy (n=28) CLINICAL STAGE AT PRESENTATION Age at diagnosis, median (range) CD4 count at presentation, median (range) CD4<200 , n(%) CD4 <100, n(%) 32 (16.5-75) 203 (1-1341) 133 (49.3) 77 (28.5) AIDS defining events at diagnosis, n(%) 80 (27.5) Number of AIDS defining events: 111 (there were more than one per patient) Waisting syndrome (48), Cytomegalovirus disease (9), extrapulmonary tuberculosis (9), Candida esophagitis (8), P.jiroveci pneumonia (8), atypical mycobacterial disease (3), pulmonary tuberculosis (5), cryptococosis (3), others (18) www.aids2014.org MEDICAL CARE PRIOR TO DIAGNOSIS Sought medical care for HIV symptoms before diagnosis?* Yes Number of medical contacts prior to HIV diagnosis 70 No 61 60 50 40% % 40 30 20 60% 13.2 14.4 1-2 3-4 11.4 10 0 0 * Symptoms such as weight loss, fever, chronic diarrhea, oral candidiasis, herpes 68% of women diagnosed through symptoms had sought www.aids2014.org medical care before 5 or more Partner diagnosed (n=83) Median of CD4 267 (14-1341) www.aids2014.org (range) Child diagnosed (n=11) Symptoms (n=86) Pregnancy (n=20) Others (n=40) 132 (30-659) 108 (1-726) 322 (6-1138) 198 (18-683) # of medical contacts None (n=141) 1-2 (n=34) 3-4 (n=35) 5 or more (n=26) Median of CD4 (range) 256 (1-1341) 217 (7-1138) 187 (3-726) 31 (10-289) www.aids2014.org Characteristics associated to late stage disease at diagnosis (CD4 count <200) Univariate analysis Multiplelogistic regression OR (CI95%) CD4<200 CD4>=200 OR (CI95%) <30 years 38 (36.5) 66 (63.5) 1 >= 30 years 95 (57.3) 71 (42.8) 2.32 (1.4-3.8) Yes 5 (25) 15 (75) 1 No Number of consultations prior to diagnosis: 0-2 111 (50.4) 109 (49.6) 3 (1.07-8.6) 69 (39.4) 106 (60.6) 1 3 or more 44 (72.1) 17 (27.9) 3.97 (2.1-7.5) P P Age at diagnosis: 1 0.001 1.89 (1.07-3.3) 0.02 Diagnosis through pregnancy: 1 0.02 1.8 (0.6-5.4) 1 <0.001 3.56 (1.85-6.8) NS: Physical violence, sexual abuse, speaking indigenous language, illegal substance abuse,study degree www.aids2014.org 0.2 <0.001 PRENATAL CARE HIV test offered during prenatal care 70 61.2 60 50 % 40 30 20 11.6 13.6 All pregnancies Some pregnancies 13.6 10 0 www.aids2014.org None of the pregnancies Not applicable CONCLUSIONS • Women recently diagnosed with HIV in Mexico have vulnerability factors such as a high prevalence of physical and sexual violence, low level of education, pregnancies at young age, low incomes and acquiring HIV mainly through their stable partner • Women are detected late, except for women diagnosed through pregnancy • Most women (73%) are diagnosed because of an infected partner/offspring or being symptomatic • Missed opportunities of earlier diagnosis and low rates of HIV testing were detected, during medical and prenatal care www.aids2014.org Consequences and perspectives • Late diagnosis in women seems to be the result of a deficient health care system and lack of risk perception both from health care workers and women, in a context of high vulnerability and the absence of screening policies for non-pregnant women • Strategies for early detection need to be reevaluated for women in countries with concentrated epidemics such as the one in Mexico www.aids2014.org ACKNOWLEDGMENTS • Instituto Nacional de Médicas y Nutrición Zubirán: – – – – – • Ciencias Salvador Juan Sierra Madero María de Lourdes Guerrero Almeida Juan Calva Mercado Brenda Crabtree Ramírez Rigoberto Aramburo García Clínica Especializada Condesa: – – – – – – – Andrea González Rodríguez Jesús Casillas Rodríguez Carlos Magis Rodríguez Florentino Badial Hernández Ubaldo Ramos Alamillo Victoria Alvarez Wyssmann Ricardo Niño Vargas www.aids2014.org • Instituto Nacional de Cancerología: – Patricia Volkow Fernández – Diana Vilar Compte • Hospital general Manuel Gea González – Rafael Valdez Vázquez – Patricia Rodriguez Zulueta – Daniel Aguilar Zapata • CAPASITS Oaxaca – Gabriela Velázquez Rosas – Lesvia Rivera Abarca – Yuko Nakamura López • CAPASITS Puebla – Indiana Torres Escobar – Tayde Pérez reyes