Pe DS SIG
Pediatric
Data Standards
SIG Overview
Atlanta, GA
September 20, 2007
Why We Exist
Pe DS SIG
Numerous National HIT Initiatives Underway to Support
President’s Goal to Make EHR Systems Accessible by 2014
Problem: Children represent nearly one
third of the U.S. population. They can receive
care through HIT systems from a variety of
individuals in a variety of settings. Initiatives
are largely adult-focused.
Opportunity: Work through HL7 to improve
quality of data standards for child health
care.
PeDSSIG is Part of National
Pediatric HIT Community
Pe DS SIG
Identify
Requirements
Influence
Adoption
HIMSS Pediatric
Health Informatics
& Technology SIG
Adopt
Standards
HL7
Health Level
Seven (HL7)
Pediatric
Data Standards SIG
AAP
Council on
Clinical Information
Technology
Validate
Standards
Nationwide Health
Information Network
Alliance for
Pediatric
Quality
Office of the
National Coordinator
Support safe care
for children
Health Information
Technology
vendors
American Health
Information Community
HIT Standards Panel
Support
workgroups,
build
consensus and
adoption
Certification
Commission for HIT
Systematized
Nomenclature
of Medicine
Vendor Pediatric
Consortia
Desired
Outcomes
Child health
practitioners,
clinicians
and hospitals
Enable pediatric
performance
measurement by
improving
interchange of
standardized
information
Reduce system
implementation
costs due to
duplication and
customization
Example: HIT Workflow
Pe DS SIG
AAP
PeDSSIG
HL7
CCHIT
EMR Position
Papers
Pediatric EHR
Functions
EHR-FM
Standard
EHR Vendor
Certification
Criteria
Alliance Support and Endorsement
Vendor Compliance &
Certification;
Provider
Adoption
Pe DS SIG
What We Look Like
Founded: 2003
Parent: Patient Care Technical Committee
Leadership: Andy Spooner, MD and David Classen, MD
Support: Alliance for Pediatric Quality provides Administrative Co Chair
and some financial support
Participation: Primarily CMIOs, physicians, medical informatics experts
and vendor representatives
Distribution: 100+ on email distribution list
Operations: Work group meetings, monthly calls, webcasts and project
meetings as needed
Recruitment: Presentations at national conferences, HIMSS PHIT SIG,
AAP, CHCA, NACHRI, vendors, etc.
Emphasis To-Date
Pe DS SIG
 Functional Standards




EHR-S FM includes critical child health functions
Child Health-FP registered with HL7
Contributing to PHR-S FM
Exploring derived profiles (e.g. neonatology)
 Messaging Standards
 Immunization Activity Diagrams and Story Boards part of
Care Provision DSTU
 Quality Reporting Document Architecture (QRDA) project
exploration
 Terminology Standards
 Exploring opportunities
Pe DS SIG
HL7 EHR System Functional Model
Example – Pediatric Impact
E.g. Function requested by
PeDSSIG (#1) is now a standard
Manage
Immunization
Administration
Statement: Capture and maintain discrete data concerning
immunizations given to a patient including date
administered, type, manufacturer, lot number, and any
allergic or adverse reactions. Facilitate the interaction with
an immunization registry to allow maintenance of a patient’s
immunization history.
1. The system SHALL provide the ability to recommend
required immunizations, and when they are due, during
an encounter based on widely accepted immunization
schedules.
Description: During an encounter, recommendations
based on accepted immunization schedules are presented
to the provider. Allergen and adverse reaction histories are
checked prior to giving the immunization. If an immunization
is administered, discrete data elements associated with the
immunization including date, type, manufacturer and lot
number are recorded. Any new adverse or allergic reactions
are noted. If required, a report is made to the public health
immunization registry.
3. The system SHALL perform checking for potential
adverse or allergic reactions for all immunizations when
they are about to be given.
Red text represents PeDSSIG edits
to the EHR-S FM as reflected in the
HL7 Child Health Functional Profile
for EHR systems
2. The system SHALL provide the ability to recommend
required immunizations based on patient risk factors.
4. The system SHALL provide the ability to capture
immunization administration details, including date, type,
lot number and manufacturer.
5. The system SHALL provide the ability to capture other
clinical data pertinent to the immunization administration
(e.g. vital signs, adverse reactions).
6. The system SHALL record as discrete data elements
data associated with any immunization.
7. The system SHOULD provide the ability to associate
standard codes with discrete data elements associated
with an immunization.
8. The system SHALL provide the ability to update the
immunization schedule.
DRAFT HL7 Pediatric Data Standards SIG Tactical Plan
Goal
2008
Objective
Tactics
 Build pediatric consensus on new
data standards
 Maintain broad representation and
participation in HL7 initiatives on
behalf of child health care
 Participate in relevant national HIT
data standards public comment
periods on behalf of child health care
 Bring Child Health Functional Profile for EHR systems through HL7 ballot
 Continue to work with EHR TC to include critical functions in the EHR-S
FM model; Participate in opportunities for public comment
 Explore and encourage development of derived profiles to the Child
Health-FP (e.g. neonatology)
 Participate in PHR FM project by providing pediatric input
 Explore collaborative opportunities with the HL7 Pharmacy SIG
 Participate in HL7 public health immunizations domain analysis model
project by providing pediatric input
 Test clinical-context template method for addressing terminology problems
in pediatrics and publish results
 Explore opportunities to collaborate on international level
 Support CCHIT Child Health Expert Panel work by coordinating responses
to public comment periods
 Support recommendations of the Quality Reporting Document Architecture
project; Work TBD
Influence
adoption of
pediatric
requirements
 Impact vendor awareness and
adoption of pediatric standards
 Impact provider awareness and
adoption of pediatric standards
 Improve public awareness of value
of pediatric data standards
Earn
commitment
from pediatric
stakeholders
 Influence vendor adoption of Child Health-FP; Help educate vendors about
the profile, and make ourselves available for questions, etc. as they work to
conform
 Invite vendors to participate in meetings/SIG activities
 Publish articles/updates in HL7 newsletters
 Coordinate closely with the Alliance for Pediatric Quality (AAP, ABP,
CHCA & NACHRI) as well as the HIMSS Pediatric Healthcare Informatics
Technology SIG and vendor-specific pediatric work groups
 Present at HL7 and other relevant industry meetings to spread awareness
of efforts and to recruit participants
 Explore opportunities to publicize successes to the general public
 Secure support and leadership
(financial and otherwise)
 Develop budget and secure financial support for PeDSSIG activities
 Receive endorsement for work from Alliance for Pediatric Quality (AAP,
ABP, CHCA & NACHRI)
Pe DS SIG
Improve data
standards for
child health care
Pe DS SIG
Questions?
David Classen, MD
dclassen@fcg.com
Andrew Spooner, MD
andrew.spooner@cchmc.org
Joy Kuhl
joy.kuhl@chca.com