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Michael Gibson, M.S., M.D. You may not sell, write, modify, redistribute or otherwise use the Content for any commercial purpose without my prior written permission. The Future of Medical Communications Copyleft by C. Michael Gibson, M.S., M.D. This material is free for anyone to copy, modify for their own purposes, and redistribute or use as they see fit, as long as the new version grants the same freedoms to others and acknowledges my original work. Copyleft by CM Gibson 1966 Stillwell Oklahoma Copyleft by CM Gibson The World is Flat: One of the Premises • Innovation increases as open access to information increases Copyleft by CM Gibson Old World vs New World: Organizations Old World New World Symbol: The silo Symbol: The Globe Organization: Vertical Organization: Horizontal “Command and Control” “Cocreation” “Collective genius” “Peering” “Online collectivism” The corner office Cubicles at Google Copyleft by CM Gibson Old World vs New World: Information Flow Old World New World Insular and Secretive Open Source Innovate from within Innovate from without Knowledge flowed only to those at the top Knowledge flows to and from all Medium: Paper Medium: Internet Copyright Copyleft Copyleft by CM Gibson Old World vs New World: Competition Old World New World Expensive Weapons of Mass Destruction Inexpensive Weapons of Mass Collaboration Copyleft by CM Gibson Old World vs New World: Collaboration Old World New World John is the brightest child in kindergarten John plays well with others in kindergarten Physician as a “individual player” Physician as a “team player” Promotion depends on first/last author publications Promotion depends upon more broadly conceived contributions and collaboration Publish or perish Collaborate or perish Copyleft by CM Gibson Old World vs New World: Internet Old World New World Internet 1.0 Internet 2.0 Website with one directional flow of information Participatory community with bidirectional flow of information Think YouTube; MySpace Copyleft by CM Gibson Old World vs New World: Media • The HIT • The BIG Star • The ROCK Star Copyleft by CM Gibson • The NICHE • The MICRO Star • The GARAGE Band Old World vs New World: Media • Record label • One artist sells many millions Copyleft by CM Gibson • iTunes • Tens of thousands of unknown artists sell many millions Old World vs New World: Media • Professional • Mainstream Copyleft by CM Gibson • Amateur • Underground Old World vs New World: Media • The blockbuster • Mass culture • Access limited to 6 TV networks, 4 local radio shows • Network news Copyleft by CM Gibson • • • • The NICHE The individual culture Access to unlimited content Online news Old World vs New World: Media • Broadcast one show to millions Copyleft by CM Gibson • Broadcast millions of shows to one Old World vs New World: The Truth Standard Old World New World The professor Consensus & guidelines Diagnosis: “In my experience …” Registry experience of many physicians Auscultates murmur ECHO Eminence based therapy: “In my experience …” Evidence based therapy: “In the GUSTO, TIMI experience …” Copyleft by CM Gibson Old World vs New World: Medical Information Old World New World Private Good Public Good Business Model: No Business Model: Author, publisher, journal personally profit by selling medical information to those who can and will pay for it via either purchase or subscription Medical information is now ubiquitous No entity should individually profit by selling medical information Copyrighted protection of journal or publisher Copyleft distribution to society Copyleft by CM Gibson Limitations to Current Methods of Disseminating Medical Information • Textbooks • Journals • Websites • Shouldn’t all three be brought together? Copyleft by CM Gibson Current Model: Textbooks • • • • • Paper format Outdated before it is printed Represents views of selected authors Broad community peer review lacking Text based: No video, no audio, noninteractive, one way flow of information Copyleft by CM Gibson The Textbook Business Model • Material is copyrighted: It is owned by the publisher, it cannot be broadly disseminated, it cannot be repurposed • Access limited to those who can afford textbook Copyleft by CM Gibson Retail Price of Cardiovascular Textbooks in US Dollars Braunwald's Heart Disease 8th Edition $157 - 190 Copyleft by CM Gibson Hurst's The Heart 12th Edition $170 - 225 Textbook of Cardiovascular Medicine, Topol 3rd Edition $217 - 229 Countries with Per Capita Income < 900 US Dollars Per Year Afghanistan India Rwanda Bangladesh Kenya São Tomé and Principe Benin Korea, Dem Rep. Senegal Burkina Faso Kyrgyz Republic Sierra Leone Burundi Lao PDR Solomon Islands Cambodia Liberia Somalia Central African Republic Madagascar Sudan Chad Malawi Tajikistan Comoros Mali Tanzania Congo, Dem. Rep Mauritania Timor-Leste Côte d'Ivoire Mongolia Togo Eritrea Mozambique Uganda Ethiopia Myanmar Uzbekistan Gambia, The Nepal Vietnam Ghana Niger Yemen, Rep. Guinea Nigeria Zambia Guinea-Bissau Pakistan Zimbabwe Haiti Papua New Guinea Copyleft by CM Gibson Based upon GNI ATLAS Method of the World Bank, www.worldbank.org General Practitioner and Specialist’s Income Country Population (million) GP's Monthly Salary (USD $) Specialist's Monthly Salary (USD $) 1300 7.1 35 50 3800 1128.2 637 1274 7500 8.5 130 155 7800 1323.6 133 - 160 170 - 230 12200 142.3 210 290 - 320 14400 38.2 580 750 43800 301.1 GDP per capita USD ($) Tajikistan India Azerbaijan China Russia Poland United States Copyleft by CM Gibson Fact Book 2008 The Future of Medical Publishing Copyleft by CM Gibson http://www.mc.vanderbilt.edu/reporter/index.html?ID=5994 What is Copyleft? • Copyleft is a legal principle which safeguards against information being controlled by any one person, and ensures that it remains freely accessible forever. • All of the information in a copyleft document is free for anyone to copy, modify for their own purposes, and redistribute or use as they see fit, as long as the new version grants the same freedoms to others and acknowledges the authors of the original article (a credit or backlink to the original article is sufficient for this). Copyleft by CM Gibson What is a Wiki? • A Wiki is an open source program that allows multiple authors to co-create a webpage. • The authors do not need to know how to program in HTML. Copyleft by CM Gibson Old World vs New World: Internet Old World New World Internet 1.0 Internet 2.0 Wisdom of the man Wisdom of the masses Future World Internet 3.0 Massive Wisdom Copyleft by CM Gibson MediaWiki: The Wiki Software • What if someone makes a mistake or vandalizes the site? – A Wiki is a database, and any page can be restored to an older version. • Can there be a discussion about the content? – Yes. Click on the Discussion tab and there is a forum. • How do you know when a change has been made to a page? – You can receive an email notifying you a change was made. Copyleft by CM Gibson Wiki’s May Be Less Biased • Because articles are written based upon consensus, a Wiki is less susceptible to retaining bias, a Wiki is very hard for any group to censor, and a Wiki may be more rapidly responsive to new information. Copyleft by CM Gibson Internet encyclopaedias go head to head • In order to test its reliability, Nature conducted a peer review of scientific entries on Wikipedia and the well-established Encyclopedia Britannica. • Reviewers were blinded to the source of information and were asked to check for errors in 50 articles matched for length. • Reviewers were asked to look for three types of inaccuracy: factual errors, critical omissions and misleading statements • "Only eight serious errors, such as misinterpretations of important concepts, were detected in the pairs of articles reviewed, four from each encyclopedia," reported Nature. Copyleft by CM Gibson Nature 438, 900-901; 2005 Wikipedia vs Encyclopedia Britannica http://en.wikipedia.org/wiki/Wikipedia:Errors_in_the_Encyclop%C3%A6dia_Britannica_that_have_been_corrected_in_Wikipedia Copyleft by CM Gibson You must pay nature to read the original article Copyleft by CM Gibson The World's First Medical Wiki: WikiDoc Created by C. Michael Gibson, M.S., M.D. in 2005 WikiDoc is the world's first medical wiki which is a living textbook of medicine that everyone can edit and contribute to. Uses same software as Wikipedia, but is confined to medical topics. Over a thousand authors are contributing at present. 501C3 Foundation Mission statement: “Healthcare is enriched when medical knowledge flows freely.” Copyleft by CM Gibson WikiDoc: Overview • Free, no required registration to view site • No pharmaceutical or device company support • World’s largest medical textbook • Video, audio can be inserted into medical textbook • Daily news and polling results • Living guidelines (polling and suggested edits to guidelines) • Social network • Thousands of free downloadable “copyleft” images • Multilingual Copyleft by CM Gibson WikiPedia vs WikiDoc • Complimentary • Bidirectional information flow • • • • • • WikiDoc is oriented more to medical professionals WikiDoc has medical news WikiDoc has expanded images and videos WikiDoc has expanded differential diagnoses WikiDoc has toolbar to search internet WikiDoc has toolbar on left to see what page most people looked at next • WikiDoc has a board review course • WikiDoc has editors Copyleft by CM Gibson WikiDoc Primary Data Published in Literature or WikiDoc’s Open Source Journal Of Medicine WikiDoc News (links to textbook chapters) WikiDoc Living Guidelines Polling related to published guidelines WikiDoc Textbook Chapters Revised Copyleft by CM Gibson WikiDoc Polls WikiDoc Discussion WikiDoc Content • • • • • Over 75,000 chapters of content 425,000 edits to the pages Over 1,275 registered authors Over 19,000 copyleft images About 25,000 to 75,000 pages viewed daily • Over 10 millions pageviews Copyleft by CM Gibson WikiDoc: 9th Largest English Language Wiki in the World 1. Wikipedia 2. Lyric Wiki 3. TV IV 4. BibleWiki 5. Archiplanet 6. Local.wikia 7. ArmchairGM 8. ValueWiki 9. WikiDoc Copyleft by CM Gibson (Encyclopedia Wiki) (Music Wiki) (TV Wiki) (Bible Wiki) (Architecture Wiki) (Local news Wiki) (Sports Wiki) (Investing Wiki) (Medical Wiki) WikiDoc: Reach Top 60 Countries That Use The Site Copyleft by CM Gibson WikiDoc: Medical Textbook Sources of Information: Chief residency notes (BI and BWH), CMG board review notes, National Library of Medicine for drugs, CDC for infectious disease and public health, Wikipedia, Open Source Journal of Medicine, Original Contributions Copyleft by CM Gibson WikiDoc: Example of a Page Copyleft by CM Gibson WikiDoc’s Search Toolbar Copyleft by CM Gibson WikiDoc: Social Network Copyleft by CM Gibson WikiDoc: News Copyleft by CM Gibson WikiDoc: Example of History Function Copyleft by CM Gibson WikiDoc: Comparing Versions of a Page Copyleft by CM Gibson WikiDoc: Expanded Differential Diagnosis WikiDoc: Images WikiDoc: Video WikiDoc: Pathology WikiDoc: Board Review • There will be the capacity to add board review questions on each page • Board review software will generate random questions WikiPatient Copyleft by CM Gibson WikiDoc: The Living Guidelines Amazon Like Functionality • Software that displays top pages viewed by others before coming to the present page • Software that displays top pages viewed by others after coming to the present page WikiDoc: Is it Achieving Consciousness? • WikiDoc looks like a webpage, but it is not • WikiDoc is really a SQL database, and the content is being displayed from this SQL database. • This SQL database is updated by bots that continually gather new information from publically accessible databases on the internet regarding proteins, genes etc. Copyleft by CM Gibson WikiDoc as a Research Tool: • WikiDoc now searches itself to find associations between symptoms, physical exam findings and disease states. Example of WikiDoc Searching Itself to Create a Full Differential Diagnosis of the Causes of Headache WikiDoc searches 64,000 chapters to find all pages with the word Headache in them WikiDoc identifies >2,000 chapters associated with Headache Physician reviews 2,000 chapters to ensure that only those Diseases truly associated with Headache are included in database (Excludes treatments of Headache, other symptoms associated with Headache etc.) Hundreds of diseases associated with Headache classified by organ system, and published in a table in WikiDoc WikiDoc continues to search for any new reference to Headache and adds this to the database Differential Diagnosis of Headache Differential Diagnosis of Headache (cont.) Differential Diagnosis of Headache (cont.) Differential Diagnosis of Headache (cont.) WikiDoc: Database of Differential Diagnoses Can Be Used for Artificial Intelligence Fever Nuchal Rigidity Headache Neutrophilia … Meningitis … … … … … … Meningitis … … … … … Meningitis … … … … Meningitis People who look up … Click next on the page … Nuchal Rigidity Meningitis Headache Meningitis How Many Hyperlinks Connect Headache to Other Diseases? 33 15 CV Onc Headache 5 23 ObGyne Toxin 53 Drugs 27 53 12 12 ENT Endo 3 5 GI Heme ID Neuro Can Artificial Intelligence Guess Meningitis? www.20q.net WikiDoc: Expert Algorithms Copyleft by CM Gibson WikiDoc: Open Source Journal of Medicine The OSJM “Front End” for submission of materials to be placed on Wiki Open source journal that can be cited by ISBN number Peer reviewed, reviews published for complete transparency, slides and video available, discussion of article available Similar to PLOS (Public library of Science) effort at UCSF No adds, no pharma or device support WikiDoc’s Business Model • There is no business model • WikiDoc accepts no financial support from • • • the pharmaceutical or device industry There are no advertisements A 501C3 non profit foundation has been created NPR model: Viewer supported, philanthropy, volunteer efforts Copyleft by CM Gibson We Must Take Back Our Credibility • Concerns regarding the relationship between industry and doctors has eroded the confidence of our patients • There must be a mechanism(s) whereby independent and unbiased education of physicians and patients occurs that is free of industry support Copyleft by CM Gibson Who Can Get Involved? • Anybody! You do not need to be a doctor – Students – Nurses – Research assistants – Physician assistants – Technicians – Administrators – Laypeople Copyleft by CM Gibson How Can A Student, Resident, or Fellow Get Credit? • If you click on the “Permanent Link” button, this will provide you with a permanent internet address for your contribution • You are listed when the main contributors button is clicked and the number of your edits are tallied there • Should you contribute sufficiently, you can be designated an Assistant Editor- in-Chief of a topic Copyleft by CM Gibson WikiDoc: Quantitating Main Contributors To A Page What Can You Do To Help? • • • • • • First, register, then you can: Clean pages, add templates, fix links Help with the differential diagnosis project Help build the Clinical Trials Wiki Write a news article Become an editor of a textbook page: add to it, watch over it • Add a copyleft image Copyleft by CM Gibson WikiDoc Scholars Program • • • • • • • • Improving functionality (cleaning pages and fixing links) Building the Clinical Trials Wiki Building the differential diagnosis database Teaching others how to edit pages Creating content in other languages Adding copyleft pictures and images Adding questions to the board review course Writing news stories and integrating news content into the textbook • Improving WikiPatient pages Copyleft by CM Gibson