“I Want to Stay Home.....” Aging in Place with Dementia Presented By: Cindy Campbell, OT Reg (Mb) Objectives To understand what Occupational Therapy is and the role of an occupational therapist To be aware of ways to create a home environment that promotes safety AND independence To provide you with a strategy to approach problems you may face when providing care Objectives To provide you with tips to optimize independence with daily activities To provide you with practical safety tips for the home Statistics • Less than 10% of older adults reside in a personal care home • Currently, almost 20,000 Manitobans have Alzheimer’s disease or another dementia • In Canada ¼ of all family caregivers are seniors themselves, 1/3 of them are older than 75 • In Manitoba today caregivers spend over 9 million hours of informal unpaid care (Alzheimer Society of Canada,2014) . What is Occupational Therapy “Occupational therapy builds the skills for the job of living and solves problems that interfere with people’s ability to do activities or occupations that are important to them. These problems may be a result of injury, disease, social disadvantage, or the environment” (caot.ca, 2003-2014) ‘Aging in Place’ "the ability to live in one's own home and community safely, independently, and comfortably, regardless of age, income, or ability level.”(CDC, 2013) ‘Aging in Place’ “Aging in Place is a matter of preserving the ability for Manitobans from every culture to remain safely in their own community, to enjoy the familiar social, cultural and spiritual interactions that enrich their lives even though their health may be compromised.”(Government of Manitoba, n.d.) Types of ‘Homes’ Where do seniors live? • Single family home • Apartment • Seniors Housing or 55+ • Assisted Living • Supportive Housing The Benefits of Home Home is…… • • • • • Familiar Comforting Safe Private A place of memories A Healthy Home…. • • • • • • Is familiar and orientating Enables independence and is engaging Encourages confidence and self-esteem Reinforces a sense of identity Provides a comfortable environment Promotes safety for the person with dementia and the caregiver (NSW, 2011) The Challenge...... To provide a safe environment for an individual with Alzheimer’s disease or a related dementia while at the same time enabling the person to maintain their independence and quality of life. The Goal...... To find a balance between protecting the individual from risk while enabling independence and maintaining as normal a life as possible. Finding a Balance…….. Identify safety concerns Consider how we can modify the environment Minimize Risk and Optimize Independence Identifying Safety Concerns Identify both current and potential safety concerns Develop a plan for now and for the future Implement as appropriate Modify the Environment.... By changing the environment you are able to minimize both safety concerns and stressors that lead to responsive behaviors that place the individual and others at risk Tips for Modifying the Environment • Involve the person with dementia • Modifications that meet the preferences and need of the person • Modifications that respond to the specific problem at hand Tips for Modifying the Environment • Change as little of the environment as possible • Build on the individual’s strengths • Try simple solutions first • Recycle ideas and use trial and error (NSW, 2011) ( Minimize Risk & Maximize Independence A safe environment can be a less restrictive environment where the person with dementia can experience both increased security and independence Steps to Problem Solving Step 1: Identify the Problem What is the problem or need? When does it occur? Who is it a problem for? (NSW, 2011) Step 2: Potential Causes What are the potential causes • Symptom of dementia, progression • A change such as hearing loss, vision, change in schedule or medication • A physical need – hungry, cold, hot, tired, pain • A change in ability to complete a task • A change in the environment (NSW, 2011) Step 3: Finding a Solution Take your time Start with the simplest solution Ask for help Keep in mind the goal of independence (NSW, 2011) Living Alone with Dementia Consider…….. • Quality of life • The amount of support available • Level of stimulation and isolation • Response to an emergency i.e. 911 • Acceptable level of risk to the person AND to others (Alzheimer Society of Canada, 2014) Living Alone with Dementia Available Supports……. • Family, friends and neighbors • Alzheimer’s Society • Home Care – Public or Private • Emergency Response Systems i.e. Lifeline • Day Programs • Meal Delivery • ERIK Kit Tips to Safely Optimize Independence Memory Aids • Reminder notes • A calendar identifying important dates and appointments • A notebook or diary • Written daily schedule outlining the activities for the day • A designated basket for important items Memory Aids • Use photographs to reinforce the individuals sense of identify and to remember family members • Use photographs to label items if the person is unable to read • A visitor log book Communication • Post important phone numbers by the phone • A press button phone with large numbers • Program important phone numbers into the phone so the person just has to press a single button • Note pads and a pen by each phone to record messages Dressing • Sort out closets and dresser drawers to make it easy to choose what to wear. • Arrange complete outfits on a hanger • Put away items not appropriate for the season • Label drawers and items in the bedroom and bathroom to make items easier to find. Dressing • Break the task of dressing into smaller tasks and remind the person of each step or use a written or visual diagram • Modify or choose alternative types of clothing such as replacing zippers with velcro or pants with elastic waist band. Personal Care • Ensure that the necessary equipment is in place for safe bathing i.e. bath seat, grab bars, non slip mat, hand held shower • Label taps as hot/cold • Use electric devices such as an electric shavers • Use bright colored items to attract attention and make items easier to find such as a brightly colored toothbrush • Provide written or visual ‘how to’ charts Toileting • Put a sign on the door with words, symbols or a picture indicating where the toilet is • Leave a night light on in the washroom and in the hallway leading to the bathroom • Put up a sign reminding the person to use toilet paper, flush the toilet and wash their hands • Install equipment such as grab bars and a raised toilet seat Toileting • Use a colored toilet seat for contrast making the toilet easier to find • Provide easy to remove clothing for easier access • Commode for use in the bedroom at night time • Establish a toilet routine to reduce accidents • Put tape across the bathroom door latch, to prevent the person from locking him/herself in • Use of incontinent products i.e. Tena pads Meal Preparation • Label cupboards with words or pictures that describe what is inside, for example, dishes, knives and forks. • Write out your favorite recipes – step by step • Write out directions for even basic items i.e. these are the steps to – use the toaster, make coffee, boil an egg Meal Preparation • Use electrical appliances that shut off on their own • Install a smoke detector and check the batteries regularly • Leave written reminders like "turn off the stove" or "unplug the iron." Place them where they are visible Meal Preparation • Consider meal delivery options • Place regularly used items on the counter if using the cupboards is challenging • Paint red and green lines on stove knob to indicate on and off Meal Times • Provide visual cues for eating • Eat with the person or arrange for someone else to attend at meal times • Specialized cutlery, non-spill cups, a dish with a lip on the edge • Provide finger food • High nutrition drinks i.e. ensure or boost Medications • Arrange medications in a weekly dosette or pill container • Have only a small amount of medications in the home at one time • Bubble or blister pack medications • Automated medication dispenser Management of Finances • Talk to your bank manager about in home banking • Arrange direct deposit and automatic withdrawal for bill payments • In preparation for the future assign a POA Community Mobility • Leave a set of house keys with a trusted neighbor • Write telephone numbers in large print and post by the phone. Include people to contact in an emergency • Keep a list of emergency contact and number information somewhere at all times • Inform neighbors so that they can watch for unusual happenings Community Mobility • Leave a note by the front door reminding to take important items such as keys and wallet and to lock the door • Write your address down and post by the phone • Keep a map with you that shows where your home is Home Safety Home Safety By Home Environment By Behavior - Rummaging and Hiding items - Impairment of the Senses - Illusions, Delusions and Hallucinations - Losing One’s Way Home Safety - Kitchen • • • • Remove knob covers from the stove Automatic shut off features i.e. Stove Guard Disconnect the stove Place a sign on the microwave reminding the person to not put metal items etc. in the microwave • Remove the microwave if it is not safe • Install a smoke alarm Home Safety - Kitchen • Keep limited amounts of food readily available • Empty garbage cans regularly and place a latch on the cupboard with the garbage in it • Remove sink stoppers to prevent a flood should the water be left on Home Safety - Laundry • Put a velcro latch across the washing machine and dryer openings to discourage placement of items • Turn off the machine at the wall when not using • Make sure laundry detergent and bleach are in a safe location Home Safety - Bedroom • Appropriate lighting, especially for at night • Remove scatter rugs • Make sure the bed is at the appropriate height to make getting in and out easier • Equipment such as a bedrail or hospital bed • Place a soft mat on the floor if concerned about falls out of bed • A clear pathway to and from the bed Home Safety – Living Area • Cover sharp edges with padding or protectors to prevent injury in the event of a fall • Ensure a clear walking path • Keep the arrangement of the furniture consistent • Remove scatter rugs and other obstacles • Provide furniture that is firm and a good seat height or use an electric recliner chair • An electric stair lift is access to the 2nd level is necessary Home Safety - Outdoors • Install ramps and railings as needed • Emphasize door frames by painting them a bright contrasting color • Lock away unsafe tools and appliances • Create a safe environment for familiar activities such as gardening or ‘tinkering’ in a work shop • Place a hidden lock mechanism on gates Rummaging and Hiding Items Lock up all toxic and dangerous materials Simplify the environment, remove clutter and valuable items Close access to unused rooms Rummaging and Hiding Items Keep trash cans hidden and out of sight Place safety catches on cabinets and drawers. Notch the bottom edges of the drawer so a lifting and pulling action are required to open the drawer Provide a safe box, junk drawer or a treasure chest for the person to keep items Sensory Changes ● Vision ● Smell/Taste ● Hearing ● Touch Safety Tips for Changes to Vision Mark the edges of steps and doorways with brightly colored strips Place brightly colored signs or simple pictures on important rooms Create color contrast between floors and walls to help a person see depth Safety Tips for Changes to Smell Install good quality smoke detectors and check them frequently to ensure batteries are working Keep only small quantities of food in the fridge and check the fridge regularly for spoiled foods Safety Tips for Loss of Sensation or Touch ● Adjust water heaters to 120 degrees ● Place signs on appliances that produce heat: “STOP VERY HOT” ● Use a thermometer to check water temperature, for example water for bathing Safety Tips for Impairment of the Senses (Taste)…… ● ● ● ● Keep spices and condiments such as salt and sugar away from easy access Remove or lock up medications Consider childproof latches on the refrigerator and cupboards Keep dangerous substances locked away Safety Tips for Hearing ● ● ● Avoid excessive noise in the home such as having the radio and TV on at the same time Avoid large gatherings of people in the home Check hearing aid batteries Safety Tips for Hallucinations, Illusions and Delusions…… ● ● ● ● ● ● Provide adequate lighting to eliminate shadows Reduce glare by using soft light Remove or cover up mirrors Avoid television shows that are violent Vary the home environment as little as possible Do not confront the person who becomes reactive Pacing in the Home • Provide the individual there own work area with activities that they enjoy doing • Use signs as cues to discourage the person from entering the room - a stop sign - bright colored fabric cues placed across door way - yellow safety tape Safety Tips for Losing One’s Way ● ● ● ● ● Support the emotional need behind the desire Provide stimulation and exercise throughout the day Provide a safe area for pacing Put away outdoor clothing that may cue a desire to go outside Register with the ‘Safely Home’ program Safety Tips for Losing One’s Way ● Secure the doors in a way that does not lead to a sense of being locked in or create frustration - Place door locks out of the line of vision i.e. slide bars or deadbolts at the top or bottom (For safety reasons if using locks the caregiver must be present in the home to provide supervision and be able to access and manage these locks easily) - Camouflage the whole doorway with fabric, painting or a mural - Use child proof doorknob covers - Simple alarm system such as bells on the door, a welcome mat that sings a tune Safety Tips for Losing One’s Way • Install an alarm on doors and windows • Keep a current picture of the person for identification Resources Available to Assist in Home Safety Victoria Lifeline Alzheimer Society of Manitoba Your Regional Health Authority Home Care Adult Day Program Community Therapy Services Equipment for Home Safety Questions References Alzheimer Society Canada (2014) Living with dementia. Retrieved from http://www.alzheimer.ca/en/Living-with-dementia/Stayingconnected/Living-alone Canadian Association of Occupational Therapists (2003-2014). What is occupational therapy? Retrieved from http://www.caot.ca/default.asp?pageid=3024 Canadian Association of Occupational Therapists & Alzheimer Society of Canada. (1998). Living at home with Alzheimer's disease and related dementias: A manual of resources, references and information. Ottawa, ON: CAOT Publications ACE. Retrieved from http://www.caot.ca/default.asp?pageid=3700 References Centers for Disease Control and Prevention (2014). Healthy Places Terminology. Retrieved from http://www.cdc.gov/healthyplaces/terminology.htm. Government of Manitoba (n.d.). Aging in place. Retrieved from http://www.gov.mb.ca/health/aginginplace/ New South Wales Government (2011). At home with dementia: A manual for people with dementia and their carers. Retrieved from http://www.adhc.nsw.gov.au/individuals/caring_for_someone/caring_for_a_ person_with_dementia Case Study 1 Robert is the primary caregiver for his 75 year old mother Grace. Grace lives alone in a single family home and over the last year Robert has noted a steady decline in her ability to manage. Robert is now assisting with grocery shopping, transportation to appointments and home maintenance. Over the last few months to his mother’s home he has noted a number of significant changes……. Case Study 1 • She does not appear to be eating the food from the fridge that he provides but rather is eating dry goods such as chips and baked goods. • She is no longer doing her laundry and often remains in the same clothing for days and require reminding to change • She does not appear to be taking her medications consistently • She often forgets her purse when leaving the house and is locked out upon her return Case Study 2 • Edna is the caregiver for her husband Norman. Norman has a diagnosis of dementia and is having difficulty mobilizing in the home. He is afraid to walk through doorways, especially where there is a flooring change, is tripping when walking up the stairs and becomes upset when he sees his reflection in the mirror……