PROGRESS REPORT
CANADIAN DEMENTIA KNOWLEDGE TRANSLATION NETWORK
FUNDING PERIOD OF REPORT: APRIL 1, 2011 TO MARCH 31, 2012
PRINCIPAL INVESTIGATOR: KENNETH ROCKWOOD
CONTACT INFORMATION: KENNETH.ROCKWOOD@DAL.CA
1421- 5955 VETERANS’ MEMORIAL LANE
HALIFAX, NOVA SCOTIA
B3H 2E1
(902) 473-8631
DATE OF REPORT: MAY 11, 2012
Table of Contents
SECTION 1: MANAGEMENT ............................................................................................................ 1
1.1.
Governance/organizational structure .............................................................................. 1
1.2.
Evidence of Regional, Provincial and International Linkages to CDKTN .......................... 2
1.3.
Website and Key Communication Media......................................................................... 2
SECTION 2: TRAINING AND EDUCATION ....................................................................................... 5
2.1.
Building Capacity in the AD&D Research Community ..................................................... 5
2.2.
Building Capacity in the Knowledge User Community..................................................... 6
2.3.
Postdoctoral Training and Mentoring Activities .............................................................. 7
2.4.
Research Projects and Activities Addressing Ethnic, Gender and Sex ............................. 7
2.5.
Research Projects and Activities Addressing Ethics ......................................................... 7
SECTION 3: KNOWLEDGE TRANSLATION OUTCOMES .................................................................. 8
3.1.
Applications of research knowledge to KT&E .................................................................. 8
3.2.
KT activities to link Researchers, trainees and knowledge users .................................... 9
SECTION 4: RESEARCH .................................................................................................................. 10
4.1.
Research and Projects Supported by Grant Funds ........................................................ 10
SECTION 5: PARTNERSHIPS .......................................................................................................... 12
SECTION 6: COMMENTS ............................................................................................................... 14
Appendix
1a GOVERNANCE/ORGANIZATIONAL STRUCTURE .................................................................................................... i
1b Membership of CDKTN Management Committee ............................................................................................... ii
1c CDKTN National Advisory Board ......................................................................................................................... iii
1d Canadian Dementia Resource and Knowledge Exchange (CDRAKE) Steering Committee ................................. iv
1e CDKTN Network Personnel: ................................................................................................................................. v
1f CDKTN: A Network Integrated Effort and Focus.................................................................................................. vi
1g Evaluation-Based Strategic Planning for CDKTN .............................................................................................. viii
1h Google Analytics www.lifeandminds.ca ........................................................................................................... xiii
1i National E-Newsletter ....................................................................................................................................... xvi
1j Weekly Media Monitoring Reports .................................................................................................................. xvii
1k Membership of Canadian Dementia Knowledge Translation Network .......................................................... xviii
1l Website Analytics for www.dementiaknowledgebroker.ca ........................................................................... xxviii
1m CDKTN development pictured in a timeline. ...................................................................................................xxix
1n CDKTN posters ................................................................................................................................................. xxx
1o CDRAKE Online Events Collateral.....................................................................................................................xxxi
2a Building Capacity in the AD&D Research Community .................................................................................... xxxv
2b Knowledge User – Webinars......................................................................................................................... xxxvii
2c Research Projects Building Capacity among Care Givers ............................................................................... xxxix
2d Knowledge User – Media, Articles and Interviews ............................................................................................. xl
2e Knowledge User – Projects .............................................................................................................................. xliii
2f Knowledge User – Conference Events .............................................................................................................. xlvi
2g Knowledge User – Posters and Additional Presentations .............................................................................. xlviii
2h Visiting Scholars and Research Conducted ...................................................................................................... xlix
2i Visiting Scholars Program ...................................................................................................................................... l
4a CDKTN Knowledge Translation Training Grant Program ..................................................................................... li
5a Partnership Projects and Outcomes .................................................................................................................. liv
6a Review of CIHR 35725 Grant Deliverables ~ Status .............................................. Error! Bookmark not defined.
SECTION 1: MANAGEMENT
1.1. Governance/organizational structure
Established on March 31, 2008, the Canadian Dementia Knowledge Translation Network (CDKTN) was
created to respond to challenges experienced by both paid and unpaid care partners of individuals with
dementia, including timely access to research-based evidence, best practices in dementia care and
services and access to the appropriate resources and dementia-related supports that meet their needs.
Responding to this need, CDKTN has been organized in three strategic themes: 1) Education and Training
in Knowledge Translation and Exchange, 2) Canadian Dementia Resource and Knowledge Exchange, and
3) Patient and Care Partner Centred Knowledge Translation. Appendix 1a provides a chart of Network
organizational structure. The National Network is managed by an eleven member Management
Committee which oversees daily operations through conference calls/web-based meetings and face-toface meetings each year (Appendix 1b). In total, four Management Committee meetings were conducted
by teleconference between April 1, 2011 and March 31, 2012. Advising the Management Committee is a
14 member National Advisory Board (NAB) (Appendix 1c). No NAB meetings were held between April 1,
2011 and March 31, 2012. Daily operations of CDKTN involving network personnel occurred through
operational meetings facilitated by the CDKTN project office that allowed for planning and
implementation of network activities, e.g. regional and national workshops and conferences, building
network recognition through web initiatives and videos, exploring opportunities for new funding and
budget reviews. Virtual meetings occurred during this reporting period in connection with events,
projects and conference involvement. Additionally, CDKTN’s Theme 2 Canadian Dementia Resource and
Knowledge Exchange (CDRAKE) continued to operate the National CDRAKE Steering Committee during
this year (Appendix 1d). Membership included representatives from various constituents critical to
knowledge exchange, such as policy makers, researchers, educators, providers and representatives from
consumer organizations. Three meetings were held during this reporting period.
Personnel assigned to the operations of each Theme and Node are referenced in Appendix 1e. In total,
the Network employs four full-time and eight part-time personnel. Each research theme lead has a
budget and a full-time network assistant dedicated to their project deliverables focused on KT activities
and collaborations. The two provincial nodes both have a budget and a part-time network assistant to
help them foster new opportunities and partnerships for KT, including workshops within and among the
different regions in Canada.
CDKTN operates and performs as an integrated Network effort to provide training for researchers,
broker resources and translate research work into practice for families, patients and care partners. A
description of the focus for each of these Themes is available under Appendix 1f.
CDKTN is evaluated annually with the latest comprehensive scan completed in February 2012. The
evaluation examines structure and governance, development and implementation, as well as activities
and utilization. The most recent CDKTN evaluation has generated information that is being used to guide
the strategic planning of the network. Strategic planning will target two key areas: 1) Network processes,
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operations and sustainability; and 2) Achievement of anticipated network outcomes. A Summary of the
2012 evaluation is available in Appendix 1g.
1.2. Evidence of Regional, Provincial and International Linkages to CDKTN
Evidence of national linkage of CDKTN is provided in the MC, NAB, and CDRAKE committee members list,
referenced earlier, and under section 5: Partnerships with details of each relationship. Theme
partnership efforts are supplemented with provincial node partnerships. At the provincial level, the
nodes encourage knowledge sharing and fostering network connections among groups that may
otherwise been excluded. CDKTN has a national scope and resources.
1.3. Website and Key Communication Media
CDKTN currently has three websites; one for research members’ intranet which was launched at the
proposal phase (http://intranet.cdktn.ca), a public website (www.lifeandminds.ca), which was launched
in June 2009 and a knowledge bank website information brokering tool, Dementia Knowledge Broker
(www.dementiaknowledgebroker.ca), launched January 2011. The link to www.lifeandminds.ca can also
be accessed from www.neuroethicscanada.ca, the home page for the Theme 1 at UBC’s National Core
for Neuroethics.
CDKTN’s website, www.lifeanminds.ca significantly increased its traffic flow in 2012. The majority of
traffic derived from three sources; direct at 43.6%, referring sites at 36.8%, followed by search engines at
19.36 %. In May 2011, Twitter and Flickr accounts were established. As of March 31, 2012, there were a
total of 602 tweets, we are following 1,620 accounts and have 575 followers. The Flickr account has 9
galleries, representing conference and media events. CDKTN uses Google Analytics to report and analyze
traffic to the site (Appendix 1h). From 2011-2012, the total visits to www.lifeandminds.ca was 6, 881.
CDKTN National Network communication efforts evolved over the last year to include adding a media
section to the website to host videos showcasing KT research and activities. The media section also hosts
presentations and other media items to inform visitors, gather feedback and direct future KT & E efforts.
The Network website also features a quarterly online newsletter (Appendix 1i), continuing to develop
the communication services of CDKTN and allows members to access information. The newsletter
features the latest news on dementia, research, social media activities, resources, events and
conferences. Supporting a national perspective on news and activities, CDKTN scans the media
environment weekly and reports on news in a Media Monitoring Report (Appendix 1j) to all members
and partners as well as links the report to the research members’ intranet and www.lifeandminds.ca.
CDKTN Research Members’ Intranet: http://intranet.cdktn.ca
Memberships are continuously gathered for CDKTN members’ intranet at http://intranet.cdktn.ca. This
web-based portal is available to all network members to facilitate communication, sharing and
collaboration. CDKTN members are assigned login information and an online profile is created for the
user. A welcome letter is sent out to new members to inform them of the benefits of membership and
how they can connect to various resources such as news, event announcements and messages. The
intranet enables research members to collaborate with other researchers, educators, policy makers and
care partners in dementia care. At the time of the CIHR proposal, there were 99 registered research
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network members; by March 2010 membership had more than doubled to 212 and by October 31, 2011
had more than doubled again to 587 members. As of March 31, 2012, the Research Members’ Intranet
consists of 774 members from 333 separate organizations (plus a further 107 ‘other’ organizations)
across 31 countries. Countries contributing to the CDKTN Research Members’ database include
Argentina, Australia, Brazil, Canada, China, Denmark, Egypt, Finland, Ghana, Guatemala, India, Ireland,
Israel, Italy, Jamaica, Japan, Netherlands, Nigeria, Peru, Portugal, Puerto Rico, Saudi Arabia, Spain,
Sweden, Switzerland, Taiwan, Thailand, Trinidad, United Kingdom and the United States. (Other
organizations consist of non-research associations such as life insurance, consulting, service providers,
etc.). A full list of CDKTN Network members is listed in Appendix 1k.
CDRAKE www.dementiaknowledgebroker.ca
The “Dementia Knowledge Broker” or the “DKB” was established in January 2011 as a custom knowledge
exchange platform to facilitate knowledge flow and networking in the dementia sector. With an
emphasis on dialogue and exchange, the Dementia Knowledge Broker (DKB) is structured to empower
people to find and share knowledge and resources, engage in conversation with one another, and to
maximize the opportunity for collaboration and co-creation between people, groups and organizations
that share a common vision: to help people affected by Alzheimer’s disease and related dementias.
The focus of 2011-2012 has been on nurturing this integrated platform as well as establishing our online
events/recordings. The Dementia Knowledge Broker has enabled exchange across the dementia sector
including the delivery of Online Events, Q&A Forum, Resource Exchange, Blog, Document Collaboration
and more. This platform complements the national network website, www.lifeandminds.ca, and the
Alzheimer Knowledge Exchange Resource Centre (www.akeresourcecentre.org). Between the platform’s
launch in January 2011 up to March 31, 2012, the DKB received 28,079 visits, 91,802 page views, 4,441
downloads, 8,768 clicked links (outgoing), 24 blog articles and 560 twitter followers (Appendix 1l).
Print and Collateral Materials
CDKTN continued to develop conference materials and publications during 2011-2012 based on
recommendations from members and feedback during prior events. A timeline of CDKTN’s growth
featuring key mile stone activities was developed and presented during the 2012 CCD conference poster
presentation (Appendix 1m). CDKTN also updated theme posters which debuted at ADI 2012 (Appendix
1n).
The Knowledge Exchange theme built and launched an integrated online knowledge exchange platform
(www.dementiaknowledgebroker.ca). Community engagement activities were anchored by this platform
and in order to engage the community with this new tool, monthly e-News (The CDRAKE Pulse)
highlighted upcoming online events, discussions in the Q&A, new blog posts and documents shared.
Examples of the communication materials are referenced in Appendix 1o. Additional promotional efforts
were achieved through targeted invitations for monthly online events, which connected the community
to resources made available by the presenters. In July 2011, the online event offering grew to include
event recordings, which are now archived for the community to playback and share with friends, family,
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and colleagues in the past events section of the DKB: http://www.dementiaknowledgebroker.ca/pastevents.
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SECTION 2: TRAINING AND EDUCATION
Throughout 2011-12, CDKTN built capacity by educating the research community and knowledge user
community through 5 training events and webinars, developing a dementia grant writing curriculum
module, and hosted 4 visiting researchers and one post-doctoral fellow. The provincial nodes promoted
CDKTN thematic activity to researchers and knowledge users at the community level. These collective
efforts are referenced in Appendix 2a.
2.1. Building Capacity in the AD&D Research Community
CDKTN has and continues to develop innovative educational programming to support the diverse and
unique learning needs of the dementia research community. In 2011-12, three live, interactive
workshops were delivered in Vancouver by Theme 1. A total of 56 registrants signed up for these
workshops. To expand the geographical reach of the educational activities, a webinar titled: ‘Dementia
Research and Care in Social Media: Creating New KT Opportunities’ was held in March 2012. The
webinar objectives were to examine the importance of social media and to gain insight into how social
media can be used as a tool for relaying messages about dementia research and care. A total of 57
participants from across 8 provinces attended the webinar; 28 (response rate 49%) completed the
webinar evaluation. Feedback revealed three quarters of the respondents indicated they would use
information from this webinar in their future work, and more than two-thirds said they learned from
attending the session. In light of this positive feedback and with the majority of respondents (93%)
indicating they would attend a future CDKTN webinar, further webinars are being planned for 2012,
starting with a webinar on conducting effective media relations in June of 2012.
Capacity in the research community was built through the delivery of educational and training activities
including the Post-Doctoral Fellowship and the Visiting Scholars Program. For example, the KT for
Dementia Researchers: Grant Writing Strategies workshop provided tools and shares expert insights as
to how KT can be successfully incorporated into dementia grant proposals. Participants indicated that
they have gained a greater understanding of dementia KT concepts and how to write KT in their
dementia grant applications (42% and 67% respective increase in participant self-perceived knowledge).
The vast majority (83%) would also use information from the workshop in their future dementia grant
applications. The evaluation data will be used to refine and further inform the 2012 reiteration of this
workshop.
CDKTN Theme 1 continues to standardize curricula for a new brand of dementia KT based on workshop
evaluations and the results of literature reviews, an environmental scan and interviews with dementia
experts. Curriculum on dementia KT and grant writing strategies have been developed and
development of an online dementia KT program is currently underway.
The Quebec Provincial Node built capacity in the research community through the funding of PhD
student Genevieve Arsenault-Lapierre to research how to communicate basic science results to the
general public. She is now pursuing further post-doctoral research on aging, stress and cognition at the
University of Calgary.
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CDKTN continues to build capacity in the researcher community through grant funding for projects that
support and include knowledge translation activities. These are referred to in greater detail under
Section 4: Research Projects.
2.2. Building Capacity in the Knowledge User Community
CDKTN has been involved in a number of workshop and conference presentations aimed at care
providers, researchers and family caregivers of persons with dementia. These included:




Beattie, B.L., Brief, E., Butler, R., Mackie, J., Illes, J. Whose mutation is it? Alzheimer’s Association
International Conference on Alzheimer’s Disease, 2011, Paris, France.
Beattie, B.L., J. Robillard, J. & P. McKnight. Becoming media savvy: creating traction for dementia
research and care. 9th Annual BC Geriatric Services Conference, 2011, Vancouver.
Brief, E., Beattie, B.L., Butler, R., Illes, J. Genetic prediction of AD in indigenous communities:
Intercultural ethical implications. Alzheimer’s Disease International Conference, 2011, Toronto.
Peters, K.R., Beattie, B.L., Feldman, H.H., Illes. J. Clinical trials in early-onset familial Alzheimer Disease:
An ethics analysis. 6th Canadian Conference on Dementia, 2011, Montreal.
Additional presentations and workshops directed at researchers and students included:



Cook, Cheryl – informal discussions with students: Summer program in Aging (SPA), hosted by Quebec
network for research on aging with the Institute of Aging/CIHR. SPA is a summer school for 50 selected
PhD and postdoctoral students, coming from the various provinces of Canada.
Giles, C: Lecture - Quebec Research Days ~ “Conducting KT for different research themes and projects”
provided a vision of the steps and difficulties to generate meaningful KT information. The lecture was
presented to students and researchers of the Quebec Network for research on aging.
CDRAKE presented at the Canadian Association of Gerontology 40th Annual Scientific and Educational
Meeting & Pan Am Congress, in October 2011 in Ottawa Ontario on National Change: Learning from local
and provincial experiences related to behavioural support systems (Harris M, Clark S, Lusk E, Le Clair K).
The audience included approximately 20 researchers, policy makers and care providers.
CDRAKE online events bring together knowledge producers and users across the dementia community.
From April 1st 2011- March 31st 2012, CDRAKE hosted 27 webinars reaching 5,300 live participants and
accessed 1,865 times post event for recording playbacks (Appendix 2b).
Capacity is also being built in the caregiver community through research projects which investigated
influences to patient symptom changes to better inform care partners and improving resources to
inform and advise about driving and dementia. A description of projects aimed at building caregiver
awareness and capacity are summarized in Appendix 2c.
Theme 3 Patient and Care Partner Centred Knowledge Translation has increased capacity amongst
knowledge users through 5 media articles posted to www.lifeandminds.ca; social media activities
include 602 tweets to @LifeandMinds; 9 gallery postings to Flickr; 4 videos posted to YouTube; 25
website articles (promoting exercise, events, research); 42 Media Monitoring Reports (sharing news
from across the country as it relates to Alzheimer’s and Dementia); 11 interviews from leading
Geriatricians (about programs, resources etc.); 8 current patient and caregiver projects (towards efforts
such as dementia awareness, fitness and frailty and reviewing the usefulness of KT tools developed); 6
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pending patient and caregiver projects (to provide access to resources, guides to Alzheimer symptoms
from the perspective of those living with the disease and access to what’s going on in research); and six
presentations, 16 booth and resources exhibits and one poster presentation. The details of each activity
are available under Appendix 2d-f. Furthermore, members of the Management Committee have
contributed to each theme’s mandate. For example, a further five presentations and five posters have
expanded knowledge on subjects such as the needs of First Nations Communities and knowledge
exchange in rural networks, etc. A list of these additional efforts is available under Appendix 2g.
2.3. Postdoctoral Training and Mentoring Activities
CDKTN recognizes and supports postdoctoral training as well as mentoring of students, researchers and
care partners. During the last year, two visiting scholars were supported by CDKTN. In an effort to
stimulate academic environments and provide support for researchers to learn and use KT strategies,
Theme 1 hosts a competitive Visiting Scholars Program (Appendix 2h) that provides opportunities for
trainees to explore, practice and master KT in action. Four applicants have completed the program to
date. A description of the Visiting Scholar Program is available in Appendix 2i.
2.4. Research Projects and Activities Addressing Ethnic, Gender and Sex

Community-based research with Aboriginal communities

Partnering with Aboriginal communities to develop practical and culturally appropriate genetic
testing resources for early-onset familial Alzheimer Disease.

Conducting collaborative research with Aboriginal communities to ensure that genetic testing
research conducted at the academic and clinical levels and the products produced as a result,
are evidence-based, consider the ethical, social, cultural and economic implications and meet
the needs of the affected communities.

Pending: Forbes, D., Abram, J., Blake, C., Finkelstein, S., Gibson, M., Morgan, D.G., Markle-Reid,
M., & Thiessen, E. (2012). Dementia Care Knowledge Needs of a First Nation Community: A
Success Story. Oral presentation prepared for Alzheimer's Association International Conference,
July 14-19, 2012, Vancouver, BC.
2.5. Research Projects and Activities Addressing Ethics

Ethics is a bridging theme and thread throughout Theme 1 research and training work.

Research Project with Trent University: Progress in Neurobiology ~ issues related to ethical
problems in neurodegenerative disease recognition and treatment including strategies to bridge
knowledge gaps and research directions.
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SECTION 3: KNOWLEDGE TRANSLATION OUTCOMES
3.1. Applications of research knowledge to KT&E
CDKTN has applied research knowledge through six national projects emerging from applied research
knowledge. Examples of applications of research knowledge to address the health services gaps
between research and practice in AD&D diagnosis, treatment and care include:
 Collaborating with Dr. Tiffany Chow’s, When Dementia is in the House which launched on November
15, 2011 and supports the needs of children in a home with a dementia patient, and to create
multimedia educational materials to address these needs
(http://www.lifeandminds.ca/whendementiaisinthehouse/).
 Collaborating with Drs. Marie-Jeanne Kergoat, Sylvie Belleville, & Doris Clerc on web videos sharing
caregivers’ experiences & wisdom concerning institutionalization & end-of-life issues (in French).
 Collaborating with Dr. Francine Ducharme on the development of a pamphlet addressing strategies
to optimize adjustment to institutionalization for the families and caregivers of an individual who
has been placed in long term care (Prendre soin de moi! Interventions auprès des familles de
personnes âgées en milieu d’hébergement/Taking Care of Myself! An intervention program for
families of seniors in nursing homes. 23,459 pamphlets distributed in Quebec. 5000 elsewhere in
Canada).
 Partnering with Aboriginal communities to develop practical and culturally appropriate genetic
testing resources for early-onset familial Alzheimer Disease.
 Project: Facilitated E-Learning Series - The Public Health Agency of Canada and the Canadian
Dementia Resource and Knowledge Exchange (CDRAKE) partnered in the management of a
collaborative process to design, plan and implement a series of four facilitated education sessions in
the Engaging Health Care Providers: Frailty, Dementia and Disasters E-Learning Pilot Project. This
project includes three phases:
Date
Title
14/Feb/12
Emergency Preparedness Facilitated E-Learning Series
Live
Participants
34
21/Feb/12
Emergency Preparedness Facilitated E-Learning Series
30
28/Feb/12
Emergency Preparedness Facilitated E-Learning Series
31
6/Mar/12
Emergency Preparedness Facilitated E-Learning Series
25
*Registration was capped at 40 participants.

Project: A Canadian Networking the Networks Initiative: Behavioural Support Systems: Knowledge
Translation Phase - Following the national launch of the National Behavioural Support Systems
Guiding Principles and Recommended Components resource, CDRAKE has partnered with the
Mental Health Commission of Canada and the Canadian Coalition for Seniors’ Mental Health to
identify opportunities for collaborative activities related to the translation of complimentary
resources into practice.
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3.2. KT activities to link Researchers, trainees and knowledge users
Attracting a high caliber Post-Doctoral Fellow and three dementia researchers (national and
international) to the Visiting Scholars Program and linking them to established researchers and
practitioners in the field and each other.

Conducting collaborative research with Aboriginal communities to ensure that genetic testing
research conducted at the academic and clinical levels and the products produced as a result, are
evidence-based, consider the ethical, social, cultural and economic implications and meet the needs
of the affected communities.

Designing workshops that promote interactivity between facilitators and audience members
through the use of iClickers, for example.

Extending webinar registration to a wide potential audience (e.g. dementia and neurological
researchers and students, healthcare professionals and AD and D non-profit organisations).

Collaborating with Dr. Pierrette Gaudreau, director of the Reseau Quebecoise de Recherche en
Vieillissement on the Insitute of Aging’s Summer Program in Aging (SPA 2011) which took place May
29-June 2, 2011 in Bromont, Quebec and brought together 60 students and researchers to discuss
topics and strategies in research in aging and share experiences from working in the field.

Project: CDRAKE Online Events - Leveraging the success of the innovative Alzheimer Knowledge
Exchange (AKE) Knowledge Dissemination series, the CDRAKE team explored and trialed new
technologies to design, implement and facilitate an online series tailored to the CDRAKE community
and with the goal of recording events to support increased knowledge accessibility. Reference:
Clark, S and Lusk, E. CDRAKE Online Event Series: Concept, Process, Implementation, Facilitation,
and Recording for Enhanced Knowledge Accessibility, 2011. See listing of CDRAKE Year 4 online
events in Section 2.2.

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SECTION 4: RESEARCH
4.1. Research and Projects Supported by Grant Funds
Overall, CDKTN has established a strong presence and committed community of researchers, bolstered
by opportunities such as the CDKTN Knowledge Translation Training Grant Program, which is designed
to encourage researchers to incorporate KT tools, methods and dissemination strategies into their
research projects. Since its inception, a total of 30 research projects have been funded. The results of
researcher activities supported by this funding incorporate or specifically create new tools in order to
spread dementia care knowledge to a wider and diverse audience. The majority of the funding
recipients (87%) have disseminated their research findings; 13% have not yet disseminated their
findings as their studies are still in progress at the time of this report. Consistent with the requirement
for these funding proposals, all of the projects have plans for dissemination; traditional dissemination
strategies were most commonly identified (e.g. conference presentation/abstracts and reports to
funders/stakeholders).
2011-12 Open Request for Applications
CDKTN partnered for the fourth year with the Alzheimer Society of Canada (ASC) to hold an open
competition for researchers with a specific focus on integrating KT in their research. The
competition closed in November 2011 and review results are under embargo at the time of this
report.
2011-12 Closed Request for Applications for CDKTN members
(Excluding CDKTN co-applicants):
In November 2011 CDKTN, in partnership with the Alzheimer Society of Canada issued a closed RFA
for the Education and Training Knowledge Translation Award Program by special invitation to
members of the Canadian Dementia Knowledge Translation Network. The Nova Scotia Health
Research Foundation was engaged to conduct the peer review process and to recommend
successful applications. Based on these recommendations, the Management Committee approved
funding for five projects. Approved for funding are:
-
Dementia Care Interactive Knowledge Sharing Summit in Partnership with a First Nation
Community – Dorothy Forbes: To enhance the use of best available dementia care evidence
within First Nations communicates and rural settings. The project is aimed at improving
community knowledge regarding the signs, symptoms, treatment and dissemination of
dementia knowledge using information gathered during a Dementia Care Interactive
Knowledge Sharing Summit on the Oneida Nation of the Thames reserve in Ontario to
comprehend traditional practices and understandings. This KT project will contribute to
implementation science by enhancing understanding of how best to disseminate researchbased evidence in partnership with a First Nations community.
-
Stories of our Past: A dementia knowledge translation project with elders and children –
Wendy Hulko: To produce a video and story book for children based on story-telling
sessions of Native Elders. This is part of an ongoing project which is creating stories about
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caring for Elders with memory loss, in order to teach nurses in Interior Health about
culturally safe care of Elders. This funding will focus the project on children directed
materials and youth to promote transfer of knowledge between generations. There is a lack
of resources for Aboriginal children on dementia.
-
Knowledge exchange with the Rural Dementia Action Research (RaDAR) Team: An Action
Plan for Mild Cognitive Impairment and dementia care in rural and remote Saskatchewan Debra Morgan: To hold a one-day Action Planning meeting to share the findings from the
Saskatchewan Health Quality Council (HQC) in care and services analysis, to develop
research, KTE and policy recommendations to include in the final HQC project report. The
recommendations will provide the basis for an action plan to guide the RaDAR team’s
ongoing research, KTE and policy-related activities which are aimed at improving care and
support for rural and remote people with dementia.
-
Research-Based Theatre as a Knowledge Exchange Vehicle for Home-based Dementia Care Iris Gutmanis: To produce and evaluate a DVD of a screenplay that has an accompanying
facilitation guide. The Screenplay is based on prior work titled, “Advocating for Hilda” and
uses findings from 52 qualitative interviews to identify four interpersonal care processes
that shape dementia care.
-
A tool for early detection of nutrition risk among community-dwelling older adults with
early-stage Alzheimer disease to guide decision-making among both frontline health
professionals and family caregivers - Bryna Shatenstein: To develop a checklist-based
algorithm for detecting and targeting nutritional problems in home dwelling older adults
with Alzheimer’s Disease. Previous research will be synthesized using approaches by health
professionals for detecting under-nutrition in older adults in the outpatient setting to
develop this algorithm.
As a deliverable for funding, each successful applicant provides a final report and provides
available knowledge translated research to CDKTN for showcasing. Appendix 4a provides a
detailed list of reports and KT materials that have been provided to CDKTN from the three
previous years of research funding. All reports are posted to www.lifeandminds.ca, shared on
www.dementiaknowledgebroker.ca and circulated through the Research Members’ Intranet
(http://intranet.cdktn.ca).
The reporting of trainee awards and in-kind funds is referenced in Appendix 4a.
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SECTION 5: PARTNERSHIPS
The Network has been involved in partnerships with various organizations and networks with respect to
furthering dementia-related KT. Over 2011-12, CDKTN has developed and maintained ten regional, eight
national and six international partnerships.
A summary list of the partnerships including the projects and outcomes associated with each are found
below while a detailed list is referenced in Appendix 5a. A detailed accounting of partnership cash and
in-kind contributions is available in Appendix 5b.
Regional Partnerships
Alzheimer Society of BC
Projects & Outcomes
 Knowledge Brokering: link visiting research scholars and promote CDKTN
educational tools and resources.
Michael Smith Foundation for
Health Research

Knowledge Brokering: link foundation members and network to CDKTN
educational tools and resources.
Ontario Alzheimer Knowledge
Exchange

Knowledge Brokering: Police Services and Dementia: This 2-Part series
highlighted challenges and promising practices to support police interacting
with persons with dementia
- Police Interaction with Persons Affected by Alzheimer’s Disease,
June 15, 2011, 226 participants
- Identifying Vulnerable Seniors: An “in-the-field" dementia
screening tool for police officers, June 29 2011, 271 participants
Knowledge Brokering: Healthy Living and Dementia 3-Part Online Event
Series: This series was designed for those interested in learning about
healthy living and dementia. Each session offered a different, yet
complimentary perspective on this topic including health promotion, selfmanagement and how to live well with dementia.
- Health Promotion and Dementia: Creating a Health Promotion
Framework Through Participatory Engagement, Jan 12, 1012, 264
participants
- Self Management and Dementia, Jan 19, 2012, 233 participants
- How I Live Well, Jan 12, 2012, 197 participants

Tapestry Foundation for Health
Care

Knowledge Brokering: host a CDKTN workshop on media relations at the 9th
Annual BC Geriatric Services Conference. Promote educational offerings
through Tapestry Network
Trent University

Research Project: Progress in Neurobiology ~ issues related to ethical
problems in neurodegenerative disease recognition and treatment
including strategies to bridge knowledge gaps and research directions.
National Partnerships
Alzheimer Knowledge Exchange
CDRAKE
Details
 Knowledge Brokering: develop a Community of Practice (CoP) on the topic
of Self-Management in Dementia to address misconceptions and ensure
effective use of self-management support strategies by health and social
service providers and others who support people living with dementia by:
- Bringing together those with an interest in advancing selfmanagement in dementia
12 | P a g e
-
Increasing awareness about self-management in dementia
Identifying existing self-management interventions and deciding
how they could be used or adapted in the context of dementia
Developing learning opportunities and tools to promote the use of
self-management interventions that support people living with
dementia to play an active role in their own care.
Alzheimer Society Canada
Canadian Association for
Neuroscience
CIHR

Knowledge Brokering: link members, visitors and network partners to
CDKTN educational tools and resources

Research Projects Funding: partner to promote research in dementia care
and knowledge translation in Canadian Aboriginal communities, KT for
dementia researchers: Grant writing strategies workshop contributor
Mental Health Commission of
Canada
Canadian Coalition for Seniors’
Mental Health
CDRAKE
Public Health Agency of Canada
CDRAKE

Knowledge Brokering: A Canadian Networking the Networks Initiative ~
Behavioural Support Systems knowledge translation phase will identify
opportunities for collaborative activities related to the translation of
complimentary resources into practice.

Knowledge Brokering: Facilitated E-learning series, four sessions engaging
Health Care providers ~ Frailty: Dementia and Disasters
International Partnerships
A Changing Melody
International
(MAREP & CDRAKE & intl.
partners TBD)
Details
 Knowledge Brokering: Online broadcast and recording to engage groups
from across Canada to participate in the first ever International “A
Changing Melody” conference for/by persons with dementia and their
caregivers.
CIHR
Vancouver Foundation
North Growth Foundation
Mexico

Knowledge Brokering: Translating communication tools for dementia at
end-of-life into Spanish for testing and uptake in Mexico as part of the
Wellness in Alzheimer’s Disease project. The project translated
communication tools for dementia at end-of-life into Spanish for testing
and uptake in Mexico (funded by CDKTN-UBC Visiting Scholars Program and
through in-kind support from Mexico).
Dementia Service Development
Centre, Stirling, UK

Research Project & Knowledge Brokering: CDKTN has partnered with an
international dementia services provider to create a flexible training
package for general dementia awareness, aimed at a variety of nonfrontline care groups in the private and public sector, who we refer to as
Public Contact Service Personnel, in North America, based largely on
modified content developed by Dementia Services Development Centre,
Stirling, UK.
UK CLAHRC

Research Project & Knowledge Brokering has partnered with CDKTN to
write a research proposal to determine the active ingredients in knowledge
exchange between researchers and decision makers (managers). CDKTN
will conduct a literature review, facilitate three UK workshops with
managers and researchers and train local knowledge brokers in KT
workshop facilitation to build capacity.
13 | P a g e
SECTION 6: COMMENTS
The Canadian Dementia Knowledge Translation Network (CDKTN) was created in response to the
challenges experienced by both paid and unpaid care partners of individuals with dementia. These
challenges include timely access to research-based evidence, best practices in dementia care and
services and access to the appropriate resources and dementia-related supports that meet their needs.
CDKTN is critical to strengthening dementia awareness in Canada, particularly in the absence of a
national strategy for dementia. Established on March 31, 2008 through a 5-year CIHR grant (CIHR Grant
35725) CDKTN is a network for the translation and exchange of research in Alzheimer’s disease and
dementia. It consists of a collaborating group of academic institutions, academic leaders in dementiarelated biomedical, clinical, psychosocial, health services and population health research, Alzheimer
Societies, care providers (paid and unpaid) and persons with dementia. Please refer to Appendix 7a for
a table outlining the tracking and current status of CDKTN Grant deliverables from 2008-2013.
Since its launch, CDKTN has provided a mechanism for prioritizing and resolving gaps between research
and practice through building capacity for KTE and increasing access to quality dementia-related
resources. Although there are many researchers and clinicians across the country whose work makes a
significant impact related to dementia care, they often operate in isolation from one another. In
response to this challenge, CDKTN has built a framework for collaboration amongst its members. This
national network strengthens the existing capacity for knowledge to be disseminated, exchanged and
translated, facilitating the movement of knowledge to practice and enabling evidence-informed
decision-making. CDKTN has engaged thousands of researchers, practitioners and policy makers
through research communities, grant opportunities, online exchange platforms, webinars, conference
presence and in-person exchanges.
CDKTN provides an efficient infrastructure for supporting KTE across stakeholder groups. It is evident
that the sharing of knowledge and resources, linking people and ideas enables CDKTN to engage in
dynamic and interactive relationships in which research is enriched by input from knowledge users. By
bringing together researchers, students and practitioners, CDKTN helps researchers translate their work
into practice and pass it on to those who need it most – people living with dementia, their families and
partners in care.
14 | P a g e
APPENDIX 1a
GOVERNANCE/ORGANIZATIONAL STRUCTURE
CIHR
Institute of
Aging
National
Advisory
Board
CDRAKE
Steering
Committee
Management
Committee
CDKTN
Project
Office
Dalhousie
University
Administration
Education and
Training
Research Theme
Canadian Dementia
Resource and
Knowledge Exchange
Research Theme
Patient and
Caregiver
Research Theme
Education and
Training Grants
Provincial Nodes
Network
Research
Projects
Network
Research
Projects
Network
Research
Projects
Management of
awards and
advancing of
funds
Partnerships and
relationships
i|Page
APPENDIX 1b
Membership of CDKTN Management Committee
Member
Kenneth Rockwood
Kenneth Le Clair
Judy Illes/Lynn
Beattie
Janice Keefe
Howard Chertkow
Carole Estabrooks
Dorothy Forbes
Debbie Benczkowski
Paul Stolee
Jacqueline Tetroe
Role & Organization
Chair and Patient & Caregiver Theme Lead, Dalhousie University
CDRAKE Theme Lead, Queen’s University
Education and Training Theme Lead, UBC
Provincial Node, Mount Saint Vincent University
Provincial Node, McGill University
CRC in Knowledge Translation, University of Alberta
Associate Professor, University of Alberta
Acting CEO, Alzheimer Society of Canada
Evaluation Advisory Group Lead, University of Waterloo
Ex-officio member, CIHR nominee
ii | P a g e
APPENDIX 1c
CDKTN National Advisory Board
Member
Alain Gendron
Angeles Garcia
Bernard Prigent
Sandra Black
Howard Feldman
Howard Chodos
Jim Mann
John Morris
Judith Shamian
June Andrews
Linda Mealing
Marie France
Tourigny-Rivard
Paul Tuttle
Role & Organization
Medical Advisor, Neuroscience and Pain, AstraZeneca Canada
President, Consortium of Canadian Centres for Clinical Cognitive
Research
Vice-President and Medical Director, Pfizer Canada
Research Director, Brain Sciences Program, Sunnybrook Health
Sciences Centre
Vice-President and Scientific Director of the Fonds de la Recherche
en Santé du Quebéc
Director of the Mental Health Strategy, Mental Health Commission of
Canada
Advocate and Board Member, ASC
Director, Alzheimer’s Disease Research Center, Memory and Aging
Project at Washington University School of Medicine
President, Victorian Order of Nurses (VON)
Director, Dementia Services Development Centre, Stirling, UK
CIHR ex officio member
Chair, Seniors Advisory Committee, Mental Health Commission of
Canada
President, Extendicare Inc.
iii | P a g e
APPENDIX 1d
Canadian Dementia Resource and Knowledge Exchange (CDRAKE) Steering Committee
Member
Ken Le Clair
Megan Harris
Sarah Clark
Elizabeth Lusk
Dorothy Forbes
Kim Wilson
Maggie Gibson
Monica Bull
Sherry Dupuis
Janice Keefe
Lili Liu
Carrie McAiney
Lynn Beattie
David Harvey
Julia Baxter
Mary Schulz
Paul Stolee
Lynn McCleary
Judy Iles
Tracey Comeau
Jack Henderson
Role and Organization
CDRAKE Theme Lead
CDRAKE KT Planning and Development Lead
CDRAKE KT Resource Mobilization Lead
CDRAKE KT Conceptual Design Lead
Management Committee CDKTN;
Associate Professor, University of Alberta
Executive Director Canadian Coalition for Seniors Mental Health
Psychologist, Veterans Care Program, St. Joseph’s Health Care,
London
Provincial Mental Health Consultant for Seniors
Director of Murray Alzheimer Research and Education Program
Provincial Node Lead;
Director of Nova Scotia Centre on Aging
Professor & Chair, Department of Occupational Therapy,
University of Alberta
Health Service Research & Evaluation at Dept. of Psychiatry,
McMaster University;
Part of Geriatric Psychiatry Program at St. Joseph’s Hospital
Education and Training Theme Lead
Chief Member Services Officer, Alzheimer Society of Ontario; Colead, Alzheimer Knowledge Exchange
Program Coordinator, Geriatric Psychiatry Outreach
Alzheimer Society of Canada
Evaluation Advisory Group, University of Waterloo
Associate Professor, Department of Nursing, Brock University
Education and Training Theme Lead
Central Health Newfoundland
Alzheimer Society Kingston, cares for person with dementia
iv | P a g e
APPENDIX 1e
CDKTN Network Personnel:
Theme 1:
Lynn Beattie, Theme Leader
Judy Illes, Theme Leader
Tanuja Barker, Researcher (PT)*
Janice Matautia, Administrator (PT)
Julie Robillard, Postdoctoral Fellow (PT)
Theme 2:
Kenneth Le Clair, Theme Leader
Sarah Clark, Resource Mobilization Lead (PT)
Elizabeth Lusk, KT Conceptual Design Lead (PT)
Editor www.dementiaknowledgebroker.ca
Theme 3:
Kenneth Rockwood, Theme Leader
Cathy MacNutt, Project Director (PT)
Cynthia Giles, Project Manager (FT)*
Sarah Kehoe, Project Office Research Assistant (FT)
Geralyn MacLellan, Financial Officer (FT)
Jocelyn Adams, Research Assistant – Communications (FT)
Nodes:
Janice Keefe, Provincial Node Leader
Mary Leslie, Research Assistant (PT)
Howard Chertkow, Quebec Node Leader
Victor Whitehead, Research Assistant (PT)
*PT- Part-time
*FT – Full-time
v|Page
APPENDIX 1f
CDKTN: A Network Integrated Effort and Focus
Theme 1: Education and Training
This program delivered interactive workshops, using live and technology-enabled learning
strategies. Network activities aimed at education and training in KT have focused on dementia
KT-related research, such as genetic counselling in Aboriginal communities, incentives and
barriers to KT, identification of KT needs of dementia researchers, and KT training in Canada.
To date, these research efforts have resulted in a total of 7 publications and 10 conference
presentations.
Theme leaders are currently involved in six research projects related to dementia KT and a
quarter of a Postdoctoral Fellow’s time is devoted to dementia KT. Theme 1 also successfully
launched a Visiting Scholars Program. During 2011, four researchers completed the program
and since inception, five researchers have successfully completed the Visiting Scholars
Program.
Since 2009, Theme 1 has developed two KT curricula on topics related to the “why, what, who
and how” of KT, inclusion of KT strategies in research design and grant writing strategies for
dementia KT.
Between April 1, 2011 and March 31, 2012, three interactive workshops, 1) KT for Dementia
Researchers - Grant Writing Strategies; and 2) A Clinical Neuroethics Medical Humanities Night;
and 3) a conference-based concurrent session, Becoming Media Savvy: Creating Traction for
Dementia Research and Care and a webinar) Dementia Research and Care in Social Media:
Creating KT Opportunities, was delivered to 113 participants. The workshops and webinar were
designed to promote discussion and uptake of knowledge translation in dementia research and
care. Workshop and webinar evaluations for all education sessions have been very positive. For
example, participants at the KT for Dementia Researchers: Grant Writing Strategies workshop
indicated that they would use information from the workshop in their future grant applications.
Furthermore, participants indicated that they had gained a greater understanding of dementia
KT concepts and had then written KT into their dementia grant applications (42% and 59%
respective increase in participant self-perceived knowledge).
Theme 2: Canadian Dementia Resource and Knowledge Exchange
CDRAKE has continued to focus during 2011-2012 on various activities aimed at developing and
implementing research and KTE partnerships, workshops and presentations, online
presentations, publications, network model development and branding, network growth, pilot
research projects, knowledge brokering and more recently, sustainability planning.
Leveraging the successes of the Ontario-based Alzheimer Knowledge Exchange (AKE) model,
CDRAKE connects with people across Canada and enhances access to relevant knowledge
through high-quality, reliable and robust technology, facilitated by talented knowledge brokers.
CDRAKE facilitates access to knowledge for continuous quality improvement, stimulates and
supports the sharing of innovations, builds and supports partnerships and fosters direct links
vi | P a g e
between knowledge users and producers. In partnership with the Alzheimer Society of Canada
(ASC), CDRAKE delivers an online event series, which effectively connects people across the
health care system to persons living with dementia and their partners in care, leaders and
innovations. In this way, CDRAKE gives voice to timely information, experiences and resources
and enhances the capacity to put new knowledge into practice through facilitated exchange.
To-date, CDRAKE has engaged 8,951 participants across Canada via the online event series.
These events are archived online in a catalogue of past events.
During 2011-2012, CDRAKE developed and implemented 28 online events with a total of 7,165
individuals in attendance. CDRAKE also produced 7 publications including white papers, peerreviewed and eNews publications aimed at advancing the science and practice of KT; total
distribution: 3,243 individuals; CDRAKE partnered on 3 research and KTE projects (externally
funded) with 5 partner organizations, networks or individuals; 1 pilot research project on KTE
innovations have been funded by CDRAKE and as of March 31, 2012, the CDRAKE community
consisted of 1,252 members, an increase of 33% from 2010/2011.
Theme 3: Patient and Caregiver
Linking dementia patients and partners in care with knowledge, information and evidenceinformed tools, Theme 3 provides opportunities to increase understanding of disease
symptoms, best practices and available supports. In so doing, Theme 3 also explores the lived
experiences of persons and their care partners to help identify and resolve gaps between
research and practice, prevention, treatment, care and support.
Since April 1, 2011, Patient and Caregiver theme has been involved in a number of workshop
and conference presentations aimed at care providers and family caregivers of persons with
dementia. Conference presentations were focused on dementia KT. Seven research projects
conducted in this theme area have focused on: fluctuations in dementia symptoms, driving,
knowledge synthesis of topics of interest to dementia caregivers, technology strategies for
education and caregiver assessment.
In 2011, CDKTN evaluated the value of written and musical narratives, videos, theatre and
commissioned music that reflect the everyday experiences as a gateway to educating the
general public about the signs and symptoms of Alzheimer’s disease and about dealing with
Alzheimer’s in their communities. The results of this investigation will be available in July 2012.
CDKTN also funded and hosts the website “When Dementia is in the House”, released
nationally on November 15, 2011. A space for tweens and teens who have a parent or
grandparent with dementia, “When Dementia is in the House” was developed by Tiffany Chow,
MD, Baycrest, and Katherine Nichols to educate children living with someone who has
dementia, on caregiving, with a focus on frontotemporal dementia (FTD). This website is based
on Dr. Chow’s research, including advice from adolescents who have been dementia care
partners. Parents can find guidance on talking to their children about dementia and how to
balance parenting with caring for someone with dementia (Appendix E).
vii | P a g e
APPENDIX 1g
Evaluation-Based Strategic Planning for CDKTN
The most recent CDKTN evaluation has generated information that can be used to guide the strategic planning of
the network. Strategic planning can be targeted to two key areas: 1) Network processes, operations and
sustainability; and 2) Achievement of anticipated network outcomes.
1. Network Processes and Operations
Creech and Ramji1 in their framework for assessing knowledge networks, provide a guide to developing formative
and summative evaluation indicators. Data collected on these indicators to date can inform the development of a
strategic plan regarding network processes and operations.
Network Processes and
Operations
Summary of Key
Evaluation Evidence
Strategic Recommendations
Formative areas of
investigation
Structure and governance
 Impact of structure/
governance on network
progress and effectiveness
 Existence of a clear and
shared sense of purpose
 Turnover in leadership
 Existing structure is well received, particularly
separation of operations and advisory capacities,
expert representation, and role of provincial
nodes
 Identified challenges:
o Limited communication within and between
governance structures
o Limited understanding of the activities of each
governance structures
o Limited understanding of the role of the
Provincial Nodes
o Limited financial independence (involvement
of third party paymaster)
o Too great an emphasis on operations within
MC
 Perceptions that the network membership does
not have a clear understanding of the mission of
network and their potential role/ involvement in
the network.
 Goals and objectives of CDRAKE are clear; limited
understanding of Theme 1 and 3
 Perception exists that the turnover in leadership
for Theme 1 impacted progress
Improve network functioning with:
 More regular NB and MC meetings
 More face-to-face meetings of MC
 Develop a communication strategy to better
inform all members of the activities of NB, MC
and Provincial Nodes and network progress in
general; use a variety of communication tools
and vehicles
 Increase promotion of the network as a
whole, rather than individual theme areas
 Allow Project Staff greater independence in
managing network operations
 Develop a succession plan for leadership
turnover; consider a rotating leadership model
 Investigate network models (e.g., not-forprofit corporation) to facilitate easier and
smoother access to funding
Efficiency
 Effectiveness of decisionmaking processes, network
coordination, communication
and procedures
Network effectiveness is threatened by:
 Limited network involvement with theme
steering committees
 Limited accountability mechanisms
 Limited or irregular attendance at the National
Board and Management Committee meetings
 Time constraints and competing priorities of
those involved in network leadership
 Limited engagement of network members,
clinicians and frontline workers
 Limited representation across all areas of the
country
 There is limited understanding by members of
NB, MC and membership of the extent to which
 Expand membership within Steering
Committees to include members from other
themes
 Develop accountability measures to ensure
each theme delivers on stated objectives/
goals
 Develop strategies to facilitate greater
attendance at meetings
 Develop outreach and promotion strategies to
better engage members, clinicians and
frontline staff and increase representation
across the country
 Ensure activities of each theme are guided by
CDKTN logic model and aimed at achieving
1
Creech, H., & Ramji, A. (2007). Knowledge Networks: Guidelines for Assessment. International Institute for
Sustainable Development [on-line]. Available: www.iisd.org
viii | P a g e
network objectives are being achieved.
Resources and sustainability
 Existence of necessary human
and financial resources to
operate successfully and
sustain activities
 Lack of a strategic direction and sustainability
planning; limited attention paid to future
planning
 Limited number of provincial nodes
 Perception exists that there is an ineffective
distribution of resources (due to lack of a
strategic plan)
 Inadequate tracking of network activities/funded
programs
Summative areas of
investigation
Life-Cycle analysis
 Performance in relation to
stage of development in
comparison to other
networks at similar stages

Network effectiveness
 Achievement of goals and
objectives
 Impact of collaborations on
stakeholders
 Production and sharing of
new knowledge

2.





Perception exists that five years is not enough
time to develop the network; it will take more
time to establish the network and have it fully
entrenched across all key stakeholder groups.
Establishment of network (structures, websites)
took longer than anticipated
General perceptions that the network is “where
is should be” (on-target) in its life-cycle but has
the potential to fall behind if it does not increase
collaboration, improve communication or
develop a sustainability strategy.
Limited cross-theme collaboration (themes
working in silos)
Limited opportunities for engagement of
graduate students in network activities
CDRAKE instrumental to current KTE activities;
communication challenges impact sharing of
information from other themes
CDKTN funded projects focus on traditional
methods of dissemination of results (conference
presentations, abstractions, reports to funders) –
limited novel KT strategies
network goals
 Make strategic planning an immediate priority
for the network
 Increase number of provincial nodes to better
facilitate collaborations and to enable greater
representation from across the country
 Develop a long-term direction for the network
to dictate the distribution of resources
towards the achievement of deliverables
 Better tracking of network activities and
resource allocation through management
office
 Focus on sustainability planning with an eye
to improving collaboration and
communication within the network
(particularly between themes)
Develop strategies to improve cross-theme
collaboration by:
o Ensuring cross-theme representation on
theme steering committees
o Increasing the number of provincial
nodes
o Providing incentives to themes (e.g.,
funding contingent on cross theme
collaboration)
o Develop opportunities for greater
student involvement in the network
through funding, training, and
knowledge sharing opportunities
 Develop greater expectations for KT and E for
funded projects – emphasis on the
development of strategies for sharing
information with clinicians, frontline workers
and consumers; ensure funded projects are
aligned with anticipated outcomes of the
network/ goals of the network; better
promotion of funded projects through
network communication platforms
Achievement of Anticipated Outcomes
The evaluation of the CDKTN has been consistent with the Promoting Action on Research Implementation in
Health Services (PARIHS) framework,2,3 which proposes that sustained implementation of research knowledge is
dependent on three key elements: context, evidence and facilitation. For the CDKTN, context would include the
structure and resources of the network and theme groups, as well as the context of settings where knowledge
2
Kitson, A., Harvey, G., & McCormack, B. (1998). Enabling the implementation of evidence based practice: a
conceptual framework. Quality in Health Care, 7, 149-158.
3 Rycroft-Malone, J., Kitson, A., Harvey, G., McCormack, B., Seers, K., Titchen, A. Estabrooks, C. (2002).
Ingredients for change: Revisiting a conceptual framework. Quality and Safety in Health Care, 22, 174-180.
ix | P a g e
could be translated into practice and policy. Evidence includes how evidence (research evidence as well as clinical
experiences and the perspectives of persons with dementia and their care partners) is viewed, valued, and used by
the network and the activities it supports. Facilitation includes the methods for supporting interaction and
exchange in the network (best practices and strategies for KTE), as well as facilitation of research translation in the
theme areas and practice/ policy settings. These three elements in relation to the achievement of anticipated
outcomes, specified in the CDKTN logic model, are outlined in the following table.
Anticipated Outcomes
More dementia experts trained in
KT&E and better KT&E trained
experts (a brand of “dementia
collaborators”)
Summary of Key Evaluation Evidence





A culture (attitude) shift so KT&E
are considered essential research
activities and organizational
function

Perceptions that the CDKTN has increased
profile of KT, increased awareness and
understanding of the knowledge to action
cycle, and increased awareness of the
importance of KT in dementia-related
research
Increased clinical and social
relevance of research
Enhanced dissemination via novel
means (technology-based, artsbased)

CDKTN funded projects have emphasized
clinical and social relevance of research
CDKTN has funded projects which use novel
KT strategies and should continue to do so
The networks own strategies for KTE are
limited; lifeandminds.ca website is not
functioning/ engaging people at an optimal
level.
Increased and enhanced
knowledge translation and
exchange (increased capacity for
research use)




Strengthened linkages and
exchange among industry,
4

Strategic Recommendations
Generally, there is limited understanding of
the extent of KT training provided by Theme
1; concerns exist that that training is
currently limited to UBC and is not happening
at a national/ network level
Lack of cross theme collaboration related to
KTE training




CDRAKE has been instrumental in increasing
opportunities for dementia focused
knowledge exchange with emphasis on the 7
Ps of KE4
CDRAKE events and activities have been
extremely well received and have been
perceived as providing high quality
information that is relevant to practice;
CDRAKE has increased access to tools and
resources that users would otherwise not
have access to.

Although CDKTN membership includes
representation from industry, clinicians,



Promote KTE training at a more national level
Develop specific CDKTN sponsored/ focused
KT training program; consider use of
technology to facilitate greater access (e.g.,
e-learning strategies).
Create a working group to liaise with existing
training delivery structures (e.g. summer
institutes), match KTE experts/knowledge brokers
with content experts, develop curricula, and build
KTE into methods courses and texts.
Support KTE as a component of an organization’s
culture* through:
o
Promotion of the use of different KTE
strategies through workshops for
organizations (including academic and
community organizations).
o
Creation of a “how to” KTE manual with
reference to varying contexts, populations,
and methods.
o
Engagement of KTE champions.
o
Encouragement of organizations to
“model” successful CDKTN KTE strategies.
Place greater weight on funding applications
that use novel strategies for KT
Restructuring of lifeandminds.ca website to
make it more dementia-friendly (consider
design, colour, and graphics in re-design)
Greater promotion of lifeandminds.ca
website
Continue to support CDRAKE as a critical
force for KTE.
Increase promotion of CDRAKE to frontline
workers and organizations working directly
with persons with dementia.
Increase the national profile of dementia by
actively disseminating dementia research
through media outlets including radio, television,
and internet as well as conferences, workshops
and reports. This provides an opportunity to
promote the field, celebrate successes,
underscore ongoing challenges and needs, and
reflect on the efforts of CDKTN members and
partners.
Develop strategies and tools to better engage
policy makers in CDKTN. Consider using
Lusk E and Harris M. Community of Practice Orientation Guide. Gestalt Collective. Canada; 2011.
x|Page
Anticipated Outcomes
Summary of Key Evaluation Evidence
researchers, clinicians, policymakers, persons with dementia
and their formal and informal care
partners
Improved language of care in
keeping with best practices

There is no existing evidence of the extent to
which this outcome has been achieved
Greater system support for use of
knowledge in practice

Enhanced services and supports for
persons with dementia and their
families

There is no existing evidence that the
network is impacting system support for use
of knowledge in practice.
CDKTN is perceived as being in a good
position to have a significant impact on KTE
and system and care enhancements but
current challenges (as identified above and in
the evaluation) have impeded progress
toward these outcomes.
CDRAKE has been instrumental in increasing
access to knowledge and promoting evidence
based care.
Existing lifeandminds.ca website is perceived
as not being senior friendly or functioning at
optimal capacity as a vehicle for knowledge
exchange.
There is limited existing evidence of the
extent to which these outcomes have been
achieved.
There is anecdotal evidence based on
interviews with frequent CDRAKE users that
CDRAKE has:
o
Increased access to information
o
Increased knowledge on a variety of
topics related to dementia
o
Changed clinical practice and service
delivery
o
Increased opportunities for networking
and sharing knowledge resources
o
Supported the provision of education
(for educators).
Attempts to assess the impact of the
network on citizen and care partner access to
and use of information were not successful.

Enhanced evidence-based care
Enhanced knowledge and skills of
care partners
Enhanced services and supports for
persons with dementia and their
families
Increased availability of knowledge
for researchers, clinicians, care
partners and persons with
dementia
Increased knowledge of best
dementia care practices
Accelerated application
(knowledge translation) of
research findings to dementia care
Increased citizen and care partner
access to and use of information
tools/resources about dementia
Greater system support for use of
knowledge in practice
Strategic Recommendations
policy makers and persons with dementia
and their care partners, their representation
and active involvement in the network is
limited.




functional framework developed by Lomas and
Brown5 to offer insight into the design of tools
and activities, as well as to develop decision
makers’ skills to improve the use of research in
policymaking processes.


Promote the network to all key stakeholder
groups through the development of a strategic
communication plan to raise awareness of the
network, establish a platform for information
sharing, and access various target audiences.
Develop an evaluation plan to measure success
at achieving anticipated outcomes; consider use
of goal attainment scaling.6
Key Findings of the Environmental Scan:
Based on the findings, a number of network-wide and theme-specific recommendations, goals
and strategies have been developed related to guiding the review of CDKTN’s strategic plan and
the future of CDKTN, The recommendations include the following key short-term action items:
Develop a strategic plan for the network to include:
 Plans for partnership development to secure ongoing funding for the network;
5
Lomas, J., & Brown, A.D. (2009). Research and advice giving: A functional view of evidence-informed policy in a
Canadian Ministry of Health. Millbank Quarterly, 87(4), 903-926.
6 Stolee, P., Rockwood, K., Fox, R.A., Streiner, D.L. (1992). The use of Goal Attainment Scaling in a geriatric care
setting. Journal of the American Geriatrics Society 40, 574-578.
xi | P a g e



An outline of key network activities over the next 3–5 years to achieve network objectives, focusing
on:
o network wide activities, not just activities of individual theme areas
o facilitation of greater inter-theme collaborations
o building of local, provincial and national partnerships in collaboration with provincial nodes
o reflection on information gathered to date (environmental scan, evaluation) to guide
planning with a view to addressing key network processes and operational issues, as well as
activities aimed at achieving network outcomes;
Communication strategy to keep NB, MC, and network members informed of network objectives,
progress and activities and to facilitate a greater understanding of the network and how members
can become engaged; and,
Plans for the distribution of resources towards the achievement of deliverables.
Promote the network at a national level with the publication of a position paper on the network
 Focus on the development, implementation, current state and future plans for the network
Develop a communications strategy to address existing challenges related to communications
 Invest in reconstruction of lifeandminds.ca website to make it more senior and dementia-friendly
 Consider hiring a position focused primarily on network communications and promotion/ marketing
activities
Work with evaluation team to develop an evaluation plan for the upcoming year focusing on:
 Gathering information to inform the strategic plan for the network;
 Network structure and processes – progress/improvements; and,
 Achievement of anticipated outcomes, including:
o Input from consumers and all relevant key stakeholder groups
o Use of goal attainment scaling to measure achievement of outcomes.
xii | P a g e
APPENDIX 1h
Google Analytics www.lifeandminds.ca
CDKTN www.lifeandminds.ca
The CDKTN public website, www.lifeandminds.ca, consists of four major sections:
1. Media; showcases videos, presentations and other media elements
2. Research: highlights recent efforts by researchers. It announces KT funding awards and
resulting research project reports, and links visitors to the three CDKTN themes
3. News: shares media links to news articles from across Canada and internationally, features
articles on research conducted,
4. Events: shares upcoming conferences, lectures and events of interest to visitors.
Organizations external to CDKTN request their events be posted to our calendar.
Website Traffic
Dates: April 1, 2011-March 31, 2012
Summary:
 All traffic sources sent a total of 7,027
 Top traffic sources included were direct, Google and CBC
 7,027 visits came from 65 countries
xiii | P a g e
xiv | P a g e
APPENDIX 1i
National E-Newsletter
The E-Newsletter is generated quarterly by the CDKTN project office to capture events, news, research highlights and other key
activities occurring in Canada. The E-Newsletter is posted to www.lifeandminds.ca, circulated on
www.dementiaknowledgebroker.com and posted to the Research Members’ Intranet.
xvi | P a g e
APPENDIX 1j
Weekly Media Monitoring Reports ~ Summary Example
xvii | P a g e
APPENDIX 1k
Membership of Canadian Dementia Knowledge Translation Network
The Research Members’ Intranet consists of 774 members from 333 separate organizations (plus
a further 107 ‘other’ organizations) across 31 countries. Countries contributing to the CDKTN
Research Member database include Argentina, Australia, Brazil, Canada, China, Denmark, Egypt,
Finland, Ghana, Guatemala, India, Ireland, Israel, Italy, Jamaica, Japan, Netherlands, Nigeria,
Peru, Portugal, Puerto Rico, Saudi Arabia, Spain, Sweden, Switzerland, Taiwan, Thailand,
Trinidad, United Kingdom and the United States.
Other organizations consist of non-research associations such as life insurance, consulting,
service providers, etc.
Organization
Abbott
Addition Services
ADI Limited Nova Scotia
Afexa Life Sciences
Aging Technology Services
Ahmadu Bello University
Ain Shams University
Alberta Health and Wellness
Alberta Health Services
ALMA
Alzheimer Foundation of America
Alzheimer Knowledge Exchange Ontario
Alzheimer Nederland
Alzheimer Scotland
Alzheimer Society United Kingdom
Alzheimer's Association of Israel
Alzheimer Society Canada
Alzheimer Society Algoma
Alzheimer Society Belleville
Alzheimer Society Calgary
Alzheimer Society Cornwall
Alzheimer Society Dufferin County
Alzheimer Society Elgin
Alzheimer Society Grey-Bruce
Alzheimer Society Guelph
Alzheimer Society Hamilton
Alzheimer Society Huron
Alzheimer Society Kingston
Members
2
1
1
2
1
1
1
1
12
1
1
3
2
2
1
1
6
1
1
1
3
1
3
1
1
5
1
2
Country
US
Canada
Canada
Canada
US
Nigeria
Egypt
Canada
Canada
US
US
Canada
Netherlands
UK
UK
Israel
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
xviii | P a g e
Organization
Alzheimer Society Kitchener-Waterloo
Alzheimer Society Lanark
Alzheimer Society Leeds-Grenville
Alzheimer Society London
Alzheimer Society Montreal
Alzheimer Society Niagara
Alzheimer Society Ottawa
Alzheimer Society Oxford
Alzheimer Society Peel
Alzheimer Society Perth County
Alzheimer Society Peterborough
Alzheimer Society Sarnia-Lambton
Alzheimer Society Sault Ste Marie
Alzheimer Society Sudbury
Alzheimer Society Thunder Bay
Alzheimer Society Windsor
Alzheimer Society York Region
Alzheimer Society of Alberta &
Northwest Territories
Alzheimer Society of Bangladesh
Alzheimer Society of Jamaica
Alzheimer Society of Nova Scotia
Alzheimer Society of Ontario
Alzheimer Society of PEI
Alzheimer Society of Trinidad
Alzheimer’s Disease Research Centre
Alzheimer’s National Board
Alzheimer’s Society UK
Andrews of Stratford
Andrews of Summerside
Annapolis Valley Health Authority
Artists’ Health Centre Toronto Western
Hospital
Association Alzheimer de P.R.
AstraZeneca Canada
Atlantic Baptist Nursing Home
Atlantic Institute on Aging
Australia National University Medical
School
Barts and the London NHS Trust
Members
2
1
1
1
2
2
1
1
1
1
2
1
1
1
3
1
1
1
Country
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
1
2
12
6
1
2
1
1
3
1
1
2
1
India
Jamaica
Canada
Canada
Canada
Trinidad
Canada
Canada
UK
Canada
Canada
Canada
Canada
1
1
1
1
1
Puerto Rico
Canada
Canada
Canada
Australia
1
UK
xix | P a g e
Organization
Bay Pines Health Care System
Baycrest
BCS Group
Beach Grove Home
BGH Sunset Unit
Bedford Sackville Mental Health
BGH Sunset Unit
Brainfitness
Bridgepoint Health
Briston-Myers Squibb
Broadmead Care Society
Brock University
Bruyere Ottawa Memory Disorder Clinic
Calgary West Central Primary Care
Network
Canada Mortgage and Housing
Corporation
Canadian Agency for Drugs and
Technologies
Canadian Association of Occupational
Therapists
Canadian Centre for Health and Safety in
Agriculture
Canadian Dental Association
Canadian Institute of Health Research
Canadian Mental Health Association
Canadian Nurses Association
Canadian Red Cross
Cape Breton District Health Authority
Capital District Health Authority NS
Capital Care
Caregivers Nova Scotia
CCA Link Program
CDKTN Project Office
Cedarstone
CEDRA
Centennial Centre for Mental Health
Centracare Health System
Centre de Sante Mental Communiautaire
Centre for Assistive Technology
Members
1
7
1
2
1
1
1
1
2
1
1
3
2
1
Country
US
Canada
Canada
US
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
1
Canada
3
Canada
1
Canada
1
Canada
1
3
1
1
1
2
43
2
3
1
9
1
1
1
1
1
1
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
US
Canada
US
xx | P a g e
Organization
Centre Hospitalier Universitaire de
Montreal
Centre Universitaire-Hospitalitier Vitalité
Centro de Did Jesi
Changhua Christian Hospital
Chiang Mai University
CHUBU University
Circle of Care
Cognistat
Colchester East Hants Health Authority
Colville Manor
Community Mental Health Services
Ontario
Consortium of Canadian Centres for
Clinical Cognitive Research (C5R)
Continuing Care
Continuing Care
Cornwall Society
Cox Senior Medical Centre
Creative Space
Credit Valley Hospital
Crisis Intervention
Cumberland Health Authority NS
Dalhousie University
Dartmouth General Hospital
Delta View Life Environment Centre
Dementia Collaborative Research Centre
Dementia Royal Free Hospital
Dementia Services Development Centre
Stirling
Department of Health and Wellness
Dementia Guide Inc. Clinical
Donald Berman Maimonides Geriatric
Centre
Dongzhimen Hospital BUCM
Dr. Everett Chalmers Regional Hospital
Dr. John Gillis Memorial Lodge
Drager
DriveABLE
Dublin City University
Members
1
Country
Canada
1
1
1
1
1
1
1
1
1
2
Canada
Argentina
China
Thailand
Japan
Canada
Canada
Canada
Canada
Canada
1
Canada
1
1
1
1
1
2
1
3
19
1
2
1
1
1
Canada
Denmark
Canada
Canada
UK
Canada
Canada
Canada
Canada
Canada
Canada
Australia
UK
UK
3
1
1
Canada
Canada
Canada
2
1
1
1
1
1
Canada
Canada
Canada
Canada
Canada
Ireland
xxi | P a g e
Organization
Dykeland Lodge
DZNE (Deutsches Zentrum fur
Neurodegenerative Erkrankugen)
Eastern Health
Eastern Suburbs Outpatients
Essential Dental Hygiene Services
Extendicare Canada
Flower Foundation Cosmos House
Forget-Me-Not
Fraser Health Authority
GE Healthcare
Geriatric Psychiatry Community Services
of Ottawa
Gerontology Institution
Glen Haven Manor
Glenrose Rehab Hospital
Goa Medical College
Good Samaritan Telecare
Government of Yukon
Grand River Hospital – Kitchener Ontario
Griffin University
Guysborough Antigonish Strait Health
Authority
Halton Healthcare
Hamilton Family Health Team
Hamilton Health Sciences
Hamilton Physiotherapy
Health Association of Nova Scotia
Health PEI
Healthcare Insights LLC
Highview Residences
Hillside Pines Home for Special Care
HKADA
Home Care Plus Ltd.
Home Instead Senior Care
Horizon Health Network
Hospice Northwest Palliative Care
Hospital das da Faculdade de Medicina
da Universidade
I.S.T.S. The Simultaneous Interpretation
Members
1
1
Country
Canada
Denmark
1
1
1
1
1
1
1
1
1
Canada
Australia
Canada
Canada
UK
Canada
Canada
Canada
Canada
1
1
2
1
1
1
1
1
2
Canada
Canada
Canada
Portugal
Canada
Canada
Canada
Australia
Canada
1
1
2
1
3
2
1
2
1
1
1
5
1
1
1
Canada
Canada
Canada
Canada
Canada
Canada
US
Canada
Canada
UK
Canada
Canada
Canada
US
Brazil
1
Canada
xxii | P a g e
Organization
Specialists
Inglis House
Instituto de la Memoria
Interior Health
International Alliance of Patients’
Organization
Iran Alzheimer Association International
Ivy Meadows Continuing care Centre NS
IXICO
JBN Medical
Jewish Eldercare Centre
Jewish General Hospital
Johmon-no-Sato Nursing Home
Joseph Brant Memorial Hospital
Karolinska Institutet
Kawartha Regional Memory Clinic
KEMH Hospital
King Saud Bin Abdulaziz University for
Health Sciences
Kings Regional Rehab Centre
KMPT
Kyoto Tachibana University
Lakeridge Health – Rouge Valley Health
System
Langone Medical Center – Center of
Excellence
LSU Neuroscience Centre
Maplewood Manor
Massachusetts Institute of Technology
Master’s of Publich Health Lakehead
University
McGill University
McMaster University
Memorial University of Newfoundland
Mental Health Commission of Canada
Mills
Ministry of Health and Long Term Care
Montreal Neurological Institute
Mount Royal University
Mount Saint Vincent University
Members
Country
1
1
1
1
US
Peru
Canada
UK
1
1
1
1
1
4
1
1
1
2
1
1
Iran
Canada
UK
Canada
Canada
Canada
Canada
Canada
Sweden
Canada
US
Saudi Arabia
1
1
2
1
Canada
UK
Japan
Canada
1
US
1
1
1
1
US
Canada
US
Canada
9
6
2
3
1
1
1
1
6
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
xxiii | P a g e
Organization
Musquodoboit Valley Home for Special
Care
Nakile Home for Special Care NS
New Dawn College
New York Institute of Technology
NKS Olaviken
North East Specialized Geriatric Services
North Okanagan Hospice Society
North York General Hospital
Northside Community Guest Home
Northwood Ethics Association NS
Northwood Intouch
Northwood Nova Scotia
Nova Scotia Community College
NS Department of Community Services
NS Department of Health
NS Department of Justice
NS Hearing and Speech Centre
Oakwood Terrace
Ocean View Manor Society
Ontario Community Support Association
Ontario March of Dimes
Ontario MD
Orchard Court
Orillia Soldiers’ Memorial Hospital
Osaka University
Other Organizations
P.S.W.
Parkwood Hospital
Pediatric Oncology Group of Ontario
Pfizer Canada
PhoeniX Technologies Incorporated
PEI Department of Health
Prince George Regional Hospital
Project Lifesaver
Providence Care
Public Health Agency of Canada
Queen Elizabeth Hospital
Red Deer Alberta Regional hospital
Regional of Waterloo Social Services
Members
1
Country
Canada
1
1
1
1
1
1
5
1
1
2
11
3
1
6
2
1
1
1
1
1
1
1
1
1
107
1
1
1
3
1
1
1
1
10
2
1
1
1
Canada
Canada
US
Sweden
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Japan
Various
Canada
Canada
Canada
Canada
Canada
Canada
Canada
US
Canada
Canada
Canada
Canada
Canada
xxiv | P a g e
Organization
Registered Nurses Association of Ontario
Research Strategy Group Inc.
Resident Care East Cumberland Ledge
Revera Inc.
Riverside Lions Seniors Residences
RJF Health Care
Robarts Research Institute
Royal Ottawa Hospital
Royal Ottawa Mental Health Centre
Rush Alzheimer’s Disease Centre
SafeGuard
Saint Elizabeth Rehab
Saint Vincent’s Nursing Home
Saskatoon Health Region
Seniors Resources in North Toronto
Shannex Inc.
Shelton Hospital
Simon Fraser University
Sobey’s Pharmacy
South Cumberland Community Care
Centre
South Shore District Health Authority NS
South West Health Seniors Services
South West Nova District Health
Authority
St Joseph’s Health Care
St. Francis Xavier
St. George’s University of London
St. Joseph’s Care
St. Joseph’s Hospital Saint John
St. Luke’s Hospital
St. Martha’s Regional Hospital
St. Mary’s General Hospital
St. Mary’s University
St. Michael’s Hospital
St. Paul’s Hospital Foundation
St. Vincent’s Nursing Home
Stanton Territorial Hospital
Strive Health Management Consulting
Inc
Members
1
1
1
2
1
1
1
2
2
1
1
1
1
1
1
7
1
1
1
1
Country
Canada
Canada
Canada
US
Canada
Canada
Canada
Canada
Canada
US
Canada
Canada
Canada
Canada
Canada
Canada
UK
Canada
Canada
Canada
3
1
1
Canada
Canada
Canada
6
1
1
1
1
2
1
1
2
1
1
1
1
1
Canada
Canada
UK
Canada
Canada
US
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Canada
xxv | P a g e
Organization
Sunnybrook Health Sciences Centre
Taiwan Alzheimer’s Disease Association
The Good Samaritan Society
The Lodge at Broadmead
Thompson Rivers University
Timeless Medical
Toronto Public Library
Toronto Rehabilitation Institute
Universidad de Sao Paulo
University de Moncton
University de Montreal
University de Sherbrooke
University College Falmouth
University College London
University of Alberta
University of Arkansas
University of Barcelona
University of Bologna
University of British Columbia
University of Buffalo
University of Calgary
University of Central Florida
University of Helsinki
University of Laval
University of Manitoba
University of Missouri-Columbia
University of New Brunswick
University of Ottawa
University of Saskatchewan
University of Stirling
University of Toronto
University of Victoria
University of Virginia
University of Waterloo
University of Western Ontario
University of Worcester
University of Zurich
USC/RLANRC
V.A.C.
Vancouver Coastal Health
Members
6
1
1
1
1
3
1
3
1
2
11
3
1
1
10
1
1
1
13
2
4
1
1
1
2
1
2
2
5
2
8
1
3
9
11
1
1
1
1
2
Country
Canada
China
US
Canada
Canada
Canada
Canada
Canada
Brazil
Canada
Canada
Canada
Canada
Canada
Canada
Canada
Spain
Italy
Canada
US
Canada
US
Finland
Canada
Canada
US
Canada
Canada
Canada
UK
Canada
Canada
US
Canada
Canada
UK
Switzerland
US
Canada
Canada
xxvi | P a g e
Organization
Vancouver General Hospital
Vancouver Island Health Authority
Veterans Affairs Canada
Victorian Order of Nurses
VOSAW
We Care Health Services LP
Wedgewood Manor
Wikwemikong Health Centre
Winchester Medical Centre
Windsor Elm’s Village
Yee Hong Centre
Zoomer Media
Members
2
2
1
8
1
1
1
1
1
2
1
1
Country
Canada
Canada
Canada
Canada
Ghana
Canada
Canada
Canada
US
Canada
Canada
Canada
xxvii | P a g e
APPENDIX 1l
Website Analytics for www.dementiaknowledgebroker.ca
Lusk, E. The Dementia Knowledge Broker for the Canadian Dementia Resource and Knowledge
Exchange: http://www.dementiaknowledgebroker.ca (launched January 11, 2011)
Timeframe: April 1, 2011-March 31, 2012
xxviii | P a g e
APPENDIX 1m
CDKTN development pictured in a timeline and presented in poster format during conferences and booth exhibits.
xxix | P a g e
APPENDIX 1n
CDKTN Posters (re-designed from earlier collateral of floor standing posters)
xxx | P a g e
APPENDIX 1o
CDRAKE Online Events Collateral
 Invitation & Registration
 Connection Details/Reminder
 Thank You/Follow-up to participants
xxxi | P a g e
CDRAKE Online Event Series (jointly branded):
 Invitation & Registration
 Connection Details/Reminder
 Thank You/Follow-Up to participants
xxxii | P a g e
The CDRAKE Pulse (eNews)
xxxiii | P a g e
Broadcast Recording through UStream
xxxiv | P a g e
APPENDIX 2a
Building Capacity in the AD&D Research Community
Workshop / Presentations
The workshop on KT for dementia researchers: Grant
writing strategies in 2011 provided tools and shared
expert insights as to how KT can be successfully
incorporated into dementia grant proposals. The
workshop content will be refined and delivered via a
webinar format in 2012
# of registrants
15
Workshop date
September 2011
The Geriatric Services Conference 2011 workshop
session on Becoming media savvy - Creating traction
for dementia research and care allowed an expert
panel on dementia research, media relations and
social media to share their knowledge and field
questions about successful strategies to relay
messages about dementia research and care to a
broad audience
25
October 2011
The Clinical Neuroethics Medical Humanities Night
held in January in Vancouver focused on
neurodegenerative disease in Canadian Aboriginal
People.
16
January 2012
The webinar on Dementia research and care in social
media: Creating New KT Opportunities in March 2012
provided the opportunity to discuss the use of social
media as a dissemination tool for dementia research in
further detail and this will be followed up with a
webinar on media relations in June 2012.
57
March 2012
Giles, C: lecture Quebec Research Days ~ “Conducting
KT for different research themes and projects”
provided a vision of the steps and difficulties to
generate meaningful KT information. The lecture was
presented to students and researchers of the Quebec
Network for research on aging.
45
October 2011
xxxv | P a g e
CDRAKE presented at the Canadian Association of
Gerontology 40th Annual Scientific and Educational
Meeting & Pan Am Congress, in October 2011 in
Ottawa Ontario on National Change: Learning from
local and provincial experiences related to behavioural
support systems (Harris M, Clark S, Lusk E, Le Clair K).
The audience included approximately 20 researchers,
policy makers and care providers.
20
October 2011
xxxvi | P a g e
APPENDIX 2b
Knowledge User – Webinars
Building Capacity in Knowledge Users - Webinars
Date
Title
Live
Participants
91
Recording
Playbacks*
6/Apr/11
Advocacy and the Impact of Public Engagement on Government
Policy
21/Apr/11
Frailty, Disasters & Dementia: What health providers need to know
182
9/May/11
Fragilité, désastres et démence : Ce que les intervenants doivent
savoir
24
19/May/11
Défense des intérêts des familles et des personnes atteintes de la
maladie d’Alzheimer
70
24/May/11
253
6/Jun/11
Early Onset Dementia – Three Different Journey’s with Early Onset
& Information on Early Onset Support Groups
Speak Up: Start the conversation about end-of-life care
15/Jun/11
Police Interaction with Persons Affected by Alzheimer’s Disease
226
28/Jun/11
Middle Stages of Dementia: Supporting persons with dementia and
their families
242
29/Jun/11
271
21/Jul/11
Identifying Vulnerable Seniors: An 'in-the-field" dementia screening
tool for police officers
Understanding Responsive Behaviours as a Way to Enhance Care
429
144
1/Aug/11
Late Stage Dementia: Overview
395
149
25/Aug/11
Speak Up! Start the conversation on end-of-life care
264
88
19/Sep/11
Palliative and Therapeutic Harmonization: A new model for end of
life care in frail older adults
289
114
26/Sep/11
Early Onset Dementia - Four Different Journey’s With Early Onset
Dementia *Repeat Session*
157
200
20/Oct/11
Person Centered Culture
227
368
14/Nov/11
Creating Culture Change in LTC Homes in Canada: A Person Centred
Approach
189
163
29/Nov/11
Les Droits des Ainés en Résidence
44
17
5/Dec/11
Supporting Caregivers of Older Adults: Tools and Resources for
Service Providers, Program Planners and Policy Makers
125
94
12/Jan/12
Health Promotion and Dementia: Creating a Health Promotion
Framework Through Participatory Engagement
264
79
18/Jan/12
Importance of an Early Diagnosis
194
87
19/Jan/12
Self Management and Dementia
233
101
336
xxxvii | P a g e
23/Jan/12
ABCD of CJD
156
84
26/Jan/12
How I Live Well
197
164
14/Feb/12
Emergency Preparedness Facilitated E-Learning Series
34
N/A
21/Feb/12
Emergency Preparedness Facilitated E-Learning Series
30
N/A
28/Feb/12
Emergency Preparedness Facilitated E-Learning Series
31
N/A
6/Mar/12
Emergency Preparedness Facilitated E-Learning Series
25
N/A
27/Mar/12
Frontotemporal Dementia: Facing the Challenges for Patients,
Family Members, and Clinicians
322
13
* event recording started July 21, 2011
To access past events visit: www.dementiaknowledgebroker.ca/past-events
xxxviii | P a g e
APPENDIX 2c
Research Projects Building Capacity among Care Givers



Good Days/Bad Days is an investigation of how people with non-Lewy-body, mild-moderate
dementia and their caregivers describe fluctuations in their symptoms from one day to the
next. This study seeks to discover which symptoms and changes are implicated by patients
and caregivers and which questioning methods elicit the most descriptive and useful
information about this phenomenon. Analysis of brief clinical interviews with over 30
patients and caregivers carried out in the first phase of the study will be presented at
Alzheimer's Association International Conference in Vancouver in July 2012, and suggest
that changes in mood, ability to complete daily tasks and ability/willingness to communicate
are common indicators of good/bad days in AD. Data collection for the second phase of this
study, funded by a CIHR Catalyst Grant, is set to begin in May. In this phase, Dr. Rockwood’s
team will conduct in-depth interviews with caregivers of patients with moderate AD,
inquiring about “normal” symptom expression in contrast to periods of time when the
patient is characterized as notably better or worse. This research may result in the
development of a tool or guide that can be used to help patients, caregivers and health care
providers better recognize and track this phenomenon.
Driving and Dementia: CDKTN partnered with Dr. Paige Moorhouse, Principal Investigator
to raise awareness about the issue of driving with dementia and to provide and evidence
based recourse for family caregivers and physicians. The website, www.notifbutwhen.ca,
was launched in March 2010 and operated over 2011-12 as a repository of relevant
research, educational information, tools and other resources sourced from the Alzheimer
Society of Nova Scotia, The Nova Scotia Registry of Motor Vehicles and various other
stakeholders. The site continues to be accessed by about 200 visitors each month with an
average of 5 pages of information accessed per visit.
Knowledge Synthesis - Meta-ethnography of paid dementia care workers' perspectives on
their jobs. Dr. Kenneth Rockwood and other co-applicants and knowledge users completed
a CIHR funded synthesis of the literature around the perspectives of paid dementia care
workers on the jobs they do. Being meta-ethnographic, the study looked at qualitative
research from a variety of settings and types of paid dementia care workers (e.g. registered
nurses, physicians, care assistants) in any country. Five overarching themes were reported:
approach to care, education and training, emotional impact of the work, organizational
factors, and relationships on the job. Interplay of the theme areas shows the importance of
dementia-specific education and training in terms of the approach to care and emotional
impact of the work. This report concluded that closing the gap between policy and practice
is critical, but achieving this will require much attention paid to dementia-specific education
for all workers, including care leaders. The results of this review were presented at the
Alzheimer Europe Conference in Warsaw, Poland in October 2012 and a manuscript has
been submitted for publication.
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APPENDIX 2d
Knowledge User – Media, Articles and Interviews

Media Relations

CDKTN Media/Press Releases:
o CTV Atlantic
o The Montreal Gazette (CDKTN Workshops)
o Geriatric Medicine Research Blog (Dalhousie University)
o Living Well Magazine (Press release for Mobility and
Balance paper release in Jan. 2012
o CNN (Dr. Rockwood’s Age related memory loss more
common in men)
Press articles added to the site:
o When Dementia is in the House(Toronto Commercial
News - Chinese Edition - Nov. 2011)
o Website helps teens cope with dementia in the family
(CTV News - Nov. 2011)
o Dementia will only become more common (The
Chronicle Herald - Oct. 2011)
o Small Health Woes Increase Dementia Risk (New York
Times - July 2011)
o General Health May Tell Your Alzheimer’s Risk (CNN July 2011)
o Surprising Factors That Could Up Alzheimer’s Risk: Study
(Huffington Post - July 2011)
o Frailty Prevalence May Rise Throughout Adulthood (US
News and World Report - July 2011)
o Taking Better Care of Seniors in the ER (CBC Radio –
White Coat, Black Art - March 2011)
o When Dementia is in the House, Baycrest (November,
2011)
Page views on www.lifeandminds.ca 2,114 visits (December-February
2012)
Social Media





Twitter (@LifeandMinds): (May 2011-present)
-Following:1,620
-Tweets: 602
-Followers: 575
YouTube (2009-present)
- CTV Atlantic interviews Dr. Kenneth Rockwood
Flickr: Canadian Dementia Knowledge Translation Network (July 2011present)
-9 galleries (July 2011-present)
-5 new CDKTN galleries (Sept 22, 2011-present)
CDKTN social media has visual presence on www.lifeandminds.ca
Life and Minds (www.lifeandminds.ca) is now social media friendly.
Capability of having “Twitter (@LifeandMinds), YouTube and Flickr) on
our media tab.
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Articles and videos posted
to www.lifeandminds.ca
























Alzheimer Disease International Conference 2012 (March, 2012)
Make a memory and walk for a purpose (March, 2012)
Age related memory loss more common in men(CNN - Jan 2012),
Tracking seniors' mobility critical (The Chronicle Herald - Dec. 2011),
Halifax study shows need for mobility tests on seniors(Global News Dec. 2011)
CBC Information Morning: Christina Martin (Artist in Residence) (Sept
22, 2011) and Dr. Kenneth Rockwood (Sept 22, 2011)
“Heart & Soul Summer Arts Camp” (Feb 21, 2012)
“Aging in Individuals and Populations/Mathematical Modeling”
(presentation by Dr. Arnold Mitnitski on Feb. 21, 2012-Dalhousie
University)
CDKTN Newsletter (Jan. 2012) http://www.lifeandminds.ca/videos/
Canadian Conference on Dementia Poster (October 2011)
Globe – Alzheimer Café story posted – March 1, 2011
Mobility and Balance Press Release printed in Living Well Magazine
organized through CDHA Nova Scotia (Feb. 2012)
Christina Martin (CTV Atlantic), Feb. 7, 2012
Dr. Kenneth Rockwood (CTV Atlantic) March 2, 2012
“Launching When Dementia is in the House” (Nov 15, 2011)
“RFA: Training Awards and Research Grants” (Oct, 2011)
“10th Annual Kathryn Allen Weldon Public Lecture” recap (Oct, 2011)
“World Alzheimer’s Day” (Sept 21, 2011)
“Conference Update: CCD” - November 17
“RFA: Training Awards and Research Grants” (Oct, 2011)
“10th Annual Kathryn Allen Weldon Public Lecture” recap (Oct, 2011)
“World Alzheimer’s Day” (Sept 21, 2011)
“Conference Update: CCD” - November 17
Videos:
o What is KT?
o Geriatric Medicine Research: Cognition, Frailty, Balance and
Mobility, Social Vulnerability
o Dancing Inside: An Alzheimer's Story
Media Monitoring


Distributed to CDKTN research members (available on CDKTN Intranet)
42 media reports distributed (example referenced in Appendix 1j)
Interviews

Dr. Rockwood was interviewed by CBC’s Colleen Jones (radio and
television interview) on Staying Active in Later Life on April 17, 2012
Dr. Melissa Andrew was interviewed by the Chronicle Herald on March
16, Dementia Plan needed for Nova Scotia on March 16, 2012
Christina Martin (CDKTN/GMR) Artist in Residence was interviewed by
CTV’s Maria Panopalis on February 7th, 2012 ( On site at the VMB,
CDKTN PR representative was on site)
CTV Interview with Dr. Kenneth Rockwood/Kathryn Allen Weldon



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






Lecture 2010
CBC Information Morning: Christina Martin (Artist in Residence) (Sept
22, 2011) and Dr. Kenneth Rockwood (Sept 22, 2011)
CTV Dr. Rockwood interviewed by Steve Murphy (Sept 22,2011)
“What Grandma Meant to say” - The material has been reviewed and
recommendations for action submitted. Ms. Sulzenko was interviewed
on June 29, and a Q&A style article is being written for
www.lifeandminds.ca. Following the posting of the article, an audio clip
from the interview will be made available under the media tab of the
website.
Dr. Rockwood CTV evening news (July 13, 2011) taped and received copy
from CTV producer Bill Dicks (www.lifeandminds.ca).
Sep 20th - CBC Dr. Rockwood Information Morning “What if everything
causes dementia?”
Sep 21st - CBC Christina Martin Information Morning “Artist in
Residence Program”
Sep 21st - CTV (Bill Dicks) reporter on site at the Spatz theatre
September 21
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APPENDIX 2e
Knowledge User – Projects
Projects:
KT that educates the
public about the signs
and symptoms of AD

Project to evaluate CDKTN media tools, videos, drama films, interviews,
music. Knowledge users will work with adult educators and marketing experts
to make recommendations for future work and presentation.
Artist in Residence
Program

Christina Martin has been selected as the ‘Artist in Residence’ for
GMR/CDKN during 2011-12. Meeting with patients, families, researchers
and care providers to learn about the disease from those affected by it,
Christina will write a minimum of three (3) songs for GMR/CDKTN that will
focus on creating lyrics and music to be used as a teaching resource that will
transfer knowledge about Alzheimer’s and dementia to the public. These
songs will be circulated and promoted by CDKTN.
o Launched July 2011;
o C. Martin gathers song material by visiting with support groups such as
Willow Lode in Tatamagouche. Three songs are being written.
o C. Martin is launching the Artist in Residence webpage on her music site
in March 2012.
o Request from the Alzheimer Society of PEI to use the Christina Martin
song at their Walk for Memories fundraiser.
Dr. Gray Video

Video production on the life of Dr. Gray and his contribution to Geriatric
Medicine in Newfoundland and Labrador.
o The video is completed.
Dementia Videos
(Meg Federico –
English)
(Édith Fournier –
French)

To gather knowledge user feedback on the value and impact of personal
stories to educate or grow awareness of the signs / symptoms of Alzheimer’s
and dementia. To determine if the stories reflect research and practitioner
experiences.
o Responses included recommendations to show one entire video instead
of 6 separate clips; provide more context around the characters to make
the story easier to follow.
o Requests were received for more videos about Dementia – What else
does a family have to deal with?
o A full report on survey responses is available and will be included in the
research and information gathering for the project “KT that educates the
public”.
o Meg Federico – Welcome to the Departure Lounge is a series of 6 filmed
readings in English. Activity on www.lifeandminds.ca link:
 The Red Tag – 79 views
 The Phone Call – 64 views
 It Doesn’t Resemble Living – 23 views
 Huginn and Muninn – 121 views
 Breakfast with Walter – 31 views
 A Thousand Miles Away – 49 views
o
Edith Fournier – J'ai commencé mon éternité is a series of 6 filmed
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readings in French. Activity on CDKTN’s YouTube account:
 Clip 1 – Elle égrène ses heures – 55 views
 Clip 2 – La crise conjugale – 24 views
 Clip 3 – Le besoin d’aide – 13 views
 Clip 4 – La mémoire et l’identité – 33 views
 Clip 5 – Néanmoins, VIVRE – 22 views
 Clip 6 – L’hebergement – 19 views
Tiffany Chow – “When
Dementia is in the
House”

To better enable children to cope with Dementia in their homes by
understanding their knowledge needs, enable care giving by young children
and adjusting caregiver expectations and interest.
o Webpage was launched November 15th
o The webpage continues to be well received and since its launch, has
generated over 4712 page views as of April 31, 2012
-Assisted Baycrest with press release and promotion
-Articles and CDKTN mentioned: Brandon Sun, The Cape Breton Post, CBC,
CTV (National), Today Commercial News, The Star and The Globe and Mail
CDKTN National ENewsletter

In an effort to continue to develop communication pathways, raise the
Network’s profile among researchers and users, CDKTN now delivers a
quarterly E-newsletter to enhance the existing website and raise the visibility
of CDKTN activities, partner presence, current news and resources for site
visitors and members. The E-newsletter will focus on distributing the latest
CDKTN news, events, media monitoring, social media and related CDKTN
activity updates through the research member’s intranet
http://intranet.cdktn.ca as well as informing the general public through
www.lifeandminds.ca.
Dementia Awareness
Training:

CDKTN has partnered with an international dementia services provider to
create a flexible training package for general dementia awareness, aimed at a
variety of non-frontline care groups in the private and public sector, which we
refer to as Public Contact Service Personnel, in North America, based largely
on modified content developed by Dementia Services Development Centre,
Stirling, UK.
Fitness and Frailty

The Fitness and Frailty project responds to a CIHR grant deliverable that
requires CDKTN to facilitate exchange of knowledge between a prominent
researcher and knowledge user s using the www.lifeandminds.ca as
dissemination tool. This project will coordinate interviews with Dr. Rockwood
and Colleen Jones of CBC to report on the value of staying active in later life.
o The project included an interview from Dr. Rockwood speaking to the
benefits of staying active, how this slows the disease progress of
dementia, and what patients and their families can do to stay active.
Interview posts are hosted www.lifeandminds.ca, articles for the CDKTN
newsletter are circulated along with a blog posting in Geriatric Medicine
Research and www.dementiaknowledgebroker.com.
o The anticipated outcome is that the interviews and articles generate
conversation and empower users to apply new or existing knowledge. We
are connecting the general public to research in dementia and
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encouraging the development of more fitness programs for older adults.
Projects Pending:
Website – Addition of French
language option

Funding was not awarded for this project. CDKTN project office is
identifying a new funding opportunity for this effort.
KT Tools to encourage
dissemination and access to
resources/current materials Grant
funding pending CIHR decision June
2012

Educating Atlantic Canadians about available Alzheimer and
dementia information, resources and knowledge sharing tools
CDKTN Research Members
Database
June 2012

To provide CDKTN network members with a tool for posting and
sharing their published papers. To provide the public with access to
the searchable database of published research and solicit their
feedback on perceived gaps in research.
CDKTN Database “Symptoms of
Alzheimer’s and list of community
resources”
June 2012

To create a database of the experience of dementia from the
perspective of those living with it.
CDKTN Public Relations and
Communication Plan
July 2012

The efforts are in the initiation stage. The team includes representatives
from the CDKTN Project Office and one each from Themes and Nodes
o Objective: coordinate internal and external efforts to promote CDKTN
activities, outputs and to highlight leadership, publications, event
involvement, public speaking etc.
Standardizing KT
September 2012

This initiative meets a professional need set a standard of consistent KT
operation from project conceptualization through a review process that
assesses KT opportunities and components, and finalizes in increased KT
output. The project will develop innovative models to KT&E, develop these
models as vehicles for translating research and disseminating knowledge.
o A well-developed KT standard will lead to the development of a
National “How to KT” Program and curriculum for researchers and
academic organizations – a component of CDKTN’s 5-year plan. This is
strategic positioning CDKTN to host a national “How to KT” conference
in 2014 in partnership with Geriatric Medicine Research, Dalhousie
University.
o Currently, researchers have no prescribed process to follow for preproject assessment, KT opportunities identifiers for ongoing projects,
or a review of translatable KT from completed projects.
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APPENDIX 2f
Knowledge User – Conference Events
Conference & Events
(All events are attended from a National CDKTN perspective and event reports are available
through the CDKTN Project Office)
Alzheimer Society of Nova
Scotia – Early Diagnosis Forum
April 2012
CDKTN booth exhibit at the conference. Forum was focused around early diagnosis and
allowed the general public to speak on their personal experiences and strategies. Guest
speakers provided support for people affected by Alzheimer’s disease and also gave a
number of resources. Geriatric Medicine Research, CDKTN both had a booth at the
Forum.
ADI
March 2012
CDKTN booth exhibit at the conference. Event was attended by delegates from the
Alzheimer Association, carers, educators, medical journalists, nurses, persons with
dementia, physicians, researchers and students. International partnership established
with Dr. Justine Schneider and CDKTN is writing a proposal to determine what are the
active ingredients in knowledge exchange between researchers and decision makers.
CDKTN will facilitate three UK workshops with Managers and researchers and train local
knowledge brokers to build capacity.
Northwood Public Lecture
January 2012
CDKTN booth exhibit at the conference. PATH clinic presented on end of life care. New
members were caregivers and patients affected by Alzheimer’s disease.
Alzheimer Nova Scotia
Provincial Conference
CDKTN booth exhibit at the conference and attended educational sessions. New
members were from the general public and majorities were caregivers.
November 2011
Canadian Conference on
Dementia
CDKTN booth exhibit and key note speech from Dr. Kenneth Rockwood. Membership
was strong and received 62 new research members from this event alone.
October 2011
Canadian Association of
Gerontology Annual Scientific
and Education Meeting and 4th
Pan –American Congress of the
International Association of
Gerontology and Geriatrics
October 2011
CDKTN booth exhibit and key note presentation by Dr. Kenneth Rockwood.
Making the Connection
CDKTN booth exhibit. New members included health professionals from rural PEI.
Positive feedback and strong interested in CDKTN.
October 2011
CDHA Health and Wellness Fair
Capital Health Week
September 2011
Driving and Dementia Lecture
September 2011
CDKTN booth exhibit. New members were mostly CDHA employees interested in
learning more about CDKTN research. The booth attracted students completing their
masters at Dalhousie University.
CDKTN booth exhibit. Research presentation speakers included Drive Able, Dr. Paige
Moorhouse (CDKTN KT Training Award recipient), Laura Hamilton, Research Graduate
Student and government officials. Held at the Royal Bank Theatre, open to the general
public.
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CARP
(Canadian Association of Retired
People)
September 2011
Kathryn Allen Weldon Lecture
September 2011
McMaster Symposium
September 2011
IPA
September 2011
ICAD
July 2011
CDKTN booth exhibit. Dr. Kenneth Rockwood made panel presentation. Event focused
on developing a dementia strategy for Nova Scotia. Event attendees were caregivers
affected by Alzheimer’s disease
CDKTN booth exhibit. Dr. Kenneth Rockwood’s annual public lecture. Attended by
members of the general public, students and health professionals.
CDKTN booth exhibit. Oral presentation to inform about issues disseminating
information online and the efforts of CDKTN to make information available through
CDKTN’s websites. Other panel members included NICE and BAYCREST. Event attendees
were researchers, professionals, care providers, policy makers, academic institutions,
and business.
Poster presentation: “Improving the quality of life for those with Dementia and their
care partners exchange and translation of knowledge and research”
Oral Presentation: Knowledge Translation that puts research-based information in the
hands of knowledge users.
FICCDAT
June 2011
CDKTN booth exhibit. FICCDAT attendance: 1500 people. The majority of exhibitors
were from the technological sector. The conferences’ main focus was on patients with
physical disabilities, (i.e.: accessibility, electric wheelchairs and new technology for
caregivers etc.). CDKTN fell into the ‘caregivers and aging’ sector of FICCDAT.
Northwood Research
Symposium
June 2011
CDKTN booth exhibit at a one-day clinical conference aimed at front-line caregivers to
provide examples of research being conducted in this local. The aim is to promote
research in Long Term Care.
CAHSPR
May 2011
CDKTN booth exhibit. A Strong focus on health policy. Majority of new members were
government officials, students and researchers.
Nova Scotia Centre on Aging
Advisory Board
April 2011
Presentation to NSCA Advisory Board concerning the nature of knowledge translation,
and the activities and goals of CDKTN.
Changing Melodies Forum
April 2011
CDKTN booth exhibit. There was a focus on the effects of dementia and how patients
and care providers are coping with the disease. Attendees gave personal responses,
which gave an intimate perspective.
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APPENDIX 2g
Knowledge User – Posters and Additional Presentations

Forbes, D., Abram, J., Blake, C., Finkelstein, S., Gibson, M., Morgan, D.G., Markle-Reid, M., & Thiessen, E.
(2012). Dementia Care Knowledge Needs of a First Nation Community: A Success Story. Oral presentation.
Alzheimer's Association International Conference, July 14-19, 2012, Vancouver, BC.

Blake, C., Forbes, D., Finkelstein, S., Gibson, M., Morgan, D., Markle-Reid, M., Leskovar, C., Culum, I., &
Thiessen, E. (1012). Knowledge needs and knowledge exchange in rural dementia care networks. poster
presentation Art.hur Labatt Family School of Nursing and the Iota Omicron Chapter of Sigma Theta Tau
International Honor Society of Nursing: Celebrating 25 Years of Excellence in Nursing Research
Dissemination 1987-2012, London, ON, May 4, 2012.

Jansen, L., McWilliam, C., Forbes, D., & Forchuk, C. (2012). Knowledge to action: Translation through
relating. Saskatchewan Registered Nurses' Research Conference, Regina, SK, May 2012.

Morgan, D., Walls-Ingram, S., Cammer, A., Crossley, M., Forbes, D., Innes, A. O’Connell, M., & Stewart, N.
(2012). The “need to know”: The value of assessment and diagnosis for caregivers of individuals with
dementia referred to a Rural and Remote Memory Clinic. Poster presentation. 27th International
Conference of Alzheimer’s Disease International, London, UK, March 7-10, 2012.

Jansen, L., McWilliam, C., Forbes, D., & Forchuk, C., (2011). In-home knowledge translation: The family
caregiver’s experience. Oral presentation. 40th Annual Scientific and Educational Meeting of the Canadian
Association on Gerontology & 4th Pan American Congress of the IAGG, October 21-23, 2011, Ottawa, ON.

Forbes, D., Blake, C., Finkelstein, S., Morgan, D., Markle-Reid, M., Gibson, M., Culum, I., Leskovar, C., OseiWaree, J., & Thiessen, E. (2011). Relationships that facilitate and impede knowledge exchange among
rural health care providers and family caregivers of persons with dementia. Oral presentation. 40th Annual
Scientific and Educational Meeting of the Canadian Association on Gerontology & 4th Pan American
Congress of the IAGG, October 21-23, 2011, Ottawa, ON.

Finkelstein, S., Gibson, M., Forbes, D., Markle-Reid, M., Morgan, D., Leskovar, C., Blake, C., & & Culum, I.
(2011). Knowledge needs and knowledge exchange in rural dementia care networks. 15th International
Congress Reinventing Aging through Innovation Care, Research, and Technology, Colloquium on LongTerm Care: Perspectives from the Community and the Nursing Home: International Psychogeriatric
Association Conference. Poster. September 6-9, 2011. The Hague, The Netherlands.

Forbes, D., Blake, C., Salonen, E., Finkelstein, S., Morgan, D.G., Markle-Reid, M., Gibson, M., Culum, I.,
Leskovar, C., & Little, B. (2011). What is required to ensure quality dementia care in rural settings?
Alzheimer’s Association International Conference on Alzheimer’s Disease. Poster. July 16-21, 2011, Paris,
France.

Jansen, L., McWilliam, C., Forbes, D., & Forchuk, C. (2011). Family caregivers' experience of in-home
knowledge translation. Oral presentation. Festival of International Conferences on Caregiving, Disability,
Aging and Technology (FICCDAT). June 5-8, 2011, Toronto, ON.
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APPENDIX 2h
Visiting Scholars and Research Conducted
Visiting Researcher/Student
Research Conducted
Background
Dr. Marcel Arcand
(Fall/Winter 2011-2012 CDKTN Visiting
Scholar)
New educational KT material for
health care practitioners and
researchers about end-of-life care in
advanced dementia.
Professor, Family Medicine, University
of Sherbrooke, Quebec, and the
Sherbrooke Research Center on Aging.
Dr. Teresa Juarez
Interventions that promote functional
capacity and quality of life in persons
with dementia, as well as families and
health service providers.
Health Service Research Unit
Aging Area
Instituto Mexican del Seguro Social
Dr. Rosalinda Sanchez
Drug-drug interactions at the time of
hospital admission and their effect on
hospital stay of geriatric patients
Associate Researcher, Instituto
Mexicano del Seguro Social 2004
Dr. Kevin Peters
Ethical risks of predicting AD
Associate Professor, Trent University
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APPENDIX 2i
Visiting Scholars Program
The Visiting Scholars Program funds 2-6 month fellowships for investigators, academic faculty
and clinicians to conduct research, and deliver other scholarly products such as case reviews
and books, or produce innovative multimedia materials in dementia or knowledge translation
research in Canada.
This is an outstanding opportunity to participate in world class research in dementia KT and
interact with high caliber scholars at the Neuroethics Core & the UBC Hospital Clinic for
Alzheimer Disease and Related Disorders.
Applicants for these competitive fellowships must hold an MD and/or PhD degree.
l|Page
APPENDIX 4a
CDKTN Knowledge Translation Training Grant Program
Reports from Research Projects Funded 2009, 2010, 2011
2008
 Cary Brown, University of Alberta, “Observing and Reporting Pain: Evaluating an
Educational Workshop to Assist Family Caregivers to Identify and Communicate Pain in
Persons with Dementia”
 M. Medelhoueneou, Laval University “Exposition aux contaminants environementaux et
risqué d’atteintes cognitive au sein de la population âgées du Canada
 Mary-Lou Halabi, University of Alberta, “Observing and Reporting Pain: Evaluating an
Educational Workshop to Assist Family Caregivers to Identify and Communicate Pain in
Persons with Dementia”
 Carole Estabrooks, University of Alberta, “Optimizing the Functional Mobility of People
with Dementia Living in Nursing Homes”
 Carole Estabrooks, University of Alberta,” A Systematic Review of Reviews on Instruments
Measuring Quality of Life for Older Adults with Dementia”
 Sherry Dupuis, University of Waterloo,” Mobilizing Knowledge for Persons with Dementia
and Families at Diagnosis: A Participatory Research Project”
 Angeles Garcia, Queen’s University, “Maximizing family physician uptake of new
knowledge on dementia – follow-up techniques for workshops of the CCCDTC3”
 Holly Reimer, University of Guelph, “Promoting person centred mealtime care practices in
nursing homes”
2009
 G. Arsenault-Lapierre, McGill University, Longitudinal study of the neuropsychological,
neuroanatomical and salivary cortisol profiles of individuals with “Mild Cognitive
Impairment”
 Bryna Shatenstein, Université de Montréal, ‘“Demystifying guidance on diet and AD: an
educational initiative for community-dwelling older adults with AD and their caregivers”
 Carrie McAiney, McMaster University “Canadian Behavioural Support System Project:
Strengthening Integrated Care for Persons with Complex and Challenging Behaviours”
 Cary Brown, University of Alberta, “Sleep: A critical but overlooked aspect of dementia
management study”
 Dorothy Forbes, University of Alberta, “Policy, Program and Practice Dialogue Summit:
Rural Home Care’s Use of Research evidence to Inform Dementia Care”
 Iris Gutmanis, St. Joseph’s Health Care London, "Using Theatre to Explore Long-Term Care
Home Health Care Provider Needs”
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



Maggie Gibson, Parkwood Hospital, “Development, Evaluation and Dissemination of a
Bilingual Workshop for Dementia Care Providers Entitled: “Frailty, Dementia and
Disasters: What Health Care Providers Need to Know”
Dr. Sherry Dupuis, University of Waterloo: Murray Alzheimer Research and Education
Project Supporting Persons with dementia Alongside Their Care Partners: Exploring SelfManagement Support for Dementia Care”
Dr. Paige Moorhouse, Dalhousie University and Capital District Health Authority: Division
of Geriatric Medicine “Palliative and Therapeutic Harmonization (PATH):Developing
knowledge translation tools for caregivers of frail adults with dementia”
Dr. Melissa Andrew, Dalhousie University and Capital District Health Authority: Division of
Geriatric Medicine “Implementation and Evaluation of a Comprehensive Geriatric
Assessment Designed for Use in long Term Care Settings (LTC-CGA)”
2010
 Alexandra Jouk, University of Victoria, “Driving and Dementia: Adapting an applied theatre
resource for use with caregivers”
 Laurie Mallery, QEII Health Sciences Centre Division of Geriatric Medicine, “Palliative and
Therapeutic Harmonization in Long Term Care”
 Trish Bilski, Veterans’ Services CDHA, “Evaluation of Knowledge Translation in Dementia
Care Education”
 Mary McNally, Dalhousie University Faculty of Dentistry, “Brushing up on Mouth Care:
Caregiver centered knowledge translation to address the complex care needs of persons
with dementia”
 Debra Morgan, College of Medicine, University of Saskatchewan, “Rural and Remote
Dementia Care: Implementation and Evaluation of a Knowledge Exchange Initiative”
 Iris Gutmanis, St. Joseph’s Health Care London, “Exploring Theatre Based Knowledge
Exchange Strategies”
 Cary Brown, University of Alberta, “Exploring how Knowledge Users Become Aware of the
Online Resource – Understanding Pain in Person with Dementia – and Their Evaluation of
This Resource”
 Tiffany Chow, Rotman Research Institute, Baycrest, “When Dementia is in the House”
2011

Dementia Care Interactive Knowledge Sharing Summit in Partnership with a First Nation
Community – Dorothy Forbes: To enhance the use of best available dementia care
evidence within First Nations communicates and rural settings. The project is aimed at
improving community knowledge regarding the signs, symptoms, treatment and
dissemination of dementia knowledge using information gathered during a Dementia Care
Interactive Knowledge Sharing Summit on the Oneida Nation of the Thames reserve in
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



Ontario to comprehend traditional practices and understandings. This KT project will
contribute to implementation science by enhancing understanding of how best to
disseminate research-based evidence in partnership with a First Nations community.
Stories of our Past: A dementia knowledge translation project with elders and children –
Wendy Hulko: To produce a video and story book for children based on story-telling
sessions of Native Elders. This is part of an ongoing project which is creating stories about
caring for Elders with memory loss, in order to teach nurses in Interior Health about
culturally safe care of Elders. This funding will focus the project on children directed
materials and youth to promote transfer of knowledge between generations. There is a
lack of resources for Aboriginal children on dementia.
Knowledge exchange with the Rural Dementia Action Research (RaDAR) Team: An Action
Plan for Mild Cognitive Impairment and dementia care in rural and remote Saskatchewan
- Debra Morgan: To hold a one-day Action Planning meeting to share the findings from the
Saskatchewan Health Quality Council (HQC) in care and services analysis, to develop
research, KTE and policy recommendations to include in the final HQC project report. The
recommendations will provide the basis for an action plan to guide the RaDAR team’s
ongoing research, KTE and policy-related activities which are aimed at improving care and
support for rural and remote people with dementia.
Research-Based Theatre as a Knowledge Exchange Vehicle for Home-based Dementia Care
- Iris Gutmanis: To produce and evaluate a DVD of a screenplay that has an accompanying
facilitation guide. The Screenplay is based on prior work titled, “Advocating for Hilda” and
uses findings from 52 qualitative interviews to identify four interpersonal care processes
that shape dementia care.
A tool for early detection of nutrition risk among community-dwelling older adults with
early-stage Alzheimer disease to guide decision-making among both frontline health
professionals and family caregivers - Bryna Shatenstein: To develop a checklist-based
algorithm for detecting and targeting nutritional problems in home dwelling older adults
with Alzheimer’s Disease. Previous research will be synthesized using approaches by
health professionals for detecting under-nutrition in older adults in the outpatient setting
to develop this algorithm.
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APPENDIX 5a
Partnership Projects and Outcomes ~ detailed table
Regional Partnerships
Alzheimer Society of BC
Projects & Outcomes
 Knowledge Brokering: link visiting research scholars and promote CDKTN
educational tools and resources.
Canadian Provincial partners

Knowledge Brokering: Registrants from 8 provinces have signed up for the
March 2012 dementia research and care in social media webinar
Michael Smith Foundation for
Health Research

Knowledge Brokering: link foundation members and network to CDKTN
educational tools and resources.
Ontario Alzheimer Knowledge
Exchange

Knowledge Brokering: Police Services and Dementia: This 2-Part series
highlighted challenges and promising practices to support police interacting
with persons with dementia
- Police Interaction with Persons Affected by Alzheimer’s Disease,
June 15 2011, 226 participants
- Identifying Vulnerable Seniors: An 'in-the-field" dementia
screening tool for police officers, June 29 2011, 271 participants
Knowledge Brokering: Healthy Living and Dementia 3-Part Online Event
Series: This series was designed for those interested in learning about
healthy living and dementia. Each session offered a different, yet
complimentary perspective on this topic including health promotion, selfmanagement and how to live well with dementia.
- Health Promotion and Dementia: Creating a Health Promotion
Framework Through Participatory Engagement, Jan 12 1012, 264
participants
- Self Management and Dementia, Jan 19, 2012, 233 participants
- How I Live Well, Jan 12, 2012, 197 participants

RQRV

Knowledge Brokering: Quebec SPA event
Tapestry Foundation for Health
Care

Knowledge Brokering: host a CDKTN workshop on media relations at the 9th
Annual BC Geriatric Services Conference. Promote educational offerings
through Tapestry Network
Trent University

Research Project: Progress in Neurobiology ~ issues related to ethical
problems in neurodegenerative disease recognition and treatment
including strategies to bridge knowledge gaps and research directions.
UBC

Knowledge Brokering: Aging, Mobility and Cognitive Function Laboratory –
workshops and webinar presentations
Knowledge Brokering: Health Research Resource Office (HeRRO) – grant

liv | P a g e


writing and dementia KT workshops
Knowledge Brokering: Support Programs to Advance Research Capacity
(SPARC) – grant writing and dementia KT workshops
Knowledge Brokering: Department of Physical Therapy workshop
presentations “Grant writing and dementia KT workshops”
Vancouver Sun

National Partnerships
Alzheimer Knowledge Exchange
CDRAKE
Details
 Knowledge Brokering: develop a Community of Practice (CoP) on the topic
of Self-Management in Dementia to address misconceptions and ensure
effective use of self-management support strategies by health and social
service providers and others who support people living with dementia by:
- Bringing together those with an interest in advancing selfmanagement in dementia
- Increasing awareness about self-management in dementia
- Identifying existing self-management interventions and deciding
how they could be used or adapted in the context of dementia
- Developing learning opportunities and tools to promote the use of
self-management interventions that support people living with
dementia to play an active role in their own care.
Alzheimer Society of Canada
CDRAKE

Knowledge Brokering: workshop panellist and upcoming webinar presenter
Knowledge Brokering: Webinar Series of online events on timely and
relevant topics related to dementia care highlighted by ASC to connect their
staff and people across the dementia sector to timely information and
resources to help inform practice. From April 1st 2011- March 31st 2012 the
following events were held:
- Advocacy and the Impact of Public Engagement on Government
Policy, Apr 6 2011, 91 participants
- Défense des intérêts des familles et des personnes atteintes de la
maladie d’Alzheimer, May 19 2011, 70 participants
- Early Onset Dementia – Three Different Journey’s with Early Onset
& Information on Early Onset Support Groups, May 24, 2011, 253
participants
- Middle Stages of Dementia: Supporting persons with dementia
and their families, June 28 2011, 242 participants
- Understanding Responsive Behaviours as a Way to Enhance Care,
July 21, 2011, 429 participants, 144 recording playbacks
- Late Stage Dementia: Overview, Aug 1 2011, 395 participants, 149
recording playbacks
- Palliative and Therapeutic Harmonization: A new model for end of
life care in frail older adults, Sep 19 2011, 289 recordings, 114
recording playbacks
- Early Onset Dementia - Four Different Journey’s With Early Onset
Dementia *Repeat Session*, Sep 26 2011, 157 participants, 200
lv | P a g e
-
-
recording playbacks
Person Centered Culture, Oct 20 2011, 277 participants, 368
recording playbacks
Creating Culture Change in LTC Homes in Canada: A Person
Centred Approach, Nov 14 2011, 189 participants, 163 recorded
playbacks
Les Droits des Ainés en Résidence, Nov 29 2011, 44 participants,
17 recorded playbacks
Importance of an Early Diagnosis, Jan 18 2012, 194 participants, 87
recorded playbacks
ABCD of CJD, Jan 23 2012, 156 participants, 84 recorded playbacks
Frontotemporal Dementia: Facing the Challenges for Patients,
Family Members, and Clinicians, Mar 27 2012, 322 participants, 13
recorded playbacks
Alzheimer Society Canada
Canadian Association for
Neuroscience
CIHR

Knowledge Brokering: link members, visitors and network partners to
CDKTN educational tools and resources

Research Projects Funding: partner to promote research in dementia care
and knowledge translation in Canadian Aboriginal communities, KT for
dementia researchers: Grant writing strategies workshop contributor
CIHR
Vancouver Foundation

Knowledge Brokering: promote research in dementia care and knowledge
translation in Canadian Aboriginal communities
Fourth Canadian Consensus
Conference on Dementia
Quebec Provincial Node
Mental Health Commission of
Canada
Canadian Coalition for Seniors’
Mental Health
CDRAKE

Knowledge Brokering: organizing a broad spectrum of knowledge
translation activities arising from this meeting

Knowledge Brokering: A Canadian Networking the Networks Initiative ~
Behavioural Support Systems knowledge translation phase will identify
opportunities for collaborative activities related to the translation of
complimentary resources into practice.
Public Health Agency of Canada
CDRAKE

Knowledge Brokering: Facilitated E-learning series (4) sessions engaging
Health Care providers ~ Frailty: Dementia and Disasters

International Partnerships
A Changing Melody
International
(MAREP & CDRAKE & intl.
partners TBD)
Details
 Knowledge Brokering: Online broadcast and recording to engage groups
from across Canada to participate in the first ever International “A
Changing Melody” conference for/by persons with dementia and their
caregivers.
lvi | P a g e
CIHR
Vancouver Foundation
North Growth Foundation
Mexico
Knowledge Brokering: Translating communication tools for dementia at end-oflife into Spanish for testing and uptake in Mexico as part of the Wellness in
Alzheimer’s Disease project. The project translated communication tools for
dementia at end-of-life into Spanish for testing and uptake in Mexico (funded by
CDKTN-UBC Visiting Scholars Program and through in-kind support from
Mexico).
Chulalongkorn University
Faculty of Medicine, Thailand
Instituto Mexicano del Seguro
Social Epidemiologic and Health
Service Research Unit, Mexico
Dementia Service Development
Centre, Stirling, UK

Visiting Research Scholar:

Visiting Research Scholar:

Research Project & Knowledge Brokering: CDKTN has partnered with an
international dementia services provider to create a flexible training
package for general dementia awareness, aimed at a variety of nonfrontline care groups in the private and public sector, who we refer to as
Public Contact Service Personnel, in North America, based largely on
modified content developed by Dementia Services Development Centre,
Stirling, UK.
UK CLAHRC

Research Project & Knowledge Brokering has partnered with CDKTN to
writing a research proposal to determine the active ingredients in
knowledge exchange between researchers and decision makers
(managers). CDKTN will conduct a literature review, facilitate three UK
workshops with Managers and researchers and train local knowledge
brokers in KT workshop facilitation to build capacity.
lvii | P a g e
APPENDIX 6a
Goal
Reference
Doc.
Deliverable
Completed
In Progress
Pending
Comments
Environmental Scans
1.
Conduct an
environmental
scan
CIHR Grant 35725
Pg 12c, 12g,h,I, k
Identify areas of membership
expertise/strengths (dementia and KT)
(Evaluation Planning Group)
Identify gaps in expertise
Conducted as part of the environmental
Identify strategies and opportuntiies to
address gaps in expertise (Evaluation
Planning Group)
Identify current best practices in KT&E
training in academic settings (Theme 1)
Conducted as part of the environmental
Conduct a comprehensive search of major
computerized bibliographic databases
(Theme 1)
Conduct an internet search of existing KT
training events, workshops, programs
(Theme 1)
Perform key informant interviews with
leading experts in KT and KT training.
(Theme 1)
Gather information about potential
teaching partnerships (Theme 1)
Conducted as part of the environmental scan and
publications referred to above.
Conducted as part of the environmental
Reported in the following deliverables, including two peerreviewed publications:

Illes, J., Chahal, N. & B. L. Beattie (2011). A landscape
for training in dementia knowledge translation (DKT),
Gerontology & Geriatrics Education, 32:3, 260-272.

Chahal, N. & Illes, J. (2011). Dementia knowledge
translation: A directed search for online resources,
Interactive Journal of Medical Research.

UBC Division of Continuing Professional
Development (2011). Environmental scan: Current
issues in dementia knowledge translation, Internal
UBC Report. April 2011.
Conducted as part of the environmental scan and
publications referred to above.
Conducted as part of the environmental scan and
publications referred to above.
Gathered and continues to be developed as part of
educational development and delivery. The UBC CDKTN
team has developed teaching partnerships with
representatives from the following organizations:

Tapestry Foundation for Health Care

Michael Smith Foundation for Health Research

UBC Division of Neurology

UBC Support Programs to Advance Research Capacity
lxvii | P a g e
Goal
Reference
Doc.
Deliverable
Completed
In Progress
Pending
Comments





Major Network Programs: Education & Training
2. Standardize
CIHR Grant 35725 - Pg
curricula and
12c, 12h
training
(SPARC)
UBC Health Research Resource Office (HeRRO)
CIHR
UBC Dept of Physical Therapy
UBC Aging, Mobility and Cognitive Function
Laboratory
Vancouver Sun.
Identify existing knowledge exchange
networks – formal and informal (Theme
2)
Identify KT&E champions across
disciplines and health sectors (Theme 2)
Identify best practices and strategies in KE
communication methods appropriate to
target audiences (Theme 2)
Identify factors that facilitate effective KE
(Theme 2)
Identify challenges and potential solutions
for effective KE (Theme 2)
Identify effective technologies for KE
(Theme 2)
Identify immediate KE needs of
knowledge users (Theme 2)
Conduct internet search of existing KE
networks, events, activities and tools
(Theme 2)
KE environmental scan elements will be
used to inform the devleopment of
CDRAKE and provide baseline data to the
evaluation of CDRAKE (Theme 2)
Identify networks, programs, servics and
initiatives focused on dementia related
KT&E (i.e. First Link Program, P.I.E.C.E.S
Together etc.) (Theme 2)
CDRAKE performed this activity in the development of
Dementia Knowledge Broker.
Develop standardized curricula for a new
brand of ‘dementia KT collaborators’
Standardized curricula have been and continue to be
developed based on workshop evaluations (see below for
list) and the results of the previously described literature
CDRAKE performed this activity in the development of
Dementia Knowledge Broker.
CDRAKE performed this activity in the development of
Dementia Knowledge Broker.
CDRAKE performed this activity in the development of
Dementia Knowledge Broker.
CDRAKE performed this activity in the development of
Dementia Knowledge Broker.
CDRAKE performed this activity in the development of
Dementia Knowledge Broker.
CDRAKE performed this activity in the development of
Dementia Knowledge Broker.
Completed – this is reported in the environmental scan
Completed by P.Stolee as part of the environmental scan
Completed – this is reported in the environmental scan
lxviii | P a g e
Goal
Reference
Doc.
Deliverable
programs in
KT&E
(Theme 1)
Completed
In Progress
Pending
Comments
review, environmental scan, and interviews with dementia
experts.
A proposal to hold a symposium highlighting the
significant impact of knowledge exchange and translation
for an aging population at the 2012 Alzheimer’s
Identify strategies for stimulating
academic environments to provide
support and mechanisms for use of
dementia knowledge
Develop curricula that teaches trainees
to:

Identify research gaps

Focus research questions
Association International Conference is also in progress.
The UBC CDKTN team has successfully launched a Visiting
Scholars Program and interactive dementia KT workshops.
The latter includes conference-based education using live
and technology-enabled learning strategies. Workshops
delivered to date:

Weaving KT through research design in dementia.
Presenters: B. L. Beattie, E. Brief & E. Dwosh.
Moderated by J. Illes. UBC Workshop, Vancouver,
June 2010.

KT for dementia researchers: Grant writing
strategies. Presenters: B. L. Beattie, T. Liu-Ambrose,
L. Li. & J. Eng. Moderated by J. Illes. UBC Workshop,
Vancouver, September 2011.

Becoming media savvy: Creating traction for
dementia research and care. Presenters: B. L.
Beattie, J. Robillard, J. & P. McKnight. Moderated by
B. L. Beattie, L. 9th Annual BC Geriatric Services
Conference, Vancouver, October 2011.

A Clinical Neuroethics Medical Humanities Night is
scheduled for Vancouver in January 2012, with a
focus on neurodegenerative disease in Canadian
Aboriginal People.

E. Brief, J. Mackie, & J. Illes (in press). Incidental
Findings in Genetic Research: A Vexing Challenge for
Community Consent, Minnesota Journal of Law,
Science and Technology.
The UBC CDKTN workshop on KT for dementia
researchers: Grant writing strategies provides tools and
shares expert insights as to how KT can be successfully
incorporated into dementia grant proposals. Evaluation
lxix | P a g e
Goal
Reference
Doc.
Deliverable

related to gaps
Develop protocols,
methodologies, tools for use in
care settings
Make the KT curriculum and materials
available on the CDKTN website
www.lifeandminds.ca
3.
Knowledge
Translation
Training
opportunities
CIHR Grant 35725 - Pg
12c, g, h
Provide opportunities for trainees to
explore, practice and master KT in action
(Theme 1)
Completed
In Progress
Pending
Comments
data will be used to refine and further inform the next
reiteration of this workshop in March 2012.
The Weaving KT through research design in dementia
workshop demonstrated KT principles, specifically the
concepts of synthesis, dissemination, exchange, and
ethically sound application in an Indigenous care setting.
The UBC CDKTN team has delivered and is in the process
of developing other webinar workshops that will be
promoted and made available through the CDRAKE
website.
Publications are available on the National Core for
Neuroethics website (neuroethicscanada.ca) and all
curricula that are developed will be made available on the
CDKTN website.
Part of RFA grant program.
An International / National Visiting Research Scholars
program has been launched and four participants have
successfully completed the program to date.
CDRAKE will develop a cooperative
exchange program for graduate students
participating in the network.
Support traditional training (graduate and
post doctoral students) (Theme 1)


Provide alternative, innovative and
flexible training to increase KT researcher
capacity (especially in rural and remote
areas) (Theme 1)
The UBC CDKTN team has developed partnerships with the
Vancouver Foundation and CIHR to promote research in
dementia care and knowledge translation in Canadian
Aboriginal communities.
Part of RFA grant program.
50% of a Post-Doctoral Fellow’s time is dedicated to
dementia KT
Workshops have been designed to promote interactivity
between facilitators and audience members featuring, for
example, iClickers.
A webinar workshop on social media and KT opportunities
in dementia research and care is planned for March 2012.
lxx | P a g e
Goal
4.
Provide Funding
Opportunities for
KT Training
Reference
Doc.
CIHR Grant 35725 -Pg
12h
Completed
Deliverable
In Progress
Pending
Comments
Offer virtual, on-line mentorship
opportunities (Theme 1)
On-line mentoring opportunities will be considered as part
of the online dementia KT program that is being
developed
Create funding opportunities for postdoctoral, doctoral, masters and
undergraduate level students. (Theme 1)
CDKTN conducts two funding opportunities annually. The
open competition is available to all researchers conducting
research with KT emphasis. The closed competition is
available to CDKTN Research Network Members only and
is a mechanism for driving membership, supporting
member project collaboration, support of trainees
attending CCD and SPA and KT activities.
The Clinical Neuroethics program at UBC offers funded
research opportunities in neurology and the clinical
neurosciences, including dementia KT.
Major Network Programs: Dementia Resource and Knowledge Exchange
5. Develop a
CIHR Grant 35725 - Pg
Develop a network to nationally integrate
national KE
12c, 12i
provincially sensitive information,
network
facilitate knowledge exchange and create
links among stakeholders
6. Knowledge
CIHR Grant 35725 - Pg
Convene national conferences(Theme 2)
Translation and
12c, 12i
Exchange
Faciliate workshops and other forums
Conferences to
build mutual
awareness in KE
across industries
and sectors
7. Research KT&E
CIHR Grant 35725 - Pg
Faciliate development
 industry
partnerships
12c, 12i
of research
between all key
partnerships to
stakeholders
identify priorities for
(Theme 2)
KE and strategies with:
 academic

researchers,

clinicians,

policy
makers,
www.dementiaknowledgebroker.ca
National conference in Ottawa in 2010 Networking the
networks
2012 Project Pending
(Theme 3)
Industry Partnership in Research: example GE/ New
Technologies & Services for Elder Populations
KT&E Research Partnership “Montessori Methods for
Dementia in NS” pending funding
lxxi | P a g e
Goal
Reference
Doc.
Completed
Deliverable

In Progress
Pending
Comments
care partners
8.
Pilot research
CIHR Grant 35725, 12i
Identify and prioritize knowledge and
projects related
resource needs of knowledge users
to KE
through research projects
(Theme 1)
9. Develop an
CIHR Grant 35725 -Pg
Provide national mechanism for
electronic
12c, 12i
disseminating information and resources,
repository of
showcasing new innovations
information,
resources,
innovations
(Theme 2)
Major Network Programs: Person and Care Centered Knowledge Translation
10. Identification of
CIHR Grant 35725 -Pg
Scan local, regional and national
Research
12c, 12j
conferences, direct input from persons
Priorities (Theme
with dementia, their families, care
3)
partners using qualitative and
quantitative methods to idnetify research
priorities
11. Person and
CIHR Grant 35725 - Pg
Identify creative and innovative models to
Relationship
12c, 12j
KT&E.
Centred Models
for KT&E (Theme
Develop models as vehicles for translating
3)
research findings and disseminating to
knowledge users
Raise awareness for existing KT strategies
and tools
Conducted as part of the environmental scan and
publications referred to earlier.
www.dementiaknowledgebroker.com
CDKTN network gathers feedback from conference
participants, workshop members, patients and care
partners for their priorities in knowledge creation. CDKTN
project office to summarize in a report.
2012 Project Pending
KT Translation (Mobilization) Project, GRM/CDKTN Theme
3
2012 Project Pending
(Theme 3)
“Montessori Methods for Dementia in NS” Gail Elliot
McMaster University workshop with LTC home
(Northwood). Pending funding
Canadian Red Cross follow up project in the EP and seniors
area. Connection with Dr. Gibson (RFA winner 2010) and
Judah Goldstein, GMR
Disseminate innovations, evaluate their
effectiveness
lxxii | P a g e
Goal
Reference
Doc.
Deliverable
12. Pilot Research
Projects (Theme
3)
CIHR Grant 35725 - Pg
12j
Develop clinically, person-centered and
relationship based research projects
Evaluate effectiveness of resulting KT
tools and strategies
Network Development
13. Establish a
nationallyfocused network
14. Create and
strengthen the
links, facilitate
two-way
exchange
between
researchers and
Knowledge users
CIHR Grant 35725 - Pg
12c, 12j
CIHR Grant 35725 - Pg
12k
Form a Steering Committee for each
CDKTN Theme each chaired by a scientific
lead
Completed
In Progress
Pending
Comments
Dramas and innovative research based stories – “Dancing
Inside”, Artist in Residence, Red Cross Care Partner videos,
What is KT DVD, French and English Dementia Videos, An
interview with Dr. Rockwood, Geriatric Medicine
Research: Cognition, Frailty, Balance, Mobility, Social
Vulnerability.
Plans for showcasing these tools include dissemination at
conferences, uploading to CDRAKE Knowledge Broker,
making available on www.lifeandminds.ca, circulating to
research partners on intranet.
Evaluate effectiveness includes review by workshop of
knowledge users Project KT that Educates the public June
2011-May 2012; survey for feedback on
www.dementiaknowledgebroker.ca, survey on
www.lifeandminds.ca
National Advisory Board
Management Committee
Theme 1 – Education and Training
Theme 2 – Knowledge Exchange and Brokering
Theme 3 – Patient and Caregivers
Quebec Node
Provincial Node (all other Canadian Provinces)
Theme 1 steering committee is comprised of J. Illes and B.
L. Beattie and has input from postdoctoral fellow J.
Robillard and the UBC Division of Continuing Professional
Development (UBC CPD).
Theme 2 has struck a steering committee. Provide list of
Steering Committee Members and organizations
Theme 3 has chosen to use a variety of measures to
strengthen links including focus groups, public lectures,
workshops to strengthen links with a wide range of
researchers and knowledge users.
lxxiii | P a g e
Goal
Reference
Doc.
Deliverable
Develop a straegic plan of identifying and
building relationships for the Network to
influence decision makers and policy
Conduct regular national and regional
forums/meetings/ conferences to provide
opportunity for input for face-to-face
member involvement, Strategic planning,
evaluation
Use current technology for collaboration
Enhance existing retrieval and feedback
mechanisms for the sharing and exchange
of knowledge
Use KT&E conferences/forums as
significant communication vehicles for the
Network
Continue to develop the capabilities and
communication services of the Network
websites
Completed
In Progress
Pending
Comments
Management Committee meetings occur monthly/every
2nd month depending on member availability, level of
activity, planning activity. These include face-to-face and
teleconferencing meetings.
National Advisory Board meetings occur twice annually.
One face-to-face meeting and one teleconference meeting
Go-to Meeting, projectmanager.com, communication
hub/collaboration software
www.dementiaknowledgebroker.com
2012 Project Pending
(Theme 3)
CDKTN member Research Database
Conferences, workshops, other forums have been used as
communication vehicles. CDKTN is represented at each
activity with one or more of: booth, presentation oral,
presentation poster, workshop facilitation, panel speaker.
A full list of engagements is available in the annual
progress reports.
www.lifeandminds.ca now includes twitter, flicker, media,
special announcements
2012 Project Pending Funding
(Network)
Website - Addition of French Language
Website to be the centralized knowledge
transfer core of CDKTN
CDKTN Research Members Intranet receives regular posts
and messages, members are encourages to post research
questions, visit files such as bi-weekly media reports
www.dementiaknowledgebroker.ca is the centralized
knowledge transfer core for non-research members
CDKTN Research Members Intranet is the centralized
knowledge transfer core for research members who have
lxxiv | P a g e
Goal
Reference
Doc.
Completed
Deliverable
In Progress
Pending
Comments
different needs and communication requirements.
Capitalize on knowledge exchange of
existing evidence and creation of new
evidence through research projects to
enhance knowledge use in practice. Use
KE strategies, web-based technologies,
collaboration spaces and webcasts.
www.dementiaknowledgebroker.ca webinars, community
of practice discussions, articles.
CDKTN Research Members Intranet is the file repository
for RFA award reports and KT deliverables for access by
other members.
www.lifeandminds posts research reports and KT
deliverables for public information and site visitor
feedback in the event the public can identify a gap in
research, suggest follow up research questions, provide
feedback on the research conducted
2012 Project Pending
(Theme 3)
Fitness 2012 – Interviews with Colleen Jones, Dr.
Rockwood and research partners, care partners etc.
Webcast of interview, links to supporting research, KT
activities and further dissemination efforts.
Pay special attention to
the exchange of
knowledge and research
projects addressing :
population differences
15. Accelerate
application and
uptake of
CIHR Grant 35725 - Pg
12l
Each theme will translate,
exchange and apply new
and existing knowledge,
Population
differences
Gender
Culture &
ethnicity
Ethical
implication
of research
Theme 1
Theme 2
Theme 1 Research Projects: Wellness in Alzheimer’s
Disease (funded by CIHR, the Vancouver Foundation and
the North Growth Foundation); translation of
communication tools for dementia ad end-of-life to
Spanish for testing and uptake in Mexico (funded by
CDKTN-UBC Visiting Scholars Program and through in-kind
support from Mexico).
Communication and aging (Fellowship grant under review
at ASOC); ethical framework for early biomarker clinical
trials.
Research project 2011. Details available in annual progress
reports.
Details available in annual progress reports.
lxxv | P a g e
Goal
Reference
Doc.
knowledge to
address health
services gaps
between
Research and
Practice in AD&D
diagnosis,
treatment and
care. Create
knowledge for
immediate needs
through pilot
research
projects.
Completed
Deliverable
close gaps between
research and practice,
create knowledge that has
immediate application.
Theme 3
Link researchers to other key stakeholders
KT&E projects through training new
researchers will focus on knowledge gaps
identified by clinicians, dementia patients,
care partners and opportunities for
application
16. Build capacity in
the AD&D
research
community to
better translate
knowledge to
the user
community
CIHR Grant 35725 -Pg
12l
17. Build capacity in
the knowledge
user community
to better use
CIHR Grant 35725 - Pg
12l
Create a database of the experience of
dementia from the perspective of those
living with it. This resource will identify
health service needs and research topics.
Identify best practices in KT&E training
(Theme 1)
Inform development of standardized
curricula and training in KT&E (Theme 1)
Offer training programs for diverse
settings emphasizing KT&E research
activities and organizational functions
(Theme 1)
Develop person-centered model that
empowers users to apply new and
existing knowledge
In Progress
Pending
Comments
Workshop “how to conduct knowledge translation”.
Details available in annual progress reports.
www.dementiaknowledgebroker.ca researcher led
webinars and communities of practice.
RFA’s awarded based on independent reviewer
recommendations. Management Committee prioritizes
based on feedback from conference participants, network
contacts, knowledge user feedback etc. Awards made to
those projects addressing gaps in knowledge and practice.
Report on RFA’s awarded available through CDKTN
Project Office.
2012 Project Pending
(Theme 3)
‘Alzheimer symptoms’ Database on www.lifeandminds.ca
Conducted literature reviews and partnering with experts
and relevant organizations to identify the best KT&E
training strategies in order to deliver interactive and
technology-enabled training strategies.
2012 Project Pending
(Theme 3)
“KT Translation (Mobilization Project” GMR/CDKTN will
partner to research and develop a KT translation model as
an easy to follow process and procedure for evaluating
research for KT elements, identifying future KT efforts
arising from the initial work; performing integrated KT,
identifying where and how to involve knowledge users in
the research activities; how to disseminate findings; how
to evaluate impact of KT efforts, uptake of information
and measurements of success.
2012 Project Pending
(Theme 3)
General Public access Research Member Database through
link on www.lifeandminds.ca to access and be able to
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Goal
Reference
Doc.
Deliverable
research
Evaluate the effectiveness of these
models, tools and strategies
Identify KT&E best practices to inform
strategies to promote a learning culture
at individual, organization and system
levels
Network Sustainability
18. Establish a
CIHR Grant 35725 - Pg
sustainability
12m
plan for
continued
functioning,
development of
longer-term
deliverables,
securing funding.
Network Evaluation of Performance
19. Develop
CIHR Grant 35725 - Pg
Evaluation
12n
Planning Group
led by Dr. Paul
Stolee, Associate
Professor and
Graham Trust
Research Chair in
Health
Informatics,
University of
Waterloo
Completed
In Progress
Pending
Comments
review, provide feedback, apply knowledge, identify gaps
in research.
KT that Educates the Public Project. July 2011-July 2012
2011 Project Pending
Sustainability
Develop a sustainable evaluation
framework for the Network and training
programs including outcome indicators,
benchmarks for success, identified
sources of information, data collection
methods and tools, strategy for
communication and exchange of
evaluation findings
Conduct formative evaluation in Year One
Report available through Dr. Stolee Evaluation Planning
Group
Conduct summative evaluations including
Goal Attainment Scaling
Benchmarking success indicators for the
development of the Network
Environmental Scan assigned to
Evaluation team 2008
Footnote:
A tick in both the ‘completed’ and ‘in progress’ columns indicates that this objective has been completed, but continues to undergo
refinement according to demand, user feedback, and workshop evaluations.
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