Assignment #3 “Wrap Around Personal Student Eco-Portfolio” (WRAPSEP) Capacity Building Project Results By Penelope Hovorka-Alcock Chantal Daly Joel Wiebe Group Membership Student #1 Penelope Hovorka-Alcock Student number 6062827 Home phone 204-429-2140 E-mail address palcock@mts.net Student #2 Chantal Daly Student number 6779558 Home phone 344-5090 E-mail address gautdal@hotmail.ca Student #3 Joel Wiebe Student number 5216630 Home phone 327-6635 E-mail address wiebejoe@borderland.ca Wrap Around Student Eco-Portfolio (WRAPSEP) Capacity Building Project Results Goal To build capacity to access, utilize, communicate, and collaborate with parents/legal guardians, teachers, school support team, divisional student services team, and community services/agencies in the interest of students with special needs. Overview Introduction – The “Wrap Around Student Eco-Portfolio Capacity Building Project Plan” (WRAPSEP) was designed to better assist the parent(s)/legal guardian(s) who have a child with special needs and the classroom teacher(s) to have a stronger on-going relationship with the school team, divisional student services, and community services/agencies so that the recommended strategies and programs for the child with special needs are utilized more within the classroom and home environments. The WRAPSEP project incorporated the use of the “Wrap Around System” for stronger collaboration between the parents/legal guardians as the Consumer Coordinator (“Guardian Angel” – our wording), classroom teachers, the school support team, and the community services members involved with the student with special needs programming. WRAPSEP assisted with the development of a personal student ecoportfolio that follows the student from pre-school (when possible) to their adult years. Also, a handbook was developed as a binder and on a wiki website for the parents/legal guardians and classroom teachers to refer to for assistance and resources. Participants - The WRAPSEP capacity building project plan included students with special needs, parents/legal guardians, classroom teachers, EAs, Resource teachers, school clinicians, divisional student services staff, school administration, and community based service providers (i.e. Family doctor or pediatrician, private Occupational Therapist). Rationale - The “Wrap Around Student Eco-Portfolio Capacity Building Project Plan” explored and utilized the wrap around approach through the practical use of a personal eco-map and student portfolio that follows the student with special needs throughout their pre-school to adult life within and out of the school system. There is a handbook and website provided for the parents/legal guardians and teachers to access. In this way all services involved are more aware of what strategies and programs are being or have been utilized and what resources are available for the students with special needs. As classroom teachers, we are very aware of how difficult it is to keep an on-going relationship with the parents/legal guardians, resource teachers, administrators, clinicians, and community services for the students with special needs and consistently utilize the strategies and programs recommended for the student with special needs within the classroom on a daily basis. The wrap around system includes the parents/legal guardians as the consumer coordinator (“Guardian Angel”), teachers, divisional resources, and community resources involved in the student’s school programming. The use of the “Wrap Around System” improved, in some areas, the collaborative relationships between the student with special needs, home, school, division, and community services in order to better meet the goals for the special needs of students starting from their pre-school years all the way through to the student’s adult years. Format – We used the “Wrap Around System” to encourage more team collaboration among all service members involved with the student with special needs, a student personal eco-map and a student portfolio that follows the student from pre-school to adult years, and a parent/teacher handbook that is available in a binder and on a wiki website. Sample of Student Personal Eco-Map used School Classroom teacher friends Resource Teacher Administrator Social Scripts Behaviour Plan EA assistance daily Agenda / Phone calls Family mom AP Portfolio /Ecomap Agenda/Phone calls dad friends auntie/uncle sister AP Portfolio/Ecomap Enjoys Math Community Loves old cars Pediatrician Child XX CDC Social Worker AP Portfolio/Ecomap E-mail / phone calls Likes to be read to Likes the computer Community Events friends Grade 1 student AP Portfolio/Ecomap E-mail / Phone calls Divisional Behaviorist Divisional Psychologist School Division Words highlighted in these colors mean: Red – High importance to child’s programming Green – Strengths of child Purple – How contact is made between wraparound team members for child Blue + – Difficulties child has with Pink - Important strategies/ progress forms for child Content and how addressed in project plan Definitions – Vocabulary is defined within the handbook and website 1. Wrap Around Approach 2. PATH 3. Personal Eco-map 4. School Support Team Positions/support providers – resource teacher, school counselor, classroom teacher, educational assistant, administrator, literacy support teacher 5. Divisional Service/Support Providers – social worker, psychologist, occupational therapist, speech and language pathologist, behavior specialist, student services administrator, Resource consultant 6. Community Service/Support Providers – pediatrician, psychologist, psychologist, social workers, speech and language pathologist, occupational therapist, other specialists 7. Common Special needs – Anxiety & Stress Disorders, Autism/Asperger’s Syndrome, Blind/Visually Impaired, Deaf/Hard of Hearing, Diabetes, Down’s Syndrome, Dyslexia, English as an Additional Language, Early Behaviour Disorder, Epilepsy, Fetal Alcohol Syndrome, Mental Health Issues, Muscular Dystrophy, Obsessive Compulsive Disorder, Physical Disabilities, Sensory Processing Disorders, Speech & Language Difficulties, Tourette Syndrome, and War Affected Children/Youth Explanation of theory, concepts, and models The Wrap Around Personnel Student Eco-Portfolio (WRAPSEP) was created using various sociological theories and models. To begin, Weber’s (1946) conflict theory was utilized to compare Manitoba’s bureaucratic education system (Bartlett and Freeze, 2005) to the recommended replacement wrap around model (Matanga, Freeze, Duchesne and Nyachoti, 2008). Secondly, the theories behind the creation of the eco-map model were discussed and implemented. Finally, we discussed the positive and negative values of the Wiki website design for students, parents, teachers, administrators and all other members of the inclusive special education group. As educators, we have all experienced at one time or another frustration trying to provide children with special needs with the best possible education within an educational model that fails to support our efforts. Numerous studies have shown that the current bureaucratic model does not effectively meet the needs of children with disabilities (Bartlett and Freeze, 2005; Mantanga, Freeze, Duchesne and Nyachoti, 2008; Koskie and Freeze, 2000; Kueneman and Freeze, 1997). One study revealed numerous flaws within the system such as minimal participation by the parents and the child, a lack of continuity in services from pre-school to post secondary education, resources bought for the benefit of staff and organizations instead of for the individual child’s needs and all members of the Individual Education Plan group working independently instead of collaboratively (Koskee and Freeze, 2005). Evidently, Weber’s (1946) conflict theory adequately describes the problems in our current educational system. The WRAPSEP model promotes Weber’s theory that we should “steer away” from capitalist and individual wealth towards a collaborative wrap around system of care which unifies health care and education together in an effort to support children with special needs. If one compares individualized work to group work, recent studies have found the later to be more effective than at solving complicated problems (Weiten and McCann, 2010). The notion of creating a group where all members feel valued and equally important is essential if a child’s needs are the best interests in mind. The WRAPSEP model focused on the child at a micro-level through the use of the Symbolic Interactionism Theory. This brings forth a better understanding of the child’s social circumstances influencing their health and academic achievements (Brym, Lie and Rythina, 2010). The eco-map, the resource wiki website, as well as the child’s individualized portfolio was to be set up to allow access online to all team members to quickly retrieve and add information to be shared collaboratively, thus was supposed to create a “one stop shopping model” (Freeze and Bartlett, 2005). Due to confidentiality concerns this did not occur. The next tool we decided to incorporate in our project was the eco-map, which is part of the student profile model included in the creation of the portfolio .The notion that positive selfperception will create a positive attitude in Bem’s (1967) self-perception theory has been influential in the creation of the eco-map and student profile (Weiten and McCann, 2010). All members found the eco-map to be a positive asset to the child’s programming. Finally, we discussed the use of the “Functionalist Approach” (Weiten and McCann, 2010) in creating the wiki website. To begin, the wiki website is a collective tool for students, parents, teachers, administrators and specialists that was supposed to be an effective communication tool and provided access to various community services. Secondly, the design was supposed to be valuable in creating a community network for students with special needs. All group members were invited to join a secured branch of the website designed for an individual child with special needs with no prevail due to confidentiality concerns. The wiki website model does support one study’s perception that internet access helps to promote “rapid exchange of information between people separated from each other” (Weiten, and McCann, 2010, p. XL). Another study argues from the latter point of view that individuals are becoming more open to the idea of sharing and borrowing information from each other (Brym, Lie, and Rytina, 2010). Evidently, the wiki website supports the functionalists who believe that individuals from small towns, cities and different provinces can establish an important social connection with each other to further develop their Canadian identity (Brym, R, Lie , J and Rytina, S, 2010). Similarly to this theory, the wiki website was supposed to allow social connections and effective communication between group members. Unfortunately this did not happen. To conclude, the WRAPSEP building capacity plan was developed using the various approaches and models discussed in order to bring individuals from various distances and workplaces to improve the effectiveness of shared information for students with special needs. Critical analysis of ethical, pedagogical, service delivery, and/or service coordination issues Through the hands-on practical approaches of each of our WRAPSEP team project members the following were the pros and cons found from using the Personal Eco-map, Wraparound Approach, and Wiki website. Personal Eco-map PROS: 1. It was easy to understand and put together for all members involved 2. Having the student involved in the process (when able to) was a positive self-reflection for not only the student but also the parent and classroom teacher. 3. It provides a visual overview of the child’s strengths and weaknesses. 4. There are various types of personal eco-map models that can be implemented depending on the age of the child and personal preference. 5. Becomes a spring board for programming throughout their life – has direct continuance 6. It builds context for understanding where the child is. 7. It is child directed rather than adult directed (as much as possible) which gives the child the opportunity to be an active participant in decisions made about their programming in and out of school. CONS 1. In order for the personal eco-map to work more effectively the student must have trust in the person(s) that they are doing their eco-map with. Otherwise it will become a “social-status bias. 2. Parent and/or student have to trust that this is confidential or it will affect the credibility of the personal eco-map. 3. Self-reflection and/or self-knowledge may be difficult for a child/parent to acknowledge. 4. Is there an age or maturity indicator for a child to be able to participate in completing their own eco-map? What has been researched in or still needs to be studied in these areas? Wiki Website PROS: 1. Information is accessible wherever there is an internet connection. 2. Lots of available information, with valuable links to various resources. 3. Google searches for individualized special needs is not necessary with this catalogued system of information and resource links. This is time saving and convenient. 4. Very easy to collaborate on as a group or a team. 5. Free to use and user friendly. 6. Allows for e-mail feedback/correspondence. CONS: 1. Formatting is cumbersome within wikispaces.org. For example, it is difficult to cut and paste graphics. It is not easy to edit the table features. Spacing looks different from editing mode to viewing mode (HTML language takes some getting used to). Sometimes while working in editing mode, the program freezes without saving your work. Need to restart and redo. Need to save work frequently. 2. Parents don’t always have computers or high speed internet access. 3. Schools may not be willing to share information on the wiki website because of confidentiality concerns. 4. Some people may be more comfortable communicating via e-mail or telephone or even passing along agenda books between the home and school. 5. Like all website, they need to be updated regularly and this requires an conscientious and consistent effort. 6. It’s a handy tool, but not a necessity for the wraparound approach. The WrapAround Approach PROS: 1. We have a head start on knowing what the Minister of Education in Manitoba will be implementing soon and we can start incorporating some of these ideas in our teaching practices. 2. The Wrap Around Approach allows Classroom Teachers to have more connections with all specialists and people working with special needs children. 3. The Wrap Around Approach eliminates second hand information. 4. The Wrap Around Approach allows group members to share information frequently and supports the idea that the student’s IEP should be a work in progress. 5. Teachers who use the Wrap Around Approach will be able to better integrate practices from various specialists into the classroom teaching. 6. The Wrap Around Approach allows the parent (the people who know the child best) to be the Case Managers. CONS: 1. The WrapAround Approach will not be as productive if the Classroom Teacher is not comfortable using it; is overwhelmed or is unable to take on a leadership role due to various circumstances. 2. Some Resource Teachers might have difficulties changing their professional role as it has been practiced in the past. 3. There needs to be a conscious effort by all parties to keep the information going on a biweekly basis. The communication must be ongoing, and not only when the student is having difficulties or if there’s an IEP meeting being planned. 4. Even if the Resource Teachers and Specialists are in place, there may be difficulties accessing their services in a timely manner. This could be due to inefficiencies in the system. 5. The Wrap Around Approach will not work well if parents lack the confidence to work with professionals. Parents with less confidence will need more supports in place. 6. The Wrap Around Approach will not be beneficial with parents who are in denial of a child’s disabilities or refuses to play an active role in their child’s education. WRAPSEP Parent Perspective Results Chantal Daly –Parent acting as a Portfolio Manager Introduction I started the WRAPSEP project with the intention of creating a long-term plan that could assist my son with special needs through school. Before I explain the results of the project, I find it important for you to know about my son’s special needs and about the numerous frustrations we have endured along the way and how the WRAPSEP has shown us to be effective in meeting our child’s needs. When my son was 4 years old, I noticed he was very hard to understand when he spoke and this caused him to have frustrations and violent temper tantrums. My husband and I also noticed that he was hyper-sensitive to certain smells and noises and that he unconsciously put everything in his mouth. We knew that something was different with Marcus. We took the first step when parents need support which is consulting his pediatrician. His pediatrician listened to our concerns, observed our son and then referred him to the Child Developmental Clinic for assessments in Speech Language, Occupational Therapy and for a Child Developmental Specialist to access his development. Two months later, we received a call from CDC (Child Developmental Clinic) to come in to see the specialized doctor. The specialized doctor in child development ran a series of tests on Marcus and she agreed that he required assessments in Speech and Language as well as Occupational Therapy for gross and fine Motricity Skills as well as for a possible sensory processing disorder. The requests were sent in and in the meantime, CDC made arrangements for me to talk to the Social Worker in their clinic about Marcus’s violent tempers. After three months, I still had not heard from the department of Speech and Language or Occupational Therapy. I decided to phone them. I was informed that there was a three year waiting list for Speech Language Assessments and that he would not get in before he started school. Having been a teacher for seven years, I understood the system well enough to know that once children start school, they do not receive any help from CDC. The school is responsible for the interventions required. I also knew that there was a three year waiting list for the Speech Language Pathologist to assess students in the division. My husband and I had no choice but to hire a private Speech Language Pathologist to work with our son. We were fortunate to find a French speaking Speech Pathologist who had only one opening in her schedule. The average cost per hour for a Speech Language Pathologist is 80.00$/hour in Manitoba. We were fortunate to find a way to cover the cost. I couldn’t help but wonder about the children whose parents could not afford such costly services. Medical services for our children should be free!!! When I was told about the two year waiting list for services in Occupational Therapy, I stood my ground. I told the woman from CDC on the phone that I was already paying for a private Speech Pathologist and that we couldn’t afford to pay both services. After finding out that we were already paying for a service, she suddenly “knew an Occupational Therapist” that worked part time for them that could give our son a brief three session assessment. What about services for children whose parents aren’t as outspoken as I am? Or parents who are immigrants in Canada or parents who do not understand the system as I do? The second step in getting support for a child with special needs is to go talk to someone who knows the health care system and the educational system. This person can help you decide which route to take to meet the needs of your child. The third step involves phoning the school and asking to meet with the Resource Teachers to talk about your child’s special needs. The Resource Teacher will take copies of your child’s assessment and decide if there is a need for requesting extra funding from the government for children with special needs. In our situation, the Counselor said that we would not receive level II funding because our son’s aggressive behavior wasn’t frequent enough to qualify. The fourth and last step for parents to plan for a child with special needs is to become portfolio managers for them. Our son is in kindergarten this year and the WRAPSEP idea generated by our group was ideal for meeting his academic and social needs. I first met with the resource teacher to discuss what the WRAPSEP project and how I would like this project to be implemented in school to help Marcus. The Resource Teacher read my son’s portfolio and passed it on to his classroom teacher. The classroom teacher had access to all of my son’s medical records as well as interventions in Speech and Language and Occupational Therapy. We then met to discuss the WRAPSEP project and to create my son’s Eco- Map. The Resource Teacher and the Classroom Teacher were impressed by how quickly they got to know Marcus with this model. They were also very grateful to have access to this information. The Resource Teacher agreed to communicate through e-mails and through a communication journal but refused to participate in a wiki website that would be created for our son. She felt it was too risky for confidential issues even though it was explained to her that no names would be posted and that the only people who could add information were those invited to join the group. We agreed to keep in contact once every two weeks. My son’s Resource Teacher as well as his Classroom Teacher kept in contact with me and we have addressed many concerns causing Marcus to get frustrated in school. I don’t think that his social problems at recess would have been addressed as quickly had we not been communicating often through e-mails and the journal. It is now the end of November. I have been told that the Speech Language Pathologist will not be seeing Marcus until February or March in 2011. I am thankful that we still bring him to private sessions once every two weeks in the afternoon. I was also told that unless a problem is identified in the classroom that the school would not send in a request for an intervention with the Occupational Therapist. My husband and I work every night with our son to improve his fine motricity skills and to help him with his speech activities. In conclusion, the steps we took as parents to plan for our child with special needs has been well worth the time and energy. The WRAPSEP has had a positive impact so far and I hope to convince the school that the use of the wiki website designed as a communication tool for students with special needs would save time and would further increase communication between team members. I really enjoyed creating the Eco Map for my son. It was very insightful to see where he As a parent, I feel that children with special needs require strong parent advocates that are willing to do whatever it takes to find supports within a health-care and educational system that seems to shut doors on services they should provide. The WRAPSEP project is an excellent way to create a strong team that will guide children through their academic years. WRAPSEP Classroom Teacher Results Penny Hovorka-Alcock – Classroom Teacher I started the WRAPSEP project by initially working with a student in my classroom along with his mother (guardian angel) and resource teacher. I first met with the resource teacher to discuss what the WRAPSEP project was about and how it would hopefully help the student over his years as a student and adulthood. The resource teacher agreed and we then met with the mother (father unable to make the meeting) and discussed making a personal eco-map with her child and possibly using the wiki website to assist her with communication and providing information. The mother was optimistic about the eco-map but due to not having a computer at home or having knowledge of how to use a computer the wiki website was not put into place. The mom, student, and I met and started the personal eco-map of the child. It went very well but the child was only able to provide minimal information due his maturity level. The resource teacher, mother, and I then decided it would be best to meet with the community agencies involved along with the divisional clinicians in an IEP meeting. The goal was to work on improving the communication with everyone so we are all working together on the child’s programming in school, the home, and community. In the IEP meeting we all agreed to use either phone calls and/or e-mails (whatever worked for best for individuals). No one wanted second hand information – i.e. resource teacher tell classroom teacher and parent what the Divisional Behaviourist, Social Worker, Divisional Psychologist informed them of for new strategies being used in the classroom or at home. The mom wanted to be the first to know of all information before the classroom teacher and/or resource teacher. Everyone agreed to this. The classroom teacher would be responsible for keeping the mother informed of daily behaviours. A bi-weekly update of the child’s portfolio was agreed to be given to all members involved by the classroom teacher through e-mail, except mom who will come to see me biweekly to go over child’s portfolio (due to no computer at home). AP Personal Eco-Map School Classroom teacher friends Resource Teacher Social Scripts Behaviour Plan EA assistance daily Agenda / Phone calls AP Portfolio/Ecomap Family mom AP Portfolio /Ecomap Agenda/Phone calls dad friends auntie/uncle sister Enjoys Math Community Loves old cars Pediatrician Child AP CDC Social Worker AP Portfolio/Ecomap E-mail / phone calls Likes to be read to Likes the computer Community Events friends AP Portfolio/Ecomap E-mail / Phone calls Divisional Behaviorist Divisional Psychologist School Division Words highlighted in these colors mean: Red – High importance to child Green – Strengths of child Purple – How contact is made between wraparound team members for child Blue + – Difficulties child has Pink - Important strategies/ progress forms for child AP Wraparound Portfolio By: Penny Hovorka-Alcock (Grade 1/2 Classroom Teacher) Mom and dad last edit Nov. 2, 2010 (with help from teacher) Enjoys talking about old cars, looking at pictures in books of old cars Likes doing Math hands-on activities (purchased games for him with cars in it) Does not like changing his daily routine – needs to be told ahead of time but still a problem Does not like noisy places, prefers quietness Has a hard time playing with other children including his age (hits them and swears at them) – prefers adults Lots of problems with younger sister – hits and kicks her We are looking at getting a home computer for our son to use and for better communication with everyone. We will have to learn how to use. Social worker and classroom teacher is looking at helping us with this. Have lots of problems going out to community events or even shopping with him Classroom teacher last edit Nov. 2, 2010 Works well when he has his schedule to follow in his daily binder he uses with EA and myself Prefers to do math all day and find books with cars New computer programs working well with him – Jump Math, Writing with Symbols, He likes earning stickers to get a toy car when it is completed – received 2 so far. This does help with him working on other subjects other than Math Loves to be read to and have fit into his daily schedule twice a day Social scripts are showing improvement with him making better choices He has difficulty getting along with others. He has hit and kicked other students. EA and I follow behaviour plan at all times. When we see frustration in him we follow behaviour plan to prevent others from getting hurt. Starting to print and recognize a couple letters of the alphabet but becomes frustrated easily – do 5 minutes of this twice a day – working on increasing the time Parents and I are in contact either through agenda or phone call due to them having no internet access at home. Parents are looking at getting a home computer to keep in touch with e-mails and for their son to use for programs that we are starting to use with him at school. We will with them to help learn how to use the computer/internet. Resource Teacher last edit October 27th IEP meeting went well with several comments on what is working well at home and in school Seems to be good communication with home, divisional clinicians, community services, classroom teacher, and EA that is bringing more positive behaviours for him due to consistency Educational Assistant is improving her skills with the Divisional Behaviourist’s and classroom teacher’s support Divisional Psychologist last edit October 27th Continue using daily schedule with him Continue to be consistent with using positive reinforcement Divisional Behaviourist last edit October 27th We have seen some improvement in the classroom with working closer to other students because of sticker chart and consistent schedule Always pre-warn if changes in schedule When negative behaviours occur go through social scripts on what are good choices Continue using behaviour plan Social Worker last edit October 27th, 2010 He was much happier about school and home when I spoke to him Oct. 29th at home in the evening Visit at school went well and all seems to be going well I have applied for community services with parents We are looking at applying for money to purchase a computer for them to use at home and he will also be able to use some of the same programs the school is using with him. Pediatrician last edit October15, 2010 No changes in meds at this time Conclusion In conclusion, this initially took a lot of work to get started but has been worth the effort. As a classroom teacher I feel much more informed about the student and who to contact if there are concerns in a certain area. I do not have to rely on the resource teacher, who is not always available. Usually the person I need assistance from has been quick to respond and provide assistance to myself or the mom. The mom has said that she feels more comfortable and informed with what is happening for her child with special needs. The family is now willing to get assistance to purchase a computer for her child to use so he has similar programs that are successful with him at school. Also, mom and dad are now willing to learn some computer skills with our and the social worker’s assistance so she can communicate with us without having to always come to the school or use the phone. The wiki website may be a possibility in the near future. It has been a positive outcome in a very short period of time. Hopefully this will be able to continue throughout the child’s life. Implications for students, teachers, and the future of education Parity among team members Voluntary participation A shared vision Effective communication Consensus decision making Mutual goals Shared resources Conjoined responsibilities Collective accountability for outcomes Shared framework Consistent transitional planning for student with special needs Greater parental involvement within and without of the school system Success for student with special needs WRAPSEP in an Adult Educational Setting Joel Wiebe – Teacher at an Adult Education Centre Introduction Since I work with students who attend an adult educational centre, I have decided to focus my contribution to the WRAPSEP project with one of the students who currently attends our school. Many of our students have, for whatever reason, been unable to complete their high school diploma and are taking courses with the intention of fulfilling that goal. In most cases, this has been done to improve personal employment prospects. It has been difficult to select a student from our centre to write about because there are none that I know of that have special needs that are of a kind that require a fully functional Wraparound Approach. Also, most of our students are over the age of 18, and parental involvement, which I view as foundational for the approach to work effectively, takes on a less active/important role. I did select a student, however, partly because he has been diagnosed with ADHD and Asperger’s Syndrome (high functioning ASD) and qualifies as a student with special needs, and partly because we get along well. It is because of this relationship that he was willing to trust me to interview him and write about him as a subject for my research. I have assured him that, although information about his personal background and life situation would be written down and shared for the sake of my research for a university course, his real name would not be used. In fact, he suggested that I use a false name instead, “Pierre LeSharque”. Contextual Background Pierre is a 19 year old student who is new to our school this year (Regional Alternative Educational Centre). He graduated from grade 12 in his home community high school last June. According to his CUM files, he has received Guidance support since grade 5. Throughout his years at his home community school he struggled with a variety of behavior issues. Pierre was diagnosed with ADHD in 1999 and Aspberger’s Syndrome in 2002. He is academically competent where information that is being presented is factual, but he has difficulty when processing that information to applicable situations. He also has difficulties in communicating with others in terms of social interactions. His resource support in his grade 12 school year included Vocational Rehab connections, working through post-high school short and long term goals, and supporting Pierre’s family for what happens for his learning in the coming year. Also, Pierre has worked through self-awareness activities and problem solving around what happens when things go wrong. In his grade 12 school year, Pierre was involved in creating a PATH plan. Included in this process was a school based team (teacher, guidance counselor, resource teacher and administrator), a school division based social worker, and his mother and stepfather. Created in January of 2010, Pierre’s personal goals (to be accomplished by January, 2012) have been to: 1. Take college courses 2. Accompany a local high school aged group as they plan and travel to Italy and Greece 3. Do some acting and continue to make people laugh Family connections have been strengthened when PATH meeting was planned by the school resource team, which they found particularly helpful. Together with his mother and step-father, social worker and school resource team, Pierre also provided input into with his own Individualized Education Plan (IEP). This document identified his areas of strength, strategies found to be helpful, areas that needed continued support, as well as additional recommendations: Areas of strength Use of satire and sense of humour Conscientious and motivated to complete work and assignments (focus) Vivid imagination Eagerness to learn Can begin to verbalize what ASD is Acting – participated in school musical this year Shows regret when he has upset someone Strategies that help Classroom structure and clear expectations around assignments and due dates are important Training for adults in ASD, using strategies from ASD document ? One word directives with non-verbal signs when Justin is in an agitated state Allowing wait time for Justin when asking questions Current medication (Ritalin) working well Areas that continue to require support Accepting changes to his structured day Polite and respectful language, i.e. when asking for help, anxious Discerning appropriate behavior. Pierre uses the modeled behavior from his favourite tv shows and sometimes those aren’t appropriate Relationships with peers his own age Additional recommendations Enroll in college leveled courses Life skills and independence Opportunities to socially connect with others Opportunities to do placements in a work environment with support Remind teachers of Pierre’s need for routine, watch for difficult transitions Connections for family with social worker may be a benefit Vocational rehab support Current Situation After graduation from high school, Pierre’s mother felt that she would no longer be able to be part of his educational programming. She is busy at home with his two younger siblings and feels that since her eldest (Pierre) has graduated from high school her “job is already done.” Without parental supports from home, the role of our centre as a transitional home for Pierre to prepare himself for the world of work and independent living was an option that seemed like a short term sensible choice. After applying for and receiving provincial government funding to attend our centre (RAEC), which included an EA, Pierre’s educational support team from his former high school recommended that he give our centre a try. At our centre, his case director is our resource teacher/principal, who has had personal experience working with Asperger’s Syndrome, since she happens to be a mother of a young boy diagnosed with that condition. Our goal at RAEC is to provide him with the confidence and skills necessary for him to start becoming more independent. Pierre is currently attending RAEC from 9:30 to 2:30 each school day. He participates in regular classroom activities. He requires the assistance of an EA in order to help focus, keep track, and to support his understanding of appropriate behavior in different settings. Pierre sometimes argues with staff members, which creates disruptions in the classroom space. When staff members tell him what they are noticing about his tone of voice and behavior, and when they suggest a different option, Pierre is willing to try different ways to solve problems. He also does well when he is given time to process what he has heard, and time to calm down when he is annoyed or agitated. Pierre’s current IEP has identified three domains or goals: 1 Preparation for the Workforce 2 Social/Emotional Development 3 Independence In working towards his first goal, Pierre is currently working in a Career Development classroom-based course, which focuses on personal management, career exploration, and employment skills. His EA attends the class with him to support his ability to focus, work through problems and frustrations, and understand appropriate behaviour in the setting. Strategies that staff members are using include clearly stating the purpose or goal of the assignment, connecting that goal to the goals that we have set together for Pierre’s learning, providing choices, and adapting the assignments. Pierre has also chosen and registered for his first post-secondary course, a Financial Mathematics course at Assiniboine Community College, which begins in January, 2011. Pierre’s second goal is that of social/emotional development. When he is frustrated or annoyed (anxious or agitated), he has a habit of arguing with people. Once the argument begins, it is difficult for him to understand what other people are thinking or feeling, or to change his behaviour. After a break, he is able to problem solve quite successfully, with support. Signs that Pierre is becoming agitated include an inappropriate volume and tone of voice, an increased rate of speech, and less listening. After a period of wait time, he can reflect back accurately and can identify what has occurred, can accurately express what his needs are in solving the problem, and is willing to listen to and consider the needs of others. Strategies that have been included in Pierre’s IEP include: 1 Direct intervention with the resource teacher 2 Teacher modeling appropriate behaviours 3 Visual aid of the strategy 4 Collaborative Problem Solving model 5 Staff will do check-ins with him so that he is aware of the processes in place and adheres to them The final goal in his current IEP is that of fostering greater independence. Pierre is currently living at home, and plans to do so until he is finished his schooling at RAEC. While he has been given instruction at home about preparing for independent living, he has expressed interest in learning how to plan and prepare meals. He has been working with an EA to plan and prepare full meals, within a budget, for scheduled workshops within the school division. The meals have been well-received and appreciated by the participants. Pierre has also expressed an interest in identifying opportunities to participate in local theatre, so that he is continuing to develop in an area of interest and talent. PERSONAL ECO-MAP FOR PL 19 YEAR OLD STUDENT AT ADULT EDUCATION CENTRE CENTRE Family Mom Family Dad People at School Health Pierre Hobbies Work LaSharque Extended Family Thick line indicates a positive connection Girlfriend Friends School Thin line represents neither a positive nor a negative connection Church Broken line indicates a tenuous connection Arrows at the beginning or end of lines indicate directional flow of time and energy Broken line indicates a tenuous Eco-map Details (Wraparound “Portfolio”) for Pierre LaSharque Family (Mother) Pierre lives with mom, stepfather and two younger siblings, which is his “home base” Mother and stepfather have been involved with school based team/clinicians in working collaboratively Pierre is a loner, doesn’t spend much time with others his own age, finds it hard to fit in prefers adults Would like to see him have more contact with people his own age He enjoys video games – spends much of his time at home gaming Would like to have him do some more household chores (ex. Cleaning up, dishes, shoveling snow, etc.) Would like to see him take more initiative, without him having him to be asked to do something Does not have much of a routine outside of school Is sensitive to little noises when it’s quiet; at other times he can shut everything out – he can either hear nothing or hear everything Fights with younger brother (ten years younger), pesters and bothers him (aggressor in sibling relationships) Frustrated and wants to “give up on this because I’m done” – wants to be rid of parental responsibilities, for him to handle life on his own, yet this conflicts with maternal instincts to provide and protect Not interest in receiving problem solving supports at home What programming we are doing at RAEC does not match what’s going on at home Stressful, tenuous relationship between the mother and the son Family (Father) Pierre sees his father and his wife every other weekend He enjoys time with his father, whom he views as more easygoing and less punitive than his mother - sometimes lets him “get away” with not taking his medication His father has not been involved with Pierre’s PATH or IEP Hobbies Pierre is passionate about video gaming At present he is thinking about, planning and writing a mystery novel – this is currently being done at school rather than at home Work Pierre works every other Saturday evening at a bingo hall canteen He finds this job easy, comfortable and enjoyable Church Church is attended only on special occasions (Christmas, Easter, etc.) Neither a positive nor a negative impact on his life Friends There is one friend (female, but not a girlfriend) with whom Pierre would like to be more than “just friends”, but she has indicated that she is not interested in more than just a “friendship” Although Pierre does talk about friends, in reality, he has had no contact with any of his high school peers since graduation last June His lack of friends makes Pierre feel lonely and he has expressed interest in wishing to have more of them Improved communication and social skills is one of the goals that he has identified that he needs to work on EA Structures and schedules are not vital to Pierre’s learning at this point – he is remarkable flexible in dealing with changes in his daily routine However, there are distractions that need redirection/supervision He enjoys reading, but not as something he would do in his personal time Rewards, such as time allowed to work on his personal novel, can be used as effective motivators Pierre struggles with the urge to argue when it comes to dealing with differing points of view – when this happens, he is learning to take breaks, calm down and do collaborative problem solving He has difficulty getting along with others – he is very opinionated and unknowingly makes others feel criticized and ostracized – he is learning to improve his awareness of others as well as self awareness through collaborative problem solving Relationship with EA and other staff at RAEC is positive and Pierre finds it both purposeful and helpful Resource Teacher/Principal Pierre is working towards a certificate in Business Administration through the Assiniboine Community College His first course, Financial Mathematics, will be starting in January, 2011 He has received provincial funding to cover the cost of his EA while here at RAEC (2 years) Once he turns 21, his public funding for school will end – after that point he may be eligible for vocational rehab funding His newly revised IEP, written with Pierre’s participation, includes social goals that follow a selfadvocacy curriculum developed by Valerie Paradiz1 Divisional Psychologist Last mention of school division psychologist involvement with Pierre was in March, 2004, at the time he and his family were first coming to terms with the ADHD and Asperger’s diagnosis Social Worker A school division based social worker had been involved with the family and the school based team until his graduation from grade twelve Reasonably positive relationship with the family, better relationship with Pierre Pediatrician Pierre is in good health, with vision and hearing within the normal range He requires no special aids or devices He is being medicated with Methylphenidate (Ritalin) twice a day – Pierre administers his own medication, under the supervision of a support staff 1 Paradiz, V. (2009). The Integrated Self-Advocacy ISA Curriculum. Shawnee Mission, Kansas: Autism Asperger Publishing Company. The dosage has increased since his initial diagnosis Vocational Rehab Pierre has met with a Vocational Rehab representative who has identified what services are available to him once school is finished He has also attended Pierre’s PATH meeting Conclusion This project has taken much effort and time, but it certainly has been worth it from my perspective. Even though Pierre is not enrolled in one of the courses that I teach at RAEC, I have gotten to know him (and his EA) much better. His openness to talk about personal and potentially sensitive subjects shows that he trusts our relationship and I appreciate his willingness to do so. Throughout our discussion, I shared personal information about my own background, interests, and struggles as well, and that all contributes to a meaningful relationship. I found that the personal eco-map was a great starting point to begin our conversation because it is easy to enough explain and undertake, but is also flexible enough to fit the complexities of any person’s individual situation and allows for plenty of elaboration. The visual nature of the diagram is also appealing to those who prefer less chunks of written text. It allows for self reflection without having too many “words on the page”. Pierre didn’t have a portfolio that has followed him throughout his school years, but I was able to look through some of his CUM file reports, his PATH plan and his current IEP. In a sense, these function as his portfolio, both educationally and personally, because they contain important information about his educational accomplishments, personal goals and assessments by professionals involved throughout his life. There is no WRAPSEP model as such in place for Pierre, and in his case, it may not be necessary. At this point in his life, there is no functional need to have a large collaborative team of teachers, resource teachers, administrators, various clinicians (within the school division and beyond), medical professionals and other specialists involved with his case. Because of his age and with his situation at home, even his parents are no longer active participants in his case. What does matter, however, is that he is involved. He has an active role in providing ideas and goals, and then reflecting on and providing feedback/assessment for his own personal programming (PATH, IEP, etc.), and this seems to be working well for him. He is collaborating with his teachers at RAEC and is finding meaningful and positive ways to build capacity for his own learning and personal growth. And this is what I believe that the WRAPSEP concept ultimately intends to do. Some of the Resources that we have been reading and using at RAEC include: Aspy, R., Grossman, B. G. (2008). 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