Page 1 Direct payments workbook 1. How to use this workbook This work book forms part of the suite of learning materials that have been developed to support the implementation of part one of the Care Act 2014. These materials summarise and explain the ‘Care and Support Statutory Guidance’ (October 2014) [“the guidance”] and are designed to help those involved in care and support services to understand and implement the Act. The suite of learning materials contains workbooks, PowerPoint presentations and other material for each of the following topic areas: 1. Introduction and overview 2. Information and advice 3. First contact and identifying needs, including assessment and eligibility, and independent advocacy 4. Charging and financial assessment, including deferred payment agreements 5. Person centred care and support planning, including personal budgets, direct payments and review 6. Transition to adulthood 7. Integration, cooperation and partnerships This workbook is about the direct payments requirements of the Act and its statutory guidance. It has been written for learning facilitators and includes exercises, suggested group discussions, points of reflection and case studies that facilitators can use either in their entirety or to pick and choose from as they see fit when designing a learning programme based on the PowerPoint presentation. The workbook can also be used by individuals who wish to learn more about this topic area. You can watch the presentation, read the notes below, and undertake the exercises at a pace and time to suit you. As well as this workbook and PowerPoint presentation, there are also handouts and a shorter, overview presentation on this topic area. Handouts provide easy to print resources that summarise key factual information from the guidance. Page 2 The implementation of the Act requires whole systems change and underpinning this is a need for cultural change. These learning materials alone will not affect such change, but they are one tool that can be used to support people along the journey. In many instances, implementing the Act successfully will require those involved in the care and support system to change the way they work i.e. behaviour change. Research suggests that the way people behave is influenced by their knowledge, skills and attitudes: Knowledge Skills Behaviour Attitudes The PowerPoint presentation and handouts are designed to increase knowledge about the Act or guidance. The questions and exercises in the workbook are designed to spark conversations that encourage people to reflect on their own attitudes and the attitudes of others. They aim to give learners the opportunity to discuss the complexities of implementing the changes in practice, and/or provide a safe way of challenging attitudes that go against good practice. The case studies are designed to provide an opportunity for people to analyse and practice their skills. Key learning point These are used in the workbook as a way of highlighting changes that are likely to have a significant impact on practice i.e. the major changes that the Act brings in. The facilitators’ hints and tips in the workbook signpost facilitators to existing good practice resources on this topic area and/or highlight key changes that are likely to have the most significant impact on practice. The aim is to help facilitators to design interactive learning programmes that are appropriate for their audience. Page 3 Facilitator’s hints and tips To successfully facilitate this module we suggest that you need to: have read the relevant sections of the Act, regulations and guidance have a good understanding of best practice in this topic area remember that there are various modules available and you need to choose the most suitable ones for your learning programme also remember that you can pick and mix questions, exercises and case studies from this workbook or from other topic areas design your training session in a way that accounts for the learning pyramid so as to maximize the experience and learning outcomes for your participants. Average retention rates Lecture 5% Reading 10% Passive teaching methods Audio visual 20% Demonstration 30% Discussion 50% Participatory teaching methods Practice by doing 75% Teach others 90% Source: Adapted from National Training Laboratories, Bethel, Maine Page 4 2. Who is it for? This workbook is about direct payments. It explores sections 31-33 of the Care Act and chapter 12 of the statutory guidance. It is intended to be used to develop learning programmes for: people who have a role in care and support planning and the administering and monitoring of direct payments. staff employed by local authorities who are responsible for care and support planning and the administration and monitoring of direct payments. managers of people undertaking care and support planning and the deployment of personal budgets. 3. Contents This workbook starts with an overview, which summaries the topic area, and identifies relevant key words. It then contains the following sections that match the slides in the PowerPoint presentation: Introduction Making direct payments available Adults with and without capacity Administering and monitoring direct payments Payments and additional costs Use of a direct payment Monitoring usage of direct payments Reviewing direct payments Safeguarding through direct payments Direct payments and hospital stays Discontinuing direct payments Summary Appendices: links to key resources; handouts. Page 5 4. Overview Direct payments, along with personal budgets and personalised care planning, mandated for the first time in the Care Act, provide the platform from which to deliver a modern personalised care and support system. People should be encouraged to be involved in their care planning, and be free to choose how their needs are met, whether through local authority or third-party provision, by direct payments, or a combination of the three approaches. The guidance supersedes the 2009 guidance on direct payments, and reflects the new legislative framework. The local authority has a key role in ensuring that people are given relevant and timely information about direct payments, so that they can make a decision whether to request a payment, and, if doing so, are supported to use and manage the payment appropriately. The route to a direct payment is for a person to request one, but the local authority should support this request by providing the information and advice. The Care Act provides a power to enable direct payments to be made to the person in need of care and support, or a nominated person acting on their behalf if agreed by the person with care needs and the person with care needs has capacity. In cases where the person in need of care and support has been assessed as lacking capacity to request the direct payment, an authorised person can request the direct payment. The direct payment must be sufficient to meet the person’s needs which the local authority is under a duty to meet, or has exercised its power to do so. The direct payment amount will reflect whether the person is required to make any financial contributions, or is requesting a direct payment for only a part of their care and support requirements. 5. Key words The suite of learning materials contains a glossary of key words used in the statutory guidance. The following key words, which are defined in the glossary, are relevant to this topic area: assessment, care and support plan, direct payment, eligible needs, individual service fund, independent advocate, outcomes, personal budget, reablement, support plan, top-up and wellbeing. Page 6 6. Introduction Slide 1 Notes 1. This work book forms part of the suite of learning materials that have been developed to support the implementation of part one of the Care Act 2014. These materials summarise and explain the statutory guidance and are designed to help those involved in care and support services to understand and implement the Act. 2. This presentation is about direct payments. It is intended for: people who have a role in care and support planning and the administration and monitoring of direct payments staff employed by local authorities who are responsible for care and support planning, administering and monitoring of direct payments managers of people undertaking care and support planning and the administration and monitoring of direct payments. 3. The aim of the presentation is to help you reflect on the implications of the Act for your role, so that you will know what you must do differently and what you may need to do differently. Slide 2 Page 7 Slide 3 Notes 1. Direct payments have been in use in adult care and support since the mid-1990s and they remain the Government’s preferred mechanism for personalised care and support. They provide independence, choice and control by enabling people to commission their own care and support in order to meet their eligible needs. 2. Direct payments, along with personal budgets and personalised care planning, mandated for the first time in the Care Act, provide the platform with which to deliver a modern care and support system. People should be encouraged to be involved in their care planning, and be free to choose how their needs are met, whether through local authority or third-party provision, by direct payments, or a combination of the three approaches. The guidance supersedes the 2009 guidance on direct payments, and reflects the new legislative framework. 3. For direct payments to have the maximum impact, the processes involved in administering and monitoring the payment should incorporate the minimal elements to allow the local authority to fulfill its statutory responsibilities. An effective monitoring process should go beyond financial monitoring, because care management responsibilities continue regardless of a person’s choice to take up a direct payment, and it would include aspects such as identifying wider risks and issues. For example non- payment of tax, appropriate employers’ liability insurance and compliance with the rules regarding the checking of a person’s right to work in this country, because all such concerns are lawfully relevant to the authority’s management of risks to its own reputation and further liability. 4. The local authority also has a key role in ensuring that people are given relevant and timely information about direct payments, so that they can make a decision whether to request a payment, and, if doing so, are supported to use and manage the payment appropriately. The route to a direct payment is for a person to request one, but the local authority should support this request by providing the information and advice as detailed above. People must not be forced to take a Page 8 direct payment against their will, but instead be informed of the choices available to them. Slide 4 Notes 1. Direct payments were first introduced in 1997 under the Community Care (Direct Payments) Act 1996. Initially, local authorities were given a power, rather than a duty, to make payments for working age disabled adults. The Government indicated that the user group for direct payments could be expanded without the need for further legislation, should the system prove successful. The discretion under the 1996 Act was extended to include older people in 2000, and further legislation introduced in 2001 to include parents of disabled children and carers. Carers and Disabled Children Act 2000 which inserted new section 17A into the Children Act 1989. 2. A duty to provide direct payments was introduced in 2003 when regulations made under Section 57 of the Health and Social Care Act 2001 made it mandatory for councils to make direct payments to individuals who consented to, and were able to manage them, with or without assistance. Community Care, Services for Carers and Children’s Services (Direct Payments) (England) Regulations 2003 (SI 2003/762) since revoked and replaced by the Community Care, Services for Carers and Children’s Services (Direct Payments) (England) Regulations 2009 (SI 2009/1887). 3. In 2009, provision was extended to persons appointed to receive direct payments on behalf of individuals who lack mental capacity and to persons subject to mental health legislation. Community Care, Services for Carers and Children’s Services (Direct Payments) (England) Regulations 2009 (SI 2009/1887). 4. The Care Act 2014 confirms personal budgets in law for people with eligible assessed needs and carers, including the right to direct payment. Care and Support (Direct Payments) Regulations 2014. Page 9 Slide 5 Notes 1. This data, drawn from the report on the social care activity of Councils with Adult Social Services Responsibilities (CASSRs) in England, shows that there has been an ongoing increase in the number of people aged over 18 who are receiving self directed support (SDS) and/or direct payments provided or commissioned by the CASSR. 2. The figures below indicate the increase in take up and offer of the number of people with self directed support, including direct payments, over a three year period for people aged 18 and over: in 2011-12 the total number of people All ages (18 and over) was: 527,020 in 2012-13 the total number of people all ages (18 and over) was: 611,115 in 2013-14 the total number of people all ages (18 and over) was: 648,380 3. This is mirrored by the increase in number of carers receiving self-directed support and/or direct payments provided or commissioned by the CASSR during the same period in 2011-12 the total number of carers all ages (under 18 and over) was: 78,405. in 2012-13 the total number of carers all ages (under 18 and over) was: 103,340 in 2013-14 the total number of carers all ages (under 18 and over) was: 110,915 4. The majority of the carers receiving self directed support and/or direct payments are aged between 18-64 (60,890), those under the age of 18 years old numbered 1,535 and the remaining are aged 65 and over 1. In addition, the proportion of 1 http://www.hscic.gov.uk/catalogue/PUB14397/comm-care-stat-act-eng-2013-14-prov-anxe.xls Page 10 expenditure on direct payments reported by CASSRs in England has continued to rise, accounting for eight per cent in 2013-14, compared to seven per cent in 2012-13 and four per cent in 2008-09. In 2013-14 £1.4 billion of expenditure was on direct payments compared to £1.2 billion in 2012-13; an increase of ten per cent in cash terms and eight per cent in real terms. 5. Over the five year period from 2008-09 when the figure was £610 million, expenditure on direct payments increased by 125% in cash terms and 103% in real terms.2 6. However, it is clear from the table below that take up of direct payments specifically (rather than SDS more broadly) has plateaued in recent years. Number of people receiving direct payments 2008 / 2009 Physical Disability 24,895 Mental Health 4,450 Learning Disability 11,955 Older People 25,850 2012 / 2013 2013 / 2014 35,885 37,015 8,245 9,090 27,755 31,210 43,265 43,785 Source: www.hscic.gov.uk 7. The Personal Budgets Outcomes and Evaluation Tool (POET) Survey for personal budget holders and for carers of personal budget holders provides an opportunity for people to report their experiences of personal budgets and the ways of managing these including direct payments. See personal budget workbook. 8. In total, 2,022 personal budget holders and 1,386 carers completed the 2013 POET survey. Of these: just under half (47%) reported managing their personal budgets through direct payments paid to them followed by direct payments looked after by someone else (26%), councilmanaged personal budgets (11%) and individual service funds (7%). 2 http://www.hscic.gov.uk/article/2021/Websitesearch?productid=15453&q=direct+payments&sort=Relevance&size=10&page=1&area=both#top Page 11 9. However, within these overall figures there were substantial differences across social care need groups with: working age adults with mental health problems or physical disabilities more likely than older people and working age people with learning disabilities to hold a personal budget in the form of a direct payment paid to them working age adults with learning disabilities more likely than other groups to hold a personal budget in the form of a direct payment looked after by someone else working age adults with mental health problems more likely than other groups to hold a personal budget in the form of an individual service fund older people more likely than other groups (particularly working age people with mental health problems) to hold a council-managed personal budget. 10. The POET survey asked people whether their personal budgets had made a difference to 14 aspects of their lives, and if so whether this difference has been positive or negative. The results indicated that the majority of respondents reported that holding both types of direct payment had made a positive impact on the following areas: physical health mental wellbeing control over life being as independent as you want to be control over support getting the support that you need being supported with dignity feeling safe improved relationships with paid supporters. 11. The POET survey also revealed that holding personal budgets, including both types of direct payments, had made no significant difference to the following aspects of people's lives: choosing where they lived and who to live with getting and keeping a paid job volunteering relationships with family (although there was a trend for people holding direct payments to be more likely to report a positive impact on family relationships than other forms of budget types) 3 relationships with friends3 http://www.thinklocalactpersonal.org.uk/_library/POETNationalReportFINAL.pdf Page 12 Making it Real - Direct Payments The number of people who are receiving self-directed support (SDS)and/or direct payments provided or commissioned by the CASSR primary by client type and extended age group Total number of people receiving SDS Period 2013-14 and/or direct payments People aged 18 to 64 217,785 People with a Physical Disability 91,615 People with Mental Health needs 33,725 People with a Learning Disability 88,445 People with Substance Misuse issues 960 Other Vulnerable People 2,890 People aged 65 or over 430,595 People aged 65 to 74 79,165 People aged 75 to 84 153,540 People aged 85 and over 197,885 Facilitator’s hints and tips You may want to gather information directly from the local authority or via the www.hscic.gov.uk or https://nascis.hscic.gov.uk/ websites to understand what the figures look like for the local area and how this compare with the national average. It might then be useful to discuss the differences and the potential reasons for them. Page 13 Slide 6 Notes 1. This diagram illustrates the main elements of the care and support planning process. 2. If the local authority has a duty to meet a person’s needs (because it is required to or decides to meet needs) it must help the person decide how their needs are to be met, through the preparation of a care and support plan for those with ongoing needs or support plan for carers. The plan must describe what needs the person has, and which needs the local authority is to meet. 3. Everybody whose needs are met by the local authority will have a personal budget as part of the care and support plan/support plan that identifies the cost of their care and support and the amount that the local authority will make available. 4. When someone has a personal budget they can take some or all of the budget as a direct payment (as long as they meet the conditions in the Act and Regulations), i.e. people can chose how much control they wish to take over the arrangement of their care or support. During the care planning stage local authorities must inform the person of the needs that could be met via direct payments. 5. The local authority is under an ongoing duty to keep the person’s plan and personal budget under review, to ensure that their needs continue to be met; they will review the plan periodically, involving the person and agreeing any necessary changes. 6. It is expected that most requests to receive direct payments will occur during the care planning stage as this is when authorities must inform the person of the needs that could be met via direct payments. But local authorities must consider requests for direct payments made at any time, and have clear and swift Page 14 processes in place to respond to the requests. In practice, it may be convenient to consider the request at the same time as a review of the care plan. In these cases, the review should be brought forward so as not to delay the consideration of the direct payment request. 7. Making direct payments available Slide 7 Notes 1. The availability of direct payments should be included in the universal information service that all local authorities are required to provide. This will allow people to be fully aware what direct payments are and whether they are something that are of interest. Note that there is a module on information and advice for more detail on this. The information service should set out: what direct payments are how to request one including the use of nominated and authorised persons to manage the payment an explanation of the direct payment agreement. Note that a nominated person is anyone who agrees to manage a direct payment on behalf of the person with care needs, when the person with care needs has capacity. An authorised person is someone who agrees to manage a direct payment for a person who lacks capacity according to the Mental Capacity Act 2005 the responsibilities involved in managing a direct payment and being an employer making arrangements with social care providers signposting to local organisations and the local authority’s own internal support, who offer support to direct payment holders, and information on local providers case studies and evidence on how direct payments can be used locally to innovatively meet needs. Page 15 2. Local authorities have a crucial role to play in promoting the use of direct payments, and enabling people to make requests to receive direct payments in an efficient way. However, the gateway to receiving a direct payment MUST always be through the request from the person, or where the person has been assessed as lacking capacity an authorised person can request the direct payment on their behalf. 3. Local authorities must not force people to take a direct payment against their will, or allow people to be placed in a situation where the direct payment is the only way to receive personalised care and support. However, local authorities are encouraged to prompt people to consider direct payments and how they could be used to meet needs. 4. The steps to follow after receiving a request for a direct payment will depend on whether the person has been assessed as having capacity to make a decision about direct payments or not. 5. Assessments of capacity must always be made on a case-by-case basis, in relation to the specific decision to be made. Assumptions should not be made due to the existence of a particular condition, nor on whole groups of people. Consideration should also be given to whether capacity is constant or likely to fluctuate. Where it is clear that fluctuating capacity is a known issue, or likely to be, this should be covered in the care plan which details the steps to take where capacity fluctuates. 6. See Handout: Nominated and Authorised Persons. Key learning point The availability of direct payments should be included in the local information and advice service. Facilitator’s hints and tips Increasing the take-up of direct payments requires the right support, the right tools, the right systems and the right attitudes. Thinking about the right support, a key issue is the need to improve the quality and consistency of the support required to encourage people to take up direct payments. There tend to be three types of organisations that provide support: council’s own in-house support services small specialist local services often delivered by user-led organisations larger national or regional organisations that offer support to councils across the country Page 16 It might be useful to discuss with participants what support is currently offered in their local area. Think Local Act Personal (TLAP) resource Best practice in direct payments support – a guide for commissioners might help you to prepare for and structure this discussion. Questions What percentage of people that the local authority funds are in receipt of direct payments? Is the percentage of people continuing to grow? What are barriers to giving more people direct payments? What information do you currently provide? Does it cover the elements outlined above? What measures have you taken to ensure that the information about direct payments is accessible to people with varying needs? Example Abdul is a deafblind man; to communicate he prefers to use Braille, Deafblind Manual and email. He directly employs several staff through direct payments. He receives payroll support from his local direct payments support service. Abdul suggested ways to make direct payments management accessible to him. He communicates with the support service mainly via email but they also use Text Relay. At the end of the month, Abdul emails the support service with details of the hours that his staff have worked. The support service work out any deductions from pay (such as National Insurance and Income Tax) and email him to tell him how much he should pay the staff via cheque. They then send him pay slips to be given to staff. The envelope that the payslips are sent in has two staples in the corner so that he knows who the letter is from. The payslips themselves are labelled in Braille so that he knows which staff to give them to. Each quarter, the support service tells him how much he needs to pay on behalf of his employees in National Insurance and Income Tax. The service also fills in quarterly Inland Revenue paperwork. At the end of the year, the support service sends relevant information to the council, so that they are aware of how the direct payments are being spent. Page 17 Abdul has taken on only some of the responsibilities of employing people; he has delegated some tasks to the support service. Control still remains with Abdul and confidentiality is maintained by using accessible labelling. Questions What measures do you currently take to make direct payments accessible to people with various needs? What else could you do? 8. Adults with and without capacity Slide 8 Notes 1. Where the local authority is satisfied that the person has capacity to make a request for direct payments to cover some or all of their care needs, it must consider each of the four conditions in clause 31 of the Care Act. These conditions need to be met in their entirety; a failure in one would result in the request to receive a direct payment being declined: the adult has capacity to make the request, and where there is a nominated person, that person agrees to receive the payments the local authority is not prohibited by Regulations under section 33 from meeting the adult’s needs by making direct payments to the adult or nominated person (see Schedule 1 of the Direct Payment Regulations) Page 18 the local authority is satisfied that the adult or nominated person is capable of managing direct payments either by himself or herself, or with whatever help the authority thinks the adult or nominated person will be able to access the local authority is satisfied that making direct payments to the adult or nominated person is an appropriate way to meet the needs in question. Example Sahil has a diagnosis of bi-polar disorder and has had a number of admissions to hospital over the last ten years. During his last admission, he acknowledged that his social isolation and a lack of activity during the day has a detrimental impact upon his mental health and is keen to find meaningful and enjoyable activities to maintain his improved mental health and wellbeing. During a care and support planning review meeting he requests a direct payment as part of this personal budget so that he can employ someone to help him meet his need to reduce his social isolation which will be directed by him at his own time and place. He has ongoing support from his care coordinator within the local support and recovery team. He is assessed as having capacity to make the request, is capable of managing the direct payments and it is agreed that the direct payment is an appropriate way to meet these needs. Facilitator’s hints and tips The POET survey found that if the processes involved in setting up a personal budget are complex and poorly communicated this creates inefficiencies and has a major impact on people’s experiences. It also found that most councils do not make the process easy for people and that this was the single biggest factor impacting on their outcomes. Places that are making good progress with personal budgets and a personalised approach are also making good progress with direct payments. It might be useful to have a discussion based around the following statement from a TLAP study Trust is the key: Increasing the take-up of direct payments: “The research shows that staff members are less likely to promote direct payments if they see them as causing more work, or being too risky and that users are less likely to take up direct payments if there are long delays in sorting them out.” Page 19 Slide 9 Notes 1. In cases where the person in need of care and support has been assessed as lacking capacity to request the direct payment, an authorised person can request the direct payment on the person’s behalf. In these cases, the local authority must satisfy itself that the person meets the five conditions as set out in section 32 of the Care Act. As with direct payments for people with capacity, each of these conditions must be met in their entirety. Failure to meet any of the conditions would result in the request being declined 2. An authorised person can request the direct payment on the person’s behalf, and for this to be agreed all of these five conditions must be met: where the authorised person is not authorised under the Mental Capacity Act 2005, a person who is so authorised supports the authorised person’s request the local authority is not prohibited by Regulations under section 33 from meeting the adult’s needs by making direct payments to the authorised person. the local authority is satisfied that the authorised person will act in the adult’s best interests in arranging for the provision of the care and support for which the direct payments under this section would be used the local authority is satisfied that the authorised person is capable of managing direct payment by himself or herself, or with whatever help the authority thinks the authorised person will be able to access the local authority is satisfied that making direct payments to the authorised person is an appropriate way to meet the needs in question. Page 20 Facilitator’s hints and tips There is evidence that local authorities have not been enabling suitable people to manage direct payments on behalf of users who lack capacity by restricting this only to people appointed by the Court of Protection. One of the biggest barriers is a culture of risk aversion and a failure to trust both user-led support and user-directed solutions. You may want to use the selfassessment tool in the TLAP resource A Positive Approach to Risk & Personalisation: A Framework to inform a discussion around developing a culture of positive risk taking. 9. Administering and monitoring direct payments Slide10 Notes 1. The Care Act defines one of the conditions to be met is that the direct payment is an appropriate way to meet the needs in question (or, in respect of after-care services, an appropriate way to discharge its duty under section 117 of the 1983 Act). Local authorities must not use this condition to arbitrarily decline a request for a direct payment. For example there may be instances where a person is obliged to receive services as a condition of mental health legislation (including a community treatment order, guardianship or leave of absence from hospital under the Mental Health Act) In these circumstances it may still be appropriate to give the person the responsibility of meeting their needs via a direct payment although the person is being obliged to receive the services and not choosing to do so. 2. Appropriateness is for local authorities to determine, although it is expected that in general, direct payments are an appropriate way to meet most care and support needs. NB: The Regulations set out that direct payments cannot be made to people subject to a court order for a drug or alcohol treatment programme or similar schemes (see Schedule 1 of the Care and Support (Direct Payments) Regulations 2014). Page 21 3. In satisfying itself that the person, or nominated or authorised person is capable of managing direct payments, the local authority is expected to take all reasonable steps to provide support to people who may require it, and this condition should not be used to deny a person from receiving a direct payment without consideration of support needs. In taking reasonable steps to provide this support to people who may require it many local authorities have contracts with voluntary or user-led organisations that provide support and advice to direct payment holders, or to people interested in receiving direct payments and some put extra funds into the direct payment to give people choice and control if they have nobody in their circle able or willing to help. 4. Consideration of a specialist assessor in determination of support requirements is particularly relevant if one was used earlier in the care and support process (such as assessment). 5. The consideration stage should be performed as quickly as is reasonably practicable, and the local authority must provide interim arrangements to meet care and support needs to cover the period in question. Questions Using your own experience can you think of any cases where it has not been deemed appropriate for a person to receive direct payments? What were the barriers? On reflection is there anything that could have been done differently that might have enabled the person to receive direct payments? Page 22 Slide 11 Notes 1. The person making the request should be provided with written reasons that explain the decision, and be made aware of how to appeal the decision through the local complaints process. 2. Where the decision has been refused, the person in need of care and support, and any other person involved in the request (i.e. the nominated or authorised person) should receive the reasons in a format that is accessible to them. 3. It should set out: which of the conditions in the Care Act have not been met the reasons as to why they have not been met what the person may need to do in the future to obtain a positive decision. 4. The local authority should continue the care planning process so that it can agree with the person how best to meet the needs, without the use of direct payments. 5. The consideration stage should be performed as quickly as is reasonably practicable, and the local authority must provide interim arrangements to meet care and support needs to cover the period in question Example Eleanor is a 92 year old widow who lives alone in a three-bedroom bungalow. She has had Parkinson's disease for many years which limits her mobility and her ability to carry out some of her basic care needs without assistance. During the assessment of her care and support needs it was agreed that she needed support to maintain her personal hygiene, get up and get dressed and prepare her meals. Eleanor requested a direct payment be considered as part of her agreed personal budget as she wants to employ her neighbour to meet her needs on an ongoing basis. She knows her neighbour well and trusts her. This was agreed as Eleanor was assessed as having capacity, is capable of managing the direct payment, and the direct payment is an appropriate way to meet these needs. Page 23 Example Benjamin is subject to a court order for a community drug treatment programme, his request for a direct payment was refused as payments cannot be made for people with these issues or for these schemes. Note: see Schedule 1 of the Care and Support (Direct Payments) Regulations 2014. 10. Payment and additional costs Slide 12 Notes 1. The amount of the direct payment is derived from the personal budget as set out in the care and support plan, or support plan and must be sufficient to meet the person’s needs which the local authority is under a duty to meet, or has exercised its power to do so. Please refer to the personal budget workbook which covers sufficiency and resource allocation in more detail. 2. The direct payment amount will reflect whether the person is required to make any financial contributions, or is requesting a direct payment for only a part of their care and support requirements. 3. Where it is in the person’s interest to combine the plan and personal budget with another form of state support, such as personal health budgets; and the person agrees that plans should be combined, attempts should be made to harmonise all direct payments so that the person does not have multiple payments each with their own monitoring regime. 4. It is ultimately for authorities to decide whether payments are made on a gross or net basis, in consultation with appropriate stakeholders. Gross payments are for the full direct payment amount, and the local authority then recovers any applicable charges from the person. Page 24 5. A net direct payment is allocated after any appropriate charges have been subtracted, and is generally seen as the easiest way to administer direct payments. Net payments should be encouraged as the default method for paying direct payments. 6. Where use of a direct payment will result in any ‘on-costs’ (e.g. recruitment costs or employers National Insurance contributions), these costs should be incorporated into the personal budget amount. To address ‘on-costs’ some local authorities include one-off payments within the direct payment to cover these factors. In addition, other authorities have commissioned support services such as brokerage, and payroll and employment advice. 7. Local authorities still have a duty to ensure needs are being met, even if the person makes their own arrangements via the direct payment, so contingencies may be needed. For example in case of sickness where personal assistants are employed. 8. If the person meets needs by directly employing someone, they will be responsible for all costs of employment including redundancy payments and this should be made clear to people as part of the information and advice process before a decision is made whether to request direct payments. The local authority must ensure that the direct payment is sufficient to meet these costs. 9. Local authorities should also consider how to recover unspent direct payments if the recipient dies. For example, if someone wishes to pay an agency in advance for its services, the council should bear in mind that it may be difficult to recover money paid for services that were not in fact delivered. Councils should also consider, if the direct payment recipient does leave unspent funds to be recovered, that before their death the direct payment recipient may have incurred liabilities that should legitimately be paid for using the direct payments (for example, they received services for which payment had not been made at the time of death). 10. Local authorities should ensure all direct payment recipients are supported and given information in regards to having the correct insurance cover in place. Page 25 11. Use of a direct payment Slide 13 Notes 1. Direct payments are designed to be used flexibly and innovatively and there should be no unreasonable restriction placed on their use, as long as it is being used to meet eligible care and support needs. 2. For example, many local authorities have been developing the use of pre-paid cards as a mechanism to allow direct payments without the need for a separate bank account, or to ease the financial management of the payment. Whilst these can be useful, they should not be provided as the only option to take a direct payment, the offer of a cash payment should always be available if this is what the person requests. It is also important that where a pre-paid card system is used, the person is still free to exercise choice and control. For example, they must not be linked solely to an online market-place that only contains selected providers from which to choose. Local authorities should give consideration to how they develop card systems that encourage flexibility and innovation. 3. The previous 2009 Direct Payment Regulations excluded the direct payment from being used to pay for care from a close family member living in the same household, unless the authority thought it was necessary. Page 26 Example David has been using direct payments to meet his needs for some time, and has used private agencies to provide payroll and administration support, funded by a one-off annual payment as part of his personal budget allocation. David’s wife, Gill provides care for him and is increasingly becoming more hands-on in arranging multiple PAs to visit and other administrative tasks as David’s care needs have begun to fluctuate. They jointly approach the local authority to request that Gill undertake the administration support instead of the agency as they want to take complete control of the payment and care arrangements so that they can best meet David’s fluctuating needs and ensure that appropriate care is organised. The local authority considers that Gill would be able to manage this aspect of the payment, and jointly revises the care plan to detail the aspects of the payment, and what services Gill will undertake to the agreement of all concerned. The personal budget is also revised accordingly. The family now has complete control of the payment, Gill is reimbursed for her time in supporting David with his direct payment, and the local authority are able to make a saving in the one-off support allocation as there are no provider overheads to pay. Facilitator’s hints and tips One of the key issues to draw out here is the need to expand the scope of support that people use direct payments to purchase other than employing staff directly. Too often users or staff are worried that being innovative and flexible will be frowned on as not being good use of public money. If the care and support plan is truly personalised and outcome focused, flexibility should not be difficult. Who Judy is a 78 year old lady with dementia. She lives with her husband Tony. Desired outcome Judy would like to continue to live at home with Tony. The challenge Use of direct payment Judy keeps leaving the house without Tony realising. Judy is very vulnerable on her own in the community as she no longer has any road safety awareness and their home is on a busy main road. The direct payment has been used to purchase some assistive technology so that Tony is alerted when Judy leaves the house. Page 27 Ravi is 62 and has been left with physical disabilities after suffering a major stroke. Ravi would like to continue to live on his own. Dave is a 28 year old man who is suffering from early onset MS. He has been feeling down and is becoming increasingly isolated. Dave would like to attend art classes as this is something he used to do. Ravi is unable to prepare or cook meals. He has been losing weight because he does not like the English style food provided by the ‘meals on wheels’ service. The nearest class is in the next village and using public transport is not feasible. Ravi uses part of his direct payment to pay his neighbour Vindra, to cook the West Indian style food they both like. Dave uses part of his direct payment to pay a local taxi company to drive him there and back every week. You may want to ask participants to read the examples above and think of other examples they know of where direct payments have been used creatively. Alternatively you may want to give participants the information about the people in the examples but not tell them how the direct payment was used. Instead you could ask them to think about how a direct payment could be used to solve the challenge and achieve the outcome. 4. While the Care and Support (Direct Payments) Regulations 2014 maintain this provision regarding paying a family member living in the same household for care, it also provides a distinction between ‘care’ and ‘administration/ management’ of the direct payment. This allows people to pay a close family member living in the same household to provide management and/or administrative support to the direct payment holder in cases where the local authority determines this to be necessary. This is intended to reflect the fact that in some cases, especially where there are multiple complex needs, the direct payment amount may be substantial. The management and administration of a large payment, along with organising care and support can be a complex and time-consuming task. 5. This is not intended to be income replacement and the local authority should be satisfied that that it is necessary to make the payment and that it will only be used for administration and management. The activities, frequency and amount of Page 28 payment should be recorded in the care plan and be taken into account during allocation of the personal budget. 6. Local authorities will need to have in place agreement between all parties about what steps need to be taken in case of a dispute regarding the management of the payment by a household family member Example James has severe learning difficulties as well as various physical disabilities. He has serious trust issues and a unique way of communicating that only his family, through years of care as a child, can understand. The local authority agrees that using a direct payment to pay for care from his parents is necessary as it is the best way to meet James’ needs and outcomes. 7. Direct payments can be made to enable people to purchase for themselves a short stay in residential care, provided that the stay does not exceed a period of four consecutive weeks in any 12-month period. See Section 12.39-44 of the Statutory Guidance for more details on the relevant Regulations. 8. Direct payments cannot currently be used to pay for people to live in long-term residential care. However, people living in care homes may receive direct payments in relation to non-residential care services, for example: to try out independent living arrangements before making a commitment to moving out of their care home, which could be particularly empowering for young people in transition to take part in day-time activities if assessed as additional to the provision contractually agreed by the care home. 9. Note that using direct payments to secure long-term care in care homes is being tested, with the aim of introducing it to all Local Authorities in 2016. 10. Direct payments may be used to pay for care and support from their ‘home’ local authority services; however where a person wishes to do so it may be easier and less burdensome to provide the service direct to the person. Even so, there may be cases where the ‘home’ local authority exercises discretion, for example this could be where a person wants to make a one-off purchase from the local authority such as a place in day care. 11. Direct payments can also be used to purchase services from a different local authority; for example, a person may live close to authority boundaries and another local authority could provide a particular service that their ‘home’ authority does not provide. Page 29 12. The benefits of using pre-paid cards include: their availability to all flexibility and choice for the individual development and promotion of life skills particularly for people without access to a bank account access to services at a lower price quicker access to funds easier to monitor and replace. Questions Does this raise any issues concerning safeguarding for you? What could you do to limit any safeguarding concerns you may have? What are the advantages and disadvantages to the local authority and direct payment holder of using pre-paid cards for direct payments? Example Alan has Parkinson’s Disease resulting in fluctuations in his ability to move. Alan lives at home with his wife Sheena who assists him with most of his personal care. However, when Alan is experiencing an episode of decreased mobility, Sheena needs help to meet her husband’s personal care needs. Alan receives a direct payment and he uses part of it to access support from a local home care agency as and when he needs it. Page 30 Slide 14 Notes 1. Local authorities should give people clear advice as to their responsibilities when managing direct payments, in particular: whether the person in receipt of direct payments needs to register with HM Revenue & Customs (HMRC) as an employer explaining the difference between a regulated and unregulated provider Pension arrangements. 2. As part of the monitoring of the direct payment arrangement, local authorities should check, if appropriate: to make sure any PAYE income tax and National Insurance contributions deducted from an employee’s pay is in turn paid over to HMRC employment payments conform to the national minimum wage counted using the Working Time Directive. 3. The direct payment scheme should be reviewed and consideration given to alternative arrangements that result in the direct payment recipient no longer acting as the employer need to be made, where it is clear that: payments, or returns detailing employee information deductions, have not been made the individual is failing to meet their obligations as an employer generally. 4. Many local authorities have commissioned voluntary and charity organisations to provide support to direct payment holders. 5. The local authority should have regard to the guidance published by Skills for Care detailing minimum levels of support for individual employers and PAs. The Skills for Care guidance recommends local authorities should provide on-going support through access to training activities in a variety of ways and promote the Workforce Development Fund. It also proposes that local authorities promote apprenticeships for PAs. Page 31 Facilitator’s hints and tips Problems in recruiting, employing, retaining and developing personal assistants and assuring their quality can be a disincentive to taking up direct payments. One way to overcome this is through the use of a personal assistant register. A register enables individual employers to search for personal assistants in a specific geographical area, skill level, experience and availability. In some places simple registers have been expanded into full employment services. You may want to ask participants whether this exists in their local area and if so what the strengths and weaknesses of it are. You may want to provide some good practice examples such as www.people4people.org.uk Page 32 12. Monitoring usage of direct payments Slide 15 Notes 1. The local authority must be satisfied that the direct payment is being used to meet eligible care and support needs, and should therefore have systems in place to proportionately monitor direct payment usage. 2. The Care and Support (Direct Payments) Regulations 2014 set out that the local authority must not require information to be provided more often and in more detail than is reasonably required to satisfy themselves the direct payment is being used appropriately. 3. Key features of systems: they must not place a disproportionate reporting burden upon the individual the reporting system should not clash with the policy intention of direct payments to encourage greater autonomy, flexibility and innovation monitoring should be proportionate to the needs to be met and the care package lowering monitoring requirements should be considered for people that have been managing direct payments without issues for a long period. 4. The local authority must review the making of direct payments initially within six months, and thereafter every 12 months. NB: The six month initial review only applies to direct payments issued under the Act, and not to existing direct payments. 5. Where there is integration with personal health budget direct payments, the local authority could agree with the NHS that the social care and health direct payments be combined and that the monitoring is performed solely by the local authority, reporting to health professionals as appropriate. Page 33 Example Mr G has a stable condition and has been successfully managing his direct payment for over two years. The local authority therefore decides to monitor the payment by exception. Notwithstanding the required review in the Act and Regulations, Mr G is now considered to have the skills and experience to manage on his own unless the local authority request otherwise or information suggesting otherwise comes to the attention of the local authority. Facilitator’s hints and tips Good practice guidance in Best practice in direct payments support – A guide for commissioners suggests that personal budget holders find the following things useful: Clear guidance about what is expected in terms of records and paperwork Examples of systems other personal budget holders have found helpful Optional training on managing your personal budget and/or direct payment A nominated link person in the local authority who can be contacted in the event of difficulty Not having to keep receipts for small items of expenditure Clear information on how under-spends will be dealt with For those who require a full audit – different options such as home visits. It might be useful to get participants to think through the degree to which they currently do these things. Questions Thinking about some of the people you know who are in receipt of direct payments, are there cases where it would be appropriate to reduce the monitoring? What do you think might be the impact of reducing monitoring in these cases? How might you balance proportionate monitoring with ensuring the direct payment is being used to meet needs? Page 34 Facilitator’s hints and tips Moving to a more empowering and flexible system demands a significant change in culture and thinking. Unfortunately some elements of bad practice have become commonplace and it might be useful to discuss whether any of the things listed below are common practice in the organisations your participants work in. It is bad practice to limit expenditure to certain kinds of services – people are entitled to their budget because of their need for support in achieving independent living – there is no reason why that budget cannot be spent on whatever best meets that goal It is bad practice to limit expenditure to items previously specified in a support plan – plans are projections, they should not limit how budgets are used. The budget-holder should be able to use their discretion and change how they spend their budget in the light of current circumstances It is bad practice to claw back money that is unspent at the end of a year – a good budget-holder will vary the pattern of expenditure over time and should not be penalised for holding back money from one year to the next. In fact, clawing money back is most likely to encourage wasteful expenditure and will make support arrangements less robust It is bad practice to demand itemised accounts of expenditure – the budgetholder may need to keep appropriate records, however these records are their own and there is no need or value in receipts being passed on to the public body. This is a wasteful and ineffective control system. 13. Reviewing direct payments Slide 16 Notes 1. In addition to monitoring direct payments generally to ensure they are being used to meet care and support needs, the Regulations set out that local authorities must also review the making of the direct payment within the first six months of making the first payment. NB: six month review applies to direct payments issued under the Act, not existing ones. Page 35 2. This review is intended as a light touch one. It should be incorporated within the initial review of the care and support plan 6-8 weeks after sign-off and include elements such as: managing and using the direct payment a discussion to consider any long-term support arrangements that may be appropriate such as payroll, insurance cover and third party support If the direct payment recipient is employing people, the local authority should check to ensure the individual is fulfilling their responsibilities as the employer – within the first six months period or earlier if possible. 3. In practice, after the initial six-month review period, local authorities may wish to consider combining the annual review of the direct payment with the general review of the care plan. This will reduce bureaucracy and allow the local authority to review both at the same time. Link to review workbook. 4. The review should incorporate the person in need of care and support, a nominated/authorised person and, where relevant, any family carer being paid for administrative support. The outcome of the review should be written down, and a copy given to all parties. Incorporating these people will ensure that the local authority receives views from everyone involved in the direct payment, so that it can satisfy itself that there are no initial issues that require resolving. Naturally, if elements of the care and support plan change when the plan is reviewed, then so might the direct payment arrangements. 5. Where there are issues that require resolving, the resolution method should be agreed with all parties involved, as far as is reasonably practicable. Where appropriate, local authorities should advise people of their rights to access the local authority complaints. 6. The review process may result in the independent advocacy duty arising again or indeed for the first time. See independent advocacy workbook. Page 36 Case study Florence Brown is 75 years old and lives alone in a house that she used to share with her husband (who died six months ago) and her two daughters. She suffers from COPD4, is frail and has restricted mobility. She has been admitted to hospital several times for short-periods because of respiratory infections. She used to smoke heavily but gave up when she was first diagnosed five years ago. She receives practical and emotional support from one of her daughters (Mary) who lives nearby, who is divorced with no children. She also has supportive neighbours. The other daughter (Jane) is willing to do what she can, but lives 100 miles away with her husband and three young children and works full-time. Assessment summary Florence has two eligible needs: Maintaining a habitable home environment – Florence is unable, without assistance, to keep her home sufficiently clean to make it safe for her, given her respiratory condition. Maintaining and managing nutrition – Florence is able to consume food and drink, and do some food preparation with assistance, but she would be unable to access it without assistance. The first need is an unmet need. Even after pulmonary rehabilitation Florence is unable to meet this outcome. The second need is currently being met by Mary who prepares her Mum’s evening meal every night and takes her shopping. Florence has one ineligible need: Accessing necessary facilities or services in the local community – Florence is unable to meet this outcome without assistance, but accessing the community is not something Florence is bothered about and hence it does not have a significant impact on her wellbeing. Mary also has eligible needs: Engaging in work, training, education or volunteering – it appears that Mary’s caring responsibilities are preventing her from training to be a teacher Engaging in recreational activities – it appears that Mary’s caring responsibilities are preventing her from engaging in recreational activities 4 Chronic obstructive pulmonary disease (COPD) is the name for a collection of lung diseases including chronic bronchitis, emphysema and chronic obstructive airways disease. People with COPD have difficulties breathing. Page 37 Florence and Mary agreed a combined care and support plan and personal budget. They would like a direct payment to pay the neighbour to support Florence with keeping her house clean and preparing some of her evening meals. However, neither of them know what to pay her and they are not confident about taking on the role of employer. Mary suggests that Jane be the nominated person for the direct payment, but Jane says she would rather Mary undertook this role, and Florence agrees. Questions 1. What steps have to be taken before the direct payment can be agreed? 2. How should the local authority monitor the use of this direct payment? Suggested answers 1. The local authority has to decide whether the meeting of the care and support needs is appropriate for a direct payment. In this case, as in most cases, it is appropriate. Check that none of the conditions set out in the Regulations preventing the local authority from making a direct payment, apply to Florence and Mary’s circumstances. If Mary is to act on Florence’s behalf for the element in the personal budget that is exclusively for meeting Florence’s needs, then Mary will need to undertake the role of the nominated person as set out in the Guidance, and Florence would need to agree to this. The local authority must be satisfied that Mary is capable of managing the direct payment and provide her with support if she needs it. 2. The main focus to begin with is likely to be ensuring that Mary is compliant with the requirements of HM Revenue & Customs (HMRC) in her role as employer, although the local authority will also want to ensure that it is being used for the purpose which has been agreed. After the required first review (after six months) the local authority may lessen the monitoring requirements, if things are running smoothly. Page 38 14. Safeguarding through direct payments Slide 17 Notes 1. Personalisation and safeguarding are two sides of the same coin: empowering people to speak out, enabling them to make informed choices and encouraging communities to look out for one another. Personalisation needs to work for everyone including those who are least able to access services or those considered at greatest risk. Well designed self-directed support processes should be unique to the individual and have checks and balances built in – overprotective approaches can in themselves put people at risk. 2. The introduction of personalisation has brought a change to how safeguarding risks present themselves and how they are recognised and managed. Along with increased freedom to choose and arrange your own care has come the concern about risk of exploitation. Local authorities are losing their leverage as large scale commissioners with some ability to ensure quality in provider standards, while individual service users are a lone voice. 3. When people use a direct payment to employ a personal assistant they are put in a very difficult legal and emotional situation if the assistant abuses them. They are expected to act within employment law and may also be reluctant to disclose problems of harm or neglect as they are afraid of having their payment suspended and the ultimate fear of losing their independence. 4. Contract management and quality assurance will go a long way to addressing safeguarding and personalisation, but without social work skills people will remain with merely increased services or monitoring rather than improved circumstances Page 39 and outcomes. The LGA "Making safeguarding personal: A toolkit for responses" 5 is a good practical guide to methods of working with individuals and families. 5. Some local authorities have developed market places which control quality assurance of care providers and easy-access to the full range of services for people with direct payments. The Department of Health's guide "Practical approaches to safeguarding and personalisation"6 provides a briefing on how self-directed support can help to prevent or reduce the risk of harm and shows how councils are integrating safeguarding and personalisation. Question What would you do if someone using a personal budget told you that their personal assistant was taking money out of their bank account? Example Andy, a young man who lives with his family in Cumbria, has Autism and a learning disability. He received a statement of special educational needs (SEN) while attending mainstream school. After leaving college Andy was offered a place at a day centre for adults with learning disabilities, but he knew he could do much more. He wanted a job – working with cars if possible. Andy found a course at Preston University where he could learn about the different aspects of motor sport, his real passion. But people around Andy were worried about the risks. They worried Andy might not cope with the course, managing money, meals and day-to-day- life. Mostly, they worried Andy would be vulnerable to abuse or exploitation. Andy had, so far, led a very sheltered life, but had also been bullied at college and by local young people who did not understand him. He had a personal budget and wrote a support plan. The plan made clear that the course was so important that the risks were worth it. So the money from social services enabled him to go to Preston and to have some support there. Andy used the natural support of 5 Local Government Association (December 2010) Making safeguarding personal: A toolkit for responses. 6 Department of Health (November 2010) Practical approaches to safeguarding and personalisation. Page 40 the college’s pastoral care team, and gradually made friends as any other young person would do. However, Andy was vulnerable and some people took advantage of him. During his first months at college, Andy lost several hundred pounds, his PSP games console and his TV. He thought these were ‘loans’ to people he could trust. He got support to speak to the police. His supporters helped him to learn from this experience so he wouldn’t be exploited again. Andy successfully finished his course. He now has a part-time job at Halfords. He also works as a volunteer for a community recycling organisation. He says if he had been completely protected from risk, he would never have learned about trust. He wouldn’t have gained the confidence to deal with people trying to take advantage. (Source: In Control factsheet 16 managing risks and safeguarding) ‘People learn by making mistakes. I needed to make mistakes too so I could learn.’ 13. Direct payments and hospital stays Slide 18 Notes 1. There may often be occasions when direct payment holders require a stay in hospital. Suspending or even terminating the payment could result in the person having to break the employment contract with a trusted personal assistant, causing distress and a lack of continuity of care when discharged from hospital. 2. Where the direct payment recipient is also the person requiring care and support, the local authority should explore options to ensure that both the health and care and support needs of the person are being fully met in the best way possible. 3. The person may prefer the personal assistant to visit hospital to help with personal care matters. This may be especially so where there has been a long relationship between the direct payment holder and the personal assistant. This Page 41 should not interfere with the medical duties of hospital personnel, but be tailored to work alongside health provision. Key learning point Where the nominated or authorised person managing the direct payment requires a hospital stay, the local authority must conduct an urgent review to ensure that the person continues to receive care and support to meet their needs. Example Peter is deaf and blind and is required to stay in hospital for an operation. Whilst the hospital pays for an interpreter for the medical interventions, Peter needs additional support to be able to move around the ward, and to communicate informally with staff and his family. The local authority and the NHS Trust agree that Peter’s communicator guide continues to support him in hospital, and is paid for via the direct payment, just as it was when Peter was at home. Personal and medical care is provided by NHS staff but Peter’s communicator guide is on hand to provide specialist communication and guiding support to make sure his hospital stay is as comfortable as possible. Question What can be done to ensure needs are met in hospital? Page 42 14. Discontinuing direct payments Slide 19 Notes 1. If a person decides that they no longer wish to continue receiving direct payments, the local authority should ensure there are no outstanding contractual liabilities and conduct a review of needs to consider alternate arrangements to meet needs. 2. A local authority may also stop direct payments, but this should only be done as a last resort if there is a breach of the regulations or the direct payment conditions are no longer met – see slides 7 and 8 for the conditions. This might happen for example if: the person no longer appears to be capable of managing the direct payments, or managing them with whatever support is necessary the person, or authorised person, fails to comply with a condition imposed under regulations to which the direct payments are subject for some reason the council no longer believes it is appropriate to make the direct payments – an example of this is if it is apparent that direct payments have not been used to achieve the outcomes of the plan the local authority is no longer satisfied for whatever reason that the authorised person is acting in the best interests of the beneficiary – direct payments must be discontinued. The local authority may wish to consider if someone else can act as an authorised person the person’s circumstances change and the local authority becomes prohibited from meeting the adult’s needs by making direct payments, e.g. as a result of mental health or criminal justice provisions ( See Schedule 1 of the Care and Support (Direct Payments) Regulations 2014). 3. Local authorities should explain to people, before they begin to receive direct payments, the exceptional circumstances in which this might occur and discuss with them the implications this has for the arrangements that individuals might make, and any obligations they may have. Page 43 4. It is hoped that effective, but proportionate monitoring processes will help local authorities to spot any potential issues before a termination is necessary. The local authority should discuss with individuals, their carers and any person managing the direct payments if it is considering discontinuing direct payments to them – in order to explore all available options before making the final decision to terminate the direct payments. For example, if ability to manage is an issue, the individual should be given an opportunity to demonstrate that they can continue to manage direct payments, albeit with greater support if appropriate. The local authority should not automatically assume when problems arise that the only solution is to discontinue or end direct payments. 5. A minimum period of notice should be established that will normally be given before direct payments are discontinued, but in serious cases the local authority may discontinue without giving notice. 6. There may be circumstances in which the local authority discontinues direct payments temporarily. An example of a temporary discontinuation might be when an individual does not require assistance for a short period because their condition improves and they do not require the care and support that the direct payments are intended to secure. The local authority will need to discuss with the person, their carer, and any other person how best to manage this. The person should be allowed to resume responsibility for their own care after the interruption, if that remains their wish, unless there has been a change of circumstances which means that there is no duty on the council to make direct payments or, in certain exceptional circumstances, the council decides not to exercise the power to make direct payments. 7. In all cases, the local authority will need to arrange the relevant care and support provision instead, to ensure continuity of support. Page 44 Slide 20 Notes 1. Where someone with capacity was receiving direct payments but then loses capacity to consent, the local authority should discontinue direct payments to that person and consider making payments to an authorised person instead, making alternative arrangements in the interim to ensure continuity of care. 2. If the local authority believes the loss of capacity to consent to be temporary, it may continue to make payments if there is someone else who is willing to manage payments on the person’s behalf. The situation should be: treated as strictly temporary and closely monitored to ensure that, once the person has regained capacity, they are able to exercise overall control over the direct payments as before. 3. If the person’s loss of capacity to consent becomes prolonged, more formal arrangements for an authorised person to take over receipt of the direct payment need to be put in place. 4. Direct payments to an authorised person must be discontinued where the local authority has reason to believe that someone who had lacked capacity to consent to direct payments has now regained that capacity on a long-term or permanent basis. The local authority should not terminate direct payments to the authorised person before beginning to make direct payments to the service recipient themselves or to arrange services for them, according to their wishes. 5. If the local authority is satisfied that the regaining of capacity will only be temporary, then it can continue to make direct payments to the authorised person, on the basis that the beneficiary should control how the direct payments are used. Page 45 15. Summary Slide 21 Questions What has struck you most about this session? Thinking about what you have learnt about direct payments (and on any other modules you have completed so far): What links can you make between topic areas? How might the necessary changes impact on your current arrangements? What might the key challenges be? Exercise What are your top three priorities in relation to direct payments? Complete the action plan to identify the next steps for each priority. Page 46 Appendices Links to key resources HMRC Tell HMRC about a new employee. This guide explains how to work out whether a worker is an employee or self-employed. It lists the key factors that affect employment status, and it explains how HM Revenue & Customs (HMRC) can help you get it right if a worker's status isn't clear. HMRC Register as an employer. This guide explains who needs to register as an employer, what information you'll need with you when you register, when you need to register and how to do it. HMRC PAYE and payroll for employers. This guide explains what you need to know as a new employer. It includes important information on setting up your payroll, paying employees, payments to HM Revenue & Customs (HMRC) and employment rights. HMRC Tell HMRC about a new employee. This guide tells you what checks you need to make on potential new employees, what you need to do to register as a new employer and how to get the information you must report to HMRC. TLAP (2012) Best Practice In Direct Payments Support – A guide for commissioners. This report was initially developed by Groundswell Partnership for the London Joint Improvement Partnership (JIP) and published in November 2011. This revised edition is launched through the Think Local Act Personal partnership and the London JIP to support commissioners in all parts of the country who are grappling with the same challenges of developing support services for much larger numbers of direct payments recipients. It was written with the support of the National Centre for Independent Living (NCIL) and was informed by representatives from London councils, direct payment support providers, people using direct payments in the London area, Directors of Adult Social Services and members of the Think Local Act Personal Partnership. HFMA (2012) Direct Payments for Healthcare is a practical guide produced by members of the HFMA’s Commissioning Finance Group working closely with the Department of Health’s personal health budget pilot sites. The guide provides an overview of the approach and focuses on the practical issues involved in the financial management of direct payments for healthcare. TLAP (2013) Self-Directed Support: Reducing process, increasing choice and control. This is a report of three workshops commissioned by the Think Local Act Partnership (TLAP) organised and delivered by Sitra. The workshops were held in April 2013 and aimed at council staff responsible for implementing Self-Directed Page 47 Support (SDS). The purpose of the workshops was to share experience and ideas on improving and reducing unnecessary process that has grown up around SDS. This brief report explains the background and context to the workshops and summarises the key themes that emerged from the discussion that took place. Some areas for further consideration are suggested. A number of case studies have been put together from councils that took part in the workshops giving examples of developing practice which show what councils are doing to improve their SDS processes. Skills for Care Employing personal assistants toolkit. This toolkit guides you through the process of employing a personal assistant and what to do when they are working for you, as well as helping you to understand your responsibilities as an employer and your legal obligations. There are some really useful templates that you can use such as job descriptions, application forms and contracts of employment. DH (2010) Practical approaches to safeguarding and personalisation. This briefing paper sets out how personalisation of support and more effective safeguarding can be mutually supportive. It shows how self-directed support can help to prevent or reduce the risk of harm and abuse. Local Government Association and Association of Directors of Adult Social Services (2014) Making Safeguarding Personal 2013/14: Selection of tools used by participating councils. A very useful collection of practical ways to actively involve adults in their own assessment, planning and control. Local Government Association Knowledge Hub: Adult Safeguarding Community of Practice Group. Interactive site where those working in adult safeguarding can post helpful documents and exchange information to improve practice. You need to register to access this site. Page 48 Handouts Handouts, exercises and case studies relevant to this topic area: Handout: Nominated and authorised persons Case Study: Florence and Mary Brown (person-centred care and support planning)