Recovery, Psychiatric Rehabilitation and Community Integration: The role of the Rehabilitation Case Manager’s Service Max Lachman, PhD. & David Roe, PhD. The Laszlo Tauber Family Foundation Mental Health Community Dep’t , Haifa University Israel Outline of presentation Recovery, Psychiatric Rehabilitation and Community Integration – a theoretical framework Psychiatric Rehabilitation in Israel The Rehabilitation Case Manager’s new service Research What can we learn from the Israeli experience into the International Psychiatric Rehabilitation Movement From Recovery to Community Integration Recovery Vision Rights and Legislation Psychiatric Rehabilitation Community Integration 3 The role of Self Determination Psychiatric Rehabilitation Self Determination Recovery Vision 4 Person – Centered Planning Self Determination Choices Self Directed Care Values of Psychiatric Rehabilitation Self-determination Dignity and worth of the individual Optimism or hopefulness for progress of improvement Belief in the capacity of individuals to improve self, learn, and grow Sensitivity/understanding to the culture of others Core Values of PSR Normalized Roles & Relationships Potential for Growth Pragmatism Learn by Doing Egalitarian Relationships Holistic Approach Blurred Professional Roles Guiding Principles Individualize services Maximize client preference and choice Ensure normalized, community basis Focus on strengths Use situational assessments Integrate efforts with treatment holistically Coordinate services, make them accessible Emerging Principles Multicultural Sensitivity Outcomes Focus Consumer Empowerment Collaboration Family Role “Recovery” Hope Prevention of Hospitalization Respect & Dignity Goal achievement Eclectic Approach Strengths PSR Program Elements Prevention - Case Management Vocational Social Education Residential Activities of Daily Living Health & Well Being Community Integration Definition The opportunity to live in the community and be valued for abilities and unique qualities like everyone else Housing Employment Citizenship and civic engagement Education Valued Social Roles (e.g., marriage, parenting) Health Status PEER SUPPORT Leisure/Recreation Self-Determination Spirituality Some data’s… In Israel 7.500.000 citizens. We evaluate 10 % of the population as having Disabilities. 70.000 – 120.000 Persons have Psychiatric Disabilities. This is the bigger group from all the Disabilities groups. People with Psychiatric Disabilities are underprivileged and suffer from discrimination. Barriers to Recovery and PR implementation in Israel Stigma Hegemony of the medical model Citizenship, war and recovery No enough basic training in Mental Health policy and practice inside the Universities Political base practice Developments of the Israel System of Care Reforms and deinstitutionalization process Shift in societal attitudes towards persons with disabilities Consumers movement (Family members & “Coppers”) New legislation and government appointed committees reports New Legislations Treatment of Mental Health Patient Act 1991 National Health Insurance Act 1995 Patient’s Rights Act 1996 Equal Opportunity for Disabled Persons Act 1998 Rehabilitation of Mentally Handicapped Persons in the Community Act 2000 Basket Rehabilitation Services Admission Criteria Types of services (“The Basket itself”) Individual Choice and Partnership The Role of the District Rehabilitation Coordinator 1. Responsible for all rehabilitation actives in their district. 2. Coordinates the committees for “basket of Services”. 3. Responsible for follow up on every client Plan in rehabilitation services in district. 4. Ongoing assessment of the need for new services in district. Basket Rehabilitation Services Admission Criteria Types of services (“The Basket itself”) Individual Choice and Partnership Number of Persons using Psychiatric Rehabilitation Services 16000 14000 12000 10000 8000 6000 4000 2000 0 1999 2000 2001 2002 2003 2010 Challenges No data management at all levels (referrals are very poor in quality and quantity, no data monitoring, no connection between the clinical and the rehabilitation data) Many clients are referred to rehabilitation without readiness to change Many clients use services without connections to their personal goals (self determination, abilities development, motivation) The community service system (Health, Mental Health, Welfare and Psychiatric Rehabilitation) is not coordinated and organized 20 (Marianne Farkas, 2006) Recovery means regaining a meaningful life within a given cultural context and according to the person’s personal goals The right according to the law The psychiatric rehabilitation law states that any adult with at least 40% Medical Psychiatric Disability of has the right to apply to a Regional Rehabilitation Basket Committee and present “an individual rehabilitation plan”. In a meeting with the committee, the person will be eligible to receive formal resources (services and rehabilitation interventions) so he/she can reach his personals goals and implement their individual plan. Obstacles to the implementation of the law Lack of motivation and involvement of the consumer during the plan creation. (domination of paternalistic attitude and forced elements during the process) A lack of preparation and guidance in implementing the plan after the committee decisions. "The client’s choice” throughout all the stages of the implementation of the plan is still limited. Conflict of interests between the consumer ’ will and ability and the economics interests of services providers. A lack of use of “Individual Rehabilitation Plan” as practice in the services. No systematic evaluation of micro-outcomes. The policy and the practice in Psychiatric Rehabilitation is not based enough on evidences of the efficacy of the services to enhance personal goals of the clients. (E.B.P.) The Service Definition The “Individual Rehabilitation Plan – Case management Service” is a new Rehabilitation Service to support persons with Psychiatric Disabilities. (who applied and receive approbation to their personal programs from the Regional Psychiatric Basket of Services Committee – Psychiatric Rehabilitation in the Community Law2000). Research Ministry of Health Baskets Committees Regional Coordinator Family New Service Case Managers Treatment Community Services Welfare, Heath Rights Consumers Access to Services Evaluation and Relationship Psychiatric Rehab. Services Rehabilitation Readiness Individual Planning Recommendations For ending the process Follow 25 up 25 o Strengths Model -Rapp C. o Rehabilitation Readiness, Boston University ,Farkas M. et al. o Definition of Setting an Overall Rehabilitation Goal (SORG) o Collaborative Goal Technology (CGT) -Oades L. G. et al. Prochaska and DiClemente’s Stages of Change Model o Recovery Interview – Lachman M. 26 26 Values and Attitudes The case managers will work in respect to the “client’s choice”. The relationship between the client and the case manager will be base on the principle of self-determination and full partnership. The main activities and tasks are: 1. Help the person access psychiatric rehabilitation services (defined by the regional committee) and follow the progress in achieving the different goals by the services. (Micro -Outcomes) 2. Assist the client redefine and initiate new plans and change to achieve more community integration and quality of life. This support will be based on the client’s will, strengths, and capacities in cooperation and support from the family and others professionals involved. Ministry of Health, Procedure No 88.001 Service components – Tasks and Expectations Mediation and brokerage between the client, the desire to build and advance an individual rehabilitation plan and the formal and informal resources. Establish a systematic way of monitoring the Rehabilitation service of care. Support and advocate the client voice in the decision process. Identify and recruit community resources to strengthening the individual rehabilitation plan . Make more resources available in the system by helping client use fit services, redefine needs and want and not be stock. Case manager Activities and tasks Individual support, given attention to the client preferences and will, follow-up and helping the process of change in a way the process of change can continue. Tailoring the individual rehabilitation plans by listening and knowing the particular expectations and needs of the client. Create coordination and division of tasks between all the partners (family, services, professionals and significant others). Assist in the demands of the Law for individual follow-up. Evaluation of outcomes (efficiency and efficacy of the services) Give interventions to client for enhancing readiness to change and be able define personal goals. Direct Professional activities Getting to know the clients and create a trust relationship. Evaluate the client’ desire of change. Define the the individual plan in the most operative level (objectives, tasks, scheduling, …) Recruiting internal and external resources for the plan realization. Knowing and being in contacts with the partners involved in the realization of the plan . Reporting and document the activities to the service and the “Rehabilitation Basket Committee” The Pilot deployment The service will be available in two “rehabilitation areas: An office will be established in each area, as a centre for operating the service. Each service will included: a professional area coordinator, 15 “rehabilitation case-managers”, and administrative staff. Most of the interventions will be provided close to the rehabilitation activity (mobility) Main role of the rehabilitation case managers Accompanying and serve a caseload of 30-42 clients Routine individual meetings with each clients for implementing and follow-up progress in their individual rehabilitation plan (at least twice a month) Routine sessions with the rehab service providers' staff for consolidating the plan and gaining detailed information on the advancement towards achieving personal goals that were specifically defined in the plan. Meetings with the program partners according to the need. Recruiting essential resources for enhancing the chances of a successful plan. Ongoing report on the daily activity and implementation of the program Initiating changes in the plan with the approval of the rehab basket team in the Ministry of health. Participating in staff meetings, individual counseling and various training programs Basic data on the service 33 Numbers of referrals to the service by the Rehabilitation Committees June 2009- Referrals 569 (63%) Referrals 862 (95%) Referrals 963 (107%) Dec 2009Feb 2010- *service data-Feb 2010.doc Gender males 613 (62%) females 363 (38%) 34 Active 526 (92%) Active 777 (90%) Active 843 (87%) Individual Rehabilitation coordinated Plan (IRP) Focused on client’s wants and needs Integrative rehabilitation plan for each client- plan per service vs. plan per person Review of the plan every 3 months The plan is computerized IRP Template *Format for Individual Rehabilitation Plan-Feb 2010.doc 35 Impact of Service on Rehabilitation System in Israel Enhance Recovery values into the way services are giving to consumers. Enhancing clients’ rights to choose services and plans. More Focus on the Person instead of Service 36 Study Goals Primary: To assess the effectiveness of the RPCS intervention for individuals suffering from severe mental illness compared to individuals receiving regular rehabilitation services (the control group) and compared to baseline. Secondary: To assess different subgroups relative to the efficiency of the service (age, gender, services used etc..). 37 Methodology Stratification and randomization: based upon a service- use and age stratification procedure. Wave 1 within the first 2 weeks or 4 meetings of service inception. Wave 2 after 20 month. Assessment based upon 3 sources: Structured face to face interviews Clinician ratings Ministry of Health database Two regions studied (Center North/South). Two control groups (Within & outside [Haifa]-of RPCS region) 38 Number of Interviews 1200 1000 800 600 Total 83% 86% 400 200 0 Ever In Service Currently In Service Interviewed Data collection so far- Wave 1 Experimental & Control Group Center Total (regions with service) Haifa (control region) Groups South North 805 420 385 713 202 110 401 Control 1518 622 495 401 Total Study 40 Stratification Results for ‘Veteran’ Users: expected vs. final sample* Service Weight Up to 30 years 31-55 years 55 years > Expected final Expected final Expected % % % % % final % Heavy 16 13 21 21 8 10 medium 12 11 17 21 6 6 Light 8 5 8 10 4 3 *User status was primarily based upon the use of housing services (from intensive to slight use). If no housing facility was used, user status was based upon the use of vocational services (from intensive to slight use). Information for this classification was provided by the Ministry of Health. Results based upon experimental and control ‘Veteran’ sample. ‘New’ users didn’t use any services and were thus not part of the stratification procedure. Interviews done since study inception: Overall Monthly 198 200 180 160 138 140 131 119 120 101 100 100 98 96 total participant 85 79 80 97 80 60 42 40 34 26 20 3 0 26 18 17 20 Primary findings: Characteristics of 925 participants 37% 63%* 18% חיפה Haifa צפון מרכז North South דרום מרכז 43% 39% חדש New ותיק Veterans Status Region 59% are study participants and 41% control group *Within the ‘New’ category there are between 15-25% veteran ‘Revolving 43 door’ service receivers Characterization of study and control groups Control Group Study Group 60.0% 61.4% 40.0% 38.6% 42 years (12.6) 37 years (12.3) Men Gender Women Mean Age (Sd) *p<.001 Most participants are single and with only basic or lower education 44 SCALE DOMAINS •Goals Number & Kinds Achievement Barriers & Support •Quality of Life (subjective and objective functioning) Physical Health Leisure Community Integration Residence Interpersonal/Social Employment Financial Education •Satisfaction •Optimism •Psychiatric Symptoms 45