Barriers & facilitators to smoking cessation experienced by pregnant women : a qualitative exploration Allison Ford, Lesley Sinclair, Kathryn Angus on behalf of study team UKNSCC 12th June 2015 Background & Aims Part of larger study funded by NIHR that aims to: • Enhance understanding of barriers and facilitators to cessation in pregnancy and after birth from 3 perspectives: ‒ Pregnant women ‒ Partners/significant others ‒ Health care professionals • To inform recommendations for practice • Provide foundation for development of proposals for interventions that can be tested in future Larger Study Components Pregnant Women Partners/ Significant Others Health Care Professionals Systematic Reviews (Qualitative Studies) Exploratory Studies (2 sites) 38 studies in 42 papers 41 women continue to smoke/recently stopped Barriers & facilitators not fixed/mutually exclusive 9 studies in 14 papers Perspective of partners under-researched 8 studies in 9 papers Organisational context & lack of knowledge/skills act as barriers 10 post-partum women 32 partners/significant others living with pregnant women 48 health care professionals involved in care of pregnant women Exploratory Study with Pregnant Women Objectives: • Identify common barriers and facilitators to smoking cessation in pregnancy • Identify factors that could potentially be incorporated into future interventions to aid both uptake of support and cessation Recruitment: • Women recruited from 2 NHS sites – 1 in Scotland and 1 in England • Differences in service configuration / recruitment methods between sites • Inclusion criteria: self-reported smoker at maternity booking Interviews: • • • • Fieldwork conducted Nov-13 to Sep-14 Face-to-face depth interview in woman’s home - 30 mins to over an hour Informed consent obtained prior to interview Ethical approval obtained from NRES Sample Characteristics • Scottish site n=21 – all engaged with SSS • English site n=20 – 20% engaged with SSS Age Mean (Range) 26 (16-42) Under 25 yrs 44% (18) 25yrs or over 56% (23) Deprivation (IMD) Most Deprived 50% (20) Scottish Site 71% (15) English Site 25% (5) Gestation Smoking Status Mean (Range) 19 weeks (12-29) Smoking 63% (26) Not Smoking 37% (15) Analysis • Framework approach • Social Ecological Model Social-ecological models • facilitate ways of understanding individuals in the context of their environment • typically locate the individual in a set of concentric circles (or layers) Key features model recognises • multiple factors that influence behaviour and behaviour change - Individuals and their environments change and both influence each other • interventions are more likely to be effective if they address multiple layers of the system Key Findings: Individual Environment Barriers Facilitators • Boredom /stress • Sickness during pregnancy • Lack of understanding / avoidance of risk • Perception of risk to baby / own health (live longer) • Self-efficacy – self doubt in quitting ability, lack of willpower and perceived lack of control over smoking • Self-efficacy – determination, confidence and willpower to quit, being able to draw on coping strategies when attempting to quit Key Findings: Interpersonal Environment Barriers • Continued partner smoking/ attitudes/ double standards • Impact on relationship – useful tool in maintaining good relationship Facilitators • Partners cessation efforts • Practical & emotional support provided by partners • Other women’s stories and • Exposure to other women’s stories experiences of smoking in and experiences - endorsement that pregnancy can reinforce risks smoking in pregnancy OK • Positive responses to women quitting from family i.e. sense of • Lack of pressure/judgement from pride family (esp. mothers) & friends Key Findings: Organisational Environment 1 Barriers Facilitators • Lack of cessation support provided by midwives – focus on gathering information on smoking behaviour/referral • Midwives raising the issue at subsequent appointments • Little detailed risk information delivered by midwives • Offering flexibility in method of support helps with perceived barriers to attending SSS appointments – level, frequency, home appointments • Negative image of SSS either through expectations or previous experience • Automatic referral Key Findings: Organisational Environment 1 Barriers Facilitators • Lack of cessation support provided • Midwives raising the issue at by midwives – focus on gathering subsequent appointments ‘I smoking think Imidwife felt I tried like,really to theask midwife, questions her she job,about [midwife] it’smyher job ‘The didn’t speak tothrough me ‘She [midwife] just wanted toit’s getbut information‘Cause on ‘Obviously itall willthe, harm the baby, butreferral not, I was more kinda to give told you me that she’s like not all a the specialist… information behaviour/referral • Automatic likeand you get know what theout, smoking notes them filled it askscan youcause on theabout that’s all to shewhile said you’re really,what it’s obviously just being wanting healthy know kinda pregnant theashe damage, and all the what and things like that, it was just … just notes if you smoke and how many day, and harming thehappen baby, she didn’t say flexibility noughtso[And] • Little detailed risk information •kept Offering infeels method of information was going to that she can if I about smoking,… your baby, it I mentioned about the smoking cessation and she went onto if I drank and how much delivered by then midwives support helps withI perceived much else about it’. (Site B PW11 S) more, kinda it’s wanted I don’t know know, attake thatitto stage feels what aattending bit more she asked melike, if to I’d like to part and was[NRT I SSS drank. She didn’t really stop talk about barriers to acceptable products] coming I could from use. her. did ‘Cause think shemyknows midwife what’s (Site PW14 smoking.’ (Site BAIPW12 NS) • Negative image of SSSinterested’ either appointments – level, frequency, she’s wouldtalking know about — whether and it’s she’s like,a it’s smoking specific specialist to your through expectations or previous home appointments experience situation or not — — she’d it feelsknow morewhat specific’. was dangerous (Site A PW5 andS) what was’nae dangerous.’ (Site B S) Key Findings: Organisational Environment 1 Barriers Facilitators • Lack of cessation support provided • Midwives raising the issue at by midwives– focus on gathering subsequent appointments information on smoking behaviour/referral Automaticbut referral ‘That was the first one •[midwife], then, ‘She did like the first time when I said I was still that was a stand-in and then I had another smoking she did give me the whole, this is whatinitmethod of • Little detailed risk information • Offering flexibility one the other day and shesupport never mentioned it delivered by midwives helps can do and that, but that was it after that,with she perceived either [smoking]… which I thought was attending never kept mentioning it’barriers (Site B to PW7 NS) SSS strange’ (Siteappointments A PW7 S) – level, frequency, • Negative image of SSSquite either through expectations or previous experience home appointments Key Findings: Organisational Environment 1 Barriers Facilitators • Lack of cessation support provided by midwives – focus on gathering information on smoking behaviour/referral • Midwives raising the issue at subsequent appointments • Little detailed risk information delivered by midwives • Offering flexibility in method of support helps with perceived barriers to attending SSS appointments – level, frequency, home appointments • Negative image of SSS either through expectations or previous experience • Automatic referral Key Findings: Organisational Environment 1 Barriers Facilitators ‘Cause I don’t know because I have heard bad things • Lack of cessation support provided • Midwives raising the issue at about them. mum are more patronising ‘...the woman I sawsaid wasthey a bit rude really, she was by midwives – focus onMy gathering subsequent appointments they helping so Inot said wellofI don’t really informationthan on smoking a bit youare know ‘do you think your unborn want toand do that gobut somewhere and behaviour/referral Automatic referral child’, I wasbecause like wellif• Iyes you know, I am someone is saying oh it’s badhere that toyou here for help about it, really I am not feelsmoke like • Little detailed risk information • Offering flexibility innot method of andcrap this,you thatknow and the other I will just be like I am about it... like God ifhelps I didn’t need delivered by midwives support with perceived giving upa cig then. If they patronising then there before youare know. (Site BtoPW8 S) isSSS barriers attending no point going because you just, they make you frequency, • Negative image of even SSS either appointments – level, feel like rubbish rather than supporting you and stuff. through expectations or previous home appointments experience (Site B PW17 S) Key Findings: Organisational Environment 1 Barriers Facilitators • Lack of cessation support provided • Midwives raising the issue at by midwives – focus on gathering subsequent appointments information on smoking ‘I can’t nip out and I can’t…and he [partner, behaviour/referral • Automatic referral smoker] is the same really. We both work very squeezing a little• appointment in is just • Little detailedhard riskand information Offering flexibility in method of delivered by not midwives possible’ (Site B PW9 S)support helps with perceived • Negative image of SSS either through expectations or previous experience barriers to attending SSS appointments – level, frequency, home appointments Key Findings: Organisational Environment 2 Barriers Facilitators • Relationship with midwife, • Positive relationships with SSS lack of pressure to quit, advisors / advisor continuity access SSS, ‘She [MW] said well we can talk about it again at quitting framed as woman’s choice sixteen weeks when I see•her and then nothing of risk, COagain, monitoring – indicator for motivation, else was really said aboutuseful it. It wasn’t pushed on me encouragement, or anything’ (Site B PW4 S) feedback & consideration of passive smoking Key Findings: Organisational Environment 2 Barriers • Relationship with midwife, lack of pressure to quit, access SSS, quitting framed as woman’s choice Facilitators • Positive relationships with SSS advisors / advisor continuity • CO monitoring – indicator of risk, useful for motivation, encouragement, feedback & consideration of passive smoking Key Findings: Organisational Environment 2 Barriers Facilitators • Relationship with midwife / lack of • Positive relationships with SSS pressure to quit/access SSS, 2] herself had advisors / advisor continuity Because [name smoked previously quitting framed as woman’s choice and shefantastic, had stopped and she knew, she had more ‘Oh her support’s been really good, ofyou anknow understanding and•the because I would–have … it was just of COapprehension monitoring indicator of risk, ‘She is just always there, you know I can found it very if she hadn’t thinking ‘Oh,contradicting how am I going tofor do this?have … useful motivation, text and I can be open encouragement, and honest aboutfeedback & smoked andI somebody wasnow?’ tellingand me ithow ‘How am going to stop wasbad justit what my needs are’ (Site A PW18) of passive smoking consideration was ... I would found itencouragement very hard if she speaking to her,have just getting hadn’t (Site B (Site PW3ANS) and stuff, it’ssmoked’ been fantastic. PW12 NS) Key Findings: Organisational Environment 2 Barriers Motivation & Feedback Facilitators They told me all the risks, and it just did’nae sink in Repeat to see the/ actual to relationships have physicalwith SSS • Relationship ‘And with midwife lack ofdifference, •testing Positive But see when it goes up it’s horrible, but even if1,it the midwife, it wis’nae until I went wi’ Name pressure towi’ quit/access SSS, quitting advisors / advisor continuity ‘two weeksyou’re I’dmaybe quit smoking I went tothe see evidence, Iafter think people‘cause would beingot like ‘Actually quite shocked it’s only goes up a couple, my mum still smokes, so like and she showed me what carbon monoxide was in ‘I‘wow’. wis’nae thinking about me taking in the fumes, framed as woman’s choice her again and Ijust did now, the same test and result Whereas because you the can’t see foetal thing tae upset and, soonly itgotells you what a’NS) the ifand she is having aand fagken, Iwas don’t near her anymore, the baby’s lungs, I maybe nine weeks that kinda me a bit’. (Site A PW11 came upand as athat zero…. honestly I’ve, I’veIthat never been the damage that smoking does toquite, you, think it’s • CO monitoring – indicator of risk, levels are, so that was was a but shethen, used so to smoke instill, thehe house and nowa’she pregnant he was still needed his that (Site A PW12 NS) less kind ofthrilled’ in your face’ (Site Afor PW21 NS) useful motivation, shock… (Site A PW11 NS) doesn’t she smokes outside. (Site A P17 NS) crucial things to develop and stuff, I think that’s encouragement, feedback & what made me just realise…,consideration I had my lastoffagpassive on smoking the Thursday and that was when I stopped, after I’d been to see Name 1 (Site A PW3 NS) Conclusion & Next Steps Conclusion • Interventions must take account of interplay between the individual, interpersonal and environmental aspects of women’s lives Next Steps • Compare and contrast with partners and healthcare professional findings • Inform recommendations for practice • Consider development of proposals for interventions that can be tested in future Project Team Chief Investigator - Professor Linda Bauld University of Stirling University of York University of Cambridge Dr Allison Ford Professor Hilary Graham Dr Felix Naughton Lesley Sinclair McCaughan Dr Kate Flemming Dorothy Kathyrn Angus Sarah Hopewell Dorothy McCaughan Jennifer McKell NO CONFLICTS OF INTEREST THANK-YOU (l.a.sinclair@stir.ac.uk)